SBAR Report Using Patient Stories at Grampian NHS Board Situation Grampian NHS Board has been “hearing” patient stories for approximately two years. Whilst there is general acceptance that this is a good thing, the purpose, influence and value of hearing these stories has not been clearly identified. In order to inform the future use of patient and possibly staff stories at NHS Grampian Board meetings, Board members were asked to complete an on-line evaluation of the usefulness of stories heard to date. Background The NHS Confederation and the then National Patient Safety Agency produced a fact sheet in June 2010 entitled “Questions are the answer: putting patients and the public back into patient safety”. The fact sheet poses, amongst others, the following questions to Board members: Are our Board meetings held largely in public? Do we regularly hear patients’ stories? Do our directors meet with patients? Do we receive regular feedback from patients about the standard of care we are delivering? The fact sheet goes on to explain the purpose of board members hearing stories: The Francis Inquiry Report (2010) stated, “Perhaps most importantly representative stories hardly ever reached directors.” Patient stories have now been heard at Grampian NHS Board meetings for approximately 2 years, but how are they being used? 1 The literature in this area makes reference to using stories of poor care and to how hearing stories provides the opportunity to relate these stories to how an organisation: Undertakes Root Cause Analysis Manages incidents and complaints Applies “Being Open” policy Approaches and develops an open and fair culture. This can only be achieved through listening to stories of what happens when things go wrong in healthcare. When we ask patients to tell us about their experiences important quality, safety and effectiveness issues are also revealed. A recent press release from the Medical Protection Society declared that: “Patient experience is the smoke detector of patient safety” 2012 Assessment Fifteen Board members responded to a Survey Monkey questionnaire about how we use patent stories at Grampian NHS Board meetings. The results were as follows: 1. How many patient stories have you listened to at board meetings? 60% 55% 50% 45% 40% 35% % 30% 25% 20% 15% 10% 5% 0% None 1 2 3 4 more than 4 More than 50% of respondents have heard at least four stories. 2 2. Hearing patient stories at board meetings helps me to carry out my role as a board member 50% 45% 40% 35% 30% % 25% 20% 15% 10% 5% 0% Strongly agree Agree Not sure Disagree Strongly disagree Over 70% of respondents think that hearing patient stories helps them to carry out their roles. 3. Hearing patient stories at board meetings connects me to the organization's purpose 60% 50% 40% % 30% 20% 10% 0% Strongly agree Agree Not sure Disagree Strongly disagree Over 80% of respondents feel that hearing stories helps them stay connected to the organisation’s purpose. 3 4. Patient stories should feature at every board meeting 50% 45% 40% 35% 30% % 25% 20% 15% 10% 5% 0% Strongly agree Agree Not sure Disagree Strongly disagree 80% of respondents think that stories should be heard at every Board meeting. 5. I would like real patients and carers to present their stores at board meetings 30% 25% 20% % 15% 10% 5% 0% Strongly agree Agree Not sure Disagree Strongly disagree There is uncertainty as to whether or not real patients and carers should attend Board meetings to tell their stories. 4 6. Patient stories should be used at board meetings to provide assurance of high quality care 60% 55% 50% 45% 40% 35% % 30% 25% 20% 15% 10% 5% 0% Strongly agree Agree Not sure Disagree Strongly disagree The majority of respondents agreed that stories should be used to provide assurance of high quality care. 7. Patient stories should be used at board meetings to alert members to poor standards of care 50% 45% 40% 35% 30% % 25% 20% 15% 10% 5% 0% Strongly agree Agree Not sure Disagree Strongly disagree The majority of respondents also agreed that stories should act as an alert to poor standards of care. 5 8. I think we should continue to hear patient stories at board meetings 50% 45% 40% 35% 30% % 25% 20% 15% 10% 5% 0% Strongly agree Agree Not sure Disagree Strongly disagree There was an overwhelming majority in favour of continuing to hear patient stories at Board meetings. 10. It would be helpful to hear about staff experiences of delivering care at board meetings 70% 60% 50% 40% % 30% 20% 10% 0% Strongly agree Agree Not sure Disagree Strongly disagree 85% of respondents were in favour of hearing staff stories at Board meetings. Question 9 asked: What do you think the Board should do with the information contained in patient stories? The responses were: They should be used in formal meetings and at development sessions, both to demonstrate our willingness to be honest about good and bad practice and to 6 enable learning to take place leading to change where change is seen to be necessary. For this to happen we - Board members and the public - need to see what impact the story had on NHS Grampian as a caring and listening organisation. I would like to hear more stories from the young and the old, arguably the most vulnerable and the age groups sadly at the centre of the worst healthcare news stories of recent times. Also, it would be good to hear more stories about how people's health and well-being changed for the better; how it came about ; what role NHS Grampian played or did not play; what was their own contribution and how they felt afterwards. I believe we need to find ways of encouraging people to take charge of their own health and whether it is smoking cessation, alcohol cessation/moderation or other health improvement stories someone else's true story might be the encouragement they need. Link them to agenda items, either at the formal Board meetings or at Board seminars. Collect and keep for reference. In every case feedback should be given to those services involved and feedback to the patient as to the outcome of the Board discussion. The information is and should be used for training purposes. There should be an action plan agreed when there is an opportunity for continuous improvement and outcomes should be reported and monitored. The Board should know what difference is being made as a result of the presentation of the story. The patient story should allow to understand from a patient perspective their experience under our care. What would also be helpful would be to understand what learning their is for us and how we are taking that forward both positive and negative. My own view is that the patient story should not be designed to focus on any particular aspect or provide assurance it should simply be their story of their experience - there is nothing more powerful than hearing from the ultimate user of our service - we should not seek to guide how they tell their story Make available to as many staff, the third sector and public as is reasonably practical. In addition, build up a library of stories which can be accessed by the above including prospective patients (viz. those involved in planned care/chronic conditions. Use as an educational tool more broadly. Use these across the Board to help staff learn about patient perceptions of good and bad care. Consideration about use in relation to team brief. Board should use the information as a means of supporting our "Listening, Caring and Improving” strapline. Need to ensure there is follow up and learning. Sharing of good practice is as important as learning from mistakes. Ask for assurance that learning has been gained from the story (positive and negative) 7 I think that Board members should seek assurance through clinical governance and staff governance arrangements that issues are being addressed. The only use of patient stories is if they highlight shortcomings or good practice and that these have been acted upon by the executive to improve overall standards. Publicise Recommendations 1. Continue to develop the use of “stories” at Board meetings. 2. Consider inviting patients to deliver their stories to the Board. 3. Request the Director of Nursing and Nurse Consultant Patient Safety and Experience to develop an Action Plan to address the responses of the survey. 4. Request the Director of Nursing and Nurse Consultant Patient Safety and Experience to report other patient, carer and staff activity to the Board eg Better Together results. Linda E. Oldroyd Nurse Consultant Patient Safety and Experience Quality Governance and Risk Unit NHS Grampian 16th May 2013 8