“talking together ” Report of the Integrated Speech Language and Communication Service Project, Flintshire and Wrexham, May 2008 ‘Communication and language skills are essential to survival. At every twist and turn of the way, therefore, children try to make sense of what they have heard and to respond in a way that they hope will be at least vaguely appropriate and useful.’ Bridges (1997). ‘Language is the key enabler to learning. Provide that key and you unlock the learning.’ Bishop (1998). Final Version 16 May 2008 Index 1. Introduction o o o o o o Purpose of Report Project Origins Project Focus Policy Context Speech and Language and the all-Wales Projects ISLACS Target Group 2. Assessment of Need o o o o o Page 9 Research and Evidence Integrated Services Models of Joint Working Demographic Data Service Model 3. Current Provision o o o o o Page 3 Page 17 Overview and Finances Availability of Services Service Pathways and Processes Planning and Commissioning Local Good Practice 4. Local Good Practice Page 30 5. Stakeholder Views Page 34 o o o o Pupil Views Parent Views School Views Views of Professionals 6. Conclusion: Themes and Issues o o o o o o Page 45 Information Early Intervention Involvement Integration Communication Service Gaps 7. Recommendations Page 51 8. Appendices Page 56 o References o List of Available Appendices o Glossary 2 1. Introduction Purpose of the Report 1.1 This report is the result of a project funded by the Welsh Assembly Government (WAG) to explore the development of integrated speech, language and communication services across Flintshire and Wrexham. The project became known as ISLACS. 1.2 The project involved the North East Wales NHS Trust (NEWT), Flintshire and Wrexham Local Health Boards (LHBs) Flintshire and Wrexham Local Education Authorities (LAs) and the voluntary organisation Afasic. 1.3 The report sets out to describe current planning, practice and provision and to assess the potential for more integrated services for children with speech, language and communication needs. Project Origins 1.4 The ISLACS Project was developed following an invitation for bids as part of a WAG initiative on speech and language. The project was approved in the second phase of funding, awarded in March 2006 and commenced in Autumn 2006 with a completion date of March 2008. 1.5 A Project Board was formed at that time, with representatives from the LHBs and LAs together with Parent and Voluntary Association representation. 1.6 The initial aims of the project, as stated in the project bid, were to move towards a future service which would look like the following: o “It will be delivered to children and young people at transition stages within the 2-19 age range who have speech, language and communication needs. o The action plan will specify the children and young people to be targeted by the Service. o On completion of the pilot project the Service will be jointly commissioned. o It will be delivered by collaborative services that are jointly commissioned by the Local Health Boards and Local Education Authorities of Flintshire and Wrexham. o Service delivery will be seamless with a single point of access for all service users. o There will be explicit referral, prioritisation according to need and discharge/exit criteria, and care pathways. o The budget will be managed according to Value for Money and Best Value principles. o The Service will actively promote seamless and collaborative working. o A core value of the Service will be to concentrate on early intervention and preventative methods and will refrain from discrimination on the basis of age, cultural background, gender, language, race, religion or any other consideration. Intervention will be based on relevant individual information and accepted standards of best practice and professional guidelines. 3 o To establish an integrated joint team which will provide a single, effective and coherent pathway for services for children and young people who have speech and language needs. o To develop equitable services across the county boundaries.” 1.7 The emphasis on transition within the project bid and initial specification was included because it was felt that the transition stages can be a vulnerable time for children and young people. If the service had capacity and was comprehensive at these stages then it was seen as reflecting a general robustness. 1.8 The project was co-ordinated through WAG by a Pilot Project Co-ordinator and, as part of the process across all Wales, three central meetings were held during the life of all the Welsh projects which enabled the sharing of information. 1.9 Towards the final stages of all the Welsh projects, WAG commissioned an independent evaluation which was undertaken by CRG Associates in November 2007, with a final report due to be delivered in the summer of 2008. The initial findings have been made available through WAG. Project Focus 1.10 Prior to December 2005, there was an established and successful commitment to joint working practice between NEWT Speech and Language Therapy Services, Wrexham and Flintshire LAs and schools. Despite this commitment there was also a mutual recognition of the rising demand and of the considerable challenges in relation to identifying the best way of mutually meeting these needs. 1.11 In common with other projects across Wales, the specific aim of ISLACS was to use the 1999 Health Act in order to develop an integrated service for children and young adults with speech and language and communication difficulties. 1.12 The Act amended the law regarding arrangements between local government and the NHS, allowing joint commissioning, joint funding and joint provision of services. The ISLACS project set out to take advantage of the Act by: o Identifying current and future (next 10 years) need/ demand for speech, language and communication support across the two Local Authorities o Identifying current resources devoted to speech, language and communication services, assess their capacity to deliver (for example current provision, workforce availability) and identify any unmet need o Identifying good practice locally and nationally using both research evidence and consultation with local professionals, parents and young people. 1.13 Furthermore it was intended to use the information from the above and in consultation, advise on the structure, management and resourcing of a single equitable service for the delivery of support to children and young people (2- 19) in North East Wales who have speech, language or communication needs (SLCN). 1.14 It was anticipated that the data produced would have a high level of impact and potentially involve radical changes to service delivery. Such changes were likely to be founded on existing good practice both locally and nationally. It was also anticipated that changes would be made within existing resources. 1.15 The ISLACS project spanned a period of eighteen months and this placed some time limitations on the nature of the audit and the development of proposals. This 4 was recognised to be the case for all second wave pilots and resulted in the suggestion that projects narrow their focus somewhat. This report therefore may be seen as a platform to further develop the initial remit of the project submitted with the original bid. 1.16 The project was overseen by the Project Board and the work undertaken by three half-time coordinators, selected and appointed on the basis of their experience and local knowledge. They were: o Specialist Educational Psychologist, Flintshire o Senior Educational Psychologist, Wrexham o Speech and Language Therapy Service Manager, (Sept 2006-Summer 2007) o During the autumn term 2007 a Project Administrator was appointed on a term-time basis and in February 2008 an external advisor, was appointed by the LHB to facilitate completion of the report. 1.17 An initial project action plan was drawn up and this was developed and amended throughout the project. Regular meetings were held throughout the project to agree tasks and share perspectives. 1.18 During the first term of the project there was a focus on agreeing the remit, finding accommodation and appointing administrative support. During the Spring and Summer of 2007 wide-ranging consultation was undertaken with service users, parents, school-based referral agents and co-providers. This consultation covered most of those directly involved in speech, language and communication work but due to time constraints did not include some wider stakeholders, such as health visitors or GPs. 1.19 Throughout the project the coordinators sought to gather information via their own professional knowledge, literature research and discussions with selected professionals working in the field. 1.20 The final stage of the project involved writing up the data collected into a report and the development of proposals for further action locally. The report will also be submitted to WAG with a view to developing good practice guidance on the basis of the project outcomes across Wales. Policy Context 1.21 There are a number of policy drivers influencing change. Some of these are shared by all agencies; others are more specific (and it is sometimes these differences which make the alignment of priorities across agencies difficult). 1.22 In many ways the recent policy context makes work on integration both more necessary and more possible. Educational policy and practice have long stressed the importance of social, economic and health factors upon educational attainment. Similarly Health policy increasingly stresses the importance of close working with universal services to improve health outcomes. 1.23 Recent legislative initiatives such as the Children Act (2004) and the Health Act (2006) also provide the tools with which to promote this culture and practice of integration. 1.24 At a national level all agencies have a key role in all aspects of development to achieve the seven core aims for children and young people set out by WAG: 5 1. 2. 3. 4. 5. 6. 7. Have a flying start in life Have a comprehensive range of education and learning opportunities Enjoy the best possible health and are free from abuse victimisation and exploitation Have access to play, leisure and cultural activities Are listened to, treated with respect and have their race and cultural identity recognised Have a safe home and a community which supports physical and emotional wellbeing Are not disadvantaged by poverty. Policy Drivers: Children and Young People Health Shared Global WHO UN Convention on Rights of the Child National Local Authority UNESCO NHS Act Children Act 2004 Code of Practice Access Targets Working Together Early Years Foundation Curriculum National Service Framework NHS policy Professional Local Welsh Language Communicating Quality 3 Local Needs Estyn Teacher Status Standards C&YP Frameworks Single Education Plan 1.25 These policy drivers and national strategic aims have been translated into local priorities for children and young people. Overseeing this process are the Framework Partnerships in each Authority. Wrexham Flintshire C & YPS The Promise: CYPP Priorities: Learn and achieve Be safe from harm Be healthy and active Enjoy and participate Support parenting Reduce behaviour and conditions that put children and young people at risk Support vulnerable individuals and groups Safeguard children and young people Raise children and young people’s attainment in learning settings Inclusion of all children and young people Reduce impact of poverty & deprivation Workforce: a skilled, competent and knowledgeable workforce Information: available and accessible to all Single Education Plan: Raising educational achievement Increasing inclusion and participation Improving the educational environment Improving the coordination of services 6 Speech and language and the all Wales projects 1.26 Within the context of these multiple policy drivers, numerous reports have highlighted the importance of speech, language and communication, both to child development generally and to educational attainment specifically 1.27 In Wales WAG attempted to progress the recommendations of a UK Joint Working Party, published in 2000. 1.28 The Speech and Language Therapy Action Group (SALTAG) was established in 2002 in response to concerns over the escalating demand for speech and language therapy and the lack of a coherent approach by the statutory agencies to meet this demand. 1.29 The outcomes of the SALTAG deliberations were presented in the consultation document ‘Working Together’ (WAG, 2003) which contains a wide range of recommendations. A key recommendation was that Local Health Boards and Local Authorities should work together within partnership arrangements for the delivery of speech, language and communication services to children and young people. 1.30 ‘Working Together’ stated that: ‘Mechanisms and structures need to be established that support true collaborative working, with joint planning, joint training, joint prioritisation and shared sense of responsibility to meeting needs’ 1.31 Consequently, as part of progressing some of the recommendations of the ‘Working Together’ document, pilot projects were established across Wales to establish joint commissioning services for children with speech, language and communication needs. The remit stated: “For effective integrated working, the providers need to have resolved that there are clear management structures, professional accountability, clear performance management of the service and a joint location of the service and proper administrative support.” ISLACS Target Group 1.32 It was envisaged that integrated services would focus much of their involvement and intervention on home and educational environments. However, in order to ensure that there was a shared understanding of the target group for integrated services, the following list was compiled. This represents the groups most likely to need speech, language or communication support. It was acknowledged that some of these would lend themselves to integration locally, while others (such as cleft palate services) might be part of more specialist regional networks (N.B. Children may fall into more than one category): o Pupils experiencing a developmental SLC delay o Pupils having a specific speech and language impairment o Pupils with speech, language and communication needs, including: Autistic spectrum disorder Sensory impairment, in particular hearing disorder Learning difficulties (severe and moderate) Selective/elective mutes ADHD 7 o Pupils with cleft pallet and velopharyngeal abnormalities (many regional acute services provided by Alder Hey) o Pupils with disorders of feeding, eating, drinking and swallowing (dysphagia) o Pupils with disorders of fluency o Pupils with acquired motor speech disorders e.g. dyspraxia o SLCN following trauma o Pupils with voice disorder o Pupils with aphasia o Pupils with progressive disorders affecting speech and language. 8 2. Assessment of Need Research and Evidence 2.1 There is growing evidence on the importance of speech and language development generally and delivering services in an integrated fashion in particular. 2.2 For example, there is considerable researched evidence that educational outcomes for children and young people with SLCN are considerably lower than their peers. Without the right help between 50% and 90% of children with a persistent language difficulty go on to have reading difficulties; exam pass rates are lower and fewer young people with SLCN difficulties go on to further or higher education. (See Rutter et al (1992), Snowling et al (2001), Stothard et al (1998).) 2.3 Additionally there is significant evidence of the relationship between behavioural, emotional and social difficulties and SLCN which may not have been recognised at an earlier stage in the young person’s education. 2.4 In 1997, the Green Paper ‘Excellence for all children’ drew attention to difficulties in securing speech and language therapy services for children with special educational needs. 2.5 In the UK a Joint Working Group into the provision of speech and language services, involving both the Department of Health and the Department for Education, was established to reflect the perspectives of providers and users. Their report was published in 2000. ‘Report on the Provision of Speech and Language Therapy Services to Children with SEN (England)’ 2.6 The principal recommendations of this report around the role of the Speech and Language Therapist (SLT) working with school age children was that: “Therapy for children of school age is best carried out collaboratively within the school context; The traditional tasks undertaken by SLTs, that is, assessment, diagnosis and therapy should be carried out in conjunction with teachers and parent carers. SLTs should provide active support to schools to help them differentiate content, teaching style and curriculum outcomes for children with speech and language difficulties with a particular focus on language in the classroom context of both peers and teachers” 2.7 The report recognised that some children may need specialist interventions outside the school environment: “Where appropriate, clinic based options should remain for those requiring specific specialist interventions over a time-limited period.” 2.8 It also recommended that: “SLTs can also be expected to provide education and training in aspects of language, language acquisition and speech and language difficulties… there must be a flow of information from teachers to SLTs” and 9 “There should be clear published guidelines as to what is expected of SLTs, schools and LEAs. These might be expressed in the form of local partnership agreements.” 2.9 The so called Standards Funds Pilot Projects carried out at the time were evaluated independently in 2000/1. The evaluation report indicated that there had been a ‘culture change’, leading to improved strategic partnerships in the delivery of therapy. The evaluation also describes delivery of speech and language therapy in inclusive classroom settings and a move away from clinic based models of delivery (Barber et al 2002). 2.10 More recently the Department of Health and the Department for Children, Schools and Families commissioned, under the co-ordination of John Bercow, a review of provision. An interim report was published in March 2008 with the aim of providing the Government with recommendations at strategic planning levels, with regard to commissioning to meet needs, and also with regard to good practice. 2.11 The Bercow review surveyed professionals and service users through a range of means, including questionnaires, visits to provisions and focus groups. 2.12 The interim report has identified good examples of working practice at the operational level but failure at strategic level which have been described as ‘profoundly unsatisfying’. In particular, Bercow stated that “Communication is very low priority for commissioners and that has to change” (Bercow 2008). 2.13 Bercow states that the review recommendations to the UK government to be made in July are likely to include the following: o A national project to highlight and raise the profile of the importance of communication in the development and well being of young people o That the problems with commissioning needed to be addressed through a stronger central lead o Workforce development needed to be addressed both at specialist intervention level and at the wider universal levels o And that the accountability of LAs for the provision of SLT for pupils with statements should be reviewed. Within this, the accountability for delegated resource provision needed to be strengthened through guidance to schools and inspection processes and the clear ring fencing of specific budgets o Regional commissioning of specialist Services should be considered in some detail. Integrated Services 2.14 The move to integrated services for children over the last six years, has sometimes raised questions within differing professional groups as to their identity and purpose, leading to a scrutiny and a re-examination of roles and the organisational structures in which the professions are practised. 2.15 Collaborative work between children, young people, families and professionals is key within the aspirations of the government’s long-term strategy to promote the well-being of children as set out in “Rights to Action”. 2.16 Partnerships between children and young people, parents and professionals are clearly very important in meeting needs but the challenge is to move beyond the 10 rhetoric and develop responsive and effective working arrangements between relevant agencies and even to agree which agencies are relevant in the first place. 2.17 Where a range of agencies are working with families, schools and with individual children, the notion of collaboration can get translated into the idea that integration of services is, by definition ‘a good thing’. Working towards this ideal throws up issues around professional standards and professional accountability, finance and responsibilities which are often difficult to resolve. 2.18 Most importantly, while the idea of integration has superficial virtue and coherence, there is very little evidence to show that it actually does lead to more effective work. There are very few agreed ways to measure and to demonstrate that if integrated services did work better, then what would we see that was different. In recent years, many Local Authorities in the UK have dedicated immense resources towards developing the integration of their Children Services but there is anecdotal evidence from the English experience to indicate that some are now giving up exhausted, with depleted coffers and depleted motivation. (Robinson, 2008) 2.19 So within the ISLACS project, which has the stated aim “to develop an integrated service for children and young adults with speech, language and communication difficulties” and to “establish an integrated model of delivery in line with the Children’s National Service Framework”, care is needed to assess what integration of service is desirable, what is possible and what is just too entrenched and has little demonstrable cost and outcome benefit. 2.20 The Position Paper of the Royal College of Speech and Language Therapy with regard to the role of staff within integrated children’s services (Gascoigne, 2006) sets out a framework for integration spanning the realms of governance and strategy right through to frontline delivery and outcomes (see diagram opposite). 2.21 Gascoigne formulates fifteen recommendations for SLT services operating within an integrated context. These include: o Working as part of a multidisciplinary team o Exploring new ways of working within “trans-disciplinary” models o Training others, including parents is central to the SLT role o Service planning should always be done in partnership with other agencies o Staff should undertake professional development across health, education and social care to develop knowledge for cross-agency working. 2.22 She goes on to stress that the Royal College “regards trans-disciplinary working as central to work with children”. And that “For this model to be successfully implemented, it is essential that there is clear understanding about the individual professional contributions.” 2.23 Gascoigne argues that perspectives of different professional roles vary and should be discussed and agreed by the teams around a child. However, this does not 11 mean that roles and skills are blurred into a composite whole which reduces the professional skills of individual contributors. We need to ensure that we protect the essentials in our roles and skills and that these are reflected through identified need, skills, training and continued professional development. 2.24 So that, as Norah Frederickson (2004) put it, we make up a crispy salad where individual ingredients have a clear identity, flavour and purpose and we do not end up with a composite mushy soup with no particular identity, purpose or flavour. 2.25 The recent Bercow review in England (discussed above) stressed the importance of integration, making joint working one of its five key themes emerging from the research and consultation: o Communication is crucial o Early identification and intervention are essential in order to avoid poor outcomes o A continuum of services, designed around the family, is needed o Joint working is critical o The current system is characterised by high variability and a lack of equity 2.26 As we will see in the section analysing stakeholder views, these themes have much resonance locally. Models of Joint Working 2.27 A wide range of models exist across Wales and the wider UK for the provision of services to children and young people with speech, language and communication needs. 2.28 One of the Services for children and young people with SLCN scrutinised by the Bercow team as part of that review is that operating within the London Borough of Hackney. 2.29 Services within Hackney are distinct in their delivery to children by the clear agreements that are in place and the levels of input / criteria of need which map from the universal level to the targeted specialist levels of input. All primary schools in Hackney have an allocation of SLT time based upon a formula which reflects factors such as existing case loads, pupils on roll, etc. This allocation of time is applied on a half term on / half term off basis which enables schools to run programmes and to embed and extend input from the SLT. 2.30 Each SLT has an allocation of approximately six schools where those with the highest level of allocation have 2 days input per week ranging through to 1.5 and 1 day per week. This time is used for everything that is needed in the school including some specific training although there is a Local Authority wide training programme which comes out of core SLT Service time. The levels of support available for children with for example, SLI are explicit and emphasise enabling and supporting school staff and parents in the delivery of programmes. (Appendix) 2.31 The model of service delivery used in Hackney has the advantage in that it uses a ‘dynamic model’ of a child’s learning potential to contribute to the assessment of specific language impairment, looking at learning potential as well as needs. The use of standardised tests to support a discrepancy model of impairment is problematic. The inequalities generated from this have been noted in the Professionals audit. 12 2.32 While, over the last ten years, there has been a general move for SLTs to base much of their work with children within the school environment, schools can be unfamiliar, even slightly alien, working environments for some SLT. The Knowles Edge Standards Funds Project, (see Roulstone, Owen and French (2005)) identified a range of low key suggestions to help make the SLT a part of the school team. These included: o o o o o The SLT has her own pigeon hole and gets included in all staff circulars The SLT was invited to staff meetings The SLT pins her timetable up on the notice board in the staffroom The SLT works through issues with the SENCo Therapy items are included on the staff meeting agenda 2.33 The evidence with regard to budget management is that pooling or aligning budgets is often highly dependent on positive relationships with the key players involved. Where successful arrangements have been established for a period, these may have subsequently broken down when those involved have moved to other posts/responsibilities (Levens, 2007). 2.34 Research from change management shows that the importance of colleague relationships is all too often ignored when changes in strategy and organisational structure are being considered / implemented. 2.35 A clear training structure appears to have paid dividends within the London Borough of Barking and Dagenham and eased the way from the operational level towards multi-agency working. 2.36 Responding to the ever increasing demand for SLT input, together with unfilled SLT posts a multi agency speech and language strategy group was established. This group co-ordinated the delivery of the Joint Professional Delivery Framework training (ICAN). This was complemented with termly training which contributed towards Cambridge accredited qualifications. This emphasis on training has skilled up the local workforce, but more importantly, Barking and Dagenham report that ‘doing things together helped enormously’. 2.37 Other models of good practice are also cited in Gascoigne’s paper and include: o Medway Pooled Budget: PCT and council funding for primary school children with SLCN is pooled and funds a multi-disciplinary team of Therapists, Advisory Teachers and Technicians o Glasgow ADS Service: Integration at a number of levels including planning (a Framework Group) and joint assessments together with an information pack for schools and support groups for school staff. o Northern Ireland COMET (Communication and Education Together): specialist Advisory SLTs are employed to support teachers and other school staff. Demographic Data 2.38 Using national prevalence rates and population figures we can put together a picture of the broad levels of need for speech and language services that might be expected in the two Local Authorities. 2.39 At the broadest level, there are a large group of children who have transient SLCN. A Basic Skills Agency Survey showed that school staff believed that around 50% 13 of children start school lacking some of the communication skills that are vital for learning. 2.40 However, many of these children gain the necessary skills as they develop or through early education. It is now generally accepted that around 10% of the school age population have a speech, language or communication need that could affect their ongoing educational attainment. 2.41 Half of these children will be classified as having Specific Language Impairment, that is poor language skills with no evident neurological, sensory or physical impairments and no pervasive developmental disorder. 2.42 Other children will have speech, language or communication difficulties associated with another condition. Prevalence rates are known for speech and language difficulties associated with a number of the conditions listed in the Target Group. 2.43 This information is set out in the table below. The table is based on latest mid-year population estimates (2006). It should be noted that it is projected that this population may well fall over the next five years and that some children may fall into more than one of these categories. Difficulty Prevalence Wrexham Flintshire Cleft Palate 0.06% 17 20 Dystrophy 0.09% 25 30 Cerebral Palsy 0.11% 31 37 Hearing Impairment 0.12% 36 42 Head Injury 0.16% 48 56 Stammering 1.00% 298 349 Autistic Spectrum Disorder 1.16% 346 405 Learning Disability 1.38% 410 480 Other (balancing figure) n/a 280 327 Specific Language Impairment 5% 1,491 1,744 Overall SLC Need 10% 2,983 3,489 (of which: Persistent SLC Need) 6% 1,790 2,093 2.44 Thus it is likely that there are around 3,000 children in Wrexham and 3,500 in Flintshire with some level of SLCN – half with an underlying physical or sensory disability. This need will persist over time in around 1,800 children in Wrexham and 2,100 in Flintshire. 2.45 This data needs to be viewed with some caution. It is generally accepted that prevalence rates vary in response to local conditions including deprivation and other socio-economic factors. The RCSLT suggests that factors such as urbanisation, numbers of Looked After Children, the presence of preventative services and local assessment practices also have an impact. 2.46 It is also known that need varies with age. Perhaps the most comprehensive analysis of need was undertaken by Law et al in 2000. This reviewed literature over a thirty year period to assess need at different ages. 14 Median Prevalence (from literature review, 1967-1997) Age 2 3 4 Speech and Language Delay 5.0% 6.9% 5.0% Language Delay 16.0% 2.6% Speech Delay Expressive and receptive language delay 3.0% Delay in expression 16.0% 2.3% Delay in comprehension 2.6% 5 11.8% 6.8% 7.8% 6 7 5.5% 14.5% 3.1% 2.3% 2.1% 4.3% 3.9% 2.0% 2.8% 3.6% 2.47 Other local factors may also have an impact. For example SLT services have identified 8 Welsh speaking children with Significant Specific Disorder in each of the two Local Authority areas. 2.48 As a result of high levels of employment, both Flintshire and Wrexham have seen significant recent additions to their schools of pupils for whom the first language is not English or Welsh. There are clearly implications for service planning around developing the specialist skills required for the identification of SLCN and related needs and for workforce training in this area. 2.49 It is known that only a fraction of those with SLCN will be the subject of a Statement of Educational Need. Latest figures are contained in the graph below. Primary Reason for Statement 100% Other 90% SLCN 80% 70% 60% 777 735 63 109 Wrexham Flintshire 50% 40% 30% 20% 10% 0% 2.50 Although it may seem straightforward to take account of the number of children with statements with SLCN, caution is needed in interpreting these figures. Recording patterns differ between the two Authorities and certainly there are children with SLCN for whom this is not recorded as the primary need within the Statement. Therefore, to base planning and development of integrated services on figures such as these is unreliable. 2.51 An ongoing review of the Statementing process in Wales is also underway which may affect the Statutory Assessment process and any prediction of needs based on this. 15 Service Model 2.52 The following working model from, Gascoigne 2006 has been adopted by the Project Team as a starting point to map the audit outcomes and to describe a possible balance of services within integrated provision. 2.53 The diagram below shows how different services might play a role within this pyramid. Because of the emphasis in the original project brief on prevention and early intervention, the diagram highlights services at the pre-school level as well as at school age. Specialism Specialist Interventions (e.g. Resources) Individual Interventions (e.g. SLT) Group Work Outreach Services Multi-Agency Programme Planning Staff Training: Staff Training: Early years settings Teachers, Teaching Assistants Training for Families Support Groups: Parents & Young People Self Help Programmes Prevention Preschool Information for Families School Age 2.54 The pyramid is used to demonstrate the number of children seen as services become more and more specialised. At the bottom of the pyramid we have preventative measures such as information, self help and support for families. Next comes training and resources for professionals in universal services (child-care for the pre-school age and schools for school age children). For a small number of children referral to dedicated and specialist services will be required. 2.55 By considering the balance of services in this way we can assess whether or not given services are available in each location (see next section). 16 3. Current Provision 3.1 This section describes the range of services available in the two Local Authorities and the degree of integration between services. It concludes by assessing current provision against the model set out at the end of the previous section. Overview and Finances 3.2 A range of speech, language and communications services are currently provided by a variety of agencies and in a range of settings and contexts. 1.5 NEWT SALT Specialist Services Afasic Disability Services School staff CAB Talk for Talk Self Help 1.1 Voluntary Services. Specialist Teachers & Advisors Educational 1.3 Psychologists Schools & LEA Service 3.3 The NHS acts as primary provider of Speech and Language Therapy services, in this case through the North East Wales Trust. However, all services share a responsibility for the welfare and development of children. It is, for example the Local Education Authorities who have the ultimate responsibility for ensuring that provision of services is made for children whose Statement of Educational Needs specify that this is an educational requirement. 3.4 This is the case as a consequence of a judgement handed down in 1989 and known as the Lancashire judgement, where it was ruled that a child’s need for speech and language therapy was an educational provision since speech, language and communication skills were central to educational development in the broadest sense. 3.5 The Code of Practice for Wales (8:49) states that “since communication is so fundamental in learning and progression, addressing speech and language impairment should normally be recorded as educational provision unless there are exceptional reasons for not doing so” 3.6 In effect this means that the two Local Authorities have ultimate responsibility for services over which they have little direct control. In order to make this provision 17 the two authorities have service level agreements to buy in packages of SLC support from NEWT for a number of children who have statements. This funding is over and above the level of provision funded by the NHS and stands at £52,000 for Wrexham and £10,000 for Flintshire. 3.7 In addition to this the Local Authorities fund the costs of NNEBs, Teaching Assistants, and Out-of-County placements for children with SLCN. 3.8 NHS funding for Speech and Language, through the NEW Trust currently stands at £1,379,650, although this figure includes services to adults as well as children. 3.9 The remainder of this section describes the range of services available to children with SLCN. It should be remembered that in addition to these specialist staff, a range of staff in other targeted services (e.g. Portage and Educational Psychology) and in universal services will contribute towards childhood speech and language development, including: o o o o Early Years workers Teachers and classroom assistants Health visitors and other primary care staff School nurses. 3.10 There are also a number of other potential sources of funding for relevant services including voluntary sector funding and the Better Schools Fund. Availability of services 3.11 To assess the overall availability of services within Flintshire and Wrexham we can map current services against the pyramid model set out in the previous section, starting at the base of the pyramid with preventative services. Information and Self Help 3.12 The 'Talk for Talk' group in Wrexham has established an effective support structure for parents and a more effective and engaged partnership between parents and school staff. 'Talk for Talk' is seen as being supportive and empowering by parents of children with Specific Speech and Language Impairment, who can perceive themselves as being isolated and de-skilled. It is a collaborative, multi-agency group, involving first and foremost, parents and pupils, together with Health, Education and the Voluntary Sector. There is no equivalent service in Flintshire. 3.13 A very limited amount of local information is available on council websites and at the Children’s (Family) Information Centres. 3.14 More generally, the voluntary sector, for example AFASIC and ICAN, provide an important information and signposting role with extensive information on their websites. Materials are also available from these organisations for parents and professionals. 3.15 Independent support for families including those with children undergoing the statutory assessment process is available through the CAB’s Parent Partnership Service. 3.16 SLT staff distribute a range of their own materials and those of voluntary support groups such as the British Stammering Association and others. 18 Training and Support for Families “Training of others, including parents should be viewed as a central activity for SLTs to maximise impact for the child and their family.”(Marie Gascoigne 2006) 3.17 Parents and carers are offered access to "drop in" appointments to discuss homebased strategies to support children and young adults with speech, language and communication difficulties. This service is provided by SLT services. 3.18 SLT also provide a range of training, support and workshops for families including: o Parent only workshop and an initial assessment for under 7s with stammering o “Demonstration” sessions of helpful techniques/strategies for specific pupils o Makaton Signing with parents/carers for specific pupils o Paget Gorman Skill Sharing opportunities o Additional contact/therapy sessions are offered by the SLT Education Service Teams to parent/carers during school holidays o Guidance in supporting home-use of PECs o Parent workshops for children receiving group therapy o SLT Training for parents in Flying Start o Parent Child Interaction therapy to empower parents (see below) 3.19 The Portage Service, delivered through the LA Educational Psychology Services in Wrexham provide support and information to families and preschool children who are identified as having some additional needs. Many of these needs will include language and communication. Training, Support and Workforce Development SALTAG Key Objective 2003 “The continuing development of an appropriately skilled workforce in both health and education services to meet the needs of monolingual and bilingual children and young people.” 3.20 A number of developments at a national level currently impact upon the nature and availability of training.. o The move towards Children’s Services leading to a range of providers and new needs being identified within a multi professional working context. o Children's And Young Peoples Workforce Development Network the purpose of which is to ensure that children’s services in Wales are provided by a skilled and effective workforce). 3.21 At the local level the key drivers are: o Both Local Authorities have identified training as a key objective o School Improvement Plans identify training priorities. 3.22 An audit of the training available to professionals working with pupils in the target populations in Flintshire and Wrexham and parents of pupils with SLCN is based on: o Information provided by professionals concerned with the training of staff working with pupils with SLCN 19 o Research into resources available, eg training packages. o Further information regarding training is available in the Stakeholder Section regarding the outcomes of the questionnaires to parents, school based staff, Educational Psychologists and Speech and Language Therapists “If there is to be an increase in the skill mix and the number of assistants available, identified solutions need to be found and quality training programmes need to be developed and in place to support this. Local initiatives need to be reviewed in terms of their appropriateness, effectiveness and quality.” 3.23 Within Education a range of courses are available for the specialist, targeted and universal level workforce. At the universal level, the curriculum itself has a key role. For example the Foundation Curriculum identifies communication, language and literacy (CLL) as one of the key strands of the curriculum. 3.24 There is initial professional training, input from school staff such as mentoring and discussion with SENCo/ANCo and advisory staff, school staff twilights and also the drop – in sessions provided by SLTs. Early Language Intervention is also provided by SLTs (see the section on Good Practice). 3.25 At a targeted level, there is for example, the Communication and Language Advisory Support Service (CLASS ) which is a pilot service based in Flintshire the purpose of which is to develop Speech and Language Friendly Schools (see Appendix). 3.26 Teachers and support workers are offered access to "drop in" appointments with SLT staff to discuss classroom-based strategies to support children and young adults with speech, language and communication needs. 3.27 At the early years level, SLT staff, educational psychologist and advisory staff also provide support, advice and training into both Flying Start and Sure Start. 3.28 At the specialist level teachers in both Local Authorities including some mainstream staff with existing specialist skill and including teachers in Key Stage 1 and 2 Language Resources in Flintshire have attended the distance learning course based in Sheffield on Language and Communication in Children. The course is a three year course leading to a certificate in the first year, diploma in the second year and masters in the third year. 3.29 A range of training for staff is provided by the SLT service. Training for school staff was initially promoted via the Local Authority but experience has proven that advertising courses directly to schools helps to promote a higher take up. A selection of the courses offered, together with latest take up figures is provided in the graph below (take-up had previously run at around a quarter). 20 SLT Training: % School Take-up 100% 90% 91% 80% 70% 67% 60% 50% 62% 68% 49% 40% 30% 32% 20% 10% 0% Makaton PECs Social Shape Coding Cued Word Finding Communication Articulation 3.30 Elklan (see Appendix) is an accredited programme which has been widely adopted across Wales . The core courses offer comprehensive , detailed and practical training for SLTs to deliver to education and health professionals . Some modules have been translated into Welsh. A number of SLT and education support staff in both Wrexham and Flintshire have been trained as trainers of Elklan. 3.31 The ICAN Joint Professional Development Programme (JPDF) was delivered in Wrexham in 2004. However, the emphasis on a more integrated children’s workforce development plan has led to the recent launch, through ICAN, of the Speech, Language and Communication Framework, (SLCF), which is described as ‘a revised and extended JPDF’ which is available as an online training tool. 3.32 This defines competencies around speech, language and communication at four stages: o o o o Universal Enhanced Specialist Extension. 3.33 The stages range from the skills and knowledge that everyone working with children and young people should have through to the specialised learning around SLCN at a postgraduate level. The programme was launched in March 2008 and will be refined over the next year as a result of advice and input from those using it. Direct Interventions 3.34 The model set out in the previous section divides services into a range of interventions. This was done to emphasise the importance of skill mix within services and the achievement of a balance between universal, targeted and specialist provision. There is a core assumption of inclusion underlying this model. 3.35 In both Wrexham and Flintshire there is a range of provision to address a variety of SLC needs. Services are delivered into a full range of settings including home, preschool provision (nursery, Flying Start, Sure Start) and schools. At the more 21 specialist end of the pyramid there are also dedicated “Resources” for SLCN together with specialist Health services as necessary. 3.36 Much of this provision is delivered in a multi-disciplinary way, reflecting an understanding of the importance of placing speech and language within the wider context of overall child development. There are several examples of good practice in joint provision with SLT services and Education. 3.37 A brief description of the main services for children with speech, language or communications difficulties are set out below. Advisory Teachers 3.38 The SALTAG report discussed above noted the contribution which could be played by teachers specially trained to support schools in their speech and language work: “The role of specialist teachers should be encouraged further to ensure effective collaborative working across agencies, to avoid duplication and share the responsibility for the delivery of programmes to children with SLCD. Consideration needs to be given to a parity across LEAs by increasing the provision of these specialist teachers.” 3.39 Each of the LAs employs a single specialist advisory teacher to advise and support schools on language and communication issues. 3.40 An example of this is the CLASS service in Flintshire which is a support service to pupils in mainstream primary schools experiencing difficulties accessing the curriculum due to speech or language difficulties. In Wrexham there is a single advisory teacher who works in Key Stages 1 and 2 with additional input to Flying Start. Language Outreach 3.41 Some degree of skill mix has already been achieved. This is perhaps most notable in a number of Outreach Services. 3.42 The Language Outreach Service is for children who might previously have attended a language resource. The service consists of NNEBs working with children in the local mainstream school on a programme designated by a specialist Speech and Language Therapist. A Welsh medium service is also in place. 3.43 The success of the outreach service has exceeded expectations: frequently children previously designated as needing language resource placement progress to the point where it is no longer required. 3.44 There are currently 24 children in Outreach in Flintshire and 24 in Wrexham. 3.45 There is also a Hearing Impairment Outreach Service supported by SLT. The aim of this service is to offer an in-school service to Hearing Impaired pupils in mainstream schools. Staff from the Hearing Impaired Resource based within a primary school in Flintshire will use their expertise and work in collaboration with the Speech and Language Therapy Service to support staff in mainstream schools who are working with Hearing Impaired pupils. 3.46 At June 2007 there were six pupils receiving Outreach for Hearing Impairment across the two Local Authorities. 22 Language Resources 3.47 Wrexham and Flintshire each support a series of multi-agency specialist services known as Language Resources. There are separate resources at Key Stages 1, 2 and Stages 3/4. Pupils in Language Resources Key Stage 1 Key Stage 2 Key Stage 3 & 4 Pupils in Hearing Impairment Resources (receiving SLT) Key Stage 1 & 2 Key Stage 3 & 4 Sub-Total Other SLCN Statements: TA support Other SLCN Statements: Language Outreach Other SLCN statements Grand Total (SLCN Statements) Flintshire Wrexham 7 12 14 13 13 16 10 4 48 27 24 10 109 13 10 64 24 88 3.48 In addition, there are also dedicated Resources for Autism and of course special schools. These cater for children with complex disabilities and all have support from SLT to address children’s communication issues. Such input is an essential part of providing a wrap-around service for children with the most complex long term needs. Out of County placements 3.49 If pupils with HI and ASD are included, there are a significant number of very high cost out of county placements where it has been deemed that the pupil’s needs cannot be met from local resources. Some of these children might have a SLCN as a primary need while others will have complex disabilities or behavioural issues with associated SLC difficulties. 3.50 Anecdotally, some parents see access to dedicated Speech and Language Therapy as an attractive component of some out-of-county independent special schools. Speech and Language Therapy Services 3.51 The Speech and Language Therapy Department is run by NEWT and is funded through the NHS (although supplementary funding is provided by the local authorities). 3.52 The department is managerially divided into three teams and comprises 22 whole time equivalent staff working in the two children’s teams: Head of SLT Adults Health Team Education Team 23 PT posts 24 PT posts 23 3.53 The SLT Department supports the training, self help and Outreach described above as well as undertaking direct interventions with children and young people. 3.54 Within the Service the Health team addresses the needs of those children who have a primary health need or are currently seen within a clinic context. The Education Team sees children who require a service tailored to their educational environment. Data on referrals and activity is summarised in the table below. Activity 2007 (from PAS) Referrals Health SLT Team 918 Education SLT Team 276 3.55 In addition to seeing new referrals the SLT staff also see existing children for follow up appointments (and of course conduct training and support staff in other services). The graph below shows the split between the number of new referrals and follow-up appointments. Follow-up appointments constitute around 94% of face-to-face appointments. SLT Cases Seen 2007/8 Follow Up 1400 New 1200 1000 800 600 400 200 N O ct ob ov er em b D ec er em be Ja r nu a Fe ry br ua ry M ar ch r t m be gu s Se pt e ly Au Ju ne Ju M ay Ap ril 0 3.56 It is also worth noting that there is inevitably a gap between referrals and the number of children seen. Some referrals are returned because they are inappropriate or because insufficient information is included. Others Do Not Attend. This “DNA Rate” for new referrals is around 10% and around 7% for Follow-ups. 3.57 So for the 2007/8 financial year there were just over 1,000 referrals with 713 of these being seen. There were also 10,406 follow-up appointments attended. This relates to the overall levels of need identified above of 3,883 children with persistent need (and 6,472 falling within the 10% of children with some level of SLCN). 3.58 The SLT service provides a wide range of interventions across the entire age range. Many of these are provided as part of other multi-disciplinary teams such as: o Home Advisory Service - a multi disciplinary team, working with children under the age of five in Wrexham and Flintshire, who have complex developmental delay across more than one area of development, or have a recognised genetic condition which has associated complex 24 developmental delay. The SLT may work with he child directly or may support the health care workers in delivering the service. Each child referred to the service is reviewed on a six monthly basis and the goals are jointly agreed by the family and the professionals. The children may be seen individually or as part of a small group, they can be seen at home, in the children’s centres, or at nursery/playgroup. o The Maelor Children’s Centre (Wrexham) provides Assessment, Therapy and intervention to children under five years of age. These include SLCN, behavioural and emotional needs, physical difficulties and complex needs. Key teams include the developmental assessment team and the under fives family team. Children are seen for individual or group therapy and in a variety of locations (home, nursery, MCC) according to their needs. o Work into both Flying Start and Sure Start 3.59 A range of services are also provided into schools. These include: o Junior-Secondary School, School Based Service – A service for school based children who have needs at, 'School Action Plus', and Statement levels. The Service can offer assessment; reassessment; advice; programme planning; programme delivery; review of progress; consultation; IEP formulation; involvement at Special Needs Review meetings; training. School follow up appointments are usually available a minimum of twice per academic year. In response to IEP feedback, ongoing assessment or programme monitoring may be required resulting in additional sessions being offered at shorter time intervals. o Special Needs Outreach - Specialist assessment, programme provision, demonstration therapy (to empower education colleagues and parent carers) training and support and consultations are offered by a Team of Highly Specialist, Specialist and Generalist Therapists, in conjunction with Technical Instructors. Each family of schools (secondary school and feeders) has an assigned named/link Therapist who acts as their consistent point of contact from infant to secondary school. There is a “pool” of available therapists for schools to ensure that all pupils can have access to the Therapist with the most appropriate skills and/or for a second opinion for individual pupils. o Input into specialist Educational Resources including Language Resources, ASD Resources and Special Schools. o Outreach services as described above. 3.60 In addition SLT provide a range of dedicated intervention services including: o Dysphagia - a service to all children with dysphagia living in Wrexham and Flintshire. This includes an assessment of swallowing (including videofluoroscopy with the consultant radiologist), eating and drinking, and treatment and ongoing support around feeding issues and dysphagia. This includes children with severe cognitive or physical delay, complex cardiac problems and other medical conditions, sensory problems, and children who are moving from non-oral feeding to oral feeding or vice versa. o Community Special Needs – a service for children under 5 who do not meet the criteria for other services (see above). They are in practice many of the children who are placed in resourced nursery provision. Children are referred to this service via SLT sorting panel, or by schools. The S&LT provides assessment, reports and programmes for each child and 25 o o o o o o contributes to the IEP’s and school reviews. This is primarily a programme based service. Hearing Impairment Service - a highly specialist service encompassing unique expertise on assessment, diagnosis and management of all aspects relating to hearing impairment. It provides a service for children with moderate to profound sensory neural hearing loss across Wrexham and Flintshire in schools and at home and also gives support and second opinions to children for whom hearing loss is not their primary need, and advice to adults with hearing impairment. There is close liaison with the wider multidisciplinary team. Cleft Service – a specialist service to children and adults with cleft lip and/or palate, or non-cleft VPI, attending multidisciplinary clinics in Wrexham. This includes the provision of specialist therapy and investigations, including nasometry, videofluroscopy and nasendoscopy. The service works in collaboration with the North West of England, North Wales and IOM Cleft Lip/Palate Network to provide a high quality service in accordance with nationally agreed standards. Community clinics - This service is for children aged 0 –18 across Wrexham and Flintshire counties, based in community clinics. Therapists provide assessments, up to 8 week blocks of therapy (one 30 minute session of individual therapy per week) and 3-6 monthly reviews. Technical Instructors provide therapy under the supervision of the caseholder therapist. Home and school programmes of work are also provided. For school age children liaison with class teachers and SENCo/ANCo, to contribute to Individual Education Plan target setting and share information, is generally made by telephone. For high priority children, the therapist may attend annual review meetings in school. Groups - Group therapy is provided by a Speech and Language Therapist and Speech and Language Therapy Technical instructor and is divided into three categories, (sound awareness, multiple sounds and higher level language). Children are allocated to a group depending on their age and type/s of difficulty. Benefits of group therapy are social learning and support and the method of delivery allows a key emphasis to be placed on parental involvement (with observation sessions, information leaflets about groups and weekly homework to support therapy sessions) so that progress is maximised. Parent Child Interaction Therapy - The PCI service provides baseline therapy for all pre-nursery children presenting with speech and language delay/disorder and nursery-age children with language skills below a 3 Key Word level. It provides support to carers, empowering them to develop their child’s communication skills. PCI is based on video feedback to parents/carers and PCI+ targets language development more directly through play-based activities. Joint Voice Clinic – a GP referral based clinic for children with voice problems that could require surgery. 3.61 The quality of these services is governed both locally and nationally. The Royal College of Speech and Language Therapy publish Clinical Guidelines and also a compendium of advice and guidance on best practice, “Communicating Quality 3”. 3.62 In addition Marie Gascoigne’s paper discussed above contains recommendations on quality assurance and continuing professional development. 26 3.63 Local services can demonstrate many examples of good practice in meeting these standards including: o o o o Mentoring of all new staff A commitment to Continuing Professional Development Good staff retention Cross-disciplinary training, including some staff also trained as teachers. Welsh Language Services 3.64 A Specialist Specific Language Resource and Outreach Service has been established in Flintshire by the LEA and similar numbers are likely to be served in Wrexham. This provision currently equates to 3-4 sessions per week compared to an estimated need of 1 WTE staff member (as identified by the SLT service). 3.65 The Welsh Service offers assessment, therapy (and training to relevant stakeholders) for children whose first language is Welsh. Advice and support for colleagues who encounter children who are in Welsh medium education (regarding interpreting assessment results, therapy/IEP recommendations etc). 3.66 A Welsh Language clinic-based service is also available through the SLT Health Team. 3.67 The SLT service has been commended for the development of its “Codio Siap a Lliw”. This is an innovative Shape and Colour Coding system which supports the development of language and sentence structuring. Service Pathways and Processes 3.68 From this description of existing services it is apparent that support for some children may be delivered by services at different levels of the pyramid at different times and as their needs change. 3.69 To avoid undue delays (and the frustration that goes with them) these “pathways” need to be designed in a way that matches resources to need and which avoids “hand-offs” (that is a transfer of responsibility from one professional to another) and “bottle-necks” (parts of the process where progress is slowed, often waiting for a particular test or access to a scarce resource). 3.70 For example there have historically been delays in the process in transferring from community based therapy to Outreach. The latter being dependant on the issue of a final statement which can be a lengthy process. Work is currently underway to address this in the hope of avoiding undue delays. 3.71 Pathways are also strongly influenced by the degree to which different professions can and should work in an integrated fashion with others. A recent publication on pathways within the NHS suggests that pathways need to be integrated wherever possible. 3.72 Currently there are joint pathways for access to Language Outreach and Language Resources. 3.73 As part of the ISLACS Project, pathways for each common condition were mapped within Speech and Language Therapy services. These are contained in the Appendices. 27 3.74 In parallel with this process is the education process of assessing Special Educational Needs. This process follows the ‘pathway’ of the Special Educational Needs Code of Practice for Wales. This sets out a graduated response, namely School Action (SA), School Action Plus (SAP) and Statement. These processes are formally recorded in documents at SAP and Statement level (see Appendix). 3.75 This highlights the issue of how health and education pathways can be integrated to provide a seamless service to children with additional needs. 3.76 There has been extensive interagency work on developing these ‘pathways’ to achieve the above before the project and during the initial stage of the project . Suggestions were made as to how this could be achieved but unfortunately this work has yet to bear fruit. 3.77 The criteria for issuing a Statement of Special /Additional Needs for SLCN in both Local Authorities (Appendix) consist of general process criteria which relate to the work of the school and in addition, specific criteria relating to Speech Language and Communication or Interaction and Communication. These criteria provide the basis around which decisions are made regarding which pupils should receive additional support from the LA for SLCN. 3.78 Accurately and sensitively prioritising the specific needs of individual pupils with SLCN can be a challenge. It is well documented that SLCN can present in a complex way with associated difficulties and needs. All professionals involved, therefore, need to be clear regarding the purpose of additional support and programmes and to evaluate the outcomes from this. 3.79 In order to evaluate the provisions offered, currently data is collected by the Inclusion Service on all SLCN pupils in Flintshire who have a statement or are placed at School Action or School Action Plus in secondary phase. This data is also collected on all children with statements and who are placed at School Action Plus in the primary phase whether they are taught in a resource provision or mainstream school. 3.80 The agreed outcome data consists of standardised scores for reading and spelling. Teacher assessed National Curriculum levels are also recorded. There are no specific data relating to the pupil’s SLC needs. In both Authorities, data relating more specifically to the pupil’s area of need is recorded for all children with Special Educational Needs in the child’s IEPs which are reviewed at least twice a year. Planning and Commissioning 3.81 Commissioning processes both within Health and Local Authorities are complex and can sometimes be bewildering for the public. This was an area highlighted by Bercow as being in need of attention. 28 3.82 The process for commissioning can be summarised below. 3.83 This framework could be used to undertake a formal self-assessment of joint planning and commissioning activity. This was not within the scope of the ISLACS project, but a few of the current strengths and weaknesses can be summarised as follows: Strengths: current joint structures Weaknesses: current joint structures Service level agreements in place for outreach and resources Aligning clinical governance with flexible delivery Clear auditing and accountability within individual agencies He who pays the piper does not call the tune Local accountability through elected members Lack of understanding of respective systems and the constraints Confused stakeholders 29 4. Local Good Practice 4.1 At the operational level, there are existing and acknowledged areas of successful and integrated practice which were further highlighted through the audit of stakeholders. 4.2 Wherever possible these will form the basis for future integration. Training and Self Help 4.3 Talk for Talk: This project was established in Wrexham in 2003 (and at that time was known as SPEC, “Supporting Parents of Exceptional Children”). 4.4 This was a partnership established between parents and pupils, AFASIC, Parent Partnership, schools and SLTs. This comprises a group of parents / carers, with participating partners from the voluntary agencies, Health and Local Authority who meet regularly with the aim of supporting, informing and empowering parents of children with SLCN. 4.5 Talk for Talk has been evaluated, extended and widely disseminated both locally and nationally. Talk for Talk operates through their own fund raising efforts and through funding for their meeting venue from the Local Authority. 4.6 The active sharing of skills and practice is generally recognised to be one of the most effective ways of rehearsing and embedding new skills and approaches. This model of skill sharing has been implemented through the “Accelerated Learning” programme (now the Effective Learning Programme) established in 2002 and coordinated through Wrexham Educational Psychology Service. This particular programme specifically supported the raising of standards by improving thinking and learning skills. 4.7 Centre based day or twilight training sessions have been continued through networked schools hosting demonstrations and models of the principles, together with a resource ‘bank’, IT networking and some additional Teaching Council for Wales funding to the established networks. 4.8 AFASIC provided training in selective mutism which was jointly funded and attended by a range of professionals from both counties as well as parents. 4.9 A further example of good practice is the training provided by the SLT Health team to Early Years workers (playgroup, childminders etc.). A 2 hour evening training session was provided for 5 weeks focusing on early language skills and how to promote these and identify children who have difficulties requiring referral to SLT. 20 places were available and filled in 4 days. 4.10 Evaluation of the course was very positive with all 16 participants saying they would recommend it. Specifically they felt it raised their skill levels, as shown in the graph below. 30 Participants' Confidence to Help Children: 14 Before 14 14 12 After 10 9 8 6 4 2 1 0 0 Who don't understand them Who can't be understood 0 Who aren't talking yet 4.11 Training is also provided into specialist health resources. An example of this is dysphagia training provided into Hope House hospice for children with swallowing difficulties. The entire staff group of 40 was trained SLT and sessions were very well received. One participant stated: “It was one of our best training sessions – really relevant and positive – gold star” Assessment & Care Pathways 4.12 Moderation Panel - In Flintshire SLTs are members of the statutory assessment panel . They contribute as equal partners regarding the nature and level of support which should be provided to pupils with SLCN . This contribution is felt to improve the decision making process and additionally it enhances mutual understanding. 4.13 The provision of extra support for children with learning difficulties with literacy and numeracy at School Action Plus in both LAs ensures that once a need is identified support can be provided quickly without the need for the lengthy process of statutory assessment . 4.14 The system operates criteria against which both previous school based intervention and pupils levels of attainments are carefully moderated. There is a rigorous review system to ensure that the support results in progress for the pupil. For example, the figures below for Flintshire illustrate the small number of pupils for whom a statement is now necessary for pupils with specific learning difficulties as compared to SLCN in KS 1 and 2. Statements SLCN 74 BESD 10 SPLD 3 Joint Provision 4.15 Flying Start provides an example of good practice in joint working at the “coalface”. SLT provide a Flying Start therapist who works into all Flying Start provision providing advice, support and therapy. This therapist meets monthly with the specialist Advisory Teacher and they provide a joint training package for staff. 31 4.16 The joint Autism Services in Wrexham are another good practice example. These were jointly planned and are jointly implemented as a trans-disciplinary team including SLT, Technical Instructors, Specialist Teachers and Specialist NNEBs. They provide services in ASD resources at Infant, Junior and Secondary levels. This is an innovative service providing intensive joint input to these clients in a small group setting. 4.17 Language Outreach: comments from stakeholder interviews (see below) indicated that outreach is a service where sometimes we are getting it right: “My views and concerns were listened to with great interest and respect while my child was being assessed” and “We all worked as a team” 4.18 The Educational Psychology Services in both LA’s provide a regular consultation service to all schools. Central to the principle of consultation is that all professionals who have information and problem solving skills to contribute are invited. SLT’s clearly form part of this group and joint working between SLT and EP is common practice at the frontline. Joint Planning 4.19 Autistic spectrum disorder: The Educational Psychology Service in Wrexham has recently completed a project with the support of funding from WAG, (April, 2008). The project consisted of the establishment of a small working group, to look at existing good practice in Education with regard to meeting the needs of children with ASD and implementing WAG published guidelines. SLT’s have also been part of Flintshire’s review of services for children with ASD. Hearing Impairment 4.20 There was positive feedback from parents in Wrexham who particularly reflected that the flexible approach of the Local Authority in attempting to meet children’s needs was appreciated. 4.21 Parents felt that they were involved in the assessment and decision making processes to do with the Statutory Assessment of their children and felt that their views were taken into account. A range of resources were identified by the Working Group which were relevant and useful to staff working in schools. A joint project group looking at working together to prioritise needs within scarce resources. Members of the working party are SALT, Sensory Advisor teacher, Specialist Teacher, Audiologist, EP. 4.22 In addition, a Special Interest Group (SIG) has evolved from the project and will continue regular meetings through different host schools across the Local Authority. 4.23 The Student Assistance Programme has been implemented in Wrexham schools since 2003, across all secondary schools and within an increasing number of primary schools. The Programme provides a structured system and framework to help school staff and pupils manage to overcome the emotional challenges that can exist. 4.24 The Student Assistance support strategy was set up with a group of Year 6 pupils who were already receiving support through the Language Outreach Team in 32 Wrexham. The outreach workers had been trained in the Student Assistance Programme approach. 4.25 Pre and post measures within the group reflected a high shift from low self esteem and feelings of being helpless to strong measures of empowerment and confidence after participating in the SAP Group sessions . Student Assistance Programme Before: “I felt nervous. I was unhappy because people made fun of me and said that I was thick” After: “I know that people like me just the way I am” “I learned how to talk to people” 33 5. Stakeholder Views 5.1 Ascertaining the views of stakeholders has been a central component of the ISLACS Project. The process used to gather the views of stakeholders can be summarised as follows: o The first stage of the consultative process involved providing a wide range of stakeholders with information regarding the project. o The second stage involved gaining the views of key stakeholders regarding the service currently received and aspirations for future service via semi structured interviews and questionnaires as follows: Pupils receiving a service - Semi Structured Interview Parents – Questionnaire School Based Staff – Questionnaire Educational Psychologists – Semi Structured Interview Speech and Language Therapists - Semi Structured Interview Specialist Provision Staff – Informal discussions. o A number of focus groups were planned to include, for example, health based referral professionals. Due to the change in staffing during the project these were not completed. o Finally it is intended that a wide consultation will take place with regard to the draft proposals. This would ensure all stakeholders are able to contribute to the final outcome. The method with regard to this will be dependant on time and finance. 5.2 Information regarding the project was initially provided to a wide range of stakeholders between February 2007 and May 2007. 5.3 A number of presentations were offered to professional groups. Most groups accepted these invitations (appendix). 5.4 A stakeholder report (appendix) and booklet (appendix) were distributed at presentations. The booklet was also distributed via the SLT Department to all parents whose children at the time received SLT input and to a proportion of parents/carers whose children had previously received therapy. 5.5 In addition, booklets were also distributed to groups and individuals who did not attend the presentations. Copies were placed in Children’s Information Centres and all libraries in Flintshire and Wrexham to maximise the number of stakeholders receiving information etc. An early opportunity was provided via a response slip in the booklet for recipients to voice their views on current services (see Appendix). 5.6 During the autumn term 2007 a sample of school staff were asked to discuss the work of the project with pupils who received support for SLCN using a prepared script. Staff then gave pupils an opportunity to participate in the project via a semi structured interview. 5.7 The table below summarises the stakeholders surveyed for the project: 34 Research Method Questionnaire to school staff (Flintshire) Questionnaire to school staff (Wrexham) Questionnaire to Parents Interviews with pupils Interviews with Educational Psychologists Interviews with Speech and Language Therapists Number Involved 74 60 210 22 16 17 % Response Rate 32% 35% 34% n/a 100% 59% 5.8 Responses to these surveys are analysed below. For pupils, Educational Psychologists and Speech Therapists, semi-structured interviews were used to provide “qualitative” information and to draw out broad themes. For other groups a statistical analysis of some replies has been included to also provide a “quantitative” analysis of responses. Pupil Views 5.9 Pupils interviewed attended two resources in Flintshire and one resource in Wrexham. They represented both primary and secondary pupils and included pupils from two target populations i.e. hearing impaired and specific language impairment. 5.10 A semi structured interview was prepared to provide an opportunity for a sample of pupils from the target group to discuss their experiences of current services. 5.11 Following agreement from the Head of the respective school, key members of staff were identified to provide pupils with information about the project and seek pupils’ agreement to participate. 5.12 Participation was optional and pupils were given the choice of talking to project staff individually or in groups. Two of the three project staff conducting interviews had attended training provided by Dynamix. 5.13 Interviews took place in a room which the pupils were familiar with and which was distraction free. This was arranged by the key member of staff from the school. As all pupils chose to participate in groups in reality the interviews became focus groups. An independent signer was available to assist where necessary. 5.14 There was no attempt to discuss discrete aspects of service e.g. individual therapy sessions. The coordinators took the view that pupils would not be fully aware of all aspects of the support provided. The aim was therefore to gain a view as to how, overall, the pupils felt supported and the extent to which they felt they had had a say. 5.15 The discussion with pupils covered four main areas: o o o o Inclusion Locus of control What is working well Getting stuck / support in the classroom and outside. 5.16 A short summary feedback booklet was provided to pupils. The recording log was used to analyse the responses into the four areas which had been the focus of the group. 35 Inclusion Locus of Control Q. How do you feel in school, Do you like it Q. Do you feel listened to, How do you here, Do you feel part of the class? know you are making progress? “The whole school is just fine to be honest” “We’re classed as spaz and they’re the cool people. The biggest problem is that we get classed as lower than them or we’re not as good” “We’re all close, we stick together” What is working well “I had a meeting with my mum and teachers and they gave me good reports” “Teachers give us targets” “They tell us how we are going on” “Targets are on the board” Getting Stuck Q. How does the day go for you, what is Q. What do you do when you get stuck, working well at school? What helps? “I like to sit next to my friends in class. Mrs G sorted out my friends” “I like every single bit of school” Q. What would make a difference in school? “If all pupils listened in class that would make it better” “I’d like to go to (school name), all my mates go there. My mum chose (school name)” “Like it exactly as it is” “Canteen food” “We have a teacher that comes and helps – it makes me feel comfortable, if you don’t know, you don’t know” “I do some stuff on speech; we go to a tiny room” “She will help me if I put my hand up. I arranged this with Mrs G” “I feel OK when she helps because I understand more” “Sometimes I see (name of SLT) but I’m OK with my speech actually. I come out once a month and we recap things” “I prefer to ask the teacher, they know what they’re doing” 5.17 The pupils’ language difficulties did not seem to present as any obstacles to their ability to voice their opinions. Pupils were very willing to contribute. 5.18 The enthusiasm with which the pupils participated surprised all project staff and the feelings of all involved were that the pupils benefited in terms of their self esteem. Although pupils were rewarded with certificates and letters of thanks it was felt that the taking part was in fact possibly the most rewarding experience. 5.19 The outcome of the above consultation reflects that of the Scottish Borders Study “Access All Areas” (2007) in that it shows the huge importance that this sample of pupils placed on friendships and relationships in considering their wellbeing at school. 5.20 These findings also support previous research described by Gina Conti–Ramsden (2006) that there is a need for services to concentrate on language skills and academic support but this, although crucial, is not sufficient. An integrated approach including the young person is needed to ensure that services support the development of social self esteem and consider ways to facilitate friendships. 36 5.21 Pupils talked positively about their schools and the helpfulness of staff. There are examples of good practice in the schools we visited where pupils are able to express their views and teachers negotiate the way in which support is delivered and support for friendships provided. 5.22 Within the sample of pupils interviewed it was clear that although their needs were broadly similar, they had strong individual preferences regarding how their programmes of support should be provided. 5.23 With regard to Individual Education Programmes, overall the evidence from pupils suggests that older pupils knew what their targets were but may not recognise any input they have had into deciding or prioritising what those targets are. This reflects the comments of the vast majority of school staff who described means by which pupils are informed of their targets. There was a much smaller sample of responses that illustrated more active participation i.e. where the pupils “ascertainable” view is considered in the decision. 5.24 There is considerable evidence from the questionnaire responses from both parents and school based staff that many children are considered too young or unable to communicate their views due to their communication difficulties. Parent Views 5.25 Parent views were ascertained by use of a questionnaire. In all 210 parents responded, representing users of both the Health and Education SLT Teams, and a full range of presenting needs, including autism, learning disability, and speech and language impairment. 5.26 Parents were first asked when their child’s problems were first identified and by whom. Half (49%) reported that problems were identified before the child was two. In many cases (40%) it was the parent themselves who identified the issue. 5.27 Parents were then asked a number of questions about how easy it had been to contact various professional groups. The results are summarised in the table below. How easy was it to access: Readily available After one enquiry After several enquiries Not available Other Number of responses SLT 29% 28% 20% 20% 0% 109 SENCO 41% 22% 9% 27% 1% 90 LEA 26% 23% 28% 23% 1% 80 Advisory Teacher 44% 19% 10% 25% 2% 63 Teacher 58% 16% 11% 13% 1% 106 Teaching Assist’nt 54% 8% 15% 22% 2% 65 5.28 Not surprisingly parents found teaching staff easiest to contact followed by other education staff. The LEA and SLT are seen as less accessible. 5.29 On a more positive note well over 50% of parents reported that they could contact each of the professional groups either immediately or after one enquiry. 5.30 Views were also gathered on how long families had waited for referral to Speech and Language Therapy, for a first appointment and for therapy/advice to actually begin. The results of these questions are summarised in the table below. 37 EP 47% 15% 15% 21% 2% 66 Decision Referral to to referral first seen 33% 14% 17% 19% 12% 14% 10% 16% 8% 13% 5% 7% 14% 16% 0% 0% 162 166 SLT Waiting Times 0-6 weeks 7-12 weeks 13-18 weeks 19-24 weeks 25-30 weeks 31-36 weeks 37+ weeks Other Number of responses Accepted to Intervention 28% 19% 18% 10% 9% 5% 11% 0% 155 5.31 This implies that a typical case could wait nearly six months for advice or therapy to commence (six weeks, twelve weeks then six weeks). Some parents reported waiting for around a year and felt this was counterproductive: “the longer it takes to assess the child the more they become frustrated.” 5.32 To put this in some kind of context we can plot parents’ perceived wait for treatment against actual reported waits for the whole of Wales. 40% 35% Waiting Times for Treatment 35% 30% 28% 32% 28% Wales Actual NEWT Parents 27% 25% 19% 20% 14% 15% 11% 10% 7% 5% 0% 0% <6 weeks 6-12 weeks 13-24 weeks 24-36 weeks >36 weeks 5.33 Parents were asked whose views had been included in their child’s assessment. The results were as follows (NB many parents listed more than one professional). Whose observations are included in your child's assessment? Parent/Carer Speech & Language Therapist Teacher Educational Psychologist Special/Additional Needs Coordinator Support Worker/Teaching Assistant Paediatrician Other GP Don't know 85% 78% 55% 25% 21% 20% 17% 10% 9% 3% 5.34 Parents were also asked whether they and their child had been involved in subsequent IEPs (NB some parents did not respond). 38 Involvement in IEPs/Programmes Yes No Don’t know Parent 32% 42% 14% Child 11% 42% 47% 5.35 Subsequent questions asked whether parents knew their role in supporting programmes, and whether children knew the targets they were to achieve. Yes No Don’t know Parent knows what to do to make child’s IEP work 39% 45% 15% Child knows their targets 19% 49% 33% 5.36 This lack of involvement in assessment, planning and therapy left some parents feeling they could offer more help if they only knew how: “We would like to know about how to approach teaching at home so we can support what happens in school” 5.37 On a more positive note many parents reported receiving support which had proven to be helpful. About a third (32%) of all parents had received training which was helpful and fully 70% found the advice given helpful. There were a number of positive comments about the process including: “My views and feelings on this subject were taken very seriously.” “Discharge was fully discussed with us and we were asked if we agreed with this decision which we did” “Always been informed of progress, always been able to put my views across” “Materials supplied by speech therapist have helped” 5.38 Some parents also indicated a high level of commitment to the process with nearly a half (46%) saying they would always make time to discuss their child’s assessment. School Views 5.39 Staff in schools were also consulted using the questionnaire. A quantitative summary of their responses is attached in the Appendix. In total 74 staff in Flintshire replied, and 60 staff in Wrexham. This included a wide range of staff, as shown in the table below. 39 Category Class Teacher Deputy Head Head Teacher NNEB SENCO/ANCO Specialist Teacher Subject Teacher Support Worker in Resource Support Worker/Teaching Assistant Teacher in Charge of Resource Not Known Grand Total Number 22 1 20 4 51 8 1 4 6 14 3 134 5.40 The survey revealed a wealth of information about how education staff deal with speech and language difficulties. A range of tactics were employed by staff to address issues within the classroom context. These included: Method Employed Using a different teaching approach Using specific materials Working with pupil on confidence and other issues Providing additional support % 34% 20% 19% 14% 5.41 Many staff had used some form of assessment tool or checklist to assist them. These included the following: Tool or checklist Have used Found it useful % Found it useful Travelling Together 51 23 45% Recorded Observation 43 14 33% AFASIC Checklist 28 25 89% Any other checklists 28 18 64% Neales Analysis 60 32 53% Standardised Tests 62 42 68% Other 7 6 86% 5.42 A wide range of other professionals were also involved with children, including Educational Psychology (25%) and Health staff (21%). 5.43 Access to SLT was generally regarded as straightforward with 50% saying it was readily available and a further 29% saying it was available after one enquiry. Furthermore 61% said they always received written feedback when they provided information for assessments. On the other hand, though a third said they had had a referral returned by SLT. 5.44 It was also clear that staff had been supported by a wealth of training and support materials. Generally about two thirds of training and materials had been provided by other educational staff and about one third by SLT. When asked which materials were useful staff responded as follows: What Materials are Useful? School materials Materials from SALT Materials from Language Outreach/CLASS % 25% 21% 17% 40 5.45 When asked what would help further, over half (57%) wanted more training, particularly on Inset Days. A quarter wanted access to more assessment or intervention materials and 18% requested more information about available services. 5.46 A number of areas for development can be inferred from the responses. For example, when asked when an IEP was drawn up for children with speech and language difficulties 39% said immediately. A service which promotes an emphasis on early intervention might hope to see this figure improved. 5.47 A similar figure (32%) said children were actively involved in IEPs or meetings relating to them, with another third (37%) saying it depended. 5.48 On the issue of training, roughly a third of respondents had received a relevant CPD course, a third had experience of skill sharing, but a quarter (23%) had received no training or skill sharing at all. Views of Professionals 5.49 Roughly half of all Speech therapy staff were interviewed and all Educational Psychologists. Staff responses have been analysed in a qualitative rather than quantitative manner, allowing us to identify key themes and issues. Speech and Language Therapists 5.50 Seventeen staff were interviewed (including three Technical Instructors) from both the Health and Education Teams within the NHS Speech and Language service. 5.51 Several themes emerged, notably: o o o o Links to schools Links to Educational Psychologists Clarity over roles Information sharing. 5.52 There was a general sense amongst interviewees about the importance of close working with schools. Where cases worked well it was often because of good working relationships with staff in schools. Where SLT staff wanted to work differently it was often to improve their working with schools (particularly amongst the Health Team). 5.53 Where SLT staff worked with pre-school age children they emphasised the importance of working closely with parents (or in one case the successes involved working within Flying Start). When the children reached school age, Health Team members generally wanted to work more in schools. 5.54 When asked specifically about issues with Educational Psychology the main issue was about access. Staff were aware how busy EPs were and that they often worked in schools, but this made communication difficult. 5.55 Staff also reported a reluctance to share information and assessments. This was particularly difficult for SLT staff who felt they often needed information from cognitive assessments to determine whether a child’s problems were just about speech or about more than this. 5.56 Regarding clarity of roles, this took several forms. Some staff felt their own role was not understood. In particular they wanted to take on a more consultative 41 model, providing training, support and advice to other staff (especially teachers). When asked what they would like other professions to do differently, the most common theme was actually to allow SLT staff to provide them with training. 5.57 On other occasions SLT staff felt they did not understand the role of Educational Psychologists or that the different roles of SLT and specialist teachers had not been properly thought through. As one SLT put it: “I think there is a lot of baggage about educational psychologists…we have a lot of baggage about them and there are a lot of preconceptions about how we think they should work and how they think we should work.” 5.58 Sharing information and being unclear regarding extended consents across Services was also identified as an area for clarification and one that would improve communication and information exchange. 5.59 Information sharing was a strong theme. SLT staff reported not being routinely invited to reviews, nor being routinely sent statements or assessments. SLT Views on Integration 5.60 The interview specifically asked staff for their views on an integrated services. Most respondents had an understanding of what this might mean and recognised potential benefits. 5.61 Staff mentioned developing a more collaborative culture and working more closely with schools and parents. They also mentioned a range of staff who could be included in an integrated service. 5.62 Generally, collaboration was identified as having the potential to optimise communication between agencies and also parents. However, effective collaboration requires that the full range of practical and conceptual issues be addressed and resolved. As Palikara et al (2007) observe, it is not enough to focus on structures and processes, effective practice is concerned with outcomes. 5.63 Potential benefits cited included improved referrals, a more open flow of information between professionals and a more holistic approach towards children. 5.64 One respondent in particular had past experience to draw on: “I came across a service where there was a team with two educational psychologists, two speech and language therapists and two speech and language therapy teachers. They had a joint caseload and did shared assessments and had joint weekly meetings about the caseload. That was a really helpful way of working for getting a holistic picture of children.” Educational Psychologists 5.65 The interviews with EPs were undertaken in a three week period at the end of October and November 2007. The interview schedule was drafted and trialled with 4 representatives from the Educational Psychology Services. A copy of the questionnaire was provided to the interviewee some days in advance. 5.66 Educational psychologists were interviewed by members of the project coordinators, but not by members of their team. 5.67 Responses to the EP interviews were analysed using a coding frame which identified key themes and category headings. Agreement was reached regarding 42 the relevance and economy of the coding that most efficiently accommodated the data provided. These responses are categorised as follows: o o o o Practical issues Approaches to work with children Approaches to work within schools/settings What would an integrated service look like. 5.68 A number of practical issues were raised by EPs. These included: o o o o awareness of each others’ structural and organisational backgrounds expectations of other services contact details for services and individuals ease of contact. 5.69 In terms of approaches to work with children generally, and assessments specifically, the EPs reflected their use of a wide range of approaches. Many indicated that contextual observation and criterion referenced approaches were pivotal in their assessment. 5.70 A percentage of EPs had concerns regarding the frequent requests for cognitive assessments from SLT colleagues and felt that these could lead to inequality and discriminatory or discrepancy based approaches to allocation of scarce resources. 5.71 The rationale has been highlighted in a study undertaken by Dunsmuir et al (2006), where the debate on predicted outcomes from therapy based on nonverbal IQ measures is examined. Botting et al (2001) indicate that IQ is a reliable outcome measure but other studies challenge the reliability of this (Dockrell and Conti Ramsden 1996, and others) Botting et al 2001 and Bishop and Edmundson 1987)) describe other language measures which provide stronger indictors of therapy outcomes. 5.72 The paradox here is that SLT felt that a cognitive assessments was necessary in order to clarify whether or not a child’s needs were related to an intellectual disability (in order for the LA to determine the most appropriate service to address the child’s needs). This is evident for example in Flintshire’s Language Resources where the criteria for entry is average or above average ability. 5.73 A number of EPs reflected that more training in the identification of specific language disorders would be welcome, if only to enable conversations with SLT to be based on a shared a common understanding. 5.74 Many EPs had received the JPDF programme of training designed through ICAN but this was generally given a low appraisal. 5.75 Shadowing colleagues in SLT Services was identified as being a useful way of establishing understanding of differing approaches. EP Views on Integration 5.76 In common with the Speech and Language Therapists, the Educational Psychologists were asked about what an integrated service could look like. This elicited a number of comments including: o Clear pathways o One service rather than school/clinic split o The will to do things together. 43 5.77 Both EPs and SLTs identified joint consultations as a way forward to achieving integrated services and that EPs and SLTs shared many elements in their work and approaches but that time and work pressures did not allow the communication which would actually facilitate integrated working. As one EP commented: “If we only had the time to talk together we would probably make more time for more efficient ways of working but the problem is to just start it off. I can never get my diary together with the SLT who might be involved and we always miss each other on the phone.” Summary 5.78 It is clear from the stakeholder analysis that a number of common themes are emerging. These are discussed in more detail in the following section and include: o o o o o Information Early Intervention Involvement Integration Communication. 44 6. Conclusion: Themes and Issues 6.1 Taking together the evidence from stakeholder consultation, and national research and best practice we can identify a number of key themes which will need to be addressed. These are discussed in more detail below. Information 6.2 Many stakeholders requested more (or better) information. This reflects the position in the rest of the UK. The Bercow Review for example found that 77% of parents reported that information was difficult to access. 6.3 This was not an implied criticism of any one profession, more a recognition that with certain limited pieces of extra information they themselves would be able to tackle some issues without recourse to a referral. 6.4 This is an important means to bolster early intervention, to strengthen prevention and to assist families with self-help strategies. Some quotes from parents and staff reinforce this: “A bank of useful ideas, tips and tried and tested resources” “A SALT simple booklet for parents/teachers outlining problems and where to get help, simple strategies to try” “Details of activities used by therapists which can be adapted for use in school” “I have valued any guidance/resources shared by SALT – would welcome more of the same in the future” 6.5 This was also an issue in terms of the support provided by both Education and Health for Welsh schools: “Knowing who are bilingual therapists so I can contact the individual without any time wasting” “More resources in Welsh/support/instructions e.g. resources we receive are in English, meetings are in English and we have to wait for unacceptable periods for translation of reports etc” “Opportunities for In-service training and focus based discussions through the medium of Welsh on different aspects of requirement and SLCN” 6.6 School staff want information not only on addressing needs but also on pathways and processes, for example who is who and most especially feedback on where a child is up to in the pathway/process. Early Intervention 6.7 A recent national report stressed the importance of language to early childhood development: “Promoting children’s speech and language development is especially critical to enabling them to learn well in school. All staff in [children’s] centres need to understand the importance of providing a language-rich environment, and 45 have the skills and understanding to be able to interact well with young children”. (DCFS, 2008). 6.8 Early Intervention was identified as an area for concern amongst both staff and parents. Some were keen to point out the importance of acting quickly to ensure good progress in a child’s development. Other noted a perceived increase in issues around language: “Speech and language is an ever increasing area of growing concern, more and more children are arriving in nursery with poor or no speech and language” 6.9 Stakeholder consultation revealed some success in early identification and treatment. Half of parents reported that their child’s problems were identified before the child reached two years old. 6.10 Similarly over a third (39%) of schools reported that an IEP to address speech or language difficulties has developed immediately that issues were identified. 6.11 Some examples of good practice are also available locally – especially around Speech and Language Therapists working into Flying Start services. 6.12 However perceived difficulties still remain. Half of parents reported waiting more than 12 weeks to be seen by SLT services. A similar proportion then waited more than 12 weeks for advice or intervention to begin. Data on waiting times is shown in the table below. (It is worth remembering that national waiting times targets are currently 24 weeks and were previously 36 weeks). Average Waiting Times Education SLT Team Health SLT Team Overall Average July 07 28.0 23.2 23.7 Aug 07 N/A 23.7 23.7 Sep 07 19.6 18.8 18.9 Oct 07 26.7 16.2 16.9 Average 23.4 19.8 20.0 6.13 Having said this, figures compiled by the SLT department suggest that waiting times have reduced over recent years. Indeed the SLT department was the first therapy department to win a national award for innovation in addressing waiting time. The graph below shows average waiting times for the Education Team within SLT. 80 72 Waiting Times for Education SLT 70 Weeks Waiting 60 50 42 40 32 30 22 20 10 0 2003 2004 2006 2007 46 6.14 Nonetheless, there is still a willingness for further improvement. This would be welcomed by schools. As one school respondent put it: “Waiting list for SALT professionals is too long. So much damage is done in their early education in this time - alternative may be to train school staff in SALT strategies” 6.15 One way to tackle this might be through better information and training for staff. This would require agreement between agencies about what training is needed and mechanisms for school staff to be released. 6.16 Another suggestion was to streamline pathways so that a wider range of supports can be offered without a statement. 6.17 For many other conditions (e.g. behaviour or literacy problems) there are criteria for children to access support at SAP(S) and also at statement levels. For children with speech and language needs, some services can only be accessed at Statement level. This is seen as problematic as it causes unnecessary delay. 6.18 For example, in Flintshire access to a Language Resource has been only via a statement and as there are insufficient places those on the “virtual waiting list” receive Outreach instead. 6.19 An alternative approach would be to have new criteria for Outreach and for this to be provided at SAP(S). This may well be quicker for families and provide a more appropriate use of both Outreach and Language Resource. As already mentioned work is in progress to address this, which could yield benefits to children in need. 6.20 This was backed up by one school surveyed who requested: “A less troublesome (and often unnecessary) system of going through a STATEMENT (statutory assessment) prior to receiving the help (small) which is required for the child.” 6.21 While access to SLT is not dependent upon a Statement (only 2-3% of the SLT caseload have a statement), it is clear that pathways to different levels of service are not always well understood by staff. 6.22 It is also clear that with national changes to the statementing process pathways will need to be refined. Work is already underway on this with agreement in Wrexham to a SAP level service in schools. Involvement 6.23 Family and child involvement in the assessment, IEP planning and therapy processes is not just a matter of principle. Evidence suggests that assessments are more accurate and programmes more effective if children and families are fully involved. This is also identified as good practice in the Code of Practice, 2002. 6.24 Some school staff and parents reported limited levels of child involvement in IEPs. Perhaps most worrying only one in ten parents said their child had definitely been involved in developing their IEP and less than one in five reported that their child actually knew what targets they were trying to achieve. 47 Integration 6.25 The evidence on integration was more positive. Most staff interviewed had some conception of integration and a view about who could be involved. 6.26 Some staff had previous experience of models of integration – either from previous workplaces of from training placements. 6.27 Factors which were cited as core components of integration included: o o o o o o o o o Working more in partnership with parents Closer working with schools Gaining a better understanding of each others’ roles Developing a multidisciplinary team Taking a holistic view of children, including their strengths Joint assessments Better sharing of information A shared base for staff Developing a shared culture and value base. 6.28 On the latter point a number of staff stressed the importance of developing an open approach to working together and sharing information: “I think that a greater collaborative working ethos could be achieved. There are barriers to this on both sides and I find that quite frustrating because it’s barriers to helping the children.” 6.29 Returning to Gascoigne’s discussion of integration, we can plot a range of different models for interagency working. These represent a spectrum from alignment and co-operation through to more complete integration within the context of the child’s world. 6.30 From interviews with staff it is clear that most felt that closer working was possible in a number of areas. Some staff seemed to be describing a move towards multidisciplinary working, while others clearly had a view more akin to the model of inter-disciplinary working. 48 6.31 The model described by one SLT of an integrated team of professionals from different agencies could form the basis for a more integrated approach in each of the two Local Authorities. 6.32 While this could provide a single access point and the basis for co-location, integrated pathways and joint assessments, care would be needed to ensure that this integration does not “cut across” other integrated services such as children’s disability services or Home Advisory Services. Nor should integration force a fragmentation of SLT departments which need to maintain a critical mass and ensure staff access to continuing professional development. Communication 6.33 Professionals on all sides mentioned problems contacting each other. They talked about how this often meant that weeks passed with little progress as professionals left each other telephone messages. 6.34 Some felt this could be overcome by more joint assessments, or some mechanism to contact each other when out of the office, such as greater use of email and of mobile phones. Joint consultations to schools by SLTs and EPs were also suggested. 6.35 As previously mentioned access to the assessments and reports of other professionals was also felt to be useful in sharing information about children’s needs. 6.36 As we have seen, relatively simple changes in communication systems can bring real results. By contacting schools directly to advertise training courses the SLT service has increased take-up significantly. Service Gaps 6.37 Although a rigorous Needs Assessment and Gap Analysis has not been possible within the constraints of the ISLACS Project, our review of existing services, combined with the surveys of stakeholders has raised a number of key issues. These can be summarised as follows: o Information - there is insufficient information available to stakeholders generally about services for SLCN provided by Education and Health and insufficient information to assist self help . o Training: there are no agreed induction or training programmes regularly delivered to staff and parents working with children with SLCN o Early Intervention: Whilst there is a good range of specialist provision in both Local Authorities, Outreach and Language Resources. These are often over stretched and demand can outstrip supply . Further input lower down the pyramid may alleviate this pressure and promote more inclusive environments . o Involvement: Pupil and family involvement in IEPs could be improved. o Services: in the secondary phase, outside the very specialised resources, services are patchy. o Provisions for pupils whose learning skills are limited by other aspects of their development and who also have a long term persistent language disorder are not well developed. 49 o Communication: there are inadequate communication channels to ensure that everyone involved parents , teachers , other professionals are effectively sharing information. o There are some services e.g. Hearing Impaired and Welsh language, where pupil numbers are very small and SLT are very limited. Specific gaps have been identified in these Services. Appendix. 50 7. Recommendations 7.1 During the course of this Project it has become apparent that there is broad consensus on the values that should underpin speech, language and communication work and on the range of services which should be provided. This consensus can be summarised in the following key principles: 1. The development of speech and language is central both to personal development and to educational achievement 2. Prevention and early intervention are crucial components of successful services 3. Services should provide a spectrum of provision from information and self help, through training and support to group work and individual therapy/treatment 4. Children, Young People and their Families should be enabled to take an active part in assessments, interventions and evaluation 5. Services should be based on evidence and best practice, should be outcomefocussed and should have mechanisms to receive and to listen to feedback 6. Services should be based on enhancing not just speech and language development but a child’s overall sense of wellbeing and inclusion. 7.2 Taking these into account, the following recommendations are meant not as a means to radically transform existing services, but as first steps towards greater integration across agencies. Overarching Recommendations for Further Integration Recommendation 1. To create a single strategic forum to oversee joint planning of speech, language and communications services across all agencies and to develop a model for closer integration. Recommendation 2. To build on areas of current good practice to promote joint working and integrated provision at all levels. Recommendation 3. To provide joint information for the public and for partner organisations which sets out resources available for self-help, services available and service standards. Recommendation 4. To implement a core staff training programme at preschool age and another for school age. Recommendation 5. To agree a protocol for joint working which sets out arrangements for sharing information and reports, arrangements for interagency involvement in assessments, IEPs, reviews and therapy programmes. Recommendation 6. To agree an inter-agency service standard concerning child and family involvement in assessments, IEPs, service delivery and service planning. Recommendation 7. To explore ways to overcome the delays caused when professionals are unable to contact each other. Recommendation 8. To consider joint funding and joint appointment of a “champion” to drive forward integration of speech, language and communications services. 51 7.3 A detailed action plan could be developed to implement these recommendations. Such an action plan would be project managed by the Strategic Joint-Planning Forum and actioned by the “champion”. 7.4 The following actions are suggested as the basis for this Action Plan, although they will need further consultation, discussion and amendment. And of course they will need measurable targets and timescales. Recommendation 1. Joint Planning 1. To convene a strategic forum to oversee joint planning of speech, language and communications services. 2. Terms of reference for this forum would include needs assessment, overall strategy, service benchmarking and promoting integration. 3. Its membership would consist of heads of relevant services/authorities and it would report to Children’s Partnerships in each Local Authority. 4. This Strategic Forum to develop a detailed Action Plan arising from this report and to monitor progress against that Action Plan. 5. To revise the terms of reference for the Inter-County Speech and Language Group so that it can provide a focus for operational work on integration. 6. For the Strategic Forum to oversee feedback to stakeholders who participated in the Project and consultation on the recommendations contained in this report. 7. To jointly compile a written protocol setting out commitments towards SLCN. 8. To explore models for integration and agree a preferred model which promotes prevention, inclusion and enhances the personal, social and language development of children and young people. 9. To consider SLC integration within the context of other moves to integration, for example around Common Assessment and Children with Disabilities. 10. To consider the outcomes of other Pilot Projects undertaken through WAG and relevant good practice recommendations arising from these projects. Recommendation 2. Joint Working 11. To work towards establishing a single integrated speech and language service which promotes early intervention and prevention by providing information, consultation, training and face to face interventions for schools, children and young people. 12. As a first step towards this, to develop a range of joint working mechanisms including: o The provision of joint information for the public and for schools and other stakeholders setting out services available o Development of integrated systems to support language development o Explore the development of multi-agency panels to discuss referrals o Establishing Integrated Care Pathways for the target groups o An overarching model which links levels of intervention within pathways to the stages of School Action, School Action Plus and Statementing 52 o A protocol for SLT involvement in IEPs and reviews. 13. To extend advisory teaching posts to cover all Key Stage education provisions (currently at KS 1 and 2 only). 14. To extend specialist language services to the Youth Offending Services For SLT staff to be members of Moderation Panels in both Local Authorities. 15. Consider development of multi-agency panels to consider SLCN referrals. 16. To revise current pathways to adopt the pyramid model of services where intervention at the previous level has been completed. In particular this would assume that for example, access to a Language Resource would normally follow use of Language Outreach (except in unusual circumstances). 17. To consider the impact of impending changes to the Statutory Assessment Process and how these changes might be used to stimulate new models of integration across agencies. 18. To revise current pathways/processes so that access to Outreach can be achieved at School Action Plus(S) level rather than requiring a statement. 19. To develop monitoring mechanisms (through the Inter-County Group) to ensure equality of access for special interest groups including: o o o o o o Welsh Language children Excluded pupils Looked After Children Black and Minority Ethnic children Travellers Children whose first language is not English/Welsh. 20. To review the role of the Language Resources and in particular to explore ways in which they can provide more outreach services and support to children within mainstream school settings. 21. To review the structure of the SLT department with a view to enhancing opportunities for integration in each Local Authority. Recommendation 3. Joint Information 22. To provide a suite of information for stakeholders including: o A directory of available services (across all agencies) o A guide to training, tools and materials o Simple guides for children and families setting out self-help tools for the most common problems/issues 23. To agree with the Children’s (Family) Information Services what information they should hold and what should be available on their website. Recommendation 4. Joint Training 24. To explore the use of an agreed training programme to be used to support staff in schools, nurseries, sure start etc. (e.g., Elklan, SLCF etc.) 25. To pilot the use of an agreed training course to be used by support staff in schools, nurseries, Sure Start etc. (e.g. Elklan or SLCF) 26. To use an extended advisory teaching service to build on school’s existing levels of understanding and competencies with regard to SLCN 53 27. To encourage schools to continue to audit their own language training needs, linked to their school improvement plan 28. To explore ways to build greater understanding of each others’ roles across professional groups. This could include team building work, best practice seminars and training for managers. 29. To continue to provide information re speech language and communication issues for discussion at SENCO forums and the wider Head Teacher forums.. 30. To explore links to external bodies such as the various Head Teachers and Governors Associations. 31. To ensure the Voluntary Sector is fully involved in pathways (as appropriate) and fully supported to deliver its full potential. 32. To consider the training needs of escorts and other transport staff. Recommendation 5. Information Sharing 33. To agree and implement an Information Sharing Protocol covering the sharing of consultation outcomes, assessment information, IEPs, reports, and reviews. Recommendation 6. Involvement 34. To agree inter-agency good practice guidance on involving children and families in assessments, reviews and IEPs. 35. To ensure that all services have mechanisms to receive and take account of feedback from individual children and from families and other stakeholders 36. For the Inter-County Group to consider running limited parent surveys and/or pupil focus groups to gather user views at regular intervals. 37. For feedback from children, young people and families to be considered by the Inter-County Group at least annually. Recommendation 7. Inter-agency Communication 38. To agree ways for professionals to contact each other, for example by using emails, mobile phones and webinars to facilitate communication between professionals who frequently work out of the office. 7.5 This leaves a number of areas where further work is still required, most notably around aligning or pooling budgets and data management. 7.6 There was also a sense amongst the Project team that the development of robust Outcome Measures would benefit services. SLT often use Outcome Measures in the day-to-day practice and these could be used as the basis for shared outcomes. 7.7 Having said this, it is clear that there is a wealth of local good practice at grassroots level and a strong commitment to working together. This, more than anything will form the basis for ongoing progress towards integration and continuous service improvement. 54 7.8 Certainly there is commitment at senior level to achieving tangible improvement in the experience of children with SLCN. So “early wins” should be possible. These could include: o o o o o o o Establishing a Strategic Joint Planning Forum Developing joint information for the public Piloting an agreed joint training programme SLT to join both Moderation Panels Access to Outreach at SAPs level (this is already in development) Developing an Information Sharing Protocol Distributing e-mail addresses and mobile phone numbers between professionals. Acknowledgement We would like to thank all those pupils, parents and our colleagues in schools, health, education and other services who gave their time so generously in talking with us, completing questionnaires and contributing information as part of the project. 55 References Barber, M., Farrell, P. and Parkinson, G.(2002) ‘Evaluation of the speech and language therapy projects supported by the Standards Funds 2000 – 2001. Beek, C. (2008) ‘The inclusion development programme’. Presentation to the Communication Trust Conference, London, 2008. Bercow, J. (2008) ‘ Response to the Bercow review: understanding the need and reviewing the current situation’ Presentation to the Communication Trust Conference, London, 2008. Bishop, DVM (1998) ‘Specific Language Impairment: what makes this different?’ Paper presented to the SIG Conference of Educational Psychologists, UCL. Bishop, DVM. and Edmundson, A (1987) ‘ Specific language impairment as a maturational lag: evidence from longitudinal data on language and motor development’. Developmental Medicine and Child Neurology 29. 442 – 459. Botting, N. et al (2001) ‘Predicting pathways of specific language impairment: What differentiates good and poor outcome’ Jnl Child Psychology and Psychiatry 42(8), 1013 – 1020. Bridges, R (1997) ‘Emotional literacy and language’ Paper presented at conference on emotional literacy, Challenge and Change, University of East London. Children Act 2004 Consultation Document, Welsh Assembly Government, 2003 Conti-Ramsden, GM; Simkin, Z; Botting, NF (2006) ‘The prevalence of autistic spectrum disorders in adolescents with a history of specific language impairment (SLI)’ Journal Of Child Psychology And Psychiatry, 2006 DfEE (1997) ‘Excellence for all children’ Green Paper DfES (2007) Statutory framework for he Early Years Foundation Stage Dockrell, J. and Conti-Ramsden, G. (1996) ‘Children with speech and language difficulties: Issues in identification and intervention.’ Journal of Clinical Speech and Language studies, 6, 49 – 64. Dunsmuir, R.,Clifford, V and Took, S (2006) Collaboration between educational psychologists and speech and language therapists: Barriers and opportunities. Educational Psychology in Practice, 22, 125 – 140. Frederickson, N. (2004). ‘Integrated services and the scientist-practitioner’. Paper presented at Nottingham University Conference. Gascoigne, M. (2006) ‘Supporting children with speech, language and communication needs in integrated children’s services’. Position Paper, Royal College of Speech and Language Therapists Herbert, M. (1988) ‘Behavioural treatment of children’ London, Academic Press. ICAN (2006) ‘The Cost to the nation of Children’s Poor Communication’ ICAN Talk Series Law et al, Prevalence and natural history of primary speech and language delay: findings from a systematic review of the literature, 2000 56 Palikara, O., Lindsay,G., Cullen, M. and Dockrell J. (2007) ‘Working together? The practice of educational psychologists and speech and language therapists with children with specific speech and language difficulties’ Educational and Chid Psychology Vol 24, No 4 Speech, language and communication framework: www.communicationhelppoint.org.uk Robinson, M ( 2008) Personal Communication, UCL Roulstone,S., Owen, R. and French, L. (2005) Speech and Language Therapy and the Knowles Edge Standards Funds Project. British Journal of Special Education, Vol 32, No 2. Rutter, M, Mawhood, L and Howlin, P (1992) ' Language delay and social development' In P Fletcher and D Hall (eds) 'Speech and language disorders in children' Scottish Borders Group (2007) Access All Areas: what children and young people think about accessibility, inclusion and additional support at school. Single Education Plan (SEP) Flintshire 2006 – 2008 Snowling, MJ, Adams J, Bishop, DVM, and Stothard (2001) 'Educational attainments of school leavers with a pre-school history of speech-language impairments' IJLCD Stothard, SE, Snowling,M J, Bishop, D V M, Chipchase, B B and Kaplan, C A (1998) ' Language impaired preschoolers: a follow up into adolescence' Jnl speech, language and hearing research, 41, 407 - 418. WAG (2003): Working Together: Speech and Language Services for Children and Young People: WAG (2006): National Service Framework for children, young people and maternity services in Wales 57 List of Available Appendices Copies of background papers and appendices are available upon request from sarah.morris@wrexham.gov.uk or Chris.Fergusson@flintshire.gov.uk Documents relating to Section 1: Original Bid to WAG Key SALTAG Objectives Target Group Glossary Documents relating to Section 2: School Pupils Numbers – Current and projected Predicted Incidences Documents relating to Section 3: Local Guidance/Standards/Agreements/Protocol Service Maps and Profiles (EP and SALT) Current Pathways Organisational Structures – SALT and Inclusion Service Documents relating to Section 4: Information to Stakeholders Information to Parents, Pupils and Professionals (leaflets etc) Annual Review Form Pupil Participation - Do we meet your standards? Information to Stakeholders (chart, presentation, leaflet, report) Grids for semi structured interviews with pupils (setting up and conducting) Flowchart re: semi structured interviews with pupils Script for Teacher in Charge re: semi structured interviews with pupils Letter to HT re: semi structured interviews with pupils Letter of consent to parents re: semi structured interviews with pupils Script for interviewer re: semi structured interviews with pupils Thank you letter re: semi structured interviews with pupils Certificate to pupils re: semi structured interviews with pupils Feedback to Pupils leaflet Evaluation of Methodology of Pupil Interviews 58 Glossary Acronyms ADHD – Attention Deficit Hyperactivity Disorder ANCO – Additional Needs Co-ordinator ASD – Autistic Spectrum Disorder BME – Black and Minority Ethnic groups BSL – British Sign Language CAB – Citizens Advice Bureau CLASS - Communication & Language Advice and Support Service (Flintshire) CPD – Continuing Professional Development CYPFP – Children & Young People’s Framework Partnership CYPP – Children & Young People’s Plan DfES – Department for Education and Skills DoH – Department of Health EP – Educational Psychologist EPs – Educational Psychologists EPS – Educational Psychology Service IEP – Individual Education Plan ISLACS – Integrated Speech, Language and Communication Service KS – Key Stage LA – Local Authority LAC – Looked After Children LEA – Local Education Authority LHB – Local Health Board MLD – Moderate Learning Difficulties NEWT – North East Wales (NHS) Trust NNEB – Nursery Nurse PRU – Pupil Referral Unit RCSLT – Royal College of Speech and Language Therapists SALT – Speech and Language Therapy SAP – School Action Plus SEN – Special Educational Needs SENCO – Special Educational Needs Co-ordinator SLA – Service Level Agreement SLCD – Speech, Language and Communication Difficulties SLCN – Speech, Language and Communication Needs SLT Services – Speech and Language Therapy Services TA – Teaching Assistant WAG – Welsh Assembly Government 59 Glossary of Terms Relating to the Target Group Acquired Motor Speech Disorder An acquired motor speech disorder is a general label that covers several distinct disruptions to speech arising from illness or injury to the central or peripheral nervous system. These include Dysarthia and Apraxia. ADHD – Attention Deficit Hyperactivity Disorders A range of disorders occurring in children. Symptoms may include poor concentration, behavioural problems, hyperactivity and learning difficulties. ASD – Autistic Spectrum Disorder A lifelong, developmental disability that affects the ways a person is able to communicate and relate to people around them. Autism and Asperger’s Syndrome are names for different types of autistic spectrum disorders. Cleft Lip / Palate Caused when parts of the upper lip and/or gum and roof of the mouth (palate) do not join together during pregnancy. It may be unilateral or bilateral. Delayed Language Development Usually used to describe a situation where the child has problems with speech or language, but skills are developing along the normal developmental pathway. Developmental Verbal Dyspraxia Difficulty making articulatory speech sounds voluntarily. Struggling to get the target sound. In some children producing single words may not be a problem but there is a failure to produce them in an appropriate sentence pattern. Disorder Children with a speech and/or language communication disorder follow a pathway that is different from the normal pattern or sequence of development. Dysfluency A disruption of the fluency and/or rate of speech caused by repetition, prolongation or blocking of sounds, syllables and sometimes whole words. There may be associated behaviours such as breathing irregularities, facial grimaces, involuntary bodily movements etc. Dysphagia Difficulty in swallowing. Dyspraxia A disorder that affects the planning coordination of movement that can affect the coordination of the speech organs and/or other actions – for example, eating, dressing or writing. Language Delay A condition in which the child’s language level reflects that of a younger child. 60 Learning Difficulties A general term used to describe a wide range of problems experienced by children who find it significantly harder to learn than other children of the same age. The term can be used to describe difficulties with learning, memory, concentration, behaviour, reading, numbers or with speech and language. MSI - Multi-Sensory Impairment Children with multi-sensory impairment (MSI) have impairments of more than one sense. Many children with MSI also experience other challenges resulting from medical conditions or physical disabilities e.g. vision and hearing. Progressive Disorders A general term to describe disorders which are ongoing and deteriorate over time e.g. dysarthria, dysphagia. Selective Mutism Also known as Elective Mutism. When children are able to talk comfortably in some situations but are persistently silent in others. These children need multi disciplinary involvement. SLI - Specific Language Impairment A term used to describe language difficulties with comprehension and/or no expression where there are no other difficulties. Usually used where there is a significant discrepancy in the child’s language from that of children of the same age or when language development is disordered or unusual. Voice The sound made by the vibration of the vocal folds in the larynx (or voice box) in the throat. VPI – Velopharyngeal Incompetence Failure of the soft palate to reach the back wall of the pharynx or throat. 61