ENIL Annual
Report
2013
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Table of Contents
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Letter from the Executive Director………………………………………………………….……….....3
About ENIL…………………………………………………………………………………………………....…….5
Organisational Structure of ENIL……………………………………………………………….………...6
Main Objectives of the European Network on Independent Living………………………7
ENIL’s Expertise on Independent Living and Personal Assistance………………….……..8
Strasbourg Freedom Drive………………………………………………………………………………….10
Resolution Against the Cuts…………………………………………………………………………..……11
ENIL Representation at EU Level……………………………………………………………………..... 12
ENIL Communications…………………………………………………………………………………………13
Reinforcing the skills of the networks and member organisations………………………14
Better integrating of cross-cutting issues in day to day work…..............................15
ENIL Member Organisations……………………………………………………………………………….16
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Dear ENIL Members,
Firstly, I would like to take this opportunity to thank all of our members for
participating in our events and for the support provided to ENIL throughout the year.
There have been many highlights throughout 2013 for ENIL including the celebration of
the 10th Anniversary of the Strasbourg Freedom Drive, our work for a Resolution
against the Cuts has progressed significantly and we are continuing to gain support at
grassroots and European Level for the Independent Living definitions.
ENIL as an organization is growing with members from Iceland to Bulgaria, from
Finland to Cyprus. We make the voices of disabled people heard from all over Europe
and strive to have representation from all European Union countries and the
neighboring countries. It is because of the support and active engagement of our
members in our activities and campaigns that we are able to be so successful in
advocating for Independent Living and the rights of disabled people in Europe.
Although, there are still many challenges that we must overcome in order to achieve full
participation of all disabled citizens of Europe, as a united group our voices cannot be
ignored. There is still the continued impact of austerity measures which are having a
disproportionate effect on the lives of disabled people in Europe. There are also the
continued cuts to funding to Independent Living services meaning disabled people are
struggling to maintain a good standard quality of life in many European countries. The
threat of a return to institutionalization is also a very real fear among many disabled
people.
What kind of future do we want? As Adolf Ratzka says; We want to be ordinary people.
We want our societies to be accessible. We do not want to be discriminated against any
longer. We want to work! We want to study! We want to have our own families. We
want access to our rights and to full participation. This future, this future of
Independent Living stands with each and every one of us. We will not have this access
until we claim it!
I believe that our movement is one of energy, determination and spirit and together I
believe that our network can work together towards the emancipation of all disabled
people in Europe.
Jamie Bolling
ENIL – Executive Director
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About ENIL
The European Network on Independent Living (ENIL) is a Europe-wide network of
disabled people with members throughout Europe. ENIL is a forum for all people and
organisations on Independent Living issues. ENIL promotes human rights and social
inclusion based on solidarity, peer support, deinstitutionalization, democracy, selfrepresentation, cross disability and self-determination.
ENIL promotes equal opportunities for disabled people and fights against
discrimination in Europe. ENIL addresses the under- representation of persons with
extensive disabilities in European disability and social politics, as well as in mainstream
society.
ENIL’s Mission
o Promote the Independent Living philosophy among disabled people, the general
public, national policy makers, government administrations, as well as among
regional bodies such as the European Union, the Council of Europe and the
Organisation for Security and Co-operation in Europe (OSCE).
o Develop the concept, principles and definition of Independent Living. Promote
the development of Centres of Independent Living throughout Europe and
enhance solidarity and networking among them.
o Carry out training and awareness raising activities at the European level
o Represent Independent Living Organizations and the Independent Living
movement at the European level and in different European bodies and
organizations (the European Disability Forum, Disabled People’s International
etc.).
o Combat social exclusion and discrimination through policies which promote
Independent Living of disabled people. Make the Independent Living framework
instrumental to end discrimination against disabled people in Europe.
o Embrace the human rights of disability in acquiring independence and selfdetermination by overcoming the barriers of the medical and attitudinal models.
ENIL is a unique organisation; it is made up of strong-grassroots organisations guided
by the human rights approach, there is enormous dedication by its members to
promote, advocate and lobby for social change (empowerment of disabled people to
take control over their lives) and the transferability of the Independent Living
principles into applicable practices. ENIL represents a disability movement for human
rights and social inclusion based on solidarity, peer support, de-institutionalization,
democracy, self-representation, cross disability and self-determination.
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Organisational Structure of ENIL
At Present, there are nine members of the ENIL Board; Mima Ruzicic Novkovic (Serbia)
Paul Fagan( Ireland), Kapka Panayotova ( Bulgaria) , Peter Lambreghts ( Belgium) ,
Germano Tosi ( Italy) , Debbie Jolly ( United Kingdom) , Vibeke Maroy Melstrom
(Norway), Nadia Hadad (Belgium). Due to the movement of the Secretariat to Dublin
two Irish Board members were co-opted onto the Board with observational status
Gordon Ryan (Ireland), Paul Fagan (Ireland).
In 2013, ENIL’s management team consisted of the Executive Director, Jamie Bolling,
Co-Executive Director Martin Naughton and Policy Officer and Regional Manager Ines
Bulic.
The ENIL Secretariat is located in Dublin, Ireland. The Project Officer, Vanessa Scanlon
and the Finance Officer, Mladen Tubic are based in the Secretariat.
In 2013, ENIL had four Regional Teams. ENIL’s North Regional Team is located in the
Executive Directors Officer in Sweden and is coordinated by Jamie Bolling, the Executive
Director. ENIL’s West Regional Team is based in Onafhankelijk Leven and is coordinated
by Peter Lambreghts, ENIL’s South Region is based in CIL Sofia, Bulgaria with Dilyana
Deneva coordinating this region. ENIL’s East Region has two Regional Coordinators
with Miro Griffiths centred in the United Kingdom and Grega Fadija centred in YHD in
Slovenia.
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Main Objectives of the European Network on Independent Living
The main activities of the European Network on Independent Living throughout the
year are guided and focused on the four main objectives outlined by the European
Union Programme for Employment and Social Solidarity - PROGRESS. From 20072013, the four main objectives were:
1. Improving Organisational Capacity and Management
2. Voicing the Conditions, Concerns and Expectations of (1) People Exposed to
Social Exclusion, Discrimination and Gender Inequality or ( 2) Organisations
Providing Services to People exposed to Social Exclusion, Discrimination and
Gender Inequality
3. Reinforcing the skills of the networks and member’s organisations to advance,
support and further the develop EU objectives and priorities at National Level
4. Better Integrating Cross-Cutting issues (EG. Gender, Poverty and NonDiscrimination) in Day-to-Day Work
Objective One: Improving Organisational Capacity and Management
ENIL has continued to go further in the process of
strengthening its organisational capacity since
moving the Secretariat from Valencia, Spain to
Dublin, Ireland in 2012.
The Executive Director of ENIL was appointed as
North Regional Coordinator and this office is now
based in Harnosand, Sweden. A new South Regional
Coordinator, Dilyana Deneva was appointed and
remains based in CIL Sofia, Bulgaria. Two new East Regional Coordinators were
appointed, Miro Griffins who was based in the United Kingdom and Grega Fajdiga who
was based in YHD, Slovenia. The West Regional Coordinator has remained based in
Onafhankelijk Leven, in Belgium.
In 2013, ENIL placed an emphasis on developing the capacity of the regional teams. A
regional face-to-face meeting was organised in each of the four regions and focussed on
important issues pertaining to the region. For example, the impact of the austerity
measures being the focus of the meeting of the West Regional Face-to-face ‘Stop making
disabled people pay for the crisis’ meeting. The West Regional Meeting took place on the
6th December 2013 in the European Parliament. The meetings also focused on personal
assistance services and the current progress being made towards Independent Living in
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the Region. One of the key aims of each of the meetings was to discuss how the regions
could be strengthened and cooperation increased within the region. The South Regional
Face-to-face meeting took place during the Strasbourg Freedom Drive in France, 10th
September 2013. By holding the event during the Freedom Drive, the connections made
there were strengthened. The North Regional meeting took place in Elva, Estonia, 21st 24th November and the East Regional Meeting took place in Banja Luka, Bosnia and
Herzegovina, 13th November. The main aim of all of the regional meetings was to
encourage future cooperation and to grow the Independent Living Movement in the
region.
ENIL also hosted young people on internships including two young people from Latvia
and Estonia respectively to the Executive Director’s Office in Harnosand, Sweden and
one person from the Global Grants Programme from Spain who is stationed at the
Executives Directors office in Harnosand, Sweden.
ENIL’s expertise on Independent Living and Personal Assistance was continuously
sought in 2013
ENIL’s expertise on independent living and personal
assistance was sought by various organisations and
businesses. ENIL hosted a number of study visits
throughout the year including: a study visit to Minsk,
Belarus between CIL Sofia and the Office for the
Rights of Persons with Disabilities (ORPD), 20th -22nd
May 2013, a study visit to Stockholm, Sweden
between ‘Ray of Light’ Estonia and ENIL & STIL, on
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the 18 and 19 August and a study visit of the Executive Director of ENIL to the
Center for Disabled Peoples Organisations in Copenhagen, 26th -28th June 2013. The
Former Captain Regent of San Marino visited CIL Sofia, Bulgaria, 20th -24th September
2014 and also participated in the March for Independence which took place on the 23rd
September 2013.
ENIL also held training on Independent Living and personal assistance for residents of
an institution for young persons with disabilities in Sofia, Bulgaria.
ENIL Representatives also supported and participated in a number of events in each of
the four regions. In the South Region ENIL Board member Paul Fagan spoke about the
current situation of personal assistance services in Europe at a Conference on Personal
Assistance and Independent Living in Barcelona, Spain. Jamie Bolling, Executive
Director of ENIL participated in a Scandinavian Seminar on Hate Crimes against people
with disabilities in Oslo, Norway in the North Region. In the West Region, Peter
Lambreghts, ENIL’s West Regional Coordinator and ENIL Board member spoke at a
Seminar on self-directed support systems in Europe, Brussels, Belgium. ENIL in
cooperation with the Motivacio Foundation held a Roundtable on Independent Living in
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the East Region in Budapest, Hungary with the Executive Director of ENIL, Jamie Bolling
participating in this roundtable.
ENIL Youth Network
In 2013, ENIL successfully made an application to
the Council of Europe for a follow up study
session focusing on young disabled people and
multiple discrimination to the 2012 ‘Supporting
Young disabled people to become Future Leaders
of the Independent Living Movement’ Study
Session. The ENIL Youth Network has continued
to grow and in September 2013 during the
Strasbourg Freedom Drive an ENIL Youth Meeting was held at the European Youth
Centre in Strasbourg. ENIL also produced a video of the first ever official ENIL Youth
Network Meeting which took place during the Strasbourg Freedom Drive on the 12th
September 2013 at the Council of Europe Youth Centre. Young disabled people from all
across Europe, many of whom are members of the ENIL Youth Network participated in
this meeting and this video highlights their views on the current situation for young
disabled people in Europe and how we can all improve the situation for all young
disabled people in Europe by working together and finding new solutions.
Objective Two: Voicing the Conditions, Concerns and Expectations of (1) People
Exposed to Social Exclusion, Discrimination and Gender Inequality or (2)
Organisations Providing Services to People exposed to Social Exclusion,
Discrimination and Gender Inequality
The European Network on
Independent Living (ENIL) held its
sixth Freedom Drive in Strasbourg
between the 9th and the 12th
September 2013. This year marked a
historical occasion for Freedom Drive
as it marked the tenth anniversary of
the event. The Strasbourg Freedom
Drive was one of the main ENIL
events in 2013. This was a weeklong
event gathered 250 people from all
over Europe. The aim of the events was to promote Independent Living philosophy, to
encourage networking and to empower ENIL members to become more pro-active.
The highlight of the week, a march through the streets of Strasbourg on the 11th
September 2013 provided the Freedom Drivers with an opportunity to make their
messages loud and clear. In 2013, a number of other events were organised along with
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the march including a one and a half- day conference on ‘The Future of Independent
Living, Citizenship and Europe 2020’ which included sessions on ‘Independent Living,
disability and politics’ and ‘Disability and Austerity’.
One of the unique aspects of this year’s Freedom Drive was the emphasis that was
placed on the Independent Living Youth Movement at the Freedom Drive, with a session
on ‘Rejuvenating the Independent Living Movement’ held during the conference and an
ENIL Youth Network meeting held at the European Youth Centre. Four workshops
focussing on key issues that have direct impact on the lives on disabled people including
workshops on ‘Hate Crime and Disability’ and ‘Using EU Structural Funds to support
Independent Living’ took place on the opening day of the conference. In 2013, emphasis
was also placed on increasing cooperation among local, national and European
organisation with a Regional Exchange meeting taking place on the 10th September and
ENIL Allies Development meeting also taking place during the week long activities.
A meeting of Freedom Drivers with MEPs in the European Parliament was organised on
11th September 2013. Emer Costello, MEP for Ireland opened the meeting by outlining
the importance of the UN CRPD, the ratification of which she is promoting in Ireland.
Mairead McGuinness another MEP for Ireland stressed the importance of working to
ensure that Structural Funds do not go into the building or maintaining of institutions
for disabled people.
A new Freedom Drive Campaign was launched in 2013. The campaign replaced the
Freedom Drive Demands from the previous years and aimed to show the reality of
disabled people, the increasing barriers they face in times of economic crisis and why so
many were unable to join us in Strasbourg. For every person who made it to Strasbourg
this year, there were thousands who could not join the Freedom Drive due to the
barriers they face as disabled people in their own countries. The Freedom Drive Video
Campaign was launched in the European Parliament at the meeting with the Freedom
Drivers and MEPs. This video demonstrated to the Members of the European
Parliament the many ways disabled people are still being discriminated and excluded
from the society. The Campaign aimed to show that the human rights of disabled people
are still being violated, despite the European Union’s and the Member States’
ratification of the UN Convention on the Rights of Persons with Disabilities. Through
this campaign ENIL called on the European countries and the European Union for the
full ratification and implementation of the UN Convention on the Rights of Persons with
Disabilities and its Optional Protocol. 2013 marked the 10th Anniversary of the Freedom
Drive and to commemorate this occasion a Freedom Drive Booklet ‘Ten Years Closer to
Freedom? Celebrating the 10th Anniversary of the Strasbourg Freedom Drive’ was also
published.
Despite the difficult economic climate, people travelled from many countries
throughout Europe including ; Austria, Belarus, Belgium, Bulgaria, Bosnia and
Herzegovina, Croatia, Estonia, France, Germany, Greece, Ireland, Italy, Latvia, Norway,
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Romania, Serbia, Slovenia, Spain, Sweden and the United Kingdom to the Freedom
Drive.
The Freedom Drive 2013 was organised in cooperation with the Strasbourg Centre for
Independent Living CHA and with the support of the City of Strasbourg, ULOBA and
European Commission.
Resolution Against the Cuts
At the 2011 Freedom Drive, as a reaction to the cuts
in Independent Living services for disabled people
that are taking place across Europe, ENIL launched a
Proposal for a Resolution of the European Parliament on the effect of cuts in public
spending on persons with disabilities in the European Union. This Resolution
outlined measures that should be taken by the Member States, the European Council
and the European Commission to ensure that cuts in public spending do not lead to
further social exclusion and institutionalisation of disabled people. ENIL argues that
doing so is everyone’s responsibility under the UN Convention on the Rights of Persons
with Disabilities.
Throughout 2013, ENIL continued to receive information from many its members about
the ways cuts are affecting Independent Living services for disabled people, such as
personal assistance and direct payments. Since the launch of the Resolution at the 2011
Freedom Drive ENIL has continued with a series of activities in order to get the needed
support from MEPs. The working group ‘Defend the Right of Independent Living’
continued its work in 2013 towards the Proposal for a Resolution of the European
Parliament on the effect of the cuts in public spending on persons with disabilities in the
European Union being adopted by the European Parliament in 2013. ENIL has
continued to lead this group and there has been good cooperation between ENIL and a
number of other organisations in this working group, namely Autism Europe, Inclusion
Europe, Mental Health Europe, Disabled People Against Cuts (UK), European
Association of Service Providers for Persons with Disabilities (EASPD) and European
Network of (ex) Users and Survivors of Psychiatry (ENUSP). ENIL produced a ‘Defend
the Right to Independent Living: Action Toolkit for an European Parliament Resolution’
to support its members when lobbying for change and to support the campaign.
The working group continued to work in close cooperation with Paul Murphy, MEP and
continued to seek support from the Employment and Social Affairs Committee. On the
7th March 2013, the Conference of Presidents agreed to place an oral question on the
impact of austerity on the living conditions of people with disabilities on the agenda of
the European Parliament. The question, debated and adopted by the Employment and
Social Affairs Committee in February 2013 was based on a proposal by ENIL and
cooperating European organisations. The debate on this oral question took place in the
plenary meeting on the 12th March 2013 in the European Parliament.
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At the 2013 Freedom Drive the campaign was reignited with Peter Lambreghts
outlining the follow up action in his presentation on ‘Disability and Austerity’ in the
third session of the Conference. ENIL sought to have another oral question put to the
European Parliament with a debate asking what concrete measures the Commission it is
taking to ensure the European Union’s commitment under the UN Convention on the
Rights of Persons with Disabilities, the EU Charter of Fundamental Rights and European
Social Charter as well as the goals of the European Disability Strategy 2010-2020 are
being upheld. This first campaign activity was carried out during the Freedom Drive,
and was very successful. Nearly, all of the MEP signatures needed for the oral question
were collected by the Freedom Drivers. ENIL successfully collected more than the forty
necessary signatures for an oral question to be put to the European Parliament.
ENIL Representation at EU Level
Representatives of ENIL participated in several EU Level events, where they were able
to promote Independent Living and the right to personal assistance.
The Executive Director of ENIL, Jamie Bolling along with ENIL representative Vanya
Pandieva from CIL Sofia, Bulgaria, participated in the EU FRA 6th Fundamental Rights
Platform meeting in Vienna, Austria on the 24th -26th April 2013. ENIL’s representative
Vanya Pandieva was especially excited to take part in some of the sessions more directly
related to the human rights of people with disabilities such as: Multiple Discrimination –
hosted by Ludovica Banfi, Victims of Hate Crime - hosted by Albin Dearing and Alice
Hamilton, and Rights of People with Disability – hosted by Nevena Peneva and Martha
Stickings. Within these sessions, it was emphasized that although people with
disabilities are not recognized as victims affected by regular hate crimes, they do suffer
from violence and very often experience aggressive and hate provoked actions and
attitudes.
The Executive Director Jamie Bolling also participated in the EU-FRA Combating hate
crime in the EU-giving victims a face and a voice Conference, Vilnius, Lithuania, 12th
November 2013. She took the opportunity during the opening panel discussion of the
conference to highlight the exclusion of disabled people in existing hate crime
legislation. She encouraged the conference participants especially the wide number of
state representatives to see the need for the inclusion of disability as a ground for hate
crime in existing and future legislation.
ENIL Board member and West Regional Coordinator, Peter Lambreghts participated in
the Workforum on the implementation of the UN CRPD in Brussels, Belgium, 24th and
25th October 2013. He also attended the European Disability Forum (EDF) Board
Meeting in Athens, Greece, 24th May 2013.
ENIL were also represented at the European Day of Persons with Disabilities and
Disabled People’s Parliament, Brussels, Belgium, 3rd December 2013. ENIL was also
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represented at the Zero Project; 2nd Conference on “Employment Rights of Persons with
Disabilities: Innovative Practices” which took place in Vienna, Austria on the 18th and
19th February 2013.
ENIL Communications
ENIL’s internet presence has
increased significantly during the
year. A new section of the ENIL
website has been added- the Hall of
Fame, which presents and honours
pioneers of the Independent Living
Movement. The ENIL Hall of Fame,
aims to celebrate and honour
people’s outstanding achievements
and contributions to the Independent Living Movement worldwide. It is also designed to
encourage awareness to the general public so that it can be seen that people with
disabilities still have many issues yet to be resolved but have also overcome obstacles
due to the positive actions of many fantastic people.
In addition to daily developments and action alerts such as the Disability Watchdog, the
website introduces Role Models who are independent living activists from across
Europe who inspire others with their energy, commitment and ideas. Under campaigns,
visitors could find more information about the Strasbourg Freedom Drive. Readers are
also invited to visit the blog section and to post comments. The website has continued to
become a valuable source of information for organisations and individuals working in
the field of disability.
Press Releases have also been issued regularly on important occasions or as a reaction
to developments for example the Effect of the crisis on people with disabilities to be
debated in the European Parliament on the 12th March 2013 and ENIL Marks the World
Mental Health Day by Submitting a Response to World Health Organisation – WHO
Action Plan 2014-2020 “Better Health for People with Disabilities” and have been
distributed widely and published on the website.
In terms of spreading ENIL’s message to the wider audience, the Newsletter has again
proved to be an excellent tool. The newsletter template was updated in February 2013
making it even more interactive and user friendly. Each issue features examples of good
practice, Disability Watchdog (examples of bad practice and human rights violations), a
role model and any other relevant news and events. In preparation for the Strasbourg
Freedom Drive, two special ‘Strasbourg Freedom Drive’ editions of the newsletter were
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distributed in July and September 2013 respectively.
ENIL’s Facebook page and the ENIL Youth Network Group aim to encourage
Independent Living activists, ENIL members and the General public to engage with each
other on important topics that effect disabled people and to also strengthen connections
between people living in different countries. ENIL’s Hate Crime Network on Facebook
has continued to grow in 2013. Its aim is to help collect information about incidents of
hate crime against people with disabilities and to share good practice in organising
training and awareness raising activities among disabled people’s organisations. In this
way, ENIL hopes to contribute to increased recognition and better reporting of hate
crime against people with disabilities in Europe and ultimately to improved prevention
and better justice for victims of hate crimes.
Objective Three: Reinforcing the skills of the networks and member’s
organisations to advance, support and further develop EU objectives and
priorities at National Level
ENIL organised trainings on Independent Living and on topics that affect the lives of
people with disabilities throughout Europe. ENIL held online training for members of
the South Region between the 1st November and 19th December 2013. These included
modules on Independent Living, Social Inclusion and Principles of Personal Assistance.
ENIL has continued to support the development of peer counselling in Estonia. Mari
Siilsalu, ENIL Estonian Coordinator won the Youth of the Year award during the Tartu
City Youth Worker Recognition Event in 2013 in Estonia. Mari was awarded this
achievement for recognition of her working in creating a safer environment in schools
and for developing peer counselling in schools. ENIL also produced a Research Paper on
Access to Disabled People to Peer Counselling in selected Countries.
ENIL has also continued its work in relation to personal assistance in Europe. The
results of the personal assistance questionnaire on the provision of personal assistance
in a number of European countries were published on the ENIL website. In 2013,
additional information about Belarus, Greece, San Marino, Holland, Bulgaria, Cyprus,
Ireland, Spain, Germany and the United Kingdom was collected. A paper on the
Comparative Analysis of Personal Assistance Provision in Europe was also published by
ENIL in 2013.
ENIL’s project the European Coalition for Community Living published a new
briefing in December 2013 on the use of Structural Funds for disabled people. The
briefing entitled Achieving the Transition to Community Living, highlights the fact that
at least €150 million were invested into institutions for disabled people in six EU
Member States (Bulgaria, Hungary, Latvia, Lithuania, Romania and the Slovak Republic).
As part of advocacy for better use of Structural Funds in Central and Eastern Europe,
ENIL and the Open Society Foundations- Mental Health Initiative held a successful
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roundtable with representatives of the European Commission, Member States, the
European Parliament and the civil society. The meeting organised on 7th November
2013 in Brussels, had as its main objective to provide input into the Draft Briefing on
Structural Funds Investments for People with Disabilities: Achieving the Transition
from Institutional Care to Community Living.
Better Integrating Cross-Cutting issues (EG. Gender, Poverty and NonDiscrimination) in Day-to -Day Work
Throughout 2013, ENIL cooperated
with a number of stakeholders.
ENIL is an Associated Partner in the
DREAM project- Disability Rights
Expanding Accessibility Markets,
which is led by the Centre for Law and
Policy at NUI Galway. ENIL is also a
member of the INNOSERV Consortium.
The goal of the project is to identify
innovative services to develop
innovative research agenda, which will help define future activities. ENIL hired a full
time researcher based in Belgrade, Serbia to work on this project. ENIL supported the
webinar on innovative social service examples which took place in April 2013. Two
Expert meetings in Brussels and Sofia were organised by ENIL as part of the INNOSERV
Project, 18th September 2013 and the 7th October 2013 respectively.
As a result of the success of the hate crime training in Dublin, Ireland in May 2012, a
workshop on hate crime was held at the Strasbourg Freedom Drive. This workshop was
led by Joanna Perry, Hate Crime Officer, OSCE-Office for Democratic Institutions and
Human Rights. A number of topics were discussed throughout the workshop including,
what is disability hate crime, what are the links to tackling hate crime and how can we
raise awareness of disability hate crime. Three additional workshops took place during
the Strasbourg Freedom Drive: “Discrimination and the processing of disability related
cases” which was led by Berit Vegheim, Uloba and Prof. Lisa Waddington, Maastricht
University, “Hijacked definitions and disability policy” which was led by Kapka
Panayotova, Director of CIL Sofia and ENIL Board member and “Using EU Structural
Funds to support Independent Living” which was led by ENIL’s Policy Officer Ines Bulic.
In addition to the EU Fundamental Rights Agency and the European Expert Group on
the Transition from Institutional to Community- based Care, ENIL has continued being
active in the European Disability Forum and is supporting EDF initiatives, such as
EDF’s work on independent living. As part of this task force, ENIL Board members took
part in the consultation on ‘EDF’s understanding of Article 19 of the UN Convention on
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the Rights of Persons with Disabilities’. The Co-Executive Director of ENIL, Martin
Naughton spoke about Independent Living Definitions at the EDF Board meeting in
Dublin, Ireland in February 2013 and ENIL Board member and West Regional
Coordinator Peter Lambreghts spoke in relation to Independent Living and Article 19 at
the EDF Board meeting in Vilnius, Lithuania, November 2013.
ENIL member organisations have provided input into changes in legislation in relation
to personal assistance. ENIL supported Germany in the collection of signatures for
changes to be made in the law in relation to personal assistance. In Norway, members
successfully campaigned against the introduction of new legislation and ULOBA drafted
a new proposed piece of legislation which will be debated in the Norwegian Parliament
in 2014. After national elections in May 2013, representatives of CIL Sofia held a
meeting with the Minister of Labour and Social Policy presenting and outlining a draft
Personal Assistance Law which includes amendments that could be made to the current
Law on Integration of Disabled People, which would bring Bulgaria closer in line with
the UN CRPD and in 2013, the new Government of Slovenia decided to not go ahead
with the Law on Personal Assistance. A new Long-Term Care Act was proposed by the
Government instead. YHD are now working towards requesting that the legislation
relating to personal assistance be a separate chapter within the act.
ENIL Membership
The change in structure has continued to be a successful strategy which has led to
increased grass-roots growth and representation. The regional teams were successful in
establishing and maintaining contacts with organisations in their region and in
increasing the network of ENIL members. The ENIL Youth Network has also steadily
grown throughout 2013.
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ENIL Full Member Organisations
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Attiva – Mente
Polio Plus - Movement against disability
Onafhankelijk Leven
The JAG Association
Društvo za teorijo in kulturo hendikepa
Foreningen JAG Finland
Foreningen JAG Norway
Association GRE A GRE
ENIL Italia
Nemme Mat Eis asbl
Agenzia per la Vita Independente Onlus Roma
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BOL-BUDIV/Expertise Centre
Centar za samostalni zivot invalida Srbije - Center for Independent Living Serbia
Center for Independent Living Ltd - Carmichael House
Hampshire Center for Independent Living
Interessenvertretung Selbstbestimmt Leben in Deutschland E.V.
Društvo za teorijo in kulturo hendikepa
Stiffarna av Independent Living i Sverige
Association of Youth with Disabilities of Montenegro
Zentrum Fur selbstbestimmtes Leben behinderter Menschen, Bad Kreuznach e.v
Instituto Portugues para a Cidadania e Vida Independente
VIGALICIA ( CIL Galicia)
Hampshire Center for Independent Living
Interessenvertretung Selbstbestimmt Leben in Deutschland E.V.
Društvo za teorijo in kulturo hendikepa
Stiffarna av Independent Living i Sverige
ULOBA - Cooperative on Personal Assistance
Vie Autonome France
BISEPZ Zentrum für selbstbestimmtes Leben
Comitatio Lombardo per la Vita Independente delle Persone con Disablitá
Eginaren Eginez (A fuerza de hacer)
Austrian National Organisation for the Centres of Independent Living
Forum selbstbestimmter Assistenz behinder
Glasgow Centre for Inclusive Living
Independent Living Institute
Kynnys Ry ( The Threshold association)
Kunsill Mati tal Persuni b'Dizabilta ( Maltese Council of Disabled Persons)
Oficina Vida Independiente Barcelona
Inclusion Scotland/Self Directed Support Scotland
Scottish Personal Assistance Employers Network
National Center for Independent Living
Samtok um sjalfstaerr lif ( SSL)
Stiftelsen Institutet for Independent Living
Association of Youth with Disabilities of Montenegro
Associazione Vita Indipente ONLUS
Dudley CIL
Cyprus Paraplegics Association
CIL-Sofia
YHD- Association for Theory and Culture of Handicap
Linda Laurie Associates
Associated Members
o
o
o
o
Croatian Union of Associations of Persons with Disabilities
Albanian Disabiltiy Rights Foundation
National Council of Disabled People in Bulgaria
Cameroon Disabled Persons Association
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o
o
o
o
Paraplegic's Association of Drama
European Social Forum
APEIRONS
Office for the Rights of People with Disabilities
Financial Report 2011/2012
EUROPEAN NETWORK ON INDEPENDENT LIVING LIMITED
Income and expenditure account
for the years ended 31st December 2011 and 2012
Turnover:
2012
2011
€
€
529,533
376,808
18
Administrative Expenses
(519,119)
(370,847)
10,414
5,961
-
-
10,414
5,961
Retained Surplus brought forward
120,667
114,716
Retained Surplus Carried Forward
131,091
120,677
Surplus on ordinary
activities before taxation
Tax on Surplus on ordinary
activities
Retained Surplus for the year
EUROPEAN NETWORK ON INDEPENDENT LIVING LIMITED
Balance sheet as at 31st December 2012
31/12/12
2012
€
Fixed assets
Tangible assets
31/12/11
2011
€
€
€
2,195
19
Current
Debtors
Debtors
Cash at bank and in hand
Creditors: amounts falling
due within one year
84,455
160,154
177,570
9,611
244,609
187,181
(115,713)
(66,504)
Net current assets
128,896
120,677
Total assets less current
liabilities
131,091
120,677
Net assets
131,091
120,677
Reserves
Revenue reserves account
131,091
120,677
Members
funds
131,091
120,677
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Contact us
ENIL Secretariat
Ground Floor, Chase House
City Junction Business Park
Northern Cross
Malahide Road
Dublin 17
Tel: (353) 1 525 0700
E-mail: secretariat@enil.eu
Website: www.enil.eu
Connect with us on Facebook
European Network on Independent Living https://www.facebook.com/EuropeanNetworkonIndependentLiving?fref=ts
ENIL Youth Network - https://www.facebook.com/groups/enilstudysession2012/?fref=ts
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