AREGIVER 2014 Annual Report Because of You… Because of You ... Because of You ... Our Mission We're seeing our mission accomplished and our values carried out... To provide a place of respite for parents and guardians of children with special needs or life threatening medical conditions where they will be refreshed, restored and renewed in their role as caregivers. Our Values Respect We believe in the sanctity of human life and therefore will treat everyone with dignity and respect. Relationships We believe in the power of community. We will celebrate and foster connections between parents, parents and their children, parents with other parents, with God, and with our community. Compassion We are committed to serving with care and empathy. Empowerment We are committed to the principle of “Paying it forward! We believe with exposure to the right resources and the right people we can offer hope to one another. Excellence We are committed to offering quality Downstairs in Warren and Brenda’s basement are two blue chairs from the old New York Yankee stadium. A few days after David passed some dear friends, knowing his love for the Yankees, dropped off the chairs. Inscribed on the back was a plaque that contained a verse that described David’s incredible faith: “I have fought the good fight, I have finished the race, I have kept the faith.” 2 Timothy 4:7 It goes without saying that David finished his race well! Because of you, David, we are reminded to never give up! Your life and death have taught us that beauty can come from the most broken of circumstances. We are reminded of your words, “I keep doing things I can’t; that’s how I get to do them.” Because of you, innumerable families are being refreshed and renewed as they are reminded that they are not alone, that what they do matters, and that God loves them. service, in fact at times being accused of extravagance, in the execution of our mission. 1 David' s Refuge has changed the lives of over 150 families touchedby disablilty or illness. Dear Friends, It is hard to believe it has been over five years since David passed away. Who would have ever known that from the ashes of his disability and death something as beautiful as David’s Refuge would be be born? We often pause and ask ourselves what has been the secret of our success and growth. Without fail, the answer we always come away with is you! The real power of our success is a result of the synergy that takes place when people and communities work together for a common goal. Synergy is simply the creation of a whole that is greater than the simple sum of its parts. For the past three years friends, supporters, foundations, organizations, businesses, families, volunteers, children, schools, and artists have linked hands and hearts together to enable us to live out our mission. Together we have reminded caregivers that they are not alone, that what they do matters, and that they are loved by God. Brenda and I have had the privilege and joy of watching your individual contributions join with others to create the beauty and power of David’s Refuge. Because of you... we are truly making a difference. With Tremendous Gratefulness, Warren & Brenda Pfohl Co-Founders 2 Because of You ... An Innkeeper’s Perspective our partnering B&B' s and our compassionate hosts... Several years ago I had the privilege of hearing Warren share the story of how and why he and Brenda started David’s Refuge. As Warren spoke I could feel myself getting more and more excited until it was nearly impossible for me to stay in my seat and not wave my hands in the air and shout, “We have a bed & breakfast! We could offer our rooms!” I knew 10 Fitch wanted to be involved. We hosted our first David’s Refuge weekend in November 2013. To date we have hosted sixteen couples. The atmosphere is ideal for them to share their experiences, joys and challenges of raising a special needs child. We have been incredibly blessed to be a part of what David’s Refuge is doing. These couples have touched our hearts forever. They are amazing parents and caregivers! We have been so happy to serve them and love on them during their brief stay with us at 10 Fitch! Cheryl Barber Owner & Innkeeper 10 Fitch, Auburn, NY 10 Fitch, Auburn, NY www.10Fitch.com Geneva on the Lake, Geneva, NY www.genevaonthelake.com 1897 Beekman House, Dundee, NY www.1897beekmanhouse.com Hobbit Hollow, Skaneateles, NY www.thesherwoodinn.com Belhurst, Geneva, NY www.belhurst.com Mary’s Meadow, Cazenovia, NY www.marysmeadowbb.com Brae Loch Inn, Cazenovia, NY www.braelochinn.com Residence Inn Armory Sq., Syracuse, NY www.marriottsarmorysquare.com The Brewster Inn, Cazenovia, NY www.thebrewsterinn.com Springside Inn, Auburn, NY www.springsideinn.com Embassy Suites, East Syracuse, NY www.embassysuites.com Staybridge Suites, Rochester, NY www.staybridge.com 3 It was clear that every effort had been are making a difference in caregivers lives! made to provide a time of refreshment and joy. There were smiles and hugs squeals of excitement, a spread of yummy food,and games galore. The entire atmosphere reminded me of a big family reunion...and in so many ways it was! Because of You… Our hosts carry out the mission of David’s Refuge. We now have twenty-seven volunteer hosts that offer support and love. They understand firsthand the demands of caregiving, the loss of dreams, and the need for respite and self care. So often parents have a need to share their story with someone who has walked down a similar path in life. Our desire is to have a trained host, who has walked a similar journey, readily and unobtrusively available to every guest that stays at David’s Refuge. We have been where the couples that come to David’s Refuge are. We have been exhausted, worn out, feeling alone and misunderstood. We have been discouraged, frustrated, and depressed. But, we have also been loved, encouraged, and poured into! We now had a chance to give back to others what had been given to us, a lifeline, connecting us to the channel of God’s life-giving love. AR EG IV ER C AR IN G FO R TH E C Kevin and Melissa LincK 2014 NNUAL 4 Because of You ... Moms and Dads are being restored,parents are connecting... In addition to their weekend, moms and dads are connecting through our: wValentine’s Date Night Dinner wParent Night Out Program wLabor Day Picnic We don't have too many opportunities that make us feel comfortable enough to venture out knowing there won't be stares and glares - let alone fun and food. . Thank you from the bottom of our hearts for giving us that opportunity. It was an awesome gift! Because of You… 5 and creative giving is taking place. David’s high school Senior Ball date and friend organized a concert benefit at Hendrick’s Chapel in The BEE Council at Fayetteville Elementary July. Leah and Asherah presented a beautiful perfor- partnered with David’s Refuge in 2014 to teach students the importance of giving back. Through mance with donations going to David’s Refuge. service projects, Lemonade Stands, Walks, and a Pasta Dinner they have raised over $2,000! The 4th of July parade in Manlius, NY was the surprise location for a David’s Refuge Flashmob Dance. The goal of the organizers was to raise awareness. Beak and Skiff was the location of our first fundraiser, A Taste of David’s Refuge. It was incredible to see how our community came together in support of families with special needs. Over $60,000 was raised through this event. 6 A Ta ste of Because of You ... OUR VOLUNTEERS Kendra Anderson Beak & Skiff Staff Bob Baker & Lorrie Mott Anne Brandolini Doug Bullock Kelley Burt Asherah Capellaro Kristi Case Melissa Case Mike Case Sue Case Tom & Terri Case Amanda Cavanaugh Deborah Cavanaugh Jason Cavanaugh Jess Charboneau Mark & Pat Charboneau Derek Cole Cecilia D’Alberto Mark & Bethany D’Alberto Randy Denton Joe DiMartino Gio Dolbear Kyle Dolbear Shawn Dolbear Amanda Duval David Edsall Jacquie Edsall Our committed team of volunteers ensures that we care for the caregiver with excellence. *Jeff & Janelle Fields Terry & Theresa Finley Wes Fleming Steve & Lis Fournier Nancy Frakes Jim & Shari Freyer Paige Freyer Steve & Lindsey Fuller Kent & Joy Gillis Katie Golbrick *Dewey & Gloria Hakes *Eric & Daidra Hamlin Mark & Janine Haun *Steve & Gail Healy Liz Heffron Jerry & Nancy Hinds Jenny Hopper Shirley Hurlburt Phil Johnston Ken Kaiser Dave Kerwin Gerard Kropf Paul Kwoyelo Kirk LaSalle Audrey Lauren Rory Lawrence Maddy Lee Phil LeRoux *Kevin & Melissa Linck Lisa Lowenberg Richelle Maki Adam Mastroleo Elizabeth McBroom *Gerard & Lori McCrohan Kelly Melfi Leah Melfi Dave Meyers Jo Millard Dennis & Maureen Murphy Mike O’Brien Jill Olmstead Annalise Paddock Autumn Paddock Donna Paddock Beth-Ann Pervetich Jennifer Petrie Chris & Brittney Pfohl Dan & Katie Pfohl *Joe & Michaela Pfohl Ruby Pfohl *Warren & Brenda Pfohl *Wendell & Maryann Pfohl Carrie Pipes Ella Pipes Nora Pipes Sue Plemons Michael Reed Mike Reff Bill Reichardt Chris & Lori Rhoads 7 Ian Rhoades Donna Richards *Dave & Karen Richardson Tim & Sharon Robinson Rich Rossetti *Dan & BrandiLee Schafran Kendrick Schnell Erica Searles Tom Sharkey Ashley Shayya Karen Shield Alexandra Sibert Samantha Sibert Dave Smith Kristen Sparling Levi Spires Elisha Stasko Suitida Sukkrasae *Hal & Careen Talbot Amanda Tewksbury Matt & Maria Trexler Krystal Tyrrell Noah & Kailyn VanNorstrand Doug & Dean Virgil Emily Virgil David Wallace Lisa Wallace Stacy Wanamaker *Fred & Ellie Weir *Margot Wibbe Dave Wilchek Kiersten Wilkinson Logan Wilkinson Rich & Barb Wilkinson Carol Williams Jon Wright Sarah Wright *HOSTS: Trained individuals who have walked a journey similar to our guests who help carry out the mission of David’s Refuge. Thank You David and Jacquie This was our first David’s Refuge picnic and we loved it! Our son kept saying it was the best picnic ever and asking when we could go back again . Thank you to the many, many volunteers who did an amazing job! ! David Edsall and his sister Jacquie not only regularly assist in our mailings, they shop for, prepare, and deliver all of our guests’ gift baskets! In addition, they pick up and deliver our flowers each weekend. They have faithfully served as key volunteers for the past three years. We could not be more thankful for this incredible volunteer team for all they contribute to making David’s Refuge work. P lease share with your volunteers how much events like these mean to folks like us! What they do matters so much! 8 Because of You ... FOUNDATIONS Our network of support has continued to grow. Manlius Lions Club North Area YMCA Aiello Family Charitable Trust AXA Foundation BUSINESSES Barney II Foundation 10 Fitch Easter Foundation 1897 Beekman House The Gifford Foundation The Jim and Juli Boeheim A.T. Walley & Co. Advantage Chiropractic & Foundation Wellness The Kara Fund Amazon Smile Sacred Works Inc. Anyela’s Vineyards Tresness Family Foundation Backyard Garden Florist Bagels and Cakes ORGANIZATIONS Balloons & Blossoms Auburn Police Union Local 195 Balloons Restaurant Baldwinsville Teachers’ Beak & Skiff Association Bella Cigna Bay Presbyterian Church Belmark Inc. Dairy Farmers Of America Bonefish Grill E. John Gavras Center Bottar Leone, PLLC East Area Family YMCA Brae Loch Inn Eastern Hills Bible Church Caribou Apps LLC Fairmount Community Church Cayuga Lake Wine Trail UCC Cazenovia Jewelry Fayetteville Elementary B.E.E. Center For Development, Council Behavior & Genetics Fayetteville Elementary Faculty The Cheesecake Factory Fund Clay Eye Center Fayetteville Elementary HSA CNY Diagnostic Imaging L. Pearl Palmer Elementary Colgate University School D.I.G. Construction, LLC Law Enforcement Officers Dave and Buster’s Dave’s Diner DeFrancisco & Falgiatano Doughtety’s Party Services Eastern Mountain Sports Embassy Suites Eva’s European Sweets Fair Tax America, Inc Four Seasons Golf & Ski Center Geneva On The Lake Gertrude Hawk Gilda’s Haylor, Freyer & Coon Heckled Hen Hiscock & Barclay, LLP Hobbit Hollow Farm John C. Rossi Attorney at Law Johnston Paper Justin’s Tuscan Grill KBM Management, Inc. Keurig Key Bank National Association Klepper Construction Inc. Koto Japanese Steakhouse L. & J.G. Stickley Lakeland Winery Lincklaen House Liverpool Village Animal Hospital M&S Desktop Publishing Manlius Jewelry and Repair Mary’s Meadow B&B 9 Mirbeau Inn & Spa The Mission Restaurant New Hope Mills Oak & Vine Olive on Brooklea Outerwall Pediatric Cardiology Associates Peter Fauth, DMD Ports Cafe Prima International Trading Ruby Tuesdays Shalestone Vineyards Sherwood Inn Simmonds, Brady and Loi Sno Top SpaZend Starbucks Sun Auto Warehouse Sun Chevrolet SweetFrog Syracuse Opera Syracuse Stage Syracuse Yacht Sales DeWitt Turkey Hill Volpe Salon & Day Spa Wegmans DeWitt INDIVIDUALS Peg Ackley George & Bev Adams Reggie & Elsie Adams Adrienne Allen Paul & Laura Alvarez Chris & Kendra Anderson Peter & Maureen Anderson Ron & Diane Anderson Larry & Sharon Apgar Cory & Lisa Baclawski George & Kathleen Baier Mary Bailey John & Emily Balian Mike & Pam Ballman Tony & JoAnne Barbetta Brian & Kristen Barnhart Jim & Dana Barr Bill & Maria Barrett George & Miriam Barrows Richard & Etta Bates Bruce & Carol Bell David & Betsy Bell Jeb & Susan Bell Richard & June Bender Brian & Andrea Benz Renate BeVard David & Rodie Blanding Jody & Janet Bleier Doug & Lou Bombard Robert & Barbara Borkowski Sean & Lynn Branagan Anne Brandolini Matthew & Beth Brazill Don & Carol Brooks Wilma Brownback Travis & Jess Bruneau Dale & Elaine Buchberger Craig & Carol Buckhout Tom & Helen Bugaj Doug & Laurel Bullock Ruth Burnham Doug & Paige Burns David & MaryEllen Canino Bruce & Linda Cannon Jerry & Jane Case Tom & Terri Case Paul Casper Julie Causton-Theoharis John & Nancy Centra Donna & Robert Cerza Gerin Chapman Tim & Gail Cipiti Karen Clark Thomas & Joan Clark Joyce Cleary Matthew & Heather Cleary Louis & Carol Contiguglia Joe & Linda Cook Jackie Cornue Frank & Susan Coughlin William & Kathleen Cowmey Bob & Sue Crichton Janine Cross Mark & Mary Currell Jack & Linda Cushman Murray Daitchman Grace Daloia Mike & Lisa Daly Peter & Michelle Daly Michael Damiano We have loving nurses in our home 24/7 for our medically fragile daughter, Giana . My husband and I are so busy managing her care along with keeping up with her three busy brothers that we are often like ships passing in the night. To have a weekend to breathe, sleep in and be completely spoiled was such a blessing to us! The other special needs parents we met there were so lovely ; we left with new friends! THANK YOU from the bottom of our hearts. . Your mission is truly being met. We returned home refreshed, renewed, and restored! ~ Rob&Dana 10 Bill & Susan DeBlaay Teresa Dec K. F. DeParde Sean DeRosa Peter & Tamie Derrenbacker Bruce & Lynn Dew Molly Diaz Brian & Lisa Dimiceli Kim Discenza Don & Maria Doerr Shawn Dolbear Nienke Dosa Kimberly Doto Martin & Mary Doto Jeffrey & Robin Dudden Alanna DuFrain David & Dorthea Eddy Ahmad & Elizabeth El-Hindi Ralph & Mary Anne Estrich Michael & Ellen Everly Anthony & Cyndi Farrare Denise Pat Feeley Joanne Field Jeff & Janelle Fields Nathan & Haley Fields Jonathan Fischi Liz Fisher Steve & Lis Fournier Nancy Frakes Cyril & Ellie Freeman Jim & Shari Freyer Kristel Frimpter Adam & Kelly Fumarola Diane Galko Heather Galko Jacquie Gallagher Terri Geariety Jeremy & Barb Gilbert Lewis & Susan Gilbert Pat & Rebecca Gilkey Kent & Joy Gillis Mark & Dara Gillis Rick & Kara Glowaki James Godleski Kasia & Daniel Gonciarz John & JoAnne Grandinetti Donald & June Green Because of You ... We are becoming a significant and important part of our community. Mike & Marlene Green Denis Gregoire & Nataly LePage Bob & Eva Gregory Linda Hafner Tim & Kellie Haithcoat Dewey & Gloria Hakes Eric & Daidra Hamlin Clayton & Peyton Hargrove Harold & Earlagene Harmer David & Amy Harris Perry & Kay Harvey Don & Janet Hathaway Mark & Janine Haun Bob & Cheri Hawkins Chelsea Hawkins George & Beth Hay Steve & Gail Healy Mark & Kris Hebert Bruce & Joy Heisinger Jon & Annette Henry James & Bethany Herr Lynne Hinkey Matt & Tina Hinkey Tom & Donna Hoag Chip & Lisa Hodgkins Thomas & Holly Hoehner Bob Hood Andrew Hopper Paul & Kate Houck Dave & Jean Hoye Mark & Cheri Hudson John & Karin Hunter Paul & Shirley Hurlburt Victoria Welder Hyatt Louis Iannettoni Ryan & Lauren Issakainen John & Dolores Jazwa Ken & Julie Kaiser Peter & Sandy Kane Cory & Dana Karanik John & Erin Keib Derek & Cynthia Kelder Paul & Betsy Keppeler H. Ezzat & Schatzi Khalifa Brian & Karla Killinger Elaine Kimpel Jack & Catherine King Dilip & Smita Kittur Mike & Brandi Kochian Lee & April Kresge Gerard Kropf Terry & Karen LaBeff Charles & Mary LaComb Kathy Lahey Joan Lamson Guy & Barbara Lawrence Mark & Rory Lawrence Carolyn Lemens Phil & Jayne LeRoux Martin & Nancy Levine Bev Lewis Russell & Nancy Lewis David & Janice Liddell Kevin & Melissa Linck Alan & Ann Lincoln Robinson & Emma Lingo Shamus & Dolores Loftus Joyce Lyons Guy & Dawn Mackenzie Bruce & Chris Maether Todd & Cindy Magnuson Jeffrey & Joanne Maloff 11 Jeff & Edna Manzo David & Caryn Marr Edward & Mary Maruszczak Adam & Jillian Mastroleo Phil & Susan Mastroleo Mike & Robin Maurer Elizabeth McBroom Gerard & Lori McCrohan John & Sue McCullough Annette McDonald Tom & Jackie McHaffie John & Yaroslava McNamee Sylvia McSwain Luann Mehallow Andreas & Maggie Meier Jerry & Anne Menter Mary Mero Patricia Messina Ann Messineo Ralph & Debbie Mingolelli Rich & Susan Mirra Brigette Misuraca Jim Mitscher Greg & Patty Mohr Jeff & Aileen Monroe Jack & Barb Monson David & Zoryana Moreau Charles & Elaine Morgan Daniel Morris Mary Mosca Tom & Karen Mullarney Jeff & Bitsy Namy Donald & Linda Napier Diane Nappa Bruce Nash Bob & Madelyn Nethercott Andy & Meghan Newhouse Douglas & Denise Nolan Mary Pat Oliker Leah Page Michael Paglia Robert Parke Tim & Bernice Paventi Sal & Sherene Pavone Jim & Cindy Pergolizzi Christopher & Patricia Perry Demetrius & Julia Petrow Denny & Lois Pexton Chris & Brittney Pfohl Dan & Katie Pfohl Pat & Randee Pfohl Walter & Ann Pfohl Warren & Brenda Pfohl Wayne & Joann Pfohl Wendell & Maryann Pfohl Rod & Sue Plemons John Potter John & Marcia Prall Susan Pratt Virginia Pratt Amy Quonce John & Hillary Raymond Linda Raymond Mike & Laura Reff Donna Retz Mike & Chris Reyna Donna Richards Dave & Karen Richardson Bruce & Cathy Robinson Kimberly Roden Joseph & Jennifer Roos Rich & Sandy Rossetti Ric & Pauline Rothschild Robert Rowan Rich & Judy Ruch Mike & Doreen Rufo Andy & Lori Russo Alan & Nora Ruthig Josh Safran Lynn & Sandra Stearns Matthew & Katherine Saufley Ted & Sally Scallon Dan & BrandiLee Schafran Glenn & Mary Schmidt Kendrick & Pam Schnell Guy & Lynn Scott Larry & Pam Scripa David’s Refuge is a Godsend. It gave us the time we needed as a couple to reconnect. We have come to understand that our stress can be passed onto our children. Respite for the two of us is so very important for ALL of us. We have felt so loved and comforted this weekend at David’s Refuge. Thank you for the hope and healing you have given us! Matthew & Anne Scuderi Jamie & Cheryl Seale Derrek & Kristen Seamans Jim Shea Dave & Marge Shepherd Jim & Linda Shields Wes & Barb Skinner Peter & Kay Snyder Bill & Jeanne Sokolowski Elizabeth Spechini Mike & Pam Spirko Chris & Marilyn Spurnar Kimberly Staab Leonard & Marilyn Stiver Brian Strnad Ken & Janie Stvan Sermsak & Suitida Sukkrasae John & Stephanie Sumislawski Terry & Alyson Summers Mark & Renee Sydorowych Ron Szyjkowski & Kelley Kelly Harold & Careen Talbot Edwin Tanaka Terry & Debbie Taube Richard & Kelly Taylor Mark & Lori Teaken Ron & Carol Terjung Micheal & Wendy Thomas Anna Toole Bob & Karol Toole David & Kathy Tooley Jeremy Touranjo & Amy D’Ambrogio Gary & Diane Tranberg Bill & Joanne Underwood Christine Vadala Noah & Kailyn VanNorstrand Doug & Dean Virgil Bruce & Sandy Virkler Azra & Aaron Vlasak David & Laurie Walker Tom & Lisa Wallace John & Stacy Wanamaker Fred & Ellie Weir Larry Weiskirch & Deborah Tobin Joe & Elyzabeth Wengert Eugene West David & Pat Widrig Rich & Barb Wilkinson Theresa Williams Michael & Jennifer Williamson Judy & John Winslow Robert & Jennifer Winter Jim & Natalie Wismar Gary & Jeanne Woodward Andy & Chris Young Daniel & Kim Young Because of You ... We can proudly demonstrate our growth and stablity... Rich Cash & Cash Equivalents Other Assets $405,844 $5,077 Total Assets $410,921 Current Liabilities Donna Warren Brenda Warren Pfohl President, Executive Director Adam Mastroleo Vice President, Attorney, Bottar Leone, PLLC Kent Gillis Treasurer, Retired Chief Financial Officer $4,832 Brenda Pfohl Secretary, Operations Director Maryann Pfohl Director, Direct Support Professional, Access CNY Equity $389,119 Unrestricted Funds Temporary Restricted Funds $16,970 Total Liabilities & Equity Donna Richards Director, Teacher of theVisually Impaired, Fayetteville-Manlius Schools $410,921 Adam How Your Partnership Dollar Was Spent in 2014 Maryann Rich Wilkinson Director, Occupational Therapist, Syracuse City Schools Kent The Growth of David's Refuge 500 441 400 282 300 82.6% Programs for Caregivers 9.2% 8.2% General Administrative 200 100 Fundraising 0 43 52 159 32 Families Served 2012 13 118 100 303 Volunteers 2013 Donors 2014 and we have grown our staff to enable us to look beyond today and dream of our future! Last year, Rory Lawrence joined the David’s Refuge team as our Guest Relations Manager. She has continued to use her knowledge and experience to double the number of families served in the past year. Now, in 2015, we have hired Kate Houck as our Development Director to continue our mission and expand our resources. Below, Kate writes about her professional and personal journey that brought her to David’s Refuge. I am thrilled to join the team at David’s Refuge and work to carry out the mission of Caring for the Caregiver. Providing respite to parents and raising awareness about the incredible work of a Caregiver is needed in our community. My goal is to ensure this service is available to families who need it in the greater Syracuse area and beyond. ck Rory & M ark Lawre nce This new position comes after a ten-year career and various development and management positions within the Muscular Dystrophy Association. In my tenure, I met wonderful people and learned the true meaning of strength, compassion and hard work! I grew up near Rochester, NY but now live in Fayetteville, NY with my husband Paul and our two children, Nathan and Leah. I am honored to be a part of this wonderful organization and begin this new chapter of my life as the Development Director for David’s Refuge. ou Kate & Paul H Kate Houck Development Director 14 C A R IN G FO R TH E C A R EG IV ER Thank you for your partnership 2014 ANNUAL REPORT Because of Yo u…