Ophthalmology Scoping Exercise Draft Report CONTENTS Page 2 1. Abbreviations 2. Introduction 3 3. Health Needs 5 4. 4.1. 4.2. 4.3. 4.4. 4.5. 4.5.1. 4.5.2. 4.5.3. 4.5.4. Current Position Contracts and Providers Cost and Activity Profile Referrals Pathways Casemix Quality and Patient Experience: Outpatient Cancellations and DNAs Waiting times Choose and Book Slot Availability Local Needs and Priorities (includes NHS Choices, Complaints, PALS) 4.5.5. Serious Untoward Incidents 4.5.6. Service Quality 4.6. Patient Choice 4.7. Incentives to Drive Up Performance 4.8. Workforce 7 7 13 16 17 19 19 19 20 21 5. 5.1. 5.2. Service Pressures Diabetic Retinopathy Screening Service New NICE Guidance for Glaucoma 29 30 31 6. 6.1. 6.2. 32 33 34 6.3. Options Appraisal Primary Eyecare Acute Referral Scheme (PEARS) Glaucoma Referral Refinement and Ocular Hypertensive Monitoring Pre and Post Operative Cataract Service 7. Recommendations and Next Steps 37 23 23 24 27 28 35 1 1. ABBREVIATIONS AOP: Association of Optometrists ARMD / AMD: Age-Related Macular Degeneration CQC: Care Quality Commission DNA: ‘Did Not Attend’ DRSS: Diabetic Retinopathy Screening Service GAT: Goldmann Applanation Tonometry HCC: Healthcare Commission HRG: Health Resource Group IOP: Intra Ocular Pressures LES: Local Enhanced Service LIS: Local Incentive Scheme LTHT: Leeds Teaching Hospitals NHS Trust MYHT: Mid Yorkshire Hospitals NHS Trust NEHEM: National Eye Health Epidemiological Model NICE: National Institute for Health and Clinical Excellence NHS WD: NHS Wakefield District OHT: Ocular Hypertension OMP: Ophthalmic Medical Practitioner OPDR: Ophthalmic Photographic Diabetic Review PALS: Patient Advice and Liaison Service PbR: Payment by Results PCT: Primary Care Trust PEARS: Primary Eyecare Acute Referral Scheme PROMS: Patient Reported Outcome Measures QOF: Quality Outcomes Framework RTT: Referral to Treatment SHA: Strategic Health Authority SUS: Secondary Uses Service YEH: Yorkshire Eye Hospital WDCHS: Wakefield District Community Healthcare Services WECI: Welsh Eye Care Initiative WYCSA: West Yorkshire Central Services Agency 2 2. INTRODUCTION National Context The final report of the NHS Next Stage Review, High Quality Care for All, sets out the strategic direction for driving improvements in the quality of care across the health service, in particular, working in partnership to prevent ill health, providing care that is personal, effective and safe. Our vision for primary and community care draws together the main conclusions of the Next Stage Review for community-based NHS services, including eye care services, and sets out a strategy based around four key areas: Shaping services around people’s needs and views Promoting healthy lives and tackling health inequalities Continuously improving quality Ensuring that change is led locally In January 2007, the Government announced the results of the General Ophthalmic Services Review. The review concluded that there is a successful sight testing service, which provides patients with convenience and choice and that this should be built on. The review recognised the potential to develop more accessible, tailored eye care services for patients by making greater use of the skills that exist among eye care professionals who work in primary and secondary care settings, to help diagnose and manage a range of eye conditions. The review also saw scope for greater collaboration between the NHS, social care and the third sector in providing integrated services for patients with low vision problems. Naturally, national work and policy will shape the direction of commissioning of local services. The 18 week standard has particular significance for ophthalmology services in Wakefield District. The Operating Framework for the NHS in England 2009-101 sets out that from 1 January 2009, the minimum expectation of consultant-led elective services will be that no one should wait more than 18 weeks from the time they are referred to the start of their hospital treatment (unless it is clinically appropriate to do so or they choose to wait longer). From April 2010 minimum operational standards for Referral to Treatment (RTT) of 90 per cent for admitted patients and 95 per cent for non-admitted patients must be achieved across all specialties without exception. In addition to the above it is also the expectation of Yorkshire and the Humber Strategic Health Authority (SHA) that all PCTs within the region will further improve RTT waiting times during 2009/10 with 90% of patients being treated within 15 weeks and 50% of patients being treated within 8 weeks. Local Context Ophthalmology has historically been a pressured specialty in terms of delivering waiting time targets at Mid Yorkshire Hospitals NHS Trust (MYHT), the main secondary care provider for Wakefield District. Delivering against the 3 18 weeks standard is a key strategic objective for NHS Wakefield District (NHS WD). During negotiation of the 2009/10 MYHT contract significant variances between PCT expected demand and MYHT expected capacity were identified. Furthermore, it is expected that the new National Institute for Health and Clinical Excellence (NICE) guidance on Glaucoma and Ocular Hypertension2, published in April 2009, would result in an increase in referrals into secondary care and additional pressure on the limited capacity within MYHT. Therefore, in addition to ophthalmology being a pressured specialty, there are further factors that could place the service under increased pressure. Wakefield representatives took part in a ‘Route to a Solution’ exercise in early 2009 with Kirklees Primary Care Trust (PCT) and MYHT which explored possible approaches to reduce the pressure on capacity at MYHT. Although elements of work have been undertaken within aspects ophthalmology, there has been a lack of understanding of the local need and complete ophthalmology system in Wakefield District across all providers, both primary and secondary care. The purpose of this report is to: Provide an understanding of local need and the complete ophthalmology system in Wakefield District. Enable commissioners to have discussions with stakeholders regarding future ophthalmology services and to make informed decisions about service design and commissioning intentions. Support achievement of NHS Wakefield District’s strategic objectives on planned care pathways and delivering 18-weeks targets. Support an improvement in patient experience. Information in this report has been drawn from a range of sources including national policy and guidance, published data and documents, information and data held within NHS WD and the knowledge and experience of colleagues within NHS WD. Where possible, national comparator and benchmarking data has been used. Significant work is being undertaken separately to specify the Diabetic Retinopathy Screening Service (DRSS) therefore, the analysis in this report does not include DRSS. A new hospitals development project will lead to the opening of new hospitals in Pontefract and Wakefield in 2010 and 2011. Therefore, it is important that any decisions on future eye care services take account of the new hospital plans and associated capacity. It is accepted that there are a range of stakeholders who will be able to provide additional context and data to this report. However, it is aimed to be a tool to enable further discussion. Suggested recommendations, based on the information analysis, are made throughout the report to stimulate further discussion. 4 3. HEALTH NEEDS A Rapid Health Needs Assessment3 has been undertaken in relation to ophthalmology in Wakefield District. This report should be read concurrently with the needs assessment. This report does not seek to replicate the level of detail in the document but summarises here some of the key findings. The Wakefield District has a resident population of approximately 322,415 people. Projection figures suggest that the total population is expected to grow to around 337,500 by 2017. The population is also forecast to grow in line with England, rising 2.17% over the next five years 4. There are marked expected increases in the over 65 and over 80 populations4 which will have significant implications for ophthalmology services which are used more by people in the older age groups. The National Eye Health Epidemiological Model (NEHEM)5 and 2001 Census data has been used to derive approximated prevalence of ophthalmic conditions. By applying Office of National Statistics population projections to this model it is possible estimate the predicted increase in conditions due to demographic growth. 1.42% 2.01% 0.87% 6.70% 1.84% 3.96% 3.38% 0.58% 10.83% 1.35% 1.90% 0.82% 6.47% 1.74% 3.78% 3.24% 0.54% Low Vision Cataract Low Geographic Atrophy Cases Source: NEHEM (2009), Public Health Intelligence Team Severely Impaired Sight 11.04% 0.80% Impaired Vision Low Estimated Glaucoma Cases 0.84% 1.61% Cataract High High Estimated Glaucoma Cases 1.69% 2.28% Drusen Cases 2.39% Wakefield District Area (2001) NV-AMD Cases Y&HSHA PCT Average AMD Cases Mean Estimated Glaucoma Cases Table 1: Estimated Prevalence Rates for Key Ophthalmic Conditions (2009)5 The needs assessment outlines projected need for ophthalmic services, both in terms of numbers and percentage, in 2008, 2010, 2015, 2020 and 2025. This information is broken down by the conditions Age-related Macular Degeneration (AMD), Glaucoma, Cataracts and Low Vision with associated impacts on the projected need and limitations of the data. A summary of the projected need is presented below. 10.83% 10.94% 11.06% 11.83% 6.47% 6.50% 6.73% 7.80% 1.74% 1.77% 1.86% 2.28% 3.78% 3.91% 3.96% 4.47% 3.24% 3.33% 3.38% 3.79% Source: NEHEM (2009), Public Health Intelligence Team (2009)5 5 Severely Impaired Sight Low Vision 0.82% 0.88% 0.93% 1.05% Impaired Vision 1.90% 2.02% 2.15% 2.41% Cataract Low 1.35% 1.43% 1.52% 1.69% Cataract High Low Estimated Glaucoma Cases 0.80% 0.82% 0.82% 0.92% Drusen Cases Geographic Atrophy Cases 1.61% 1.66% 1.68% 1.90% High Estimated Glaucoma Cases 2.28% 2.35% 2.38% 2.68% Mean Estimated Glaucoma Cases Wakefield 2001 Wakefield 2008 Wakefield 2015 Wakefield 2025 NV-AMD Cases Year AMD Cases Table 2: Projected Need for Key Ophthalmic Conditions, Wakefield 0.54% 0.58% 0.59% 0.68% The projected need shows that the prevalence across all conditions is predicted to rise. Therefore it is expected that demand for associated ophthalmic services will also increase. The needs assessment highlights that smoking, nutritional malnourishment and hypertension may also impact on the level of need for ophthalmic services. Furthermore a rise in obesity and associated diabetic retinopathy would also affect the prevalence of visual ill-health. The diabetic population of Wakefield is currently just over 15,000 representing 4.2% of the general practice registered population with an expected growth rate of approximately 7.0% per annum6. The needs assessment draws the following conclusions: Wakefield’s ageing population is likely to place additional strain on Ophthalmology services over the next 25 years. Projections of future need are currently crude and do not take account of other extraneous and contributing factors. True need is likely to be in excess of the projections in this document. In comparison to other areas, Wakefield District is not estimated (by the NEHEM modeller) to have a higher level of need than that of other SHA organisations. While prevalence estimates are relatively close between neighbouring areas, Wakefield is consistently regarded as having a lower level of need on each of the NEHEM outputs. While some of this difference can be perhaps attributed to having a comparatively smaller Black and Minority Ethnic (BME) population, the reliability of the modeller will always be subject to questioning. Although the estimates of population need defined by the NEHEM modeller may be lower that that of other areas in the Yorkshire & Humber region, the true extent of ophthalmological needs may be more than what is covered by the modeller. The four major eye conditions may contribute the greatest use of resources, but other conditions should be examined for their impact on service usage. Unmet need in visual problems (based on the definition found in the lifestyle survey) increases with age, although the percentages in men of all ages (except post-75) are higher. While there is not sufficient evidence to suggest why this may be the case, there is evidence at a national level that men are often reluctant to enter into treatment – particularly where preventative treatment is concerned. That need is higher in Wakefield North, Wakefield East and Knottingley. 6 4. CURRENT POSITION 4.1. Contracts and Providers Cost and Activity Profile Looking at the contracts that NHS WD holds helps us to understand the providers that we have and the associated cost of services for eye care services. Activity and cost data has been summarised for primary and secondary care services with actual figures for 2008/09 and planned or estimated figures for 2009/10. At present, PCTs do not hold the budget for primary optical services, such as eye sight tests. These services are funded from a national budget which is administered by West Yorkshire Central Services Agency (WYCSA). NHS WD holds contracts with a number of optometrist practices and these practices are authorised to provide NHS services in line with demand and so they do not have set contracted levels of activity for the year. Table 3: Summary of Total Activity and Cost 2008/09 (Actual) 2009/10 (Planned) Activity Cost (£) Activity Cost (£) Secondary Care 45,890 6,246,574 34,870 5,001,432 Primary Care 120,634 3,212,562 3,692,434 Other Costs* 1,555 613,516 1,157 538,471 Grand TOTAL 10,072,652 9,232,337 * Other Costs include ARMD injections and fee paid to optometrists for cataract referrals Note: This report does not include activity and costs for DRSS Source: Summary Table - see tables below for individual sources In 2008/09 eye care services in Wakefield District cost £10.07 million. Contracts and estimated levels of activity for 2009/10 have a planned cost of £9.23 million. However, it should be noted that actual activity data for 2009/10 shows that secondary care and Age-related Macular Degeneration (ARMD) activity is exceeding planned activity. Therefore, actual costs in 2009/10 are forecast to be higher. Summaries of activity and costs for primary care, secondary care and additional spend on ARMD and cataracts referrals are provided in the tables that follow. Secondary Care The national mandatory Payment by Results (PbR) tariffs for 2009/107 determine the price that secondary care providers will be paid for outpatient and admitted patient activity. The tariffs for ophthalmology services are listed in appendices 1.1 - 1.2. In 2008/09 the total cost of ophthalmology services in secondary care was £6.25 million. Of this, £3.59 million (58%) was for admitted patient care with the biggest proportion £3.39 million (54%) being on day case activity. Outpatient care accounted for £2.65 million (42%) and this was split roughly equally between the costs of first and follow-up attendances. 7 MYHT is NHS WD’s main provider of secondary care ophthalmology services. In 2008/09, £5.00 million (80%) of the total cost of secondary care services was with MYHT. The next two biggest providers in 2008/09 were LTHT (£580k) and Birkdale Clinic (£426k). Detailed information on contracts, providers, activity, costs, including breakdowns by points of delivery can be found in appendices 1.3 – 1.10. 8 Table 4: Summary of Secondary Care Activity and Cost Admitted Patient Care Mid Yorkshire Trust Activity Cost Actual Actual (£) 4,009 2,778,918 Outpatient Care 33,505 2,219,052 4,981 295,889 2,397 137,184 40,883 2,652,125 Grand Total 37,514 4,997,970 5,520 822,347 2,856 426,257 45,890 6,246,574 Activity Planned 3,850 Cost Planned 1,703,110 Activity Planned* 436* Cost Planned* 442,691* Activity Planned 430 Cost Planned 273,605 Activity Planned Cost Planned 4,716 2,419,406 23,235 2,139,032 4,359* 260,684* 2,560 182,310 30,154 2,582,026 2008/09 Actual 2009/10 Planned Admitted Patient Care Outpatient Care Other NHS Trusts Activity Cost Actual Actual (£) 539 526,458 Birkdale Clinic Activity Cost Actual Actual (£) 459 289,074 TOTAL Activity Cost Actual Actual (£) 5,007 3,594,449 27,085 3,842,144 4,795* 703,375* 2,990 455,915 Grand Total 34,870 5,001,432 * 2009/10 planned contract activity for Leeds Teaching Hospitals Trust is not available by specialty therefore ‘actual’ activity and costs figures for 2008/09 have been added to the planned contract activity of the other NHS Trusts Source: SUS, Provider Activity Returns and 2009/10 Contracts Other NHS providers of ophthalmology services for NHS WD are: Bradford Hospitals NHS Trust York Health Services NHS Trust Sheffield Teaching Hospitals NHS Trust Doncaster & Bassetlaw Hospitals NHS Trust Leeds Teaching Hospitals NHS Trust (LTHT) Calderdale and Huddersfield NHS Trust Sheffield Children's NHS Trust Hull and East Yorkshire NHS Trust 9 MYHT Contract In 2008/09 the total activity at MYHT was 4,364 under the planned level but there was still an overspend of £323,601 due to overperformance in admitted activity and the higher than planned cost of out-patient procedures. During 2009/10 contract negotiations MYHT disclosed maximum capacity of 11,109 first out-patient attendances. NHS WD, as lead commissioner for the trust, mapped the impact of this restriction on follow-up and day case capacity and attributed the shortfall proportionately across all commissioners. For NHS WD the variance between PCT expected demand and MYHT expected capacity for ophthalmology, is estimated to be 3,984 first out-patient appointments (77 per week), 9,164 out-patient follow up appointments and 1,300 day case episodes. This is a shortfall of 36% for out-patient appointments and 34% for day cases. A total financial value of £1.73 million has been removed from the NHS WD contract with MYHT. Although this shortfall in activity was removed from the contract for 2009/10, forecasts based on the first 2 months of activity data for 2009/10 show that activity levels have not reduced. If the trend were to continue for the full year, 2009/10 volumes of activity would be equivalent to the expected level of demand rather than planned volumes in contracts, based on capacity. This reflects that sufficient alternative arrangements and providers have not been put in place to meet the gap in capacity at MYHT. Birkdale Clinic Contract Birkdale Clinic is an independent healthcare provider, which provides predominantly ophthalmology services. As the tables above show, Birkdale Clinic has been a significant provider of ophthalmology services for NHS WD with a planned contract for 2009/10 worth £455,915. In 2008/09, 9.17% of the total admitted patient care and 5.86% of the total outpatient care for NHS WD was provided by Birkdale Clinic. Due to problems identified in a Healthcare Commission Inspection Report, the PCT suspended the contract with Birkdale Clinic on 7 December 2007. It was reinstated on 23 April 2008 following a further Healthcare Commission Inspection which demonstrated improvement. During the suspension period the provider was only permitted to see follow-up patients. In 2008/09 Birkdale Clinic underperformed against planned outpatient activity by 906 appointments (27%). The 2008/09 planned outpatient activity was overstated because ‘Did Not Attend’ (DNA) levels were included in the assumptions. 2009/10 plans do not include DNA appointments and therefore better reflect activity at outturn. Outpatient activity was also affected by 23 days of the suspension falling within this period and the delay in referrals to Birkdale Clinic resuming after the suspension. Conversely, there was an overperformance against planned admitted patient activity by 98 (27%) which can be attributed to addressing a backlog of surgical procedures which accumulated during the suspension period and initiatives to reduce waiting times at MYHT which included transfer of patients 10 to Birkdale Clinic for surgery. However, as this was on the basis of direct listing and so the related outpatient activity was still undertaken at MYHT. There are some concerns around the financial viability and clinical leadership and governance of the organisation. The contract with Birkdale Clinic is due to end on 31 March 2010. Following a review of the service, it has been decided not to renew the contract and so NHS WD will be looking to test the market. Primary Care Total spend on optical primary care activity was £3.04 million in 2007/08 and £3.21 million in 2008/09. Based on costs for the first 6 months of 2009/10, the projected annual spend is £3.69 million. The biggest proportion of costs is on sight tests and optical vouchers. Activity data shows that in both of these areas activity per 100,000 population in NHS WD is higher than the regional and national averages. In 2008/09 the number of sight tests was 25,234 (14% higher than the national average). The number of optical voucher items processed was 10,499 (30% higher than the national average). See appendices 1.11 – 1.12 for more detail on primary care activity and costs. At present optical activity in primary care is funded through a national budget and administered by WYCSA. This means that increases in activity are funded centrally (projected cost increase of £480,000 for 2009/10). However, in the future the budget may be transferred to PCTs to manage. This would mean that increases in demand and activity (above planned funding) would be a cost pressure for the PCT. Also, if the funding is transferred from the centre to PCTs it may not come with current funding levels, may not be ring fenced and projected growth would need to be funded by the PCT. Table 5: Summary of Primary Care Activity and Cost Activity Cost (£) 2007/08 Actual 116,259 3,044,564 2008/09 Actual 120,634 3,212,562 April – September 2009 (6 months) 1,846,217 2009/10 Estimated* 3,692,434 * Annual optical primary care costs for 2009/10 have been estimated by assuming equal costs in the second 6 months of the year as for the first 6 months of the year Source: The NHS Information Centre for health and social care8 and NHS WD Finance data Minor surgery for ophthalmology is not covered in any current Local Enhanced Service (LES) and so such activity by GP practices would not be claimable. Ophthalmology is not reflected in the Quality Outcomes Framework (QOF). Additional Service Costs As well as the activity and associated costs in primary and secondary care, there are additional service costs associated with ARMD treatment and cataract referrals which incur a referral fee for optometrists. 11 Table 6: Other Activity and Costs – ARMD and Cataracts ARMD Cataracts Referrals Total Activity Cost (£) Activity Cost (£)* Activity Cost (£) 2008/09 Actual 809 583,676 746 29,840 1,555 613,516 2009/10 Planned 425** 509,191** 732*** 29,280 1,157 538,471 * NHS WD pays optometrists a £40 fee for each cataracts referral. Therefore, the cost has been based on £40 for each unit of activity (referral). ** ARMD 2009/10 planned activity and cost has been estimated using the plans for MYHT and forecast for YEH based on actual activity and cost for 5 months 2009/10. Data for 2009/10 shows that MYHT are overperforming against plan and forecast activity is 664 with cost at £971,615 (significantly higher than planned). *** Cataracts 2009/10 planned activity and cost has been estimated based on actual activity for 5 months 2009/10. Source: Record of Optometrist Referrals in to PCT and SLAM Administering injections for treatment of ARMD is a specialist procedure for which providers require a licence. MYHT received special dispensation to administer injections from July 2008. Prior to this NHS WD patients were treated at Yorkshire Eye Hospital (YEH) but then transferred to MYHT, unless they chose to keep their treatment at YEH. Forecast total activity at MYHT for 2009/10 is 664 procedures at £971,615. Therefore this is a very costly service. See appendix 1.13 for more detail. 12 4.2. Referrals The data (see appendix 2.1) shows that the total number of referrals for first attendances (from all referral sources) has increased 23.7% in 2007/08 and 10.9% in 2008/09 compared to the previous years. The number of follow-up attendances has remained fairly static, indicating a reduction in the first to follow-up ratio. The reason for this is not clear. It could be due to a higher proportion of first attendances that are immediately discharged, requiring no further appointments (indicating that some referrals may be inappropriate) or due to a reduction in the total number of follow-ups for each patient. This area would merit further investigation. In the three years, the proportion of referrals originating from GPs has remained fairly static at slightly over half of the total number of referrals (53.35 - 56.92%). The proportion of self-referrals has also remained reasonably constant (2.79 – 3.27%). However, referrals from consultants (not A&E) e.g. consultant to consultant referrals, have increased from 10.66% in 2006/07, to 15.59% in 2007/08 and 18.69% in 2009/10 but it is not clear why. It should be noted that the accuracy of this data is dependant on the quality of coding. It is notable that in 2006/07 there were 938 (10.99%) first attendances without a referral source entered. Although this has reduced to less than 1% in subsequent years, “other: not Consultant responsible for out-patient” referrals have risen to 8.26 - 9.87%. Therefore, there are still a high proportion of referrals without a clear source identified. Furthermore, it is not possible from this data to identify referrals initiated by an optometrist. This is likely to be because optometrist referrals are routed through GPs or the PCT. There was a proposal previously to facilitate direct referrals from optometrists to secondary care but this was not established. This means that we do not have a clear picture of the true source of referrals. If work was to be undertaken in future to refine the referrals that GPs and Optometrists make into secondary care, further detail would be needed. Recommendation: Investigate reason for reduction in first to follow-up ratio Recommendation: Amend coding practice to reflect referrals initiated by optometrists accurately Recommendation: Facilitate direct referrals from optometrists to secondary care NHS Comparator data (see appendices 2.2 - 2.3) suggests that NHS WD’s standardised rate of first attendances per 1000 population (32.2) is slightly lower than the SHA average (33.0) but higher than the national average (29.9). Whereas, the standardised rate of first attendances per 1000 population, referred from GPs (18.2) is higher than both the SHA (16.5) and the national averages (15.8). As these rates are standardised they have 13 already been adjusted based on the age and sex profile of the local population. As noted above, referrals initiated by optometrists are not recorded and reflected in the data. It is probable that these referrals are being recorded as GP referrals and therefore artificially inflating the number of GP referrals so that the rates appear high in comparison to the SHA and national averages. It must be noted that NHS Comparator data is taken from SUS and, as Birkdale Clinic does not submit SUS returns, a significant proportion of first outpatient activity in 2008/09 (506 attendances, 4.29% of total first attendances) is not captured in this data. Therefore, NHS Comparators underestimates the rates for NHS WD. As SUS is the main data source for secondary care activity this anomaly will affect other data analysis. It is particularly significant for ophthalmology because Birkdale is a significant provider of ophthalmology services for NHS WD. Recommendation: Require Birkdale Clinic to submit data returns via SUS or explore ways to ensure that all provider activity is included in data analysis. Diagram 1 shows that there is wide variation in the rate of ophthalmology referrals from GP practices (8.8- 24.4). As the data uses standardised rates, this can not be accounted for by differences in the sex or ages profiles of the registered patients. However, in part, it could be due other demographic differences or health needs. White Rose and Rycroft Surgeries offer internal ophthalmology clinics which explains their lower referral rates. The other ‘low’ referring practices are all located on the East of the district which has historically referred more patients to Birkdale Clinic. As Birkdale activity is not reflected in this data, the rates for these practices may appear artificially low. Nonetheless, there may still be variations in referring practice between GPs which will contribute to some of the difference. 14 Diagram 1: Outpatient First Attendances per 1000 Population (New), Referred by GPs 2008/09 Standardised Rate PCT 18.2 SHA 16.5 National 15.8 Lowest 7 referrers: White Rose, 8.8 Ash Grove, 9.7 The Grange, 10.9 Friarwood, 12.0 Rycroft, 13.1 Ferrybridge, 14.8 Queen St, 15.0 Total Count 6,408 89,731 858,434 Expected Count 1,670 25,847 258,031 Count Difference 4,738 63,884 600,403 % Difference 283.7 247.2 232.7 Highest 7 referrers: Eastmoor, 24.4 Welbeck St, 24.3 New Southgate, 22.6 College Lane, 22.1 Maybush, 22.0 Tieve Tara, 21.8 Newland Lane, 21.7 15 4.3. Pathways Patient pathways reflect the various entry points and the possible journeys that a patient with a particular condition may take through the health system. Improved pathways can reduce the resources (staff, time, buildings and equipment) required to deliver health services, improve the patient experience, reduce the overall cost of services and improve outcomes. Therefore, understanding pathways is a key element of service improvement. There is a lack of clarity about current local pathways for eye conditions. Recommendation: As service specifications are developed for eye care services, commissioned pathways should be discussed and embedded. Examples of national recommended pathways can be found in appendices 3.1 – 3.2. 16 4.4. Casemix Patient pathways and service planning for ophthalmology are normally aligned to particular conditions such as cataracts and glaucoma. Therefore, it is useful to understand activity, broken down by condition (see appendices 4.1 - 4.2). However, this information is not readily available. Secondary care admitted patient activity is recorded by Health Resource Group (HRG) but these are not directly comparable with conditions. Future Sight Loss UK (1)9 outlines an approach which maps HRG descriptions to eye conditions. This approach has been applied to Wakefield District secondary care activity data. This only provides an estimation of activity by condition as some HRG codes will not map entirely to one condition but it is a useful tool nonetheless. Unfortunately, due to the way that outpatient activity is currently coded (all outpatient attendances are simply coded by specialty), it is difficult to breakdown by condition. However, Future sight loss UK (1)9 details outpatient costs for England, sourced from reference costs data, split by eye conditions using the HRG descriptions mapping system. Assuming that the profile of outpatient activity by condition in Wakefield District is broadly comparable to the national picture this gives an indication of the relative costs of outpatient activity by condition. Diagram 2: Admitted Patient Activity, by Condition, April 2007 – August 2009 6,000 5,000 Volume of Activity (spells) Cataract Diabetic Retinopathy 4,000 Other 3,000 Age-Related Macular Degeneration Glaucoma 2,000 Refractive Error 1,000 0 2007/08 2008/09 2009/10 Grand Total *2009/10 data includes 5 months, April 2009 – August 2009 Source: SUS The data shows cataracts makes up over 50% of admitted patient activity, with diabetic retinopathy being the next biggest at 21%. As expected, ARMD and glaucoma only represent a relatively small proportion of admitted patient activity (3% each) because most activity for these conditions is carried out within outpatient settings. 17 Table 7: Outpatient Costs for England 2008, by Condition Outpatients Observation Wards Total Outpatient NHS Total Outpatient – non NHS £ million £ million £ million £ million Total Outpatient – NHS and non NHS £ million ARMD 0.00 0.65 0.65 0.01 0.65 (3%) Cataracts 1.74 0.00 1.74 1.72 3.47 (16%) Diabetic Retinopathy 10.31 0.01 10.32 0.00 10.32 (48%) Glaucoma 0.83 0.00 0.83 0.00 0.83 (4%) Refractive Error 2.26 0.05 2.32 0.00 2.32 (11%) Other 3.77 0.00 3.77 0.00 3.77 (18%) TOTAL 18.91 0.71 19.63 1.73 21.36 Source: NHS Reference Costs Collection 2006-07, Future sight loss UK (1)9 The data shows that nationally 48% of outpatient costs is attributable to diabetic retinopathy. Wakefield District’s DRSS is provided by Wakefield District Community Healthcare Services (WDCHS) and, other than ophthalmologist input from MYHT, is a stand alone service. Therefore, for the purposes of this report, it is useful to analyse the proportions excluding DRSS. Of the remaining costs, 31% are on cataracts, 8% on glaucoma, 6% on ARMD with the other 55% split between refractive error and other eye diseases. Therefore, cataracts is the condition which takes up the biggest proportion of both admitted patient and outpatient care and is potentially an area where the biggest improvements could be made. Although, according to this data, glaucoma does not take up the biggest proportion of admitted patient and outpatient care, ongoing management of glaucoma patients does absorb secondary care capacity which could potentially be released. Recommendation: Outpatient activity broken down by condition is an area that would require further work. Possibilities include further analysis of outpatient data, an audit of referrals and outpatient activity or changes to coding practice. Recommendation: Cataracts is the condition which takes up the biggest proportion of both admitted patient and outpatient care and is potentially an area where the biggest improvements could be made. Recommendation: Improvements in the glaucoma pathway could release secondary care capacity. 18 4.5. Quality and Patient Experience Patient experience is one of the key dimensions of quality. In order to gain an understanding of the level of patient satisfaction with ophthalmology services and ultimately the quality of services, this section examines: Outpatient cancellations and DNAs Waiting Times Choose and Book Slot Availability Public and patient feedback, including engagement event, NHS Choices, Complaints and PALS Serious Untoward Incidents Quality reports 4.5.1. Out-Patient Cancellations and DNAs The Dr Foster comparator data (see appendix 5.3) shows that there are very few outpatient cancellations for NHS WD and MYHT. Assuming that the data is accurate, this is a very strong area of performance for both organisations. Conversely, the outpatient DNA rates are higher for NHS WD and MYHT than the national and SHA averages. For first appointments NHS WD is 8% and MYHT is 9% compared to an average of 6% nationally and regionally. For follow-up appointments NHS WD is 10% and MYHT is 12% compared to an average of 8% nationally and regionally. Although DNA rates can be influenced by the demographics of the local population, there are also actions and changes that providers can make to reduce DNA rates and hence release some of their capacity. This may be an area in which to focus improvement in NHS WD. Recommendation: Consider ways to reduce outpatient DNAs across NHS WD and especially at MYHT 4.5.2. Waiting Times The Department of Health has set a maximum patient journey of 18 weeks from referral to start of treatment. PCTs and providers are expected to meet 18 weeks for a minimum of 90 per cent of admitted patients and 95 per cent of non-admitted patients from January 2009. The data (see appendices 5.6 – 5.7) shows that in 2008/09 in Wakefield District 85% of admitted patients and 92% of non-admitted patients started treatment within 18 weeks. As such a high proportion of NHS WD ophthalmology activity (82%) is undertaken by MYHT, the performance of this trust is fundamental to the delivery of 18 weeks for the population of Wakefield District. In 2008/09 MYHT (see appendices 5.8 – 5.9) achieved 18 weeks for 83% of admitted patients and 92% of non-admitted patients. In the 14 months to May 2009, MYHT only met the admitted patient target in 4 months and the nonadmitted patient target in 3 months. The trust performance in March, April and May 2009 appears to have improved which could indicate progress towards the 18 weeks standard during 2009. 19 Even though MYHT may have improved its 18 weeks performance, the cumulative profile in Diagram 3 shows that a high proportion of MYHT patients are being seen just before the 18 week point e.g. in week 17 of their journey. MYHT is achieving its 18 week standard, in part, by transferring patients to alternative providers part way through their journey. This approach is not conducive with delivering an improved patient experience or in achieving sustainability. See appendix 5.10 for a non-cumulative chart. Diagram 3: Admitted Patient Waiting Times Cumulative Profile Aggregate data for July - Sept (provisional) Ophthalmology cumulative proportion of organisation's patients (for this PCT) treated in each week 100% 90% 80% 70% 60% 50% WAKEFIELD DISTRICT PCT 40% MID YORKSHIRE HOSPITALS NHS TRUST 30% IS PROVIDERS 20% ALL OTHER PROVIDERS 10% 'IDEAL' PROFILE 18 weeks 15 weeks 8 weeks 52 plus >50-51 >48-49 >46-47 >44-45 >42-43 >40-41 >38-39 >36-37 >34-35 >32-33 >30-31 >28-29 >26-27 >24-25 >22-23 >20-21 >18-19 >16-17 >14-15 >12-13 >8-9 >10-11 >6-7 >4-5 >2-3 >0-1 0% weeks waited Source: NHS Yorkshire and the Humber Also there was a noticeable dip in performance, particularly for admitted patients, between September 2008 and January 2009. This may have been due to winter pressures and if this is replicated in 2009/10 we would expect to see deterioration in performance during the winter months. Therefore, it would be very difficult for the trust to achieve the 18 weeks standard in ophthalmology without changes in working practices and patient management, investment in additional capacity, or a reduction in demand. Recommendation: Continued monitoring of provider RTT times and work with providers to improve performance and deliver a greater proportion of patient treatments earlier in their pathway 4.5.3. Choose and Book Slot Availability The number of unavailable slots on Choose and Book reflects patients being unable to book an appointment with the provider of their choice and therefore a high number of unavailable slots is detrimental to the patient experience. The number of unavailable slots on choose and book is monitored by 20 specialty on a weekly basis. Performance against this measure has been included within the 2009/10 contract. Diagram 4: MYHT Ophthalmology Choose and Book Slot Availability 90 Number of Unavailable Slots 80 70 60 50 40 30 20 10 09/08/2009 02/08/2009 26/07/2009 19/07/2009 12/07/2009 05/07/2009 28/06/2009 21/06/2009 14/06/2009 07/06/2009 31/05/2009 24/05/2009 17/05/2009 10/05/2009 03/05/2009 26/04/2009 19/04/2009 12/04/2009 05/04/2009 0 Date Data for MYHT, in diagram 4 shows that ophthalmology has been in the 5 specialties with the highest number of unavailable slots in every week between 5 April 2009 and 9 August 2009. The chart above shows that there has been variation in the number of issues week to week, however it is a consistently poor performing specialty. Furthermore, the number of unavailable slots has been higher since mid-June 2009 than prior to this. Therefore, there is no sign of improvement. MYHT has temporarily removed ophthalmology from the direct booking facility on choose and book so that appointments can only be booked in-directly through their own booking team. This allows MYHT more control and the ability to manage appointments but places an additional requirement on them to administer all ophthalmology bookings. The inability to book directly is detrimental to the patient experience. 4.5.4. Local Needs and Priorities The Wakefield Speaks and A Question of Health public events have helped NHS WD to understand the needs and priorities of local people. Although, the reports of these events do not include specific information regarding eye care services, the broad principles of want local people want from health services are still relevant for this service area. 21 People told us that they want: To see the same professionals wherever possible; More time with staff so they can listen and respond to practical and emotional needs; More flexible systems so that people can book appointments at times and in places convenient to them; The PCT to provide more services in the community whenever possible, although they accept that they may have to travel further for very specialist services; To be able to get as many things done as possible on each visit to an NHS service to reduce the number of trips they have to make; Staff within a service, and across different services, to work together better. Priorities that were particularly pertinent for planned care were: Make sure people can get as much done as possible in any single appointment (including access to a range of diagnostic services); Make sure services are provided in community settings, as close to home as possible; Have a wider range of staff trained to provide planned care services closer to home. NHS Choices website The NHS Choices website enables patients and the public to give feedback about NHS services. A search of the website in August 2009 showed that no comments had been left in relation to ophthalmology services at MYHT. Complaints and PALS enquiries In 2008/09 NHS WD received one complaint about the service provided by an optician and one complaint about the Diabetic Retinal Screening Service. NHS WD does not have any record of other complaints relating to ophthalmology services. NHS WD complaints department does not hold records of complaints regarding all provider organisations unless they are directed to NHS WD. For detailed information about complaints across all ophthalmology services, information would have to be obtained from providers. A request was sent to MYHT asking for details of service user and carer opinion, complaints and compliments but no information has been returned at the time of writing this report. Recommendation: Ensure that providers are contractually required to provide regular reports to NHS WD on complaints, including trend and theme analysis The NHS WD Patient Advice and Liaison Service (PALS) did not receive any queries related to ophthalmology services between 1 December 2008 to 23 July 2009. The PALS database does not record enquiries made before this date. 22 Overall, there is very limited local information on what the Wakefield District population expect and want from eye care services. Recommendation: Explore methods to engage with the public and patients and find out their expectations and what they want from eye care services 4.5.5. Serious Untoward Incidents (SUIs) NHS WD Risk Management Department do not hold any record of SUIs relating to ophthalmology in 2007/08, 2008/09 or 2009/10 (up to September 2009). NHS WD does not hold records for SUIs within secondary care providers. Recommendation: Ensure that providers are contractually required to report SUIs to NHS WD 4.5.6. Service Quality The Care Quality Commission (CQC) regulates health and social care in England. Its work includes: Registration of providers to ensure they are meeting essential common quality standards Monitoring and inspection Using enforcement powers if standards are not being met Undertaking regular reviews of the planning and provision of locals services, particular care services or pathways Reporting the outcomes of CQC work Prior to 1 April 2009 the Healthcare Commission (HCC) undertook this work in relation to healthcare. Searches of standard quality information did not show any specific references to ophthalmology services for any of our main providers (MYHT, LTHT or Birkdale Clinic). However, Birkdale Clinic is predominantly an ophthalmology provider and NHS WD only contracts with this provider for ophthalmology services. Therefore, whilst ophthalmology services were not specifically referenced in the inspection report for this provider, general findings for this provider will be particularly pertinent to ophthalmology services. As highlighted is section X, due to problems identified in a Healthcare Commission Inspection Report, the PCT suspended the contract with Birkdale Clinic for nearly 5 months in 2007/08. Summary reports, which offer a general overview of the standard of quality, can be found at www.cqc.org.uk. 23 4.6. Patient Choice Choice is a key component of the Government’s drive for a patient-centred NHS as it empowers people to get the health services they want and need. The NHS Constitution10 sets out choice as a right and PCTs are now legally required to ensure that patients get Free Choice on referral to a consultant-led service. There are a range of providers of secondary care ophthalmology services available on the Choose and Book menu. However, outpatient activity in 2008/09 shows that 88% of NHS WD first attendances and 80% of follow-ups were provided at MYHT. This indicates that less than 20% of our patients are choosing alternative providers. The demographics and attitudes of the local population impact on the proportion of patients that decide to choose an alternative provider. We understand that many of NHS WD’s population want to access services locally to where they live. There may be benefit in developing the range of providers available, in particular, alternatives that can offer local services. Optometrists make a number of referrals for cataracts. However, they do not have Choose and Book and so do not offer patients choice of provider. In order to ensure that patients are offered choice and to increase the number of patients choosing alternatives to MYHT and relieving pressure on their service, NHS WD set up a system through which optometrists refer via NHS WD where choice is offered. A flat fee of £40 is paid to optometrists for each cataracts referral. It is understood that a further £15 payment is made by MYHT to optometrists for any aftercare/follow-up that they provide for patients attending MYHT. This system was part of a revised cataract pathway for Wakefield District, including optometrists providing pre-operative and post-operative care. However it is not clear how much of the pre-operative and care optometrists are providing, for example, whether they are undertaking diagnosis; discussion of impact on lifestyle; discussion of risks and benefits of surgery; self-assessment questionnaire; suitability for surgery. It is also not clear what proportion of post-operative follow-ups are being undertaken by optometrists and at what point they are discharged from secondary care. This area would merit further investigation. There is potential for optometrists to play a greater role in the patient ‘work-up’ prior to referral. Recommendation: Undertake work to understand how cataract pathway is operating and to what extent optometrists are undertaking pre and post-operative care Recommendation: Refresh cataract pathway to enable optometrists to refer directly to secondary care, undertake pre-operative care, list directly with secondary care for surgery, undertake post-operative care 24 Recommendation: Investigate possibility of installing Choose and Book software in optometrist practices to enable them to offer patients choice and refer electronically. The National Eye Care Services Steering Group First Report11 and Commissioning Toolkit for Community Based Eye Care Services12 recommend a pathway where community optometrists play a much more significant role in the diagnosis and preparation for surgery of the patient, and in the postoperative period. The data (see appendices 6.2 – 6.3) reflected in diagram 5 shows that the proportion of patients choosing an alternative provider to MYHT for cataracts in 2007/08 (6.64%) and 2008/09 (3.08%) was very low. However, there has been a sharp increase and in each month in 2009/10 to July 2009 the number of people choosing an alternative provider (other than MYHT) has increased. This reached a high of 42% in July 2009. This suggests that patients are better informed that they are entitled to choice, have more information about alternative providers and are more willing to choose alternatives. Diagram 5: Cataracts Referrals, Choice of Provider 120.00% % Referrals to Provider 100.00% 80.00% MYHT 60.00% Other Providers 40.00% 20.00% 20 09 Ju ly 20 09 Ju ne 20 09 ay M 20 07 /2 00 8 20 08 /2 00 9 20 09 /2 01 0* Ap ril 20 09 0.00% Source: Record of Optometrist Referrals into PCT Recommendation: Explore ways to further raise awareness of Free Choice among patients, provide information to support patient choice and encourage GPs and other primary care clinicians to inform and support patients at the point of referral Recommendation: Continue to develop the provider market, in particular providers that can offer additional capacity in local, accessible settings 25 The table in appendix 6.4 lists potential alternative providers of ophthalmology services identified through internet searches. There may be other providers, particularly national providers or Foundation Trusts, that would be interested in providing ophthalmology services in Wakefield District. A soft market analysis has not been undertaken but would be recommended if NHS WD wished to explore the option of alternative providers further. Recommendation: Carry out soft market analysis to understand the potential provider market if NHS WD wished to develop a wider range of alternative providers 26 4.7. Incentives to Drive Up Performance NHS WD utilised a local incentive scheme (LIS) to encourage GP practices to undertake a review of ophthalmology referrals and follow-up appointments in secondary care. The purpose of this was to gain an understanding of practice in secondary care and where there are opportunities for improvement. 36 practices returned comments following a review of ophthalmology follow-ups in Q1 of 2008/09. The key comments are summarised in the table below. Table 8: Ophthalmology Follow-Ups – LIS 2008/09 Q1 Feedback from GP Practices Comment Number of practices raising Lack of letters or information from hospitals (includes discrepancies 8 between number of follow-ups and letters sent to practice) Review/monitoring of patient could occur within the community e.g. 12 optician, optometrist, GPwSI (in particular, for glaucoma patients) Patients could be repatriated to the community 4 Follow-up could be avoided by advice (GP/GPwSI) 2 Direct referrals possible for some patients 3 Optical intermediate/triage service would be beneficial e.g. higher 6 level specialty community optician, GPwSI Patients attending for follow-up are receiving ongoing treatment 1 Most follow-ups appropriate 10 Source: Practice feedback, LIS Q1 2008/09 ophthalmology follow-ups 10 practices commented that most follow-ups were appropriate. However, particular concerns were raised around the lack of information and letters provided from hospital trusts to GPs. Furthermore, it was suggested repeatedly that review and monitoring of patients could be undertaken by appropriately skilled professionals in the community. It was also suggested that a community service providing intermediate care or triage would be beneficial. Recommendation: Improve communication between primary and secondary care Recommendation: Consider possibilities of greater review/monitoring and intermediate services within community setting 27 4.8. Workforce Table 9: Ophthalmic Services Community Workforce Mandatory Only Contractors Additional Only Contractors Mandatory and Additional Contractors Total Number Contractors Number of Performers (individuals) Number of Performers Working* Number 15 17 23 55 91 125 Notes: *One performer may work in a number of different practices therefore appearing as a performer in several different contracts Mandatory Contracts: standard ophthalmic services at a fixed address Additional Contracts: provides domiciliary services Source: West Yorkshire Central Services Agency National figures taken form General Ophthalmic Services: Workforce Statistics for England and Wales13 show that NHS WD has 17.1 ophthalmic contractors per 100,000 population compared to 19.0 in Yorkshire and Humber SHA and 18.7 nationally. Although described as ‘ophthalmic practitioners’ in the statistics, these numbers are based on contractors. However, the local activity will be delivered by the performers, rather than contractors alone, and therefore this would be better comparison. This information was not available on a national level. The primary care activity, outlined earlier in this report shows higher levels per 100,000 population in NHS WD. Therefore, delivering higher levels of activity with a lower number of contractors may demonstrate a more efficient service or that contractors use a greater proportion of their resource for NHS activity compared to other areas which may have a greater proportion of private activity. 28 5. SERVICE PRESSURES The data and analysis within the ‘current position’ section of this report identifies a number of potential and actual service pressures. These are summarised below. Projected increase in the population and, in particular in the number of over 65s and over 80s. Projected increase in the prevalence of all ophthalmic conditions. This could be inflated further if other factors which can impact on eye health also increase, such as smoking, diabetes and hypertension. Further details can be found in section 3. Gap between MYHT expected capacity and NHS WD expected demand for ophthalmology services in 2009/10. Although the 2009/10 contract was reduced accordingly, activity so far has been overperforming at levels of the expected demand rather than capacity. Further details can be found in section 4.1. The contract with Birkdale Clinic is due to end on 31 March 2010. If it is not renewed this would result in increased demand for services at our other providers, predominantly MYHT, unless an alternative provider is established. Further details can be found in section 4.1. Lack of facility for optometrists to refer directly to secondary care. Further details can be found in section 4.2. Inefficient pathways which duplicate steps or rely on secondary care to undertake the bulk of the pathway. Further details can be found in section 4.6 and 4.7. Patient choice to receive treatment from alternative providers (other than MYHT) has increased. However, Wakefield District population’s appetite for alternative providers has traditionally been fairly low. The older demographic of the patient group requiring ophthalmology services means that a significant proportion will wish to choose MYHT. Therefore, the uptake in alternatives may plateau or alternative options and the offer of choice will need to be made more attractive to encourage take up. Further details can be found in section 4.6. Waiting times. Waiting lists require administrative management. Also operating with a high proportion of patients only being seen just before the 18 week point leads to additional pressure in the system. Extra resource is absorbed in avoiding breaches. Further details can be found in section 4.5.2. It is possible that the responsibility and budget for primary care eye care services will transfer from the national government to PCTs. This would mean that NHS WD would have to manage any financial pressure due to demand for primary care eye care services in excess of plan. Further details can be found in section 4.1. Increasing number of referrals for first attendances and comparatively high referral rates compared with the national average mean that there is a high level of demand for secondary care services. Further details can be found in section 4.2. High rates of DNAs (at MYHT) lead to inefficiency and wasted capacity within the service. Further details can be found in section 4.5.1. 29 High numbers of unavailable slots on the choose and book system (at MYHT) demonstrate inefficiency in the capacity planning and clinic scheduling. The temporary change to make ophthalmology only indirectly bookable required MYHT to administer all bookings. Further details can be found in section 4.5.3. Some other key service pressures are summarised below. 5.1. Diabetic Retinopathy Screening Service (DRSS) The diabetic population of Wakefield is currently just over 15,000 representing 4.2% of the general practice registered population with an expected growth rate of approximately 7.0% per annum6. The DRSS is provided by WDCHCS. The DRSS requires input from ophthalmologists and therefore support is provided by the ophthalmology service at MYHT. The role of the ophthalmology service at MYHT is twofold: To ensure patients attending DRSS have access to prompt referral and high quality referral, assessment and treatment if their condition necessitates; and To provide education, clinical supervision and general support to DRSS. Historically the role of MYHT has not been clearly defined, quantified, nor had appropriate clinical time and correlating funding attributed to it. There has been variation in the ophthalmologist time allocated to DRSS, linked, in part, to the turnover of consultant ophthalmologists and capacity at MYHT. Insufficient consultant ophthalmologist capacity to DRSS had led to the build up of a backlog of work, in particular in the Ophthalmic Photographic Diabetic Review (OPDR) group of patients. This has now been cleared by instigating a waiting list initiative, whilst discussions about capacity for this type of work are progressed. Discussions between commissioners, DRSS and MYHT have estimated that the ophthalmology service at MYHT would need to provide a total of 8 sessions per week in order to fulfil the requirements of supporting the DRSS. This is broken down by: 5 sessions for assessment and treatment 2 sessions for OPDR grading and assessment 1 session for support, supervision, data collection, reporting and training to DRSS staff 1 session a week is currently commissioned from the DRSS for ophthalmology input but due to this not being clearly specified a mix of assessment, grading and supervision has historically taken place within this funded session. A draft service specification for the requirements of ophthalmology in order to both support the DRSS and to provide assessment, grading and treatment as per the national requirement is currently being drafted for negotiation with 30 MYHT. This would also support a tender process, if, in the future, a decision were to be taken that MYHT was not able to provide this service and an alternative provider was required. 5.2. New NICE guidance for Glaucoma National Institute for Health and Clinical Excellence (NICE) guidance on Glaucoma and Ocular Hypertension2 was published in April 2009. The guidance recommended that the threshold for referring patients with suspected glaucoma be lowered. The Association of Optometrists (AOP) advised the profession that it must adhere to the guidance and ensure that anyone meeting the criteria is referred in order to avoid legal challenge. Although NICE later published a ‘clarification notice’ emphasising that the patient’s diagnostic measurement should be consistently elevated, it is likely that optometrists will follow the AOP advice. Very few optometrists have the skills, qualifications or equipment to be able to diagnose glaucoma in line with the guidance. Therefore, it is expected that the guidance will result in a significant increase in suspected glaucoma referrals to secondary care. Even though the guidance accepts that it will take 3-5 years to establish capacity to meet the requirements, initial indications are that optometrists are already referring in line with the NICE guidance and the AOP advice. MYHT has raised concerns that they have already experienced a dramatic increase in the rate of referrals and that a high proportion of these are not positive cases on diagnosis. The estimated build up to achieving the capacity needed to meet additional demand is 30% in year 1, increasing to 60% in year 2 and 100% in year 3. The total national costs in year 1 are estimated to be £4 million, rising to £8 million in year 2 and £13 million in year 3. For Wakefield District, it is estimated that £77,500 in costs will be incurred following the guidance, generated by the increase in secondary care referrals. This was based on a population of 315,00014. It is possible that a glaucoma referral refinement scheme delivered by community optometrists could relieve pressure on secondary care. Any such scheme would require Goldmann Applanation Tonometry (GAT) and an appropriately skilled and supervised workforce. Of the 38 optometric practices visited up to the end of 2008, 15 had an applanation tonometer, 6 of which had a GAT14. 31 6. OPTIONS APPRAISAL After consecutive years of funding increases, it is suggested that the NHS will be required to find savings of between £15 and £20 billion between 2011 and 201415. However, there will still be an expectation of the NHS to deliver against High Quality Care for All and the Quality, Innovation, Productivity and Prevention (QIPP) agenda and key standards such as 18 weeks. Therefore, commissioning decisions need to take all of these factors into consideration. National work and documentation outlines proposed pathways for eye care services with optometrists and other community practitioners playing an increased role in the provision of services. The National Eye Care Steering Group First Report11, Commissioning Toolkit for Community Based Eye Care Services12 and the LOC Support Unit proposals for Enhanced Optometric Services16, including PEARS, Glaucoma, and Cataract schemes all advocate similar approaches to the development of eye care services. This report will not seek to repeat the detail provided in these documents. Instead it gives a brief overview of the three main options for development: PEARS; glaucoma referral and refinement; and pre and post-operative cataract services. Further details can be found in the documents referenced. The National Eye Care Steering Group First Report11 pathways for glaucoma and cataract are provided in appendices 3.1 - 3.2. All of the proposals seek to retain patients within the community care setting, wherever possible. This is in line with the principles of Our Health, Our Care, Our Say17, World Class Commissioning and High Quality Care for All18 as it is about providing care closer to home, ensuring patients receive the right treatment, from the right professional, at the right time and that services are patient-centred. The broad benefits of this kind of approach are outlined below. To patients: Care closer to home or work Easier access Wider choice of venue and appointment times To PCTs/Practice-Based Commissioners: Reduction in new referrals to secondary care Reduction in outpatient follow-ups Assistance towards achieving 18 week standard Greater patient choice Better use of resources To other stakeholders (including secondary care): Improved quality of referrals Increased capacity Closer working between GPs, Pharmacists, and local Optometric Practices 32 To practitioners and practices: Common accreditation Ability to use their skills to their full extent Additional benefits: Performance monitoring Improved data collection, including patient reported outcome measures (PROMS) Smoking cessation and other public health messages could be included Source: LOCSU Enhanced Optometric Services Whilst there is strong evidence of the potential benefits of greater provision within the community, this approach should not be seen as an instant cost improvement measure. Community provision would help to reduce waiting times in secondary care by reducing demand and releasing capacity. However, unless equivalent spending is removed from secondary care, effectively by capping activity, immediate savings would not be realised. Schemes to increase community provision will also have initial set up costs. Three key community schemes are considered here. These are: Primary Eyecare Acute Referral Scheme (PEARS) Glaucoma Referral Refinement and Ocular Hypertensive Monitoring Pre and Post Operative Cataract Service There have been local discussions of the benefits of implementing PEARS. This would require cooperation between the primary care and planned care commissioning portfolios. 6.1. Primary Eyecare Acute Referral Scheme (PEARS) Acute eye care problem e.g. red eye Accredited optometrists provide service Examination appropriate to the reason for referral, diagnosis and decision on management within service, discharge or onward referral In high street optical practices or GP practices GP or self-referral Fast access e.g. with 24 hours if urgent and within 2 weeks if routine Benefits: Short waiting times (within 2 weeks) Majority of patients retained and safely managed within primary care (75–80% indicated in findings from schemes elsewhere)19 Reduces referrals into secondary care Refines referrals and ensures they are appropriate and timely Majority of referrals into secondary care deemed to be appropriate High patient satisfaction (95% ‘very satisfied’ and 5% ‘fairly satisfied’ with WECI)19 Better access, equity of access and shorter travelling times 33 Issues: Modest cost savings (SOAP) or low cost, considering clinical benefits and patient accessibility (WECI) Although reduces referrals into secondary care, for those patients ultimately referred into secondary care this adds an extra ‘step’ in their journey, which also has a cost implication Examples: Welsh Eye Care Initiative (WECI) encompasses a PEARS and Welsh Eye Care Examination (WEHE) Glasgow Integrated Eyecare Scheme (GIES) Shipley Ophthalmic Assessment Programme (SOAP) Sheffield PCT – trained 19 optometrists detailed evaluation expected in November/December 2009 Diagram 6: Outcome of Patients Examined Under Welsh Eye Care Initiative (WECI) Source: Evaluation of Welsh Eye Care Initiative (WECI) 6.2. Glaucoma Referral Refinement and Ocular Hypertensive Monitoring Suspected glaucoma; elevated Intra Ocular Pressures (IOP); or symptoms observed as part of sight test Optometrist with specialist interest; Ophthalmic Medical Practitioner (OMP) provides service Full history and assessment (including diagnostic tests) to establish if glaucoma or ocular hypertension (OHT) is present Co-management (with secondary care) of patients with stable glaucoma In community practices with appropriate equipment GP or self-referral Benefits: Assessment for glaucoma or OHT is conducted in timely fashion Patients retained and managed within primary care where appropriate Reduces referrals into secondary care (only 33% of routine glaucoma referrals from optometrists are found to have glaucoma20 and with new thresholds for referral in NICE guidance this proportion is likely to be even less) Refines referrals and ensures they are appropriate and timely Well received by patients Better access and shorter travelling times 34 Issues: Providers would need to be appropriately trained, qualified and supervised to carry out this work in line with NICE guidance Providers would need appropriate equipment to carry out diagnosis, in particular Goldmann Applanation Tonometry (GAT) and only 6 practices in Wakefield are known to currently have GAT14 and they cost approximately £900 Providers would need appropriate IT systems and ability to offer patients choice of secondary care provider if being referred May require supervision from an ophthalmologist Secondary Care providers may not wish to release this activity Examples: Manchester (reduction in false positive referrals of 40%)21 Calderdale and Kirklees LES for Glaucoma Referral Refinement Scheme (£27.50 fee for each patient for repeating applanation tonometry, fields or both)22 6.3. Pre and Post Operative Cataract Service Suspected cataract Participating community optometrists provide service Pre-operative service: diagnose cataract; assess impact on lifestyle; risks and benefits of surgery discussed; self-assessment questionnaire; suitability for surgery; offers choice of secondary care provider Direct listing for secondary care pre-operative assessment and surgery Post-operative surgery: final post-operative check up; sight test; discussion of surgery on second eye (if necessary); routine review In community practices with appropriate equipment GP or self-referral Benefits: Fewer visits for patients Reduces referrals into secondary care by reducing numbers of patients that do not convert to surgery due to not being appropriate for surgery or declining surgery on receiving information and discussing risks and benefits (90+% conversion to surgery compared with 80% previously)12 Improves quality of referrals into secondary care High patient satisfaction Better access and shorter travelling times Issues: Participating optometrists will need knowledge of the referral criteria and risk factors for surgery, included within training and accreditation arrangements Providers would need appropriate IT systems and ability to offer patients choice of secondary care provider if being referred A revised cataract pathway for Wakefield District, including optometrists providing pre-operative and post-operative care, was previously 35 established (see section 4.6). However, direct listing has not been implemented and it is not clear to what extent optometrists are undertaking the range of pre and post-operative functions. Therefore, this may indicate local resistance to change in this area. Examples: Peterborough have implemented direct listing Stockport Cataract Pre and Post-Operative Scheme 36 7. RECOMMENDATIONS AND NEXT STEPS Recommendations, based on analysis and observations, have been made throughout this report. They are summarised and categorised in the table below for NHS WD and Practice Based Commissioners to consider further. Recommendation 1 Investigate reason for reduction in first to follow-up ratio 2 Outpatient activity broken down by condition is an area that would require further work. Possibilities include further analysis of outpatient data, an audit of referrals and outpatient activity or changes to coding practice. Undertake work to understand how cataract pathway is operating and to what extent optometrists are undertaking pre and post-operative care Ensure that providers are contractually required to provide regular reports to NHS WD on complaints, including trend and theme analysis Ensure that providers are contractually required to report SUIs to NHS WD Explore methods to engage with the public and patients and find out their expectations and what they want from eye care services Explore ways to further raise awareness of Free Choice among patients, provide information to support patient choice and encourage GPs and other primary care clinicians to inform and support patients at the point of referral Facilitate direct referrals from optometrists to secondary care As service specifications are developed for eye care services, commissioned pathways should be discussed and embedded. Cataracts is the condition which takes up the biggest proportion of both admitted patient and outpatient care and is potentially an area where the biggest improvements could be made. Improvements in the glaucoma pathway could release secondary care capacity. Consider ways to reduce outpatient DNAs across NHS WD and especially at MYHT Continued monitoring of provider RTT times and work with providers to improve performance and deliver a greater proportion of patient treatments earlier in their pathway Consider possibilities of greater review/monitoring and intermediate services within community setting Refresh cataract pathway to enable optometrists to refer directly to secondary care, undertake pre-operative care, list directly with secondary care for surgery, undertake postoperative care Investigate possibility of installing Choose and Book software in optometrist practices to enable them to offer patients choice and refer electronically. Continue to develop the provider market, in particular 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 Type Understand Further Understand Further Understand Further Quality of Information Quality of Information Communication Communication Service Improvement Service Improvement Service Improvement Service Improvement Service Improvement Service Improvement Service Improvement Service Improvement Service Improvement Market 37 18 providers that can offer additional capacity in local, accessible settings Carry out soft market analysis to understand the potential provider market if NHS WD wished to develop a wider range of alternative providers Development Market Development This report will now be shared with stakeholders. NHS WD should work with Practice Based Commissioners as well as the Local Optometry Committee to consider and prioritise the recommendations. 38 1 The Operating Framework for the NHS in England 2009/10 http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitala sset/dh_091446.pdf 2 NICE Clinical Guideline 85: Diagnosis and management of chronic open angle glaucoma and ocular hypertension http://www.nice.org.uk/nicemedia/pdf/CG85NICEGuideline.pdf 3 A Rapid Health Needs Assessment for Ophthalmology, prepared by Warren Holroyd v4 16/10/2009 This document can provided by Public Health Intelligence & Capacity Building Team or Planned Care Commissioning Team. The document should be circulated with this report. 4 ONS/Dr Foster/JSNA, WDNHS (2008), p28 ONS. (2009). Spreadsheet accessed on request: Wakefield LSOA Single Year Estimates. Accessed 25/08/09. Available via request to the Office of National Statistics. WDNHS. (2008). Developing Healthier Communities - Joint Strategic Needs Assessment for Wakefield 2008. Accessed 19/08/09. Available via the Intranet at: http://nww.wdpct.nhs.uk/ 5 NEHEM. (2009). Website: National Eye Health Epidemiological Model. Accessed 19/08/09. Available via the World Wide Web at: http://www.eyehealthmodel.org.uk 6 Draft Service Specification for the Provision of a Diabetic Retinopathy Screening Service between NHS WD and WDCHCS 7 DH Tariff Information: confirmation of Payment by Results (PbR) arrangements for 2009-10 http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_0 94091 8 General Ophthalmic Services: Activity Statistics for England and Wales, Year Ending 31 March 2009 http://www.ic.nhs.uk/pubs/gosactivity0809p2 9 Future Sight Loss UK (1): The economic impact of partial sight and blindness in the UK adult population http://www.vision2020uk.org.uk/ukvisionstrategy/page.asp?section=74 10 NHS Constitution for England http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidanc e/DH_093419 11 National Eye Care Services Steering Group First Report (2004) http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitala sset/dh_4080999.pdf 12 Commissioning Toolkit for Community Based Eye Care Services http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitala sset/dh_063958.pdf 13 General Ophthalmic Services: Workforce Statistics for England and Wales, 31 December 2008 http://www.ic.nhs.uk/statistics-and-data-collections/primary-care/eye-care/general-ophthalmicservices:-workforce-statistics-for-england-and-wales-31-december-2008 14 NHS Wakefield District Briefing Paper – NICE Guidance and Ocular Hypertension 39 15 The Year 2008/09 http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_0 99700.pdf 16 LOC Support Unit Guides http://www.loc-net.org.uk/locsu/index.html 17 Our Health, Our Care, Our Say http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidanc e/DH_4127453 18 High Quality Care for All http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitala sset/dh_085828.pdf 19 PEARS scheme evaluations: Welsh Eye Care Initiative (WECI) Full Evaluation http://www.wales.nhs.uk/sites3/Documents/562/MASTER%20BLASTER%20DOCvJW.pdf Glasgow Integrated Eyecare Scheme (GIES) and Shipley Ophthalmic Assessment Programme (SOAP) findings quoted in: Commissioning Toolkit for Community Based Eye Care Services http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitala sset/dh_063958.pdf 20 Vernon SA, Ghosh G, Eye (2001) 15, pp458-463 21 DB Henson, AF Spencer, R Harper and EJ Cadman, Community refinement of glaucoma referrals Eye (2003) 17, pp21-26 22 Local Enhanced Service Agreement for Glaucoma Referral Refinement Scheme in Calderdale and Kirklees 40