EXCERPTS OF STATE INITIATIVES IN PRECONCEPTION HEALTH CALIFORNIA Every Woman Every Time Project This project was created in 1989 through a partnership between Sutter Medical Center in Sacramento and the March of Dimes. It conducted a metanalysis of the preconception care literature and used this information in a consensus development process to produce a marketing packet for providers. Key components of the packet included the rationale for providing preconception care, a description of the essential elements of care, patient education materials and information on billing methods. More than 9,000 packets were distributed statewide. An evaluation found that among 187 providers responding, 75% indicated the information was very useful, 80% said they would distribute materials to patients, and 72% said they would use the billing codes provided. (Cullum AS, unpublished data, 2005.)1 COLORADO Interconception Health Promotion Initiative This initiative was a demonstration project, funded by the Colorado Trust, which was developed at Denver Health from 1995 to 2001. Denver Health is a vertically integrated safety net health care system, including a public hospital and a network of 13 affiliated community health centers which provide prenatal care to the majority of Denver’s low income pregnant women. The object of the initiative was to develop a home-based case management program for women who had delivered a low birth weight baby, had a fetal demise or a baby with congenital anomalies, and who planned on having more children, with the goal of improving outcomes of future pregnancies. Patients were recruited at the time of delivery of a qualifying infant and received a comprehensive evaluation, and then intensive, relationship-based home visitation services by a social worker or nurse. These home visitation services focused on various domains, including maternal role, medical and reproductive health issues, contraception and life course. The women were followed for up to three years or through a subsequent pregnancy. The program evaluation suggest that women who participate in a comprehensive home visitation and case management program after a poor outcome birth have higher rates of compliance with post-partum care and family planning. They have longer interconception intervals and better outcomes as measured by NICU admission and cumulative low birth weight rates.2 DELAWARE Christiana Care Health System, Wilmington The Adventures of Folic Acid Man/Woman program is designed for elementary and middle school children. The 30 minute program includes class discussion of health lifestyles and the importance of folic acid. The class then presents a short play about folic acid. Each student receives a folic acid activity book and folic acid drink cup and is asked to share the message with family and friends. The second piece of this program is a Folic Acid Woman patch developed with the Chesapeake Bay Girl Scout Council, involving the scouts in various activities to learn about folic acid. The school program is facilitated by a nurse educator or registered dietician. The scout program is facilitated by troop leaders.3 1 Delaware State Plan In May 2005 the state of Delaware’s Infant Mortality Task Force’s final report outlined a 3 year plan with 20 recommendations to reduce the high infant mortality rate in Delaware. These recommendations outline strategies to improve access to perinatal care among minority populations. They called for the creation of the Delaware Healthy Mother and Infant Consortium (DHMIC), which would provide guidance to maternal and infant health systems that impact birth outcomes. The anticipated results of the interventions, include an increase in the number of high-risk women and infants with health insurance, expanded access to prenatal care through target outreach and interventions and enhanced data collection and surveillance around maternal and infant health. They also call for improved prevention and management of chronic diseases among pregnant women, improved prevention and early detection of birth defects and genetic disorders, expanded access to comprehensive reproductive health and family planning services for the uninsured and underinsured. Lastly the results included implementation of a statewide educational campaign and cultural competence curriculum for providers.4 In 2006 the Division of Public Health, (DPH) selected two contractors, Delmarva Rural Ministries, Inc., and Westside Health, Inc. to expand wraparound services in preconception, prenatal, and postnatal care to targeted populations in Delaware. Targeted populations were defined as women residing in specific zip codes where the number of infant deaths was high compared with other regions, and women who had a history of poor birth outcomes. These services supplemented those currently provided by Medicaid and other insurers such as psychosocial screening and support, and additional nutrition monitoring. The Fetal Infant Mortality Rate (FIMR) committee established three full-time staff positions to implement the program. The PRAMS project completed a pilot study, applied and was awarded federal funding to begin annual data collection January 1, 2007. The Delaware Healthy Mother and Infant Consortium (DHMIC) was established and convened four times. DHMIC appointed five critical area committees to monitor implementation of the Infant Mortality Task Force recommendations including systems of care, standards of care, health disparities, health education and prevention, and data and science. The Center for Excellence in Maternal and Child Health and Epidemiology contracted with the CDC to employ the State Maternal and Child Health (MCH) Epidemiologist, and established three full time positions to provide scientific expertise in study design, program evaluation, and data analyses to all maternal and child health programs at DPH.5 Partnership with DPH, Planned Parenthood and Christiana Health System The Delaware Division of Public Health has recently signed nearly $1.5 million in contracts with Christiana Care Health System and Planned Parenthood of Delaware to provide education, nutrition and community services for women at high risk of having unplanned pregnancies and poor outcomes. Christiana Care’s program will offer clinical health services to at-risk women who visit the Wilmington Hospital Health Center and the Women’s Health Office at Christiana Hospital. They will provide these women with access to health educators, nutrition services and other programs that can help them improve their health. Christiana is also partnering with Children and Families First to provide three additional resource mothers who will focus on preconception issues. Resource mothers work with pregnant women considered at high risk to help them with transportation to doctor’s appointments and assist them with housing and social services. Christiana Care will also partner with the Delaware Chapter of the March of Dimes to provide patient and physician education.6 2 Planned Parenthood of Delaware plans to use the $228,000 grant from the state to further educate women about the importance of eating well and getting help for chronic health problems like obesity and hypertension that may affect future pregnancies. They recently hired a community services director to work with higher-risk patients by helping them get the resources they need to improve their health.7 FLORIDA The Magnolia Project The Magnolia Project in Jacksonville is a Healthy Start program in which a comprehensive array of services was offered in an effort to improve birth outcomes. Services included case management, education and risk reduction, and well-woman care. The target population was high-risk African-American women aged 15-44 years who lived in five zip codes areas of Jacksonville. The project operates as a collaborative between the Northeast Florida Healthy Start Coalition, the Duval County Health Department and local community-based organizations. As reported a 2004 assessment of project services conducted by HRSA Office of Performance Review found high rates of success (>70%) in the resolution of key risks among the project participants (Brady, CM, unpublished data, 2005.)8 Save Our Babies, Orange County, FL The primary target population of this project was African American women who live in Orange County with zip codes with the poorest birth outcomes. Information was disseminated to the community - hosting training workshops and informational sessions in non-traditional environments such as beauty salons and churches, and engaging the community for action. The 2004 Annual Report and Evaluation indicated an increased awareness of racial disparities in birth outcomes in the community, increased awareness of maternal child health issues, willingness of citizens and businesses to form an advisory committee for the program in order to take ownership of the problem and increased understanding of how to access the current healthcare.9 Florida’s Healthy Start Program In the fall of 2004, Healthy Start initiated a campaign to address infant mortality and improve pregnancy outcomes through education and counseling aimed at improving a women’s health status before she becomes pregnant. Florida’s Healthy Start Interconceptional Care and Counseling component was initiated through collaboration with Healthy Start Coalitions and Healthy Start providers, and subsequently integrated into existing Healthy Start programs without additional funding. Providers, including nurses, social workers, health educators, and paraprofessionals in Healthy Start programs throughout the state were being trained to provide interconceptional education in a culturally sensitive manner that was applicable to the participant and their assessed risk factors. Technical assistance guidelines were also developed for use in Florida’s county health departments as a guide for programs like Family Planning and prenatal care clinics to provide pre/interconceptional care to women of child bearing age. Educational components of both these initiatives included access to health care; management of maternal infections and chronic health conditions; weight, physical activity and nutritional counseling; appropriate baby spacing; substance abuse and smoking; mental health issues; and environmental risk factors.10 3 GEORGIA Grady Memorial Hospital, Atlanta Interpregnancy Care (IPC) program at Grady Memorial Hospital in Atlanta provided primary health care and dental services, enhanced case management and other outreach services to African-American women who delivered a very low birth weigh infant at the hospital and who qualified for indigent or charity care. The IPC program provided 24 months of primary health care and dental services, enhanced nurse case management, and outreach in the community setting via a Resource Mother. Health care visits were offered every 1 -3 months and address 7 key areas linked to LBW delivery: (1) poorly –controlled chronic diseases; (2) short interpregnancy intervals; (3) reproductive tract infections, including bacterial vaginosis; (4) periodontal disease; (5) nutritional disorders; (6) substance abuse; and (7) psychosocial stressors, including depression and domestic violence. Group educational experiences are integrated into IPC health care visits. Home visits and telephone contact by the Resource Mother are offered twice monthly. Primary care and outreach services are delivered by a team comprised of a family physician, nurse midwife/family nurse practitioner, periordontist, nurse case manager, and Resource Mother. Preliminary evaluation of the 22 women retained in the pilot program indicated that approximately one-quarter of them were affected by unrecognized or poorly managed chronic health problems and none of the participants wanted to become pregnant during the next 2 years. 11 ILLINOIS Title X Family Planning Program The Illinois Department of Human Services’ Office of Family Health (OFH) integrates preconception care into several programs. The Family Planning program, financed primarily through federal Title X Family Planning funds, provides counseling and education on pregnancy avoidance and timing and delivers clinical health services such as pap smears, sexually transmitted infections (STI) screenings, and physical exams to low-income women. The OFH has also worked in partnership with the Illinois Chapter of March of Dimes on a statewide campaign to raise awareness about the importance of consuming folic acid before and during pregnancy. Prenatal vitamins were distributed through WIC and some Title X agencies, and postpartum women were screened in WIC on folic acid intake and counsel and the WIC Food Package provided folic acid.12 Illinois Healthy Women In April 2004, Illinois began a 5 year Medicaid Waiver for Family Planning for women 19 – 44 years of age who were no longer eligible for medical assistance. The waiver provided limited coverage for family planning and related reproductive health, sexually transmitted infection testing and treatment, mammograms and folic acid.13 Illinois – Family Care This program offers comprehensive health care coverage to parents or relatives living with their children 18 years or younger with income up to 185% of poverty. Beneficiaries must be US citizens or meet immigration requirements. The program requires very modest co-pays, but no co-pays for family planning.14 4 MARYLAND WELL Project The Women Enjoying Life Longer (WELL) project was initiated by Maryland DHMH following a community needs assessment. Comprehensive preventive women’s health services were added to three Title X family planning clinics in Baltimore County, using Title X and Maternal and Child Health funding. Augmented services included nutrition and physical activity counseling, adult immunizations, smoking cessation interventions and preconception counseling, as well as referrals for problems such as substance abuse, depression, domestic violence, and chronic disease. Early evaluation data indicated that patients and staff have responded positively to new services, patient knowledge of women’s health has improved, and patient volume has increased 37% (CHENG, D, unpublished data, 2005.) 15 MISSOURI Bootheel Healthy Start Project, Missouri Bootheel Health Start project, a provider of referral and education services in a five county area of southeast Missouri, uses community-based education and interventions to improve adverse perinatal outcomes. The project has been one of few in the area that has promoted a family-focused approach to health education through the inclusion of various services directed at men. The curriculum for fathers has addressed a variety of issues, such as communication with the mother, addressing stress in the relationship, and the impact of nutrition on birth outcomes (Dean CG, Campbell T, Frazier V, Washington J, unpublished data 2005.) 16 NEBRASKA The Douglas Preconception Plan The DOUGLAS Preconception Program provides education for women of child bearing years on diet, omitting drugs, alcohol and smoking, underlying health conditions, gynecological visits annually, lactation for a lifetime of good health, birth control, screening and immunizations. Public health nurses partnered with multiple resources, which lead to the development of an educational program, including a pamphlet and power point presentation which have been utilized though out the community. A “Pre and Post Pregnancy I.Q. Tool” from March of Dimes has recently been added to our presentations as an evaluation tool. The pilot project was called Madres Saludables, a Spanish speaking women’s group, focused on preconception health in Lincoln, Nebraska. Regular group meetings were held three times per month at convenient public locations and discussions at these sessions covered the various topics of the DOUGLAS Plan. Health screenings were offered twice per year and referrals are made to primary care physicians, dentists and other resources. Plans are currently underway to duplicate this program for women who speak Arabic and could be adapted for presentations to any group of women between the ages of 14 and 45. Partnerships are being formed with other health departments to share preconception health resources and ideas on how to expand opportunities to reach all women in their child bearing years. Funding for the Madres Saludables program has been obtained from a “Building Strong Families Grant”. This grant has also facilitated a monthly calender and newsletter, which allows for greater dissemination of the DOUGLAS Plan and community resources.17 5 NEW YORK Albert Einstein College of Medicine/Montefiore Medical Center A research project conducted at a New York inner-city hospital served by Albert Einstein College of Medicine/Montefiore Medical Center sought to evaluate the knowledge and awareness of providers regarding preconception care. A pre-intervention chart review and a provider survey were conducted to evaluate delivery of preconception care. The two part intervention included a lecture for all providers and a standardized preconception care form inserted into all charts. A post-intervention chart review of convenience sample and repeated provider survey were then conducted. The result was a significant improvement in documentation of the delivery of preconception care; however provider knowledge and attitudes measured by the survey did not change significantly (Bernstein P, unpublished data, 2005.) 18 Montefiore Medical Center The Comprehensive Family Care Center at Montefiore Medical Center implemented the group model of prenatal care developed by the Centering Pregnancy and Parenting Association. Traditional prenatal visits were replaced with group appointments lasting approximately 2 hours and attended by 10 to 12 women. Typical clinical care services were provided during the visits and were supplemented with group discussions on pregnancy-related topics. Issues related to preconception health were covered during many of the meetings and included nutrition, substance abuse, contraception, and family planning. Since its inception, the group care model has been employed for 14 patient groups with high levels of patient and provider satisfaction reported, particularly related to enhanced opportunities for patient education (Bernstein P, Rising SS, Dolan S, Pardanani S, Merkatz IR, unpublished data 2005.) 19 OKLAHOMA Women’s Health Appraisal Oklahoma Birth Defects Registry developed, implemented and evaluated a preconception “Women’s Health Appraisal” project. The intervention was comprised of a 3-page health appraisal for women, with follow-up risk counseling, in selected family planning clinics. It involved using a preconception care education booklet. Pre-evaluation results indicated that 84% of nurses found the questionnaire helpful in assessing risk factors, 90% of nurses found it helpful as a guide to counseling and referrals, and 86% of patients increased their understanding of risk factors. Post-evaluation results found that 62% of patients modified one to three risk factors in a three –month period (Feuer VR, Pearson K, unpublished data, 2005.)20 WISCONSIN Wisconsin Perinatal Associations’ “Becoming a Parent” The “Becoming a Parent” toolkit provides materials for both consumers and providers, including any primary care provider, specialist and community health provider who see women of childbearing age. It includes a preconception checklist and a health care provider’s reference (accompanies checklist and provides instructions for use, information, references and resources for the providers.) It also providers a detailed booklet called “Information to Consider if You’re Thinking of Becoming Pregnant” for women and families to use to think about the implication of a pregnancy and family. There is a “Becoming a Parent” video – 20 minute video of testimonials that encourages people of childbearing age to think about two things, the decision to become a parent and healthy lifestyle.21 6 Sheree L. Boulet, Kay Johnson, Christopher Parker, Samuel F. Posner and Hani Atrash, “A Perspective of Preconception Health Activities in the United States,” Maternal and Child Health Journal 2006, 10 (5): 13-20. 2 The Research and Evaluation Group, Department of Family Medicine, University of Colorado and the Interconception Health Promotion Initiative, Interconception Health Promotion Initiative, Final Report, 9 June 2003. 3 Sue Samuels, “The Adventures of Folic Acid Woman [Abstract],” CDC National Summit on Preconception Care, June 2005. 4 Delaware Infant Mortality Task Force, Reducing Infant Mortality in Delaware, The Task Force Report, May 2005. 5 Ibid. 6 Kelly Bothum, “Getting Women to Focus on Themselves.” The News Journal, Wilimington, DE, March 2007, 6. 7 Ibid. 8 Boulet, S. et al., 2006. Janis Biermann, Anne Lang Dunlop, Carol Brady, Cynthia Dubin, and Alfred Brann, “Promising Practices in Preconception Care of Women at Risk for Poor Health and Pregnancy Outcomes,” Maternal and Child Health Journal 2006, 10(5), 21-28. 9 Lesli Ahonkhai, “Save Our Babies – Orange County, FL [Abstract],” CDC National Summit on Preconception Care, June 2005. 10 Laura Levine, “Interconceptional Education and Counseling of the Healthy Start High Risk Woman [Abstract],” CDC National Summit on Preconception Care, June 2005. 11 Biermann, J. et al., 2006. 12 NACCHO, Issue Brief: Preconception Care, May 2006. 13 Anne Marie Murphy and Stephen Saunders, “Implementing Preconceptual Care: A State Example, [PowerPoint Presentation],” CDC National Summit on Preconception Care, June 2005. 14 Ibid. 15 Boulet, S. et al., 2006. 16 Ibid. 17 Patty Baker, “The Douglas Preconception Plan [Abstract],” CDC National Summit on Preconception Care, June 2005. 18 Boulet, S. et al., 2006. 19 Ibid. 20 Ibid. 21 Ann Conway and Jennifer Wilen, “A Preconception Toolkit- Making It Easy for Providers to Educate Women and Families [Abstract],” CDC National Summit on Preconception Care, June 2005. 1 7