ULSS 20 Verona RDD – Recommendations for Good Practice “RESCUING Injured Disabled Persons in Case of Disasters - Civil Protection’s Challenge in the Challenge” Grant Agreement: N°07. 030601/2005/423643/sub/a5 Recommendations for Good Practice Project Partners With the support of the European Commission ULSS 20 Verona RDD – Recommendations for Good Practice UNITED NATIONS CONVENTION ON THE RIGHTS OF PERSONS WITH DISABILITIES Article 11. Situations of risk and humanitarian emergencies “States parties shall take, in accordance with their obligations under international law, including international humanitarian law and international human rights law, all necessary measures to ensure protection and safety of persons with disabilities in situations of risk, including situations of armed conflict, humanitarian emergencies and the occurrence of natural disasters.” 2 ULSS 20 Verona RDD – Recommendations for Good Practice EXECUTIVE SUMMARY 6 CHAPTER 1: DEFINITION OF DISABILITY 7 1.1 INTRODUCTION 7 1.2 THE WHO DEFINITION OF DISABILITY 7 1.3 DISABILITY DEFINITION IN EUROPE 8 1.4 FROM MEDICAL MODEL TO SOCIAL MODEL 10 1.5 THE CONVENTION ON THE RIGHTS OF PERSONS WITH DISABILITIES 11 1.6 THE DEFINITION IN THE PROJECT 12 CHAPTER 2: DEFINITION OF DISASTER 14 2.1 INTRODUCTION 14 2.2 DEFINITIONS 14 2.3 TOWARD A NEW APPROACH 16 2.4 THE MAIN PARADIGMS 17 2.5 PARTICIPATION AND VULNERABILITY 18 2.6 THE DEFINITION IN THE PROJECT 20 CHAPTER 3: LITERATURE REVIEW 21 3.1 INTRODUCTION 21 3.2 OBJECTIVES OF THE WORK 21 3.3 KEYWORDS 21 3.4 METHODOLOGY APPLIED 22 3.5 SETTING 22 3.6 DISCUSSION 3.6.1 GUIDELINES 3.6.2 INSTRUCTIONS FOR HELPERS (MANUALS) 3.6.3 SELF-HELP INSTRUCTIONS 3.6.4 RESEARCH, CASE STUDIES, REPORTS AND GOOD PRACTICES 3.6.5 CURRENT SITUATION 3.6.6 RECOMMENDED APPROACHES 22 23 25 28 29 33 36 3.7 CONCLUSIONS 43 3.8 RECOMMENDATIONS 44 CHAPTER 4: LEGISLATIVE REVIEW 45 4.1 INTRODUCTION 45 4.2 OBJECTIVES OF THE WORK 45 4.3 KEYWORDS 46 3 ULSS 20 Verona RDD – Recommendations for Good Practice 4.4 METHODOLOGY APPLIED 46 4.5 SETTING 47 4.6 DISCUSSION 4.6.1 THE EUROPEAN PICTURE 4.6.2 ITALY 4.6.3 HUNGARY 4.6.4 SLOVENIA 4.6.5 SPAIN 4.6.6 IRELAND 47 48 49 50 51 52 52 4.6 CONCLUSIONS 54 4.8 RECOMMENDATIONS 55 CHAPTER 5: SECTOR ANALYSIS 56 5.1 INTRODUCTION 56 5.2 OBJECTIVES OF THE WORK 57 5.3 KEYWORDS 57 5.4 METHODOLOGY APPLIED 57 5.5 SETTING 58 5.6 DISCUSSION 5.6.1 DESCRIPTIVE ANALYSIS OF THE SECTOR 5.6.2 CURRENT SITUATION 5.6.3 SECTORAL EXPERIENCES 5.6.4 APPROVED DOCUMENTS OR EXPRESSIONS OF INTEREST 58 58 64 69 74 5.7 CONCLUSIONS 75 5.8 RECOMMENDATIONS 76 CHAPTER 6: RECOMMENDATIONS FOR GOOD PRACTICE 78 6.1 78 INTRODUCTION 6.2 KEY CONCEPTS 6.2.1 ROLE OF PERSONS WITH DISABILITY 6.2.2 NEEDS OF PERSONS WITH DISABILITY 6.2.3 DIVERSITY AND DISABILITY 6.2.4 STAKEHOLDERS AND ACTORS INVOLVED 6.2.5 COMMUNITY-BASED APPROACH 6.2.6 INTER-SERVICE/INTEGRATED/TRANSVERSAL APPROACH 6.2.7 THE DIFFERENT STAGES OF DISASTER 78 78 78 78 78 79 79 79 6.3 POLICY AND PRACTICE 6.3.1 NORMS AND LEGISLATION 6.3.2 SIMULATION SCHEMES 6.3.3 TECHNOLOGY 6.3.4 ACCESSIBILITY 79 79 80 80 80 6.4 TRAINING AND INFORMATION 6.4.1 TRAINING AND CAPACITY BUILDING 6.4.2 INFORMATION 6.4.3 STATISTICS AND DATA 6.4.4 AWARENESS RAISING 80 80 81 81 81 4 ULSS 20 Verona RDD – Recommendations for Good Practice 6.4.5 INTERNATIONAL ALLIANCES AND NETWORKING 6.4.6 FUNDING 6.4.7 EXCHANGE OF GOOD PRACTICE 82 82 82 6.5 KEY ELEMENTS OF A COMMUNICATION RESCUING AND TRASPORTATION SYSTEM FOR DISABLED PERSONS IN CASE OF DISASTER 6.5.1 INTRODUCTION 6.5.2 PLANNING AND PREPAREDNESS 6.5.3 RESCUE AND RECOVERY 6.5.4 RELIEF 83 83 84 85 86 BIBLIOGRAPHY 87 AUTHORS AND PROJECT PARTNERS 964 ACKNOWLEDGEMENTS 96 SPECIAL THANKS 98 ANNEXES 99 ANNEX 1: OFFICIAL DEFINITIONS OF DISABILITY BY INTERNATIONAL ORGANISATIONS 99 ANNEX 2: MATRIX AND GUIDELINES FOR COLLECTION OF LITERATURE INFORMATION 102 ANNEX 3: SUMMARY MATRIX OF LITERATURE PER PARTNER COUNTRY 105 ANNEX 4: MATRIX AND GUIDELINES FOR COLLECTION OF LEGISLATIVE INFORMATION 114 ANNEX 5: SUMMARY MATRIX OF LEGISLATION PER PARTNER COUNTRY 118 5 ULSS 20 Verona RDD – Recommendations for Good Practice EXECUTIVE SUMMARY In December 2005, the European Commission (DG Environment - Directorate A: Communication, Legal Affairs and Civil Protection) awarded ULSS 20 Verona (Italy) a grant for the co-financed project “Rescuing Injured Disabled Persons in Case of Disasters - Civil Protection’s Challenge in the Challenge” (Grant Agreement 07.030601/2005/423643/SUB/A5). As has emerged from recent dramatic experiences, persons with disabilities are the most at risk in case of disasters of any typology. With this in mind, the above-mentioned project aims at identifying and establishing shared guidelines and recommendations for efficiently and effectively responding to the needs of persons with disabilities in the case of disasters. In the implementation of its activities, ULSS 20 Verona has collaborated with a multi-sectoral team of partners Choros (Italy); Codice Europa (Spain); Hope Project (Ireland); The Ministry of Youth, Family, Social Affairs and Equal Opportunities (Slovenia); University of Pécs (Hungary), as well as supporters at the European level such as national and local civil protection units, fire brigades, emergency systems units, social services and associations for persons with disabilities. This report summarises the findings of the research that was carried out by the partners within the framework of the above-mentioned project. The contents of this report were discussed at the project final conference held in Verona on 8-9 November and modified according to participants’ comments and suggestions. The report intends to reach a wide audience, including European civil protection units; other organisations dealing in rescue operations (e.g. emergency services, emergency planners and responders, relief organisations); organisations representing persons with disabilities and European policy makers. The sole responsibility for the contents of this report lies with the author and the European Commission is not responsible for any use that may be made of the information contained therein. March 2008 6 ULSS 20 Verona RDD – Recommendations for Good Practice CHAPTER 1: DEFINITION OF DISABILITY 1.1 INTRODUCTION In the context of the project “Rescuing Injured Disabled Persons in Case of Disasters – Civil Protection’s Challenge in the Challenge” a two-day technical meeting was held on the 4th and 5th of April 2006 in Verona. At this meeting, it was agreed that one of the first project tasks was the identification and analysis of existing definitions of disability in order to agree upon one definition of disability to be utilised within the context of the project. ULSS 20 Verona led this activity. 1.2 THE WHO DEFINITION OF DISABILITY In 1976, the World Health Organisation (WHO) provided a first definition/classification of disability called the International Classification of Impairments, Disability and Handicaps (ICIDH). This classification makes a distinction between impairment, disability and handicap, defined as follows: “an impairment is any loss or abnormality of psychological, physiological or anatomical structure or function; a disability is any restriction or lack (resulting from an impairment) of ability to perform an activity in the manner or within the range considered normal for a human being; a handicap is a disadvantage for a given individual, resulting from an impairment or a disability, that prevents the fulfilment of a role that is considered normal (depending on age, sex and social and cultural factors) for that individual”1. According to the ICIDH classification, handicap is a function of the relationship between disabled persons and their environment and it occurs when they encounter cultural, physical and/or social barriers, which prevent their access to the various systems of society that are available to other citizens. Therefore, handicap is the loss or limitation of opportunities to take part in the life of the community on an equal level with others. The evolution of the ICIDH classification is the ICF (International Classification of Functioning, Disability and Health), published by WHO in May 2001 and accepted in 191 countries as the international standard to describe and measure health and disability2. The ICF defines functioning and disability as multi-dimensional concepts, relating to: the body functions and structures of people; activities people do and the life areas in which they participate; factors in their 1 World Health Organisation. Document A29/INFDOCI/1, Geneva, Switzerland, 1976 World Health Organisation, International Classification of Impairments, Disabilities, and Handicap: A manual of classification relating to the consequences of disease, Geneva, 1980 2 7 ULSS 20 Verona RDD – Recommendations for Good Practice environment that affect these experiences. For each of these components, the ICF provides a hierarchy of classifications and codes. In the ICF, a person’s functioning or disability is conceived as a dynamic interaction between health conditions and environmental and personal factors3. The new ICF classification illustrates a clear shift: from describing disability, impairment and handicap in terms of diminishment to describing body structure, functioning activities and participation in an objective way. The ICF takes into account the social aspect of disability and provides a mechanism to document the impact of the social and physical environment on a person’s functioning. For instance, when a person with a serious disability finds it difficult to work in a particular building because it does not provide ramps or elevators, the ICF identifies the needed focus on an intervention (e.g. the provision of these facilities in the building), not that the person should be forced out of the job due to an inability to work. By measuring the ability/inability of an individual to participate actively in the society, this classification puts all disease and health conditions on an equal level irrespective of their cause, creating a new neutral approach that tries to overcome discrimination and stigmatisation. 1.3 DISABILITY DEFINITION IN EUROPE The definition of disability is a very complex issue4. There is no common definition of “disability” across Europe. Definitions and criteria for disability in Europe vary according to policy objectives, legislation and administrative standards in the different Member States and, as such, differ widely throughout the Member States5. Nevertheless, questions of definitions are crucial to the development of coherent policies in respect to disability. It was in this context that the Directorate General for Employment and Social Affairs in 2002 commissioned a study, produced by Brunel University6, based on comparative analysis of national policies. The study provides detailed country by country information about national policies in favour of disabled persons and analyses the way in which different definitions of disability have influenced those policies. The report shows that the different definitions of disability present within single nations are relevant to different policies. The definitions used in anti-discrimination legislation are usually very broad, potentially including people with minor disabilities. These laws focus on the act of discrimination rather than the health status of the person. The definitions used in social policy are more restrictive, as they are used within processes which allocate scarce resources to those whose needs have been recognised. 3 http://www3.who.int/icf/icftemplate.cfm (WHO ICF website); http://www.cdc.gov/nchs/about/otheract//icd9/icfhome.htm (ICF homepage) 4 http//www.un.org 5 COM (2005) 604 final, 28.11.2005 6 Definition of disability in Europe: a comparative analysis, Brunel University, 2002 8 ULSS 20 Verona RDD – Recommendations for Good Practice What emerges from the study is the fact that confusion and lack of clarity concerning the concept of disability present a major barrier to the drawing up of comparative analyses and evaluations of disability policies and programmes within the European Commission. It is therefore necessary to formulate open inclusive definitions of disability at a European level in order to model society in a fully inclusive way. Notwithstanding the lack of a common definition of disability, there are numerous initiatives at the EU level to strengthen EU commitment and raise awareness of disability issues more generally. In 2003, the EU decided to adopt the European Year of People with Disabilities (EYPD). The concept developed by the Commission and the Member States for the European Year offered disabled people at national, regional and local levels the opportunity to bring their issues of concern to the forefront and contribute to focusing policy priorities and encouraging specific actions7. The Year was set up as a people’s campaign, built on a strong alliance of non-governmental organisations representative of people with disabilities, such as the European Disability Forum8 and disability organisations at the national level, public administration commitment, social partners, corporate support and organisations of service providers. The Commission emphasises the fact that people with disabilities and their representatives should be put at the forefront for the campaign for change and involved in the planning, monitoring and evaluation of changes in policies, practices and programmes 9. The EYPD campaign has reinforced the message, at all levels, that disability does not mean inability10. The EU strategy on disability was clearly fixed in the Disability Action Plan (DAP), established by the European Commission to ensure a coherent follow-up policy to the European Year of People with Disabilities in the enlarged Europe. The EU strategy is built on three pillars: (1) anti-discrimination legislation and measures, which provide access to individual rights, (2) eliminating barriers in the environment that prevent disabled people from exercising their abilities, and (3) mainstreaming disability issues in the broad range of community policies which facilitate the active inclusion of people with disabilities11. 7 COM (2003) 650 final, 30.10.2003 The European Disability Forum is the non-governmental umbrella organisation representing people with disabilities at European level. http://www.edf.feph.org. 9 COM (2005) 486 final, 13.10.2005 10 COM (2005) 486 final, 13.10.2005 11 COM (2005) 604 final, 28.11.2005 8 9 ULSS 20 Verona RDD – Recommendations for Good Practice The DAP covers the period 2004-2010 and is centred on three operational objectives: (1) full implementation of the Employment Equality Directive, (2) successful mainstreaming of disability issues in relevant community policies, and (3) improving accessibility for all12. The Commission emphasises the fact that structured mainstreaming of disability is indispensable in the changing EU economic and social environment. Mainstreaming means that the needs of disadvantaged people have to be taken into account in the design of all policies and measures and that action on behalf of disadvantaged people is not limited to those policies and measures specifically addressing their needs13. Disability policies are essentially the responsibility of Member States, but community policies and actions impact the situation of disabled people in many ways14. Therefore, the EC recommended that Member States take full account of the DAP when developing national disability policies. 1.4 FROM MEDICAL MODEL TO SOCIAL MODEL Disability is difficult to define because it is a multi-dimensional concept with both objective and subjective characteristics. When interpreted as an illness or impairment, disability is seen as fixed in an individual’s body or mind. When interpreted as a social construct, disability is seen in terms of socio-economic, cultural and political disadvantages resulting from an individual’s exclusion. Persons with disabilities, advocacy groups, medical practitioners and the general public all have a different view of disability. And the meaning of disability has evolved over the years through various perspectives. The two major classifications are the medical model and the social model discussed below. The medical model views disability as a personal problem directly caused by disease, accident or some other health condition and capable of amelioration by medical interventions such as rehabilitations. For the medical model, disability is an intrinsic characteristic of individuals with disability. This assumption translates into practices that attempt to fix individuals’ abnormalities and defects, which are seen as strictly personal conditions. This model has been criticized for its limitations. The model ignores the role of the social and physical environment in the disabling process. Moreover, the model locates the defect in a person’s body or mind and that person may be defined as defective, abnormal and by extension biologically or mentally inferior15. 12 Idem COM (2003) 650 final, 30.10.2003 14 COM (2005) 604 final, 28.11.2005 15 http://www.hrsdc.gc.ca/en/home.shtml 13 10 ULSS 20 Verona RDD – Recommendations for Good Practice In contrast, the social model sees disability not as an inherent attribute of a person, but as a product of the person’s social context and environment, including its physical structure (the design of buildings, transport systems, etc.) and its social constructions and beliefs, which lead to discrimination16. There are many variations of the social model but all portray disability as a social construct created by ability-oriented and ability-dominated environments. According to this model, even though impairment has an objective reality that is attached to the body or mind, disability has more to do with society’s failure to account for the needs of persons with disabilities. A distinct subgroup of the social model is the human right model. This model is primarily concerned with the individual’s inherent dignity as a human being. The European Commission sees disability as a social construct and a human rights issue 17. Article 13 of the Amsterdam Treaty says that the Union has the power to combat discrimination on the grounds of sex, religion or belief, race, age, sexual orientation and disability. The EU social model of disability stresses the environmental barriers in society which prevent the full participation of people with disabilities in Europe18. It implies that policies should be directed at the removal of barriers to full participation for disabled people, rather than "problematising" disabled persons. This suggests that policy should be concerned with identifying disabling situations rather than disabled people. One of the limits of the social model, as seen by the EC, is the fact that the model raises a number of important issues for social policies, but does not give indications on how definitions in social policy should be formulated and operationalised19. 1.5 THE CONVENTION ON THE RIGHTS OF PERSONS WITH DISABILITIES The UN Convention on the Rights of Persons with Disabilities was adopted on December 13, 2006 and opened for signature and ratification on 30 March 2007 at the United Nations Headquarters in New York. This human rights treaty, the first in the 21st century and the fastest negotiated in history, will protect and promote the rights of 650 million persons with disabilities, 10% of the world's population. It represents the long-term strategy for the states and their obligations towards persons with disabilities. An unprecedented 16 Definition of disability in Europe: a comparative analysis, Brunel University, 2002 COM (2001) 271 final, 29.05.2001 18 COM (2003) 650 final, 30.10.2003 19 Definition of disability in Europe: a comparative analysis, Brunel University, 2002 17 11 ULSS 20 Verona RDD – Recommendations for Good Practice 82 countries signed the Convention and 44 signed the Convention's Optional Protocol, a monitoring mechanism that addresses individual violations20. According to the Convention, disability is an evolving concept and results from the interaction between a person’s impairment and obstacles, such as physical barriers and prevailing attitudes that prevent their participation in society21. The more obstacles there are the more disabled a person becomes. Persons with disabilities have long-term physical, mental, intellectual, or sensory impairments such as blindness, deafness, impaired mobility and developmental impairments. Some people may have more than one form of disability and many, if not most people, will acquire a disability at some time in their life due to physical injury, disease or aging22. 1.6 THE DEFINITION IN THE PROJECT The ICF classification of functioning disability and health views functioning and disability as a complex interaction between the health condition of the individual and the contextual factors of the environment as well as personal factors. The picture produced by this combination of factors and dimensions is of "the person in his or her world". The classification treats these dimensions as interactive and dynamic rather than linear or static. It allows for an assessment of the degree of disability, although it is not a measurement instrument. It is applicable to all people, whatever their health condition. The language of the ICF is neutral as to etiology, placing the emphasis on function rather than condition or disease. It also is carefully designed to be relevant across cultures as well as age groups and genders, making it highly appropriate for heterogeneous populations23. Furthermore, the ICF definition has taken into account aspects of both the social and medical model and achieved a synthesis of both approaches which is useful for multiple users and in different sectors. The ICF defines disability as a functioning in multiple life areas and sees disability as a result of an interaction between a person (with a particular health condition) and that person’s contextual factors (environmental factors and personal factors). Moreover, according to ICF definition disability covers a spectrum of various levels of functioning at the body, person and societal levels. Disability denotes impairments in body functions and structures, as well as limitation in activity and restriction in participation all at the same time. In this sense, ICF represents health and participation in society as basic human rights. 20 http://www.un.org/disabilities/convention/signature.shtml The Convention on the Rights of Persons with Disabilities, Preamble, point e. 22 http://www.un.org/disabilities/convention/questions.shtml 23 http://en.wikipedia.org/wiki/International_Classification_of_Functioning,_Disability_and_Health 21 12 ULSS 20 Verona RDD – Recommendations for Good Practice Therefore, we consider the following definition of disability as the more comprehensive and appropriate definition within the context of the project: Rescuing Injured Disabled Persons in Case of Disasters: Civil Protection’s Challenge in the Challenge: Disability is defined as "the outcome or result of a complex relationship between an individual's health condition and personal factors, and of the external factors that represent the circumstances in which the individual lives" (WHO - International Classification of Functioning Disability and Health, 2001). 13 ULSS 20 Verona RDD – Recommendations for Good Practice CHAPTER 2: DEFINITION OF DISASTER 2.1 INTRODUCTION During the bilateral meeting held on the 4th of August 2006 in Verona between ULSS 20 Verona and the Hungarian partner (Pécs University), it was decided that Pécs University would be in charge of the task of collecting the existing definitions of disaster as a first step towards agreement upon one definition to be utilised within the context of the project. After reviewing and receiving feedback from Choros and Codice Europa on a summary document with the results of the research on the definitions of disaster, ULSS 20 Verona in collaboration with the Italian National Department for Civil Protection formalised a final document with the above-mentioned information. 2.2 DEFINITIONS To arrive at a common definition of disaster is quite a complex issue. There have been many attempts to define disasters, but all run into the problem of either being too broad or too narrow 24. In general, most disaster events are defined by the need for external assistance, but the decision on which situations require external assistance may differ by country or region and, in some situations, may also depend on political considerations. Cited below are the main definitions available in literature: Disaster is “an act of nature or an act of man of sufficient magnitude and severity to create in the community a situation where the normal pattern of life is suddenly disrupted, posing serious and immediate threats to public health”25 (A. Chamiowitz, 1980) “An overwhelming ecological disruption occurring on a scale sufficient to require outside assistance”26 (PAHO-Pan American Health Organization, 1980) “Disasters are exceptional events which suddenly kill or injure large numbers of people” 27 (Red Cross/Red Crescent) 24 www.pitt.edu Chamiowitz, A. (1980), Disease problem in post-disaster situations. In: Mahon, A.G., Jooste, M. (eds) Disaster Medicine; Report of proceedings of the International conference on disaster medicine held in Cape Town August 1979, Cape Town, Rotterdam, South Africa, AA Balkema. 26 www-paho.org 27 http://www.pitt.edu/~epi2670/disaster/DisasterEpidemiology.pdf 25 14 ULSS 20 Verona RDD – Recommendations for Good Practice “A disaster, by definition, is an unscheduled, overwhelming event that causes death, injury, and extensive property damage”28 (Rubin et al. 1985) A disaster is “a sudden calamitous event producing great damage, loss, and distress”29 (Webster’s Third New International Dictionary) “A great or sudden misfortune”30 (The Concise Oxford Dictionary) “Very recently the Dutch Parliament passed a new Disaster Act. It defines disaster as an event that endangers the life and health of many people or causes severe harm to material interests, and that requires coordinated efforts on the part of agencies and organisations from various fields of expertise”31 (Uriel Rosenthal in L. Comfort 1988) “Disasters are sudden unplanned disruptions in the social order”32 (L.Comfort, 1988) “A disaster is an interruption in time and space of normal processes causing death, injury or homelessness, economic or property loss, and/or significant environmental damage. The interruption is beyond the coping capacity of the community and/or is beyond the assumed risk factors of human activity such as transportation and handling of dangerous goods. The interruption precludes war. The community is able to cope with an event if and only if: there is no requirement for assistance from outside the community; the community can assume the cost of the event, and normal community activity is not disrupted because of the event”33 (Definition chosen by EPCCanadian Electronic Disaster Database for the purpose of its database on disasters) “A serious disruption of the functioning of a community or a society, causing widespread human, material, economic or environmental losses which exceed the ability of affected community or society to cope using only its own resources. Disasters are often classified according to their cause (natural or man-made)”34 (Official definition of Disaster of the United Nations) 28 Rubin C.B., Barbee D.G. (1985), Disaster recovery and hazard mitigation: bridging the intergovernmental gap. Public Administration review 29 Babcock Gove P. Webster’s Third New International Dictionary. Unabridged Online. Merriam Webster. 30 Stevenson A. (2004) The Concise Oxford English Dictionary. 11th Edition. 31 Rosenthal U.(1988), Disaster Management in the Netherlands: Planning for Real Events. In Comfort L.K., Managing Disaster: Strategies and Policy Perspectives 32 Comfort L.K. (1988), Managing Disaster: Strategies and Policy Perspectives 33 Tudor C. (1997), EPC Electronic Disaster Database and its Characteristics. Emergency Preparedness. Canada. Ottawa. 34 UN, Dep. of Humanitarian Affairs, ONUG/DHA, Gestion des Catastrophes (ESF), 1992, Glossair 15 ULSS 20 Verona RDD – Recommendations for Good Practice “Disaster means a serious disruption of the functioning of society, posing a significant, widespread threat to human life, health, property or the environment, whether caused by accident, nature or human activity, and whether developing suddenly or as the result of complex, long-term processes”35 (Tampere Convention) “A crisis event that surpasses the ability of an individual, community, or society to control or recover from its consequences”36 (NOAA - Coastal Services Centre. US) “A disaster is a situation or event which overwhelms local capacity, necessitating a request to a national or international level for external assistance”37 (CRED - Centre for Research on the Epidemiology of Disasters) The definitions cited above lead to the following conclusions/considerations: 1. Different disaster definitions are formulated in the different fields according to their usefulness. 2. The majority of definitions focus on a mismatch between tasks and resources in such a way that problems that could have been solved if resources were available are not solved unless resources are brought in from outside the affected area. 3. Some definitions focus on exceptionality, unpredictability and normality break aspects of disasters. 4. There is often a clear cut distinction between natural and man-made disasters. 5. Some definitions keep the focus on death, injury or property damage. The above listed definitions analyse the effects of disasters from different points of view without taking into full consideration the interrelation of the different factors involved. Furthermore, most of them consider only the tangible resources involved in the event. 2.3 TOWARD A NEW APPROACH In a scientific article in 1997, Al-Madhari and Keller38 underlined how the term disaster has to be seen from many prospectives (e.g. sociological, psychological, medical, relief, economic, academic, etc.) because all of these fields are interrelated. For example, a medical disaster definition emphasising the number of persons in immediate need of medical treatment has to consider also the psychological and social aspects related to this topic. In a similar way, disaster economy must also include intangible variables and focus on what promotes health and well being, both physical and mental. The two authors 35 Tampere Convention on the Provision of Telecommunication Resources for Disaster Mitigation and Relief Operation, 1988 www.csc.noaa.gov 37 www.cred.be 38 Al-Madhari, A.F. & Keller, A.Z. (1997), Review of disaster definitions. Prehospital and disaster medicine 36 16 ULSS 20 Verona RDD – Recommendations for Good Practice highlighted how it is not feasible to formulate a universally acceptable definition of disaster that can satisfy all practitioners because most of the definitions used are too general. Nevertheless, they stressed the urgency to formulate an agreement upon definitions in the various fields and areas concerned with disasters. Other authors39 recently noted that in addition to non-universally accepted definitions of disaster, there are no universally available criteria to define disasters in terms of the consequences, such as the casualties and the cost of the damage. For example, it is not essential that deaths occur for an event to constitute a disaster. Also, there is no minimum economic loss to qualify the event as a disaster, as communities have different financial resources available for protection and recovery. Furthermore, disasters are often classified as natural or man-made, but the distinction between natural and man-made disasters is not very evident. In fact, environmental changes that can lead to events defined as disasters are more often the results of an interrelation between natural and human activities. Furthermore, technical scarcity, organisational scarcity and political scarcity have more to do with society than with nature40. 2.4 THE MAIN PARADIGMS Participation and interdisciplinarity in disaster start with identifying the different paradigms in which these concepts are embedded. The technological paradigm (pre-1960) was based on the modernist paradigm that natural hazards cause disasters, and therefore focused on technological and scientific solutions. Disaster studies were the domain of geologists, seismologists and hydrologists and the application of the paradigm resulted in top-down controlled projects for disaster prevention41. The behavioural paradigm (1960-1970s) sought to eradicate disaster by changing the behaviour of the people living in areas at risk of disasters through education and training42. This paradigm was based on the premise that people are capable of determining risk and strategising their living patterns and therefore, an involvement of local residences was deemed necessary in producing disaster management and risk reduction politics. Ibrahim M. Shaluf, Fakharu’I-razi Ahmadun, Aini Mat Said (2003), A review of disaster and crisis. In Disaster Prevention and Management 40 Mehta L. (2000), Rethinking key assumptions in natural resources management: drawing lessons from the case of water. Draft report, presented at the 8th biennial conference of the international association for the study of the common property. Bloomington, Indiana 41 Warner J., Waalewijn P., Hilhorst D. (2002), Public Participation in Disaster-Prone Watersheds. Time for Multi-Stakeholder Platform. Paper for the Water and Climate Dialogue. Disaster Studies. Irrigation and Water Management Group: Wageningen University 42 Burton I., Kates R. W., and White G.F. (1978), The environment as hazard, Oxford University Press, New York 39 17 ULSS 20 Verona RDD – Recommendations for Good Practice The vulnerability paradigm (1980-1990s) placed emphasis on the political causes of disasters and stressed how societal structures result in different impacts of disasters on communities. Disaster risk can be defined as the interplay between natural hazard and vulnerability. In this view, economical and political power differentials lead to unequal distribution of vulnerability and thus impacts risk and disaster43. Disaster management would need to focus on political and social changes at the local, national and international level44. The application of the vulnerability paradigm includes training of local relief organisations and awareness raising and it represents the first serious look to stakeholders’ involvement in addressing disaster45. Nowadays more and more attention is given to the mutual constitution of society and environment and their complex interplay. A new complexity paradigm (or holistic paradigm) finds its origin in a growing understanding of the complex interrelationship of ecology and society. Recent climate change, the overburdening of ecosystems and the depletion of natural resources have led to a reconsideration of the relationship of humans and the environment46. People are not just vulnerable to hazards, but hazards are increasingly the result of human activity. In this view, disasters are as deeply embedded in the social structure and culture of a society as they are in an environment47. Following this approach, the non-predictability and exceptionality of a disaster are called into question. If disasters are seen as a process, even the distinction between disasters and normal life are blurred. In addition, according to this approach, it could be said that a number of people live in chronic emergency situations in a large part of the world48. 2.5 PARTICIPATION AND VULNERABILITY The holistic paradigm, which analyses the complexity of interactions between different factors involved in the disaster process, recognises the up and down sides of participation. Public participation concerns the inclusion of all the people who have a stake in disaster management. Affected populations, in this view, 43 Hewitt K. (1983), Interpretations of calamity from the viewpoint of human ecology. Allen & Unwin, London, Sydney Christoplos I., Liljelung A., and Mitchell J., (2001), Re-framing risk: the changing context of disaster mitigation and preparadness. 45 Warner J., Waalewijn P., Hilhorst D. (2002), Public Participation in Disaster-Prone Watersheds. Time for Multi-Stakeholder Platform? Paper for the Water and Climate Dialogue. Disaster Studies. Irrigation and Water management. Group Wageningen University 46 Hilhorst D.(2002), Complexity and diversity: Unlocking social domains of disaster response. In: G. Bankoff, G. Frerks and D. Hilhorst. Vulnerability. Disaster, Development, People. Earthscan, London 47 Oliver-Smith, A., and S. Hofmann eds (1999). The angry earth: disaster in anthropological perspective. Routledge, New York and London 48 Frerks, G., Hilhorst D., and Moreyra A. (1999). Natural disasters: a framework for analysis and action. Disaster Studies, Rural development sociology group, Wageningen University, Wageningen 44 18 ULSS 20 Verona RDD – Recommendations for Good Practice have to be involved in all phases of the process avoiding connotations of victimisation and dependency and fostering people’s own capacities and coping strategies49. There are several reasons to encourage communities’ participation. In fact, it is considered impossible for a government to be as effective as self-organising communities50. While top-down approaches fail to deliver well-coordinated management, participation is considered capable of increasing the success of policy and management because of its inclusiveness. Furthermore, preparedness and relief plans, risk assessments and risk reduction strategies can only be promoted and implemented with the involvement of stakeholders51. Other studies look at participation in disaster management from a human rights point of view 52. In this view, people at risk have the right to participate because their lives and livelihoods are affected. This approach looks at affected and vulnerable people as main actors in the process underlining their potential and coping capacities, rather than portraying them as victims or passive recipients. This concept also breaks the connotation of dependency of affected people. The human rights approach gains special importance in the context of the EC co-financed project “Rescuing Injured Disabled Persons in Case of Disasters - Civil Protection’s Challenge in the Challenge”, where a particular group of vulnerable people, the disabled population, are the subject of the rescue procedures. Even in this case, interventions will be more sustainable and receive more legitimacy if this part of the population has participated in planning, providing appropriate interventions and are actively involved actively in all the phases of the rescue processes. The European Commission emphasises that people with disabilities and their representatives should be involved in the planning, monitoring and evaluation of changes in policies, practices and programmes53. Interrelation of factors and multi-level participation in disaster management found its practical application in the creation of multi-stakeholder platforms. A multi-stakeholder platform is where the different actors that have a stake in the management of a common-pool resource come together and discuss issues of mutual concern. Special recognition is given to vulnerable groups. The platform intends to bring together 49 Morrow, B. H. (1999). Identifying and mapping community vulnerability. Disasters Christie, F., and Hanlon, J. (2002). Preparedness pays off in Mozambique, Chapter 3 in: IFRC-RCS. (2002). World Disasters Report 2002; focus on reducing risk, Eurospan, London 51 Lavell, A. (2002). The Lower Lempa River Valley, El Salvador: From risk to sustainability: experience with a risk reduction and development project. In: G. Bankoff, G. Frerks and D. Hilhorst (eds). Mapping Vulnerability. Disasters, Development and People. Earthscan, London 52 Anderson, M. B., and Woodrow, P. J. (1989). Rising from the ashes: development strategies in times of disaster, Westview Press, Boulder. 53 COM (2005) 486 final, 13.10.2005 50 19 ULSS 20 Verona RDD – Recommendations for Good Practice all actors depending on or taking an interest in the resource. Government, civil society and community are grouped together in the pursuit of a common strategy54. 2.6 THE DEFINITION IN THE PROJECT The interdisciplinarity, multi-sectoral and process-related characteristics of disaster are emphasised by the UN in the implementation of the International Strategy for Disaster Reduction, where public and stakeholder participation and local action (including social networks) are deemed necessary for the creation of a comprehensive and inclusive program focused on risk reduction, institutional reform and capacity building55. The project “Rescuing Injured Disabled Persons in Case of Disasters - Civil Protection’s Challenge in the Challenge” therefore considers the following as the most appropriate and comprehensive definition for disaster: “A disaster is a function of the risk process. It results from the combination of hazards, conditions of vulnerability and insufficient capacity or measures to reduce the potential negative consequences of risk”56 (UN-ISDR – International Strategy for Disaster Reduction, 2004). 54 Friedmann, J. (1992). Empowerment: The politics of alternative development. Cambridge, MA and Oxford, UK: Blackwell UNISDR Secretariat (2002). Living with risk: a global review of disaster reduction initiatives. Geneva: UNISDR 56 www.unisdr.org 55 20 ULSS 20 Verona RDD – Recommendations for Good Practice CHAPTER 3: LITERATURE REVIEW 3.1 INTRODUCTION This chapter summarizes the results of research on literature published worldwide on the subject of persons with disabilities and emergencies. As agreed during the 1st technical meeting in Verona, the Italian Partner CHOROS was responsible for gathering all information from partners, carrying out additional research and consolidating the findings into a single summary document. The objective of the literature review was to collect and summarize documents that appeared the most significant and finally extrapolate recurrent topics, fundamental ideas and recommendations. A particular focus was put on key concepts, good practices and recent research. The methodology was a combination of collecting existing literature and identifying recurrent issues, together with exposing what could constitute a guideline for programming future interventions. The research was carried out at the European (primarily partner countries, with some notable exceptions) and extra-European (US, Canada, Asia and Australia) levels. US literature production proved the most extensive and often the most precise, up-to-date and respectful of persons with disabilities inclusion and autonomy. 3.2 OBJECTIVES OF THE WORK As indicated above, the overall purpose of the literature review was to identify, order and summarize the main documents that deal with the subject of disability and disaster in a correlated way. In order to reach this objective, the study was broken down into different sections: 1. A main list of documents, distributed in international, European and extra-European sub-sections 2. A report focusing on literature contents 3. A report focusing on recommendations 3.3 KEYWORDS Persons with disabilities, vulnerable persons, civil protection, emergency services, inclusion, communitybased rehabilitation (CBR), accessible locations, multidisciplinary task force, self help, empowerment, special needs, unified approach, creating positive attitudes, training. 21 ULSS 20 Verona 3.4 RDD – Recommendations for Good Practice METHODOLOGY APPLIED The methodology for carrying out the research activities involved a number steps, starting with initial discussions on the draft methodology taking place during the first project technical meeting (April 2006). The formal guidelines for literature collection for approval by all partners were elaborated between April – September 2006. The guidelines were written in such a way to ensure that the partners would collect the literature in the same format, thus facilitating the task of drawing up the summary report. (See annex 2) On the basis of the guidelines, partners carried out the research activities through a literature review (books, journals, newspaper articles, laws and online literature). At a second meeting in April 2007, initial information about the literature was presented and discussed and some adjustments were made to the methodology in order to complete the research. However, this literature review does not present a definitive overview of the literature on the topic. Most of it was obtained through the web and more research should be conducted directly involving institutions, local decision makers and persons from disabilities organisations. However, the present literature review does represent a first source of information in terms of publications on the topic. 3.5 SETTING The review was carried out in the countries of the partner organisations, specifically Hungary, Italy, Ireland, Slovenia and Spain. In addition, the review was carried out consulting the websites of main international institutions (as ONU, or the Red Cross) and in countries where more online information was available. These countries included: USA, Canada, Australia, European countries and Tsunami-affected area countries. American and European academic institutions were also considered. 3.6 DISCUSSION This chapter first cites and examines any guidelines, instructions for helpers (manuals), self-help instructions, as well as research, case studies, reports and good practices when it comes to persons with disabilities and emergencies. It then goes on to give a current situational overview as outlined or discussed in specific literature regarding the rescue of persons with disability in case of disaster. The last two sections of the chapter provide conclusions and recommendations based on the results of the research and analysis on the literature collected (guidelines, instructions, case studies, etc.). 22 ULSS 20 Verona RDD – Recommendations for Good Practice 3.6.1 GUIDELINES Recent official documents (ONU General Assembly resolutions from 2001 through 2006)57 stress the need to assure safety, equal rights and the inclusion of persons with disabilities in emergency situations. These documents define disability as the result of the interaction between subjects and environmental barriers and recommends taking a holistic approach. International organisations (WHO, UNICEF, ILO)58 promote guidelines on how to identify the population with special needs in case of emergency and assess their needs; establish multidisciplinary force in the acute phase of a disaster (WHO); approach disability issues in developing countries affected by emergencies (UNICEF); and how to include special measures and resources for persons with disabilities (especially ex-combatants) in crisis response and reconstruction phases in order to promote their rehabilitation in society. ILO, UNESCO and WHO, (1994) have stressed that community-based rehabilitation (CBR) should be included as a relevant component of social policies. According to the CBR approach, most problems facing adults and children with disabilities could be solved at the community level with the support of national and regional level service providers. The service-delivery system should be the result of coordinated work between the social, educational and health sectors. The European Commission strategy in the field of equality and non-discrimination focuses on occupation, education, accessibility and security on the job. The European Union Disability Strategy (2000-06) focuses on three main objectives: co-operation between the Commission and the Member States; full participation of people with disabilities; mainstreaming disability in policy formulation. In Europe, the issue of disability in emergency situations seems to be mainly treated in the field of workplace safety. The European Agency for Security and Health at work (OSHA)59 gives instructions in order to guarantee disabled workers’ security and health, particularly in case of fire. European Member States (research is limited to the RDD project partners) seem to focus mainly on evacuation issues in case of fire (Ministries of Interiors France60, Italy61 and the United Kingdom Disability Discrimination Act). The Irish Office of Public Works62 has published a website information guide, which 57 http://www.un.org/esa/socdev/enable/rights/convtexte.htm http://www.who.int/violence_injury_prevention/other_injury/disaster_disability2.pdf;www.unicef.org/rosa/inclusive_consolida ted.pdf; http://www.ilo.org/public/english/employment/recon/crisis/download/disabled.pdf 59 http://osha.europa.eu/publications/factsheets/53/fact53_fr.pdf 60 http://hygiene-securite.ac-aixmarseille.fr/PDF/Incendie/Arr%EAt%E9%20du%2025%20juin%201980%2010%20oct%2005.pdf 61 http://www.vigilfuoco.it/speciali/sicurezza/sicurezza_insieme/disabili/pdf/soccorso_disabili.pdf 62 http://www.flooding.ie/prepared2.htm 58 23 ULSS 20 Verona RDD – Recommendations for Good Practice states that the safety of the elderly and persons with disabilities should be considered as a priority in case of floods and that employers are requested to put in place all the necessary measures to ensure that workers with disabilities can easily evacuate the buildings in the event of fire. No mention of disability in emergency situations can be found in Hungarian and Slovenian literature, where civil protection and citizens security matters seem not to drive attention to the special needs of persons with disabilities. At an international level, the Red Cross/Red Crescent National Societies are active in promoting first aid education amongst a variety of vulnerable groups in different countries. In 2005 the Red Cross took part in the workshop, “First aid education for vulnerable groups,” where a taskforce was set up in order to map current activities and good practices, as well as identify appropriate guidelines for empowering vulnerable groups coping strategies by adapting and adjusting the community first aid approach 63. Many organisations active in the field of international response to humanitarian crises (Handicap International, Oxfam and Save the Children)64 stress the fact that very little information exists about people with disabilities in armed conflict and in refugee camps, especially children. Relying on long and significant experience in the field, they give recommendations and suggestions about how to develop and implement inclusive programmes. Documents released by extra-European countries (USA and Canada) offer important contributions in the field of emergency and disability. Federal US documents, such as the Americans with Disabilities Act (ADA)65 and the National Council on Disability (NCD)66, focus on strategies regarding how to promote the safety of persons with disabilities during an emergency. Several US organisations, especially those located in US states more at risk of disasters (such as California), have produced relevant information. California Governor’s Office of Emergency Service website67 provides accurate guidelines on “Special Needs in Emergency Planning and Preparedness”. Several American academic institutions also provide recommendations on disability and disasters. The University of Kansas68 publishes a guide for parents and relatives in which prejudices about persons with disabilities are denounced and the need to consider the “disabled problem” as a resource in the field of emergency preparedness is stressed. 63 http://www.firstaidinaction.net/en/index.php http://60gp.ovh.net/%7Engovoice/documents/VOICE%20out%20loud%205_final.pdf; Oxfam Development Casebooks; http://www.savethechildrensweden.org 65 http://www.ada.gov/emergencyprep.htm 66 www.ncd.gov 67 http://www.oes.ca.gov/Operational/OESHome.nsf/a0f8bd0ee918bc3588256bd400532608/dacb46bbe634284488256f5000751a 18?OpenDocument&Highlight=0,disabilities 68 www.nobodyleftbehind2.org 64 24 ULSS 20 Verona RDD – Recommendations for Good Practice In a publication by William Boyce69 titled, “Adaptation of Community Based Rehabilitation in Areas of Armed Conflict” (School of Rehabilitation Therapy, Social Program Evaluation Group, Queen's University, Kingston, Canada), Queen’s University of Canada discusses how the principles of communitybased rehabilitation (CBR) need to be introduced into the humanitarian help system. The review of existing guidelines or recommendations indicates that international institutions stress the need for a holistic approach to the issue related to the safety of persons with disabilities in situations of emergency. In addition, they also emphasize the need for the intervention in crisis and reconstruction phases of a multidisciplinary force system sensitised to the specific needs of persons with disabilities. RDD project partner countries (with the exception of Ireland) are still engaged in considering evacuation issues in case of fire or floods, but do not really take into account the multifaceted nature of these issues. 3.6.2 INSTRUCTIONS FOR HELPERS (MANUALS) A wide production of manuals over the last five years is the result of a growing interest regarding the issue of the safety of persons with disabilities in emergency situations. The reasons for this increase in interest during the last few years need to be investigated. The growing incidence in the occurrence of disasters worldwide (including war and terrorism) and the relevance given by the media are some of the probable causes. International humanitarian organisations have deepened their concern around “special needs” issues on the basis of their recent involvement in humanitarian missions. When referring to “people with special needs,” Module 5 of the “Community Based Psychological Support” Training Manual (International Federation of Red Cross and Red Crescent Societies) 70 stresses the need for supporting community self-help. In addition, the manual places emphasis on the importance of addressing the needs of persons with disabilities, children, the mentally ill, elderly and persons affected by HIV and a section of the manual is devoted to “helping the helpers”. The Handicap International Manual “How to Include Disability Issues in Disaster Management” (2005)71, published after the 2004 Bangladesh floods, provides relief operators with step-by-step suggestions on how to adopt inclusive procedures in different phases of an emergency. It also provides evacuation and rescue techniques addressed to persons with disabilities based on their specific disability. 69 http://www.dinf.ne.jp/doc/english/asia/resource/apdrj/z13jo0500/z13jo0506.html http://psp.drk.dk/graphics/2003referencecenter/PSP_Manual_eng.pdf 71 http://www.addc.org.au/webdocs/Emergencies%20&%20Conflict/Manuals/HI_%20MANULAL_How%20to%20Include%20 Disability%20Issues%20in%20Disaster%20Management_Sept2005.pdf 70 25 ULSS 20 Verona RDD – Recommendations for Good Practice The United Kingdom-located Healthlink Worldwide Association72 publishes a number of articles related to disability issues. Healthlink has promoted a method valid worldwide, especially in war contexts, which gives suggestions to NGOs on how to deal with projects involving persons with disabilities. Paradoxically, war can create opportunity for persons with disabilities. In Bosnia and other countries devastated by the result of war and conflicts, the destruction of institutionalised rehabilitation services for relatively few persons with disabilities resulted in new community-based services being set up. These services reached many more people and encouraged the service-users to get actively involved. Sustainable Design International Ltd Academic Paper (2002) discusses how to protect and evacuate people with disabilities from buildings in the event of fire. The author states that there is a clear lack of comprehensive technical guidance on protection from fire, which has resulted in the creation of a barrier to the full inclusion of people with disabilities. Given that people with disabilities are more than capable of playing an active role in a fire defence plan, their potential should be empowered73. European production of manuals on the topic of disability and emergency seems to be more limited when compared with extra-European production and also when considering the complexity of the task. The results of the review of existing instructions for helpers for the RDD partner countries suggest a lack of interest when it comes to considering the needs of persons with disabilities in disasters situations. The Irish National Disability Authority Guide shifts the responsibility for evacuating people with disabilities in case of emergency from the Fire Service to those who manage the building on a day-to-day basis, claiming that a building should be designed to ensure the safe evacuation of all individuals. In order to accomplish this evacuation time needs to be evaluated, specifically taking into consideration the person who will take the longest time to escape. The nature of the disability, the number of people with disabilities and their disposition within the building are also critical issues requiring careful consideration. In its publication “Protezione Civile in Famiglia”, the Italian National Civil Protection provides some information on how to act in an emergency situation involving persons with disabilities. In Italy other institutions devote attention to the issue. The Municipality of Pescara (in partnership with associations of persons with disabilities and the Civil Protection) in the booklet “Ti aiuto io” provides procedures for emergency planning for the safety of persons with disabilities. In a publication in the field of civil protection, the University of Trieste and Piemonte Orientale74 provide a study focused on procedures to utilize for the rescue of persons with disability. The Consejería de Sanidad Y Servicios Sociales Del 72 http://www.healthlink.org.uk/ http://www.sustainable-design.ie/fire/NRZP-CNDC_CJWalsh_Fire-Disability-Workshop-Overheads_2007-05-24.pdf 74 http://www.ing.units.it/bca/jscript/ 73 26 ULSS 20 Verona RDD – Recommendations for Good Practice Gobierno De Cantabria in Spain in “Mapping Disability in Cantabria” provides information on population, resources available and needs perceived at regional and local levels related to persons with disabilities. This document is useful for spotting the location of persons with disabilities in case of disasters/emergency. A publication by an Internet portal in Hungary titled, “Rescue persons with disabilities in case of fire”, gives instructions on how to use a special evacuation-chair in case of fire. USA production in the field is generally wide, focused on procedures, step-by-step suggestions and appears very much concerned about the different kinds of needs in relation to specific disabilities. Among USA public institutions, the U.S. Fire Administration75 and the Job Accommodation Network (U.S. Department of Labor)76 provide emergency procedures for employees with disabilities in office occupancies. An emphasis has been put on alarms and signs, a "buddy system" for helping persons with disabilities and on specific technical devices. They also consider the case of cognitive and psychiatric impairments. Several academic institutions carrying out programmes on disaster management (with reference to specific disasters that have affected US areas, such as hurricanes or earthquakes in California) have produced manuals and instruction materials for residents and rescuers. The Western University of Health Sciences (Pomona, California) includes suggestions about strategic planning and resources in a manual titled, “Why and How to Include People with Disabilities in Your Emergency Planning Process?”77. The U.S. University of Southern California in “Disabled Persons and Earthquake Hazards”78 deals with emergency preparedness and response measures for persons with disabilities and provides recommendations. Among U.S. organisations created and directed by persons with disabilities, The Center for an Accessible Society79 offers recommendations regarding accessible facilities in case of disaster and reliable rescue communications. In addition, it highlights the need to work in partnership with the disability community, provide training, promote universal design and implement adequate strategies. To summarize, instructions for helpers (manuals) on international and local levels deal with the issue of rescue procedures in general and with the rescue of the persons with disabilities in particular. In the last decade, a great amount of literature of this sort has been published appearing as an “answer” or response to the growing attention to catastrophes (disasters, wars, acts of terrorism, etc.) worldwide. International humanitarian organisations have produced articulated training manuals addressing the topic of a population with special needs in international settings. European countries limited to specific areas (Italy, Ireland and 75 http://www.usfa.dhs.gov/citizens/disability/ http://www.jan.wvu.edu/ 77 http://www.nobodyleftbehind2.org/~rrtcpbs/findings/pdfs/FinalWhyandHow.pdf 78 http://www.crid.or.cr/digitalizacion/pdf/eng/doc9611/doc9611.htm 79 http://www.accessiblesociety.org/ 76 27 ULSS 20 Verona RDD – Recommendations for Good Practice Spain), can rely on brochures created by civil protection departments, academic institutions and welfare institutions. Nevertheless, the necessity of examining and taking into consideration the special needs of part of the population has not yet been addressed worldwide in a homogeneous and systematic way. As indicated previously, the USA production in the field is generally wide, focuses on procedures, step-bystep suggestions and appears highly concerned about the different kinds of needs related to specific disabilities. In this area, the involvement of several organisations of persons with disabilities competent in the field of rescuing procedures is remarkable. 3.6.3 SELF-HELP INSTRUCTIONS Among European RDD project partners, Ireland can rely on the brochure “Creating a flood plan for family and the elderly”80 for self-help instructions. This brochure offers recommendations on how families can manage emergencies and work on their own rescue plan, especially in the presence of persons with disabilities and the elderly. In these cases, the establishment of a “buddy system” is recommended. USA literature production on the theme of self-help is wide and detailed. The self-help perspective is most likely promoted due to the U.S. psycho-social long-standing vision. Both public institutions and organisations of persons with disabilities provide self-help manuals. In a manual called “Individual with Special Needs Preparing and Planning,” the Federal Emergency Management Agency (FEMA)81 gives suggestions on how persons with disabilities can protect themselves in case of an emergency. Recommendations refer to specific needs such as being visually and hearing impaired, people with specific medical conditions, etc. Other documents, in collaboration with the American Red Cross in one case, focus on being ready to evacuate and give practical suggestions, information on organisations to count on, etc. They propose an “action checklist” before a disaster and a “disaster supplies kit”82. After the events of September 11th 2001 in the U.S., the call for partnership and participation was reinforced by the National Organization on Disability (NOD). NOD’s “Disaster Mobilization Initiative” included a call “to ensure that people with disabilities are included at all levels of preparedness planning”83. Los Angeles County and academic institutions, such as Lamar University84 and Western University of Health Sciences85, both offer “packets” that work as self-help manuals and list different devices and actions to undertake in case of emergency. 80 http://www.flooding.ie/Pdfs/Risk_of_flooding_Bro3.pdf www.fema.org 82 http://www.redcross.org/services/disaster/0,1082,0_3_,00.html 83 http://www.nod.org/index.cfm?fuseaction=page.viewPage&PageID=457&C:\CFusionMX7\verity\Data\dummy.txt 84 http://www.disaster-research.us/special_needs1.htm 85 http://www.cdihp.org/evacuation/toc.html 81 28 ULSS 20 Verona RDD – Recommendations for Good Practice Several private organisations working for the rights of persons with disabilities focus on emergency preparedness for persons with disabilities in the workplace and at home (DPC, Disability Preparedness Center)86. Others focus on how to respond to visual, cognitive, mobility, illness, speech and psychiatric impairments in case of an earthquake (Independent Living Resource Center - ILCRSF)87. The Northridge earthquake that affected the greater part of the city of Los Angeles in 1994 played a great role in encouraging a participatory approach when dealing with issues related to disability and disaster planning and response. A group called “Disabled People and Disaster Planning” (DP2) was created after the earthquake. The group met between 1996 and 1997 and developed recommendations and guides on how to deal with problems identified during and after the Northridge quake (DP2 1998). These guides often include self-assessment tools related to specific disabilities. They recommend “avoiding the avoidance”, recognizing real needs, creating a network of “friends” and identifying evacuation ways. The review of self-help instructions demonstrates that a self-help perspective is not generally adopted by European countries, at least not by RDD project partner countries. This suggests that this approach is not very familiar or popular in European culture in the field of citizens’ protections. In Europe, the civil protection mechanisms seem more oriented in providing support and “help” in a top-down approach instead of helping communities and persons with disabilities to help themselves by empowering them through the promotion of family/community/friends networks, as the U.S. literature suggests. U.S. publications appear to be of great help in improving persons with disabilities informal rescue networks. The involvement of organisations of persons with disabilities has a great effect in sensitising, disseminating information and providing knowledge in this regards. 3.6.4 RESEARCH, CASE STUDIES, REPORTS AND GOOD PRACTICES From May 22 to June 9, 2006 the World Bank organized an e-mail based electronic discussion on the issue of “Disabled and Other Vulnerable People in Natural Disasters”88. The results of this online debate were collected in a document highlighting short, medium and long-term lack in disaster response policies when addressing the needs of persons with disabilities. In the short term, persons with disabilities are seen as “collateral damage”. In the medium term, persons with disabilities are not involved in planning and in the long term, the rebuilding of accessible infrastructures doesn’t always happen. Very little attention to the topic of disability and disaster response has been given by research institutions in Europe. Reports, case studies and good practices reviews are a much unattended field. The book 86 www.disabilitypreparedness.org www.ilrcsf.org 88 http://siteresources.worldbank.org/DISABILITY/Resources/News---Events/463933-1166477763817/EdisNatDisas.doc 87 29 ULSS 20 Verona RDD – Recommendations for Good Practice Earthquakes can be considered one exception (C. Rodrigue and E. Rovai eds. London: Routledge, 2002)89. In the chapter “Disability and Disaster: Victimhood and Agency in Earthquake Risk Reduction”, Ben Wisner analyses the complex relations linking disability and disaster, how disability and normality are defined and the implications of these definitions in policy responses. Current emergency management approaches are also illustrated and final recommendations are proposed. The publication Abili a Proteggere (“Able to Protect”) is worth mentioning.90 This book, focused on a particular case study, is a type of reference manual for public administrations on the best approach for including persons with disabilities into the workplace. Although the subject matter does not specifically relate to the topic of this report, it is interesting to note that the case study was carried out within the Italian Department of Civil Protection, whose main task is the protection of the civilian population, primarily in the event of natural and man-made disasters. A study on real life cases has been promoted by the University College Cork, Birnbaum 91. Chapter 5 outlines a number of fundamental databases that should be available and included in flood management. Included in this are flood action data and contingency plans which give vulnerability scores (elderly and persons with disabilities). The effectiveness of the Part M of the Building Regulations92 in Ireland, which covers mainly the issue of accessibility to buildings for all (including people with disabilities), has been evaluated through a report by the National Disability Authority. As indicated in the “Instructions for Helpers (Manuals)” section, the Sustainable Design International Ltd Academic Paper (2002) addresses the issue of how to protect and evacuate people with disabilities from buildings in the event of a fire, noting that the lack of comprehensive technical guidance on protection from fire has resulted in the creation of a barrier to the full inclusion of people with disabilities. An interesting initiative has been developed by the Taskforce Disability & Society (Netherlands) in partnership with Rvarium® (NL).93 This initiative, involving persons with disabilities, representatives of the fire department and policy makers, included research regarding firstly, statistics concerning the number of people who are disabled during a disaster and secondly, the level of preparedness of the regions and communities to rescue persons with disabilities in the case of disaster. 89 C. Rodrigue and E. Rovai eds. Earthquakes. London: Routledge, 2002. 90 http://www.abiliaproteggere.net/ http://cmrc.ucc.ie/publications/reports/ISDI_FINAL_REPORT.pdf 92 http://www.nda.ie/cntmgmtnew.nsf/0/D7B9326DE8BF2CBA802570CF00348A4C/$File/09_part_m.htm 93 http://www.tfhs.nl/ http://www.rvarium.nl/ 91 30 ULSS 20 Verona RDD – Recommendations for Good Practice As a result of this research, a DVD entitled “Not scared, but prepared” was produced and distributed at no charge, as well as a “Not scared, but prepared” test accessible online at www.crisis.nl. Furthermore, this research led to the preparation of written learning materials for fire brigades. According to a study by the UK Department for International Development's Disability Knowledge and Research Programme (Disability KaR)94, the Tsunami tragedy constituted an occasion for more extended research. Through the International Disability Rights Monitor (IDRM), a collaboration between the Office of the United Nations Special Rapporteur on Disabilities and the Disabled People International organisation (DPI) promoted qualitative and quantitative research on “Disability and Early Tsunami Relief Efforts in India, Indonesia and Thailand”95. Through direct visits to the effected countries and review of several case studies, the researchers found that people with disabilities have been largely excluded from the relief effort at the level of non-governmental organisations. Awareness was low with disability not being a topic of discussion during the majority of organising and coordinating meetings. September 11th and the Katrina disaster have also given impulse for additional research efforts. Several researches and case studies have been conducted in the U.S., especially after 9/11. The brochure “Saving Lives by Including People with Disabilities in Emergency Planning” by NCD (National Council on Disability)96 contains a report on disaster experiences of people with disabilities. Samples of the types of barriers experienced by people with disabilities are documented by empirical research in “Little input into counties’ disaster planning”. The research highlighted that only 39 percent of people surveyed had an emergency plan in place for evacuating their home and that disaster preparedness and emergency response systems are typically designed for people without disabilities. The American Psychological Association (APA)97 published a research on post disaster trauma, focused on the anxiety perceived by persons with disabilities and in children who developed disabilities as a consequence of the disaster. A report (Lessons Learned)98 on fire emergency management was published by the State of California Independent Living Council (SILC)99. Several problems were identified in this report: lack of transportation, neighbours unaware of nearby persons with disabilities, distant family members of persons with disabilities with no way to contact them, inaccessible shelters and rescue devices, groups of persons with disabilities locked in inaccessible locations and neutralised mobility devices. 94 http://www.disabilitykar.net/research/thematic_conflict.html http://www.ideanet.org/cir/uploads/File/TsunamiReport.pdf 96 www.ncd.gov 97 www.APA.org 98 www.calsilc.org 99 http://www.calsilc.org/impactCAWildfires.pdf 95 31 ULSS 20 Verona RDD – Recommendations for Good Practice A research report on “Exemplary and best practices in disaster preparedness and emergency response for people with disabilities” (Nobody Left Behind - University of Kansas Research and Training Center on Independent Living, 2007)100 states that the majority of emergency managers are not trained for dealing with a “special needs” population. The mission of this research was to investigate 30 randomly selected counties, cities or boroughs in the United States that have recently experienced a natural or man-made disaster in order to determine if disaster plans include persons with disabilities. Through case studies, the research “Incorporating special needs populations into emergency planning and exercises”101 (Nobody Left Behind) identified issues that may directly affect the population with special needs during various types of emergencies and disasters. This research suggests that the following should be anticipated: hesitancy/refusal to evacuate, emotional trauma, loss of possessions and/or homes, disorientation and confusion (cognitive issues), increased need for assistance services, increased mortality rate. One of the suggestions was that local municipalities should make efforts to consider a voluntary special needs registry focused on assisting the most medically vulnerable populations. Qualitative research among emergency managers established that the majority require additional funding, trained personnel, a mandate and additional public education efforts. The NOD’s (National Organization on Disability) case study on Katrina (SNAKE Project)102 emphasizes the lack of independent living or advocacy models in procedures. The case study also offers several recommendations on how to ensure that disability and senior organisations are represented, emergency information is given in an accessible format, transportation is accessible and safe housing and communities cross training provided. On the website for the Center for an Accessible Society103, several articles on case studies deal with the lack of detailed and reliable plans for evacuating and rescuing persons with disabilities in buildings. Relief agencies are geared toward dealing with a lot of people rapidly, but they are not really equipped to deal with individuals with disabilities. In addition, co-workers in charge of helping are not trained for rescuing persons with disabilities. EVAC+CHAIR CORP, a company which produces special evacuation chairs for persons with disabilities, reported about a survivor from the World Trade Center that could evacuate the building thanks to this 100 www.cilmc.org http://www.nobodyleftbehind2.org/findings/finalreport_best_0307.htm#_ftn1 102 www.nod.org/Resources/PDFs/katrina_snake_report.pdf; http://www.katrinadisability.info/PDFsK/katrina_snake_report.pdf 103 http://www.accessiblesociety.org 101 32 ULSS 20 Verona RDD – Recommendations for Good Practice special chair. “The story of one man's escape from the World Trade Center: it took us an hour and a half to get down 69 floors" 104. “Adaptation of Community Based Rehabilitation in Areas of Armed Conflict” by William Boyce105 highlights how the principles of community-based rehabilitation may also be applied in areas of conflict and explains the challenges faced in trying to do so. The study is based on a 1989 Rehabilitation International/UNICEF Technical Support Programme, which produced a review of the physical rehabilitation needs of children and women victims of armed conflict. The recommendations promote community-based rehabilitation (CBR), research and prevention, attention towards women, children and mental disability and the overall incorporation of disability issues into international aid programmes. In summary, researches, reports and case studies regarding disability and emergency situations appear mainly as a U.S. topic. Among international organisations the World Bank report-based online forum has collected direct experiences of persons with disabilities in order to gain a reliable understanding of the issue. The knowledge and experience of people with disabilities can help to provide a new and more comprehensive perspective regarding issues such as personal safety and security. Only active participation of persons with disabilities in all phases of emergency and contingency planning can build on and increase empowerment – transcending a mere clinical, biomedical and individualised approach to disability and disaster. 3.6.5 CURRENT SITUATION In the literature on emergency management and disaster planning, “disability” often appears in checklists and taxonomies of “social factors” or “vulnerable groups” that require special attention in disaster planning. The growth of an international disability rights movement since the 1980s shows that people with disabilities want more than to be treated as a “problem to be solved”. According to author Ben Wisner, there are three approaches visible in the practice of emergency management and planning today: First, is to do nothing. In situations where there are few resources and many needs, persons with disabilities are simply not given priority. The second approach is to provide special services and arrangements for people with impairments or disabilities. This planning is for the most part done from the “top down”. Implicit in the above statements is a view of disability as an individual medical condition. The third is a participatory and inclusive approach that actively involves the persons with disabilities and their organisations in the 104 105 http://www.evac-chair.com/ http://www.dinf.ne.jp/doc/english/asia/resource/apdrj/z13jo0500/z13jo0506.html 33 ULSS 20 Verona RDD – Recommendations for Good Practice process of assessing their vulnerability to harm and their capability for self protection in the face of hazards. Documented experiences from emergency relief work shows that people with disabilities need specific attention in order to benefit from relief work. People with disabilities feel the impact of a crisis more intensely than other people but they are easily excluded in the emergency relief systems and thus aren’t able to benefit from them. According to NOD, during the 2005 Gulf States hurricanes response and recovery phases, disability advocates worked to get disability experts into the shelters to assess and assist the needs of people with disabilities106 such as those who could not hear the announcements over the loud speakers, could not see the signage directing them to assistance or were at risk to lack of necessary medications. After the Tsunami, the more acute needs of persons with disabilities have soared. The WHO estimates that, as a result of the Tsunami, there will be a 20% increase in the population with disabilities and a third to half of all affected people will suffer mental distress. In Thailand, the Tsunami caused permanent disabilities to more than 800 victims and a great number of immediate and long-term needs for people with different types of disabilities107. In the wake of a disaster, the notion of rights may appear to vanish behind the reality of the immediate needs of all survivors. However, it is the issue of rights that lies at the root of humanitarian efforts following disasters and emergencies, rights that should be equally available to all. The continued exclusion of people with disabilities from the exercise of fundamental human rights – both in the wake of disasters and more generally – is a vital issue that needs to be addressed108. According to the World Bank109, with the recent major disasters, the media has focused on the lack of preparedness in emergency planning for people with disabilities pre and post disaster. The organisation breaks out and describes the short, medium and long-term issues concerning people with disabilities in disaster situations, as well as the most significant problems with the existing process. 106 107 www.nod.org Ter Haar, Aartjan,Call for a disability-adjusted response to the Tsunami disaster, DCDD Newsletter, No 10, Apr 2005, p 5 - 6. 108 State Independent Living Council (SILC) Fire Disaster Issue Brief April 2004, page 8, http://www.calsilc.org/impactCAWildfires.pdf 109 http://siteresources.worldbank.org/DISABILITY/Resources/280658-1130273084709/18218301157998399432/DECwbMinDec5.doc 34 ULSS 20 Verona RDD – Recommendations for Good Practice Short-term issues concerning people with disabilities in a disaster situation are: Lack of communication alternatives Not enough, if any, trained specialists in the areas of psychological, occupational and physical therapy Shelters and transportation not accessible Disaster preparedness and emergency response systems typically designed for people without disabilities People with disabilities seen as “collateral damage” Medium to long-term issues concerning people with disabilities in a disaster situation are: Planning without any input from people with disabilities Not enough funding Rehabilitation needs not met Rebuilding an accessible infrastructure not occurring Policies requiring the accommodation of disability needs The biggest downfall of the entire process is: Lack of coordination among organisations and agencies dealing with disaster response/relief and those dealing with disability issues Many times, agencies/organisations have the funds to incorporate disability issues, but are not made aware of the issues According to NCD (National Council on Disability)110 people with disabilities frequently encounter barriers to physical plants and communications, as well as programmes in shelters, recovery centres and in other facilities. In addition, information and lessons learned are not shared across agency lines and therefore, experience does not enlighten the development of new practices. People with disabilities and activity limitations tend to be left out of preparedness and planning activities. Disaster preparedness and emergency response systems are typically designed for people without disabilities, for whom escape or rescue involves walking, running, driving, seeing, hearing, and quickly responding to instructions. Information related to the emergency needs of people with disabilities is not widely integrated into a number of general emergency management courses. 110 www.ncd.gov 35 ULSS 20 Verona RDD – Recommendations for Good Practice In the guidelines “A second guide for parents”111, author June Isaacson Kaile (University of Kansas, Nobody Left Behind) focuses on prejudices about persons with disabilities and states, “no definition fits all, no definition fits persons”. According to the Report SNAKE112 there were numerous governments and non-profit agencies carrying out assessments in the field, but no unified approach for coordinating the work. According to HANDICAP INTERNATIONAL113, persons with disabilities tend to be invisible in emergency registration systems. Lack of awareness is one of the major factors causing persons with disabilities not to understand/comprehend disaster and its consequences. People with disabilities are often excluded from disaster response efforts and are particularly affected by changes in terrain resulting from disaster. People with disabilities are often deprived of rescue and evacuation services, relief access, safe location/ adequate shelter, water and sanitation and other services. Emotional distress and trauma caused by a crisis situation often have long-term consequences on people with disabilities. 3.6.6 RECOMMENDED APPROACHES In article 11 of the recent UN “Conventions on the Rights of People with Disabilities”, (Dec. 2006) 114 it states that “in situations of risk and humanitarian emergencies, States Parties shall take…all necessary measures to ensure the protection and safety of persons with disabilities in situations of risk, including situations of armed conflict, humanitarian emergencies and the occurrence of natural disasters”. ILO, UNESCO and WHO (1994) see community-based rehabilitation (CBR)115 as a component of social policy that promotes the rights of people with disability to live within their communities, enjoy health and participate fully in educational, social, cultural, religious, economics and political activities. “Empowerment” is a key concept in social movements of minorities116. In psychological terms it breaks down the isolation felt by a person with disabilities as he/she learns the root causes of their isolation and lack of power. Empowered persons with disabilities are more open to connecting with others as part of a social movement or local self-help groups. These groups, in turn, can be the perfect partners for planners who accept the value of participatory action research. 111 http://www.jik.com/index.html http://www.katrinadisability.info/PDFsK/katrina_snake_report.pdf 113 http://www.addc.org.au/webdocs/Emergencies%20&%20Conflict/Manuals/HI_%20MANULAL_How%20to%20Include%20 Disability%20Issues%20in%20Disaster%20Management_Sept2005.pdf 114 http://www.un.org/esa/socdev/enable/rights/convtexte.htm 115 www.unicef.org/rosa/inclusive_consolidated.pdf; http://www.ilo.org/public/english/employment/recon/crisis/download/disabled.pdf 116 Ben Wisner, “Disability and Disaster: Victimhood and Agency in Earthquake Risk Reduction, 2002 112 36 ULSS 20 Verona RDD – Recommendations for Good Practice Community-based rehabilitation (CBR), research and prevention, attention towards women, children and mental disability, and the overall incorporation of disability issues into international aid programmes 117 are strongly recommended. NOD118 strongly emphasizes the importance of tapping the knowledge, experience and opinions of people with disabilities (2002). The organization stresses that people with disabilities should be included in preparedness planning for all emergencies and all plans should take people with any kind of disability into account (e.g. the blind, mentally ill, those with and without physically apparent disabilities). To maintain the dignity and independence that lies at the heart of the disability movement, people with disabilities must take personal responsibility for their safety, to the degree allowed by their disability. In terms of larger policy issues for planning, preparedness, response, relief and recovery, people with disabilities must advocate, monitor, advise and help however possible at the local, state and federal levels. Training people with disabilities to develop expertise in disaster/security/emergency management will save lives. It also increases the pool of experts on these important issues as they affect all citizens. According to “UN Enable”, the following recommendations should be organized according to the temporal phases of a disaster: A) Prevention phase and plans B) Acute phase C) Reconstruction long term phase A) Prevention Phase and Plans Twenty years ago the UNDRO Report (1982: 44-45)119 began to pose vital questions about the involvement of persons with disabilities when developing or upgrading communities’ emergency plans, for example120: Are services for persons with disabilities included in the community’s emergency plans? Has information been sought about (the needs of all disabled groups) and how to meet them? Have the views of persons with disabilities been taken into account in making the plans? If there are existing organisations for persons with disabilities in the community, have they been contacted for 117 http://www.dinf.ne.jp/doc/english/asia/resource/apdrj/z13jo0500/z13jo0506.html www.nod.org 119 This section is referenced in the UNDRO Report as being adapted from an article in ‘Emergency Management Newsletter’ (edition of 6 November 1981) published by FEMA, Washington, D.C., U.S.A 120 www.radixonline.org/resources/ disability_and_disaster_wisner.doc 118 37 ULSS 20 Verona RDD – Recommendations for Good Practice advice when developing emergency plans? (They also can provide expertise in creating self-help and awareness programs). Does the emergency organisation have a way for identifying persons with disabilities during an emergency? Is it known who needs special care in case of disaster, and where she/he lives and works? How are the emergency needs of persons with disabilities recognized in the community? Have local shelter areas been checked to see if they will be able to handle persons with disabilities? How can it be demonstrated that meeting the needs of the persons with disabilities will improve life-safety for the entire community? Has it been taken into consideration that persons with disabilities can be self-sufficient and serve as a valuable resource in emergencies, and their greater awareness and wider participation in emergency planning will benefit everyone? Are persons with disabilities included in community preparedness exercises and is it defined how can they assist in an emergency? Do they, and the community, know what to expect in an emergency? What activities need volunteers? Which would be suitable for disabled volunteers based on the type of disability? WHO, Department of Mental Health, recommends working towards developing or strengthening feasible, strategic plans for national level mental health programmes121. UNICEF stresses the need for regular surveys, creating positive attitudes, roles for parents’ organisations in teaching–learning processes and the training of teachers on inclusive education122. According to ILO plans should include persons with disabilities in each phase. Disabled people’s organisations should be supported and empowered123. According to the World Bank124 the following actions should be undertaken: Continue to work toward greater inter-agency/organisation coordination Build up the capacities of DPOs (chief management) to strengthen them to be a resource in times of disaster Create a checklist/policy recommendations 121 http://www.who.int/violence_injury_prevention/other_injury/disaster_disability2.pdf www.unicef.org/rosa/inclusive_consolidated.pdf 123 http://www.ilo.org/public/english/employment/recon/crisis/download/disabled.pdf 124 http://siteresources.worldbank.org/DISABILITY/Resources/280658-1130273084709/18218301157998399432/DECwbMinDec5.doc 122 38 ULSS 20 Verona RDD – Recommendations for Good Practice Produce a 1 or 2 page guideline for field workers with very simple and basic information on what they need to do for people with disabilities pre and post disaster Keep policymakers up-to-date and informed Get important leaders/players together Create workgroups and online self-paced training programmes Promote more meetings/conferences so that disability issues can be brought to attention Emergency managers need to strengthen their relationships with organisations of persons with disabilities; have stronger outreach and targeted technical assistance (NCD, National Council on Disability)125. Steps are suggested in the Job Accommodation Network publication “Employers' Guide to Including Employees with Disabilities in Emergency Evacuation Plans” (supported by U.S. Department of Labour, Office of Disability Employment Policy)126 for including disabled employees in emergency evacuation planning. One suggested step is asking all individuals whether they will need assistance during an emergency, considering that people with disabilities are generally in the best position to assess their own particular needs. Emergency alarms and signs should also be provided, a "buddy system" implemented, evacuation devices purchased, any physical barriers removed, heavy gloves provided to protect individuals' hands from debris when pushing their manual wheelchairs, a patch kit available to repair flat tires and extra batteries for those who use motorized wheelchairs. The guide suggests specific devices to help people with different disabilities, such as vibrating paging devices, wireless communicators etc. and considers the case of cognitive and psychiatric impairments. Recommendations include: listening and learning from the disability community, utilizing expertise, creating a forum, promoting the growth of disability advocate, including disability specific issues; providing insightful input on strategies, etc. The use of participatory action research in hazard identification and assessment of vulnerabilities and capabilities is deemed necessary127. This new dialogue would be based on the following principles (Spodak 1995): Accessible disaster facilities and services Accessible communications and assistance Accessible and reliable rescue communications Partnerships with the media 125 www.ncd.gov http://www.jan.wvu.edu/media/emergency.html 127 Ben Wisner, “Disability and Disaster, cit. 126 39 ULSS 20 Verona RDD – Recommendations for Good Practice Partnerships with the organisation for persons with disabilities Disaster preparation, education and training Universal design and implementation strategies According to NOD128: Disability and senior organisations have to be represented Emergency information should be given in an accessible format Accessible transportation should be provided Safe housing and communities Cross training disability and aging specific advocates and service providers need to strengthen their understanding of local and state emergency management systems Durable Medical Equipment (DME) is also needed The SNAKE Project129 Report recommends the establishment of a team that mirrors the management structure of the National Response Plan to support disability and senior issues. The federal (or national) level should have a designated person for these issues who reports directly to the Principal Federal Officer (PFO). This person should have operational emergency management experience as this is needed during a response and recovery operation. He/she must be vested with the responsibility, authority and resources for providing overall day-to-day leadership, guidance and coordination of all emergency preparedness, disaster relief and recovery operations of the federal/national government on behalf of disability and senior populations. Cross training is also stressed: Both emergency managers and disability and aging specific organisations should engage in some quick cross orientation/training meetings Emergency management staff should acquire basic knowledge of the local and state emergency management systems. Courses on emergency planning and special needs populations (training for local and state emergency planners and organisations serving seniors and people with disabilities) should be a start Disability and aging specific organisations should be used to strengthen responders understanding of which organisations can offer what services under what conditions Since people with disabilities are not a homogenous group, different capabilities, opinions, needs, and circumstances, should be considered 128 129 www.nod.org http://www.katrinadisability.info/PDFsK/katrina_snake_report.pdf 40 ULSS 20 Verona RDD – Recommendations for Good Practice There should be a national stockpile of durable medical equipment to ensure readily available supplies of durable medical goods for the communities B) Acute Phase According to WHO130 in the acute phase rescuers should: Identify persons with disabilities Provide help to special needs Establish a multidisciplinary task force The European Agency for Security and Health at Work (OSHA)131 gives instructions in order to guarantee disabled workers’ security and health. In emergency procedures several measures are suggested in order to assist persons with disabilities in case of evacuation, fire, etc. (i.e. emergency wheelchair in case of fire, visual and vibrating fire alarm signals, sign language training for fire men, etc.). Handicap International recommendations include132: Rapid assessment forms Local disabled people’s organisations included in the planning Accessibility taken into account (latrines, water point, etc.) International relief staff sensitised on disability issues On-site training on inclusion provided Disability issues included in funding agencies guidelines The ADA (American Disability Act) provides several hints on strategies in helping persons with disabilities during an emergency and notes issues that have great impact: Notification Evacuation Emergency transportation Sheltering Access to medications Access to mobility devices Access to information 130 http://www.who.int/violence_injury_prevention/other_injury/disaster_disability2.pdf http://osha.europa.eu/publications/factsheets/53/fact53_fr.pdf 132 http://60gp.ovh.net/%7Engovoice/documents/VOICE%20out%20loud%205_final.pdf 131 41 ULSS 20 Verona RDD – Recommendations for Good Practice Concerning areas of rescue assistance, if these areas do not have escape routes they should have the following133: 1) An operating phone, cell-phone, TTY and a two-way radio so emergency services can be contacted 2) A closing door 3) Supplies that enable individuals to block smoke from entering the room from under the door 4) A window and something to write with (marker, lipstick, etc.) or a “help” sign to alert rescuers that people are a particular location 5) Respirator masks The SNAKE134 Report is very detailed about procedures. Recommendations are: Utilize the skill sets and expertise of disability specific and aging organisations in order to help prevent deterioration, expensive hospitalisations or nursing home placements for some evacuees. Assist people in quickly replacing critical durable medical equipment (DME) and essential medications to speed a return of their level of functioning, allowing them to manage independently in a general population shelter and temporary housing. Continue to provide the services, support benefits and programs to maintain the integrity of the family unit and to allow individuals to live in the community as they rebuild their lives. The team on the ground should include people with expertise/advocacy backgrounds at the national and local level (community level). These individuals should have access and be present in shelters, temporary housing and other assistance centres. The team should establish information systems for people with disabilities and seniors identify their support/service needs and the way to access services. The teams should be skilled in assessing the general health, well being and access to support structures and services needed by the disability and aging populations located in shelters and temporary settings. They should also be able to quickly orient shelter personnel and emergency managers regarding these needs. In addition, video programming distributors, including broadcasters, cable operators, and satellite television services should be strongly reminded that they should comply with the obligation to make emergency information accessible to people with hearing and vision disabilities. C) Reconstruction Phase In the Report on Special Needs Assessment for Katrina Evacuees, (SNAKE Project)135 many detailed critics and recommendations are offered, such as: 133 http://www.ada.gov/emergencyprep.htm http://www.katrinadisability.info/PDFsK/katrina_snake_report.pdf (cit.) 135 http://www.katrinadisability.info/PDFsK/katrina_snake_report.pdf 134 42 ULSS 20 Verona RDD – Recommendations for Good Practice Add questions during all intake processes that help to identify needs and/or issues of disability and aging individuals. Provide support organisations with supplemental governmental funding in order to support their critical role in the response effort. Disabled and senior groups should be invited (by civil protection at the regional and national level) to participate in planning accessible and secure spaces in facilities. Disaster recovery centres should incorporate local and national organisations for persons with disabilities into their service delivery process. Opportunities for cross-training should be provided so that organisations can become familiar with existing programmes. Considering that not all individuals utilize disaster centres, information on services should be disseminated using multiple communication arteries (radio, TV, internet, fax sheets, posters, etc.). As a rebuilding measure, governments should make all funding requests contingent on changes in building codes to stress accessibility for persons with disabilities. 3.7 CONCLUSIONS The necessity of examining and taking into consideration the special needs of part of the population has not yet been addressed worldwide in a homogeneous and systematic way. In most cases, people with disabilities appear to be seen as a “collateral damage”. Prejudices about persons with disabilities seem to be widespread. Persons with disabilities have a tendency to be categorized as “all the same”. Agencies are apt to not be aware of the needs of persons with disabilities. The disability issue appears not to be widely integrated into a number of general emergency management courses. Information and lessons learned have a tendency not to be shared across agency lines. Research suggests that there is a lack of a unified approach for coordinating the work in this field. The materials reviewed indicate that international institutions stress the need for a holistic approach to the issue related to the safety of persons with disabilities in situations of emergency. 43 ULSS 20 Verona RDD – Recommendations for Good Practice Academic institutions outside Europe and international humanitarian organisations stress the importance of carrying out accurate assessments of the needs of persons with disabilities and the need for the promotion and implementation of community-based rehabilitation programmes. In general, RDD project partner countries show a limited interest in considering the needs of persons with disabilities in disaster situations and are mainly only addressed within the field of workplace safety. While they are engaged in considering evacuation issues in case of certain emergencies/disasters, such as fire or floods, they do not take the multifaceted nature of these issues into account. The USA appears highly concerned about the different kinds of needs related to specific disability with researches, reports and case studies seeming to be mainly a U.S. topic. As opposed to most European countries, the US adopts more of a self-help approach and their publications appear to be of immense help when it comes to improving the informal rescue networks of persons with disabilities. 3.8 RECOMMENDATIONS Need to adopt a participatory and inclusive approach. People with disabilities must advocate, monitor, advise and help. Need to listen and learn from the disability community. Important to have community-based rehabilitation (CBR) as a component of social policy. Need “empowerment” and empowering measures at all levels. Need to use participatory action research in hazard identification and in any other steps. Stress the importance of having communication alternatives at every step. 44 ULSS 20 Verona RDD – Recommendations for Good Practice CHAPTER 4: LEGISLATIVE REVIEW 4.1 INTRODUCTION This chapter summarizes the results of research carried out in selected European countries concerning different legislative approaches to the rescue of persons with disability in case of disaster. Codice Europa and Hope Project were responsible for summarizing the information provided by all of the partners. ULSS 20 Verona edited and revised the final current version of the chapter. The main objective of the work was to establish what legislation is available in the various countries relating to disasters and emergencies and more importantly, if disabled people or vulnerable groups in the community are provided for in these plans. The methodology was a combination of theoretical (literature/documentation) and practical research (interviews). The research was carried out at either the local, regional and national level in the five countries representing the partners participating in the EC-funded project. For the most part, all five countries taking part in the project are very similar in their treatment of people with disabilities and plans on how to rescue them from emergencies. Despite some interesting examples of best practices, there is a lack of specific legislative provisions for rescuing disabled people in case of emergency disasters. One of the main conclusions that can be drawn from this research activity is that there is a real need to review existing relevant legislation, or in some cases, consider the drafting of new legislation to ensure that persons with disability are provided for in all aspects of a disaster including the planning, mitigation and reconstruction phase. 4.2 OBJECTIVES OF THE WORK The overall purpose of this study was to identify the legislation available in selected countries relating to disasters and emergencies and to establish whether persons with disability or vulnerable groups in the community are provided for in these plans with a view to identifying good practice. The legislative review was carried out in the five principal partner countries of this project: Italy, Spain, Ireland, Hungary and Slovenia. Each partner researched and scrutinized in detail all types of legislation available in their individual country. Everyone collected information regarding the legal framework at local, regional, national and European levels which included any recommendations, laws, regulations and procedures adopted that made reference to the rescue of people with disabilities in emergency situations. 45 ULSS 20 Verona RDD – Recommendations for Good Practice Once this review was completed (in matrix format) by the five partners, the aim was to consolidate the work together in one document, highlighting the differences in legislation in European countries concerning the rescue of persons with disability. In addition, through this comparative review, it was possible to compare protocols for the rescue of people and vulnerable groups in society and point out any differences. 4.3 KEYWORDS Persons with disabilities; vulnerable persons; civil protection; rescue emergency plans; emergency response; disaster; major emergency management; risk assessment; emergency planning; policy planning; fire services; code of practice; acts; legislations; laws; guides. 4.4 METHODOLOGY APPLIED The methodology for carrying out the legislative review was similar to that for the literature review with the draft methodology discussion taking place during the first technical meeting (April 2006) and followed by elaboration of the formal guidelines and accompanying matrix for information collection by the partners between April – September 2006. (See annex 4). The guidelines and matrix were again drawn up in a way to ensure that the partners collected the information in the same format in order to facilitate the task of drawing up the summary report. Partners carried out the research activities, based on the approved guidelines, through a literature review (books, journals, newspaper articles, laws, theses, conferences), as well as interviews with local stakeholders. Primary resources were collected through direct interviews with key stakeholders. Although most of the information was obtained through the Internet on legislation public administration archives and specialised libraries, currently updated information was also accessed through contacting key informers in the partner’s regional or local network. The initial information regarding the legislative review was also discussed at the second meeting in April 2007 and adjustments made to the methodology in order to complete the research. It was an opportunity for partners to observe how other partners had approached the problem and review and add to their own research. The findings were analysed by comparison in order to draw some general conclusions about the situation in Europe and compile them in a summary report. 46 ULSS 20 Verona RDD – Recommendations for Good Practice The main body of the summary concerns the conclusions resulting from the comparative analysis between the regions. This was carried out taking into account, the following criteria: - Amount of available legislation concerning this issue cross-countries - Types of legislative documents (binding, non-binding, etc.) - Measuring which countries have/have not achieved legislative adequacy - What conclusions can be extracted from each countries legislation in terms of level of commitment in the area of concern It is clear that this report does not present a definitive overview of the European dimension as the study was carried out only in 5 different countries, but it can be said that the five countries provide a representative picture of how the issue of disability in the context of an emergency/disaster situation is addressed. 4.5 SETTING As indicated above, the information was collected in the countries of the partner organisations (Hungary, Italy, Ireland, Slovenia and Spain). Each country has a different system in operation but in general, it can be said that in each country the principle of gradualism applies and depending on the size of the emergency, the situation is handled either at the local, regional or national level. Therefore, the research activities carried out at a local level, even if representative of a smaller reality, provide an important source of information on the subject. Specifically, the areas of interest were: - Italy. Regional level: Veneto. Local level: Verona and Turin. National level: Italy - Ireland. Regional level: Cork, Limerick, Clare and Kerry. National level: Ireland - Spain. Regional level: Cantabria. National level: Spain - Hungary. Regional level: Pecs. National level: Hungary - Slovenia. Local level: Ljubljana. National level: Slovenia As a general comment, although the legislative framework research was carried out at all three levels, many partners found that local bodies, in particular, were very keen to co-operate with the partners in their research activities. 4.6 DISCUSSION This section will begin by providing an overview of existing legislation in Europe that is relevant to the subject of the rescue of persons with disability in case of disaster. 47 ULSS 20 Verona RDD – Recommendations for Good Practice This section will go on to present the findings of each country individually on its own merits and interpret all data and findings. Then it is necessary to examine differences between the countries and systems. The types of documents that each partner researched and examined in their own countries included legislation at both a national and a European level: laws, acts, statutes, opinions, recommendations, directives, regulations, plans and protocols, reports, communications and conventions. It is important to note that even where it appeared that the principal laws did not consider the issue of disabled persons, any laws that had been examined were referenced in the matrix. Where laws are identified as treating or addressing the problem of disabled people, the reference paragraph was translated into English and feature at the heart of the discussion here. 4.6.1 THE EUROPEAN PICTURE The European Union’s long-term strategy for the active inclusion of persons with disability revolves around the Disability Action Plan (DAP) and the European Disability Strategy (2004-2010). Mainstreaming is at the centre of this strategy and implies analysing the relevant policy areas from the disability perspective, understanding the diverse needs of people with disabilities and taking them into account when developing policy. Disability policies are essentially the responsibility of Member States, but Community policies and actions impact in many ways on the situation of disabled people136. Therefore the EC recommended that Member States take full account of the DAP when developing national disability policies. There are sixteen EU civil protection legislations consisting of various Council and Commission regulations, resolutions, decisions and proposals relating to civil protection at the European level. While these documents deal with more robust civil protection capabilities, strengthening of contributions and better co-operation in civil protection, there is no reference to persons with disabilities and their rescue in case of disaster. The most recent piece of civil protection legislation, the Council Decision 2007/162/EC, Euratom of 5 March 2007, establishing a civil protection financial instrument, does not make any specific reference to persons with disability. However, prevention and other preparedness actions financed within the context of this civil protection financial instrument foresee the support of actions that consider specific vulnerable groups. 136 COM (2005) 604 final, 28.11.2005 48 ULSS 20 Verona RDD – Recommendations for Good Practice More recently, Article 19 of the European Parliament resolution of 4 September 2007, discussing the recent summer’s natural disasters, “stresses the need to take special care of the specific needs of persons with disabilities in case of natural disasters in all actions undertaken using the civil protection mechanisms”137. It is clear that there is room for improvement in the context of European legislation. The lack of strong legislative provisions on the subject suggests that it is up to the individual Member State to introduce laws on this subject, thus bringing the principle of subsidiary into play. Perhaps, for once, this is not a good thing as many Member States do not have provisions for disabled people, while if European regulations or directives were in place, the individual country would be forced to take appropriate action. 4.6.2 ITALY As an introduction, it is worth noting that there are numerous laws in Italy that deal with the disability issue in general and in particular with issues of accessibility. However, as discussed below, there is little reference to the rescue of persons with disability in case of disaster in the relevant legislation on emergency preparedness and management. The national law establishing the National Service for Civil Protection regulates the legislative framework for disaster management in Italy. (24th Feb. 1992 N° 225). This law does not contain any specific reference to persons with disability. There are 5 legislative decrees dedicated to the security of people in the workplace in case of fire, the management of emergency situations and the security and health of people in the workplace. The Ministerial decree for national guidelines for the security of people in workplaces in case of fire and management of emergency situations contains a chapter (8.3) on rescuing disabled people in fire emergencies. In this chapter it states that workplaces should have measures for fire prevention and the evacuation of people with disabilities and that emergency plans should foreseen some workers able to help persons with disabilities (Ministerial Decree 10 March 1998) In the Ministerial decree regarding general principles of management of health rescue during emergencies, there is a minor reference to persons with disabilities and only regarding the territory check phase. (Ministerial Decree 13 February 2001 N° 81) 137 http://www.europarl.europa.eu/sides/getDoc.do?type=TA&reference=P6-TA-2007-0362&language=EN “European Parliament resolution of 4 September 2007 on this summer's natural disasters” 49 ULSS 20 Verona RDD – Recommendations for Good Practice Another Italian communication sets out national guidelines for the security of persons with disabilities in fire emergency and advises on how to create a rescue system for the disabled should a fire breakout. (Communication N°4 1 March 2002). This communication also contains a checklist of actions in order to ensure the security of workplaces where there are persons with disabilities. The Italian National Fire Department appears to have procedures for rescuing disabled people in disasters or emergencies. An Italian directive on procedures to follow in order to promote the psychological and physical safeguard of persons during and after a disaster makes reference in their second article to vulnerable persons, and in particular persons with disabilities. (Directive of the President of the Council of Ministers – 13 June 2006). Those that stand out among the above-mentioned legislative provisions are those referring to fire safety and in particular workplace safety in case of fire (guidelines for risk assessment, prevention and protection measures and emergency management), as emergency plans need to consider disabled people and the distinction between mobility impairment and sensorial disabilities. It is clear that the Italian National Fire Department has considered disability issues in their work and could provide useful insight to other relevant departments on this subject. 4.6.3 HUNGARY The research on the situation in Hungary reveals that the legislative situation concerning the rescue of persons with disability in case of disaster is rather poor. Hungary has an act (Act LXXIV of 1999) on the direction and organisation of disaster management and the protection against major accidents related to hazardous materials. This act incorporates the subsidiary system of prevention and protection of man-made and natural disasters into a uniform frame and regulates and harmonizes the activities of the state, governmental, municipal and civil organisations on different levels. It also defines the duties and measures of the government and the Government Coordination Committee as the government organ responsible for the preparation and coordination of governmental decisions related to disaster management. There is a law which deals with current health care (CLIV 1997) and a regulation (158/1999 (XI.19) on disaster medicine, which harmonises the aforementioned law and act. However, none of these all important pieces of legislation contain any reference or provision for persons with disabilities in an emergency situation or how to rescue them. 50 ULSS 20 Verona RDD – Recommendations for Good Practice 4.6.4 SLOVENIA One of the base pieces of legislation in Slovenia is the governmental act/doctrine on protection, rescue and assistance. This is the fundamental doctrine for organisation, preparedness, action and implementation of protection, rescue and aid in the case of natural disasters. There is a law (UL RS 71/93) on the protection against natural and other accidents which regulates the protection of people, animals, assets, cultural heritage and the environment against natural and other accidents. Slovenia also has a Fire Protection and a Fire Service Act (UL RS 71/93), a Protection against Drowning Act (UL RS 44/00.), as well as a regulation on the Organisation, Equipment and Training of Protection, Rescue and Aid Forces (UL RS 22/99). The above pieces of legislation do not make any mention of the protection, rescue or aid to people with disabilities. Slovenia is also prepared for emergencies through a number of national plans. For example, they possess plans for the protection and rescue in case of major fires, the use of weapons of mass destruction, terrorist attacks, accidents at sea, earthquakes, floods or nuclear accident, railroad or aviation disasters. Reference to the rescue of the disabled is usually made in these national plans under the heading “Personal and mutual protection”. Personal and mutual protection includes measures to be taken by the population to prevent and mitigate the effects of natural and other disasters or military and terrorist activities so as to protect their health, lives and property in both the home and working environment. The primary responsibility for assistance in this field is assigned to competent social services and humanitarian organisations. Disabled are sometimes explicitly mentioned – or are included as “most vulnerable groups of the population” (as is the case in the National Plan for protection and rescue in the case of floods). There is a Red Cross of Slovenia Act of 1993 (UL RS 7/93) which contains provisions for the Red Cross in assisting with first aid and rescue in disasters. The task of its units is to “provide temporary admission or (respectively) enable temporary housing to the most vulnerable groups of the population (children, elderly, pregnant women, disabled, gravely ill) in the case of natural or other disaster”. The assistance to the disabled is usually not elaborated according to the rescue phase and references are only given for some actions in the case of disasters, such as housing arrangements or consultation services. The later is mentioned in the Regional Plan for protection and rescue in the case of floods in the Vzhodno-Štajerska region under the heading of personal and mutual protection: “The municipality can organise the adequate consultation service, usually run by volunteers, especially psychologists, sociologists, social workers, health workers, experts from the field of protection and rescue and others for the assistance to the particularly vulnerable groups of the population (elderly, disabled, sick)”. 51 ULSS 20 Verona RDD – Recommendations for Good Practice The law and guidelines are quite sparse when it comes to the disabled therefore; some clarification was sought from the operatives - such as regional offices of the Administration for Civil Protection and Disaster Relief in Ljubljana and Maribor. It was established that the planning of the rescue of disabled should, in practice, be elaborated by companies and organisations on the level of “plant plans” as it is the responsibility of every institution to devise a plan of rescue according to the special needs of the people in its care. A 2006 Slovenian Law states that “plans for protection and rescue have to be devised also by organisations that perform activities in the fields of education, social, health, etc., that include the care or protection of a greater number of people”. This is elaborated further in the National Programme (2002). 4.6.5 SPAIN A plan for emergency planning for situations of flooding in Andalucia (Plan de Emergencia ante riesgo de inundaciones en Andalucia - 2005) is worth mentioning. Article 7 of this plan deals with evacuation actions and the identification of vulnerable groups. It also contains provisions that highlight the existence of vulnerable groups within the population, but with differentiation (e.g. the elderly and disabled). There is also a model and development plan dealing with assistance to people with disabilities and the promotion and accessibility of services (II Plan de Acciòn Para Las Personas con discapacidad 2003-2007). Area 1 of this plan makes reference to the promotion of accessible emergency services with adopted transport. The other four laws and decrees for Spain, dealing with forest fires and emergencies in Cantabria, to name a few, contain nothing regarding the rescue of people with disabilities in disasters. 4.6.6 IRELAND Ireland's review provides details on the Framework for Major Emergency Management and its accompanying Guidance Documents (2006). Framework's Section 5 provides for vulnerable people. The article reads that the principle response agencies and their associated emergency services should be particularly aware of the needs of those individuals who, because of dependency or disability, are particularly vulnerable during emergencies. According to the guidance documents, vulnerable persons can include children in schools, nurseries and child care centres, as well as persons whose movement is inhibited either by reasons of age, illness (including mental illness), disability or those who are deaf, blind, visually impaired or hearing impaired. Particular attention is required when an emergency involves or threatens a community hospital, residential home or day centre, where such individuals reside or stay for part of the day. Guidance Document 1 again provides for vulnerable groups. It gives an example of an Impact Assessment table in which to record the impact to humans. This table incorporates the elderly, infirm, ambulant, non-ambulant, diabetic, physically and mentally disabled, vulnerabilities by asthmatics, mental health, failure to take protective action, failure 52 ULSS 20 Verona RDD – Recommendations for Good Practice to understand instructions, physical or mental limitations, additional vulnerability or enhanced impact, numbers affected, self-sufficient individuals or those that must wait for assistance. Guidance Document 2 is on a par with the Garda Policing Plans, which makes no reference to people with disabilities. At the local level, major emergency plans for Clare or Limerick make no reference to disabled people. However, section 26 of the Kerry Emergency Plan covers the disabled. In any major emergency situation, disabled persons require special consideration. The disabled may not be able to see, hear or respond to any emergency warning system and are particularly vulnerable in emergencies that require evacuation or other protective action such as flooding and toxic clouds. The emergency services are reminded to make provision for the disabled in the event of major emergencies and to contact the special agencies which cater for the disabled. Appendix L lists organisations dealing with people with disabilities. Also considered is the British Standards Institute BS 5588: Part 8: 1999, Fire precautions in the design, construction and use of buildings code. This is a Code of Practice for means of escape and is one of the predominant pieces of legislation in Ireland. It provides that disabled people should always have available safe means of escape in the event of fire. The Code of Practice for the Management of Fire Safety in Places of Assembly also maintains that staff should receive training for the evacuation of occupants, paying special attention to the young, disabled and infirm. The Guide to Fire Safety in Existing Nursing Homes and Similar Type Premises is quite apt as it provides for people who are vulnerable and perhaps infirm or disabled when it comes to rescue in emergencies. The Guide to Managing Evacuation makes some provision for hospitals. The section on barriers to communication considers disability and special needs, such as people who have a limited ability to hear, see or comprehend information, the elderly and infirm, and ways of overcoming the barriers are portrayed. While considering methods of transport during evacuation, we are made aware of the fact that many modern buses and mini buses are especially adapted for people with disabilities with space for wheelchairs and rams. Rest centres should have disabled access and facilities. A review of the following pieces of legislation revealed that there is little or no provisions or mention of the development of plans to rescue people with disabilities: Disability Act 2005, Fire Brigades Act, Civil Defence Board Strategic Plan 2007, Civil Defence Act 2002, The National Emergency Plan for Nuclear Accidents and the Safety and Health and Welfare at Work Act 2005. There does not appear to be a specific level of government responsible for coordinating the rescue plan for people with disabilities. Plans and 53 ULSS 20 Verona RDD – Recommendations for Good Practice frameworks included in this legislative review only contain very brief references to rescuing people with disabilities. The current framework on Major Emergency Management is both worrying and encouraging. While it does briefly mention the disabled person and some of its guidance documents make provision for their safe evacuation, it is worrying that such a new and up-to-date law does not actively dedicate a specific section to people with disabilities. 4.6 CONCLUSIONS In all countries investigated, although legislation was made at the national level, it is usually the lower levels of government (regional or local) who implement the laws on the ground. In general terms, from what has been reviewed, there is a lack of specific provisions in existing legislation for rescuing disabled people in case of emergency disasters. In all countries investigated, those plans including provisions for rescuing people with disabilities refer to the removal of barriers on accessibility to buildings and public transport. In all countries investigated, references to rescue plans for persons with disabilities are concealed within the laws and not clearly available in the objectives. Out of all the countries researched, only Italy has one separate plan addressing people with disability. The other countries studied either mention the rescue of disabled people in the context of the main plan or do not provide for these people at all. In all countries investigated, no special references to the need to provide persons with disabilities with health and social services assistance considering their special needs was identified. In terms of logistical support, materials, equipment and provisions supplied, none of the countries investigated consider people with disabilities. In all countries investigated, in terms of prevention, there was little reference to the need to provide for special alert for persons with disability of potential disasters. Some plans did include particular methods for alerting people with disabilities, taking account of people with sensory impairments. 54 ULSS 20 Verona RDD – Recommendations for Good Practice In all countries investigated, there were limited references to evacuating people with disabilities. Italy, Ireland and perhaps Slovenia were among the countries that did include special evacuation procedures for people with disabilities. In all countries investigated, in terms of emergency shelter for people with disabilities, only one plan in Ireland recognised that rest centres must include special conditions, adaptability and accessibility for persons with disability. In all countries investigated, reference is made mainly to vulnerable people and only a few examples were identified where a distinction is not made between vulnerability and disability. 4.8 RECOMMENDATIONS Need for new or modified relevant legislation at the European and Member State levels to deal with all aspects of the rescue of persons with disability in case of disaster. This includes the special needs of persons with disability during all phases of an emergency situation (planning, mitigation and reconstruction) in order to guarantee equal access to disaster response and relief. Importance of the participation of persons with disabilities in any review process of existing legislation or in the drafting of new legislation. Importance of relevant stakeholders in influencing public and legislative authorities to commit themselves to include specific provisions for rescuing disabled people in case of emergency. Need for relevant legislation to make a distinction between the general population, vulnerable persons and persons with disability in their legislative provisions. Need for raising awareness on the importance of including protocols and emergency rescue plans in binding procedures through communication strategies and collaborative networks at the European level. Importance of exchanging current "best practices" and experiences between countries. 55 ULSS 20 Verona RDD – Recommendations for Good Practice CHAPTER 5: SECTOR ANALYSIS 5.1 INTRODUCTION This chapter summarizes the results of research carried out in selected European countries concerning how different emergency systems/structures address the situation of persons with disability in case of disaster. ULSS 20 Verona was responsible for summarizing the findings of the research activities conducted by the different project partners. The objective of the study was to compare differences and find similarities with a view to identifying best practices on this subject. The methodology was a combination of theoretical (literature/documentation) and practical research (interviews). The research was carried out at either the local, regional or national level in the five countries representing the partners participating in the EU-funded project. In all countries, it has been difficult to identify clear and well-defined instructions as to how to respond to the needs of persons with disabilities. There are many commendable initiatives in some of the countries where research was carried out, ranging from training to the development of special equipment for the rescue of persons with disability. However, these initiatives are being coordinated by individual institutions or organisations rather than at a nationwide level. It was clear that while most services/agencies responsible for civil protection who were contacted in connection with this project welcomed the research subject and were extremely willing to co-operate in providing information, it is apparent that the civil protection and disability issues have not been treated under the same umbrella in a coordinated manner. This is particularly evident from the point of view of statistics in that it has been difficult to establish the number of casualties related to persons with disabilities in a disaster situation. Therefore, this chapter makes a number of recommendations that, generally speaking, support the need for raising awareness among all the different stakeholders on the subject of disability and disaster, as well as the need for mainstreaming of disability issues into policy and planning of civil protection matters. 56 ULSS 20 Verona 5.2 RDD – Recommendations for Good Practice OBJECTIVES OF THE WORK The overall purpose of this study was to compare the differences and find similarities in selected European countries with regard to how the different emergency systems/structures address the situation of persons with disability in case of disaster, with a view ultimately to identifying best practices. In order to reach this objective, the study was broken down into individual components, each of which has a specific objective as follows: Firstly, the purpose of this study was to describe the different approaches and systems of the different relevant sectors of the argument in question, namely, psycho-social services, healthcare, emergency services and civil protection in selected European countries. Secondly, having established the system of operation, the study aims to provide an overview of the formal mechanisms currently in place within the existing systems for the rescue of persons with disability in case of emergency. Thirdly, the study aims to describe any practical experiences identified such as start-up experiences, experiences underway and completed experiences that have been or are being tested at local, regional or national levels before becoming part of formal rescue mechanisms. Finally, the study aims to identify any existing documents such as an expression of interest highlighting the need for an emergency system that pays particular attention to the needs of persons with disabilities. 5.3 KEYWORDS Civil protection; persons with disabilities; vulnerable persons; rescue procedures/protocol; disaster, emergency; impairment; alert systems; simulation schemes; special equipment; evacuation. 5.4 METHODOLOGY APPLIED The methodology for carrying out the research activities for the sectoral analysis involved the same steps as the literature and legislative reviews, starting with initial discussions on the draft methodology during the first technical meeting and the formal guidelines for information collection for approval by partners elaborated between April – September 2006. Also similar to the guidelines for the literature and legislative 57 ULSS 20 Verona RDD – Recommendations for Good Practice reviews, the guidelines for the sectoral analysis were written in a manner to ensure consistency in collection, facilitating the drawing up of the summary report. Partners carried out the research activities for the sectoral review through a literature review (books, journals, newspaper articles, laws, theses, conferences) as well as interviews with local stakeholders. The information was also presented at the second meeting in April 2007 and modifications made. The findings were analysed by comparison in order to draw some general conclusions about the situation in Europe and compile them in a summary report. Similarly to the legislative report, this report does not present a definitive overview of the European dimension but does provide a representative picture of how the issue of disability in the context of an emergency/disaster situation is addressed. 5.5 SETTING The information was collected in the countries of the partner organisations (Italy, Ireland, Slovenia and Spain). As previously indicated in the legislative review chapter, each country has a different system in operation but it can generally be said that the principle of gradualism applies in each country and the situation is handled either at a local, regional or national level depending on the size/level of the emergency. Specific areas of interest were: - Italy. Regional level: Veneto. Local level: Verona and Turin. National level: Italy - Ireland. Regional level: Cork, Limerick, Clare and Kerry. National level: Ireland - Spain. Regional level: Cantabria. National level: Spain - Hungary. Regional level: Pecs. National level: Hungary - Slovenia. Local level: Ljubljana. National level: Slovenia 5.6 DISCUSSION 5.6.1 DESCRIPTIVE ANALYSIS OF THE SECTOR The following section describes the different bodies/organisations involved in a disaster/emergency situation, as well as their interaction with one another in the different partner countries. In each case, the description begins with the highest level of coordination, which is at the national level and under the responsibility of a government ministry or department, and then goes on to describe the regional or local systems. 58 ULSS 20 Verona RDD – Recommendations for Good Practice Italy There is a multitude of different organisations that have a role to play in a disaster or emergency situation in Italy, either directly or indirectly. According to the Italian Law n.225/1992, “The national service of Civil Protection has many operative structures: the national body of fire fighters as a fundamental member of Civil Protection; armed forces; police forces; State Forestry Corps; national technical services; national scientific research groups in compliance with section 17, the national institute of geophysics and other research institutes; Italian Red Cross; the national health service structures; volunteer organisations; the national alpine aid corps (CNSA) (CAI: Italian Alpine Club)”.138 First and foremost, the Department of Civil Protection, which falls under the direct responsibility of the Presidency of the Council of Ministers (Prime Minister), is responsible for the management, coordination and implementation of various activities including forecasting and prevention, emergency management and overcoming the emergency. The Department works closely with the Regional Civil Protection Committee, the Provincial Civil Protection Committee and the Municipal Administrations in line with the political administration of Italy at local, provincial, regional and national levels.139 This operative system is characterized by the principle of subsidiary where every structure has its own competences: “Every municipality may provide itself with a civil protection service in the context of the regulation frame mentioned in law n. 142 of 8 June 1990 regarding local independence”. The region, in respect to its competence in organising the carrying out of administrative functions at the local level, supports the organisation of municipal structures of civil protection in the best ways and means. The mayor is the municipal authority of civil protection. If an emergency occurs on municipal territory, the mayor shall take on direction and coordination of the emergency aid services to the concerned populations and shall arrange for the relevant interventions. He shall inform immediately the prefect and the president of the regional council. When the natural disaster or event cannot be tackled with by municipal means, the mayor shall ask the prefect for the intervention of other forces and structures. The latter shall adopt the competence procedures, coordinating his interventions with those of the municipal civil protection authority140. The Italian Fire Brigade can also be present in an emergency situation and their mandate is not limited to fires but extends to many other situations, such as flooding, collapse, road accidents involving persons or 138 Italian Law n.225 of 24 February 1992, Establishment of the national civil protection (Section 11). Vade-mecum of civil protection in the European Union, October 1999, page 77 140 Italian Law n.225 of 24 February 1992, Establishment of the national civil protection (Section 15). 139 59 ULSS 20 Verona RDD – Recommendations for Good Practice dangerous substances and other risks posed by the use of nuclear energy. The main activities of fire brigades include the following: fighting against fires; reducing the number of fires and deaths and injuries caused by fire; the rescue of citizens in every emergency situations (earthquakes, eruptions, etc.); responding to other types of incident such as vehicle accidents, trapped people and animals, storms and floods; providing services that plan and prepare for large-scale emergencies such as large rail crashes, coastal pollution and severe floods141. The Emergency Medical Service (118) can also be involved in an emergency or disaster situation in that they provide pre-hospital or out of hospital acute care to patients with illnesses and injuries. The toll-free 118 number gives 24-hour access to emergency medical assistance throughout Italy. If the patient requires transport to a hospital, an ambulance or helicopter ambulance is sent. If the patient does not require transport to a hospital, the First Aid Service (Guardia Medica) is sent. The emergency number is also in contact with mobile units, hospitals and other services which intervene in emergencies (Police, Fire Brigade, Emergency Services, etc.)142. The aim of the 118 Service is to provide treatment to those in need of urgent medical care, with the goal of either satisfactorily treating the problem or arranging for the timely removal of the patient to the next point of definitive care. The activities of the 118 Service are under the responsibility of the ULSS (Public Health Authority), which is the subject of the next paragraph. The Italian Health System is coordinated centrally at the national government level for national planning and co-ordination of all matters regarding public health. Management is decentralised to the 20 regions of Italy, which in turn assign administrative and account management to Local Health Agencies and Hospital Corporations (Aziende Sanitarie Locali (ASL)143. There are 195 ASLs in Italy, of which 22 are located in the Veneto region. The system in the Veneto region has a further distinction as social services are linked directly to local health agencies instead of municipalities. ASLs and hospital corporations, as providers of health and social services, can be involved in a post-emergency situation. Maintaining public order in an emergency situation is essential. The Public Security National Authority responsible for public order and security maintenance is the Minister of the Interior. The function of the Public Security Administration is exercised at a central level by the Public Security Department and by provincial and local authorities, public security officials and officers at the local level144. 141 http://www.vigilfuoco.it/default.asp?menu=0 http://www.unibg.it/struttura/en_struttura.asp?cerca=en_ects_info_06 143 http://www.ministerosalute.it/ministero/sezMinistero.jsp?label=ssn 144 http://www.poliziadistato.it/pds/index.html 142 60 ULSS 20 Verona RDD – Recommendations for Good Practice Finally, the Italian Red Cross, comprising of Military corps, voluntary nurses, first aid, women’s committee, pioneers and blood donors, can also provide valuable resources in an emergency situation. Ireland For matters pertaining to civil protection, the body in charge is the Department of the Environment, Heritage and the local government. The principal response agencies for major emergencies occurring in Ireland are An Garda Siochana, the Health Service Executive and the principal local authorities. These are the bodies that are designed by the government to interact and respond in accordance with the Framework on Major Emergency Management. An Garda Siochana is the Republic of Ireland national police force and should undertake the following functions in response to a major emergency: declaration of a major emergency and notifying the other two relevant principal response agencies; maintaining law and order; traffic management; crowd control; implementing agreed aspects of evacuation procedures; assisting and directing survivors/uninjured people away from the site to places of safety; collecting information on casualties and survivors; arrangements in respect of the dead; recovery of bodies; preservation of the site; collection of evidence and forensic work. The Health Service Executive (HSE) was officially established in 2005 to manage and deliver health and personal social services in Ireland. The HSE should undertake the following functions in response to a major emergency: declaration of the emergency; provision of medical advice and assistance; provision of medical aid to casualties at the site; triage of casualties and assigning them to hospitals for evacuation; casualty evacuation and ambulance transport; provision of hospital treatment; certification of the dead; provision of community welfare services; clinical decontamination of contaminated persons upon arrival at hospital; exercising control of any voluntary or other service which it mobilises to the site. Finally, local authorities provide local government functions, which are divided up into a number of structures. There are 29 county councils, 5 city councils and 75 town councils. The functions of the local authority at a major emergency are: activation of the Major Emergency Plan; extinction of fires; protection and rescue of persons and property; containment, neutralisation and clearance of chemical spills and emission; decontamination of persons at the scene if necessary; maintenance of Local Authority Services; provision of access to the site; forensic support for Garda; advice on evacuation; accommodation and welfare of persons displaced by the emergency; site clearance, demolition, clean up operations, removal and disposal of debris; provision of food and rest facilities for personnel responding to the emergency; control and direction of all activities within the danger area; participation of the co-ordinating group. 61 ULSS 20 Verona RDD – Recommendations for Good Practice If required by the magnitude of the disaster, the support of civil defence reservists and other volunteer organisations (e.g. Red Cross, the Order of Malta, St. Johns Ambulance, etc.) can be called upon. Slovenia The system in Slovenia is based on the obligation of: the State (Ministry of Defence) and municipalities (the mayor); commercial companies, institutions and other organisations (services of emergency medical assistance; unit for the identification of the dead, institute for forensic medicine, unit for hygienicepidemiological work, mobile unit for meteorology and hydrology, ecological laboratory with a mobile unit, unit for protection and rescue in the accidents involving chlorine and other corrosive substances, unit for mining accidents, mobile information unit, service for protection and rescue in the case of ecological and other accidents at sea); and citizens (at an individual level and grouped in voluntary organisations). The Ministry of Defence is responsible for the organisation, preparation and implementation of the system for civil protection and disaster relief, and the rights and duties of citizens with respect to defence, civil protection and disaster relief. Within the Ministry, the Administration for Civil Protection and Disaster Relief performs the following tasks: administrative and professional tasks related to the organisation; preparation and operation of the system of protection against natural and other disasters; provision of assistance to local communities affected; monitoring, notification and warning; the communications and information system; assessment of damage caused by natural and other disasters; protection against fire and the provision of general rescue services; organisation and operation of civil protection, and preparations for and the functioning of the Civil Protection Headquarters of the Republic of Slovenia; preparation and implementation of national programmes for protection against natural and other disasters; disaster relief and post-disaster remediation and reconstruction. For the use of forces and means in carrying out of civil protection measures, the principle of graduation applies: Local community first uses its own resources and means for protection, rescue and aid in the case of natural or other disaster. In cases of disasters with a greater scope or risk in which the forces and means of local community are not adequate or are not provided between the neighbouring local communities, the state provides the use of forces and means from the wider area. Army and defence means can be used for protection, rescue and aid, if the available forces and means are not adequate for the emergency rescue and aid (provided the army is not needed in carrying out the defence duties). 62 ULSS 20 Verona RDD – Recommendations for Good Practice Hungary The central organ for disaster management is the National Directorate General for Disaster Management operating under the control of the Ministry of Local Government and Regional Development. Instead of two co-operating organisations, an integrated organisation avoiding duplications was established by the integration of the National Headquarters of the Fire Service and the National Headquarters for Civil Protection. The 19 county directorates, the Civil Protection Directorate of the Capital, the Disaster Management Directorate of the Airport and the Fire Service Headquarters of the Parliament are under the control of the Directorate General. County directorates control the local organs for disaster management and the local civil protection offices and practice professional supervision over the municipal and voluntary fire brigades and fire brigades of establishments. Spain The system in Spain stands out because of its particular political system. Spain is divided into 17 autonomous communities (communidades autónomas); each with its own elected regional parliament, government and president. The autonomous communities are divided into 50 provinces, headed by a provincial government and an elected provincial council. The role of the different administrative organisations in disaster management activities is defined in the national civil protection plans. There are two types of civil plans which are formulated by the National Commission of Civil Protection: Territorial plans are constructed to address the general emergencies that can happen at each territorial level: national/state, regional/autonomous communities or local. Special plans are constructed to address specific risks (floods, earthquake, forest fires and volcanoes). The National Commission of Civil Protection is made up of representatives of the various ministries involved in the management of emergencies, of the autonomous communities and of the local administration. The declaration of national interest for natural disaster is done by the Minister of Interior. The initiative comes from its own responsibility or from an autonomous community requirement. This declaration implies that the corresponding authorities use their territorial plans (autonomous community, provincial, supra-municipal, insular and municipal plans) or special plans. The management and coordination of the actions are realised on the national level. 63 ULSS 20 Verona RDD – Recommendations for Good Practice The "Direccion General de Proteccion Civil" (DGPC) of the Home Ministry is in charge of the state level activities in the civil protection domain (state plans). The main areas of responsibility include: Analysis - study and forecast of the situations of risk involving the analysis of possible disaster, its causes and the possible damages Prevention - study of natural disasters and decisions to reduce the potential risk, its occurrence and damages Planning - develop emergency planning and an operational structure Intervention - population and intervention services alert and rescue services Rehabilitation - reestablishment of essential public services and essential environmental and socio-economic conditions Information - increase public awareness of civil emergency plans and situation operations 5.6.2 CURRENT SITUATION The following section provides an overview of emergency mechanisms for persons with disabilities currently in place in the different partner countries. The research was generally carried out in a specific geographical area selected by the partner country. Italy Weather risks (e.g. storms, snowfalls, etc.), floods and earthquakes are frequent calamities in Italy. In particular, in the Province of Verona, the local area where the analysis has been conducted, a number of earthquakes have occurred, although none of particular relevance in this century. It appears that the Civil Protection of Verona has no specific formal protocols for rescuing persons with disabilities and particular trainings are not currently planned for the volunteers. Similarly, simulation schemes for rescuing persons with disabilities are apparently not performed by the Civil Protection of Verona. Based on the information currently available, these conclusions can be extended to all the Civil Protection in Italy. A few examples of simulation schemes have taken place at a local level where the issue of disability has been considered. In 2007, the procedure for rescuing a disabled student in a situation of emergency was tested in the town of San Giovanni Lupatoto. According to the analysis performed, it can be concluded that the Department of Civil Protection of Verona, as the other departments in Italy, do not have special equipment necessary for the rescue of 64 ULSS 20 Verona RDD – Recommendations for Good Practice persons with disabilities. However, the 118 Department of Verona Emergency has a specific fax number dedicated to persons without speech and hearing to communicate the danger to which they are exposed. Ireland Main disasters in Ireland are predominantly fires and floods. It must be stated that Limerick, the special study area where the research has been conducted, has not suffered any major disaster or emergency in the past. In the future, river flooding is the most tangible threat. Although extensive research was carried out electronically via interviews with various stakeholders, it was concluded that there was no clear reference to the specific and all-important needs of disabled people in alert systems and rescue protocols in Ireland. In fact, it appears that no concrete protocols or systems relating to rescue seem to exist or are made public knowledge in Ireland. Relative to the existence of simulation schemes in order to test the effectiveness of alert systems/rescue protocols, information from the Fire Service in Limerick divulged that certain fire and rescue staff are specifically trained in the rescue of people with disabilities. Apparently, there are simulation schemes which test how the Fire Service would rescue disabled people in emergency situations. However, they appear to be of limited value and not carried out with people who have real disabilities. On the other side, from information made available by the FireOx International organisation, it was revealed that an evacuation exercise/simulation scheme was carried out in a Dublin shopping centre in January 2002. It is thought that it was testing how to evacuate people with disabilities but not with people who actually had an impairment. Unfortunately no more details are available. Regardless of these reported instances, knowledge of simulation schemes or tests appears not be made public and that only people immediately involved are aware that they even take place. Relatively to the equipment for rescuing disabled people, in discussing this project with a senior fire officer in Limerick, it was pointed out that the Fire Service does not carry any special equipment or special stretchers for the rescue of disabled people. Firemen would carry any individuals who could not walk out of the building. In larger organisations, perhaps such as a care centre or a special needs school or a nursing home, it is possible that there might be an evacuation chair to assist in the egress of disabled persons. In consultation with different disability organisations, the researcher was informed that Vimpex, a UK fire alarm technology company, provided specifications for audible/visual alert systems. 65 ULSS 20 Verona RDD – Recommendations for Good Practice FireOx International explored the methods of assisted evacuation in a presentation in March 2006. Assisted evacuation is where disabled people are helped to evacuate buildings in times of emergencies. Assisted Evacuation Technique 1 is for people with mobility impairment. It illustrates how to correctly carry a person in a wheelchair down stairs in emergencies and features also, where available, a special lifting and carrying chair. However, it often transpires that disabled people will usually be carried out of the building by another person or by a specially trained rescue officer. For people with visual impairments, assisted techniques for evacuation are grasping techniques where the visually impaired person is aided or guided by another person's arm. Any assisted evacuation should be used in conjunction with consultation of the disabled person involved. A similar presentation by FireOx outlined other special evacuation equipments available for people with disabilities. These types of equipments are installed in the building and are fire protected and structurally hardened elevators/lifts, exterior evacuation devices and stairwell decent devices, all designed for use by people with disabilities. In conclusion, these are types of special equipment that should be available to rescue people with disabilities, but it is unclear as to exactly which types are actually used in practice in Ireland apart from the traditional method of carrying the person. Slovenia The most frequent disasters in Slovenia are: Earthquakes: Ljubljana (and wider area of Ljubljana region) is among the most endangered by earthquakes in Slovenia and where the possibility of a major (destructive) earthquake exists. Floods: almost a third of Ljubljana’s municipalities including Ljubljana itself, are classified as under “high flood risk.” For the region of Ljubljana, there are two main protocols in place: a plan of protection and rescue in the case of an earthquake and a plan of protection and rescue in the case of a flood. They have both been prepared by the Administration for Civil Protection and Disaster Relief - regional branch Ljubljana and adopted by the Civil Protection Headquarters for the Ljubljana region. Specific institutions, such as kindergartens, schools, companies, retirement homes and hospitals have to adopt their own specific plans. Within the plans, it is specified that listed protection and rescue units, including the Housing unit of Slovene Red Cross, are meant to provide supply and care to particularly vulnerable categories of population (e.g. pregnant women, disabled, elderly and mothers with children). 66 ULSS 20 Verona RDD – Recommendations for Good Practice Furthermore, there is a range of regional rescue plans for the Ljubljana region for nuclear incident, railway, road tunnel and smaller incidents. Relative to the existence of simulation schemes to test the effectiveness of alert systems and protocols; there are a number of examples. The Exercise Earthquake 2004 was a national simulation that took place in the wider Ljubljana region under the premise of a major earthquake in Ljubljana and involved over 700 participants. It was organised by the Ministry of Defence, Administration for Civil Protection and Disaster Relief and the Administration's regional branch – Ljubljana, Municipality of Ljubljana and operators implementing tasks involved in plans of protection and rescue (Civil Protection units, rescue units, the Slovene Red Cross, police, army, etc.). In 2007, two exercise withdrawals from a kindergarten in case of a major earthquake for children and staff were executed and a protection and rescue exercise “Earthquake in the elementary school of Koseze” was tested. A regional verification of the preparedness of the first aid Civil Protection units gathered 11 teams from the municipalities of the wider region of Ljubljana. The event tested the preparedness for the assistance in the case of mass accidents. There is also a Training Centre of the Republic of Slovenia for Civil Protection and Disaster Relief. The Training Centre, the main national educational institution in the area of protection against natural and other disasters, is run by the Administration for Civil Protection and Disaster Relief, and located in the Ljubljana region. It provides training and simulations for the forces of protection and rescue. So far, no reference of special equipment was found in the documents under review. Hungary The research for Hungary was conducted is Baranya County, located on the southern border of Hungary. Typical disasters are predominantly local flood damages caused by snow melting; there are few and restricted forest fires during the long time dry season and isolation of small villages due to heavy snow. According to the information retrieved, the rescue of elderly and persons with disability from their home is very time consuming because of the lack of rescuers, special tools and care givers. No specific reference has been found in the literature reviewed and the analysis conducted relative to the existence of simulation schemes to test the effectiveness of alert systems and equipment dedicated to the rescue of disabled persons in case of disasters. 67 ULSS 20 Verona RDD – Recommendations for Good Practice The local fire departments and civil protection organisations have acknowledged that the question of the rescue of persons with disability has not yet been resolved in the Baranya County. In addition, it was confirmed that the Department of Civil Protection of Baranya County does not have special equipment, methods and communication techniques for the rescue of disabled persons. With that said, regulation of evacuation and rescues are under development. Based on future challenges, disaster management has determined the tasks on which it will have to focus. These include tasks of major importance such as prevention, technical upgrade required for efficient response, systems ensuring faster flow of information and the development of monitoring systems. Further development of the current location and an increasing number of fire brigades will reduce deployment time. The strategy's most important concept is the close co-operation with local governments, NGOs and special rescue organisations and preparing citizens in advance for managing emergencies, including the training of young people and disabled persons in these areas. Spain The most common past threats in the area of Cantabria, where the study has been conducted, were related particularly to river-floods. In July 2007, there was a river-flood which affected 1,406. This information did not appear to provide any indication regarding the number of people with disabilities out of the total number of people injured. There does not seem to be any specific reference on the needs of disabled people in rescue protocols in Cantabria, however we can find interesting and useful information concerning alert systems. So far, simulation schemes in Cantabria for testing alert systems have been practiced mainly in mountainous areas. Cantabria is highly featured by valleys and mountains where tourism is encouraged. Recently, a simulation scheme for rescuing in case of emergency took place in Picos de Europa. Civil Protection units contributed to rescuing tasks with the Rapid Intervention Group which comprised adapted vehicles with telecommunications mechanisms; Red Cross volunteers; firemen experts in mountain areas and agents of rescuing intervention groups of the police. The exercise was divided into three phases: Simulation of rescuing uninjured people in an area of difficult access and unable to descend by their own means Rescuing injured person trapped in mountain walls, unable to move Evacuation of another injured person on a bed 68 ULSS 20 Verona RDD – Recommendations for Good Practice In parallel, simulation schemes for rescuing people at the beach regularly take place in Sardinero Beach (Santander). Volunteers of Civil Protection and the Red Cross along with the Regional Government Rescue Team take part in these schemes and a sea bike, boat and helicopter are normally used. The Regional Government of Cantabria provides 500.000 € per year to 17 municipalities for beach rescue. 678.000 € are allocated for training the 29 teams of Civil Protection, including 540 volunteers. The Regional Civil Protection School organises 16 courses for 700 to 800 volunteers. From the information collected, it can be concluded that no specific adapted equipment for rescuing disabled people appears to be used by the Civil Protection service emergency units or the fire brigades. 5.6.3 SECTORAL EXPERIENCES The following section provides an overview of any practical experiences in the field of the rescue of persons with disabilities in the different partner countries. One or more real examples have been selected by each partner country in order to outline how the system addresses persons with disabilities in a real life situation. Italy The region of Irpinia, along the southern Apennine chain, is one of the highest seismic hazard areas of the Italian peninsula. On November 23rd, 1980 an earthquake took place in this region and centered on the village of Conza. It measured 7.0 on the Richter Scale, killing 2,914 people, injuring more than 10,000 and leaving 300,000 homeless. Towns in the Avellino province were hardest hit. Damage spread over more than 10,000 square miles, including Naples and Salerno. It appears that there is no specific reference to the number of injuries and fatalities of persons with disabilities out of the total number of casualties in this data. The sectors involved in the emergency situation in Irpinia were: The armed forces: 19.545 units with 2500 vehicles Navy forces: 2000 units Air forces: 5400 units Polices forces: 8929 units with 1529 vehicles and 12 helicopters Public security forces: 4311 units Fire Brigade: 4792 units Customs officer forces: 1217 units State Forestry Corps: 633 units 69 ULSS 20 Verona RDD – Recommendations for Good Practice Foreign forces from Belgium, France, United States, Austria, Switzerland and Germany: 983 units At midnight on 23 November, 2000 army soldiers were in 26 municipalities destroyed by the earthquake. The planning of emergency included dividing every province into many COS (operative areas), involving different municipalities and 350-400 units; every mayor having an official person responsible for managing the emergency; the Fire Brigade bringing aid urgently to citizens through technical teams and 4792 units as their main intervention145. As it was not possible to establish data regarding to the number of casualties related to persons with disability, by the same token, it was not possible to establish how such cases were addressed during the disaster. Ireland Flooding is one of the few natural disasters that affect Ireland on a regular basis. Severe flooding hits much of Ireland, but specifically Clonmel. The most recent case of severe flooding took place in October 2004, where Clonmel was turned into a rapid stream. Roads were blocked and the fire service had to force its way through the large volumes of water. Despite research carried out, there was no way of identifying how many people were injured by the floods in Clonmel, or indeed in Ireland in 2004. Thankfully, there were no fatalities at that time. It appears that no disabled individuals were injured or even involved in the incident. Other vulnerable groups that were involved were the elderly and children. A lot of damage to property was reported and many homes were evacuated. . The principal agencies and many of the sectors typically involved in disasters provided prompt response and assistance in the floods of 2004. Civil Defence: Civil defence personnel and emergency services were on standby for rescue at all times. They helped other emergency services evacuate families and rescued any people trapped in high waters. The Health Service Executive: Health authorities advised people in need of accident and emergency services of which hospitals to attend and tended any injured people. Local Authorities: Teams were put in place to clean up the flooded areas and the damage was assessed. Warnings were issued to communities to take precautions in preparation for the severe flooding. 145 http://www.ispro.it/core.aspx?cat=248 70 ULSS 20 Verona RDD – Recommendations for Good Practice The Fire Service: The Fire Service was inundated with reports of flooding and had units at different locations in the cities and towns. They rescued any people who needed rescuing and evacuated homes. Gardai: Gardai noted a lot of surface water and advised motorists to avoid any areas affected by flooding. They assisted evacuation procedures and stood authority over affected areas. The Irish Red Cross: The Irish Red Cross gave details of a phone helpline for people in the southeast looking to apply for humanitarian aid following the recent severe floods. People in areas such as Clonmel and Waterford were still cleaning up after their flooding in November 2004 with the help of the Red Cross. The Irish Red Cross also distributed government humanitarian aid to victims of the floods. This followed a government decision to appoint the organisation to distribute aid to those who had suffered severe hardship. The Health and Safety Authority: Issued a warning to farmers and those working in the building industry to take extra precautions. The National Safety Council: Advised motorists to travel only if necessary and to watch out for falling debris on the roads. The Coastguard: On call to back up regular emergency services and rescued a number of trapped people in Cork. The Office of Public Works: Assisted as best it could, offering advice to those affected by flooding and helping with cleanup operations. During this particular flood emergency, many operational decisions had to be reached quickly by a wide variety of organisations, many of which would have been based on the use of geographical information. Collecting the data required for decision-making is frequently time-consuming and laborious. Under emergency conditions, the lack of ready access to such data may result in poor decisions and conceivably greater risk to lives and property. There is now in place a GIS-based emergency response decision support system developed by the Coastal Marine Resources Centre for the Shannon Estuary. There is now a plan to establish a flood relief programme for Clonmel, which is estimated to cost about €35 million. It should be able to provide protection against a 100-year flood, which means that an area has a one percent chance of being inundated each year. Additionally, pressure has been placed on the Irish Government to assign all responsibilities for flood management and emergency initiatives to a National Flood Defence Agency, which could then provide more integrated support to areas hit by a flood. 71 ULSS 20 Verona RDD – Recommendations for Good Practice Slovenia In Zgornje Posočje in 1998, an earthquake took place with a local magnitude of 5.8 on the Richter scale, making it one of the biggest natural disasters in Slovenia. The earthquake was followed by several rockfalls and landslides and within the first 10 days after the earthquake there were around 430 aftershocks. The regional and municipal organs in the field of protection and rescue management were activated immediately, as were the essential forces for protection, rescue and assistance. The activities of the Civil Protection, firemen and other rescue forces were mainly concentrated to covering roofs, providing shelters to the affected population, implementing urgent measures of protection, rescue and assistance, direct help to affected persons and clearing of roads and streets. The Slovene army was also involved in the rescue operations. After less than two weeks, basic living and housing conditions were assured for all, so the forces for protection, rescue and assistance ceased the operations and the post-earthquake reorganization could begin. In 2004, an earthquake with a local magnitude of 4.9 caused considerable material damage. More than 1700 buildings were damaged. It originated only a couple hundred meters to the northeast of the earthquake of 1998. This earthquake was also followed by rock falls and landslides. The competent authorities of the involved municipalities assured the transportability of the roads and the functioning of the telecommunications and electrical power supply. During the first week after the earthquake, local firemen and firemen from the Goriška region removed all dangerous ruins (chimneys, roofing, etc.) and secured dangerous areas and provided temporary housing for 140 people. Only in 2004 were there any casualties and it appears, from the data collected, that no casualties were related to disabled people. Hungary In the last few decades, it appears that only one case of fire happened in Baranya County, during which 5 people died and 18 were injured in a two-story building for elderly and disabled-people in Mohács (March 14, 1981). The fire was caused by an electric problem on the second floor and spread quickly due to lack of an alarm or extinguishing systems. From the research conducted, a second case is reported: a fire that took place in a home for psychiatric patients (February, 1 2007) in Borsod-Abaúj-Zemplén County. The fire was caused due to the breaking of the smoking rules. Casualties reported were four men, chronic serious mental patients. The National Ambulance Service, Fire Brigade and police arrived in 5 minutes and each sector reported there were no complications during this situation. 72 ULSS 20 Verona RDD – Recommendations for Good Practice In terms of flooding, Hungary declared an emergency situation on 3 April 2006. The level of the River Danube rose to 861cm in the early hours of 5 April. This was the third highest level ever recorded (867cm in 1876 and 848cm in 2002). The two isles of the River Danube were closed and a shipping embargo was enforced all over the Hungarian section of the Danube. Waters began to subside by 23 April and reports do not mention injuries. In addition, Hungary reported that its second largest river, the Tisza, reached a record level of 9.8 metres on 18 April, threatening some 160,000 people and over 50,000 homes. The Hungarian government extended a flood emergency to Hungary's three Koros Rivers to the southeast of the country. Disaster management, civil protection, water management, police agencies, fire brigades and local governments were taking part in the emergency operations involving almost 23,000 people. There is no data on the number of persons with disabilities included in this number. Spain During the terrorist bombings of March 11, 2004 in Madrid – commonly referred to as 11-M – all four trains containing explosive devices had departed the station at Alcalá de Henares between 07:01 and 07:14. At 08:00 emergency relief workers began arriving at the scenes of the bombings. By 08:30 SAMUR (Servicio de Asistencia Municipal de Urgencia y Rescate), the emergency ambulance service, had set up a "field hospital" at a sports facility at Daoiz y Velarde. Hospitals were told to expect the arrival of many casualties. Bystanders and local residents helped relief workers. Firemen and policemen were constantly reporting the updated number of casualties and fatalities. The group of rescuers consisted of 165 people who participated in different rescue and support operations, of whom 30.1% were men and 69.9% were women, with an average age of 34.9 years. Psychologists, police, doctors, social workers, educators and teachers were among the professionals in this group. Of these, 20.6% were involved in rescue work inside the bombed trains; the rest, as well as part of this 20.6%, provided direct help to survivors, families and friends in locations such as the IFEMA (Feria de Madrid) crisis centre, hospitals, funeral homes, etc. Officially 191 people died and 2051 were injured, of whom 82 were in critical condition. The bombings also had consequences on a larger number of people in terms of psychological effects of different types and severity, with the result that a substantial proportion of Madrid’s citizens reacted in a clinically significant manner. It appears that a clear number of disabled casualties had not been collected. Wounded people were carried by different means to various hospitals in the Madrid Autonomous Community, principally to the two largest public hospitals in Madrid: Hospital Gregorio Marañon (312 73 ULSS 20 Verona RDD – Recommendations for Good Practice casualties) and Hospital Doce de Octubre (242 casualties). Other hospitals involved were the Clínico San Carlos, Hospital de la Princesa, Hospital de la Paz, Hospital Fundación de Alcorcón, the El Niño Jesús Hospital and the Hospital Central de la Defensa. The amount of resources mobilized to the care of the wounded was unprecedented in Spain, with more than 70,000 health personnel involved, 291 ambulances for transport, and 200 firemen and police vehicles. The health authority activated the emergency plan for disasters, which consists of fitting out all the operating theatres in the hospitals, postponement of all non-urgent scheduled operations and the call of duty of all available health staff. 5.6.4 APPROVED DOCUMENTS OR EXPRESSIONS OF INTEREST The following section provides an overview of the existence of any documents (even in a preparatory phase) that highlight the needs for an emergency system that takes into consideration the particular needs of persons with disability in case of disaster. Italy “Il metodo Augustus”146, written by the Italian Department of Civil Protection and Ministry of Interior, is an executive document including guidelines to create a flexible plan for emergencies and a system of coordination between the involved actors. It is a manual for planning of emergency situations at the national, provincial and local level. It determines 14 executive functions for the Prefects and 9 for the municipalities and there is a specific chapter about the safeguard of population and in particular, persons with disabilities. Ireland In Ireland, it appears that there are currently no formal commissioned documents that demonstrate an interest expressed by organisations/institutions towards the issue of rescuing persons with disability in case of disasters. One document has been prepared by Mary Keogh, a non-governmental author who works for the Centre for International Rehabilitation in Dublin and is also the European Regional Coordinator for the International Disability Rights Monitoring Project. Her document was a proposal for entry into a competition, Make a Difference, run by Vodafone. The project proposal was published in 2006. The contents of this 2 page document focus on the inclusion of people with disabilities in emergency responses to natural disasters. The document mentions specific research that was carried out by the Centre for International Rehabilitation into the inclusion of disability in emergency relief plans after the Tsunami, which could and probably should be applied in a European context. The proposal notes that people with disabilities are among the most neglected populations worldwide and risk neglect in the wake of any natural disaster. In many emergency responses, people with disabilities find themselves marginalized from 146 http://www.comune.sulmona.aq.it/web/Protezione%20civile/PRESENTAZIONI%20FORUM/metodo%20augustus.pdf 74 ULSS 20 Verona RDD – Recommendations for Good Practice access to clean water, warm shelter and are generally excluded from emergency response plans. This exclusion is not intentional, but rather reflects the lack of awareness about the inclusion of people with disabilities in emergency planning. Slovenia In the documentation and literature for Slovenia that has been reviewed so far, it can be concluded that no clear interest or intent has been expressed that go beyond references contained in legislation. On the other hand, the issue raised a lot of interest among many stakeholders that were contacted in the process of making literature, law and sectoral review. Hungary The Emergency Department of Faculty of Health Sciences of University of Pécs created a new subject with the aim of developing their own student’s skills in caring and rescuing disabled persons. The course of equal opportunity provides special practical training to influence students’ behaviour and their attitudes towards disabled people. Major topics on the subject are: Basic definitions (ability, disability, needs and prejudice) Equality and inequality Communication difficulties with disabled people Elderly people and abilities Trans-cultural factor 5.7 CONCLUSIONS The national agencies responsible for civil protection vary from country to country, as does their position in the overall political structure. In Ireland, matters concerning civil protection are under the responsibility of the Department of the Environment, Heritage and the local government. In Italy, the system stands out in that the national department for civil protection responds directly to the Prime Minister. In Spain, the National Commission for Civil Protection is made up of representatives of the various ministries involved in the management of emergencies, as well as the autonomous communities and local administration. In the new Member States, the situation is evolving and new structures are being created to manage matters of civil protection, which were previously managed directly by the Ministry of Defence. In Hungary, there is National Directorate General for Disaster Management. In some countries, civil protection is under the responsibility of the defence departments. In Slovenia, the Administration for Civil Protection and Disaster Relief is under the responsibility of the Ministry of Defence. In all countries investigated, it appears that open dialogue does not exist between the relevant ministries responsible for civil protection on the one hand, and that responsible for social affairs on the other 75 ULSS 20 Verona RDD – Recommendations for Good Practice regarding the question of how to address the situation of rescuing persons with disability could be addressed. In all countries investigated, it is clear that NGOs and volunteer associations have a key role to play in an emergency or disaster situation and governments rely on their contribution and involve them formally, where necessary in operative plans and relief operations. In all countries investigated, it appears that little research has been dedicated to the question of rescuing persons with disability in case of disaster. Where some initiatives have been identified, they have not been co-ordinated or commissioned by the state. In all case studies carried out, it has been difficult to identify precise data on the number of casualties relating specifically to persons with disabilities in case of disaster. In all countries investigated, the lack of attention to the issue of persons with disability in case of disaster is relevant to all levels of intervention. However, it appears also that this lack of attention is due not to a lack of interest, but rather to a lack of awareness of the issue. 5.8 RECOMMENDATIONS Need to carry out detailed research into the needs of persons with disability in case of disaster according to the specific characteristics of the typology of the disaster, as well as the specific needs of persons with disability according to the typology of the disability. Need to gather statistics on the number of casualties relating specifically to persons with disabilities in case of disaster. Need to include specific provisions related to the particular needs of persons with disabilities in emergency systems (including specific tools, extricate tools, etc.). Need to plan and regularly schedule dedicated training courses to care givers on how to rescue people with disabilities. Need to include the rescue of real persons with disabilities in simulation schemes. 76 ULSS 20 Verona RDD – Recommendations for Good Practice Need to involve persons with disabilities in planning and preparation phase of emergency systems. Promote dialogue at the state level between ministries responsible for civil protection and those responsible for social services. Emphasize the importance of efficient coordination and organization among emergency services, including public and private institutions, official and volunteer services. Importance of European initiatives (such as the Civil Protection Action Programme and the Financial Instrument for Prevention Measures) that support projects, such as RDD, that look at the situation of vulnerable persons in case of disaster and raise awareness on the subject. 77 ULSS 20 Verona RDD – Recommendations for Good Practice CHAPTER 6: RECOMMENDATIONS FOR GOOD PRACTICE 6.1 INTRODUCTION This chapter represents one of the final products of the project “Rescuing Injured Disabled Persons in Case of Disaster”, co-financed by the European Commission, and has as its objective the presentation of recommendations for good practice on the rescue of persons with disability in case of disaster. The findings presented in this chapter are based on the research findings presented in the previous chapters and have been elaborated by the partner ULSS 20 Verona. 6.2 KEY CONCEPTS 6.2.1 ROLE OF PERSONS WITH DISABILITY Persons with disabilities should have the opportunity to be actively involved in the decision-making process concerning situations of risk, humanitarian emergencies and natural or man-made disaster. This involvement should be fostered by the development of inclusive policies at all levels starting from organisations of persons with disabilities and families, communities and up to national and international organisations/bodies. 6.2.2 NEEDS OF PERSONS WITH DISABILITY The basic needs of persons with disability should be seen as equal to those of the general population in situations of risk, humanitarian emergencies and natural or man-made disaster. However, policy and practice should take into account that there may be different requirements in fulfilling their needs. 6.2.3 DIVERSITY AND DISABILITY Diversity among persons with disability should be acknowledged and accommodated in planning, mitigation and recovery strategies to ensure multiple discriminations do not take place. 6.2.4 STAKEHOLDERS AND ACTORS INVOLVED The safety of persons with disabilities in situations of risk, humanitarian emergencies and natural or manmade disaster is the responsibility of individuals, public institutions at all levels, business and civil society, social partners, non governmental organisations, educational institutions, health authorities, civil protections and associations of persons with disabilities. 78 ULSS 20 Verona RDD – Recommendations for Good Practice 6.2.5 COMMUNITY-BASED APPROACH Community involvement and participation in planning and acting emergency planning measures is a fundamental element in disaster response and mitigation. The establishment of local communities’ networks has to be encouraged and empowered also when it comes to address the needs of persons with disabilities in situations of risk, humanitarian emergencies and natural or man-made disaster. (e.g. social networks and neighbourhood network) 6.2.6 INTER-SERVICE/INTEGRATED/TRANSVERSAL APPROACH Great efforts should be made towards developing a coherent, transversal and integrated approach among different services involved in the rescue of persons with disabilities in situations of risk, humanitarian emergencies and natural or man-made disaster. Coherent in order to obtain the same objectives through an orderly, logical and consistent relation of parts; Transversal due to the involvement of different sectors, competencies and experiences; Integrated because the different systems, procedures and protocols of different entities should converge into one complete framework. This inter-service approach will give new impulse to the sharing of resources, organisations, equipment and materials, infrastructures, technologies, finances, means of communications, transports, mobility and emergency mechanisms. The creation of tables at all levels (local, regional, national, European and international) should be commonly pursued for the co-ordination of the invention with permanent members coming from different organisations/institutions/associations. 6.2.7 THE DIFFERENT STAGES OF DISASTER The rescue of persons with disability in case of disaster should not focus exclusively on issues of evacuation, as has been the tendency to date, but should consider the question in all stages of disaster management (preparedness, mitigation and relief). 6.3 POLICY AND PRACTICE 6.3.1 NORMS AND LEGISLATION 79 ULSS 20 Verona RDD – Recommendations for Good Practice Relevant legislation and norms should deal with all aspects of the rescue of persons with disability in case of disaster, including the special needs of persons with disability during all phases of an emergency situation (planning, mitigation and reconstruction) in order to guarantee equal access to disaster response and relief. Therefore, it is important to keep policy makers up-to-date and informed. 6.3.2 SIMULATION SCHEMES Simulation exercises represent a fundamental tool in order to promote more effective co-ordination of response from relevant authorities and the population. They also represent a good opportunity to actively involve all the stakeholders and should include real participation of persons with disabilities. Simulations or role-play exercises where persons without disabilities take the role of persons with disabilities should be avoided. 6.3.3 TECHNOLOGY The potential of new technologies should be fully implemented and used to empower persons with disabilities and to ensure equal opportunity and treatment also in situations of risk, humanitarian emergencies and natural or man-made disaster. Information and communication technologies, mobility aids, devices and assistive technologies, rescue techniques and equipment and early warning systems should all meet the specific needs of persons with disabilities after the occurrence of humanitarian emergencies and natural disasters when, besides a physical harm, an altered psychological state also has to be met. The diffusion of new technologies and techniques should respect the concept of appropriate techniques and therefore not be threatened by problems of costs, availability and difficulties in their use. 6.3.4 ACCESSIBILITY Appropriate measures should be taken to ensure access to persons with disabilities on an equal level with others to the physical environment, transportation, information and communications. This includes information and communications technologies and systems and other facilities and services open or provided in case of humanitarian emergencies and natural or man-made disaster. 6.4 TRAINING AND INFORMATION 6.4.1 TRAINING AND CAPACITY BUILDING All actors involved in situation of risk management and rescue processes should be informed, trained and motivated in order to fulfil their responsibilities also when it comes to addressing the needs of persons with 80 ULSS 20 Verona RDD – Recommendations for Good Practice disabilities in risk situations. Courses should be given on emergency planning and special needs populations, as well as on-site training on inclusion provided. Actors involved in situations of risk management and rescue processes extends beyond civil protection units, fire brigades, health authorities, etc. and includes parents’ organisations and teachers, all of which should be included in teaching-learning processes. Training teachers on inclusive education is also recommended. Persons with disabilities should be put at the forefront in the setting up of these processes in a frame that looks at empowering and fostering people’s own capacities. In addition, they should be involved in the planning, monitoring and evaluation of any processes and also be considered both as trainers and trainees. 6.4.2 INFORMATION Information should be correct and easily understandable, accessible by all and appropriate to meet the different needs of persons with disabilities, taking into consideration the different kind of disabilities. Video programming distributors (e.g. broadcasters, cable operators and satellite television services) need to be informed of their obligation to make emergency information accessible to all. Information should also be positive, encouraging, helpful and financially affordable to everybody. In addition, the effectiveness of information should be monitored. 6.4.3 STATISTICS AND DATA Reliable, comprehensive and regular surveillance according to international standards is crucial for quantifying the problems, identifying risk factors and monitoring the effectiveness of interventions. Precise and constant mapping activities (implemented in full respect of the right of privacy of person’s with disability) to clearly and easily localize persons with disabilities should be part of the surveillance systems. 6.4.4 AWARENESS RAISING Priority should be given to raising awareness of the protection of persons with disability in situations of risk, humanitarian emergencies and natural or man-made disaster amongst all the relevant stakeholders as defined in paragraph 1.4. Raising awareness activities could include: promoting dialogue and discussion on the subject; disseminating existing good practice, manuals and guidelines on the subject; special consideration should be assigned to the role of arts and culture which, thanks to their universal language, can reach the wider community. 81 ULSS 20 Verona RDD – Recommendations for Good Practice 6.4.5 INTERNATIONAL ALLIANCES AND NETWORKING It is important to promote constant, permanent and regular collaboration and partnership among stakeholders. Identification of protocols, technologies, techniques, public awareness campaigns, mitigation activities, disaster preparedness and management activities and any other action to be undertaken to improve the safety of persons with disabilities in case of disasters will be eased by a continuous exchange of experiences. In order to ensure an effective exchange of experiences and knowledge of good practices, a stable international network should be promoted. This international network will be more effective if based on consolidated regional and national networks in each state. Dedicated institutions should ensure the need for research, expert advice, advocacy and information dissemination, which are of paramount importance in increasing a correct understanding of the matter at all levels. 6.4.6 FUNDING Many of the recommended changes or recommendations for good practice require a certain investment of funds on the part of stakeholders such as health authorities, civil protections, organisations, etc., that may/may not be available (or readily available). In order to ensure that adequate funding is available to support the needs of persons with disability in situations of risk on all levels (local, national, etc.) disability issues should be included in funding agency guidelines and a Disability Founders Network could be created to be sure that funds are appropriately allocated. Governments and/or funding agencies could also make funding requests contingent on changes being made from a policy and practice standpoint taking into consideration the needs of persons with disabilities. 6.4.7 EXCHANGE OF GOOD PRACTICE In the last decade, a wealth of information has been produced worldwide on the subject of persons with disabilities in situations of risk, humanitarian emergencies and natural or man-made disaster. Much of this literature has been produced outside the European Union and in particular in the United States and in developing countries. In the case of the latter, this reflects the unfortunate frequency of catastrophe and the high number of persons with disabilities living in these countries. European stakeholders have much to learn from these countries that have been documenting their experiences and approaches for a number of years. 82 ULSS 20 Verona RDD – Recommendations for Good Practice 6.5 KEY ELEMENTS OF A COMMUNICATION RESCUING AND TRASPORTATION SYSTEM FOR DISABLED PERSONS IN CASE OF DISASTER 6.5.1 INTRODUCTION In an emergency situation, persons with disability often continue to be treated as passively dependent on the expertise and capacities of others in order to survive. This is true to the extent that emergency mechanisms from planning and mitigation to the rehabilitation phase have largely been designed to accommodate the general population without taking into consideration persons with disabilities. However, it is important to note that persons with disabilities are not the only vulnerable individuals during an emergency situation. The general public is at increased risk and more vulnerable as well, and individuals who are normally not classified as “disabled” under normal environmental conditions could become disabled during a disaster or emergency situation. In addition, the concept of “universal independence” can come into play.147 “Universal independence” refers to the state of being independent in all the probable environmental varieties of regular life, while “limited independence” refers to the state of being independent only in a limited environment such as the home. Research has indicated that limited independence can lead to a decline in functioning after a disaster, suggesting that limited independence should be considered a risk factor in emergency situations. With that said, the basic needs of persons with disabilities should be seen as equivalent to the general populations. However, there may be different requirements in fulfilling their needs. In order to fully comprehend these requirements, it is essential that all stages of disaster and emergency management are conceptualized and implemented with the active participation of persons with disability. Clark (2002) and others emphasize the diversity of communication styles and formats. There are diverse needs even within specific groups of people with impairments, which again puts the emphasis on listening to persons with disability. People with visual impairments, for example, are frequently presented with large print even though the depth, font and color contrast may be more important. There is also the danger of assuming a disabled person prefers the use of technical adaptations rather than human assistance. This section presents a number of recommendations for key technical elements for a communication and rescue system that is inclusive of persons with disability. This said, although this section deals primarily with technology considerations, it goes without saying that the attitude and endorsement of all those who 147 https://crs.sanita.fvg.it/WHO/Documents/WHOFIC2007_D025p.pdf 83 ULSS 20 Verona RDD – Recommendations for Good Practice come into contact with this technology (the service provider, end user and emergency services) is key to its success. Finally, as with all technology, it is of paramount importance that such equipment be tested (e.g. simulation schemes) with the involvement of persons with disability. 6.5.2 PLANNING AND PREPAREDNESS Registration Registration of data concerning persons with disability in a computerized database accessible to the relevant emergency services could prove vital in case of disaster. Such data could include location (permanent residence), details relating to the residence (floor, any access problems, etc.), the nature of disability (physical impairment, visual impairment), details concerning the type of equipment or skills required for evacuation and any other relevant information (critical medicine or medical treatments). While there are obvious benefits of registration as a way to reach persons with disability quickly and efficiently, the procedure also raises issues relating to the rights of privacy of the individuals involved. Therefore, this practice needs to be carefully considered with all the key stakeholders before being implemented. Building Design When considering evacuation, buildings should be designed on the basis of the safe egress of all means and the evacuation time of the person that will take the longest to escape. Furthermore, accurate information regarding obstacles and proper anchoring and bolting for the visually impaired should be ensured. Simple diagrammatic pictures for the cognitive impaired and alerting devices (see below) for the hearing impaired should be in place. Special Equipment Adapted Fire extinguishers: fire extinguishers should be designed to be operated by people with limited strength and mobility and instructions on their use should be accessible to the visually impaired. (e.g. tactile feature). Tool kits: emergency tool kits can also be considered. Such tool kits should be designed by persons with disabilities and depending on the context (type of risk situation) and the nature of the impairment, could include: - Information on specialized transportation, evacuation devices and evacuation strategies - Details of emergency sign language - Heavy gloves to protect individual’s hands from debris when pushing a manual wheelchair - A patch kit to repair flat tires 84 ULSS 20 Verona RDD – Recommendations for Good Practice - Extra batteries (e.g. for motorized wheelchairs or medical equipment requiring electricity that may be in need of an alternative energy source) - Medicine, first aid and durable medical equipment (DME) 6.5.3 RESCUE AND RECOVERY Early Emergency Communication Systems Mobile phones, text phones, vibrating/tactile paging devices and wireless communicators can all prove useful to persons with disability in communicating their status to relevant authorities, groups, neighbours, friends and relatives. In addition to being accessible, these devices need to be capable of being operated independently by persons with disability, meaning without the help of a third party. The ability of a disabled person to independently communicate one’s need/s is extremely important. The majority of these types of devices on the market are not waterproof and it is unlikely that they would survive a flood. Therefore, if such devices are to be relied upon in a flood risk area, the user should ensure that they are a safe distance away from the water, but still within reach. Evacuation Alerting Device: alerting devices can be used to notify the hearing impaired to sounds in the environment, such as an emergency alarm that vibrates or has a light signal (a transmitter detects certain sounds and then sends a signal to a receiver that vibrates or blinks a light). Evacuation Devices: emergency evacuation devices (evacuation chairs, cables and chutes) should be available to help evacuate individuals with mobility limitations from buildings. These devices can help individuals quickly move people with mobility limitations down the stairs or across rough terrain. Evacuation Assistant: an “evacuation assistant” or “buddy system” operates on the basis that in the workplace, a person is designated to assist a person with disability in case of an emergency. This person should be familiar with the type of disability, aware of the operating system of specific technological devices in place to assist with the evacuation process and be informed of the best way to assist the person with disability in case of evacuation. Transportation Accessible vehicles, appropriate lift and secure equipment, liability coverage, availability of fuel and regulations addressing the involvement of private transport companies should be addressed before an emergency takes place so that transportation providers can reduce ad-hoc decision making and ensure more reliable, safe and timely service for persons with disability. 85 ULSS 20 Verona RDD – Recommendations for Good Practice 6.5.4 RELIEF Shelters Traditionally, great attention has been paid to ensuring that shelters are well stocked with basic necessities such as food, water and blankets. However, in many cases, shelters are not accessible to people with disabilities. Potential shelters should be identified bearing in mind parking facilities and entrance access. In addition, shelters must allow access to service animals. Medicine and Medical Treatment As mentioned above (Registration), it could be useful to have a record of essential medicine or medical treatment. Such records should include a copy of prescriptions, as well as dosage or treatment information. If medical equipment requires electricity to operate, alternative sources of energy should be identified in case of a power outage. 86 ULSS 20 Verona RDD – Recommendations for Good Practice BIBLIOGRAPHY PRINTED SOURCES (e.g. books, journals, documents, etc.) Al-Madhari, A.F. & Keller, A.Z. “Review of Disaster Definitions.” Prehospital and Disaster Medicine.12 (1). 1997. 17-21. Anderson, M. B., and Woodrow, P. J. Rising from the Ashes: Development Strategies in Times of Disaster. Boulder: Westview Press, 1989. Brunel University. “Definition of Disability in Europe: A Comparative Analysis.” Final Report. UK, 2002. Burton, I., Kates, R. W., and White, G.F. The Environment as Hazard. New York: Oxford University Press, 1978. Chamiowitz, A. (1980). “Disease problem in post-disaster situations.” Mac Mahon, A.G., Jooste, M. (eds) Disaster Medicine: Report of Proceedings of the International Conference on Disaster Medicine Held in Cape Town, August 1979. Cape Town, Rotterdam, South Africa: AA Balkema, 1980. Christie, F., and Hanlon, J. “Preparedness Pays off in Mozambique.” Chapter 3, IFRC-RCS. World Disasters Report 2002; Focus on Reducing Risk. London: Eurospan, 2002. Christoplos I., Liljelung A., and Mitchell J. (2001). “Re-framing Risk: The Changing Context of Disaster Mitigation and Preparedness.” Disasters. Volume 25 (3). Blackwell Publishing, 2001. 185-198. COM (2003) 650 final, 30.10.2003. Equal opportunities for people with disabilities: A European Action Plan. COM (2005) 486 final, 13.10.2005. On the implementation, results and overall assessment of the European Year of People with Disabilities 2003. COM (2001) 271 final, 29.05.2001. Proposal for a Council Decision on the European Year of People with Disabilities 2003 COM (2005) 604 final, 28.11.2005. Situation of disabled people in the enlarged European Union: the European Action Plan 2006-2007. Comfort, Louise K. Managing Disaster: Strategies and Policy Perspectives. Durham: Duke University Press, 1988. Friedmann, John. Empowerment: The Politics of Alternative Development. Cambridge, MA and Oxford, UK: Blackwell Publishing, 1992. Frerks, G., Hilhorst D., and Moreyra. “Natural Disasters. A Framework for Analysis and Action.” Netherlands: Wageningen University, Disaster Studies, Rural Development Sociology Group, 1999. 87 ULSS 20 Verona RDD – Recommendations for Good Practice Hewitt, Kenneth. Interpretations of Calamity from the Viewpoint of Human Ecology. London: Allen & Unwin, 1983. Hilhorst, Dorothea. (2002). “Complexity and Diversity: Unlocking Social Domains of Disaster Response.” G. Bankoff, G. Frerks and D. Hilhorst. Vulnerability. Disaster, Development, People. London: Earthscan, 2002. 52-67. Hilhorst, D., Waalewijn, P.,Warner, J. “Public Participation in Disaster-Prone Watersheds. Time for Multi-Stakeholder Platform. Paper for the Water and Climate Dialogue.” Netherlands: Wageningen University, Disaster Studies, Irrigation and Water Management Group, 2002. Ibrahim, M. Shaluf, Fakharu’I-razi Ahmadun, Aini Mat Said. (2003). “A Review of Disaster and Crisis.” Disaster Prevention and Management. 12 (1). 2003. Lavell, Allen. (2002). “The Lower Lempa River Valley, El Salvador: From Risk to Sustainability: Experience with a Risk Reduction and Development Project.” G. Bankoff, G. Frerks and D. Hilhorst (eds). Mapping Vulnerability. Disasters, Development and People. London: Earthscan, 2004. Mehta, Lyla. “Rethinking Key Assumptions in Natural Resources Management: Drawing Lessons From the Case of Water.” Draft report, presented at the 8th biennial conference of the International Association for the Study of the Common Property. Bloomington, Indiana, 2000. Morrow, Betty Hearn. (1999). “Identifying and Mapping Community Vulnerability.” Disasters. Vol. 23 No.1. 1999. 1-18. Oliver-Smith, A., and S. Hofmann, eds. The Angry Earth: Disaster in Anthropological Perspective. New York: Routledge, 1999. Pittaluga J., Petiti G., Zizzoli E. Abili a Proteggere. Rome: Europe Consulting, 2007. Rodrigue C. and Rovai E. eds. Earthquakes. London: Routledge, 2002. Rosenthal, Uriel. “Disaster Management in the Netherlands: Planning for Real Events.” Comfort L.K., Managing Disaster: Strategies and Policy Perspectives. Durham: Duke University Press, 1988. Rubin C.B., Barbee, D.G. (Jan., 1985), “Disaster Recovery and Hazard Mitigation: Bridging the Intergovernmental Gap.” Public Administration Review, Vol. 45, Special Issue: Emergency Management: A Challenge for Public Administration. 1985. 57-63. Stevenson, Angus. “Disaster.” The Concise Oxford English Dictionary. 11th Edition. 2004. Tudor, Carol. “EPC Electronic Disaster Database and its Characteristics.” Ottawa: Emergency Preparedness Canada, 1997. UN, Department of Humanitarian Affairs. “ONUG/DHA, Gestion des Catastrophes (ESF).” Geneva: Glossair, 1992. UNISDR Secretariat. “Living With Risk: A Global Review of Disaster Reduction Initiatives.” Geneva: UNISDR, 2002. World Health Organisation. “What is Disability?” Document A29/INFDOCI/1. Geneva: 1976. 88 ULSS 20 Verona RDD – Recommendations for Good Practice World Health Organisation. “International Classification of Impairments, Disabilities, and Handicap: A Manual of Classification Relating to the Consequences of Disease.” Geneva: Office of Publications, 1980. ONLINE SOURCES Agence europeenne pour la securite et la sante au travail.“Garantir la securite et la sante des travauìlleurs handicapes.” <http://osha.europa.eu/publications/factsheets/53/fact53_fr.pdf>. American Psychological Association Homepage. <www.APA.org>. American Red Cross. “Disaster Supplies Kit.” <http://www.redcross.org/services/disaster/0,1082,0_3_,00.html>. Americans with Disabilities Act (ADA). “An ADA Guide for Local Governments Making Community Emergency Preparedness and Response Programs Accessible to People with Disabilities.” <http://www.ada.gov/emergencyprep.htm> “Arrete du 25 juin 1980. Portant approbation des dispositions générales du règlement de sécurité contre les risques d'incendie et de panique dans les établissements recevant du public.” <http://hygiene-securite.ac-aixmarseille.fr/PDF/Incendie/Arr%EAt%E9%20du%2025%20juin%201980%2010%20oct%2005.pdf>. Babcock Gove P. “Disaster.” Webster’s Third New International Dictionary. Unabridged Online. Merriam Webster. <http://mwu.eb.com>. Batiste L.C., Loy B. Job Accommodation Network. “Employers’ Guide to Including Employees with Disabilities in Emergency Evacuation Plans.” <http://www.jan.wvu.edu/media/emergency.html>. Bergamo University. “Medical Services: Health and Insurance.” <http://www.unibg.it/struttura/en_struttura.asp?cerca=en_ects_info_06>. Boyce, William. “Adaptation of Community Based Rehabilitation in Areas of Armed Conflict.” Asia Pacific Disability Rehabilitation Journal Vol. 11 @ No. 1 @ 2000. <http://www.dinf.ne.jp/doc/english/asia/resource/apdrj/z13jo0500/z13jo0506.html>. California State Independent Living Council (SILC) Homepage. <www.calsilc.org>. California State Independent Living Council (SILC). “The Impact of Southern California Wildfires on People with Disabilities.” California: SILC, 2004. p. 8. <http://www.calsilc.org/impactCAWildfires.pdf>. The Center for an Accessible Society Homepage. <http://www.accessiblesociety.org/>. Center for Disability Issues and Health Professions, Western University of Health Sciences. “Emergency Evacuation Preparedness Guide.” <http://www.cdihp.org/evacuation/toc.html>. Center for Disability and Special Needs Preparedness. <www.disabilitypreparedness.org>. Centre for Research on the Epidemiology of Disasters Homepage. <http://www.cred.be/>. CIL Management Center Homepage. <www.cilmc.org> 89 ULSS 20 Verona RDD – Recommendations for Good Practice Coastal & Marine Resources Centre, University College Cork. “Irish Spatial Data Infrastructure Demonstration Programme on Flood Management.” <http://cmrc.ucc.ie/publications/reports/ISDI_FINAL_REPORT.pdf>. Dipartimento dei Vigili del Fuoco, del Soccorso Pubblico e della Difesa Civile Homepage. <http://www.vigilfuoco.it/default.asp?menu=0>. Disability KaR (Knowledge and Research). “Thematic research: Disability in conflict and emergency situations: Focus on Tsunami affected areas.” <http://www.disabilitykar.net/research/thematic_conflict.html>. The European Disability Forum Homepage. <http://www.edf-feph.org/>. EVAC + CHAIR Homepage. <http://www.evac-chair.com/>. Federal Emergency Management Agency (FEMA) Homepage. <www.fema.org>. Governor’s Office of Emergency Services (CA). “Special Needs in Emergency Planning and Preparedness.”<http://www.oes.ca.gov/Operational/OESHome.nsf/a0f8bd0ee918bc3588256bd400532608/ dacb46bbe634284488256f5000751a18?OpenDocument&Highlight=0,disabilities>. Handicap International. “How to Include Disability Issues in Disaster Management Following Floods 2004 in Bangladesh.” Bangladesh: Handicap International, Bangladesh, 2005. <http://www.addc.org.au/webdocs/Emergencies%20&%20Conflict/Manuals/HI_%20MANULAL_How% 20to%20Include%20Disability%20Issues%20in%20Disaster%20Management_Sept2005.pdf>. Healthlink Worldwide Homepage. <http://www.healthlink.org.uk/> Human Resources and Social Development Canada. <http://www.hrsdc.gc.ca/en/home.shtml>. Independent Living Resource Center Homepage. <www.ilrcsf.org>. International Disability Rights Monitor. “Disability and Early Tsunami Relief Efforts in India, Indonesia and Thailand.” US: Center for International Rehabilitation, 2005. <http://www.ideanet.org/cir/uploads/File/TsunamiReport.pdf>. International Federation of the Red Cross and Red Crescent Societies. “Community-Based Psychological Support, a training manual.” <http://psp.drk.dk/graphics/2003referencecenter/PSP_Manual_eng.pdf>. International Labor Office. “People with Disabilities in Crisis Response.” <http://www.ilo.org/public/english/employment/recon/crisis/download/disabled.pdf >. International Strategy for Disaster Reduction (ISDR) Homepage. <http://www.unisdr.org/>. Istituto Studi e Ricerche sulla Protezione e Difesa Civile. “Il Terremoto della Campania Basilicata del 23 Novembre 1980.” <http://www.ispro.it/core.aspx?cat=248>. Italian Department of Civil Protection and Ministry of Interior. “Il Metodo Augustus.” <http://www.comune.sulmona.aq.it/web/Protezione%20civile/PRESENTAZIONI%20FORUM/metodo%2 0augustus.pdf>. Job Accommodation Network Homepage (free service of the Office of Disability Employment Policy U.S. Department of Labor). <http://www.jan.wvu.edu/>. 90 ULSS 20 Verona RDD – Recommendations for Good Practice June Isaacson Kaile. “Disaster Resources for People with Disabilities and Emergency Managers.”<http://www.jik.com/disaster.html>. Ministero dell’interno, Dipartimento dei Vigili del Fuoco del Soccorso Pubblico e della Difesa Civile. “Il Soccorso Alle Persone Disabili: Indicazioni Per La Gestione.” <http://www.vigilfuoco.it/speciali/sicurezza/sicurezza_insieme/disabili/pdf/soccorso_disabili.pdf>. Ministero della Salute. “Servizio Sanitario Nazionale (National Health Service)” <http://www.ministerosalute.it/ministero/sezMinistero.jsp?label=ssn>. National Center for Health Statistics. “International Classification of Functioning, Disability and Health.” <http://www.cdc.gov/nchs/about/otheract//icd9/icfhome.htm>. National Council on Disability Homepage. <www.ncd.gov>. National Disability Authority. “Review of the Effectiveness of Part M of the Building Regulations.”<http://www.nda.ie/cntmgmtnew.nsf/0/D7B9326DE8BF2CBA802570CF00348A4C/$File/09 _part_m.htm>. National Oceanic and Atmospheric Administration Homepage. <www.csc.noaa.gov>. National Organization on Disability Homepage. <www.nod.org>. National Organization on Disability. “Disaster Mobilization Initiative.” <http://www.nod.org/index.cfm?fuseaction=page.viewPage&PageID=457&C:\CFusionMX7\verity\Data\d ummy.txt>. National Organization on Disability. “Report on Special Needs Assessment for Katrina Evacuees (SNAKE) Project.”<www.nod.org/Resources/PDFs/katrina_snake_report.pdf> NGO newsletter. “Voice out loud.” <http://60gp.ovh.net/%7Engovoice/documents/VOICE%20out%20loud%205_final.pdf>. Nobody Left Behind. “Disaster Preparedness for Persons with Mobility Impairments.” <www.nobodyleftbehind2.org>. Nobody Left Behind. “Report on Exemplary and Best Practices in Disaster Preparedness and Emergency Response For People with Disabilities.” University of Kansas Research and Training Center on Independent Living, 2007. <http://www.nobodyleftbehind2.org/findings/finalreport_best_0307.htm#_ftn1>. Nobody Left Behind. “Why and How to Include People with Disabilities in Your Emergency Planning Process?” <http://www.nobodyleftbehind2.org/~rrtcpbs/findings/pdfs/FinalWhyandHow.pdf>. Office for Public Works. “Advice for elderly & those with mobility difficulties.” <http://www.flooding.ie/prepared2.htm>. Office of Public Works. “Creating a Flood Plan for Family and the Elderly.” <http://www.flooding.ie/Pdfs/Risk_of_flooding_Bro3.pdf>. Oxfam Homepage. <http://www.oxfam.org.uk/>. Pan American Health Organization Homepage. <http://www.paho.org/>. 91 ULSS 20 Verona RDD – Recommendations for Good Practice Polizia di Stato (National Health Service) Homepage. <http://www.poliziadistato.it/pds/index.html>. Save the Children Sweden Homepage. <http://www.savethechildrensweden.org>. The Special Needs Program. “Special Needs Packets.” <http://www.disaster-research.us/special_needs1.htm>. Sustainable International Design LTD. “People with Activity Limitations (2001 WHO ICF), SelfProtection from Fire in Buildings.” <http://www.sustainable-design.ie/fire/NRZP-CNDC_CJWalsh_FireDisability-Workshop-Overheads_2007-05-24.pdf>. Taskforce Disability & Society (Netherlands) Homepage. <http://www.tfhs.nl/>. Ter Haar, Aartjan. “Call for a disability-adjusted response to the Tsunami disaster.” Dutch Coalition on Disability and Disaster (DCDD) Newsletter, No 10, Apr 2005. pp. 5 - 6. <http://www.dcdd.nl/?2622>. Tierney, Kathleen J; Petak, William J; Hahn, Harlan. “Disabled persons and earthquake hazards.” Colorado: Institute of Behavioral Science, University of Colorado, 1988. <http://www.crid.or.cr/digitalizacion/pdf/eng/doc9611/doc9611.htm>. United Nations Homepage. <http//www.un.org>. United Nations. “Convention on the Rights of Persons with Disabilities.” <http://www.un.org/disabilities/convention/signature.shtml>. United Nations. “Convention on the Rights of Persons with Disabilities.” Preamble, point e. <http://www.un.org/esa/socdev/enable/rights/convtexte.htm>. United Nations. “Convention on the Rights of Persons with Disabilities. ‘Why a Convention?’” <http://www.un.org/disabilities/convention/questions.shtml>. United Nations Children’s Fund (UNICEF). “Children with Disabilities Towards Inclusive Education in South Asia Consolidated Report.” <http://www.unicef.org/rosa/inclusive_consolidated.pdf>. The UN Refugee Agency (UNHCR). “Tampere Convention on the Provision of Telecommunication Resources for Disaster Mitigation and Relief Operation.” 18 June 1988. <http://www.unhcr.org/cgi-bin/texis/vtx/refworld/rwmain?docid=41dec59d4>. U.S. Fire Administration. “Fire Safety for Persons with Disabilities.” <http://www.usfa.dhs.gov/citizens/disability/>. University of Pittsburgh Homepage. <www.pitt.edu>. University of Pittsburgh. “Disaster Epidemiology – Introduction.” <http://www.pitt.edu/~epi2670/disaster/DisasterEpidemiology.pdf>. University of Trieste. <http://www.ing.units.it/bca/jscript/>. Wikipedia. “International Classification of Functioning, Disability and Health.” <http://en.wikipedia.org/wiki/International_Classification_of_Functioning,_Disability_and_Health>. 92 ULSS 20 Verona RDD – Recommendations for Good Practice Wisner B. “Disability and Disaster: Victimhood and Agency in Earthquake Risk Reduction.” Chapter for Rodrigue C. and Rovai E. (eds.) Earthquakes, London: Routledge, 2002. <www.radixonline.org/resources/ disability_and_disaster_wisner.doc>. World Bank. “Post Disaster Situations: Opportunities for an Accessible Built Environment.” December 5, 2005. <http://siteresources.worldbank.org/DISABILITY/Resources/280658-1130273084709/18218301157998399432/DECwbMinDec5.doc>. The World Bank. “Report of the Online Forum on Disabled and Other Vulnerable People in Natural Disasters.” <http://siteresources.worldbank.org/DISABILITY/Resources/News---Events/4639331166477763817/EdisNatDisas.doc>. World Health Organization (WHO). “Disasters, Disability and Rehabilitation.” Geneva: Department of Injuries and Violence Prevention, World Health Organization, 2005. <http://www.who.int/violence_injury_prevention/other_injury/disaster_disability2.pdf>. World Health Organization (WHO). “International Classification of Functioning, Disability and Health.” <http://www3.who.int/icf/icftemplate.cfm>. World Health Organization (WHO). “Introduction of ICF to the Health Policy at the Time of Disasters: "Limited Independence" as an important Risk Factor for Decline of Functioning after a Heavy Snow.” <https://crs.sanita.fvg.it/WHO/Documents/WHOFIC2007_D025p.pdf>. 93 ULSS 20 Verona RDD – Recommendations for Good Practice AUTHORS AND PROJECT PARTNERS ULSS 20 Verona (IT) Azienda ULLS 20 Verona is a local public health agency responsible for providing health care and social services to inhabitants of the Verona province. The institution is committed to the general objective of seeking and providing citizens with the maximum level of health and social protection by ensuring district health and hospital care, as well as community health care at home and at work. Azienda ULSS 20 Verona provides its services through: - Their own facilities (directly managed hospitals and territorial services) - Service providers accredited by the Region (independent public structures, such as hospital agencies and university-managed hospitals) and private structures (hospitals, nursing homes, and laboratories) The international activities of ULSS 20 Verona are carried out through its International Relations Office (URI). URI represents a window of ULSS 20 Verona on Europe. Its activities include European project design and development, support in the management of European projects and advanced training in project design and evaluation in the health and social sector. Choròs (IT) Choròs is an Italian non-profit organisation active since 1997 in the field of promoting social bonds in communities. The main activities of the organisation focus on empowering excluded populations through training, social activities and research. Choròs empowering and research projects involve youngsters, women, immigrants, the unemployed, disabled and mentally ill. During the last three years Choròs has run projects focused on training in the field of Civil Protection such as providing support to residents and helpers in emergency situations. Choròs is formally recognised by the University of Torino (Psychology Faculty) as a post-lauream training site for psychologists. Códice Europa (ES) Cόdice Europa is an entity dedicated to European projects, especially projects related to social and environmental issues. Cόdice Europa’s aim is to improve the situation of those groups within the population who suffer any kind of disadvantage. The Cόdice Europa team is composed of experts in its areas of interest: women, youth, the disabled, long-term unemployed and immigrants. It works in favour of social and labour integration actively participating in local, regional, national and international projects. Slovenian Institute of Public Health (SI) The Slovenian Institute of Public Health is an institution that belongs to the Ministry of Health and as such, is committed to issues mainly related to public health and research (collection, organisation and analysis of health related statistical data in the fields of diagnoses, attendance, staff and visiting hours in out-patient facilities, out-patient specialist services and in hospitals), health care organisation, economics and informatics (preparation of the contents for legislation in the field of health activities and participation in the planning and research of health care services), environmental health (checking the suitability of foodstuffs, drinking water, bathing water, objects of general consumption such as toys and cosmetics), transmittable diseases, health promotion (developing and implementing preventive programmes and projects with the aim to exercise a positive influence in life styles and other health related factors), outpatient facility and laboratories. The Hope Project (IE) The Hope Project aims to bring hope to people struggling with a disability and their families. The Hope Project was designed to reach, inform, assist and motivate parents to ensure that their disabled children get the appropriate help and get it as early as possible, thereby giving them a much greater chance of taking 94 ULSS 20 Verona RDD – Recommendations for Good Practice their rightful place and playing their part in society. Hope Project also aims to inform government and society about the needs of the disabled and their families whom they serve. The Hope Project offers assistance to persons of all special needs, ages and locations. Since the Hope Project started, its most important work has been to talk to and keep in touch with parents and persons with a special need, many in deep distress, through the Hope Project Help line. Hope Project offers a wide range of supports (advice, mediation, advocacy, networking, professional placement, etc.) and the fruits of its research into issues of health, education, benefit and care. Hope Project is a national organisation contacted from all over Ireland and internationally. University of Pécs (HU) Established in 1367, the University of Pécs is one of the oldest universities in Hungary/Europe. The Faculty of Health Sciences was established as a part of the Medical University of Pécs by the Minister of Health and Social Welfare in 1989 in order to offer courses for health care specialists leading up to the BSc degree. Today, after the integration process leading to the University of Pécs, the faculty of Health Sciences is an independent organisational unit among the ten faculties of the University. Degree courses are offered in 9 disciplines (Hungarian language) such as nursing (BSc.), nursing laboratory analysis for medical diagnostics, physiotherapy, teacher of health promotion and ambulance officers. The Institute of Nursing and Clinical Practice at the Faculty of Health Sciences consists of three departments: Nursing, Nursing Science and Emergency Care and the Department of Midwives, where nurses, physicians, ambulance, officers, midwives, teachers work together in order to achieve a high level of education and research. 95 ULSS 20 Verona RDD – Recommendations for Good Practice ACKNOWLEDGEMENTS The partners of the Rescuing Disabled Persons in Case of Disasters - Civil Protection's Challenge in the Challenge project would like to thank a number of people and organisations who assisted in the research and finalising of the literature framework in their respective countries. Various individuals, services and organisations from the partner countries gave up their time to assist our research for this project, gave us interviews and provided what information and help that they could. Partners would like to thank the following people for all their efforts and contributions which have added value and substance to the legislative framework reviews and the overall summary report. ULSS 20, Italy would like to thank: Verona Civil Protection Verona Fire Brigades Ministry of the Interior National Fire Department Council of Disabled People and their families Work Group "Security of Disabled People" Hope Project, Ireland would like to thank: The Limerick Fire Service Limerick County Council The Department of Environment, Heritage and Local Government Disability Action Ireland The Health Service Executive South - Emergency Planning The National Disability Authority The Centre for International Rehabilitation Cork Fire Services/Cork County Council The Health and Safety Authority The Munster Regional Communications Centre Irish Autism Action Release People with Disabilities Ireland The Irish Society for Autism Dublin Fire Brigade Parkinson's Association of Ireland L'Arche Ireland 96 ULSS 20 Verona Amputee Ireland Inclusion Ireland RDD – Recommendations for Good Practice Codice Europa, Spain would like to thank: Civil Protection Unit of Andalucía Directorate General of Civil Protection of the Gobierno de Cantabria Fire Brigades in Torrelavega and Santander. Cantabria Obra Social de Caja Cantabria. Cantabria University of Pecs, Hungary would like to thank: Hungarian Parliament Hungarian Government High Institute of Health, Slovenia would like to thank: The Slovenian Red Cross Administrative agencies of the Republic of Slovenia Vzhodno Stajerska Region Regional offices for the Administration for Civil Protection and Disaster Relief in Ljubljana and Maribor Administration of the Republic of Slovenia for Civil Protection and Disaster Relief Ministry of Defence Inspectorate of the Republic of Slovenia for Protection Against Natural and Other Disasters Finally, for anybody that we have not already mentioned here, we pay tribute to you for all your work. And to all partners too as well, who have worked assiduously to produce this document, thank you. 97 ULSS 20 Verona RDD – Recommendations for Good Practice SPECIAL THANKS Partners would like to give special thanks to the following individuals for their dedication and coordination of this significant initiative: Claudio Detogni Ruth Davis Marta Bellini Matteo Adamoli Mary Shea 98 ULSS 20 Verona RDD – Recommendations for Good Practice ANNEXES ANNEX 1: OFFICIAL DEFINITIONS OF DISABILITY BY INTERNATIONAL ORGANISATIONS 1. WHO/ ICF As a new member of the WHO Family of International Classifications, ICF describes how people live with their health condition. ICF is a classification of health and health-related domains that describe body functions and structures, activities and participation. ICF definition of disability and impairment: Disability is defined as, "the outcome or result of a complex relationship between an individual's health condition and personal factors, and of the external factors that represent the circumstances in which the individual lives". Impairments are defined as, "problems in body function or structure such as significant deviation or loss". 2. U.N. 2.1. World Programme of Action Concerning Disabled Persons Definition The following distinction is made by the World Health Organization, in the context of health experience, between impairment, disability and handicap: "Impairment: Any loss or abnormality of psychological, physiological, or anatomical structure or function”. "Disability: Any restriction or lack (resulting from an impairment) of ability to perform an activity in the manner or within the range considered normal for a human being”. 99 ULSS 20 Verona RDD – Recommendations for Good Practice "Handicap: A disadvantage for a given individual, resulting from an impairment or disability, that limits or prevents the fulfilment of a role that is normal, depending on age, sex, social and cultural factors, for that individual.” 2.2. International Convention on the Rights of People with Disabilities Article 2 - Definitions “Communication” includes spoken and signed languages, display of text, and Braille, and tactile communication, large print, written, audio, accessible multimedia, plain language, human reader and augmentative and alternative modes, means and formats of communication, including accessible information and communication technology. “Discrimination on the basis of disability” means any distinction, exclusion or restriction on the basis of disability which has the purpose or effect of impairing or nullifying the recognition, enjoyment or exercise, on an equal basis with others, of all human rights and fundamental freedoms in the political, economic, social, cultural, civil or any other field. It includes all forms of discrimination, including denial of reasonable accommodation [and direct and indirect discrimination]. Article 6 - Women with disabilities 1. States Parties recognise that women and girls with disabilities are subject to multiple discrimination and that focused, empowerment and gender sensitive measures are necessary to ensure the full and equal enjoyment by women and girls with disabilities of all human rights and fundamental freedoms. 2. States Parties shall take all appropriate measures to ensure the full development and advancement of women for the purpose of guaranteeing them the exercise and enjoyment of the human rights and fundamental freedoms set out in this Convention. 3 DEFINITIONS FROM OTHER ORGANISMS 3.1 Disabled Peoples’ International 100 ULSS 20 Verona RDD – Recommendations for Good Practice This organisation uses for its purpose, the definition offered by the International Classification of Functioning (ICF) which defines disability as the outcome of the interaction between a person with an impairment and the environmental and attitudinal barriers he/she may face. 3.2 The Center for an Accessible Society. Disability Policy Scholars describe 4 different historical and social models of disability: A moral model of disability which regards disability as the result of sin; A medical model of disability which regards disability as a defect or sickness which must be cured through medical intervention; A rehabilitation model, an offshoot of the medical model, which regards the disability as a deficiency that must be fixed by a rehabilitation professional or other helping professional; and The disability model, under which "the problem is defined as a dominating attitude by professionals and others, inadequate support services when compared with society generally, as well as attitudinal, architectural, sensory, cognitive, and economic barriers, and the strong tendency for people to generalize about all persons with disabilities overlooking the large variations within the disability community.” 101 RDD – Recommendations for Good Practice ULSS 20 Verona ANNEX 2: MATRIX AND GUIDELINES FOR COLLECTION OF LITERATURE INFORMATION In order to carry out this first task, please complete the attached matrix. Guidelines for each column are specified below Rescuing Disabled Persons in Case of Disasters Civil Protection’s Challenge in the Challenge MATRIX FOR LITERATURE REVIEW COLLECTION 1. Title 2. Source 3. Type of document 4. Kind of information it is offering 5. Author, origin and contact person 6. Year published 7. Main themes of the document 8. Brief Summary 102 ULSS 20 Verona RDD – Recommendations for Good Practice 1. Title of the document 2. Sources of information: 1. Documents released by the European Commission 2. Documents released by the national, regional and local authorities 3. Documents released by departments of civil protection and social services 4. Documents released by NGOs, associations and federations dealing with disability and environmental issues. 5. Documents released by academics and experts in your country 6. Other 3. Type of documents: The term “literature” refers to identification of: 1. 2. 3. 4. 5. 6. 7. Official documents Articles (reviews, magazines, journals, websites) Academics (studies, essays, analysis) Dissemination material (posters, pamphlets, brochures) Guides Books Conferences and workshops 4. Classifying information: In order to keep an organised record of the information obtained, it’s important to classify it using the provided grid and answering to the following question: What kind of information is it offering? Opinion Recommendations Instructions 103 ULSS 20 Verona RDD – Recommendations for Good Practice Manifesto Results of study Statistics and general data Real life stories and cases Complaints 5. Author, origin and contact person Please indicate author, origin and details of a resource person familiar with the subject treated 6. Year published 7. Selection of main themes for headings: 1. National, regional and local guidelines, rapid response procedures and contingency planning for rescuing disabled in disasters 2. Case histories and testimonies: - Literature concerning case histories, with an emphasis on problem met, resilience, good practices, suggestions - Collection of direct testimonies (victims, rescuers, helpers, etc.) 3. Points of view on the existing procedures 4. Recommendations, training courses programmes and know-how from experts – improvements on procedures addressing : - People with disabilities on how to be prepared in case of emergencies - Volunteers - Rescue teams 8. Brief summary of the document Indicate the information relevant to the project Please note: 1. Documents identified as part of this activity might be valid also for other activities foreseen in the work plan. 2. The summary of findings has to be presented in English according to the attached matrix. 104 RDD – Recommendations for Good Practice ULSS 20 Verona ANNEX 3: SUMMARY MATRIX OF LITERATURE PER PARTNER COUNTRY Title Type of document Source : (see task 3) Kind of information it is offering (see task 5) Author and origin Year publishe d Main theme of the document (see task 2) Brief Summary ITALY Piano Comunale di protezione civile del comune di Torino Official document Municipality of Torino Instructions Municipality of Torino 2006 Role of Mayor and Municipality in the civil protection system There is a reference to vulnerable persons, in particular to persons with disabilities. Linee guida Official per la document pianificazione comunale di emergenza Region of Liguria Instructions Liguria Region 09/02/2006 Guidelines for planning municipalities emergency system There is a reference to vulnerable persons, in particular to persons with disabilities. Il soccorso alle persone disabili: indicazioni per le gestione dell’emergen Ministry of the Interior; National Fire Department; National Council of disabled National Guidebook. National Fire Department. 2004. National guidelines for rescuing disabled people in the disasters. Technical guidelines on how to rescue persons with disabilities including persons with reduced mobility, sensory Guide provide in Communicati on n. 4 of Ministry of Interior of 1 March 2002 105 RDD – Recommendations for Good Practice ULSS 20 Verona za. people and their families. and intellectual impairments. http://www.vi gilfuoco.it/spe ciali/sicurezz a/sicurezza_i nsieme/disabi li/pdf/soccors o_disabili.pdf Il monitoraggio dei sistemi di soccorso e allertamento per disabili in emergenza Progetto per l’impiego di volontari in servizio civile Piano di emergenza per le scuole. Guidelines in accordance with Decree Ministerial 10/03/1998) Dipartimento di protezione civile Research http://www.pr otezionecivile .it/minisite/ind ex.php?dir_p k=746&cms_ pk=3830 http://www.ed Emergency plan for scuola.it/archi the schools vio/norme/de creti/dlvo626 _94emergenz e.pdf National Department of Civil Protection 2007 The project aim at identifying best practices in the field of the rescue of persons with disabilities in emergency situation through a research of the existence in the Italian territory Check- list for the identification of emergency measures to be applied in schools. Procedures to be applied in schools in case of emergencies such as fire, earthquakes, flooding. In the 106 RDD – Recommendations for Good Practice ULSS 20 Verona Documento della valutazione dei rischi nelle scuole Guidelines in accordance with Italian Decree n.626/1994 and n.242/1996 http://www.ed Check-list for scuola.it/archi evaluation of risks vio/norme/de in the schools creti/dlvo626 _94rischi.pdf Protezione civile in famiglia Book with instructions for the families in case of disaster. National Department of Civil Protection Guidebook for the families in case of disasters. National Department of Civil Protection; Council of Ministers. Procedure di emergenza in presenza di persone disabili Guide of University of Piemonte Orientale “A. Avogadro” Procedures written by University of Vercelli linked to Communicati on of Ministry of Interior n.4 1/03/2202 Book written by academics and experts of University of Trieste- Guidelines to define the steps to help the disabled people in case of emergency inside the university. Unit of Protection and Prevention of University of Piemonte Orientale “A. Avogadro”. E-book of University of Trieste, Master in Assistive Technology. Fiorenza Scotti. Condizioni di emergenza e assistive technology . Check-list for risk assessment in schools. Reference to pupils with disabilities December 2005 2005 check-list there is a reference to students with disabilities. schools should fill the check-list and organize its emergency plan. Recommendati ons for the families on how to be prepared in case of emergencies Procedures of emergency planning for the safety of disabled people. In chapter 5 some bullet points to explain how to help disabled people in case of emergencies. Procedures for the rescue of disabled people who are not able to In the chapter 4 there is a specific list of actions to undertake before, during and after a It’s a list of actions to undertake before and during the emergency. 107 RDD – Recommendations for Good Practice ULSS 20 Verona Faculty of Engineering http://www.in g.units.it/bca/j script/ Project “Ti Aiuto Io” :Albo comunale dei differenteme nte abili per fini di protezione civile. Project Municipality of Pescara with partnership of Associations of disabled people and the civil protection. Plan of emergency to rescue disabled people in case of disaster. Municipality of Pescara. November 2005Giugno 2006. Family disaster Plan Federal Emergency Management Agency 2005 Guidelines to define National Fire the steps to help Department 1995 www.forumpa .it Piano famigliare in caso di calamità Recommend ations Federal Emergency Management Agency; American Red Cross Guida alla organizzazio Guidelines http://www.m ass.gov/sam h Federalbergh i use their assistive technology tools during the emergencies disaster in order to rescue disabled people. aim of the project is to check the number of disabled people who live in the province of Pescara, their life conditions and to define their rescue plan in case of disasters. Recommendati ons for the families on how to be prepared in case of emergencies With a census of disabled people the Municipality can organise a plan to rescue disabled people in case of disasters. Guidelines for the security of In the chapter 10 there is a reference There is a reference to vulnerable persons, in particular to persons with disabilities. 108 RDD – Recommendations for Good Practice ULSS 20 Verona ne e gestione della sicurezza antincendio nelle strutture ricettive turisticoalberghiere people in case of http://www.fe fire inside the deralberghi.it/ hotels. guideAlberghi .asp Piano di emergenza per evacuazione della “scuola media statle Gino Rocca” di Feltre (Belluno) Emergency plan for the school Piano particolare di gestione dell’emergen za e primo soccorso nei musei Emergency plan for museum Intermediate School “Gino Rocca” Instructions Intermediate School “Gino Rocca” Instructions Municipality of Rome; 2002/2003 http://www.m ediarocca.it/s cuola%20e% 20sicurezza/s icurezza.htm Sovrintenden za ai Beni culturali of Municipality of Roma Sovrintendenza ai beni culturali people in case of fire and management of emergency situations in hotel buildings to persons with disabilities ( including persons with reduced mobility, people with sensory and intellectual impairments, wheelchair users, people with limb impairments) Security Instructions to be applied in school in case of earthquakes and fires. In this plan two specific students have the task to help students with disability in case of emergency. Security Instructions to be applied in museum in case of disasters There is a reference to persons with persons with reduced mobility. Security In the Livre 2, http://www.be niculturali.it/ FRANCE Arrêté du 25 French Official Guidelines French Ministry 25 June 109 RDD – Recommendations for Good Practice ULSS 20 Verona juin 1980 portant approbation des dispositions générales du règlement de sécurité contre les risques d'incendie et de panique dans les établissements recevant du public Ministry of Interior Décret n°92333 Dispositions concernant la sécurité et la santé applicables aux lieux de travail, que doivent observer les chefs d'établissemen ts utilisateurs Work, Employment and Training Ministry Facts – Garantir la sécurité et la European Agency for Security and document Decree about evacuation of disabled people Official Document – Labour Code updates Article of Interior 1980 measures for disabled people in case of emergencies. section 2, guidelines for disabled people evacuation in case of emergency (i.e elevators in case of fire). Guidelines Work, about prevention Employment and in case of fire Training Ministry 31 March 1992 Security measures for disabled people at work in case of fire. Art about prevention in case of fire: Art R 212.12.20, specific measures towards disabled workers in case of evacuation. Art R 232.18, disabled workers should be safe and secure at work in case of fire. Instructions in order to guarantee 2004 European measures about In the emergency procedures part, several measures to http://hygienesecurite.ac-aixmarseille.fr/PD F/Incendie/Arr %EAt%E9%20 du%2025%20j uin%201980% 2010%20oct% 2005.pdf http://web.aclille.fr/hygienes ecurite/sitehs/p rincipal/texteso fficiels/docume nts/decrets/dec ret92333du310 31992.pdf European Agency for Security and 110 RDD – Recommendations for Good Practice ULSS 20 Verona santé des travailleurs handicapés Health at work (OSHA) disabled Health at work workers’ security (OSHA) and health workplace safety for disabled people. http://osha.eur opa.eu/publicat ions/factsheets /53/fact53_fr.p df L’accueil des élèves handicapés dans les établissements d’enseigneme nt du second degré Les exercices d’évacuation incendie National Guide Observatory on schools and universities security http://www.acrouen.fr/rector at/etablisseme nts_ihs/pdf/inc endie_handica p.pdf National Official Observatory document for schools and university security http://www.dire cteurs74.edres 74.acgrenoble.fr/IM G/exercice_ev Statistics and general data about evacuation and security of disabled people inside schools or universities. National Observatory on schools and university security. October 2006 Recommendatio ns about evacuation in case of emergency/fire National Observatory on schools and universities security According to the article of Jan. 13 2004 assist disabled people in case of evacuation, fire…(i.e. emergency wheelchair in case of fire, visual and vibrating fire alarm signals, sign language training for fire men….) Recommendati Possible strategies ons for schools for the development and of an evacuation universities protocol for directors about physically and disabled mentally disabled people’s people. security. Several exercises to be followed inside schools and universities in case of emergency. In the Organisation part of the document, rapid response procedures in case of emergency. 111 RDD – Recommendations for Good Practice ULSS 20 Verona How to include disability issues in disaster management Evacuation des locaux et cas particulier des personnes a mobilité réduite dans les Ecoles acuation_ons.p df Handicap E-book of International Handicap International Aix en Provence Board of Education – Academic Delegation for Security Hygiene and Working conditions (DASH-CT) Article from the Aix en Provence Academy Guidelines about disability issues in disaster management Handicap International September 2005 Instructions on injuries prevention and evacuation procedures for disabled people inside schools Marc NIGITA – Academic Coordinator for major risks 30 May 2002 Following the floods in Bangladesh in 2004, Handicap International in partnership with the European Commission published this book about rescuing vulnerable people in case of disaster. Plan of emergency in case of disaster. List of different actions to follow when rescuing vulnerable people in case of disaster like awareness and training, preparedness, immediate response and reconstruction and mitigation. Part V, several information about special care to be provided to disabled children (medicines, fist aid kit ) http://hygienesecurite.ac-aixmarseille.fr/PD F/Incendie/MO 112 RDD – Recommendations for Good Practice ULSS 20 Verona BILITE%20RE DUITE%20en %20Ecoles.pdf 113 RDD – Recommendations for Good Practice ULSS 20 Verona ANNEX 4: MATRIX AND GUIDELINES FOR COLLECTION OF LEGISLATIVE INFORMATION Please complete this matrix when collecting the relevant information. Guidelines for each column are attached Rescuing Injured Disabled Persons in Case of Disasters Civil Protection’s Challenge in the Challenge MATRIX FOR LEGISLATION REVIEW COLLECTION 1. Type of document 2. Title of the document 3. Year published 4. Source of information 5. Main Theme of the document 6. Issues treated 7. Contact person 114 ULSS 20 Verona RDD – Recommendations for Good Practice 1. Type of documents: National and European level: 1. Laws 2. Acts 3. Statutes 4. Opinions 5. Recommendations 6. Directives 7. Regulations 8. Plans and Protocols 9. Reports 10. Communications 11. Convention 2. Title of the document e.g. Decreto Ministeriale 10/03/1998 (Ministerial Decree 10/03/1998) 3. Year published e.g. 1998 4. Source e.g. Ministry of The Interior http://www.ambiente.it/sicurezza/legislazione/leggi/1998/dm10-3-98/Default.htm 5. Main theme of the document ULSS 20 Verona RDD – Recommendations for Good Practice e.g. National guidelines for the security of people in the place of work 6. Issues treated in the document. Please specify according to the questions listed below: a. Objectives of the plan Do these objectives mention the development of a plan to rescue people with disabilities? b. Levels of government responsible If there is a distinction between the levels of government responsible for the coordination of the action plan, and if there is a specific level of government responsible for coordinating the rescue plan for people with disabilities, which level is this? c. Design of the structure and organisation Does the structure and organisation of the plan make any reference to rescuing people with disabilities? d. Action plan for rescuing people Are people with disabilities considered in the action plan? Is there a different plan addressing people with disability or are they included in the general plan? e. Health and social services assistance Is there a special reference to the need to provide people with disabilities with this type of assistance considering their special needs? f. Logistic support group Will the materials, equipment and provisions supplied, consider people with disabilities? g. Systems for forecasting and alert – informing the population on emergency planning For prevention purposes, the population must be aware and alerted of possible disasters upcoming. Does this plan include any particular methods for alerting people with disabilities? h. Intervention group 116 ULSS 20 Verona RDD – Recommendations for Good Practice The procedures for intervention are often designed to address the population. Does it make it explicit that the intervention group will have the ability to rescue vulnerable groups / people with disabilities? i. Measures for protecting the population Are there any measures addressing groups of persons with disabilities? j. Protocol for evacuation process Any reference to evacuating people with disabilities? k. Emergency shelter for the population The emergency shelter for people with disabilities, must consider special conditions, adaptability, accessibility…. Does this plan include this provision? 7. Contact Person Please indicate the contact details of a resource person familiar with the subject treated 117 RDD – Recommendations for Good Practice ULSS 20 Verona ANNEX 5: SUMMARY MATRIX OF LEGISLATION PER PARTNER COUNTRY Title of the document Source of information Contact Person Type of document Year published Main theme of the document Issues treated ITALY Costituzione della Rebubblica Italiana Conversione in legge del D.L. 30.01.1971 n.5 a nuove norme in favore dei mutilati e invalidi civili Provvidenze a favore degli invalidi Contrassegno da rilasciare agli invalidi in base all'art. 6 del D.P.R. 384/78 http://www.quiri nale.it/costituzi one/costituzion e.htm Official Gazette http://www.han dylex.org/stato/ l300371.shtml Official Gazette Official Gazette The Italian Constitution GU. Del 27.12.1947 n.298 Constitution of Italian state Legge n. 118 del 30.03.1971 (Law) G.U. del 02.04.1971, n.82 Guidelines for Art 27: guidelines on how to assisting people with remove barriers in public disability buildings and accessibility to public transport for people with disability Social security, financial support for persons with disabilities. How it is organised. Circolare del 18.11.1977 Ministero della Marina Mercantile 18.11.1977 n.170 (Italian Communication n.170) D.M. del 08.06.1979 Ministro dei Lavori Pubblici di concerto col Ministro dei Trasporti del 8.6.1979 n. 1176 (Italian Articles 2-3: Principles of no-discrimination. Car parking for persons with disabilities 118 RDD – Recommendations for Good Practice ULSS 20 Verona Circolazione e sosta dei veicoli degli invalidi Official Gazette Facilitazioni per la circolazione e la sosta dei veicoli degli invalidi Official Gazette Provvedimenti a favore delle persone con capacità di deambulazione sensibilmente ridotta. Contrassegno speciale di circolazione ed aree di sosta riservata e gratuita Official Gazette Disposizione per la formazione del bilancio annuale e pluriennale dello Stato Misure urgenti per la costruzione o l'ammodernamento di impianti sportivi, per la realizzazione o completamento di Official Gazette http://www.han dylex.org/stato/ c070380.shtml http://www.han dylex.org/stato/ c130683.shtml Official Gazette Ministerial Decree n.1176 of 08/06/1979) Circolare del 28.06.1979 Ministro dei Lavori Pubblici del 28.6.1979 n. 1270 (Italian Communication n. 1270) Circolare del 07.03.1980 Ministero dei Lavori Pubblici del 7.3.1980 n. 310 (Italian Communication n. 310) Appendice alla Circolare del Ministero dei Lavori Pubblici del 13.6.1983 n. 1030 (italian Communication n. 1030) Legge del . 28.2.1986 n. 41 (Italian law 28.02.1986) Legge del 6.3.1987 n. 65 "Conversione in legge, con modificazioni, del D.L. Provisions about free accessibility of parking for persons with disabilities Rules for facilitating road traffic vehicles for persons with disabilities 13.06.1983 Provisions about special free parking places for persons with disabilities in particular places (in accordance with Italian Communication 310) S.O. n. 1 alla G.U. 28.2.1986, n. 49 G.U. 7.3.1987, n. 55 Financial rules for National annual budget There is mention to persons with disabilities Urgent measures in order to modernize the sports structures and tourist structures with particular 119 RDD – Recommendations for Good Practice ULSS 20 Verona strutture sportive di base e per l'utilizzazione dei finanziamenti aggiuntivi a favore delle attività di interesse turistico Disposizioni per favorire Official Gazette il superamento e l'eliminazione delle barriere architettoniche negli edifici privati Modifiche ed integrazioni Official Gazette alla L. 9.1.1989 n. 13, recante disposizioni per favorire il superamento e l'eliminazione delle barriere architettoniche negli edifici privati Disposizioni per favorire Official Gazette il superamento e l'eliminazione delle barriere architettoniche negli edifici privati Prescrizioni tecniche necessarie a garantire l'accessibilità e la visitabilità degli edifici privati e di edilizia residenziale pubblica sovvenzionata e agevolata, ai fini del superamento e dell'eliminazione delle barriere architettoniche Circolare esplicativa della L. 9.1.1989 n° 13 Official Gazette http://www.han dylex.org/stato/ d140689.shtml Official Gazette 3.1.1987 n. 2 (Italian law 06.03.1987) equipments for persons with disabilities Legge del 9.1.1989 n. 13 (Law 09.01.1989) G.U. 26.1.1989, n. 21 Guidelines on how to eliminate barriers in favour of persons with disabilities in private buildings Provisions on how to remove barriers in private buildings L. 27.2.1989 n. 62 (Law 27.02.1989) G.U. 27.2.1989, n. 48 Circolare del Ministero dei Lavori Pubblici del 10.6.1989 n. 517 (Italian Communication n.517) D.M. del Ministro dei Lavori Pubblici del 14.6.1989 n. 236 (italian Decree 14.06.1989) S.O. alla G.U. 23.6.1989, n. 145 Provisions on how to remove barriers in private buildings S.O. alla G.U. 23.6.1989, n. 145 Technical rules for In the 2nd article there is the the accessibility of definition of barriers and private buildings, accessibility of buildings. public structures and building external spaces. Circolare del Ministro dei S.O. alla G.U. In this Communication 120 RDD – Recommendations for Good Practice ULSS 20 Verona http://www.han dylex.org/stato/ c220689.shtml Lavori Pubblici 23.6.1989, 22.6.1989 n. n. 145 166/U.L.( Italian Communication 22.06.1989) Disposizioni per favorire il superamento e l'eliminazione delle barriere architettoniche negli edifici privati (Legge 9 gennaio 1989, n. 13 Official Gazette Norme intese a favorire la votazione degli elettori non deambulanti Official Gazette Legge-quadro per l'assistenza, l'integrazione sociale e i diritti delle persone Official Gazette Circolare Ministeriale Ministero della Marina Mercantile - 23 gennaio 1990, n. 259 Demanio Marittimo e dei Porti (Italian Communicatio 23.01.1990) Legge del 15.1.1991 n. 15 (Italian law 15.01.1991) Legge del 5.2.1992 n. 104 (Italian law 05.02.1992) http://www.han dylex.org/stato/ c230190.shtml http://www.han dylex.org/stato/ 23.01.1990 G.U. 19.1.1991, n. 16 S.O. alla G.U. 17.2.1992, n. 39 there are 3 provisions on barriers removal 1)Building should be accessible to all persons 2) Building renew should comply with new rules on accessibility for all persons 3)The Government provides financial support for the renew of building that comply with the accessibilities rules Accessibilities to maritime localities Accessibilities to building and poll booth in case of voting Guidelines for assistance, social integration of persons with It’s a general law that covers many issues about disabilities: General principles for the 121 RDD – Recommendations for Good Practice ULSS 20 Verona handicappate l050292.shtml Principi sull'erogazione dei servizi pubblici Official Gazette http://www.han dylex.org/stato/ d270194.shtml Regolamento recante norme per l'eliminazione delle barriere architettoniche negli edifici, spazi e servizi pubblici Riavvicinamento delle legislazioni degli Stati membri relative alle macchine (S.O. alla G.U. 6.9.1996, n. 209) e relativa Circ. Ministero dell'Industria del 14.4.1997 n. 157.296 (G.U. 23.4.1997, n. 94) Official Gazette http://www.han dylex.org/stato/ d240796.shtml #a32 Official Gazette disabilities Direttiva del Presidente del Consiglio dei Ministri del 27 gennaio 1994 ( Decision of President of council of ministers 27/01/1994) D.P.R. 24.7.1996 n. 503 ( Italian decree of president of Republic) D.P.R. 24.7.1996 n. 459 Regolamento per l'attuazione delle direttive 89/392/CEE, 91/368/CEE, 93/44/CEE e G.U., 22 febbraio 1994, n. 43 General framework for the provision of public services through principles of equality, impartiality, continuity; participation. S.O alla G.U. 27.9.1996, n. 227 Guidelines on how to remove barriers in public buildings G.U. 23.4.1997, n. 94 Harmonization of legislations of member states about vehicles/minibus rights of persons with disabilities; tools for social integration and employment inclusion; right to education and accessibility to public educations; training for employment; removal of barriers; access to information and communication; public transport and mobility; right to vote: tax concessions. 122 RDD – Recommendations for Good Practice ULSS 20 Verona Conversione in legge, con modificazioni, del decreto-legge 21 ottobre 1996, n. 535 recante disposizioni urgenti per i settori portuale, marittimo, nonché interventi per assicurare taluni collegamenti aerei Norme per il diritto al lavoro dei disabili Official Gazette Official Gazette Linee guida per l'accessibilità ai siti web e delle applicazioni informatiche a persone disabili Official Gazette Criteri e strumenti per migliorare l'accessibilità dei siti web e delle applicazioni informatiche a persone disabili Tipologia di autobus urbani accessibili http://urp.regio ne.abruzzo.it/s ervizi/normativ e/circolaredel1 3-32001n3.htm Official Gazette Official Gazette 93/68/CEE (Italian decree of president of Republic 24.07.1996) Legge 23 dicembre 1996, n. 647 (Italian law 23.12.1996) G.U. del 28 dicembre 1996, n. 303 Accessibility to ports and airports. Legge n.68 del 12 Marzo 1999 (Italian law 12/03/1999) G.U. del 23/03/1999, n.68 Right to work for persons with disabilities. Circolare del Dipartimento della funzione pubblica, n. 3/2001 del 13 marzo 2001 (Communicatio n 13/03/2001) Circolare 6 Settembre 2001, n. AIPA/CR/32 (Communicatio n 6/09/2001) G.U. del 19 marzo 2001, Serie generale, n. 65 D.M. 20 giugno 2003 ( Italian G.U. dell'8 agosto Guidelines to promote the access to technologies and to web sites of persons with disabilities in the public administrations. Principles and tools to facilitate the accessibility of web sites and informatics technology for persons with disabilities. Rules for accessible buses for persons G.U. del 14 Settembre 2001, n. 214) In the article 8 there is a reference to barriers in the seaside structures. 123 RDD – Recommendations for Good Practice ULSS 20 Verona Tipologia di autobus urbani accessibili Official Gazette Disposizioni per favorire l'accesso dei soggetti disabili agli strumenti informatici Official Gazette SECURITY Miglioramento della sicurezza e della salute dei lavoratori sul luogo di lavoro Criteri generali di sicurezza antincendio e per la gestione dell’emergenza nei luoghi di lavoro http://www.han dylex.org/stato/ l090104.shtml Official Gazette http://www.sic urezzaonline.it /leggi/leggen/l eggen626/dlg 626_2006_09 _11.pdf Ministry of the Interior. http://www.am Ministerial Decree 20/06/2003) Circolari Prot. 47_MOT2/C del 12/01/2004, Prot. 48_MOT2/C del 12/01/2004, Prot. MOT3/1377/M3 60 del 05/04/2004 (italian Communication ) Legge 9 Gennaio 2004 , n. 4 (Italian law 09/01/2004, n.4) 2003, n. 183, S.O with disabilities. G.U. del 171-2004, n. 13 Provisions to facilitate the accessibility to informatics tools for persons with disabilities. Decreto Legislativo del governo n.626 del 19.09.1994 (Legislative Decree 19/09/1994) G.U. del 12.11.1994 Suppl. Ordin. N. 265 National guidelines for the security and health of people in workplaces No reference to people with disabilities. Art 4 (12): reference to public buildings. Decreto Ministeriale 10/03/1998,em esso ai sensi del 7/04/1998 in the Gazzetta Ufficiale National guidelines for the security of people in workplaces in case of fire and In the chapter 8.3 there are guidelines for rescuing disabled in fire emergency: the workplaces should have measures of fire prevention Rules for accessible buses for persons with disabilities. 124 RDD – Recommendations for Good Practice ULSS 20 Verona biente.it/sicure zza/legislazio ne/leggi/1998/ dm10-398/Default.ht m D.lgs 626/94 (Ministerial Decree 10.03.1998) Criteri di massima per l’organizzazione dei soccorsi sanitari nelle catastrofi Ministry of the Interior. Decreto ministeriale del13/02/2001 (Ministerial Decree 13/02/2001) Linee guida per la valutazione della sicurezza antincendio nei luoghi di lavoro ove siano (o possano essere) presenti persone disabili Ministry of the Interior; National Fire Department; National Council of disabled people and their families. http://www.pro vincia.fi.it/prot ezciv///////nor mativa/normn azionale/nazio nale/dm13020 1.pdf 06/04/2001, n.81 in Gazzetta Ufficiale Circolare G.U. Ministero dell’ 06.06.2002 Interno n. 4 del n. 131 1/03/2002 (Italian Communication 01/03/20029 management of emergency situations and measures of evacuation for persons with disabilities.; Emergency plan should have some workers able to help persons with disability in case of emergency. General principles of management of health rescue during the emergencies. Four levels of intervention: national, regional, provincial and municipal plans. The only reference to persons with disabilities is in chapter 1.9 regarding the territory check phase. National guidelines for the security of disabled people in fire emergency. Analyse of fire risk in workplaces where there are disabled people and guidelines on how to create a rescue system for the disabled in case of fire. http://www.vigi lfuoco.it/speci ali/sicurezza/s icurezza_insie me/disabili/pdf /circolare_4_0 2.pdf 125 RDD – Recommendations for Good Practice ULSS 20 Verona La sicurezza antincendio nei luoghi di lavoro ove siano presenti persone disabili: strumenti di verifica e controllo (Check-list) Il soccorso alle persone disabili: indicazioni per le gestione dell’emergenza. Ministry of the Interior; National Fire Department; National Council of disabled people and their families. http://www.vigi lfuoco.it/speci ali/sicurezza/s icurezza_insie me/disabili/pdf /allegato_lettci rc_disabili.pdf Ministry of the Interior; National Fire Department; Work Group “ Security of disable people”. Circolare 18/08/2006 Ministero dell’ Interno n. P880 del 18/08/2006 con allegata la check-list. (Italian Communication of Ministry of Interior 18/08/2006) List of actions in order to check the security of work places where there are disabled people. In the check-list there are three groups of questions regarding: phase of alert; escape strategies; mobility inside the work places. National Fire Department. Procedures for rescuing disabled people in the disasters. How to rescue persons with disabilities in emergency. 2004. http://www.vigi lfuoco.it/speci ali/sicurezza/s icurezza_insie me/disabili/pdf /soccorso_dis abili.pdf http://www.vigi lfuoco.it/speci ali/sicurezza/s 126 RDD – Recommendations for Good Practice ULSS 20 Verona icurezza_insie me/disabili/pdf /allegato_lettci rc_disabili.pdf Criteri di massima sugli interventi psico-sociali da attuare nelle catastrofi Directive of President of Council of ministers http://www.pro tezionecivile.it /cms/attach/e ditor/rischio_s anitario/Criteri _di_massima. pdf Attuazione della direttiva 2003/24/CE relativa ai requisiti di sicurezza per le navi da passeggeri Official Gazette http://www.am biente.it/sicure zza/legislazio ne/leggi/2005/ dlgs522005.htm Direttiva del presidente del Consiglio dei ministri del 13 giugno 2006 (Italian directive 13/06/2006) 13/06/2006 Procedures to follow in order to promote the psycho and physical safeguard of persons during and after a disaster Decreto legislativo 08/03/2005 (Legislative Decree 08/03/2005) G.U. del 18/04/2005 n.89 Rules for the security of persons with disabilities on board of ships Article 2: Reference to vulnerable persons and in particular to persons with disabilities. 127 RDD – Recommendations for Good Practice ULSS 20 Verona Direttive per l’applicazione Official degli orientamenti sui Gazette requisiti di sicurezza delle navi da passeggeri e unità veloci da passeggeri per le persone a mobilità ridotta (PMR) Circolare n. 04.01.2007 10/SM Prot. 151 del 04.01.2007 (Italian Communication 04.01.2007) Guidelines on how to ensure the safeguard of persons with disabilities in ships. Direttiva n. 85 del 20.11.2001 (directive 2001/85 EC of the European Parliament and of the council of 20 November 2001) GU L 42 del 13.2.2002, Special provisions to be applied to vehicles/minibus (with more of 8 seats) for the transport of persons with disabilities. Article 2.21: there is a reference to passengers with disabilities ( including persons with reduced mobility, people with sensory and intellectual impairments, wheelchair users, people with limb impairments) Regolam ento del Consiglio dell’11/07 /2006 (Council Regulatio n (EC) No 1083/200 6 of 11 July 2006) G.U. dell’Unione Europea , L210/2006 del 31.07.2006 General provisions on the European Regional Development Fund, the European Social Fund and the Cohesion Fund and repealing Regulation Art 30:In the context of the Communitarian effort in favor of economic and social cohesion, the Community, at all stages of the implementation of the Funds, has as its goals to eliminate inequalities and to promote equality between men and women as enshrined in Articles 2 and 3 of the RomeTreaty , as well as combating discrimination European Legislation Disposizioni speciali da applicare ai veicoli adibiti al trasporto passeggeri aventi più di otto posti a sedere oltre al sedile del conducente e recante modifica delle direttive 70/156/CEE e 97/27/CE Regolamento (CE) n.1083/2006 del consiglio recante disposizioni generali sul Fondo europeo di sviluppo regionale, sul Fondo sociale europeo e sul Fondo di coesione e che abroga il regolamento (CE) n. 1260/1999 European Parliament http://eurlex.europa.eu /LexUriServ/si te/it/oj/2002/l_ 042/l_042200 20213it00010 102.pdf Council Regulation (EC) http://eurlex.europa.eu /LexUriServ/L exUriServ.do ?uri=OJ:L:20 06:210:0025: 01:EN:HTML 128 RDD – Recommendations for Good Practice ULSS 20 Verona Risoluzione del consiglio del 28/01/2002 intesa a rafforzare la cooperazione in materia di formazione nel settore della protezione civile (2002/C 43/01) Trattato di Amsterdam Council resolution (EC) http://eurlex.europa.eu /LexUriServ/si te/en/oj/2002/ c_043/c_043 20020216en0 0010002.pdf The . Amsterdam Treaty http://www.eu rotreaties.co m/amsterdam treaty.pdf Risoluzione del parlamento europeo del 4 Settembre 2007 sulle http://www.eu roparl.europa. eu/sides/getD Risoluzione del consiglio n. 2002/C 43/01 del 28/01/2002 ( Council Resolution n. 2002/C 43/01) Gazzetta ufficiale C43/1 del 16.02.2002 The Amsterdam Treaty amending the treaty on European Union 02.10.1997 European Parliament resolution 4/09/2007 based on sex, racial or ethnic origin, religion or belief, disability, age or sexual orientation. Art 2: to establish a Community mechanism to facilitate reinforced cooperation in civil protection assistance interventions Article 13: This Article complements Article 12, which prohibits discrimination on grounds of nationality. The new Article enables the Council to take appropriate action to combat discrimination based on sex, racial or ethnic origin, religion or belief, disability, age or sexual orientation.. Resolution about the 2007 summer’s natural disasters The new Article 13 provides measures to combat discrimination based on disability. The Intergovernmental Conference that drew up the Treaty of Amsterdam sought to offer an even stronger guarantee by including a declaration in the Final Act, stating that the Community institutions must take account of the needs of persons with a disability when adopting measures to approximate Member States' legislation.. Art 19: Stresses the need to take special care in cases of natural disasters of the 129 RDD – Recommendations for Good Practice ULSS 20 Verona catastrofi naturali oc.do?pubRef =//EP//TEXT+T A+P6-TA20070362+0+DOC +XML+V0//E N&language= EN specific needs of people with disabilities in all actions undertaken using the Civil Protection Mechanisms 130