The Gluten-Free Casein-Free Diet The GFCF Diet is a Mainstream Autism Therapy may not help all kids, but helps at least 65%, possibly a lot more Autism Research Institute parent ratings at http://autism.com/treatable/form34qr.htm show 65% of parents say it helps their kids all DAN! doctors recommend that you try the diet - Defeat Autism Now! (DAN!) is a consortium of autism doctors who use diet, nutrition, and biomedical therapies to treat autism autism magazines are full of GFCF diet products What the GFCF Diet Can Do how it works – leaky gut, opioid theory – gluten and casein have an opium-like effect on our kids – remove the opium and you get real progress food intolerance versus food allergy – no testing for intolerances is conclusive the progress you see from the diet may be really substantial sensory distortions lessened tactile – sense of touch returns, can feel pain again when appropriate auditory – sound sensitivity lessened visual – light sensitivity and visual hallucinations lessened proprioceptive – knows where body is in space smell – not as sensitive to smells gastrointestinal problems lessened cognitive progress progress in receptive and expressive language progress in fine and gross motor skills progress in attention and focus progress in relating to other people How to Implement the GFCF Diet don’t put it off – time is of the essence – you are losing valuable developmental time gradual implementation is OK– but don’t take longer than a month to implement implement the diet carefully for three months to see if it will help your child – takes time to get the gluten and casein out of the brain if you don’t remove ALL gluten and casein, you may see progress anyway once you see progress, you will want to remove all of it if you don’t remove ALL gluten and casein, and you DON’T see progress, it may be because you didn’t remove all of it – then you will only know if it will help your child if you remove ALL of it adverse reactions – only 3% of parents say their child got worse on the GFCF diet pain that used to be killed by casein will become apparent kids on the autism spectrum tend to have gastrointestinal problems that can be painful – constipation, diarrhea, inflammation 1 withdrawal reactions – like going off of opium foods that are prohibited gluten- wheat, rye, barley, spelt dairy – all cow’s milk dairy in any form – milk, yogurt, ice cream, cheese, hidden gluten and casein – modified food starch from an unspecified source, caramel color, natural flavors, etc. - see www.gfcfdiet.com, Directory of Website, Unacceptable for detailed list foods that are controversial or questionable oats – now gluten-free oats are available, but other oats are contaminated goat milk, goat milk yogurt – easier to digest, but still has casein foods whose listed ingredients are GFCF, but are contaminated in the manufacturing process – check acceptable list at www.gfcfdiet.com (Directory of Website) or www.AllergyGrocer.com to be careful look for gluten and casein in non-food items Play Doh, some glue, some paints soaps, shampoos, lotions, probiotics grown on whey, medications see www.gfcfdiet.com (Directory of Website) for lists of acceptable products foods that are acceptable rice – steamed rice, rice milk (but not Rice Dream), rice crackers potatoes – French fries, potato chips meat fruit non-grain vegetables nuts, beans coconut - coconut milk yogurt, coconut milk ice cream, etc. flours – rice, tapioca, potato, amaranth, quinoa water – the only thing your child needs to drink you have total control over younger children get an older child to sign on to the diet, help them understand the benefits your child will not starve for longer than a day or two the GFCF diet will help heal the gastrointestinal tract, and thus improve absorption of nutrients – your child will actually gain weight digestive enzymes help remove any inadvertent gluten or casein, and help the body digest all foods, but are not a substitute for the GFCF diet – buy them from: Kirkman Labs Houston Nutraceuticals Klaire dealing with school put it in the IEP notify all school personnel who work with your child send lunch and snacks to school bring a special cupcake to birthday parties 2 eating at restaurants always tell the restaurant that your child is on a GFCF diet, ask lots of questions P. Terry’s, Five Guys, Hat Creek, Elevation Burger, Mighty Fine – fries are GFCF, ask them to cook meat carefully, buns have wheat Macaroni Grill and steak houses – ask them to cook fries in clean oil and separate pan, use unmarinated meat beware of battered French fries, pre-cut French fries, fries cooked in the same oil with wheat products, marinated meat Other Dietary Recommendations avoid soy – it’s a major problem for kids with autism – GFCF is turning into GFCFSF may need to avoid corn – can cause aggression avoid artificial sweeteners, especially Nutrasweet/Aspartame (very toxic) avoid excessive sugar, refined sugar, and high fructose corn syrup – limited fruit juice, limited deserts, limited fruit go low salicylate – limit fruit mostly to pears, mangos, and bananas - avoid dark fruits buy organic fruits and vegetables, avoid pesticides buy grass-fed/pastured meat and eggs buy fermented/probiotic-rich foods buy whole, unprocessed foods buy products with simple ingredients avoid artificial colors – can cause hyperactivity, insomnia, learning problems avoid artificial flavors avoid artificial preservatives avoid MSG (hydrolyzed protein, yeast extracts) avoid hydrogenated oils, partially hydrogenated oils, and trans fats buy good fats – fish/olive/coconut oil, animal fats may need to go low carbohydrate, especially for severe gastrointestinal problems - SCD (specific carbohydrate diet) Books Bette Hagman cookbooks - Bette Hagman is the Gluten-Free Gourmet. Her recipes are gluten-free, but not necessarily casein-free, so substitutions for the dairy items in her recipes are necessary. Her cookbooks include wonderful information about alternative flours, how to substitute alternative flours into other recipes, and where to buy alternative flours. Her cookbooks include: The Gluten-free Gourmet, More from the Glutenfree Gourmet, The Gluten-free Gourmet Cooks Fast and Healthy, and The Gluten-Free Gourmet Bakes Bread (her best book on alternative flours and how to use them.) 3 The Encyclopedia of Dietary Interventions for the Treatment of Autism and Related Disorders, by Karyn Seroussi and Lisa S. Lewis, Ph.D. Lots of important information about dietary interventions. It was Karyn Seroussi and Lisa Lewis who first popularized the GFCF diet. The Kid-Friendly ADHD and Autism Cookbook: The Ultimate Guide to the GlutenFree, Casein-Free Diet, by Pamela Compart and Dana Laake Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children, by Julie Matthews. See www.NourishingHope.com. A really important contribution to the field. Special Diets for Special Kids, and Special Diets for Special Kids Two, by Lisa S. Lewis, Ph.D. – Excellent background on why the diet is important and how it works, recipes, and lists of foods that are, and are not, GFCF. Websites TACA - Talk About Curing Autism – www.tacanow.org – Extensive website with lots of great information about the diet. The ANDI News (Autism Network for Dietary Intervention) - www.AutismNDI.com - Newsletter published online by Karen Seroussi and Lisa Lewis, who first popularized the GFCF diet. GFCF Diet website - www.gfcfdiet.com – Click on “Directory of Website” for well researched lists of foods by brand name that are GFCF, divided into categories, and notes about foods to be wary of. Also has other helpful information about the diet. A good way to stay current, as the ingredients in foods change from time to time. Kirkman Labs – www.kirkmanlabs.com – Perhaps the largest purveyor of nutritional supplements for people on the autism spectrum, including digestive enzymes. Other Resources Nutritionists at the Johnson Center for Child Health & Development –The Johnson Center is a medical clinic here in Austin for the bio-medical treatment of autism spectrum disorders. Their nutritionists are well versed in the GFCF diet. Their web site is www.Johnson-Center.org, their address is 1700 Rio Grande Drive #200, Austin, TX 78701, and their phone number is 732-8400. Food For Life – GFCF restaurant and catering business located at 2051 Cypress Creek Road, Suite L, Cedar Park, TX 78613, 331-0096, owned by health care professional Sherrie Kjar. See www.gfcfcuisine.com. Wild Wood Bakehouse – Gluten-free (but not necessarily casein-free) bakery and café at 31st and Guadalupe. See www.wildwoodartcafe.com. 4