3rd Exploratory Meeting of the Justice Health Field Singapore, October 2009-10-13 Catherine A Gallagher, PhD cgallag4@gmu.edu +1(301)938-4146 Stuart A Kinner, PhD kinner@burnet.edu.au +61 (3) 8506-2368 Why we are here For the 3rd exploratory meeting, prior to submitting an application for a Cochrane entity, we would like your feedback and input. What is justice health? Justice Health is best conceived of as targeting: (a) an especially high-risk population (those under the supervision of the justice system, either in institutions or in the community), that is (b) served in a unique setting (one that is often offered in or coordinated by the justice system infrastructure in prisons, jails, and detention centers), or (c) under unique circumstances in the community (for those supervised by justice systems while they continue to live at home or in more open community-based settings). Justice health (d) includes adults and adolescents, as well as the families of justice-involved persons. Finally, (e) populations under the control of justice systems around the world are disproportionately racial and ethnic minorities, from lower socio-economic classes, and on the whole, are under-resourced, undereducated, and suffer from constellations of social, physical and mental health problems. Because (f) health care for these populations is often substandard, there is a common theme across the world of human rights concerns and issues of health care equity. Why do we need a justice health field? There is every symptom of a lack of knowledge. - heterogeneity of interventions and outcomes reflecting lack of coherence in the field: wild variation in practice - tremendous human rights and equity issues - complexity of interventions and outcomes - failure of knowledge synthesis, failure of knowledge/evidence translation: to inform policy: lack of evidence-based guidelines and demonstrably ineffective practices - disproportionate burden of disease => disproportionate gains from evidencebased interventions - significant and diverse public health implications, often poorly recognised/underestimated - gaps in knowledge, but unclear where to prioritise primary research resources Who can be involved? YOU! Consumers and Communication Group Depression, Anxiety and Neuroses Group Developmental, Psychosocial and Learning Problems Group Drugs and Alcohol Group Effective Practice and Organization of Care Group Economic Methods Group HIV/AIDS Group Infectious Disease Group Injuries Group Oral Health Group Pregnancy and Childbirth Group Public Health Group Sexually Transmitted Diseases Group Tobacco Addiction Group Wounds Group Behavioral Medicine Field Health Equity Field Child Health Field Primary Health Care Field Vaccine Field Will this duplicate existing entities? Despite shared terrain, need for a dedicated field to handle: - Specialised register - Vagaries of knowledge dissemination in this politicised and complex area - Complex settings and complex populations: medically, socially and economically. - Great and underestimated heterogeneity of health outcomes. - Legal issues and requirements - Support (both directly and indirectly) activities for conducting and promoting systematic reviews - Sensitise Cochrane Collaboration to this population, which is increasingly identified as a critical population for public health - Almost all prisoners become ex-prisoners. “prisoner health is public health” - We have to understand the CONTEXT: without this understanding, we risk losing the clinical and policy implications of both primary research and systematic reviews What we see as some of our immediate responsibilities - Support the systematic review process - Work with willing review groups - Lead in overviews of reviews in JH setting/populations - Provide financial and in-kind support to conduct reviews - Facilitate access to relevant experts to assist in completion of reviews - Continue to develop specialized registry, open access libraries and open access information management programs - Doctoral-level programs designed to encourage participation in JH research - Capacity building in clinical and policy research settings - Continue to secure funding for infrastructure, training, and systematic reviews Proposed field structure: Field Co-Coordinators: Catherine A. Gallagher, PhD, is an Associate Professor and Director of the Justice, Law and Crime Policy Graduate Program at George Mason University. Her research focuses on the ways in which the intersection between health care and justice agencies may be improved to better meet the needs of high-risk populations and the public health of their larger communities. Her work on justice-involved adolescents has appeared in the Journal of the American Academy of Child and Adolescent Psychiatry, the Journal of Adolescent Health, Social Science and Medicine and Pediatrics. She routinely works with the federal agencies such as the Office of Juvenile Justice and Delinquency Prevention, the Centers for Disease Control, the Office of the Surgeon General, and the U.S. Bureau of the Census in developing and monitoring national statistical programs and providing policy-relevant analyses. She led the epidemiological and legal research efforts behind a joint-agency Federal Initiative on Juvenile Justice Health, currently serves on the Campbell Crime and Justice Steering Group and actively participates with the WHO Prison Health board. Dr Stuart Kinner is a Senior Research Fellow with the Macfarlane Burnet Institute for Medical Research and Public Health (the Burnet Institute) in Melbourne, Australia. He also holds Adjunct positions in the School of Public Health and Preventive Medicine, Monash University; and the School of Population Health, University of Queensland. Dr Kinner has a background in forensic psychology and is currently chief investigator for two large studies of ex-prisoner health: a randomised controlled trial of a health intervention for ex-prisoners in Queensland (the Passports study) and a study of the timing, causes and predictors of mortality among exprisoners (the MARC study). Dr Kinner’s research interests include the health of prisoners and ex-prisoners, the epidemiology of illicit drug use, and social and structural determinants of health in marginalised populations. He regularly presents his research findings at national and international conferences and has published widely in the area of substance use, health and antisocial behaviour. Dr Kinner is a member of a Technical Expert Group advising the Australian Institute of Health and Welfare on the development of a National Minimum Data Set for prisoner health, and has a particular interest in transferring research findings into policy and practice. In the last year he has consulted with the Prison Mental Health Service in Queensland, Australia and has an ongoing consultancy with the United Nations Office on Drugs and Crime. Field Administrator: Anne Douds, J.D., ABD is a former trial attorney who is completing her doctorate in justice policy at George Mason University. Ms. Douds graduated from Duke University in 1990 with a bachelor’s degree in political science; from Emory University School of Law, with honors, in 1994; and she is scheduled to complete her doctoral program in the winter 2010. Ms. Douds also studied government and literature at the University of Zimbabwe and the University of Gaborone. She started her career on two Congressional staffs (Congressman John Lewis and Congressman Ben Jones), then she moved into the United States Attorney’s office in Georgia. Before entering the non-profit sector, she worked for a decade as the managing partner in a general trial practice where she represented youth in civil, criminal, and capital proceedings. In addition to serving as the Executive Director, she pursues two primary research agendas: improving health care delivery among justice-involved youth and developing evidence-based advocacy protocols for legal and clinical practitioners. Field Trials Search Co-Coordinators: Kimberly Mehlman-Orozco, MA is a doctoral student in the Justice, Law, and Crime Policy Department at George Mason University specializing in meta analyses of prevalence data on health conditions among immigrant and justice involved populations. She also is completing a graduate certificate in Epidemiology and Biostatistics. In 2005, Kimberly graduated cum laude with a B.S. from George Mason University. As an undergraduate she majored in Administration of Justice and minored in Psychology. She also holds a M.A. from George Mason University in Justice, Law and Crime Policy. As a masters student, Ms. Mehlman-Orozco was the recipient of the Dean's Challenge Scholarship; an award given to only a few outstanding scholars. Ms. Mehlman-Orozco has been certified as a library researcher by the Agency for Healthcare Research and Quality (AHRQ), the National Network for the Library of Medicine (NN/LM), Ovid, and ProQuest. She is qualified in STATA, SPSS, and Epi-Info. Kate van Dooren commenced her PhD at the School of Population Health, University of Queensland, Australia in October 2007. Her research focuses on the health-related experiences of young people aged 18 to 24 years as they transition out of prison. Prior to commencing her PhD, Kate worked at the Public Advocate of the ACT, as a child and youth advocate, and before this, was Policy Officer at the Youth Coalition of the ACT, the peak body for young people in Canberra. Systematic Review Analysts Monica Rengifo-Pardo, MD is currently, leading a systematic review about Pitiyriasis Versicolor (an infectious skin disease) for the Skin Group of the Cochrane Collaboration, and scheduled to attend with the Canadian Cochrane Network and Centre for the Fall 2009 Research Webinar Series. Dr. Rengifo-Pardo’s interest in justice-involved populations stems from her desire, as a physician, to identify populations who are more in need of better health service based upon adequate government policies. Using available data, Dr. Rengifo-Pardo is able to contribute to better service, indentify opportunities for increased health coverage for the most prevalent diseases affecting those populations and create public health strategies to prevent the incidence of them. In addition to Dr. Rengifo-Pardo’s involvement with the Cochrane Skin Group, she is an International Fellow of the American Academy of Dermatology and a Clinical Interpreter at NIH. Jose Orozco is currently a second year student in the International Commerce & Policy Master’s Program. Before starting his Master’s Program, Jose was a Peace Corps Volunteer in the Francophone country of Benin, West Africa from 2006-2008. As a Peace Corps Volunteer, Jose worked with the community and non-governmental organizations to promote small business development and education for underprivileged children, especially girls. Another major focus as a volunteer was to educate the public on infectious diseases, sexually transmitted infections and HIV/AIDS awareness. Prior to his Peace Corps Service, Jose worked for the Department of State, under the Foreign Service Institute from 2004-2006 and served as a liaison between Foreign Service Officers, administration, and teachers in African and European Language division. During this time, Jose took French training courses and mentored troubled youth at the Virginia Hispanic Committee. Jing Du is currently working toward a master’s degree in Epidemiology and Biostatistics at George Mason University. Jing is interested in studying diabetes in the Juvenile Justice Population. Fluent in Chinese. Aishah Babaa is pursuing a master’s degree in Public Health from George Mason University and has particular interest in the affects of obesity in children. Fluent in Arabic. Selma Nijs is a student of International Business Management with a concentration in marketing and management at Tufts University. Fluent in Dutch and German. Conversational fluency in Turkish. Field Manager Allyson M. Ashley is Administrator of the Lloyd Society and handles all aspects of finances and budgeting, human resources, conference planning and administrative support to the Society. She currently volunteers to further the availability of special education opportunities, to all students, along the entire spectrum of learning from Learning Disabled to Advanced Academic Programs. Prior to joining The Lloyd Society, Allyson was National Account Manager for Hilton Hotels and Resorts where she was awarded Outstanding Achievement for Sales Production three consecutive years. She received a B.S. of Business Management from The Pennsylvania State University in 1991. Field Specialised Database Coordinator Jack Chirieleison is the Chief Technology Officer of The Lloyd Society. As Lloyd’s Chief Technology Officer, Jack coordinates all automated systems for the U.S. Department of Justice Census of Juveniles on Probation, with direct responsibility for web development, database design and management, and geographic map and graph programming, as well as supervision of network functions and security. Prior to joining The Lloyd Society in 2008, Jack was Owner/Principal of Luminosa Creative Services, a multidisciplinary company formed in 2004 to provide web development and design, publication design, digital media creation, project documentation and software training to public and private sector clients. Luminosa clients included the National Library of Medicine of the U.S. National Institutes of Health; George Mason University; the Center for Public Service Communication; the Center for Information Policy at the University of Maryland; the University of Michigan’s School of Information; Aquarian Entertainment LLC; and Environmental Profiles, Inc. He attended the University of Maryland and Clemson University, where he received the Freshman English Prize. Equity Liaison Ajima Olaghere is a graduate student at George Mason University in the Justice, Law and Crime Policy Program. She is co-developing the Human Rights Justice Health Library for the International Network for Justice Health and co-authoring a book chapter on health policy and human rights. She also serves as a Graduate Research Fellow with George Mason’s Center for Justice, Law, and Society and works as a volunteer intern at The Sentencing Project. Prior to starting her graduate studies, Ms. Olaghere worked with the U.S. Sentencing Commission and the Commission on Safety and Abuse in America’s Prisons, an affiliate non-profit organization of the Vera Institute of Justice. Her current research involves studying the relationship between family criminality and sentencing recommendations Ms. Olaghere earned her Bachelor’s degree in Sociology at Colby College in 2007 is completing her M.A. degree in Justice, Law, and Crime Policy at George Mason University, and plans to continue into the doctoral program. Her research interests include conditions of confinement and rehabilitative and education-driven sentencing and penal policy. Ms. Olaghere believes in balancing research work and endeavors with community service and direct work when possible: she currently serves as Vice Chair of Precinct 13-30 for the Montgomery Democratic Central Committee, mentors, and is a founding member of her neighborhood civic association. Her academic interests include development of sentencing and penal policies as well as implementation practices and trends in sentencing and penal policy. Regional Representatives Lars Moller, MD, DMSc of the World Health Organization manages the WHO Health in Prisons Project. As a medical doctor with advanced degrees in epidemiology and public health, Dr. Moller provides invaluable guidance, advice, and technical support to the 39 European Member states of the Health in Prisons Prokject. His publications within the last year include Women’s health in prison: Correcting gender inequity in prison health. WHO Regional Office for Europe 2009 and the Trencin Statements on prisons and mental health. WHO Regional Office for Europe 2008. He also is a membr of the United Nations Office on Drugs and Crime and the Pompidou Group of the Council of Europe. Jayadev Sarangi, PhD is a prison expert with the United Nations Office on Drugs and Crime, Regional Office for South Asia. Dr. Sarangi’s current work includes a project to build capacities of participating countries to incorporate oral substitution treatment (OST) for drug dependents in South Asia. The program has been implemented successfully in Bangladesh, Bhjutan, India, Maldeves, Nepal, and Sri Lanka thus far. Terrance J. Wade, PhD, Canada Research Chair, Youth and Wellness and Associate Professor, Brock University. Dr. Wade examines the interrelationships among adolescent health conditions and delinquency. His current projects include: A multidisciplinary examination of cognitive and socioemotional self-regulation in adolescents: psychosocial, neurocognitive, and autonomic determinants, which is funded through the Canadian Institutes of Health Research. Consumer Representatives David Williams, MSc in Public Service Management. David is the Programme Consultant for the Offender Health and Social Care Programme in the NHS West Midlands, United Kingdom. The Offender Health and Social Care programme, is working to reduce health inequalities for offenders across the criminal justice system within the West Midlands government region. The work programme supports organisations to achieve change within the NHS and between the NHS and other organisations working in the criminal justice sector. Nancy Chand, JD has been an attorney with the Los Angeles County Public Defender for 22 years. She is currently the coordinator for the Second Chance Women’s Re-Entry Court, a prison diversion program for high level female offenders who would otherwise be sentenced to state prison, often for lengthy sentences. Nancy’s focus is collaborative and restorative justice. She has worked collaboratively with many governmental and community based agencies and helped create and/or coordinate re-entry projects such as: Project Star (Substance Abuse treatment for domestic violence survivors), Project Youth Embrace (Re-entry for children exiting criminal justice institutions), HALO (Misdemeanor diversion for homeless and/or mentally ill exiting the jail), Homeless Court (Citation warrant relief for formerly homeless people who have completed a program that addresses their homelessness). Michael Levy, MD PhD Professor and Director of the Australian Capital Territory (ACT) Corrections Health Program. Silvia Garcia is a marketing expert with more than 10 years of experience in communications, strategic marketing, marketing research, and consumer behavior. She holds special interest in the emerging field of social marketing, which translates commercial marketing concepts into promotion of public issues, such as human rights and health care for prisoners. Silvia worked for seven years in her native Peru as a volunteer care provider in criminal facilities in Lima. This experience gave her invaluable, first-hand exposure and insight into the attitudes, motivations, behaviors, needs, and challenges of prisoners and their relatives. She also studied law in Peru for three years. Silvia currently works at the Office of the Legal Counsel at the Pan American Health Organization, a position that has enabled her to deepen her understanding of the health-related issues faced by vulnerable populations in the Americas, and the international and multidisciplinary efforts to improve these populations' health and living standards. Additionally, Silvia, who is fully bilingual in English and Spanish, is completing an MS in Marketing and an MBA at Johns Hopkins University. Dr. Amit Shah, MD graduated from Drexel School of Medicine and did his residency in family medicine at the University of New Mexico, School of Medicine. He is a family practice physician in Oregon specializing in community based care and special populations. Advisory Board: Nick Royle, MBA, CEO Cochrane Collaboration Campbell Crime and Justice Group Luis Gabriel Cuervo Amore, MD, MPH, PAHO Alliance for Information on Maternal and Child Health, HRSA Participants: (Meeting 1, Orlando FL, May 3-6, 2009 Attendee Arash Anoshiravani, MD, PhD Thomas Beauclair Lorne Becker, MD Ingrid Binswanger, MD Shay Bilchick, JD* Stephanie Collins, MS Karen Cropsey, Phd Luis Gabriel Cuervo Amore, MD, MPH Adam Dobrin, PhD Jodie Doyle* Anne Douds, JD, ABD Warren Ferguson, MD* Bennett Fletcher, PhD Catherine Gallagher, Phd Ann Gallagher, MS Kathi Grasso, JD* Stuart Kinner, PhD Jennifer Lerch, MA Michael Levy, MD, PhD* Jacque Mallender, MS* Mark McGovern, MD* Kimberly Mehlman-Orozco, MA Nena Messina, PhD Shannon Gwin Mitchell, PhD Lars Moller, MD* Ajima Olaghere, MA Roberto Potter, PhD Monica Rengifo-Pardo, PhD Josiah Rich, MD Nick Royle, MBA Jayadev Sarangi, PhD Faye Taxman, PhD Alicia Thomas, MS Peter Tugwell, PhD* Erin Ueffing, MA Javier Vasquez, MD* Jos Verbeek, MD Nick DeViggiani, MD* Terrance Wade, PhD* Gail Wasserman, PhD Greg Warren, MD Elizabeth Waters, PhD* David Williams, MS David Wilson, PhD Audrey Yowell, PhD Barry Zack, MA Affiliation Santa Clara Valley Medical Center, Stanford School of Medicine National Institute of Corrections Cochrane Collaboration University of Colorado Denver Georgetown University University of Massachusetts Medical School University of Alabama PAHO/WHO Florida Atlantic University, The Lloyd Society Cochrane Collaboration The Lloyd Society University of Massachusetts Medical School US DHHS/NIH/National Institute on Drug Abuse George Mason University The Lloyd Society OJJDP Burnet Institute George Mason University Australian National Territory The Matrix Knowledge Group, The Campbell Crime and Justice Steering Committee Dartmouth Medical School George Mason University UCLA/The Lloyd Society Friends Research Institute WHO Prison Health Project George Mason University Department of Criminal Justice and Legal Studies, UCF The Lloyd Society Brown University The Cochrane Collaboration United Nations Office On Drugs and Crime George Mason University Grantmakers in Health University of Ottawa, The Cochrane Collaboration The Cochrane Collaboration, University of Ottawa PAHO/WHO The Cochrane Collaboration University of the West of England Brock University Columbia University BSAS, Inc. The McCaughey Centre, Melbourne School of Population Health, University of Melbourne NJH West Midlands George Mason University, The Campbell Collaboration HRSA The Bridging Group Kate Zinsser, MA George Mason University Participants Meeting 2, Oslo Attendee Nick Royle, MBA Caroline Angel, PhD David Wilson, PhD Liz Waters, PhD Peter Tugwell, PhD Amanda Perry, PhD David Weisburd, PhD Kevin Marsh, PhD Vivian Welch, PhD Jodie Doyle, MPH, MHS Charlotte Gill, MS, ABD Tony Munton, PhD Tracy Perez Koehlmoos, PhD Jacque Mallender, PhD Affiliation Cochrane Collaboration University of Pennsylvania George Mason University University of Melbourne University of Ottawa The University of York George Mason University Matrix Knowledge Group University of Ottawa Victorian Health Promotion Foundation University of Pennsylvania Matrix Knowledge Group George Mason University Matrix Knowledge Group Practicalities Supporting organizations: George Mason University Burnet Institute The Lloyd Society University of Queensland Current Funding: AHRQ Large Conference Support (received) $300,000 US Australian Criminology Research Council (under review) $168,000 AU Australian National Health and Medical Research Council (NHMRC) (received) $269,000 AU National Library of Medicine (submitted) $50,000 Australian National Health and Medical Research Council (NHMRC) (received) $12,500 AU National Library of Medicine Training Grant (received) Current activities: Systematic review – Public Health Review Group Specialised registry – in development Open access, mapping, free libaries, knowledge mappint Research prioritization exercises Website development Resources Bulletin board List serve Upcoming meetings around the world Ongoing training of field members Australasian Cochrane Centre National Library of Medicine Training of decision makers in use of evidence (SUPPORT) Fields under some scrutiny. Cognisant of risk of being a drain rather than an asset. Here’s why we’re not: - Training already done - Funding already secured - Team already established - Work already under way. Outputs a function of the partnerships we create. - * Go to website and show: o Module already drafted and can be reviewed o Bulletin board, list of relevant meetings, interactive knowledge mapping and participants’ list. We already have a home and an international network of participants. What kinds of systematic reviews will the JH Field conduct? So much work to do, so many opportunities for partnership. Existing partnerships with Public Health Review Group, Equity Field, Campbell. We will start with the groups ready to work with us. The JH field may become redundant down the track, and if/when that happens, we’ll be happy to close shop. What’s next? Next two field meetings – 1st week of June 2010, midyear meeting at Cochrane Colloquium Meeting topics: 1. CLINICAL – Arash, Michael Levy, 2. POLICY – Lars Moller a. LEGAL PARAMETERS: ANNE b. HUMAN RIGHTS – AJIMA, Rick Lines 3. KNOWLEDGE CREATION - SK 4. KNOWLEDGE SYNTHESIS - CG 5. KNOWLDEGE TRANSFER – Luis Gabriel a. EVIDENCE BASED ADVOCACY – ANNE, AJIMA b. Guideline development – not just ‘standards’ 6. CONSUMERS –Hernan Reyes, David Williams, Nancy Chand, Silvia Livelli – closing address among these. a. LG’s guy as a consumer? Sam #### from Anex 2009 conference? 7. CAPACITY BUILDING. Tony Butler. Doctoral students development. Clinician development. Policy maker development. -