Self Management
Programme
for people with long term
neurological conditions
Patient Information Leaflet
What is Self Management?
Self management is about people that are living with a long term condition
being in control of their own lives.
It supports you by helping you to access the information and skills you need
to manage your condition better and your overall health and wellbeing.
What are the benefits of Self Management for me?
Self Management can put you in control of your life, helping you to make the
decisions that are right for you.
It can mean you;
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understand your condition better
manage your symptoms more effectively
are more confident in dealing with professionals
are better supported when you need it
develop your own resource (self management pack) that builds all the
information into one place
Who is the programme for?
The programme is for adults living with a long term neurological condition,
apart from those with a diagnosis of stroke or dementia, and their carers.
How long does the programme last?
The programme runs for six weeks, one module per week for 2 ½ hours.
Where is the programme run?
The programme is run at various community venues within Gateshead, South
Tyneside and Sunderland.
How much does the programme cost?
The programme is free of charge. Travel expenses can be paid and light
refreshments will be provided.
What can I expect?
The modules are run in a safe, supportive environment with approximately 16
people attending, your carer can also attend with you.
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The six modules are;
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My Story
Making Choices
- Personal Budgets
- Advocacy
Understanding My Condition Better
Improving Confidence
Healthy Living
- Exercise
- Education
- Employment
- Leisure
Accessing Timely Information (when you need it)
Each module will include a mix of presentations by local experts and
clinicians, and group work, but no-one will be put on the spot. You will also be
provided with a self management pack and help on how to use it will be
included throughout the six weeks.
What is expected of me?
The programme runs for six weeks, although attending every module would
be of benefit, you can choose to attend the modules that you feel are most
beneficial to you.
How do I get involved?
You can be referred to the service by
• your GP
• a health professional or social worker
• your carer
• self referring – see telephone number and email address at the end of this
leaflet
You will then be given an appointment with one of our clinicians to discuss
your needs.
Interpreters
If you would like an interpreter, this can be arranged prior to your
appointment.
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Travel information
Contact Nexus Traveline: Tel: 0871 200 22 33
Website: www.traveline.info/
References
• The Health Foundation Inspiring Improvement; ‘Helping people help
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themselves; A review of the evidence considering whether it is worthwhile
to support self-management’ May 2011
Department of Health; ‘Supporting people with long term conditions to self
care: A guide to developing local strategies and good practice.’ February
2006
http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/Publication
sPolicyAndGuidance/DH_4130725
The Scottish Government; ‘My Condition, My Terms, My Life - Living
Better with Self Management’ http://www.myconditionmylife.org/info/
What if I have a comment, suggestion, compliment or
complaint about the service?
If you want to make a comment, suggestion, compliment or complaint
you can:
• talk to the people directly involved in your care
• complete a feedback card, available on wards. Some areas of the
Trust have electronic feedback touch screens, staff can help you to
use these. Your feedback allows us to monitor the quality of our
services and act upon issues that you or your carers bring to our
attention.
• ask a member of staff for a feedback form, or complete on the Trust
website www.ntw.nhs.uk (click on the ‘Contact Us’ tab)
• telephone the Complaints Department Tel: 0191 245 6679
Useful contacts
• North East Neurological Partnership (NENP)
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www.nenp.org.uk
This website has a wealth of up-to-date research and advice about
neurological conditions
Northern Neurological Alliance (NNA)
www.nenp.org.uk/nna.aspx
Information for people who have neurological conditions and their families,
carers and friend.
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NHS Choices – Your health, your choices
www.nhs.uk
Information about conditions, treatments, local services and healthy lives.
For further information
Please contact the team by calling 0191 287 5128 or email
selfmanagementprogramme@ntw.nhs.uk
Please note that information sent to the Trust via email is sent at your own
risk.
This is a free initiative. Home visits and out of hours meetings can be
arranged.
This service is delivered in partnership with NHS South of Tyne and
Wear and Northumberland, Tyne and Wear NHS Foundation Trust.
Further information about the content or production of this leaflet can be
obtained from the Patient Information Centre.
This information can be made available in a range of formats on request (eg
Braille, audio, large print, BSL, easy read or other languages). Please contact
the Patient Information Centre Tel: 0191 223 2545
Published by the Patient Information Centre
2012 Copyright, Northumberland, Tyne and Wear NHS Foundation Trust
Ref, PIC/540/1212 December 2012 V3
www.ntw.nhs.uk/pic
Tel: 0191 223 2545
Review5 Date 2014