Ethical Decision Making in Clinical Neuropsychology Shane S. Bush, Ph.D. Long Island Neuropsychology, P.C. Lake Ronkonkoma, NY 1 “Principles have no real force except when one is well-fed.” Mark Twain (1835 - 1910) “Grub first, then ethics.” Bertolt Brecht (1898 - 1956) (German Playwright) 2 Disclosure 3 Learning Objectives 1. Be able to describe ethical challenges encountered in clinical neuropsychology. 2. Be able to identify ethical issues in clinical vignettes. 3. Become familiar with an ethical decisionmaking model and be able to apply the model in a manner consistent with positive ethics. 4 Common Ethical Challenges in Psychology Pope and Vetter (1992) - random sample of APA members regarding major ethical dilemmas encountered in daily work: 1. confidentiality 2. blurred, dual, or conflictual relationships 3. payment issues 4. forensic issues 5. assessment issues 6. competence 5 Common Ethical Challenges in Neuropsychology Brittain, Frances, & Barth (1995) collected ethically challenging vignettes from ABCN diplomates. Most dilemmas involved: ► Boundaries of competence ► Appropriate use of assessments ► Interpretation of assessment results 6 Common Ethical Challenges in Neuropsychology continued Primary ethical challenges identified by a panel of neuropsychologists with considerable experience addressing ethical issues. ► Professional competence ► Increasing involvement of neuropsychologists in forensic activities ► Apparent misconduct of colleagues (Bush, Grote, Johnson-Greene, & Macartney-Filgate, in press, TCN) 7 Common Sources of Ethical Conflict in Clinical Neuropsychology (Bush, Grote, Johnson-Greene, & Macartney-Filgate, in press, TCN) Based on my professional experiences and familiarity with the literature, I provided a list of 12 common sources of ethical conflict in clinical neuropsychology. 8 Common Ethical Challenges cont 1. 2. 3. 4. 5. 6. Professional competence Roles & relationships – dual/multiple Test security / release of raw test data 3rd party observers Confidentiality Assessment 9 Common Ethical Challenges cont7. 8. 9. 10. 11. 12. Conflicts between ethics & laws False or deceptive statements Objectivity Cooperation with other professionals Informed consent / 3rd party requests for services Record-keeping & fees Consider practice context/jurisdiction 10 1. Professional Competence ► Transitioning practice from clinical to forensic ► Establishing and maintaining competence - current scientific and professional literature, supervision/consultation ► Peer review ► Recognize boundaries of competence 11 2. Roles & Relationships – dual/ multiple ► Avoid conflicts of interests, such as serving as the treating doctor and forensic expert Performing a forensic evaluation of a patient with whom one has a current or preexisting therapeutic relationship would constitute a dual role and is considered unethical (Barsky & Gould, 2002; LeesHaley & Cohen, 1999; Melton et al., 1997). ► Clarify expectations with the patient/retaining party at the outset 12 3. Test Security/Release of Raw Test Data ► Balancing discovery requirements with ethical and legal obligations to maintain test security ► Steps should be taken to maximize test security while complying with discovery requirements. See NAN position papers (nanonline.org) 13 4. 3rd Party Observers ► Threatens validity of test data – affects performance ► Threatens test security ► WAIS-III Manual: “As a rule, no one other than you & the examinee should be in the room during the testing” (p. 29). ► An examinee’s right in some jurisdictions 14 5. Confidentiality ► Expectations & limits must be clarified with all parties at the outset. 15 6. Assessment ► Methods must be sufficient to substantiate conclusions/opinions ► Conclusions must be based upon established scientific evidence ► Significant limitations of interpretations/ opinions must be described (in detail) Explain what is meant by “interpreted with caution.” 16 7. Conflicts Between Ethics & Laws ► E.g., 3rd party observers, raw test data ► Make known commitment to ethics, attempt to resolve/compromise, follow the law ► Caution is recommended in seeking legal advice from attorneys who have a stake in the case 17 8. False or Deceptive Statements ► Avoid misleading conclusions and reporting of credentials (e.g., “board eligible”) ► Having an inaccurate belief is not necessarily unethical ► Forensic contexts allow for unsupportable beliefs to be challenged and negated; however, knowingly making statements that are without support may warrant formal review 18 9. Objectivity ► “To suggest that remaining unbiased amidst various powerful forces can be difficult is an understatement.” (Sweet, Grote, & van Gorp, 2002) ► “Regardless of amount of prior forensic experience, debiasing strategies…can also be useful.” (Sweet, Grote, & van Gorp, 2002) ► Base rates 19 Objectivity continued Proactive Self-Examination ► Passive reliance on the belief that one is “ethical” and doing quality work is not sufficient to avoid ethical misconduct. Professionals must be assertive in seeking knowledge, skills, and feedback related to ethical forensic practice ► Seek feedback from colleagues doing work different from yours (e.g., plaintiff v. defense) 20 10. Cooperation with Other Professionals ► “Respect the rights of others to hold values, attitudes, and opinions that differ from their own.” (APA, 1992, ES 1.09, Respecting Others) ► A psychologist acting as an expert is not entitled to decide unilaterally whether a particular licensed clinical psychologist is competent to review test materials and results (Sweet, 1990) 21 Cooperation with Other Professionals continued Addressing A Colleague’s Apparent Ethical Misconduct ► Exercise caution to ensure that perceptions of incompetence or nonobjectivity are not overly reflective of professional or ideological differences. ► Initiating ethical complaints during a trial could represent or appear to represent opportunism and could produce unfair advantage 22 Cooperation with Other Professionals continued Addressing A Colleague’s Apparent Ethical Misconduct continued “If ethical concerns that arise within a forensic context remain salient after the case has concluded, then it is appropriate to consider whether any action is necessary.” (Sweet, 2005) 23 11. Informed Consent / 3rd party Requests for Services ►Clarify at the outset of the service the nature of the relationship, including: role identification of client anticipated uses of services provided limits to confidentiality payor 24 Informed Consent / 3rd party Requests for Services continued ► Decision to participate must be made in a “knowing, intelligent, & voluntary way” (Heilbrun, 2001) Partial consent (except when court ordered) Assent / surrogate (when examinee lacks capacity) ►Notification of purpose 25 12. Record-Keeping & Fees ► Do APA guidelines and legal requirements regarding records, established for clinical services, apply to forensic services? ► Reimbursement is for time, not opinions ► Fees should not be contingent upon the outcome of the case 26 How do you know if you’re facing an ethical problem? ► Obvious problems (e.g., sex w/ clients) ► Less obvious problems (defining the client) ► Unique variations ► Combinations 27 Resources ► Ethics ► ASPPB codes Code of Conduct ► General bioethical principles ► Position papers & specialty guidelines ► Articles, chapters, books 28 Resources continued ► Courses, ► Ethics workshops committees ► Liability insurance carrier ► Experienced & knowledgeable colleagues ► Laws 29 Addressing Ethical Challenges or Uncertainty ► Consulting problem colleagues & the “I think” 30 Ethical Decision-Making Models vs. “Bottom-Line Ethics” 31 Ethical Decision-Making Models ► Canadian Psychological Association, 2000 ► Haas & Malouf, 2002 ► Hanson, Kerkhoff, & Bush, 2004 ► Kitchener, 2000 ► Knapp & VandeCreek, 2003 ► Koocher & Keith-Spiegel, 1998 32 5 Common Steps (Knapp & VandeCreek, 2003) 1. 2. 3. 4. 5. Identification of the problem Development of alternatives Evaluation of alternatives Implementation of the best option Evaluation of the results These models did not adequately consider emotional and situational factors or the need for an immediate response in some situations 33 8-Step Model (Bush, Connell, & Denney, 2006) 1) Identify the problem 2) Consider the significance of the context and setting 3) Identify and utilize resources 4) Consider personal beliefs and values 34 Bush et al. Model continued 5) Develop possible solutions to the problem 6) Consider the potential consequences of various solutions 7) Choose and implement a course of action 8) Assess the outcome and implement changes as needed 35 DOCUMENT DOCUMENT DOCUMENT 36 When To Utilize Resources & Apply the Model Preparation Reaction 37 Remedial Ethics In the tradition of remedial ethics, “disciplinary codes represent only the ethical ‘floor’ or minimum standards to which psychologists should adhere” (Knapp & VandeCreek, 2006; p. 9). 38 Positive Ethics (Handelsman, Knapp, & Gottlieb, 2002) ►A shift in emphasis from misconduct and disciplinary action to the active promotion of exemplary behavior ► Pursuit of ethical ideals – aspirational principles 39 Positive Ethics continued (Handelsman, Knapp, & Gottlieb, 2002) ► Proactive, not reactive ► Selecting the optimal ethical option often requires more than simply avoiding ethical misconduct (risk management); it requires a commitment to pursuing the highest ethical principles. 40 Positive Ethics continued ► Why not? “It is easier to fight for one’s principles than to live up to them.” Alfred Adler (1870-1937) 41 Case 1: Raw Test Data ► Request for records from an attorney / non-neuropsychologist ► What to do? 42 Case 1 Analysis 1) Identify the problem Test Security - invalidate future test results - redevelopment Nonmaleficence / General beneficence Laws - client access to records - discovery - copyright / proprietary rights 43 2) Consider the significance of the context and setting Forensic Attorney or court is client Discovery 44 3) ► Identify and utilize resources APA Ethics Code Release of raw data (ES 9.04) Maintaining Test Security (ES 9.11) 45 RELEASE OF RAW DATA (ES 9.04) ► Test data: scores, responses, notes ► With pt. release, psychologists provide data to the pt. or others identified in the release ► May refrain from releasing data to protect from pt./others from substantial harm, misuse, or misrepresentation of data or the test 46 MAINTAINING TEST SECURITY (ES 9.11) ► Test Materials = manuals, instruments, protocols, & test questions or stimuli ► Does not = test data ► Psychologists make reasonable efforts to maintain the integrity & security of test materials & other assessment techniques consistent w/ law & contractual obligations, & in a manner that permits adherence to this ethics code 47 Problems with ES 9.04 & 9.11 ► The distinction between test data (examinee responses) & test materials (stimuli) is artificial. E.g., with verbal learning or visual reproduction measures, the responses/data are the stimuli/ materials. ► Providing test responses w/o the context of the test questions will have a high probability of misinterpretation/misuse/ harm. 48 Clarification from APA Ethics Office: once test materials have responses written on them, they “convert” to test data (Behnke, APA Monitor, 2003, 34,7). ► APA ► By writing responses on test materials, the test materials are no longer test materials and no longer fall under the protection of ES 9.11. 49 ► 2002 Code: it is important to safeguard test materials (e.g., protocols) when they are blank but not when they have answers written on them. ► This position: facilitates release of records does not facilitate the safeguarding of psychological tests is inconsistent with other ethics resources is inconsistent with copyright laws 50 Standards for Educational & Psychological Testing ► 11.7: Test users have the responsibility to protect the security of tests… …in litigation, inspection of the instruments should be restricted - to the extent permitted by law - to those who are legally or ethically obligated to safeguard test security ► 11.8: Responsibility to respect test copyrights 51 ► 11.9: Remind test takers & others who have access to test materials of the legal rights of test publishers ► 11.15: Be alert to potential misinterpretations of test scores &…take steps to minimize or avoid foreseeable misinterpretations & unintended negative consequences 52 Specialty Guidelines for Forensic Psychologists (1991) VI. B. Forensic psychologists have an obligation to document and be prepared to make available, subject to court order or the rules of evidence, all data that form the basis for their evidence or services. 53 Specialty Guidelines for Forensic Psychology Draft (2/13/05) ► 10. Privacy, Confidentiality, & Privilege 10.03 Release of Information: During the initial consultation with each participant…make known who is authorized to release or access the information. …the forensic psychologist complies with a properly noticed & served subpoena or court order, or other legally proper consent from duly authorized persons, unless there is compelling reason not to do so. (examples provided) 54 Specialty Guidelines for Forensic Psychology Draft (2/13/05) ► 10. Privacy, Confidentiality, & Privilege 10.05 Access to Information: Forensic psychologists provide their clients access to, and a meaningful explanation of, all information that is in the psychologist’s records for the matter at hand, consistent with existing federal & state statutes, applicable codes of ethics & professional standards, & institutional rules & regulations. Unless the party is the client, the party is not to be provided access to the psychologist’s records w/o the consent of the client. 55 Specialty Guidelines for Forensic Psychology Draft (2/13/05) ► 13. Documentation 13.01 Documentation, Compilation & Provision of Data Reviewed Make available all data reviewed during the course of providing professional services subject to & consistent with court order, relevant rules of evidence, & professional standards 56 THE COLLEGE OF PSYCHOLOGISTS OF ONTARIO Principle 7.5(2) Standards of Professional Conduct 57 Usually psychologists are reluctant to release raw data other than to another member of the College due to a concern for the potential misinterpretation or misuse of such test scores. When such concerns exist, it would be prudent to send an accompanying letter outlining the member’s concerns regarding improper use of the information and the dangers of misinterpretation by unqualified personnel (emphasis added). 58 NAN Policy & Planning Committee ► NAN fully endorses the need to maintain test security ► Views the duty to so as a basic professional & ethical obligation ► Strongly discourages release of materials when requests do not contain appropriate safeguards ► Urges taking reasonable steps to ensure adequate safeguards when releasing test materials 59 NAN 10-Step Guidelines 1. 2. 3. 4. 5. 6. 7. 8. Written request From competent pt. To a qualified professional Assurance that test security is maintained Is the request a subpoena? Is the request a court order? Does it include provisions for test security? Is release to an unqualified person required? 60 If a court order, & test security is not specified, obey but request that safeguards be put in place no broad circulation no unauthorized copies minimize presentation in court protect/seal exhibits & court records destroy or return test materials 10. If court order, & test security is adequate, obey in a timely fashion. 9. 61 D40/APPCN/AACN Position Paper Alternatives to releasing test data that are also test materials: 1) Release data summary sheet alone 2) Release data w/ protocol stimuli blacked out 3) Release data to another NP 4) Release data set into a sealed record, or request a protective order of the test materials which would limit their release to the case. 62 In most situations, conflicts can be reconciled with such alternatives. In addition: ► Discuss conflicting obligations w/ the persons who requested the data. ► Appeal to the court directly (if court is involved) to negotiate a suitable arrangement: Determine through in camera proceedings whether the test data is relevant File a motion to quash subpoenas File protective orders 63 ► Specify through informed consent procedures: Data recorded on test protocol sheets will not be released Requests for information will be limited to provision of a report & data summary sheet 64 Jurisdictional Laws ► Laws “place restrictions on the psychologist’s discretion, so psychologists would need to carefully consider withholding any test data information” (Celia B. Fisher, Ph.D., chair of the Ethics Code Task Force; APA Monitor, 11/02, p. 56). 65 FRE (1993) 705 “The expert may testify in terms of opinions or inference & give reasons therefore w/o first testifying to the underlying facts or data, unless the court requires otherwise. The expert may in any event be required to disclose the underlying facts or data on crossexamination.” 66 FRE 402 (Jan. 2, 1975, P.L. 93-595, § 1, 88 Stat. 1931.) ► All relevant evidence is admissible Exceptions: e.g., “privileges” 67 HIPAA - Briefly ► Increased pt. access to medical records. ► Information compiled in anticipation of use in civil, criminal, & administrative proceedings is not subject to the same right of review and amendment as is health care information in general. ► The most stringent legal requirement applies. 68 Clarification from DHHS ► Richard Campanelli, Director of the Office for Civil Rights: …it would not be a violation of the Privacy rule for a covered entity to refrain from providing access to an individual’s protected health information, to the extent that doing so would result in a disclosure of trade secrets. 69 Federal Copyright Laws ► Harcourt: Terms & Conditions of Purchase Test materials are copyrighted trade secrets Purchaser agrees to protect the trade secrets by maintaining test security, including only copying test forms for the purpose of conveying the info to another qualified professional. Purchaser agrees to seek a protective court order if required to produce copies in court or administrative proceedings. 70 U.S. Supreme Court ► Detroit Edison Co. v. National Labor Relations Board (NLRB) 440 U.S. 301 (1979). Psychologists should not release raw data and psychological test materials to nonpsychologists The legal presumption is that psychologists should take reasonable steps to protect test security Psychologists may assert the privilege not to disclose raw data or psychological test materials in federal court 71 New York State Mental Health Law ► It is unprofessional conduct to fail to make available to a pt./client copies of documents in the possession or under the control of the licensee that have been prepared for & paid for by the pt/client. ► May deny access if the info could reasonably be expected to cause substantial & identifiable harm. 72 ►If denying, must state in writing the grounds for refusal & inform that the pt. may appeal to a review committee ► Does not specifically address test data 73 Resolving Conflicts Between Ethics & Law APA Ethics Code ► Intro If this Ethics Code establishes a higher standard of conduct than is required by law, psychologists must meet the higher ethical standard ► ES 1.02 If ethics conflict w/ law…psychologists make known their commitment to the Ethics Code & take steps to resolve the conflict. If the conflict is unresolvable via such means, psychologists may adhere to the requirements of the law 74 4) Consider personal beliefs and values ► Conflicts between ethics & law: In cases in which no solution adequately satisfies both demands, neuropsychologists “ultimately must let their own personal conscience guide them” (Slick & Iverson, 2003, p. 2032). ► Pursuit of highest ethical ideals takes more time, effort, & resources 75 5) Develop possible solutions to the problem ► Release raw test data as requested ► Take steps to maximize test security (e.g., follow NAN’s guidelines) 76 6) Consider the potential consequences of various solutions ► Releasing test data to nonpsychologists threatens test security & may have harmful consequences ► Taking steps to maximize test security may be irritating to those involved & will require additional time/effort 77 7) Choose and implement a course of action ► Consistent with highest ethical ideals, follow NAN’s 10-step guidelines 78 8) Assess the outcome and implement changes as needed ► Raw test data is released in a manner consistent with discovery requirements, & test security is maximized All steps are documented 79 Case 1 Discussion 80 Case 2 Dr. A, a neuropsychologist in independent practice, receives a referral to evaluate a 68 y.o. woman who sustained a left MCA infarct 6 months ago. The referral is from the pt.’s neurologist to “rule out dementia & depression” so that appropriate medications can be prescribed. During the initial interview, Dr. A finds that the patient’s receptive language is adequate for the clinical interview, based on her ability to follow multi-step instructions and respond appropriately to yes/no questions. 81 However, Dr. A also found the pt to have severe expressive language deficits and a dense right hemiparesis. He wonders whether empirical evidence exists to support his use of traditional neuropsychological tests with patients who have such impaired expressive language skills & are unable to use their dominant hand. He considers the professional & ethical implications of accepting this referral & wonders what he should do. 82 Identify the Problem or Dilemma Dr. A is asked to evaluate a pt. & address referral questions for which little empirical evidence exists to support the use of his usual tests. In addition, although Dr. A frequently performs evaluations for the purpose of diagnosing dementias & mood disorders, he has not evaluated patients w/ severe strokes for many years. Most of the tests that Dr. A typically uses were not normed with individuals who have severe expressive aphasia or hemiparesis involving the dominant hand. 83 Because of the pt.’s aphasia & HP, administration of the tests will need to be modified. The extent to which the test results obtained from this patient will accurately represent her neurocognitive functioning and psychological state, given the necessary modifications to test administrations & lack of appropriate norms, is extremely limited. As a result, recommendations to the neurologist may result in inappropriate tx decisions. 84 In contrast to these drawbacks, Dr. A may be better able than the neurologist to assess this pt.’s neurocognitive functioning & emotional state, even with the limitations imposed on standardized testing, thereby resulting in more accurate diagnoses & better medication choices. 85 Consider the Context & Setting Compared to some institutional practice settings, Dr. A does not have ready access to other healthcare professionals who may be able to provide helpful consultation. Also, compared to inpatient settings, the ability to provide ongoing monitoring of the pt. to further clarify diagnostic impressions & the effects of medical trials is limited. 86 Ethical & Legal Resources Dr. A identifies the following primary resources: ► ► ► ► ► APA Ethics Code (esp. ES 9.02, Use of Assessments) Standards for Educational & Psychological Testing (esp. 10.1) Americans with Disabilities Act Chapter on test accommodations in geriatric neuropsychology by Caplan & Shechter, (2005) Colleagues, D40 ethics subcommittee 87 The pt. has a moral, ethical, & legal right to receive an appropriate evaluation (ADA, 1990; GP D, Justice), yet determining the methods that constitute an “appropriate” evaluation can be challenging. “A major issue when testing individuals with disabilities concerns the use of accommodations, modifications, or adaptations. The purpose of these accommodations or modifications is to minimize the impact of test-taker attributes that are not relevant to the construct that is the primary focus of the assessment” (SEPT, 1999, p. 101). Dr. A must consider the empirical support for any adaptations he may make to test administration, tempering his conclusions as needed. 88 Having given due attention to the needed test accommodations and the potential limits to interpretations, Dr. A must consider whether he is sufficiently familiar with the relevant literature & has the requisite experience to competently perform the needed modifications & arrive at appropriate conclusions (ES 2.01, Boundaries of Competence; SEPT Standard 12.1). “Knowing our limitations is sometimes as or more important than knowing what our science can offer” (van Gorp, 2005, p. 212). 89 Dr. A must also keep in mind that “In testing individuals with disabilities for diagnostic and intervention purposes, the test should not be used as the sole indicator of the test taker’s functioning. Instead, multiple sources of information should be used” (SEPT 10.12). If Dr. A determines that it is appropriate for him to proceed with the evaluation, he must present the foreseeable benefits & risks to the pt. & her legal representative, if someone other than the pt. has medical decision making authority (ES 3.10, Informed Consent, & ES 9.03, Informed Consent in Assessments; Johnson-Green, D. & the NAN Policy & Planning Committee, 2005; SEPT Standard 8.4). 90 Personal Beliefs & Values Dr. A’s beliefs & values are consistent with those represented in the resources reviewed. He embraces the right of the pt. to receive an appropriate neuropsychological evaluation, as well as her right to decide whether to pursue an evaluation given the inherent limitations. He questions whether he can competently perform an evaluation with the required accommodations & derive accurate conclusions based on the information obtained. 91 Possible Solutions 1. 2. 3. 4. Conduct the evaluation to the best of his ability, explaining to all parties the limitations associated with the conclusions. Conduct the evaluation after arranging for consultation with a colleague who commonly evaluates pts. who have sustained severe CVAs. Do not perform the evaluation. Inform the neurologist & the pt. that NP evaluation is of little value with such pts. Refer the pt to a neuropsychologist who has more experience w/ this population. 92 Potential Consequences 1. 2. Performing the evaluation may provide helpful info regarding the pt.’s NP functioning & dx; however, the potential for misinterpretation of the findings, given Dr. A’s limited experience with this population, may be harmful to the pt. Conducting the evaluation w/ appropriate consultation may allow for appropriate conclusions to be drawn about the constructs of interest & provide an opportunity for Dr. A to improve his ability to work with stroke pts. However, the likelihood of generating accurate inferences exists with more experienced practitioners. 93 3. Deciding to not perform the evaluation & informing the pt. & the neurologist that NP evaluations are not beneficial in such cases may deprive the pt., & future pts, of potentially valuable services. 4. Referring the pt. to a colleague w/ more recent experience with stroke pts. & more familiarity w/ the relevant literature would allow the pt. to get services that she needs & provide the neurologist w/ the info he needs to make an appropriate decision regarding medications. Dr. A determines that a qualified neuropsychologist is available through a local hospital-based outpatient rehabilitation program. 94 Choose & Implement a Course of Action Dr. A chooses the 4th option & refers the pt. to his colleague in the outpt. rehab program. Had there not been a qualified colleague nearby, he would have chosen the 2nd option. He explains to the pt and the neurologist that it is in the pt.’s interest to have the evaluation performed by a NP who specializes in working with individuals who have sustained severe strokes. Dr. A contacts the other NP & facilitates the referral. 95 Assess the Outcome & Implement Changes as Needed The pt. received the most appropriate evaluation possible, although the confidence placed in some of the conclusions remained limited by the needed test accommodations. 96 Case 2 Discussion 97 Case 3 Dr. A, psychologist on an adult inpatient BI rehabilitation unit, is told to provide coverage for Dr. B., the neuropsychologist on the pediatric unit who is out sick. Dr. A agrees and goes to the unit with his usual tests because he does not have access to Dr. B’s office where the pediatric tests are stored. However, because his tests were not normed with children, he is determined to score them qualitatively and interpret them with caution. 98 The 1st pt. to be evaluated is a 12 y.o. bilingual (Spanish-English) boy w/ a TBI who had progressed from coma to RLAS VII (AutomaticAppropriate) in the past 4 wks. Dr. A performs the evaluation, including testing, with the pt’s mother present in the pt.’s room to help encourage & reassure the pt & interpret instructions & responses if needed. During administration of the TMT, the pt. states, “This one is fun. I like doing it in OT.” The pt.’s roommate adds that he likes it too. The roommate then agrees to remain quiet for the rest of the evaluation, but his physical therapist soon arrives & takes him for therapy anyway. Dr. A completes the evaluation & writes his brief report in the pt.’s chart. 99 The Problems/Dilemmas 1. Dr. A allowed himself to be put in a situation that he was not qualified to handle, to the detriment of the pt. He is a psychologist but not a neuropsychologist. He should not perform NP services without the necessary education, training, & experience to competently do so. Also, he usually works w/ adults & is not qualified to work with pediatric populations. 100 2. Dr. A performed an inappropriate evaluation. He used adult tests w/ a child & did not appear to consider the potential impact of the patient’s ethnicity, cultural background, or English language fluency on the tests selected or the validity of results obtained. There was a complete lack of scientific evidence to support any conclusions Dr. A may have drawn. 101 3. Dr. A failed to adequately manage aspects of practice that he would have been expected to manage in any context. He did not take steps to maximize privacy & confidentiality, & he performed the evaluation with others in the room. He used the pt.’s mother as an interpreter, although her ability to provide accurate interpretation & to do so objectively with her child was unknown but unlikely. Any consent that he obtained from the pt. & his mother could not have been based on an informed decision because Dr. A was apparently unaware of at least some of the risks himself & dismissed the rest as not sufficiently important to prohibit the evaluation. 102 Dr. A learned that other healthcare professionals were misusing NP instruments, possibly with the knowledge of Dr. B. The OT apparently used the TMT as a therapeutic exercise on a regular basis. Dr. B, who regularly worked on the unit must have been aware of the OT’s practice & either supported, or did not adequately oppose, the practice. 5. Problematic institutional or departmental practices emerged, such as not providing appropriate coverage during Dr. B’s vacation & pressuring Dr. A into providing services that he was not qualified to perform. 4. 103 APA Ethical Standards ► 2.01 Boundaries of Competence ? 2.02, Providing Services in Emergencies ► 9.01 ► 9.02 ► 9.06 ► 2.04 ► 4.01 ► 4.04 Bases for Assessments Use of Assessments Interpreting Assessment Results Bases for Scientific & Professional Judgments Maintaining Confidentiality Minimizing Intrusions on Privacy 104 ► 9.11 ► 3.10 ► 9.03 ► 4.02 ► 9.07 ► 1.04 ► 1.03 Maintaining Test Security Informed Consent Informed Consent in Assessments Discussing the Limits of Confidentiality Assessment by Unqualified Persons Informal Resolution of Ethical Violations Conflicts Between Ethics & Organizational Demands 105 The Competence Continuum Case 4.1: A board certified neuropsychologist with years of experience evaluating and treating adults with traumatic brain injuries in rehabilitation and forensic settings finds the potential marketing value of work with regional teen sports programs appealing. He arranges with local junior high school and high school football programs to provide comprehensive neuropsychological evaluations of concussed athletes for the purpose of making return-to-play decisions. 106 ► ES 2.01 (Boundaries of Competence): by transitioning into a related but new area of practice, he is practicing outside of his areas of competence. ► In addition to lacking familiarity with the state-of-the-art methods and procedures employed in sports neuropsychology, this neuropsychologist lacks experience with adolescents. 107 Case 4.2: A neuropsychologist graduated from clinical psychology doctoral program with a specialization in neuropsychology. After completing a 2-year postdoc in NP, she accepted a staff position in a prestigious teaching hospital. She gradually transitioned to part-time private practice over the following 5 years. She became very busy in her private practice & personal life & did not have time to attend conferences or maintain an affiliation with the teaching hospital. 108 Now, 10 years after completing her postdoc, the families of some of her patients are questioning her conclusions based on information that they “found on the Internet,” & her forensic work is being strongly criticized by opposing experts, with frequent comments that her results cannot be considered valid. ► ES 2.03 Maintaining Competence 109 Bases for Scientific and Professional Judgments ► Case 4.3: A very experienced & highly credentialed neuropsychologist evaluates and treats litigants with MTBIs sustained in MVAs or work-related accidents. He commonly concludes that severe neurocognitive deficits & total & permanent disability more than 6 months post injury are causally related to neurological trauma sustained in the accidents. 110 He frequently states that he can determine deficits & disability better than independent examiners because he has interacted with the patients for a much greater period of time. ► The neuropsychologist has a mistaken belief that his impressions & observations over time carry more weight than objective, actuarially based neuropsychological evidence interpreted based upon generally established scientific & professional knowledge of the discipline (see, e.g., Larrabee, 2005). 111 ► Failure to meet the requirements of this ethical standard may reflect a failure to remain abreast of scientific advances. ► For competent clinicians who remain abreast of scientific & professional advances & still fail to meet the requirements of this ethical standard, especially in forensic contexts, the possibility of intentional bias must be considered. ► In either case, consumers of NP services & the reputation of the profession suffer. 112 Cooperation with Other Professionals (ES 3.09) ► Case 5.3: A new adult patient is seen for an initial clinical interview. She reports that she recently underwent a neuropsychological evaluation and began treatment with a clinician across town but did not want to continue with him because she did not like his abrasive interpersonal style. The second neuropsychologist was very familiar with the prior neuropsychologist through opposing forensic activities, and longstanding animosity existed between them. 113 The patient stated that she would have the prior neuropsychologist send her test report and other records to the second neuropsychologist. After multiple verbal and written requests for the records from both the patient and the second neuropsychologist over the course of six weeks, the second neuropsychologist sent a certified letter to the first neuropsychologist stating that if the records were not received within two weeks, a complaint would be filed with the state board for psychology. 114 Advertising & Other Public Statements ► Case 5.1: A neuropsychologist in independent practice hires an ITT consultant to develop a website for his practice. His website describes him as a specialist in numerous psychological specialties and aspects of practice and lists his credentials, including his doctorate, licensure, memberships in professional organizations, and board eligibility. 115 In addition, his website states that he has lectured internationally (he does not reveal that he based that statement on his presentation of one poster at an INS conference – in the U.S.) and is a faculty member of a local prestigious medical school (based on having once supervised a neuropsychology intern at the medical school). His website further indicates that he has testified more than 300 times, and it provides a testimonial from an attorney stating the neuropsychologist is well-respected as an expert witness. 116 ► ES 5.01 Avoidance of False or Deceptive Statements ► This neuropsychologist exaggerated at least some of his accomplishments & credentials. Using designations or terms that are understood by members of the profession but can be misleading to the public should be avoided. Only obtained credentials should be used; terms such as “ABD”, “doctoral candidate,” & “board eligible” are not credentials. 117 ► Neuropsychologists who retain others for marketing & publicity purposes are responsible for the statements made & advertisements generated by such parties (Ethical Standard 5.02, Statements by Others). 118 Record Keeping ► Case 8.1: A NP performs a substantial amount of medicolegal work; that is, he provides clinical evals & ongoing tx with pts. who are involved in litigation following MVAs. His initial consultation notes, which are often addressed to the no-fault claims representatives, are typed on letterhead, as are his NP reports; however, the notes of his tx sessions are handwritten, do not include any identifying information for him or the pts., & are largely illegible. 119 ► Ethical Standard 6.01 Documentation of Professional and Scientific Work and Maintenance of Records ► The NP in this case generates appropriate reports for the initial consultation & NP eval; however, his tx notes lack essential identifying information & the clarity needed for readers to determine the nature & appropriateness of the tx provided & the status of the patient. Such inappropriate documentation impedes the provision of clinical & forensic services by others. ► It is also peculiar that some reports are written to the no-fault claims representative rather than the referring doctor, a practice that raises questions about the clinical nature of the case. 120 Research Case 9.2: Dr. A is interested in advancing the ability of clinical neuropsychologists to determine adequate examinee effort from invalid effort. She develops a new SVT that appears to assess working memory but really assesses effort. She informs the staff NP who works for her to administer the test as part of the evaluations of all TBI pts. admitted to the unit in the next 2 weeks. She states that she has been doing so for the past 2 weeks & has obtained some very promising data. 121 ► Dr. A’s standardization procedures are highly suspect (ES 9.05, Test Construction). ► She did not obtain approval from her facility’s institutional review board (ES 8.01, Institutional Approval). 122 ► Including simple mental tasks that appeared to assess working memory in a more comprehensive NP evaluation likely posed very little risk of harm to the patients who were being used as research participants. Nevertheless, she did not discuss the experimental nature of test with patients, or their proxies, and obtain their approval (ES 8.02, Informed Consent to Research). ► Dr. A may have believed that she was justified in foregoing the informed consent process (ES 8.05, Dispensing With Informed Consent for Research). 123 ► Symptom validity research often requires deception. Participants must believe that symptom validity tests are assessing memory or another neurocognitive construct other than effort. Thus, Dr. A may have been justified in not informing pts. of the nature of the study in advance. However, she should have debriefed the pts. after obtaining the data (ES 8.08, Debriefing). 124 ► Dr. A attempted to use her position of influence to coerce a junior colleague to engage in similar ethical misconduct (ES 3.08, Exploitative Relationships). ► Whether Dr. A’s dispensing with informed consent and her use of deception were appropriate may be matters of debate; however, such debate must occur with colleagues and the institutional review board prior to performing the research. 125 Therapy ► Case 11.1: A neuropsychologist who recently transitioned from performing evaluations on an epilepsy unit to consulting in a skilled nursing facility (SNF) performs a brief neuropsychological evaluation of a 28year-old woman who is 2 years post severe TBI. Based on findings of severe impairment with attention, memory, and processing speed, the neuropsychologist begins cognitive rehabilitation. 126 Three times per week, the neuropsychologist brings a laptop computer into the patient’s room, sets up a series of computer-based mental exercises, helps the patient begin the exercises, and then leaves the room to see other patients. 127 ► ES 2.01, Boundaries of Competence ► Evidence-based tx - attempt to match interventions with patient & injury characteristics. In this case, the neuropsychologist should have known that this patient would be unlikely to benefit from the intended intervention. 128 Unrealistic expectations →undue disappointment for the pt. & family (ES 10.01, Informed Consent to Therapy; ES 3.04, Avoiding Harm). ► The neuropsychologist may be committing fraud by billing for individual tx without maintaining 1:1 interaction. 129 Conclusions ► Ethical ► Adopt challenges are many and varied. an ethical decision-making model. ► Use multiple ethical and legal resources, including ethics committees and colleagues. ► Take a positive, proactive approach. 130 Conclusions continued ► View ethical guidelines as a resource for guiding optimal professional behavior, not just as minimum requirements for conduct. 131 “To see what is right, and not to do it, is want of courage or of principle.” Confucius (551 BC - 479 BC) 132 Contact Info ►Shane S. Bush, Ph.D. (631) 334-7884 www.LI-Neuropsychology.com neuropsych@shanebush.com 133