February 2013 Volume 5, Issue 2 Local Support & Information for Individuals and Families Living with Mental Illness and Brain Disorders NAMI-Pierce County National Alliance on Mental Illness Mental Health Support, Education and Advocacy P.O. Box 111923 Tacoma, WA 98411-1923 Phone: 253-677-6629 Email: namipierce@gmail.com NAMI’s Free Mental Health Services are Open to All February - March Calendar Valentine’s Day February 14 Call a Friend and tell them how much you appreciate them…………………. Monday, February 18 TACID Center Closed – President’s Day Holiday Connection Recovery Drop-In Groups in Tacoma & Puyallup Call 253-341-3463 for times and locations Family & Friends-Support Group – Wednesday nights in Tacoma - Call 677-6629 Mental Health Education Family to Family- Family Education In Our Own Voice Education for the Community For Mental Health Emergencies in Pierce County Call: 1-800-576-7764 For Mental Health Information & Support Call: 1-877-780-5222 from 3 – 11 PM NEXT NAMI Meeting Wed, February 20 at 6:00 PM at the TACID Center 6315 S 19th St - Tacoma – next to TCC Wed., Feb 20 6-8 PM NAMI General Meeting and Pot Luck Supper at the TACID Center Sun. Mar 3 1:30 PM NAMI Board Meeting Forza Coffee – Pearl St. , Tacoma All Members Welcome Wed., Mar 20 NAMI General Meeting and Pot Luck Supper at the TACID Center Saturday May 18 Jim Williams NAMI-Day in Olympia January 21 The State Legislature is busy this session with a wide range of pressing problems. The most serious financial challenge is to comply with the Supreme Court’s “McCleary Decision” which ruled that our state has failed to comply with our Constitutional requirement to adequately fund K-12 education. The state will have to find $1 billion to comply with the Court’s directive. Nine NAMI members visited with our Pierce County Senators and Representatives under the guidance of Bob Winslow, our new Legislative Coordinator. With mental health and mental illness on everyone’s mind, our representatives in Olympia were listening to what we had to say and looking hard at NAMIWashington’s legislative proposals. The State’s finances haven’t improved that much and it is difficult to fund public services. The bottom line is that we are unlikely to see new dollars flowing into agencies that serve persons with mental illness. As Jim indicated in his column, it is unlikely that more money will be allocated to the treatment of mental problems so proposals asked for modifications to existing laws to allow involuntary treatment before a person becomes an imminent danger to themselves or others, for more Assisted Outpatient Treatment, and for more Peer Counselors in the treatment agencies. Legislation proposed by others included support for mental health education in the schools and for fixing the problem of “boarding” mental patients in emergency rooms, untreated until one of the tiny number of hospital psychiatric beds is available for them. It is an embarrassing truth that the State of Washington has the lowest number of psychiatric beds per capita of any state in the country. February President’s Corner by The good news is that there is more interest in mental health issues than we have seen in many years. Spurred by tragic events such as the massacre at Sandy Hook, CT, legislators have entered over a dozen new bills about mental health. Some of these bills are consistent with NAMI’s goals—but some may only add to the stigma that surrounds mental illness. NAMI-Pierce made a great showing at our NAMI DAY lobby in January. We managed to reach more legislators than we have in a long time. What we have learned from these visits is that we need to become year-round lobbyists, staying in touch with our legislators even in the off-session. Pierce County faces other challenges. We are working in coalition with other organizations to urge our County government to allocate more resources for mental health. We will need help from each of you. Finally, we need to become a much bigger NAMI if we hope to achieve our goals. We need more members to help sustain our efforts, both financially and as volunteers. If you haven’t renewed your membership—you need to do that now! Jim Williams Bob is putting together a cadre of individuals who are interested in these issues and would be available to testify, if needed. Call him at 253-952-6434 to volunteer. News … Notes … NAMI on the Move news, notes and opinions by Ginny Peterson, Editor Family to Family Class Starts February 28 Thursday evening Family to Family classes will be back in just two weeks, taught by Evelyn Bowen-Crawford and Henri Cloud. The 12-week free class series runs from 5:30 to 8 PM and is open to family members, caregivers and friends of persons with a mental health diagnosis. When any individual lives with a mental illness, their whole family is affected. But often there is no one to explain what is happening to them or how to help. Families, friends and co-workers are often mystified and even hurt by actions and attitudes they can’t explain. This class is one of the most valuable services NAMI offers, as rated by feed back from students. If you have family members or friends who need help in coping with the mental Illness of a loved-one, please urge them to register and join us. lion’s share of the all human services capability currently available. If these individuals received more effective medical treatment for their brain disorders, much of the service burden would be lifted from emergency rooms, the jail, probation services, housing agencies and even food banks. Although NAMI only became a member in November, we are already collaborating on legislative proposals and strategy with Bob Winslow as a member of their Advocacy Committee. For Your Information Family to Family instructors are family members themselves who can help dispel the mystery surrounding common brain disorders and help families cope with challenges. Because classroom space is limited, pre-registration is required. For questions or to register, call Evelyn Bowen-Crawford at 253-241-3341 The TACID Center will be Closed for President’s Day Holiday Monday, February 18 Mark your Calendar for the NAMI- Walk May 18 If not, be looking for an envelope in your mailbox in the next few weeks. There were some holes in our renewal reminder system in 2012 – but they’ve been repaired in 2013. A renewal form is headed in your direction. Fill it out and send it back to stay involved in our exciting programs and outreach. And be sure to update your contact information. We can’t stay in touch with you if we don’t know your email and phone number. Hooray, hooray… the NAMI Walk returns to its regular springtime slot this year – and hopefully to dryer weather after last year’s late October soaking. So reserve Saturday, May 18 and prepare for a great time at Kirkland’s Marina Park with other NAMI affiliates from around the state. This is our major fundraiser of the year – It is the one activity that makes it possible for NAMI to offer all our support groups, classes, public presentations and literature to our community at no cost. So invite your friends and family to join us as we walk or to sponsor your own participation. NAMI-Pierce Joins the Pierce County Human Services Coalition As the old saying goes…There is Thanks to Optum Health for their Generous Grant: In October, Optum Health awarded NAMI- strength in numbers. NAMI-Pierce has joined with nearly 60 other Pierce County agencies, services and support groups to become a part of the Human Services Coalition. Pierce a financial grant for materials and services to help us raise our profile and become better known in the Pierce County Community. Grant monies have been used to buy portable equipment for our Virtual Office and classes, for advertising our free services, for purchasing and printing literature, for a new shelter for Health Fairs and two new NAMI-Pierce banners. Did you renew your NAMI Membership? For the last 4 years the Coalition has listed Mental Health as their top priority for county-wide action. Why? Because they realize that individuals with untreated or poorly-treated mental illness use the Many thanks for helping us serve Pierce County From the New York Times January 25, 2013 Successful and Schizophrenic By ELYN R. SAKS LOS ANGELES THIRTY years ago, I was given a diagnosis of schizophrenia. My prognosis was “grave”: I would never live independently, hold a job, find a loving partner, get married. My home would be a board-and-care facility, my days spent watching TV in a day room with other people debilitated by mental illness. I would work at menial jobs when my symptoms were quiet. Following my last psychiatric hospitalization at the age of 28, I was encouraged by a doctor to work as a cashier making change. If I could handle that, I was told, we would reassess my ability to hold a more demanding position, perhaps even something full-time. Then I made a decision. I would write the narrative of my life. Today I am a chaired professor at the University of Southern California Gould School of Law. I have an adjunct appointment in the department of psychiatry at the medical school of the University of California, San Diego, and am on the faculty of the New Center for Psychoanalysis. The MacArthur Foundation gave me a genius grant. Although I fought my diagnosis for many years, I came to accept that I have schizophrenia and will be in treatment the rest of my life. Indeed, excellent psychoanalytic treatment and medication have been critical to my success. What I refused to accept was my prognosis. Conventional psychiatric thinking and its diagnostic categories say that people like me don’t exist. Either I don’t have schizophrenia (please tell that to the delusions crowding my mind), or I couldn’t have accomplished what I have (please tell that to U.S.C.’s committee on faculty affairs). But I do, and I have. And I have undertaken research with colleagues at U.S.C. and U.C.L.A. to show that I am not alone. There are others with schizophrenia and such active symptoms as delusions and hallucinations who have significant academic and professional achievements. Over the last few years, my colleagues, including Stephen Marder, Alison Hamilton and Amy Cohen, and I have gathered 20 research subjects with high-functioning schizophrenia in Los Angeles. They suffered from symptoms like mild delusions or hallucinatory behavior. Their average age was 40. Half were male, half female, and more than half were minorities. All had high school diplomas, and a majority either had or were working toward college or graduate degrees. They were graduate students, managers, technicians and professionals, including a doctor, lawyer, psychologist and chief executive of a nonprofit group. At the same time, most were unmarried and childless, which is consistent with their diagnoses. (My colleagues and I intend to do another study on people with schizophrenia who are high-functioning in terms of their relationships. Marrying in my mid-40s — the best thing that ever happened to me — was against all odds, following almost 18 years of not dating.) More than three-quarters had been hospitalized between two and five times because of their illness, while three had never been admitted. How had these people with schizophrenia managed to succeed in their studies and at such high-level jobs? We learned that, in addition to medication and therapy, all the participants had developed techniques to keep their schizophrenia at bay. For some, these techniques were cognitive. An educator with a master’s degree said he had learned to face his hallucinations and ask, “What’s the evidence for that? Or is it just a perception problem?” Another participant said, “I hear derogatory voices all the time. ... You just gotta blow them off.” Part of vigilance about symptoms was “identifying triggers” to “prevent a fuller blown experience of symptoms,” said a participant who works as a coordinator at a nonprofit group. For instance, if being with people in close quarters for too long can set off symptoms, build in some alone time when you travel with friends. Other techniques that our participants cited included controlling sensory inputs. For some, this meant keeping their living space simple (bare walls, no TV, only quiet music), while for others, it meant distracting music. “I’ll listen to loud music if I don’t want to hear things,” said a participant who is a certified nurse’s assistant. Still others mentioned exercise, a healthy diet, avoiding alcohol and getting enough sleep. A belief in God and prayer also played a role for some. One of the most frequently mentioned techniques that helped our research participants manage their symptoms was work. “Work has been an important part of who I am,” said an educator in our group. “When you become useful to an organization and feel respected in that organization, there’s a certain value in belonging there.” This person works on the weekends too because of “the distraction factor.” In other words, by engaging in work, the crazy stuff often recedes to the sidelines. Personally, I reach out to my doctors, friends and family whenever I start slipping, and I get great support from them. I eat comfort food (for me, cereal) and listen to quiet music. I minimize all stimulation. Usually these techniques, combined with more medication and therapy, will make the symptoms pass. But the work piece — using my mind — is my best defense. It keeps me focused, it keeps the demons at bay. My mind, I have come to say, is both my worst enemy and my best friend. THAT is why it is so distressing when doctors tell their patients not to expect or pursue fulfilling careers. Far too often, the conventional psychiatric approach to mental illness is to see clusters of symptoms that characterize people. Accordingly, many psychiatrists hold the view that treating symptoms with medication is treating mental illness. But this fails to take into account individuals’ strengths and capabilities, leading mental health professionals to underestimate what their patients can hope to achieve in the world. It’s not just schizophrenia: earlier this month, The Journal of Child Psychology and Psychiatry posted a study showing that a small group of people who were given diagnoses of autism, a developmental disorder, later stopped exhibiting symptoms. They seemed to have recovered — though after years of behavioral therapy and treatment. A recent New York Times Magazine article described a new company that hires highfunctioning adults with autism, taking advantage of their unusual memory skills and attention to detail. I don’t want to sound like a Pollyanna about schizophrenia; mental illness imposes real limitations, and it’s important not to romanticize it. We can’t all be Nobel laureates like John Nash of the movie “A Beautiful Mind.” But the seeds of creative thinking may sometimes be found in mental illness, and people underestimate the power of the human brain to adapt and to create. An approach that looks for individual strengths, in addition to considering symptoms, could help dispel the pessimism surrounding mental illness. Finding “the wellness within the illness,” as one person with schizophrenia said, should be a therapeutic goal. Doctors should urge their patients to develop relationships and engage in meaningful work. They should encourage patients to find their own repertory of techniques to manage their symptoms and aim for a quality of life as they define it. And they should provide patients with the resources — therapy, medication and support — to make these things happen. “Every person has a unique gift or unique self to bring to the world,” said one of our study’s participants. She expressed the reality that those of us who have schizophrenia and other mental illnesses want what everyone wants: in the words of Sigmund Freud, to work and to love. Elyn R. Saks is a law professor at the University of Southern California and the author of the memoir “The Center Cannot Hold: My Journey Through Madness.”