IN A SMALL GEORGIA TOWN, A MOTHER MURDERS HER TWO SONS— AND SOME VIEW IT AS AN ACT OF ©Mimmo Jodice/Corbis KINDNESS 26 science &spirit may june 2003 by Jill Neimark A TIME TO KILL IT’S A QUIET SATURDAY NIGHT IN GRIFFIN, GEORGIA — A PEACEFUL VILLAGE OF SHADY streets, rolling farmlands and cool streams. A 64-year-old woman enters a nursing home, walks up to two men lying in their beds, takes out a handgun, and shoots them in the head. She returns to the waiting room of Sunbridge Care and Rehabilitation, sits on a couch and waits. “I did it, I shot them,” she tells police officer Joe Hudson when he arrives. www.science-spirit.org science &spirit 27 Later, weeping, she begs another police officer, “I want you to kill me.” Carol Carr has just murdered her two sons, both of whom were in the end stages of Huntington’s disease. This fatal, hereditary neurological disorder burns away a person’s mind and body, stealing their ability to perform the most basic functions. Carr’s second husband, Hoyt, had died of the condition, as did his mother and sister. Hoyt’s brother killed himself when he discovered he had inherited the illness as well. Carr nursed Hoyt, a factory worker, through twenty years of physical and mental deterioration. He died in 1995, unable to move, swallow, or talk. By that time Carr’s oldest sons, Randy CARR’S ACT OF DOUBLE HOMICIDE IS AS GRUESOME AND FLAGRANT AS AN EVENT OUT OF GREEK TRAGEDY. and Andy, were showing signs of the disorder and she turned her life over to caring for them. Her youngest son, James, recalls that “Randy had it a lot longer, but when Andy got it he progressed really fast. Trying to get both of them to a doctor was extremely hard. They never wanted to go into the nursing home, but it got too hard to care for them. It’s extremely difficult to transport somebody when they’re in the later stages of Huntington’s.” Carol Carr’s act of double homicide—Andy was 41, and Randy 42—on the night of June 8, 2002, is as gruesome and flagrant as an event out of Greek tragedy. And yet, on hearing the circumstances of this woman’s life, it’s nearly impossible not to sympathize. What can we say before the mind-numbing reality of a woman who has witnessed three deeply loved family members wither before her eyes? Her own health, compromised by decades of stress, has endured a heart attack, ruptured spinal discs, and kidney problems. And what of her youngest son, now thirty-eight, whose brothers are dead by his mother’s hand, and yet whose support for her has been unwavering? James Scott organized rallies in support of his mother. “My brothers had gone to probate court and signed living wills saying they didn’t want to live in the state they ended up in,” he says. “We all signed those wills.” However, in Georgia, a living probate will only means that one does not want to be put on life support or be subject to heroic measures to prolong life. Scott’s brothers were not at that point yet. Scott, who has one daughter with an ex-wife, lives alone. He has never been tested for the Huntington’s gene but believes he is in the early stages. “If a day came when I couldn’t take care of myself,” he says, “and walk and talk and fish and hike and do the things I like, then my life would already be over.” In the past year, Scott’s health has deteriorated. “My blood pressure is 28 science &spirit may june 2003 up, I have heart trouble, I had the flu five times this winter, and I’m just now getting over pinkeye.” Even so, he is a man without malice. “There’s a purpose for everything” he says. “God has his reasons. You just take it day by day.” Most of us don’t pause to question our moral truths— we think of them like reflexes—fixed, automatic, and reliable. Mothers should not murder their children. But in real life, morality can become strangely taffylike. It stretches, it sticks. In 1998, four years before Carr killed her sons, they joined her for an evening of reminiscing and then each took 50 tablets of the tranquilizer Tranxene in an unsuccessful attempt to kill themselves. Phrases like “mercy killing” are invented for situations like Carr’s, a moral point-of-no-return. Andy and Randy’s double murder ushered in nearly a year of difficult legal maneuvering, because the state of Georgia does not allow mercy killings. Carr was jailed and denied bond twice. “The case was difficult for everyone,” says Griffin Judicial Circuit District Attorney William McBroom. “It’s certainly the toughest case I ever handled. This is not your ordinary criminal case. Carol Carr came in with no prior record. But she killed two people. Some people were saying we ought to hang her. Others were saying don’t prosecute.” Most of Carr’s friends and the world at large, however, rallied around her. Carr faced two counts of felony murder and two counts of malice murder. A murder conviction would have put her in jail for the rest of her life. McBroom recommended she be allowed to plead guilty to the lesser charges of assisted suicide—a successful compromise. “You can’t just condone this and let her walk away with no punishment,” he explains. “It sends the wrong message. The next person that tries something like this might not have noble motives. They might just do it because they don’t want to be bothered, or they want the insurance money.” The final sentence, in February of 2003, found Carr guilty of violating a law that prohibits aiding in a suicide, and sentenced to five years in prison—on the condition that she could never again live with her remaining son, James Scott, or be his caretaker. The state of Georgia had only invoked that particular law three times previously. “It’s a classic example of the old legal adage that you should always temper justice with mercy,” Carr’s lawyer, Lee Sexton, of Stockbridge, Georgia, said after the decision. Her son James commented: “This disease is our family curse, and my mother has suffered enough.” “I could not imagine a better resolution than the one we obtained,” says Sexton. I do think that Georgia and other states that do not have a euthanasia statute are in dire need of one. I find it remarkable that if I had a dog in the condition Carol Carr’s children were in, I would be prosecuted for cruelty to animals if I did not euthanize the dog. But if a disease is terminal and causes terrible suffering as it progresses, a human does not have the right to die with dignity when they choose.” Carr’s was not the first such difficult Huntington’s case in Georgia. In 1985, a woman named Glenda Caldwell began to develop Huntington’s, which had killed her father. Afraid that she had passed it on to her children, she killed her 19-yearold son, and tried to kill her daughter, Susan. “My brother had gone out with friends,” Susan told the Atlanta JournalConstitution in a June 2002 interview. “He came home, walked through the door, and she shot him three times. . . I hated her. . . I was the prosecution’s star witness.” Her mother was sentenced to life in prison. Later, Caldwell forgave her mother and in 1994 testified on her behalf in a re-trial; toward the end of her life, the two grew extremely close. It’s easy to understand Susan’s hate for her mother, and as easy to understand her love. In 1988, Barbara Monroe of Smyrna, Georgia shot her daughter, who suffered from cerebral palsy and epilepsy, with a shotgun. Monroe told detectives she wanted “to put Gail out of her misery.” Monroe pleaded guilty to voluntary manslaughter and served five years of a twenty-year prison sentence. In 1994, Georgia physician Eva Carrizales was accused of suffocating a premature baby with myriad disabilities. Nurses said she had intentionally killed the infant, and a 1994 trial resulted in a split jury. The prosecutor said, “I could not have found twelve people of like minds.” In Carr’s case, the legal conundrums were just as tough, but the final sentence was in many ways an ingenious and merciful compromise. “I feel the utmost sympathy for her,” says Ira Byock, M.D., author of Dying Well, co-founder of Life’s End Institute in Missoula, Montana, and a faculty member of the Practical Ethics Center at the University of Montana. “It was RIGHT OR an incredible tragedy, because she perceived that there was no other way available to her to respond to her sons’ suffering. I’ve seen and known others who felt similarly at a loss to respond to the suffering of their loved ones.” Byock sees diseases like Huntington’s, Alzheimer’s, and Lou Gehrig’s disease, as “orphan conditions that are the ultimate paradigms for human suffering.” These diseases leave only remnants of a human behind. “I think we in the helping professions need to do everything possible using medicine and our own creative imaginations to alleviate suffering. I spend my days trying to expand access to services for people like Mrs. Carr and her sons, and the barriers to that are many. Our system focuses on acute care and high-intensity life-prolonging care. And so there are many thousands of patients across the country who feel abandoned. This reflects an incredible lack of commitment on our collective part to respond to basic human needs.” Perhaps, speculates Byock, if Mrs. Carr had felt there were other options for her sons, she would have chosen a different route. A number of promising treatments are now being tested for Huntington’s. Today, an estimated 2.7 million adult children with developmental disabilities live at home with a family caregiver—and one in four live with a caregiver over sixty. Their numbers are growing as medical technology advances. Yet when Congress created the National Family Caregiver Support Program in November 2000, it offered almost no aid to parents caring for adult children. Most of us reading Carol Carr’s story are safely ensconced in lives and bodies that have not betrayed us so outrageously. But her questions are still our questions. As Byock reminds us, “When we suffer, we all present ourselves as patients. The etymology of the word patient means sufferer.” & WRONG? Tell us What You Think Moral dilemmas haunt the world of medicine. We’d like to know how you feel about some famous cases. These particular cases focus on pregnancy and childbirth: • In February of 2003, Costa Rican police arrested a man who had raped a nine-year-old Nicaraguan girl. She was four months pregnant at the time of the arrest and her parents asked the Nicaraguan government to allow their daughter to have an abortion, even though it is generally illegal in Nicaragua. The pregnancy is high-risk in one so young, and the girl said she did not want to have a baby. • In 1999, doctors used genetic screening to select a test-tube baby from twelve embryos created by invitro fertilization. The selected baby had the right cells for the child to act as a donor for his older sister, who was six years old and suffering from a rare, inherited, and fatal disorder called Fanconi anemia. The baby boy, Adam Nash, was born August 29, 2000. Cells were collected from his umbilical cord and infused into his older sister. • In May of 2002 workers sorting garbage in Storm Lake, Iowa, found the body of a newborn boy, dismembered by the sorting machines. The body was so damaged it could not be identified. Police subpoenaed the records of Planned Parenthood in town to obtain the names of women who had received positive pregnancy tests in the previous nine months, but Planned Parenthood refused to comply with the subpoeana. • Last year, two white parents gave birth to black twins after a mistake at a fertility clinic in England. The error at the fertility clinic could lead to a court battle over legal paternity of the children. Similarly, in Holland in 1993, a white woman named Wilma Stuart gave birth to dark-skinned twins. DNA tests showed the hospital had mistakenly mixed sperm from her husband with that of a black man from the Dutch Antilles. She kept the twins. & Send your answers to: respond@science-spirit.org www.science-spirit.org science &spirit 29