Issue 18 June 3, 2013 Dishing with the Maine Eating Disorders Learning Collaborative Sadness and Disappointment Over Maine’s Proposed Eating Disorders Bill OR Louder! They Can’t Hear Us! This Newsletter Brought to You By Mainely Girls PO Box 793 Rockport, ME 04856 (207) 230-0170 mainelygirls2@gmail.com www.mainelygirls.org Mary Orear Executive Director Mainely Girls Project Director The Eating Disorders Learning Collaborative (EDLC) EDLC Clinical Advisory Board Francine Blattner, MD Mary Orear Debbie Pepper-Dougherty, RD, LD Sandy Picard, FNP Jennifer Walker, LCSW Like us on Facebook! facebook.com/MainelyGirls Logo Design Antoinette Santos . An Editorial Opinion We all know the basics: no vitamin or inoculation exists to prevent eating disorders; they often start during middle or high school; few parents are aware of the warning signs that would allow for early intervention and increase the chances of complete recovery. So when a group of us learned, through the National Eating Disorder Association’s STAR program, that the state of Virginia had passed a bill requiring schools to send home eating disorders information yearly to parents, we supported it as a sensible, low-cost, convenient way to educate parents and increase the chances of early intervention for children and adolescents. Senator John Tuttle of Sanford, a long-time supporter of eating disorders efforts, wrote and sponsored the bill. The Joint Standing Committee on Education and Cultural Affairs gave us only one week’s notice before the hearing was held, very little time for people to rearrange their schedules so they could attend. NEDA sent out an Action Alert to their Maine members, and Mainely Girls forwarded it to our lengthy list of treatment providers, encouraging people to attend and speak in favor of the bill, or to email their legislators. Only Senator Tuttle and Stephanie Pinette were able to be there, and Stephanie did a terrific job! Thank you, Stephanie! And thanks to Senator Tuttle for writing and sponsoring this legislation, and to all who sent emails on this bill. Though none spoke against the bill, the Committee did not pass it. What lessons can we learn from this? Eating Disorders Association of Maine (EDAM), the NEED Program, NEDA, Mainely Girls, the as well as college health centers and women’s health centers across the state need to develop a louder, stronger, united voice in Augusta. We all need to show up and speak up! And we can start…NOW! Email or call members of the afore mentioned committee; express your dismay with their decision! (You can easily Google a list of their names and emails.) It’s a sad day when common sense legislation that has no price tag attached and would greatly benefit our state’s children and adolescents is voted down like this was. And, we can’t submit similar legislation again for two long years, not until 2015. Page 2 D I SH IN G W IT H TH E MA IN E EA TI N G D I SO R D ER S L EA R N IN G C O L LA B O R A T I V E Eating Disorders Support Groups THE FEMALE ATHLETE STRATEGIES FOR OPTIMAL HEALTH AND PERFORMANCE ******************* Cultivating Balance Saturday, June 8th and Sunday, June 9th Eating Support Group Fridays 4:30 to 5:30 pm Sponsored by Cultivating Balance and located at Art of Awareness 813 Broadway South Portland Free and open to all who struggle with disordered eating, eating disorders, or just want to improve their relationship with their bodies. FMI email cultivatingbalanceforyou@ gmail.com 207-332-9003 Babson College ~ Wellesley, MA The 2013 Female Athlete Conference will provide participants with cutting edge strategies for treating and preventing common physical and psychological sports health concerns. Clinicians, coaches, athletes, parents and trainers are welcome. Topics include Female Athlete Triad Update In Shape: Strategies for Improving Body Image in Athletes ACL Injury Prevention and Research Effective Coach Communication Presented By The Female Athlete Program The Department of Sports Medicine at Boston Children's Hospital The Eating for Life Alliance (ELA) Sponsored By Timberline Knolls Residential Treatment Center Babson College ********************* Midcoast Center for Weight & Lifestyle Change Brunswick, Maine For long-term weight loss and overall better health. 17 years of age or older. 406-7446 ********************** PREPARING TO FLEX OUR ACTIVIST MUSCLES FOR OUR PATIENTS– S 562 The Missing Peace for Eating Disorders This week Team Member Ellen Grunblatt contacted me about a major concern: The Maine Legislature's Appropriations Committee decided to bar LCPCs and LMFTs from providing services to dually eligible clients, that is, those with both MaineCare and Medicare. Above & Beyond Wellness for Women Manchester, ME Contact sandy@missingpeaceforwom enshealth.com Support for Caregivers of those with Eating Disorders Caregiver Conference Call Classes - 6-weekly 1 hour phone sessions for parents and others who care for those with eating disorders. http://hopenetwork.info/progr ams-and-services/eatingdisorders-tele-classes/ The decision is based on an obsolete Federal rule regarding Medicare coverage which failed to include LCPCs and LMFTs as providers. It’s too late to change the recent Maine Appropriations Committee decision, but Senator Susan Collins is co-sponsoring a bill in Congress that would correct this for all the states: S562. updates: http://www.amhca.org/news /detail.aspx?ArticleId=627. And the Maine Mental Health Counselors Association also has background and suggestions Soon we need to lobby to get for advocacy: this bill passed at the Federal http://memhca.net. level – which will solve our For now, let’s educate Maine problem. ourselves and our colleagues, Jeri Stevens, another Team both in Maine and across the Members, is actively country, about this issue. ~ following this issue and says so that when the time comes to act, we’ll be ready. that The American Mental Health Counselors The solution is S562, and we Association has some good have to make sure it passes! background materials and D I SH IN G W IT H TH E MA IN E EA TI N G D I SO R D ER S L EA R N IN G C O L LA B O R A T I V E Eating Disorders Association of Maine (EDAM) Update We are excited about this new statewide association and what it can accomplish, and we invite all who would like to offer their services by joining the Board or volunteering on a committee to contact us. We’d love to have you participate! Page 3 Denver Bound? 5th Annual Eating Recovery Center Foundation Eating Disorders Conference Fri. & Sat. Aug. 23 & 24th. th Our upcomoing quarterly board meeting is on Wednesday, June 12 in Portland from 5:30 – 7:30. If you have any interest in learning more, you’re welcome to attend. Email me ahead of time for directions: mainelygirls2@gmail.com EDAM executive board members talked about the new organization at the May eating disorders conference in Freeport. A number of people signed up as professional members and received a tshirt, (printed and donated by Alice’s Guidi’s husband), with EDAM’s nify new logo. In addition, Ann Conley arranged for a raffle, with a large basket of items donated by Coffee By Design. Funds from both efforts will pay the filing fee to establish EDAM as a tax-exempt organization. In the coming months you will be receiving the first edition of EDAM’s newsletter and an invitation to join the organization as a professional member. Stay tuned! Explore the research, trends and emerging best practices shaping the field. Learn from and connect with the leaders who develop standards of excellence and drive innovation in the treatment of eating disorders. FMI and to register ~ EatingRecoveryCenter.com Self-Led Eating Weekend Intensive For Therapists, Nutritionists and Health Professionals (16 CEU's) *********************** Friday – Sunday, June 21 - 23, 2013 Concord, MA FMI: Email: alice.rosen@gmail.com Phone: (978) 369-1385 The Eating Recovey Center provides comprehensive treatment for anorexia, bulimia, EDNOS and binge eating disorder. A self-led approach to repairing one’s relationship with food and body to enhance your work with individuals who suffer from emotional eating. Under the leadership of Drs. Kenneth Weiner, Caris Johnson, Emmett Bishop and Ovidio Bermudex, the program provides a full spectrum of services for children, adolescents and adults and includes Inpatient, Residential, Partial Hospitalization, Intensive Outpatient, and Outpatient services. Self-regulated eating is eating with Calmness, Clarity, Confidence, Curiosity, Courage, a sense of Connectedness, Creativity and Compassion. This experiential workshop is an opportunity to internalize the essentials of a healthy relationship with food and body, and learn to guide others in the process. * You will experience a cellular understanding that the body is Self-regulating. * You will learn to differentiate nutritional from emotional hungers. * Using the Internal Family systems approach, we will practice working with "resistance" to eating when hungry, eating what one is hungry for, and stopping at satiety. We will use the model to witness and release "diet" managers and firefighters from their extreme roles. Cost: $320 (add $15 for 16 CEU if desired) plus $50 for "The Feeding Ourselves Method" CD package. Limited to 8 participants. Alice Rosen, MSEd, LMHC, who presented at May Eating Disorders Conference, has been working with the BED population since 1979. She is the founder of The No-Diet and SelfLed Eating Workshops and The Conscious Cafe. In an effort to increase patient access to care throughout the U.S., the Center partners with Summit Eating Disorders and Outreach Program in Sacramento, CA., and the Moore Center in Bellevue, WA. Page 4 D I SH IN G W IT H TH E MA IN E EA TI N G D I SO R D ER S L EA R N IN G C O L LA B O R A T I V E Aroostook County Road Trip Breaking News! Eating Disorders Public Service Announcement to be Filmed This July! Ari Meil, writer and media specialist at Maine Media Workshops phoned yesterday. All systems are in place for filming and editing of our eating disorders Public Service Announcement! We have a script, thank you Susan Kimball. We have an actor, thank you Ellen Domingos. We have a date and time, Thank you Ari Meil. We have a film and editing crew, thanks to Meg Weston, Maine Media Workshops President. If the weather cooperates, the filming will be out of doors in Rockport. We are set to roll! Does the Academy give an Oscar for best PSA? Actor Paten Hughes and I spent five days in “The County” in April, Paten performing Add Verb Production’s one-woman play, “The Thin Line,” to highly engaged audiences at five schools, while I discussed eating disorders with groups of health care professionals and parents. The bottom line is that parents, educators, and health care providers throughout the county have expressed the need of intensive eating disorders treatment training for area professionals. Several girls or young women have developed nearly fatal eating disorders in the last two years; the need to increase local treatment capacity and provide a more advanced level of care is acute. Mainely Girls is now partnering with Bill Flagg at Cary Medical Center in Caribou to make that happen. We will pursue funding to offer a three-day training for 60 or so mental health providers and registered dietitians in May 2014, with ongoing consultation and follow-up opportunities. A training for medical providers will also be offered. All this will be coordinated with an outreach effort to schools to help educators recognize signs and symptoms early on, when treatment is most effective. Paten and I are grateful to the Bingham Program and the Sadie and Harry Davis Foundation for funding out trip north, to Cathy Plourde and Ryan Bass who helped make arrangements for “The Thin Line,” and the too-numerous-to-name people in five towns who helped schedule meetings, spaces, food, and provided introductions. Paten and I were warmly welcomed and so enjoyed the openness and generosity that was offered us. (Paten remains disappointed, however, that she never did see a moose.) ****************************************** New Hampshire – Moving Right Along Our survey of NH treatment providers led to our survey report. (If you’d like a copy, please email your request to me at mainelygirls2@gmail.com.) This is being followed by a Stakeholders Meeting which is scheduled for Friday, June 28 at Plymouth State University. At the meeting we will review the project’s mission, discuss survey report findings; discuss stakeholders’ ideas regarding advancing eating disorders prevention, intervention and treatment; consider the possibilities for using telehealth/telemedicine for eating disorders treatment and professional mentoring partnerships; establish priorities; and identify attendees’ areas of interest and possible degree of future involvement in a Steering Committee. If you’d like to attend, please email me at the address above by June 5 th. ************************ ******************************************* Oprah tells us….More adult women are now developing eating disorders than are getting breast cancer. Something like 13% to 12%. (Oprah didn’t do the research, but she printed it in her magazine. May Eating Disorders Conference If you were there, you don’t need a review. If you weren’t there, you missed a very good conference! As always, the networking itself was worth the registration fee. And we certainly heard some excellent presentations from people who had a lot of knowledge and experience to share. Several attendees mentioned wanting full-day workshops by certain presenters in the future, and both Mainely Girls and EDAM will discuss that going forward. (Personally, I finally learned what Motivational Interviewing is and am convinced it’s a critical tool for all those working with eating disorders patients.) Thanks to all presenters, helpers and attendees!