ROUGHLY EDITED COPY
EHDI - STOPHER
‘Role Model DVD: Supporting Families with Involvement, Part 2’
Casey Judd
March 9, 2015
11:05-11:35a ET
CART/CAPTIONING PROVIDED BY:
ALTERNATIVE COMMUNICATION SERVICES, LLC
PO BOX 278
LOMBARD, IL 60148
"This text is being provided in a rough draft format.
Communication Access Realtime Translation (CART) is provided in
order to facilitate communication accessibility and may not be a
totally verbatim record of the proceedings."
>> How does this sound? Is it okay for everyone? Okay,
great, good morning. Almost afternoon. So, we are Katherine
Cody and my name is Lori Bell. We're from the BC Early Hearing
Program in Canada. We're going to summarize our program deaf
and hard of hearing coordinator project. Susan Lane is going to
be retiring at the end of this month. We're pleased to show it
to you even though she wasn't able to be here. Then we're going
to watch a 22-minute film. If you have popcorn, bring it out.
We hope to have a few minutes afterwards to wrap up.
So, just to start, our program, which began about 2007 and
includes a Guide By Your Side program, identified that we needed
to look at ways of supporting some early family involvement with
role models who are deaf and hard of hearing.
So, Susan Lane, the BCEHP Provincial Coordinator invited
individuals to make recommendations. It includes current
evidence from the Joint Committee on Infant Hearing,
International Consensus Statement on family-centered early
intervention principles.
We gathered input from the U.S. and U.K. Parents, meanwhile,
after the early stages of their journey were receiving a parent
kit. That did contain a few books. One of them being The Book
of Choice. Another thing they received was a DVD. That DVD was
interviews -- it is interviews with parent who are also going
through the process really early and some of their initial
experiences and their words of encouragement to new families
going through the process.
So, I mentioned that Susan Lane gathered a group of individuals
together. This deaf and hard of hearing advisory includes deaf
and hard of hearing individuals who have experience working with
families and includes three parent organizations in BC. Those
are BC Hands & Voices and two other organizations that serve
families with slightly older children, one of them is called
FNDC or the Family Network for Deaf Children in BC and the
Canadian Hard of Hearing Association in BC.
So the Advisory decided on a video. Phase one is to provide
this video as a resource to introduce parents of deaf and hard
of hearing individuals early on in their journey after
identification. So, it's an opportunity for parents, really to
learn from young adults who are deaf and hard of hearing, really
early on.
And phase two, we're really excited to say is going to be added
to, is going to be to add deaf and hard of hearing guides to our
Guide By Your Side program.
So, we're really excited, we're talking to everyone and I'm
trying to gather lots of information about that to take back to
your guide by your side coordinator in BC.
So, just to go through a few of the highlights in the making of
this video, the deaf and hard of hearing advisory identified the
key purpose and messages of the video collaboratively. That
group that I mentioned earlier, they were the ones that came up
with these messages and purpose. The deaf and hard of hearing
advisory also created a list of potential participants for the
video to be interviewed.
The project team included BC Early Hearing Program, our team, a
deaf consultant and a parent consultant with experience in
health education through media. The, the video is also
captioned in ten languages, we have a very diverse population
linguistically and culturally.
Next, I'm going to play the video, but I want to go over a few
of the key messages and a few of what the deaf and hard of
hearing advisory group identified around the list of potential
participants. So, they wanted the participants in the video to
really show a range of experiences, including, having a range of
hearing levels or diversity in their hearing status, to have a
range of language and communication access, ways of accessing
communication and using language. They wanted the participants
to be culturally diverse, to represent what, you know, families
and people who really are in BC. They also wanted to have both
genders represented and have a real range of participant
interests and successes and challenges and so, that included
also, some individuals who are deaf or hard of hearing with
additional needs as well.
So, some of the key messages they came up with were messages
around giving the idea of hope to parents that "my child will be
okay." That deaf and hard of hearing individuals have happy
lives. They also wanted to show different, there are different
ways to be successful. So this video was known to show the
superstars coming out of programs, but rather, just individuals
who are successful in many different ways and how they define
success barriers, different accessibility kinds of issues for
these individuals. They wanted a variety of languages and
communication approaches and finally, they want, really, to show
parents to see the person first and then, you know, that they
are deaf or hard of hearing as an aspect of who they are. But
it doesn't define them. Their hearing isn't the one defining
feature of who they are as an individual.
However...on one side, they also want the message to come across
that identity is important to people who are deaf and hard of
hearing.
Okay...so, we're going to play the DVD. This is the challenging
part. I can't see it, there it is. I totally lost it now. I
think it's there. Okay, I'm going to start it this way, I can't
find it. Oh yeah, yeah. Yeah, when I minimize, I don't know
where it is. Okay...here we go.
[Video].
>> So, we're out of time, I'm sorry we went over a little
bit. Thanks for coming.
[applause]
"This text is being provided in a rough draft format.
Communication Access Realtime Translation (CART) is provided in
order to facilitate communication accessibility and may not be a
totally verbatim record of the proceedings."