Shaping Health Policy Through Nursing Research American Association of Colleges of Nursing October 28, 2007 IOM / ANF / AAN Distinguished Nurse Scholar Program 2006-2007 Ada Sue Hinshaw PhD, RN, FAAN Professor, School of Nursing University of Michigan Science Shaping Health Policy When are science and research most valuable for health policy makers? When are science and research least likely to be used in policy-making? What are the characteristics of research that facilitate health policy makers use of the information? What are the facilitating factors and barriers to the use of research in policy? What is Health Policy? Authoritative principles and decisions making up social programs of institutions, associations and / or local, state, national and international governments—intended to direct health-related actions, behaviors and / or resource distribution Science Shapes Health Policy: One of Many Factors Health Policy Cycle Model: From Talk to Action (Shamian, 2003) Moving Between Two Cultures--Policymakers on Researchers: – They take forever to answer simple questions, then late with results – This stuff they write-can’t understand it – Work in “ivory towers”-produce unintelligible recommendations – Always hedging-can’t get a straight answer – Don’t answer the questions I thought I ask Policy Makers on Researchers: (cont’d) Why make such ridiculous assumptions? They have biases, like everybody It takes a long time to educate them—then they go off and research something else Take little responsibility for the implications of their findings I don’t trust them (Helms, 2007) Researchers on Policy Makers: Don’t ask researchable questions Don’t accept uncertainty or realize that reducing uncertainty costs money Don’t appreciate the influence of “publish or perish” on my life Want unrealistic turn-around for results Researchers on Policy Makers: (cont’d) Expect me to drop everything and deliver results for policy input Want “bottom line” answers to take them off the policy hook Can’t be trusted with results; they may misinterpret or misuse my results (Helms, 2007) IOM / AAN / ANF Scholar Study: Science Shaping Health Policy Purpose: To explore how science shapes health policy and more specifically how nursing research shapes health policy General Questions: Science Shaping Health Policy When in the policy making process, are science and research most useful? What characteristics of the science or research make it most useful? When are science and research least likely to be useful in policy making? Interviewed 15 well known, recognized health policy influencers in Washington DC area who are leaders of organizations with health policy agendas When are science and research most valuable for policy making? Policy Influencers Suggest: Time of disagreement-to resolve conflict and “save face” Times of chaos—need to solve a major problem and provide direction Substantiation for a previously held position When there is a “window of opportunity” or policy receptor for the results Helpful Characteristics of Research: Credibility of research Information is clearly presented in understandable lay terms Data is provided in quantitative mode Results give clear suggestions for actions to be considered Findings are framed in a policy context When are science and research least likely to be used in policy making? Policy Influencers Suggest: Information does not address critical public health issues Not a “window of opportunity” for the information Times when strong values and beliefs are held by policy makers Hidden agendas in policy situation Specific Questions re. Nursing Research Shaping Health Policy An Exploratory Study Semi-structured phone interviews of 23 Principal Investigators funded on Competing Continuation awards by NIH / NINR. Stratified random sample of 32 from 109 such awards from 1986 to 2006. Sample response rate= 72%. Specific Nursing Research Questions: (cont’d) Content analysis of responses by question for recurring themes. Themes determined by frequency of responses PIs ask their perception of the level of influence their research had on shaping health policy on a 1 to 5 scale with 5 being high. Perceived high influence was 3-5 with 16 PIs. Perceived low influence was 1-2 with 7 PIs Presentation focuses on: Nurse PI’s responses to four questions: – Characteristics of their nursing research that facilitated shaping health policy? – External factors that assisted their nursing research in influencing health policy? – Barriers that limited their nursing research shaping health policy? – Ways the PI’s nursing research has shaped health policy? Table 1 Characteristics of Nursing Research Shaping Health Policy Addresses major public health issue Research of interest to multiple disciplines & audiences – e.g. federal / state agencies & industry Interdisciplinary team of investigators with multiple bodies of knowledge – enriches results Table 1 Characteristics of Nursing Research Shaping Health Policy (cont.) Research focused on clients (patients), families & communities – tracing important safety outcomes Research integrates complexity of health issues, e.g. focuses on merger of biobehavioral concepts & indicators Table 2 Factors that Facilitate Nursing Research Shaping Health Policy Based in strong supportive research university environments Partnered with multiple disciplines – visibility and access to diverse networks for dissemination Timeliness of research in informing major health issue – “window of opportunity” Strong visibility by public & colleagues through media attention, marketing, Congressional testimony, etc. Table 3 Barriers to Nursing Research Shaping Health Policy •L Lack of Congressional interest – No “window a of c opportunity” k Research not focused on major health concerns o f Lack of economic outcomes – Need “reasonable” benefit / cost estimates Lack of visibility of research to broader public & policymakers Table 4 Ways of Shaping Health Policy Through Nursing Research (In Frequency Order) Informed local practice – Acute Care Organizations Informed national health guidelines and standards; e.g. – NQF documents – CA pain guidelines – Ambulatory guidelines for UI Shaped health science policy Table 4 (cont...) Ways of Shaping Health Policy Through Nursing Research Shaped national health policy; e.g. federal agencies, Congressional testimony, IOM citations Informed state health policy Informed international health policy – Shaped national practice safety alerts; e.g. UK, Australia Broad Themes: Need for education of Principal Investigators in terms of health policy Need for a “Broker” system for moving research into health policy Examples: Nursing research shaping health policy at multiple levels; institutional, state, national and international. Proper Placement of a Gastric Tube: pH as an Indicator (Metheny, 2001) Purpose: To assess the proper placement of feeding tubes by measuring the pH of secretions aspirated from the tube Results: 70% gastric secretions in pH range of 0 to 5 99% respiratory secretions are a pH of 7 or more Recommended: Test for correct placement using a pH of 0 to 4 Practice and Institutional Health Policy Influence: Recommended pH test adopted as new standard: – In practice policies in health care agencies – In clinical textbooks for nursing Urinary Incontinence: Improving Control (Dougherty and colleagues, 2002) (Sampselle and colleagues, 2000) (Jirovec and Temple, 2001) Behavioral Interventions: Pelvic Muscle Training Biofeedback Scheduled Voiding Bladder Training Nursing interventions advanced to prevention strategies. Practice and Professional Association National Policy: Translation study with behavioral strategies conducted in 21 ambulatory women’s health clinics Taught over 900 women post childbirth the prevention strategies Strategies built into agency practice policies and sponsored by the professional association Challenge: With older women and men the behavioral strategies are less effective. Use of scheduled voiding requires caregiver-time intensive so often not practiced. End of Life Care: Reducing Family Stress (Tilden and colleagues, 2001) Purpose: Increase family control through advanced directives and decrease family stress Results: Significantly less family stress and more comfort with grieving when advanced directives completed prior to end-of-life Health Policy Implications Incorporated in RWJ Foundation “Last Acts” campaign – “You can Lift a burden from those you love—use advanced directives” – Results part of Oregon Report Card: Improving Care of the Dying Nurse Staffing and Patient Outcomes (Aiken & colleagues, 2002) (Needleman & colleagues, 2002) Nurse Staffing and Patient Outcomes: Over 81 studies document positive patient and nurse outcomes with adequate nurse staffing and positive work environments. (IOM, 2004) Practice and Policy Implications: Built into ANA Credentialing process for Magnet Hospitals Used to develop state legislation on nurse/patient ratios Quoted extensively in IOM reports on positive work environments for nurses and patient safety Moving Between Two Cultures!