Princess Royal Trust
Lanarkshire Carers Centre
NHS Lanarkshire
Carers Information
Strategy
Strategic Context
• NHS Lanarkshire Information Strategy approved by NHS
Lanarkshire Board – March 2007.
• NHS Lanarkshire Carers Information Strategy & Action Plan
Approved by Scottish Government – November 2008.
• Partnership Working – Carers Information Strategy Group,
comprising:
– NHS Lanarkshire (Acute & Community).
– North Lanarkshire Carers Together.
– South Lanarkshire Carers Network.
– Princess Royal Trust.
– South Lanarkshire Council.
– North Lanarkshire Council
Action Plan Developed Through
CISG inclusive of all Partners
• Updated each year.
• Monitored on a monthly basis.
• Strong linkages in relation to Carers
strategy groups.
• Funding Sub Group with transparent
application process
• Carers Support Team
NHS Lanarkshire
Carers Information Strategy
Working with Carers
A Partnership Approach
NHS Lanarkshire
Carers Information Strategy

Carer Development Officer’s Post is funded by
NHS Lanarkshire as part of the NHS Carers
Information Strategy.
Core Functions

Develop links with Carer Co-ordinator Posts in
Acute to ensure Carer Support

Develop links with GP/Liaison Personnel within
Practices to ensure identification of Carers.

Develop links through Community Health
Partnership process to Locality Management
process.

Identify and develop Good Practice in relation to
Carers within Locality settings.
Outcomes
Carer Support Team; 7 personnel team to
achieve Carer awareness in:
Acute/Primary Care
This ensured early understandings of the
Development Officer’s remit.
Representation on Public Partnership
Forums and South Public Partnership
Forum. Contacts were also made with
Local NHS Managers.
Enable Joint Services to roll out good
practice throughout South Lanarkshire
NHS Lanarkshire
Carers Information Strategy
Core Functions
Outcomes

Carers supported at all stages in Primary
Care.
To identify and develop support process for
Carers in Primary Care setting.
Task - Develop Carers Health Needs
Database


More Carers informed and supported
To identify and develop Carer Awareness
Training needs in Primary Care Staff.
To provide data on Carers issues which will
inform Community Health Partnership Locality
Management and Joint Services protocols of
Carers support needs.
Carers resourced with condition specific
information and training
Better knowledge of Carer needs.
Robust approach to Carer Awareness
Localised strategic approach to Carer
issues which will inform and enhance
Local Improvement Targets.
NHS Lanarkshire
Carers Information Strategy
Aims
Raise awareness of the Carer Support Team in NHS Lanarkshire
Increase Carer awareness with NHS Lanarkshire wide service providers
Identify Hidden Carers
Develop Carer awareness training for NHSL colleagues
Link with co-ordinators in acute hospitals
Develop partnership working with statutory and voluntary organisations to raise awareness and support
carers
Work with GP practices to develop their Carers Register
Ensure Carer issues are raised at a strategic planning level
Carry out Carers Health Needs Survey
Research study exploring the health needs of carers including young carers
NHS Lanarkshire
Carers Information Strategy


Task
How to make effective use of notice boards in GP
practices
Outcomes
Produce good quality information for Carers
and Professionals
Provide good quality support for Carers


Other work within GP practices
Work with professional staff – training

Overall impact of raising awareness of Carer
issues – good and challenging
Offer GP practices Carer awareness sessions
training, good signposting and protocols
Working with practice staff in order to
increase Carer Register
Share good practice
Good outcomes
Carer positive outcome
Being part of the annual NHS Health Review
Carer Support Team Event
Future Challenges
Continuing the Service
NHS Lanarkshire
Carers Information Strategy
SUPPORTING CARERS
How the GP practices can assist
Carers support
Highlight the Carers Support Team at staff meetings
Facilitate awareness sessions for staff
Ensure Carers are on the agenda
Mechanisms to identify Carers / Young Carers
Signpost Carers to Carer Assessment
Referral & Signposting
Publicity
NHS Lanarkshire
Carers Information Strategy
Working with addiction services
Partnership board for addictions multi agency group meets monthly. Representation from social services, health,
housing, service users, voluntary sector etc... My colleague participates in this meeting representing carers and young
carers and ensure their issues and involvement in caring for someone with an addiction is raised.
Hep C immunisation group – discusses immunisation of “at risk” clients many of whom abuse substances.
Highlighted the need to consider carers and young carers in this as close / household contacts.
Carers Affected by substance misuse – My colleague represent health & NLCT on this multi agency group looking
at information available for those who care for or affected by substance misuse. Currently looking at producing a
generic leaflet which will inform all.
Have carried out a number of awareness and training sessions to North community addiction teams in relation to
recognising carers and young carers. Have emphasised the importance of recognising young people who may have a
caring role (hidden carers) and assessing and communicating effectively in order that their needs are recognised and
addressed/met.
NHS Lanarkshire
Carers Information Strategy
•Equality & Diversity
Update on BBV Support worker
Additional funding secured to provide bi lingual Support worker (English & Urdu) for carers affected by
Blood borne Virus i.e. this can be their own health condition or they care for someone with BBV. Carers
affected by BBV, high prevalence in South Asian communities therefore need for bi lingual worker
Currently recruiting for this post
Main remit:
Engage with BME communities
Actively encourage people to be screened
Inform people of the high risks involved
Provide one to one support
Information – translated where required
Form filling
Access to services
Access to grants/benefits
Written/oral translations in Urdu, Punjabi, & English
BME Carer support worker post
Bi –lingual post as majority of known BME carers are from Pakistan or India. Full time post since Aug 09.
Provides
Identify BME carers, One to one support, facilitates International women’s Group, Information, Access to
services, training, translated material where required, etc. Access to and involvement in planning suitable
Centre services
Address cultural and language barriers
NHS Lanarkshire
Carers Information Strategy
Carer Review with BME carers
Carer Review – 21 BME participants
21 agreed contact with Centre had helped them take more control. 95% accredited information; 48%
accredited training and 81% said because they were helped to access services
21 agreed that contact with Centre had helped them take care of their own health & wellbeing:
57% accredited training; 57% said they were less stressed; 63% benefitted from the pampering and
90% felt better because they had opportunity to get together with other BME carers
21 agreed contact with the Centre helped them feel less alone:
76% said this was because they had someone to talk to; 81% benefitted from a BME and a local CSW
and 38% enjoyed the social activities and opportunities
21 agreed contact with the Centre helped them to carry on with caring role:
71% said they felt a relief from isolation; 76% had made new friends; 71% had enjoyed the social
events and 76% said they felt better able to carry on because they knew information and support was
always available from the Centre.
NHS Lanarkshire
Carer Information Strategy
Contact Information
Hairmyres Hospital
Elaine Harrow 01355 585522
Monklands District General Hospital
Lesley Callan 01236 712566
Wishaw General Hospital
Elizabeth MacDonald 01698 366118
North Lanarkshire Carers Together
Marion McParland, Agnes Hadden, Pauline McIntosh 01698 404055
South Lanarkshire Carers Network
Linda Craig 01698 285163
CO ORDINATOR FOR CARERS
ACUTE
1 Co ordinator for each Hospital
Elaine Harrow – Hairmyres Hospital
Lesley Callan – Monklands Hospital
Elizabeth McDonald – Wishaw General Hospital
Post began May 2008
CARERS RECOGNISED AS
‘KEY PARTNERS’
IN THE PROVISON OF CARE
A Two Person Journey
ADMISSION
TREATMENT
DISCHARGE
ADMISSION
A & E / Acute Admission Wards
Carer information Section – Admission Form
 6 month - Hospital case note review
Hospital Wards and Departments
• Networked into all wards and Departments
• Established how aware staff are of the
• ‘Key Partners’ in Care approach
• Continually raise awareness amongst NHS staff of
Carers/Carers issues
• Developed an awareness raising programme
Awareness Raising Programme
•
CARERS RECOGNISED AS
‘KEY PARTNERS’
IN THE PROVISON OF CARE
•
COMMUNICATION & LISTENING SKILLS
•
PROMOTE THE NEED TO BE MORE SUPPORTIVE AND PROVIDE
INFORMATION.
•
IMPROVE KNOWLEDGE AND ABILTY TO SIGN POST CARERS TO
CARER SUPPORTS
•
DISTRIBUTE HOME FROM HOSPITAL PACKS TO CARERS
•
IDENTIFY HIDDEN CARERS
•
ENSURING CARERS RECEIVE CONDITION SPECIFIC
INFORMATION
HIDDEN CARERS
IDENTIFY ‘HIDDEN CARERS’
A CARER WHO DOES NOT RECOGNISE
THEMSELVES AS A CARER
IF HIDDEN CARERS DO NOT
RECOGNISE THEMSELVES AND
PROFESSIONALS DO NOT RECOGNISE
THEM
THEY CAN’T BE SUPPORTED OR
SIGN POSTED
HOME FROM HOSITAL PACK
SUPPORTED PACK FOR CARERS
Section 1 – Before leaving Hospital – Discharge Planning
Section 2 – After Leaving Hospital – Services in the Community
Section 3 – Finances – Costs and Benefits
Section 4 – Your Rights as a Carer
Section 5 – Useful Contacts
 Monitoring and evaluation programme implemented
 6 month audit – Benefit of packs- via follow up phone
calls
DISCHARGE PLANNING
• Review hospital admission and discharge procedures to ensure carers needs are
addressed.
 Co ordinator for Carer member of sub -group addressing these issues.
• Close liaison with Discharge team
• Attend multidisciplinary meetings in wards:
 Liaison with consultants, nurses, OT, Physiotherapist, Social Workers.
• Support Carers at hospital Case Conferences
ROBUST REFERRAL SYSTEM
• Photographic Service information cards and referrals
forms in all wards and Departments.
• Carer specific information boards at entrance of all 3
hospitals.
• Regular display information stands for professionals
and Carers in hospitals and primary care sites.
• Development of link nurses in wards and departments
ASSESS AND MEET THE
INDIVIDUAL
NEEDS OF FAMILY, FRIENDS
AND CARERS WHILE
THE PATIENT IS IN
HOSPITAL
EXPLAIN THE ROLE
OF THE STAFF INVOLVED
IN THE CARE
PROCESS
FOLLOW UP CALL
TO HOME
FOLLOWING DISCHARGE
ROLE OF THE CO ORDINATOR FOR CARER
ACUTE HOSPITALS
INVOLVE FAMILY FRIENDS
AND CARERS
IN PLANNING PATIENT
CARE
AND DISCHARGE
ENSURE FAMILY FRIENDS AND CARERS
HAVE NECESSARY SKILLS
BEFORE DISCHARGE THROUGH
EDUCATION
AND TRAINING
HIGHLIGHT AND SIGN POST
CARER ORGANISATIONS
IN THE
COMMUNITY
Hospital Referrals from all 3 sites
April 09 - December 09
TOTAL 647
100
80
60
81
70
80
80
90
76
75
45
50
40
20
0
Apr-09 May-09 Jun-09 Jul-09 Aug-09 Sep-09 Oct-09 Nov-09 Dec-09
Referrals to Carer Support Agencies from all 3 sites
April 09 - December 09
TOTAL 330
46
50
40
35
39
41
37
32
32
32
36
30
20
10
0
Apr-09 May-09 Jun-09 Jul-09 Aug-09 Sep-09 Oct-09 Nov-09 Dec-09
Referrals to other Services from all 3 sites
April 09 - Decemeber 09
70
58
60
50
40
30
30
20
14
10
0
Primary Care Trust Social Work Dept
Pension Service
Follow up Phone calls
April 09 – Dec 09 - 448 Follow up calls
6 months data collection.
Outcomes:







Carer Support Agencies referrals
Social work referrals
The Pension service referrals
GP register
Carers assessment
Home from Hospital packs
Discharge plan
Carer Support team Information Event
Friday 4th December 2009
Alona Hotel ,Strathclyde Park
25 – SERVICES / AGENCIES PARTICIPATED IN THE EVENT
107 - PEOPLE REGISTERED AT THE EVENT:
72 PROFESSIONAL
35 CARERS
25 Referrals
497 Enquires
Power Point Presentation
Carers Health Issue Play DVD
Carers Story Board
FUTURE GOALS
 Review of carer education and training by
professionals in acute setting.
 Exploring ways of improving
identification young carers in acute
setting.
 Improve Carer Information within
Admission forms
THANK YOU FOR YOUR
ATTENTION
• Questions