What do women want from a good quality of life? Women in STEM Suzanne Skevington PhD, CPsychol, ARCM, FBPsS Manchester Centre for Health Psychology suzanne.skevington@manchester.ac.uk ‘(Quality of) life… is rather like opening a tin of sardines. We’re all looking for the key’ Alan Bennett (1961) What is quality of life? WHO Definition of Quality of life • An individual’s perception of their position in life, in the context of the culture and values in which they live and in relation to their goals, expectations, standards and concerns. • The WHOQOL Group (1993) Who needs Quality of Life assessment? • Chronic diseases e.g. heart disease, cancer, depression • Caregivers of ill &/or disabled adults, children • Those living in potentially high stress situations • • e.g. migrants, refugees, trauma victims Communication problems e.g. stroke, dementia Well people e.g. worksites, pregnant women… Languages of the world (7,300+) Sequential Translation process English Shona Hindi Simultaneous Translation procedure: ‘spoke-wheel’ UK Zimbabwe W.H.O. Panama Japan India Focus group participants (Appleby in Cormie &Warren, 2001) Asking questions about Quality of Life (QoL) Example of Sleep • An objective measure of QoL e.g. Examine EEG readings of sleep depth & patterns • Perceived Objective QoL How many hours do you sleep? • Self-report Subjective QoL How refreshing is your sleep? Properties of ‘good’ scales (Fitzpatrick et al,1998) Appropriateness Reliability Validity Responsive to change Precision Interpretability Acceptability Feasibility WHOQOL-100 Overall Quality of Life and Health (General) Domains Facets Physical Psychological Pain & discomfort Positive feelings Energy & fatigue Thinking, Learning, Memory & Concentration Sleep & rest Self-esteem Body image & appearance Negative feelings Independence Dependence on medication Mobility Activities of daily living Working capacity Social Relationships Environment Personal relationships Physical safety & security Sex life Home environment Practical social support Financial resources Information & skills Recreation & leisure Health & social care Physical environment Transport SRPB Spiritual, religious & personal beliefs Development of WHOQOL instruments Year Centres 1992 10 1994 1998 15 15 Methods Qualitative Versions - Domains - 134 Facets Items 30 2009 2014 67 87 Quantitative…………….. 100 BREF 6 6 4 33 25 25 2,000+ 235 100 26 4,800 11,800 Participants Pilot 2004 40,000 + Using the WHOQOL-BREF in UK (Skevington & McCrate, 2011) (N = 4628) • • • • • • • • • • • • Well people Students Nurses Carers Dental patients Prisoners Chronic fatigue syndrome Cocaine dependency Sleep disorder Disfigurement Cosmetic surgery Polycystic ovarian syndrome • • • • • • • • • • • • Depression Chronic schizophrenia Mild dementia Neurodegenerative disease Arthroplasty surgery Arthritis Chronic pain Skin disorder Heart transplant Stroke Diabetes IBS/IBD/Crohn’s disease WHOQOL Cultural adaptations and Translations (2015) Arabic: Saudi, Egypt, Kuwait Amharic: Ethiopia Bangla: Bangladesh Bulgarian Cantonese: S. China, Hong Kong, Australia Catalan: Spain Chichewa: Malawi Croatian Czech Danish Dutch Emirati: Sharjah English: Australia, Canada, USA, NZ, Fiji, Malta Estonian Farsi: Iran, Oman French: Canada, Switzerland Burkina Faso, Vanuatu German: Austria Greek: Cyprus Hebrew: Israel Hindi:: India Hungarian Bahasa: Indonesia Italian Japanese Kannada: S. India Khmer: Cambodia Korean Krio: Sierra Leone Latvian Liberian Lithuanian Malayalam: S.India Marathi: India Malay Mandarin: China Norwegian Portuguese: Brazil, Portugal Polish Preeti: Nepal Romanian Russian: Kyrgyzstan Serbian Shessana: South Africa Shona: Zimbabwe Sinhala: Sri Lanka Slovak Slovenian Solomon Islands Somali Spanish: Argentina, Panama, Uruguay, Mexico, Chile, Cuba Swahili: Kenya, Uganda Swedish Taiwanese Tamil: S. India Thai Turkish Ukrainian Urdu: Pakistan Vietnamese Yoruba: Nigeria Zambian WHOQOL Modules 1. International Modules for specific diseases & conditions • • • WHOQOL-HIV Group (HIV/AIDS)(2003,2004,2010,2012) WHOQOL-SRPB Group (Spiritual, Religious & Personal Beliefs)(2005,2006, 2007,2010,2013) WHOQOL-OLD Group (60+ years) (2005,2006,2007,2010,2011) 2. Culture-specific (national) modules in 10 centres (Skevington et al,1999) 3. Modules for diseases/conditions piloted in one centre • • • Chronic Pain (UK) (Mason et al, 2004,2008,,2009, 2010,2013) Children 5-8 years (Thailand) (Jirojanakul et al, 2000,2003) Adolescents 13-18 years (UK) (Skevington et al,2014) 4. Developments for an international poverty module Peru, Ethiopia, Bangladesh &Thailand(Skevington et al, 2004, 2008,2009) Quality of life at stages of HIV/AIDS (WHOQOL-100) 17 16 15 14 Physical Psychological 13 Independence 12 Mean Social 11 Environment 10 Spiritual AIDS HIV + symptoms HIV+ no symptoms Health Status Well (n=900) Centres Melbourne, Australia Porto Alegre, Brazil Bangalore, India New Delhi, India Bangkok, Thailand Rome, Italy Dniepropetrovsk, Ukraine Harare, Zimbabwe Phnom Pen, Cambodia Sample 11,241 women and men living in 35 cultures in 29 countries Adults age 15 - 100 years; sick and well Women n=5017 Age bands: 15-29 13%; 30-44 14%; 45-59 10%; 60-74 41%; 75+ 22% Marital status: Single 12%; Married 50%; Partnered/Living as married 4%; Separated/Divorced 9%; Widowed 25% Educational level: None 0.3%; Primary 25%; Secondary 29%; College/Univ 35%; Postgrad 4%; Other 5% Women have significantly better quality of life than men Overall Quality of Life and Health (General) Domains Facets Physical Psychological Independence Social Relationships Pain & discomfort Positive feelings Dependence on medication Personal relationships Physical safety & security Energy & fatigue Thinking, Learning, Memory & Concentration Sex life Home environment Sleep & rest Self-esteem Body image & appearance Negative feelings Mobility Activities of daily living Working capacity Practical social support Environment Financial resources Information & skills Recreation & leisure Health & social care Physical environment Transport Spiritual Spiritual, religious & personal beliefs WHOQOL-SRPB Overall Quality of Life and Health (General) Domains Physical Health Psychological Social Relationships Environment SRPB Pain & discomfort Positive feelings Personal relationships Financial resources Meaning in Life Energy & fatigue Negative feelings Sex life Information & skills Purpose in Life Recreation & leisure Faith Sleep & rest Facets Dependence on medication Mobility Activities of daily living Working capacity Self-esteem Thinking, learning memory & concentration (Cognitions) Body image & appearance Practical social support Home environment Hope Strength Health & social care Peace Physical safety & security Awe Physical environment Spiritual Connection Transport Wholeness Men have better quality of life than women Overall Quality of Life and Health (General) Domains Facets Physical Psychological Independence Social Relationships Pain & discomfort Positive feelings Dependence on medication Personal relationships Physical safety & security Energy & fatigue Thinking, Learning, Memory & Concentration Sex life Home environment Sleep & rest Self-esteem Body image & appearance Negative feelings Mobility Activities of daily living Working capacity Practical social support Environment Financial resources Information & skills Recreation & leisure Health & social care Physical environment Transport SRPB Spiritual, religious & personal beliefs International sample of Women: WHOQOL-100 (n=5017) What predicts good quality of life in women? All six domains contribute to a good overall QoL and 67.6% of total QoL is explained. Environmental QoL 46.2% Psychological QoL 7.6% Social relationships 2.9% Independence 2.6% Physical health 0.3% Spiritual QoL 0.2% Age, education and marital status account for 7.8% What predicts good quality of life in women? 72% of overall QoL and health is explained by 17 facets. Age, education & marital status account for 8.1% of total Positive feelings Activities of daily living Personal relationships Home environment Energy Financial resources Recreation & leisure Self-esteem Mobility 42% 10.6% 3.9% 3.9% 1.5% 0.9% 0.7% 0.4% 0.3% Health & social care Sex life Sleep Social support Medication (-) Working capacity Spiritual QoL Physical environment 0.3% 0.2% 0.1% 0.1% 0.1% 0.1% 0.01% 0.01%