Using AHRQ Data at Census RDC’s Health Data Workshop May 6, 2009 Doris Lefkowitz Outline Discuss Key Features of the Medical Expenditure Panel Survey Discuss how to apply to use MEPS data at an RDC Discuss How to get additional information on MEPS MEPS Medical Expenditure Panel Survey Relatively large, longitudinal study of the US civilian, non-institutionalized population Collects information for all members of the household Conducted in 1977, 1987 and annually since 1996 MEPS Survey Components MEPS-HC -- Household Component MEPS-MPC -- Medical Provider Component MEPS-IC -- Insurance Component Key Features of MEPS-HC Survey of U.S. civilian noninstitutionalized population Sub-sample of respondents to the National Health Interview Survey (NHIS) Oversample of policy relevant target groups Panel Survey – new panel introduced each year – Continuous data collection over 2 ½ year period – 5 in-person interviews (CAPI) Sample size: about 12K families and 32K persons since 2001 Household Participation Verbal consent obtained from household respondent. Each household member is asked to give written consent to allow us to contact their medical providers Informed consent procedure includes a video and written materials mailed to the household Each household is interviewed 5 times over 2 ½ years Interviews typically last 1.5 -2 hours and are conducted in the home on a laptop computer by a trained interviewer A single respondent provides most of the information for the household MEPS Panel Design: Data Reference Periods 2005 Q1 Q2 2006 Q3 Q4 Q1 Q2 Q3 2007 Q4 Q1 Q2 Q3 Panel 9 Round 3 Round 4 Round 5 Panel 10 Round 1 Round 2 Round 3 Round 4 Round 5 Panel 11 Round 1 Round 2 Round 3 Round 4 Round 5 Panel 12 Round 1 Round 2 Round 3 Sample Size N = 32,320 N is equal to the number of people with a positive person weight on the file. N = 32,577 N = 29,370 Q4 MEPS-HC Core Interview Content Demographics Charges and Payments Health Status Conditions Utilization Employment Health Insurance Healthcare Use Hospitalizations Outpatient and emergency department visits Visits to physicians and other health care providers (nurses, PA, OT/PT, therapists, mental health professionals) Prescribed medications Home health care Durable medical equipment and supplies Dental care Detail for each event Date Provider name and type Condition associated with the event Some details about the event (tests performed, medications prescribed) Charges, payments MEPS- HC Supplemental CAPI Sections Sections asked in rounds 2 and 4: Access to care Child preventive health Satisfaction with health plans & providers Sections asked in rounds 3 and 5: Assets (round 5 only) Income Preventive Care MEPS-HC Supplemental Paper Questionnaires Diabetes Care SAQ Adult SAQ Types of MEPS-HC Files Full-year Files - calendar year data Point-in-time Files - snap shot first part of year Levels of MEPS-HC Public Use Files Person Level - detailed person information Event Level - detailed event level information Condition Level - detailed condition information Job Level - detailed job information MEPS Medical Provider Component (MPC) Sample All hospitals (and associated doctors), emergency rooms, and out-patient departments used by respondents All home health agencies All pharmacies A sample of office-based physicians MEPS Medical Provider Component (MPC) - Purpose Compensate for household item non-response Accuracy and detail Imputation source Methodological studies MEPS: Pharmacy Component 8000 pharmacies sampled – data on prescribed medicines purchased by households Data obtained: – Medication Name – National Drug Code (NDC) – Quantity Dispensed – Strength and Form – Sources of Payment – Amount Paid by Each Source MEPS Insurance Component (IC) An independent survey of employers and unions not linked to the household survey The sample contains information from about 45,000 establishments drawn from a Census Bureau frame and supports national and statelevel estimates for all 50 states. Data released in tabular form on the MEPS web site MEPS-IC Purpose Employer-sponsored Health Insurance – Availability – Enrollment – Benefit and payment provisions – Cost Data Use Restrictions - MEPS AHRQ makes specific promises to people and establishments who participate in the MEPS – Data will only be used for research and statistical purposes – Data that COULD be used to identify them will not be released beyond AHRQ and its contractors – Information about them will only be reported in a summary fashion Data Use Restrictions – IRB Our IRB reviews our data collection and release procedures – Affirms the ideas of our authorizing legislation – Requires review by a nosologist and pharmacist for rare conditions and medications to reduce inferential identification – Requires judgments to be made on releases of certain variables AHRQ Data Center History AHRQ has operated a data center at its Rockville headquarters since 2000 Provides researchers access to non-public use MEPS data; Partnership with Census RDC’s is an extension of our commitment to have MEPS data used to the fullest extent possible AHRQ Data Center (ADC) Mode of data access – on secure LAN at AHRQ - Rockville, Maryland – task order agreement with data contractor – combinations of both AHRQ Data Center Researcher may bring data in, but not out Researcher has access only to data needed for approved project All tabular data will be reviewed for confidentiality before release from Center Only approved tables can leave the Center Center will store data files, foreign merge files, and all outputs needed for replication AHRQ Facilities Secure room Terminal connected to secure LAN SAS, STATA, GAUSS, Stat Transfer, SUDAAN, Limdep, EQS software available, and others upon request Limited staff support by people who know: – the data – the confidentiality issues – the software AHRQ Application Process Application procedures are on the MEPS web site Submit proposal to data center coordinator Review within 1 week for feasibility, and data availability Institutional Review Board (IRB) review required AHRQ Fees User fee of $150.00 for approved projects to cover technical assistance, simple file construction, and/or up 2 hours of programming support from data contractor Additional programming support available from an AHRQ contractor at a cost of $80.00/hr User fee waived for full-time students User fee waived for those intending to move to a Census RDC AHRQ Remote Access Once the researcher has an established data center project, and has worked on site to develop and debug programs, jobs may be submitted to our Data Center Supervisor to run. Out-put will be reviewed for confidentiality and mailed to the user Confidential Data Available for ADC Projects Geographic data and links based on geographic data State Identifiers HC-IC linked files for 1996-99 MEPS NHC for 1996 Selected Medical Provider Component Data Confidential Data Available for ADC Projects Fully specified ICD-9 codes Continuous measure of poverty status Fully specified Industry and Occupation codes Asset data Imputed NDC codes for prescription drugs Federal and state marginal tax rates Other variables developed by AHQR researchers Partnership with Census Applicants can begin contact with either AHRQ or their local Census RDC AHRQ will request the applicant fill out the AHRQ data center application Partnership with Census AHRQ reviews the application – Does the project conform with AHRQ’s authorizing legislation – Does the data available support the analysis AHRQ sign off is quick, usually completed in less that 2 weeks Partnership with Census While AHRQ requests an AHRQ data center application for persons wishing to use the Census RDC, the application fee is waived These procedures apply to MEPS household data only. MEPS Insurance Component data follows the customary Census procedures for Title 13 data Partnership with Census Application process moves to Census for approval AHRQ will begin preparing the analytic file for the project During the Census review and security process, applicant could chose to use the AHRQ data center Partnership with Census AHRQ staff historically provide extensive support for all data users We have an active list serve and routinely answer hundreds of user questions each year Customers using Census RDCs should not hesitate to continue to interact with AHRQ Other Resources Information found on the MEPS Web site: www.meps.ahrq.gov Overview of MEPS, Fact Sheets, and FAQs Survey instruments Findings/Statistical Briefs/Chart books Methods reports Data files Bibliography MEPS data workshop information and schedule Mailing list/List server Data Center Information