5/22/2012 Psychiatric Nursing: Ready or Not… Recovery Here We Come Vanderbilt Psychiatric Hospital Thursday, May 24, 2012 Mary D Moller, DNP, APRN, PMHCNS-BC, CPRP, FAAN Associate Professor, Yale University School of Nursing Objectives 1. Compare the history of the recovery movement in psychiatry to the history of psychiatric nursing 2. Compare the principles and elements of recovery to definitions of nursing 3. Apply the psychiatric nursing process to the lived experience of patients who experience psychosis 2012-Mary D Moller 2 What Does Recovery Mean to You? • Take a few minutes and write down your personal idea/definition/thoughts about what recovery is. • Use any frame of reference— personal, professional, patient-centered, nursecentered 3 2012-Mary D Moller 1 5/22/2012 Early History of Recovery and Language • 1620: patients of the Bethlehem Hospital banded together and sent a "Petition of the Poor Distracted People in the House of Bedlam" to the House of Lords. • 1774: Samuel Bruckshaw published the "iniquitous abuse of private madhouses“ • 1796: William Belcher wrote his "Address to humanity”, • Moral treatment originated in part of of French ex-patient turned hospital-superintendent Jean-Baptiste Pussin and his wife • 1848: in England, the Alleged Lunatics' Friend Society campaigned for sweeping reforms to the asylum system and abuses of the moral approach • 1851-1860: in the United States, The Opal (1851–1860) was a ten volume Journal produced by patients of Utica State Lunatic Asylum • 1868, Elizabeth Packard, founded the Anti-Insane Asylum Society, published a series of writings describing her experiences in the Illinois insane asylum in which she was committed by her husband. 4 2012-Mary D Moller Clifford Beers • 1908-A Mind That Found Itself • 1909-Created The National Committee for Mental Hygiene with philosopher William James and psychiatrist Adolf Meyer – to improve attitudes toward mental illness and those with a mental illness; – to improve services for people with mental illness ; and – to work for the prevention of mental illnesses and promotion of mental health. • Later became the National Mental Health Association • Now is Mental Health America 2012-Mary D Moller Beers: http://www.tradebit.com/usr/ebook-reader/pub/9002/61362370002798822124065Pic.jpg 5 Significant Events Effecting Psychiatric Nursing 1940s, 50s, 60s • • • • • 1946-National Mental Health Act/NIMH 1952-Thorazine 1952-Hildegard Peplau 1962-One Flew Over the Cuckoo’s Nest 1963-Community MHC Act http://www.youtu be.com/watch?v =RGRD6JBnHr U NIMH: http://www.nimh.nih.gov/images/banner_nimh_logo.png Beers: http://www.tradebit.com/usr/ebook-reader/pub/9002/61362370002798822124065Pic.jpg Peplau: http://books.google.com/books?id=jKSKPQAACAAJ&printsec=frontcover&img=1&zoom=1 Cuckoo’s Nest: http://kkcchallenge.files.wordpress.com/2011/03/one-flew-over-the-cuckoos-nest.jpg Kennedy: http://www.museumofdisability.org/siteimages/newyork/timeline/1960_13.jpg 2012-Mary D Moller 6 Thorazine: http://www.mnddc.org/parallels2/prologue/4-drug_ads/drug5.jpg http://www.dhs.wisconsin.gov/mh_mendota/images/pactpict1.gif 2 5/22/2012 Peer Recovery Pioneers Sally Zinman, 1977 Judi Chamberlain, 1978 Pat Deegan, 1988 http://www.youtube.com/ 7 watch?v=jhK-7DkWaKE Joe Rogers, 1984 Mary Ellen Copeland, 1992 Esso Leete, 1989 2012-Mary D Moller http://www.recoveryxchange.org/M aryEllenCopeland.html Provider Pioneers (year of publications) John Strauss, M.D. 1973 William Carpenter, M.D. 1973 William Anthony, PhD. 1977/1993 Courtney Harding, PhD.1987 Larry Davidson, Leroy Spaniol, Moller 1994 PhD. 1992 2012-Mary DPhD. Mary Moller, RN JoAnn Wer, RN, 1989 Nora Jacobsen, PhD8 Dianne Greeley, MSW. 1994 Peer/Provider Pioneers Fred Frese, PhD, 1993 12 Aspects of Coping With Schizophrenia http://www.treatmentadvocacycenter.org/storage/ images/Portrait/fred%20publicity%20photo%20% 20%20apr%202009.jpg Daniel Fisher, MD, 1994 Health Care Reform Recovering From Schizophrenia National Empowerment Center www.Power2u.org http://www.recovery4all.org/Speakers.htm http://www.youtube.com/watch?v=RXmNEEpBXcs &feature=related 9 3 5/22/2012 Peer/Provider Pioneers Kay Redfield Jamison, PhD Elizabeth Baxter, MD 1995 http://ecx.images-amazon.com/images/I/41dbHhySWwL._SL160_PIsitb-stickerarrow-dp,TopRight,12,-18_SH30_OU01_AA160_.jpg Building Recovery of Individual Dreams & Goals through Education & Support (BRIDGES) was founded in 1995. http://jama.ama-assn.org/content/289/23/3071/embed/graphic-1.jpg 2012-Mary D Moller • • • • 10 Modern Recovery Stories Carol Kivler-MA-depression Eric Arauz-MA-bipolar, substance abuse, PTSD Gayle Bluebird, RN Mary E. Jensen, MA, RN, CRSS Eric: http://www.youtube.com/watch?v=9sQNx9zxXYE&feature=player_embedded#! Carol: http://www.youtube.com/watch?v=J-psYeKTUMo 2012-Mary D Moller 11 Original Consumer Definition Pat Deegan, 1993 To me recovery means I try to stay in the driver’s seat of my life. I don’t let my illness run me. Over the years I have worked hard to become an expert in my own selfcare. Being in recovery means I don’t just take medications, rather I use medications as part of my recovery process. Over the years I have learned different ways of helping myself. Sometimes I use medications, therapy, self-help and mutual support groups, friends, my relationship with God, work, exercise, spending time in nature—all these measures help me remain whole and healthy, even though I have a disability (p. 10). Deegan, P.E. (1993). Recovering 2012-Mary our sense of value after being labeled mentally ill. 12 D Moller Journal of Psychosocial Nursing and Mental Health Services. 31, 4, p. 7–11. 4 5/22/2012 Original Provider DefinitionWilliam Anthony, 1993 Recovery is – a deeply personal, unique process of changing one’s attitudes, values, feelings, goals, skills and/or roles. – a way of living a satisfying, hopeful, and contributing life even with limitations caused by the illness. – involves the development of new meaning and purpose in one’s life as one grows beyond the catastrophic effects of mental illness. Anthony, W. A. (1993). Recovery from mental illness: The guiding vision of the mental health service system in the 1990’s. Psychosocial Rehabilitation Journal, 16(4), 11-23. 13 Leroy Spaniol/Martin Koehler-1994 “Recovery is a process by which people with psychiatric disabilities rebuild and further develop important personal, social, environmental, and spiritual connections, and confront the devastating effects of discrimination through a process of empowerment”. Spaniol, L. & Koehler, M. (1994). The experience of recovery. Boston: Boston University Center for Psychiatric Rehabilitation. http://www.bu.edu/cpr/training/distance/seminars/images/leroys3.jpg 14 2012-Mary D Moller Nora Jacobson/Dianne Greeley-2001 • Internal and external conditions in understanding recovery. – Internal: hope, healing, empowerment, connection – External: human rights, positive culture of healing, recovery-oriented services Jacobson, N. & Greeley, D. (2001). What is recovery? A conceptual model and explication. Psychiatric Services, 52: 482-485. Nora Jacobson-U of Toronto- http://www.communitybasedresearch.ca/takingcultureseriouslyCURA/node/88.html Dianne Greeley-U of Wisconsin 15 2012-Mary D Moller 5 5/22/2012 Robert P Lieberman, MD Alex Kopelowicz, MD 2002 Operational criteria and factors related to recovery in schizophrenia 1. Symptom remission: score of 4 or less on positive and negative symptom items of BPRS for 2 consecutive years 2. Vocational functioning: at least ½ time successful employment in a job in the competitive sector or successful attendance in a school for at least ½ time over two consecutive years. If over 60 participating actively in recreational, family, or volunteer activities Lieberman, R.P, Kopelowicz, A., Ventura, J. & Gutkind, D. (2002). Operational criteria and factors related to recovery in schizophrenia. In, International Review of Psychiatry, London: Taylor and Francis, LTD. http://www.psychrehab.com/images/liberman-prc.jpg 16 http://dornsife.usc.edu/latino-mental-health/images/ak_photo.jpg Robert P Lieberman, MD and Alex Kopelowicz, MD 4 Operational criteria and factors related to recovery in schizophrenia 3. Independent living: living on one’s own without day to day supervision for money management, shopping, laundry, food preparation, personal hygiene, or need for structured recreational or avocational activities. Able to initiate own activities and schedule one’s time without reminders from family or other caregivers 4. Peer (Interpersonal-not other consumers)relationships: at least once per week having a meeting, social event, meal, recreational activity, phone conversation, or other joint interaction with a peer outside of the family 17 2012-Mary D Moller President’s New Freedom Commission-2003 • “We envision: – a future when everyone with mental illness will recover, – a future when mental illnesses can be prevented or cured, – a future when mental illnesses are detected early, and – a future when anyone with a mental illness at any stage of life has access to effective treatment and support… • the essentials for living, working, learning, and participating fully in the community.” Page 9 • http://govinfo.library.unt.edu/mentalhealthcommission/index.htm 18 2012-Mary D Moller 6 5/22/2012 Larry Davidson, et al, 2003 Recovery elements from the consumer view – Renewing hope and commitment – Redefining self – Incorporating illness – Being involved in meaningful activities – Overcoming stigma – Assuming control – Becoming empowered and exercising citizenship – Managing symptoms – Being supported by others http://www.psychologytoday.com/experts/larry-davidson-phd Davidson L, O’Connell MJ, Sells, D. & Staeheli MR. (2003). Is there an outside to mental illness? In. Living Outside19Mental Illness. Qualitative Studies 2012-Mary D Mollerof recovery in Schizophrenia. New York: New York University Press. SAMHSA, 2004 “Mental health recovery is a journey of healing and transformation enabling a person with a mental health problem to live a meaningful life in a community of his or her choice while striving to achieve his or her full potential” National Consensus Statement on Mental Health Recovery. (2004). United States Department of Health and Human Services, Substance abuse and Mental Health Services Administration. Rockville, MD. www.samhsa.gov/recovery 20 2012-Mary D Moller SAMHSA and Recovery: 10 Components, 2004 1. Self-direction 2. Individualized and person-centered 3. Empowerment 4. Holistic 5. Nonlinear 6. Strengths-based 7. Peer support 8. Respect 9. Responsibility 10. Hope National Consensus Statement on Mental Health Recovery. (2004). United States Department of Health and Human Services, Substance abuse and Mental Health Services Administration. Rockville, MD. 21 2012-Mary D Moller 7 5/22/2012 Larry Davidson/ David Roe, 2007 Two complimentary meanings: – Clinical improvement over time • Grounded in the medical model-recovery FROM mental illness – Person’s right to self-determination and inclusion in community life • Grounded in the consumer-survivor movementrecovery IN mental illness http://www.omicsonline.org/editorialboardJPPT.php Davidson, L. & Roe, D. (2007). Recovery from versus recovery in mental illness: one strategy for lessening the confusion Journal of Mental Health, 16: 459-470. 22 plaguing recovery. 2012-Mary D Moller • • • • • Robert Whitley and Robert Drake-2010 Recovery: A Dimensional Approach Clinical: symptoms, medical care, psychotropic medications, talking and behavioral therapies Existential: religion and spirituality, agency and self-efficacy, personal empowerment Functional: employment, education, housing Physical: diet, exercise, smoking, substance abuse Social: family, friends, peers, community social activity Robert Drake- http://dartmed.dartmouth.edu/summer09/html/vs_media_mentions.php Robert Whitley- http://www.douglas.qc.ca/page/recovery-research 23 2012-Mary D Moller Whitley, R. & Drake, R. (2010). Recovery a dimensional approach, Psychiatric Services, 61, 1248-1259 SAMHSA-2011 • A process of change through which individuals improve their health and wellness, live a self-directed life, and strive to reach their full potential. • 4 Dimensions – Health – Home – Purpose – Community 24 2012-Mary D Moller 8 5/22/2012 Nursing Is….. caring an art a science patient-centered holistic http://www.plu.edu/~aaronnr/img/nursing-process.gif adaptive concerned with health promotion, health maintenance, and health restoration a helping profession We’ve always ‘done recovery’ we just didn’t name it!!! 2012-Mary D Moller 25 Florence Nightingale • It may seem a strange principle to enunciate as the very first requirement in a Hospital that it should do the sick no harm. [1859] • From Notes on Nursing [1860] – “What nursing has to do is to put the patient in the best condition for nature to act upon him.” – “Nursing ought to signify the proper use of fresh air, light, warmth, cleanliness, quiet, and the proper selection of administration of diet-all at the expense of vital power of the patient.” – “Nursing creates the environment most conducive to body's reparative processes.” 2012-Mary D Moller http://images.suite101.com/3559572_com_florence_nightingale_headshot.png 26 Virginia Henderson1966 "The unique function of the nurse is to assist the individual, sick or well, in the performance of those activities contributing to health or its recovery (or to peaceful death) that he would perform unaided if he had the necessary strength, will or knowledge. And to do this in such a way as to help him gain independence as rapidly as possible" (Henderson, 1966). http://www.nursingworld.org/ClientResources/Images/Hall%20of%20Fame/HENDERS.JPG 2012-Mary D Moller 27 9 5/22/2012 Virginia Henderson • Emphasized the importance of increasing the patient’s independence so that progress after hospitalization would not be delayed (Henderson,1991) • Described the nurse's role as substitutive (doing for the person), supplementary (helping the person), complementary (working with the person), with the goal of helping the person become as independent as possible. 2012-Mary D Moller 28 Henderson’s 14 Bio-Psycho-SocialSpiritual Components of Nursing 1. 2. 3. 4. 5. 6. 7. 8. Breathe normally. Eat and drink adequately. 9. Eliminate body wastes. Move and maintain desirable 10. postures. Sleep and rest. Select suitable clothes-dress and11. undress. 12. Maintain body temperature within normal range by adjusting 13. clothing and modifying environment Keep the body clean and well groomed and protect the integument Avoid dangers in the environment and avoid injuring others. Communicate with others in expressing emotions, needs, fears, or opinions. Worship according to one’s faith. Work in such a way that there is a sense of accomplishment. Play or participate in various forms of recreation. 14. Learn, discover, or satisfy the curiosity that leads to normal development and health and use the available health facilities. http://www.nursingworld.org/ClientResources/Images/Hall%20of%20Fame/HENDERS.JPG 2012-Mary D Moller 29 Hildegard Peplau-1952 • Mother of Psychiatric Nursing • …Nursing is an educative instrument, a maturing force, that aims to promote forward movement of personality in the direction of creative, constructive, productive, personal, and community living. (Peplau, 1952) http://www.nursingtimes.net/pictures/182xAny/4/3/0/1213430_Hildegard_Peplau.jpg http://images.betterworldbooks.com/082/Interpersonal-Relations-in-Nursing-Peplau-Hildegard-9780826179111.jpg 2012-Mary 30D Moller 10 5/22/2012 Phases and Changing Role in NursePatient Relationship-p. 52 Nurse Stranger Patient Stranger Phase Unconditional Mother Surrogate Infant Child Counselor ResourcePerson Leadership Surrogate: Mother Sibling Adolescent Adult Person Adult Person Orientation-------------------Identification--------------Exploitation-----------------------------------------------------------------Resolution 2012-Mary D Moller 31 American Nurses Association • Nursing is… – the protection, promotion, and optimization of health and abilities, – prevention of illness and injury, – alleviation of suffering through the diagnosis and treatment of human response, – advocacy in the care of individuals, families, communities, and populations. http://www.nursingworld.org/EspeciallyForYou/What-is-Nursing 2012-Mary D Moller 32 Working Definition of Recovery for Psychiatric Nurses • Assisting patients to re-emerge from the onset of mental illness and re-establish a social identity through creating a new self-identity and developing a future orientation that will help maintain a stable level of functioning in all domains of life. Moller, M.D. (2006). Psychophenomenology of the lived experience of persons with schizophrenia in the post-psychotic phase of adjustment of psychosis. Doctoral thesis, Case Western Reserve University. 2012-Mary D Moller 33 11 5/22/2012 The Lived Experience of the Nurse Caring for a Person With a Mental Illness • Perceptions, thoughts, feelings about the person/family coming for care • Individual nurse experience on the inpatient unit – Vicarious traumatization – Direct traumatization – Henderson’s substitutive, supplementary, complementary • Reflective exercise – What has been your most positive experience as a psychiatric nurse on your unit? – What has been your most negative experience as a psychiatric nurse on your unit? 2012-Mary D Moller 34 The Lived Experience of the Person with a Mental Illness • Life before illness • Loss of choices, hopes, dreams • Entering inpatient care–treatment as trauma – forensic admission? – involuntary admission? • • • • Effects of previous trauma on course of treatment Cultural aspects of meaning of symptoms Support systems-family, employer? Psychological adjustment milestones 2012-Mary D Moller 35 Adjustment • The process of coming to terms with life changes resulting from the psychotic episode and subsequent diagnosis that include coping with loss, confusion, and stigma; altering life expectations; • Creating a new sense of life meaning; • Learning new skills based on the new intellectual and emotional reality post-diagnosis in order to respond to the social environment. 2012-Mary D Moller 36 12 5/22/2012 Post-Psychotic Adjustment Process • Phase One: Cognitive dissonance (couch) – Extends from onset of symptoms to 6-12 months after medication efficacy – The phase the person is during hospitalization – Sets the stage for success in the community • Phase Two: Insight (bus depot) – 6-12 months • Phase Three: Cognitive Constancy (mall) – 1-2 years • Phase Four: Ordinariness (work) – 2+ years Moller, M.D. & Zauszniewski, J.A. (2011). Psychophenomenology of the postpsychotic adjustment process. Archives of Psychiatric Nursing, 25, 253-268. 37 Emotional Component Cognitive Dissonance Embarrassment Insight Learning how to cope with life now Cognitive Constancy Ordinariness Importance of having a positive initial hospital experience Be able to think about the future Fear Dependable support system Accomplish life goals Frustration Something to do with my time Inability to handle stress Reassurance/ encouragement Lost selfconfidence Treatment environment that feels safe Have my own place to live Not having too much quiet time Being around people 38 Having hope 2012-Mary D Moller Cognitive Component Cognitive Dissonance Insight Cognitive Constancy Ordinariness Confusion Trying to figure out own thoughts Something to distract from the symptoms Manage symptoms Fear of saying something wrong Conducting own reality checks Accepting the need for treatment Finish education Getting control of symptoms Learning I’m not the only one with schizophrenia Become employed Recognize limitations Getting back to what I used to do Getting used to it Think positive Being given choices 39 2012-Mary D Moller 13 5/22/2012 Interpersonal Component Cognitive Dissonance Hard to go out in public Insight Cognitive Constancy Ordinariness Communicate with others Have someone listen to me/understand me Do what other people do Hard to be around people Someone to talk to about me Confidence in the counselor/therapist People need to be honest with reality Having people explain things Someone to talk to about general things Having help available when first get sick 40 2012-Mary D Moller Physiological Component Cognitive Dissonance Used drugs and alcohol Required too much energy Insight Cognitive Constancy Ordinariness Length of time to Right medication stabilize from the first episode Taking care of the body Having a routine 41 2012-Mary D Moller Perceived Barriers to Recovery • Not enough time/we can’t take the time • Competing priorities-administrative versus direct care • Staffing inconsistencies • Too hard to change from the ‘way we’ve always done it’ • Not another ‘program’ for us to implement • Can’t add more paperwork • We have to learn another vocabulary? • Any others?????? 2012-Mary D Moller 42 14 5/22/2012 A Recovery Culture Overcomes Perceived Barriers • Develop a unit Philosophy of Recovery where every encounter is a recovery encounter • Meet each person where they are in the process using personfirst language and principles of dialogue – http://www.youtube.com/watch?v=e995pidZQW4&feature=relat ed • Introduce recovery components based on person’s readinessbeginning with instillation of hope and promotion of safety • Be mindful of trauma and implement Trauma-Informed Care as universal precautions • Be mindful of the internal psychological, emotional, cognitive, physical, and spiritual states a person is experiencing 2012-Mary D Moller Non-Recovery Culture 43 Recovery Culture Low expectations Hopeful with high expectations Stability/maintenance is the goal Recovery is the goal No clearly defined exit Clear exits; graduates return/share Little or no access to information Easy access to information Compliance is valued Self-determination, critical thinking, and independence are valued Coercion is used to achieve compliance People become the experts in their own care People protected from trial/error learning People take risks and have the “right to fail” One size fits all treatment approach Wide range of programs and non-program options Patients live in ‘treatment centers’ Opportunities for community integration with choices Patients are judged by their level of motivation Restoring hope creates new choices Medication is the primary tool Medication is one of several tools Emphasis is on treatment Peer support and self-help are valued Ashcraft, L., Johnson, E., Zeeb, M (2004). Peer employment training workbook 44 Recovery is Bipartisan: The Nurse and the Patient • Assessment: Patient: phases and milestones of post-psychotic • • • • • • • psychological adjustment: 1: Cognitive dissonance 2: Insight 3: Cognitive Constancy 4: Ordinariness Assessment: The Nurse, the Nursing Unit , the patient Diagnosis: Patient: use milestones checklist to identify unmet physiological, interpersonal, psychological, cognitive milestones Diagnosis: Nursing: what needs to change in the environment? Positive and negative attitudes. Language? Awareness of post-psychotic adjustment process Planning: Patient: Develop interventions to meet unmet milestones and achieve maximum wellness; Planning: Nursing: Initiate person-first language; initiate trauma-informed care; embrace peer support staff; focus on bio-psycho-social-spiritualcultural wellness Evaluation: Patient: meeting post-psychotic adjustment milestones Evaluation:Nursing: environmental modification to promote recovery; attitudinal modification to promote recovery; integration of adjustment milestones into patient care plan 2012-Mary D Moller 45 15 5/22/2012 Small Group Work • Pick one milestone to develop a goal and intervention based on everything we’ve discussed so far! – Consumer need to connect with another human – Awareness of trauma – Person-first language – Recovery principles and elements – Principles of dialogue 2012-Mary D Moller 46 16