June 2014 Volume 6, Issue 6 Local Support & Information for Individuals and Families Living with Mental Illness and Brain Disorders NAMI-Pierce County National Alliance on Mental Illness Mental Health Support, Education and Advocacy P.O. Box 111923 Tacoma, WA 98411-1923 Phone: 253-677-6629 Email: namipierce@gmail.com NAMI’s Free Mental Health Support Programs are Open to All Free Connection Recovery Drop-In Groups in Tacoma & Puyallup Call 253-341-3463 for times and locations June-July Calendar Sun Jun 1 1:30 Wed Jun 18 6-8 PM NAMI Monthly Gathering and Pot Luck Supper Sun Jun 29 1:30 NAMI Board Meeting Forza Coffee – Pearl St. , Tacoma All Members Welcome Mental Health Education for your Family, Community Group or Health Fair Call 677-6629 or go to our NEW Webpage www.namipierce.org at the TACID Center 6315 S.19th St., Tacoma (Note Date change to avoid Holiday Weekend) Free Family & Friends-Support Group – Wednesday nights in Tacoma - Call 677-6629 NAMI Board Meeting Forza Coffee – Pearl St. , Tacoma All Members Welcome Wed July 16 6-8 PM NAMI-Grave Concerns Joint Picnic Lake Steilacoom Park For Pierce County Mental Health Emergencies Call: 1-800-576-7764 Mental Health WarmLine - Information & Support Call: 1-877-780-5222 from 3 – 11 PM Sun Aug 3 1:30 NAMI Board Meeting Forza Coffee – Pearl St. , Tacoma All Members Welcome enable NAMI-Pierce to grow our local mental health services in new directions. Saturday, May 17 in Kirkland We Were There!! On Saturday May 17 for the NAMI Walk along with hundreds and hundreds of others from NAMI affiliates all across the state. Other NAMI-Pierce Teams were: Team NAMI-Pierce Captain: LaDonna Barnwell Babes for Brains Captain: Ginny Peterson Stand Up for Mental Health Washington Captain: Laurel Lemke An Important Update to HIPPA "Guidance" for Mental Health Clients and their Families New DHHS "guidance" released on February 21, increases the information that mental health care providers can share with friends and family members of their clients. Under these new regulations providers are permitted to share information with family members unless the client specifically requests that they not do so. If the client does not make such a request, the freedom/ability to share is presumed. It is not clear how far this new information has been distributed. You may want to share it with your friends and mental health care providers. The Walk raised over $200,000 for NAMI, but it will be a month or so before we understand how much of that will fall into our pockets at NAMI-Pierce. Our share is based on how much our walkers and teams bring in. We use the funds raised at the Walk to fund our free local mental health services and education in Tacoma and the rest of Pierce County. The money we raise is key to our ability to serve the mental health community. HIPAA (The Health Insurance Portability and Accountability Act) is a federal law that helps protect the privacy of an individual's health information. For individuals living with mental illness, this law helps protect confidential mental health treatment records but has been the source of much frustration to family members and others trying to give help in an appropriate way. On Feb. 21, 2014, the Federal Office of Civil Rights in the Department of Health and Human Services released clarifying guidance (supporting rules) on how and when healthcare providers may share an individual’s mental health treatment information with others. Open communication between a mental health provider and family members or friends of a person living with mental illness can help make sure that the individual receives the best treatment and care possible. The following Questions and Answers may help clarify: Q: Can healthcare providers share treatment information to family members and friends of a person living with mental illness? A: Yes, healthcare providers may share information about treatment with a person’s family or friends as long as the person does not object. Special thanks to Marching in Memory of Teddi and Team Captain: Diane McAlister whose team raised over $3600 for NAMI Programs. Gifts like this Q: Are health care providers required to obtain a signed informed consent release before sharing ? A: No, citing the “integral role that family and friends play in a patient’s health care,” OCR’s guidance says providers may (may, not must - ed) ask for permission to share relevant information, may tell the person that they intend to discuss information and give him or her the chance to object, or may infer from the circumstances, using professional judgment, that the person does not object. [emphasis added - ed.]For example, if a person receiving treatment invites a family member or friend to be present in a treatment situation, the provider may assume that they do not object to disclosure. Q: Can healthcare providers share protected mental health information with law enforcement officials? A: Yes, particularly if the person living with mental illness poses a danger to self or others. This information adapted from NAMI's on-line newsletter, April 2014 Q: What happens if the person living with mental illness objects to information sharing? A: If an adult person objects to the sharing, and the health care provider believes him to be capable of making healthcare decisions, then the healthcare provider may not share information. If the provider determines that a client does not have the capacity to make healthcare decisions, then the provider may choose to share information based on their belief that it is in the person’s best interest. No court order is needed for that determination of capacity. Discretion lies with the treatment provider, based on professional judgment. Q: How much information can the healthcare provider share with a person’s family members or friends? A: Healthcare providers should exercise professional judgment and disclose only the information that is necessary or directly related to the family member or friend’s involvement in care. Psychotherapy notes are generally excluded from this because they may contain especially private or sensitive information. In most instances, a provider must have a patient’s permission before sharing them. Q: May family members or friends communicate with a healthcare provider if they are worried about a person’s health or wellbeing? A: Yes, family members or friends may share information that they believe might be relevant or helpful to a treatment provider. Healthcare providers are not required to disclose this communication to the individual receiving treatment. Q: Can healthcare providers share information with parents or guardians of children? A: Generally speaking, yes, a healthcare provider may share treatment information with a parent, guardian, or an individual acting as a personal representative for a child. New Books for Families Recent trips to the bookstore and library unearthed two very helpful new books for family members coping with the recent discovery of a loved one's mental illness. The first is The Family Guide to Mental Health Care by Dr. Lloyd Sederer, formerly Medical Director of New York State's mental health system. The book is both practical and comprehensive (chapters range from : What Families can Do to Recovery: Why Believe?) Though medical, social and psychological aspects of mental illness are covered, the book is straightforward and easy to read. I would recommend it to families who may not be able to find their way into a Family to Family class right away. The second book is a handbook rather than a text; it is equally well written. When Your Adult Child Breaks Your Heart is by Dr. Joel Young and Christine Adamec. The subtitle is Coping with Mental Illness, Substance Abuse and the Problems that Tear Families Apart. That says it all. The book has 3 parts that work in any order you read them. They are Identifying the Problems, Types of Problem Behavior and What the Family Can and Can't Do, and Taking Care of Yourself. The book doesn't pull any punches. I found it extremely thought provoking. You can borrow it through the Tacoma Public Library System. -- Ginny Peterson Q: At what age is a child considered an adult for the purposes of healthcare decisions? A: Generally, age 18, but HIPPA defers to state law if a state has a different standard. Q: Are there any other restrictions on how and when a healthcare provider may share information with parents or guardians? A: HIPPA establishes a minimum standard for the privacy of health information. State laws that are more protective of privacy supersede HIPPA. Since state laws vary, it is important to become familiar your state law. Some federal laws may have greater restrictions on sharing information. For example, the confidentiality statute that applies to federally-funded drug and alcohol treatment programs has stricter standards than HIPPA. Save the Date NAMI Picnic - July 16 At Steilacoom Park with our friends from Grave Concerns June President's Corner Bob Winslow Haida Gwaii STRATEGIC PLAN What we do? - Who we do it for? - How do we excel? NAMI Pierce County members work in Pierce County, Washington - We Are Headed for an Exciting Journey in our Jade Canoe * To raise awareness about mental illness, * To provide free mental health education to the Pierce County Community as well as to individuals and families affected by mental illness, * To offer free support groups for individuals living with mental illness and for their caregivers, and * To advocate with state and local governments for improved mental health care. Your NAMI Pierce Board approved our July 2014 – June 2015 fiscal year plan and operating budget at the June 1 Board meeting. NAMI Pierce members will be asked to approve our plan and operating budget at the June 18 Gathering. As your President, I thought I would set the stage for the plan and budget vote by sharing my views on NAMI Pierce’s direction, plans, strengths, and challenges. We have created the following Vision Statement, Mission Statement and Strategic Plan. This is simple, one page document is like ones often used in business organizations to communicate why NAMI Pierce County is here and what we do. It also provides us a map that guides our efforts. VISION STATEMENT What will occur if we succeed? NAMI Pierce County will be a part of a coalition of services that support our Pierce County friends and neighbors living with mental illness, giving them the help and hope they need. Next year should be an exciting and challenging time for us. There is significant demand for our programs in Pierce County. We currently offer programs for some of our neighbors living with mental illness and for their families. However, we see program expansion opportunities to serve additional segments of our population. We have a core nucleus of dedicated and active volunteers that is growing. We have new members continually joining us. Currently, we enjoy a stable financial situation. Your Board of Directors spent much time planning for next year and is proposing a plan that expands our activities. We plan to build on this year’s good foundation and increase our efforts to raise awareness about mental illness. How can Individual Members Help?? * Join us in manning the NAMI Pierce County booth at the Washington State Fair. We will be there for four days. * Join us at local street fairs and farmer’s markets. * Take part in our new Speaker’s Bureau to be able to respond to mental health speaker requests. MISSION STATEMENT Why do we exist? Who are our customers? What do we produce? Where do we operate? Because mental illness devastates the lives of so many people in our community, NAMI Pierce County members work every day to build better lives both for individuals living with mental illness and for their families. * Support our colleagues at the Jordan Binion Project as they raise mental health understanding in area high schools. Specific Program Expansion Goals *We will grow our free NAMI mental health education programs. * We hope to increase the number of times we offer our successful Family-to-Family class each year News … Notes … NAMI on the Move notes, news and opinions by Ginny Peterson, Editor * We now have trained Peer-to-Peer teachers and will offer this class for the first time later this year. * We want to find and train teachers for NAMI's Basics class for families of youths living with mental illness. NAMI Pierce hopes to be able to offer help and support to these families. * We will continue our free support groups for individuals living with mental illness and for their caregivers. * We will continue to seek opportunities to expand our Connections Support Group for adults in recovery into different parts of the County. * We will continue the Friends and Family Support Group for caregivers of individuals living with mental illness which meets twice monthly. In Memory of Jake Stanton The Family and Friends of Jake Stanton, a young man from the Brown's Point are who took his own life recently, have memorialized him by donating to NAMI-Pierce. Like too many others in our community, Jake and his family were unable to find effective and consistent help for his mental health needs. Our hearts and prayers go out to the Stanton family and to all of Jake's many friends. We hope that NAMI's efforts toward youth mental health, aided by their generosity, will bear abundant fruit in the near future. We urge all who loved Jake to join with NAMIPierce in our advocacy for better mental health care. * We will continue our monthly Gathering which is a combination support group, social, business meeting and educational meeting. An ever increasing number of our members are involved in our grassroots advocacy for improved mental health care programs and policies at the State and County level. We seek to change public policy, improve public services and increase funding for programs that benefit individuals living with mental illness and their families. We collaborate with other organizations with similar aims and agenda. I think these are exciting times for NAMI Pierce County. We help from every member 1. First come to the June 18 gathering and vote to approve our 2014 – 2015 fiscal year budget. 2. Then find one of our programs that fits your interests and get actively involved. Excited, involved members are our most important resource. With more people, we could make everything on our list of goals a reality. Together we can make a difference and bring hope to our Pierce County neighbors. Join me and the rest of your Board of Directors on our journey. New MHA guide explores alternative medicine March 24, 2014, ALEXANDRIA, VA—Mental Health America (MHA) has created a guide to help people weigh possible benefits and side effects of various complementary and alternative medicines for mental disorders. The new guide compiles evidence-based information on substances such as fish oil, St. John’s Wort, kava and inositol. At 263 pages it is too long for us to print in our newsletter but you can use it as an on-line resource for checking out things that have helped others, The nonprofit said about 40 per cent of Americans treat themselves with such remedies without professional supervision—often without informing their psychiatrist and primary care provider. www.mentalhealthamerica.net Reprinted from bphope online newsletter for April 2014 Don't forget to Link Up your Fred Meyer Rewards Card to Earn Money for NAMI-Pierce You can earn a Donation for NAMI Pierce County Just by Shopping with your Fred Meyer Rewards Card You are now able to link your Fred Meyer Rewards Card to NAMI Pierce County's fund raising efforts. Whenever you use your Freddy's Rewards Card, the amount of your purchase will be credited to NAMI Pierce's Community Rewards account. Every Quarter NAMI-Pierce will share in money set aside by Fred Meyer for community charities. And this program doesn't take away from the rebate you get now when you shop with your Fred's card. National Convention September in Washington DC State Conference - August in Vancouver So how do you sign up? If you already have a Rewards Card, just Google Fred Meyers Community Rewards. That will take you to their sign-up page. Click on the Link to sign up and either enter NAMI-Pierce's non-profit number [91667] or use their search function by typing in NAMI, then choose NAMI Pierce County. It takes about 2 minutes. If you don't have a Rewards Card yet, sign up for one at the Customer Service Desk of any Fred Meyer store then link it! The Booths of Summer Farmers Markets, Community Festivals and even the State Fair Vancouver, Washington will host this summer's NAMI-WA Conference, August 17-19, and Washington DC will be the site of the NAMI National Convention, scheduled for September 3-6. The national event will be held at the Marriott Wardman Park Hotel. This year's convention theme is "From Dialogue to Action" A highlight of the D.C.Convention will be NAMI Hill Day when advocates, experts and leaders converge on the Capital Buildings to educate lawmakers and ask for action on federal legislation. For information on the Program and Schedule (or to Register), go to NAMI's national website www.nami.org The NAMI-Pierce Community Information Booth will be getting a serious workout this summer. In addition to July visits to the SummerFest in Lakewood and Ethnic Fest in downtown Tacoma, the booth will also be at 5 different Farmers Markets throughout the County. Then - at the end of the warm weather - we will spend 4 days at the Washington State Fair in Puyallup. ARE YOU A MEMBER YET??? WHY NOT?? The first booth events are in June, even before our June meeting. And at that meeting we will be signing up volunteers for the Lakewood SummerFest and the Tacoma Ethnic Fest as well as August Farmers Markets. If you would like to take part, either see Ginny Peterson at the meeting or give her a call at 253-568-1011. Volunteers for the State Fair booth in September will get a special Bonus. When you staff the booth for a 4 hour shift, you receive a free all-day ticket to the Fair plus free parking. NAMI-Pierce is the local grassroots affiliate of the premier mental service organization in the country. We provide free support groups, education and legislative advocacy for the mental health community - both individuals with mental health diagnoses and the families who love and support them. Join us today by going to our website www.namipierce.org