PCP Service Coordination - Case study template Details of PCP contact Name of PCP South Coast Primary Care Partnership Contact Person Mandy Geary Position/Title Executive Officer Phone No. 03 5674 0900 Email Address eo@southcoastpcp.org.au Identified Partners Partner Organisation Roles and responsibilities with regard to the project Contact person details Gippsland Multicultural Service (GMS) Consultation phase; Planning and Reporting Simone Jamieson GMS Settlement Worker – Bass Coast Settlement Committee Bass Coast Community Health Service (BCCHS) Consultation phase; Planning and Reporting Annie Bailey, Manager Nursing Services Bass Coast Adult Education Centre Consultation phase; Planning and Reporting Heather McGowan, Director Bass Coast Regional Health – Public Dental Health (BCRH) Consultation phase Anne Ngaw, Dental Nurse Bass Coast Regional Health – Emergency Department Consultation phase Debbie Garvey, Nurse Unit Manager Bass Coast Regional Health – Family Resource Centre Consultation phase; Planning and Reporting Karen Chugg, Trauma Assessment and Counselling General Practice Alliance – South Gippsland (GPA SG) Consultation phase; Planning and Reporting Jo Hillbrick, Practice Nurse Initiative; Immunisation Program; Judy Tiziani, Mental Health Program Coordinator Mitchell House Community House Consultation phase Jan Bourne, Manager South Gippsland Family Medicine Consultation phase Wendy Notley, Practice Manager Wonthaggi Medical Group Consultation phase Gayle Bloch, Practice Manager Bass Coast Shire Planning and Reporting Antoinette Mitchell, Chair SCPCP; BC Settlement Committee (convenors) Case Study Title (name, position) “Finding a way in - Mapping Health and Community Service Pathways for Refugees in Bass Coast”. South Coast PCP Service Coordination Case Study September 2010 Page 1 of 9 Summary/Abstract This mapping project was developed to support planning for the provision of a coordinated model for refugee health care in Bass Coast to improve accessibility and responsiveness of health services to the needs of Karen Burmese refugees. The project, involving direct consultation with eleven providers was conducted between October and December 2009 and was based on the HealthWest Partnership service coordination model for refugees as an example of good practice1 and the SEHCP Refugee Health Service Coordination Survey – April / May 2009. Health and refugee services were well engaged in the project and the findings indicated the services provided to the refugees of the Bass Coast are well coordinated given the current level of funding support. In particular, the links between the services contracted under the Integrated Humanitarian Settlement Strategy (IHSS) 2, which provides for intensive settlement support for newly arrived humanitarian entrants, were reported as excellent. There was a perceived need for connections between other services to be strengthened and that cultural awareness in the healthcare workforce be enhanced by cultural training. Service providers also need to commit to on-going collaboration in order to sustain accessible and coordinated services beyond the initial six months funded by the IHSS. Background Name of Project “Mapping Health and Community Service Pathways for Refugees in Bass Coast”. Target client group The project targets newly arrived people from a refugee background or who are asylum seekers. In the local context, the target group comprises Karen (Burmese) refugees numbering approximately 15 located in the township of Wonthaggi in Bass Coast Shire. The term ‘refugee’ is generally used to refer to people who have arrived in Australia under the Australian Government’s Humanitarian Program which includes most refugees living in Victoria. A broader definition of ‘refugee’ includes all people who have escaped situations of displacement, conflict and violence and includes people seeking asylum in Australia or who came on a non-Humanitarian Program visa but from a refugee source country. Refugees to the Bass Coast arrive under the Special Humanitarian Programs (visa subclass 202) with individuals also identified under the Women at Risk (visa subclass 204). The Special Humanitarian Program (SHP) targets people outside their home country and subject to persecution and /or discrimination in their home country. Applications are supported by a proposer who is an Australian citizen, permanent resident or a community organisation based in Australia. They are entitled to a modified initial settlement package. The proposer is expected to provide some assistance to the refugee to support them in their settlement.3 The Women at Risk visa is for vulnerable women and children such as female headed households, single mothers, abandoned or single women . DHS Service Coordination expectations 2009-12 Background Develop and implement agreed service coordination practice for priorities hard to reach and vulnerable groups including indigenous communities Since 2005, more than 10,000 people granted permanent protection on Humanitarian Program Visas have settled in Victoria - approximately 30 per cent of the Australian total in this category (this is comparable to New South Wales with other states and territories receiving much fewer). 4 In 2007-08, fairly equal numbers of offshore arrivals came from Africa (mainly Sudan), Asia http://www.health.vic.gov.au/pcps/downloads/careplanning/refugee_health.pdf http://www.immi.gov.au/living-in-australia/delivering-assistance/government-programs/settlementprograms/ihss.htm 3 McDonald B, Gifford S, Webster K, Wiseman J, and Casey S (2008) Refugee Resettlement in Regional and Rural Victoria: Impacts and Policy Issues, VicHealth 4 Settlement Database, Department of Immigration and Citizenship, August 2008. South Coast PCP Service Coordination Case Study September 2010 Page 2 of 9 1 2 (mainly Afghanistan, Burma and ethnic minorities from Burma living in Thailand) and the Middle East (mainly Iraq). Victoria also supports a number of Medicare ineligible asylum seekers. Most of Australia’s refugees and asylum seekers come from circumstances such as refugee camps or marginalisation in urban settings where even the most basic resources and services are scarce. This includes safe drinking water, basic health care and education, shelter, safety and adequate food supplies. In many places, diseases such as malaria are common. There is poorly developed or disrupted health care infrastructure, which is unable to provide acute and preventative health care. Most refugees would have experienced traumatic evens such as prolonged periods of deprivation, loss of identify and culture, human rights abuses and the loss of family members i. As a result of these negative experiences, refugees are more likely to have multiple and complex health problems on their arrival in Australia. Health problems may be due to physical and psychological trauma, deprivation and prolonged poverty, and poor access to health care prior to arrival. Refugees are also less likely than other migrants to have family and community support in Australia on arrival. Despite these challenges, over time, refugees settle very successfully in Australia. Most health problems can be addressed through health care and support in the early periods of settlement. Timely care is critical, as successful settlement is more likely once health is restored. Evidence supporting Refugee Health as an issue Through it’s involvement in the Refugee Health Nurse Program (RHNP) and the Bass Coast Settlement Committee, and in listening to the experiences of a small group of Karen (Burmese) refugees recently settled in a small rural town, SC PCP saw a need to examine more closely the status of our local service system in regards to the key Primary Health Care Principles of accessibility and appropriateness of care and the existing evidence base. ii In May 2009 the Department of Human Service Southern Metropolitan Regions published a summary of reports of refugee clients in the health system in Australia which identified the following key issues: Communication barriers and difficulties arranging interpreters: Refugees are likely to arrive with poor English skills and are largely dependent on interpreters, at least during the initial settlement period. This makes navigating the health and other systems difficult and stressful. This is especially so when a patient has difficulty communicating with a doctor, pharmacist or allied health professional, during a consultation, a visit to hospital or during follow-ups. Treating refugees usually requires extended consultations: Consultations sometimes take up to double the time of a standard consultation. GPs have a busy workload and are unlikely to be able to provide all the follow-up care and case coordination necessary, and they are not adequately remunerated for their time. Lack of knowledge by refugees of the Australian health system: Refugees lacked knowledge and experience navigating a health system in a developed country. There are stark differences between the health systems in a developed versus a developing country. Refugees need time and assistance to adjust to a medical system which is based around appointments, referrals to specialists in different locations and often multiple clinical tests. Refugees need greater assistance during their orientation period, which may be achieved through greater dissemination of translated information about the health system, the services available and how to access them. Logistical and settlement issues leading to missed appointments: Finally, until refugees are familiar with their surroundings, some may require one-on-one assistance to arrange appointments and organise transport arrangements. These difficulties are further exacerbated if the refugee is illiterate. Refugees may feel pressured to stay at work or at English language classes rather than attend appointments (e.g. medical, Centrelink). In addition, they may avoid using health care services because they cannot afford to pay, or because of previous traumatic experiences in their country or birth or transit. South Coast PCP Service Coordination Case Study September 2010 Page 3 of 9 Policy Context and Strategic Alignment This project is consistent with the policy and program context underpinning refugee health and the elements of the SC PCP Strategic Plan related to Refugee Health. The RHNP aims for optimising the long-term health of refugee community members through promoting accessible and culturally appropriate health care services that are responsive to changing patterns of refugee settlement are consistent with PCP strategic objectives in relation to the Domain of Activity ‘Service Coordination’. The RHPN is part of a coordinated response by the Victorian Government to the health and wellbeing of refugee communities in Victoria and contributes to three outcomes of the Victorian Government’s Growing Victoria Together 2iii: High quality, accessible health and community services. A fairer society that reduces disadvantage and respects diversity. Building friendlier, confident and safe communities. The RHNP also contributes to the strategic goals of the Victorian Government’s A Fairer Victoria 2008ivand is a part of the DHS’ Refugee Health and Wellbeing Action Plan 2008-10v. The RHNP also operates within the frameworks provided by: The Primary Care Partnerships (PCP) strategy The Community Health Services Policy The Primary Health Demand Management Framework vi which mandates priority access for refugee clients Philosophy underpinning the Project This project recognises health and wellbeing as occurring within a social context; Health outcomes are determined by a range of social, environmental and economic factors. Disease prevention, early intervention and equity of access are necessary components of high quality services that support the immediate and long-term health care of refugees. Health services for refugees in the Bass Coast areas should: Be accessible, flexible and culturally sensitive. Be affordable. Inability to pay should not be a barrier to access to health services either provided or referred to by the RHNs. Adopt a holistic approach to health care and ensure links are developed and maintained with related services. Recognise the rights (e.g. confidentiality, informed consent) of refugees as health care clients. Treat clients with dignity. Acknowledge that informed decisions about health and health care require accessible and appropriately targeted health information and access to language services. Be integrated with mainstream services. Enable individuals, families and refugee communities to improve their health and wellbeing. Project Management and Governance Sponsor (s) Refugee Health Nurse Initiative, Department of Human Services Project Management Mandy Geary, Executive Officer reporting to Steering Group, SCPCP Project Worker Vicki Bradley, IHP Officer reporting to stakeholder groups and Project Manager via designated meeting networks and communication matrix policy for dissemination of project findings South Coast PCP Service Coordination Case Study September 2010 Page 4 of 9 Objectives Service providers have access to information about the accessibility and responsiveness of their services to refugees in Bass Coast as a catalyst for improvement. Consumers and carers: - Have timely access to the most culturally appropriate services - Experience coordinated delivery of services and a continuum of care - Receive care and support that is appropriate to their cultural background, circumstances, needs and preferences. Project participants and key stakeholders There are two sets of stakeholders for this project 1. The refugees 2. The service providers The service providers will be engaged via a series of interviews and instructional sessions. The refugees will be engaged via existing contacts that they can trust.This project involved the following participants in one or more phases (planning, consultation, reporting); Bass Coast Regional Health – Dental Health, Emergency Department, Family Resource Centre Bass Coast Community Health Service – Refugee Health Nurse Gippsland Multicultural Service – Bass Coast Settlement Worker GPA South Gippsland (Division of General Practice) – Immunisation, Mental Health and Practice Nurse program workers Mitchell House Community House – refugee support volunteers South Gippsland Family Medicine – Practice Manager Wonthaggi Medical Group – Practice Manager Bass Coast Adult Education Centre – ‘English as Second Language’ Training Providers South Coast PCP Service Coordination Case Study September 2010 Page 5 of 9 Methodology and approach The project methodology involved the following steps: 1. Planning and preparation a. Literature Review, Consultation with partners, completion of project brief and plan and initial engagement of key stakeholders Identification of organisations linked with refugees included: Government agencies: Department of Immigration and Citizenship (DIAC) Primary Settlement Services Gippsland Multicultural Service (GMS) – settlement worker Local Refugee Settlement Committee Victorian Foundation for the Survivors of Torture / Foundation House Health Services Bass Coast Community Health Service - Refugee Health Nurse - Maternal and Child Health Nurse - Allied Health Bass Coast Regional Health - Family Resource Centre (trauma counselling) - Accident and Emergency (first line and after hours emergency care) - Inpatient services (medical/surgical, obstetric) - Outpatient services (specialist AHP, nursing services) - District Nursing services - Public Dental Health Service - Allied Health GP Practices - Wonthaggi Medical Group - South Gippsland Family Medicine Pharmacists in Wonthaggi South Coast Primary Care Partnership GPA South Gippsland (Division of General Practice) Opticians Tertiary Hospital Specialist Clinics (Latrobe Regional Hospital (amputee service), infectious diseases, TB clinics, psychiatry, oncology) English Language Centre Bass Coast Adult Education Centre Chisholm Institute of TAFE Wonthaggi Secondary College Wonthaggi North Primary School Local Government Bass Coast Shire Council Housing Services Friendly real-estate agents Employment Centrelink Job network agencies Social/ Community Support Victoria Police driver education program Mitchell House – Community House Volunteer support and sponsors of refugees Australian Red Cross, St Vincent De Paul, Salvation Army, local churches. South Coast PCP Service Coordination Case Study September 2010 Page 6 of 9 Sport and Recreation – GippSport, Bass Coast YMCA. b. Development of interview schedule and data collection tools A set of questions were developed based on the Health West Refugee Health Service Coordination guide and validated for local relevance with the manager of the BCRH Family Resource Centre. Interviews were undertaken with agencies to identify what services they provide for refugees. Interview content included an introduction of the refugee service coordination project; assessment of current services provided by the stakeholder; their knowledge of other services available to refugees in the Bass Coast their perceptions/experiences related to gaps in health services for refugees their suggestions for improving the service coordination pathway for refugees and for health services. 2. Consultation phase a. Conduct individual interviews Interviews were undertaken with 12 key stakeholders via face to face interview (10), telephone interview (1) or written response (1). Results from interviews were collated in this spreadsheet. SCPCP Refugee Health Mapping - Interview Data 2009 The stakeholders interviewed: Bass Coast Adult Education Centre - English as a Second Language Teacher; Bass Coast Community Health Service – Refugee Health Nurse Coordinator; Bass Coast Regional Health o Family Resource Centre Manager, o Dental Health Service – Manager; o Emergency Department - coordinator; GPA South Gippsland (Division of General Practice) o Mental Health Program Coordinator; o Immunisation Program Coordinator; Wonthaggi Medical Group – Practice Nurse Manager South Gippsland Family Medicine – Practice Nurse Manager; Mitchell House Neighbourhood House - Coordinator 3. Data analysis and reporting a. Review of findings and preparation of report b. Dissemination of findings and report http://www.southcoastpcp.org.au/index.php/publications/265-refugee-healthmapping-in-bass-coast-case-study-2010 4. Project Evaluation South Coast PCP Service Coordination Case Study September 2010 Page 7 of 9 Results Service improvement and innovation This project is essentially a scoping exercise to provide data and feedback to service providers regarding the quality of their services, specifically accessibility and cultural appropriateness, to the refugees. It is therefore a preliminary, but necessary, step to providing baseline evidence for change and service improvements. Providing data regarding gaps in service coordination between providers, and engaging those providers in more effective collaborations through the existing Bass Coast Settlement network enables improvements in health and social outcomes, refugees’ experiences of the local service systems and supports improved commitment from the providers to prioritising service coordination. Opportunities for Service System and Practice Improvement Strengthening connections between other services and for providers to commit to on-going collaboration beyond the initial six months funded by the IHSS is necessary to sustain accessible and coordinated services. Cultural training is needed to improve levels of cultural awareness in health care teams. Outcomes Project phases were completed according to defined time line and budget. 12 of the 14 stakeholders identified as key sources of information were effectively engaged. Data in all fields of the interview framework was accurately and readily provided by the service providers. Project tasks were completed and results of the consultations were disseminated consistent with the project plan. Project objectives were achieved. Status and sustainability SCPCP received a small amount of non-recurrent funding for Refugee Health in 2009 that was insufficient to cover the costs of this project. Whilst there is no further capacity for the PCP to take responsibility for driving necessary changes in relation to refugee health, the project has provided information and insights to the Bass Coast Settlement committee which is composed of the health service providers and has a specific mandate to support the refugee community in Bass Coast. SCPCP will continue to support the on-going work of the settlement committee, including further research, audit and/or evaluation activities to build capacity and accountability in these agencies in relation to monitoring and evaluating impacts and outcomes of any service system and practice changes they plan to implement that will improve coordination and quality of services to the Karen Burmese refugees. Conclusions Health and refugee services were well engaged in the project and the findings indicated the services provided to the refugees in Bass Coast are well coordinated given the current level of funding support. In particular, the links between the services contracted under the Integrated Humanitarian Settlement Strategy (IHSS)5, which provides for intensive settlement support for newly arrived humanitarian entrants, were reported as excellent. http://www.immi.gov.au/living-in-australia/delivering-assistance/government-programs/settlementprograms/ihss.htm South Coast PCP Service Coordination Case Study September 2010 5 Page 8 of 9 The key factors supporting the successful completion of this project were: Effective project planning and management; Utilisation of existing partnership networks for project support; Effective communication with and engagement of stakeholders; Comprehensive literature review; Support from other PCPs in developing the project tools; Funding from RHNS grant. There were no key challenges affecting this project due to existing commitment of stakeholders to support the health and wellbeing of the refugee group. The key limitation of the project is the financial constraints affecting PCP capacity to act on findings such as providing cultural training for healthcare workforce. How activities and improvements will be sustained is dependent on the capacity of the Bass Coast Settlement committee to implement recommendations arising from the project. Project findings are relevant to service coordination and workforce development activities of the South Coast PCP. Future directions will include investigating ways to integrate strategies for improvement to meet the needs of this (relatively) small group in our community including resourcing. References References have been provided as footnotes throughout this project report. i Victorian Foundation for Survivors of Torture 2007: Promoting refugee health. A guide for doctors and other health care providers caring for people from refugee backgrounds: p24. www.foundationhouse.org.au ii ‘Strategic Directions for a National Primary Health Care Policy’ 13 September 2007 iii http://www.dpc.vic.gov.au/CA256D8000265E1A/page/Growing+Victoria+Together iv www.dpcd.vic.gov.au/afairervictoria v www.dhs.vic.gov.au › Multicultural Strategy vi www.health.vic.gov.au/communityhealth/downloads/demand/demand_management_framework_feb08.pdf South Coast PCP Service Coordination Case Study September 2010 Page 9 of 9