Around 10,000 Aussie kids have type 1 diabetes (T1D). Do you have a student with T1D at your school? Jelly Babies is a fun and educational JDRF fundraiser that’s about Kids Helping Kids. Join the growing list of schools nationwide that are part of the effort to cure, treat and prevent T1D. JDRF (Juvenile Diabetes Research Foundation) ACN 002 286 553 | ABN 40 002 286 553 | DGR 042 753 | www.jdrf.org.au | 1300 363 126 JDRF JDRF (the Juvenile Diabetes Research Foundation) is the world's largest charitable supporter of type 1 diabetes (T1D) research. JDRF was founded in 1970 in the US and 1982 in Australia by a group of determined volunteers. Internationally, JDRF has been involved in every major T1D breakthrough of the last four decades. Throughout it all, JDRF's mission remains constant - to find a cure for T1D and its complications through the support of research. Type 1 Diabetes (T1D) T1D is a life-long autoimmune disease that usually occurs in childhood but can be diagnosed at any age. T1D affects over 120,000 people in Australia alone. T1D is caused by the immune system mistakenly turning on itself, destroying beta cells within the pancreas and removing the body's ability to produce insulin. Insulin allows the body to process sugar to create energy - without insulin, the body literally starves as it cannot process food. Symptoms of Type 1 Diabetes • extreme thirst • blurred vision • constant hunger • nausea • sudden weight loss • vomiting • frequent urination • extreme tiredness If you notice these symptoms call a doctor and offer fluids WITHOUT SUGAR. Page 2 of 14 TREATMENT The goal of T1D management is to keep blood glucose levels as close to the normal range as possible. It sounds easy, but in reality, this is very difficult to achieve. To stay alive, people with T1D must have a regular supply of insulin through injections or an insulin pump. They must test their blood sugar by pricking their fingers. For children it is recommended to do this 6 – 8 times a day. People with T1D must be prepared for potential hypoglycaemic (low blood sugar) and hyperglycaemic (high blood sugar) incidents, which can be life threatening. Why Jelly Babies? People with T1D usually travel with a ‘hypo kit’ that supplies an emergency source of sugar if their BGL (blood glucose level) drops dangerously low. For most people a hypo kit usually includes a few lollies. Low blood glucose can be life-threatening if left untreated, so Jelly Babies can be a lifesaver. Our mums also like to think that in the stressful moments of a hypo, the friendly jelly faces can also help to calm the children that live with this chronic disease. Jelly Babies was founded 17 years ago by a group of mums whose children have T1D. Their goal was to be part of a better future for people with T1D by supporting medical research and they chose the jelly baby to symbolise childhood with T1D. Page 3 of 14 Kids Helping Kids There are lots of ways your school community can fundraise and be part of a better future for people with T1D. Activities can be partnered with T1D awareness and lesson resources. You can even have your Student Council help organise! Set up a Stall Colouring Competition Dress up or Mufti Day Jelly Babies Cut Out Character Host a Morning Tea Guess the Teacher Disco Night Sausage Sizzle Start the day with a speech at assembly, and set up a stall at lunch selling Jelly Babies items. It’s a great opportunity for the Student Council to become involved in organizing stock, advertising and accounting for funds raised and stock sold. Jelly Babies could also be sold at the school canteen. Host a colouring competition using our Jelly Babies themed picture on page 13, or download it from the website. Approach local businesses to donate prizes. For a gold coin donation, students and staff can dress up with crazy socks, coloured laces, hats or even as a Super Hero. Students can even wear their favourite Jelly Babies colour. How far can you make the Jelly Babies Cut Out Characters walk around the school? For a gold coin donation, a student can purchase a Jelly Babies Character; that’s how the line grows! Then use the characters as lucky tickets at the end of your fundraising event by getting the students to write their name on every character they purchase. See the character on page 12, or download it from the website. Students can bring along homemade cakes and biscuits to sell for a gold coin donation. Hold a “Guess the Teacher” competition. Ask the students to guess who the teachers are in childhood photos. Hold a disco and have a gold coin donation as the entry fee. Hold a sausage sizzle at a school event or at lunchtime. Get your local baker and butcher to support your fundraising effort by donating the bread and sausages. For more ideas, please contact your local JDRF office. See back page for contact details. Page 4 of 14 Awareness & Lesson Resources What is Diabetes? Diabetes in kids The role of insulin There are two main kinds of diabetes. Type 1 diabetes (T1D) develops in people of all ages— children, teenagers, and adults. Type 2 diabetes mostly affects adults but can also be diagnosed in children. Once a person develops T1D, it lasts a lifetime. T1D will never turn into type 2 diabetes. We all need insulin to live. Insulin delivers glucose from the food we eat to the cells in our bodies, which then use the glucose for energy. In people without diabetes, the pancreas makes the right amount of insulin at the right time. For people with T1D, the pancreas no longer makes insulin. Without insulin, the cells cannot receive the “fuel” they need, and in time, the cells starve. Furthermore, the extra glucose that floats unabsorbed in the bloodstream is toxic and can cause serious medical conditions over time. Type 1 Diabetes (T1D) T1D is an autoimmune disease. For reasons not fully understood, the body’s immune system destroys the insulin-producing beta cells within the pancreas. Without insulin, glucose cannot move from the bloodstream into the cells of the body to provide them with the energy they need to function. So the cells must get insulin manually, either through daily injections or from an insulin pump. Type 2 Diabetes In type 2 diabetes, the pancreas makes some insulin, but either there’s not enough of it or the cells don’t use it well. Children and adults with type 2 diabetes don’t always need insulin shots, as people with T1D do. Most of them control their diabetes with other medication and by eating healthy foods and exercising regularly. A balancing act Most people don’t think about their pancreas and what it does, but people with T1D must be mindful of their blood-sugar control all the time. To maintain their blood sugar at a healthy level, they must balance food intake with exercise and insulin. Food tends to make glucose levels rise; exercise and insulin tend to make glucose levels fall. Figuring out how much insulin to take at any one time can be challenging for a person with T1D - it requires a lot of knowledge, care, and mathematical calculations. But it is very important. Page 5 of 14 Fill in the Blank Mystery Eating gives us the fuel we need to live. But that’s only part of the story. Fill in the blanks in these sentences with words that have to do with diabetes. Word bank insulin cells insulin beta glucose We stomach pancreas eat food sugar When you __ __ __, you not only feed your hunger, you feed your body. From your head to your toes, your body is made up of millions of __ __ __ __ __. To do their work, your body’s cells need a fuel called __ __ __ __ __. The sugar comes from the __ __ __ __ we eat. Another name for this fuel is __ __ __ __ __ __ __. But to be able to eat, the cells need access to a ‘key’ called __ __ __ __ __ __ __. Insulin is made in a part of your body called the __ __ __ __ __ __ __ __. The pancreas is a small organ about 10cms long, which sits behind your __ __ __ __ __ __ __. Special cells in the pancreas called __ __ __ __ cells make insulin. When T1D happens, the pancreas stops making __ __ __ __ __ __ __. __ __ all need insulin to live. Meet your pancreas! Page 6 of 14 True or False Quiz: The Truth About T1D How much do you know about type 1 diabetes (T1D)? 1. Can you catch T1D? No! T1D is not contagious. You can’t catch it like a cold, the flu, or chicken pox. Doctors know some things about T1D, but they still don’t know what causes the disease. One thing they are sure of: people living with T1D did not catch it from anyone else. Neither can you! 2. Can you get T1D from eating too many lollies? No! You may get problems with your teeth from eating too many lollies, and you may be unhealthy. But you won’t get T1D. People with T1D didn’t do anything wrong. It just happened. So if you know someone with T1D, be a friend. 3. Doesn’t insulin fix T1D? No! Everyone has a pancreas. Everyone needs insulin to live. Everyone with T1D has to make up for the fact that their pancreas no longer makes insulin. They take insulin through injections or an insulin pump. But insulin is not a cure for T1D, it’s a treatment. Scientists are trying to find ways to fix or replace the damaged pancreatic cells in people with T1D. They hope that the new cells will once again produce insulin. Now, that would be a cure! 4. People with T1D can eat cake and ice cream True! But like everybody else, they should not eat too much of these types of foods. 5. You can’t tell if a person has T1D just by looking at them True! People with T1D are just like everyone else. They look and act perfectly “normal.” It’s only their pancreases that do not work right. 6. People with T1D can and do lead amazing lives True! Living with T1D may not be easy, but people with the disease can do whatever they set their minds to. There are actors, doctors, racing car drivers, footballers, writers, and even Olympic athletes who live with T1D. Page 7 of 14 Primary School Assembly Speech Notes Today I want to talk to you about DIABETES. Diabetes is the name given to disorders in which the body has trouble regulating its blood-glucose, or blood-sugar, levels. There are two major types of diabetes: type 1 and type 2. They are not the same! Let’s start with Type 2 Diabetes. Type 2 diabetes is a disorder in which a person’s body still produces insulin but is unable to use it effectively. You can get type 2 diabetes from eating too much and not having enough exercise, or if your parents have type 2 diabetes. Usually only grownups get it, but some children do too, so it is important to get into the habit of eating healthy food and enjoying plenty of exercise. Type 2 diabetes can usually be prevented. Now let’s talk about type 1 diabetes. With Type 1 Diabetes it is important to remember that you cannot catch it, it is not caused by eating too much sugar or not having enough exercise, and it is no one’s fault if you do get it. Type 1 Diabetes is what’s called an autoimmune disease, in which the person’s pancreas stops producing insulin. Insulin is a hormone that lets us get energy from the food we eat. Your body needs insulin to give you energy every day to run and play – and do your school work! Everyone in the world needs insulin to live. So how does someone manage type 1 diabetes? Page 8 of 14 People with type 1 diabetes must carefully balance eating and other activities all the time. Every day and every night. They have to give themselves insulin using an injection or a pump. If they are injecting insulin, they need up to 6 injections EVERY SINGLE DAY. This means they will check the amount of glucose in their blood up to 6 times a day by pricking their finger with a very sharp needle. Sometimes, if someone with type 1 diabetes doesn’t have enough glucose in their blood, they can feel sick or faint. That’s why you may see them eating sugary foods – like jelly babies. During one year a person with type 1 diabetes would have at least 730 injections and 1,460 finger pricks. What Is It Like to Have Type 1 Diabetes? Well it never goes away. You can NEVER go without treatment, NOT EVEN FOR ONE DAY. It can be hard, and sometime upsetting, and it never goes away. But at the same time, people with type 1 diabetes don’t let it stand in the way of achieving their goals. [Allow teacher, student or guest speaker with type 1 to speak.] JDRF helps raise money to help all the scientists around the world to do lots of research to find a cure for type 1 diabetes. This year, our school is going to help raise money for the scientists so they can find a cure for type 1 diabetes! [Talk about your event, what your school goal is and any incentives for the students/school] Page 9 of 14 School Newsletter Notes Our school is learning about diabetes. (OPTIONAL) You might not know that our school has X students have type 1 diabetes. This is because they look like every other kid, but they have an important difference. Kids with type 1 diabetes have an autoimmune disease that means they cannot produce their own insulin. You can’t catch type 1 diabetes and it’s not caused by lack of exercise or too much sugar. It occurs when the body’s immune system mistakenly destroys the cells in the pancreas that produce insulin. Everyone needs insulin to live. People with type 1 diabetes require up to 6 insulin injections every day. They also need to check their blood glucose (sugar) levels up to 6 times a day (by way of a finger prick) and carefully monitor their food intake and exercise regime on a daily basis. If their blood glucose level drops too low (commonly referred to as a “hypo”) they require a quick dose of sugar to prevent them going so low so as to go into a coma. Jelly Babies are often used as a quick source of sugar. Type 1 diabetes is difficult to manage. Around 10,000 kids in Australia have this form of diabetes, which accounts for around 10% of all people with diabetes. It is with you for life as there is currently no known cure. Every day 5 more Australians are diagnosed with this disease, most of them are children. There is no known way to prevent type 1 diabetes but scientists are working on it. That’s where we come in! JDRF (Juvenile Diabetes Research Foundation) is working hard to help find a cure by leading research to cure, treat and prevent type 1 diabetes. Our school will be supporting JDRF and helping to deliver a better future for kids with type 1 diabetes by… (INSERT YOUR FUNDRAISER INFORMATION) Page 10 of 14 Jelly Babies Song ‘Sing Sugar Sugar’ Australian singer and songwriter Alison Hams wanted to combine her professional love of music and kids with her personal interest in helping people with Type 1 Diabetes - and so the "Jelly Baby Song" was born! Written by Alison in 2012, and produced by her husband Mark Tempany (who has T1D), the song was recorded with Alison’s young music students. It’s a toe-tapping, sing-a-long tune raising funds for JDRF. Listen to the song, and teach your students. Page 11 of 14 Jelly Babies Cut-out Character Page 12 of 14 Jelly Babies Colouring Competition My name is ______________________________________ Page 13 of 14 JDRF in your state ACT Mel Eveille 16 Thesiger Court Deakin ACT 2600 P: 02 6109 4901 E: meveille@jdrf.org.au SA Tamara Aitchison Unit 3, 497 Marion Road South Plympton SA 5038 P: 08 8490 0171 E: taitchison@jdrf.org.au NSW Kate Reid Level 4, 80-84 Chandos Street St Leonards NSW 2065 P: 02 9020 6123 E: kreid@jdrf.org.au VIC/TAS Fiona Lobo Whitten Oval, Level 1 417 Barkley Street Footscray VIC 3012 P: 03 8374 6202 E: flobo@jdrf.org.au QLD/NT Rebecca Pascoe Level 5 155 – 157 Wickham Terrace Spring Hill QLD 4000 P: 07 3046 2702 E: rpascoe@jdrf.org.au WA Jack Callow Unit 3, 181 Main Street Osborne Park WA 6017 P: 08 6444 0752 E: jcallow@jdrf.org.au Thank you for supporting Jelly Babies Page 14 of 14