INTERNATIONAL HUNTINGTON ASSOCIATION
ADDRESSES MEMBER COUNTRIES AND CONTACTS – UPDATE 2 January 2013
FOR USE IN- AND OUTSIDE THE IHA
ARGENTINA
Asociacion Para el Apoyo a los Enfermos de Huntington (APAEH)
Direccion Concepcion Arenal 2478-2P. “B”
Ciudad Autonoma de Buenos aires – Argentina
Presidente: Roberto E. Biason
Tel: Celular 5411-155-110-5086
Tel: 5411-4855-3887
Email : info@huntingtonargentina.com.arr
Website : www.huntingtonargentina.com.ar
CONTACTS :
DR. FREDERICO MICHELI
HOSPITAL DE CLINICAS JOSÉ DE SAN MARTIN
JUNCAL 1695 5J, 1062 BUENOS AIRES, ARGENTINA
Tel: 54-1-4812 5732; FAX: 54-1-4811 3076, tel home: 54-1-4804 6676
Mobile Phone: 54-154-579 8371
Email: fmicheli@fibertel.com.ar
DR. MARCELLO MERELLO
DEPT MOVEMENT DISORDERS
MONTANESES 2325, 1428 BUENOS AIRES, ARGENTINA
Tel:54-11-4788 3444; fax: 54-11-4784 7620; tel home: 54-11-4393 5806
Email: mmerello@fleni.org.ar
DR GUILLERMO ZEPPA
NEUROLOGY SERVICE, HOSPITAL PRIVADO DE CORDOBA
NACIIONES UNIDAS 346, 5016 CORDOBA, ARGENTINA
Tel: 54-351-468 8216; fax: 54-351-468 8272; Tel home: 54-351-481 7404
Email: gzeppa@radar.com.ar
DR EMILIA MABEL GATTO
INSTITUTO DE NEUROCIENCIAS
GUARDIA VIEJA 4435 CIUDAD AUTONOMA DE BUENOS AIRES
1428 BUENOS AIRES, ARGENTINA
Tel: 54-11-4867 7705/54-11-4781 8660; fax: 54-11-5371 3494, tel home: 54-11-4785 3097
Email: emiliagatto@fibertel.com.ar
ga_mem@yahoo.com
DR OSCAR S. GERSHANIK
DIRECTOR EXTRAPYRAMIDAL DISEASES SEC.
FUNDACION FAVALORO – DPTO NEUROCIENCIAS
Av Belgrano 1746, (C1093AAS) 1221 BUENOS AIRES, ARGENTINA
Tel: 54-11-4378 12200/1300/1400
Email: gersh@movi.com.ar
DR MANUEL FERNANDEZ PARDAL
HOSPITAL BRITANICO DE BUENOS AIRES
Pedriel 74 Ciudad Autonoma de Buenos Aires
Tel: 00-54-11-4304 1081
Email: mferpardal@hotmail.com
Pagina 1 van 16
Website: hospitalbritanico.org.ar
AUSTRALIA
AUSTRALIAN HUNTINGTON DISEASE ASSOCIATION (National)
385 Ipswich Road, Postbox 635
Annerley Q4103 Australia
tel: 61 - 8 – 8271 2821; fax: 61 -8 – 8271 2821
Email: Gerald.doyle@bigpond.com
Website Australia National: www.huntingtonsaustralia.asn.au
Website South Australia: www.huntingtonssa.org
Website New South Wales: http://www.ahdansw.asn.au
Website Victoria: www.huntingtonsvic.org.au
Website Western Australia: http://www.huntingtonswa.org.au
Website Queensland: http://www.huntingtonsqld.com
Website Tasmania: www.huntingtonsaustralia.asn.au/tasmania
AUSTRIA
ÖSTEREICHISCHE HUNTINGTON HILFE
MR KURT ZWETTLER
SIBELIUSSTRASZE 9/3/35, 1100 VIENNA, AUSTRIA
tel: 43-1-6150 265
Email : shg-huntington-wien@gmx.at
Website : www.huntington.at
Huntington Hilfe Linz
Ernst Aigner
Email : ernst.aigner@ing-aigner.at
Huntington Hilfe Graz
University Clinic of Psychiatry Karl Franzens
Auenburgerplatz 22, 8036 Graz, Austria
Tel : 43-316-3858 1612
Fax : 43-316-3853 5561
Email medniki@gmx.at
Huntington Hilfe Tirol
Mrs Andrea Aichrainer
Ranggerweg 8/11
6170 Zirl
Tel: 43-650-555 6175
Email: hht@gmx.at
Website: www.huntington-hilfe-tirol.at
Huntington Hilfe Kärnten
Mrs Gerda Jaritz
Mühlenweg 43/10
9500 Villach
Tel: 43-650-391 4524
And Mrs Christine Guggenberger
Tel: 43-650-542 7217
Email: christina.guggenberger@infincon.com / c1guggen@edu.uni-klu.ac.at
Huntington Hilfe Vorarlberg
Mrs Andrea Amann
Pagina 2 van 16
Moosmahdstr 4, 6850 Dornbirn
Mobil: 43-664 466 9308
Tel/fax: 43-5572 263 74
Email: club-antenne@utanet.at
Huntington Hilfe Salzburg
Mr Bernhard Gantschnigg
Wasserfallweg 1, 4866 Unterach am Attersee
Tel: 43-66-423 8013; Fax: 43-7665 60090
Email: office@huntington-hilfe-salzburg.at
Website: www.huntington-hilfe-salzburg.at
BELGIUM FLANDERS
HUNTINGTON LIGA
Mrs Beatrice De Schepper
Spelonckvaart 30
9180 MOERBEKE-WAAS, BELGIUM
Tel: 32 – 9 – 346 8991
Email: bea.deschepper@skynet.be
SOCIAL SERVICE
KRIJKELBERG 1, B 3360 BIERBEEK, BELGIUM
tel: 32 - 16 - 452 759
Email: socialedienst@huntingtonliga.be
Website: www.huntingtonliga.be
BELGIUM WALLONIA
LIGUE HUNTINGTON FRANCOPHONE BELGE
4BIS MONTAGNE STE WALBURGE, 4000 LIEGE, BELGIUM
tel: 32 - 4 - 225 8733; Fax: 32-4-225 8469
Email: info@huntington.be
secretariat.lhfb@skynet.be
Website: www.huntington.be
BRASIL
ASSOCIACAO BRASIL HUNTINGTON
RUA TREZE DE MAIO; 226 CENTRO, CEP 12940.720
ATIBAIA – SAO PAULO, BRASIL
Tel/fax: 55-11- 4412 2199
Email: info@abh.org.br
ivy@abh.org.br
Website: www.abh.org.br
UNIAO DOS PARENTES E AMIGOS DOS DOENTES DE HUNTINGTON
QE 32 CONJUNO N CASA 25 GUARA II, BRASILIA - DF 71065-141, BRASIL
tel/fax: 55-61-30361594
Email: upadh@upadh.org.br
Website: www.upadh.org.br
CANADA
HUNTINGTON SOCIETY OF CANADA
151 FREDERICKSTREET, SUITE 400, N2H 2M2 KITCHENER, ONTARIO, CANADA
tel: 1 - 519 - 749 7063, fax: 1 - 519 - 749 8965;
Email: info@huntingtonsociety.ca
Website: www.huntingtonsociety.ca
SOCIÉTÉ HUNTINGTON DU QUEBEC
2300 BOULEVARD RENÉ LÉVESQUE O
Pagina 3 van 16
MONTRÉAL, QUEBEC, H3H 2R5
tel: 514 – 282 4272 ; Fax : 1-514-937 0082
Email: shq@huntingtonqc.org
Website : www.huntingtonqc.org
CHILE
Agrupacion Chilena de Huntington
La Ramada 11694, Las Condes
Santiago, Chile
Tel: 56-9-873 3703/ 56-9-8429 1291
Email executive director Elisabeth Roth: Elisabeth@huntington.cl
President: Rodrigo@huntington.cl
Website: www.huntington.cl
CHINA - HONGKONG (contact)
Ken To
Room 1314, Lung Chu House
Lung Poon Court
Diamond Hill
Kowloon, Hong Kong
Tel: 852 – 9707 1405
Email: kensantoso@gmail.com
COLOMBIA
Asociacion Colombianos por la Enfermedad de Huntington
Calle 130 # 58-20 Lo.286 C.C.
Plaza Aventura, Bogota, Colombia
Tel 57-1-2531293 ; Cel : 57-3-3105599155
Email : acolpeh@gmail.com
Website : www.acolpeh.wix.com
Fundacion Huntington de Colombia
Calle 45 No 50-59 of 101
Bogota DC, Colombia
Tel : 571-2225596
Fax : 571-221 8339
Email : fuhcol@gmail.com
Website : www.fuhcol.blogspot.com
CUBA (CONTACT)
GRUPO MULTIDISCIPLINARIO PARA LA ATENCIÓN A PACIENTES Y FAMILIARES CON DIAGNÓSTICO
DE ENFERMEDAD DE HUNTINGTON
JEFA DEPARTAMENTO NEUROGENETICA
INSTITUTO DE NEUROLOGIA Y NEUROCIRURGIA
DR. TATIANA ZALDIVAR VAILLANT
CALLE 29 ESQ D.VEDADO. PLAZA DE LA REVOLUCION
La Habana CUBA
tel: 05307834 55 47
Email: tzv@infomed.sld.cu /
CZECH REPUBLIC
SPOLECNOST PRO POMOC PRI HUNTINGTONOVE CHOROBE
Belobranske nam 6,
53002 Pardubice, CZECH REPUBLIC
Tel/fax: 420 – 724 903 243
Chairman: PharmDr Zdenka Vondrackova
Tel: 420-723-349 327; home 420-491-424 142
Pagina 4 van 16
Email:; info@huntington.cz
zdenka.vondrackova@seznam.cz
hrudahd@seznam.cz
Website: www.huntington.cz
Mrs Dr Jana Zidovska
PRAZSKA 153, 25241 DOLNI BREZANY, CZECH REPUBLIC
Tel: 420 – 737-198841; tel home: 420 – 241-910 454; clinic: 420-224-967 171-2
Email: jana.zidovska@seznam.cz
DENMARK
LANDSFORENINGEN MOD HUNTINGTON SYGDOM
Bystoevneparken 23,, 701; DK-2700 Bronshoj, Denmark
Tel: 45-5320 7850
Email: kontor@huntingtons.dk
Website:www.huntingtons.dk
ECUADOR (CONTACT)
Mrs Maria Cristina Guerra Villacreses
Mindo, Ecuador
Tel: 593-2 2170075; Mobile: 08-551 2091
Email: c.g.villacreses@gmail.com
EGYPT (CONTACT)
MR HANY FARID HALEEM
6 OMRANIASTREET – OMRANIA
GIZA 12211 – CAIRO, Egypt
Tel : 202-3-571 1379
Cellphone : 20212 3972744
Email : hanyfarid612@yahoo.com
Website : www.geocities.com/hdegypt
Dr Bahaa Demian Grace
Kasr Alaini College of Medicine
21 Mourad Street ; apt 11Giza
Cairo, Egypt
Tel : 202-35724344
Mobile : 20 12/3455662
Emergency : 20126734075
Email : drbahaademian@yahoo.com
FINLAND
FINNISH PARKINSON’S DISEASE ASSOCIATION, HUNTINGTON DISEASE BRANCH
REHABILITATION CENTRE SUVITUULI
SUVILINNANTIE 2, POSTBOX 905, 20100 TURKU, FINLAND
tel: 358-2-274 0412/358-2-5274 0421; fax: 358-2-2740 444
Email: arja.pasila@parkinson.fi
Website: www.parkinson.fi
Suomen Huntington Yhdistys ry
TUULENSUUNKATU 2, 20540 TURKU, FINLAND
Tel: 358-5-3764195
Email: heikki.tulento@fimnet.fi
Website : www.huntington.fi
FRANCE
Pagina 5 van 16
ASSOCIATION HUNTINGTON FRANCE
42, 44 RUE DU CHATEAU DES RENTIERS, 75013 PARIS, FRANCE
Tel: 33 - 1 - 5360 0879; Fax: 33 - 1- 5360 0899
Email: huntingtonfrance@wanadoo.fr
Website : http://huntington.fr
ASSOCIATION HUNTINGTON AVENIR
Centre d’Affaires
Montbertrand BP 24
38230 CHARVIEU, FRANCE
Tel: 4-7832 0285; Fax: 4-3742 5015
Email: contact@huntingtonavenir.net
mgarcia@huntingtonavenir.net
Website: www.huntingtonavenir.net
GERMANY
DEUTSCHE HUNTINGTON HILFE E.V.
GESCHAEFTS- UND BERATUNGSSTELLE
Falkstrasse 73-77, D 47058
DUISBURG, GERMANY
tel: 49 - 203 - 22915, fax: 49 - 203 - 22925,
Email: dhh@dhh-ev.de
Website: www.dhh-ev.de
www.selbsthilfenetz.de
GREECE
ORGANISATION OF HUNTINGTON IN GREECE
MRS LYDIA VEREMI
HYDRAS 13; 176-76 ATHENS, GREECE
Tel: 1-951 8054; Mobile: 6973517827 or 6946161285
Email: myopas@otenet.gr
lveremi@yahoo.gr
HUNGARY (CONTACT)
DEPARTMENT OF NEUROLOGY, UNIVERSITY OF SZEGED
PROF LASZLO VECSEI
SEMMELWEIS STR 6, H6725 SZEGED
Tel: +36-62-545351; Fax: +36-62-545 597
Email: vecsei@nepsy.szote.u-szeged.hu
INDIA
HUNTINGTON’S ORGANIZATION
P2-59 DLF QUTUB ENCLAVE PHASE II, GURGAON-122002 HARYANA, INDIA
tel :91-124-4019072, Cell 91-991-0029072 fax: 91 - 124 - 351 945
Email: navnitsingh11@yahoo.com
IRAN (CONTACT)
IRELAND
HUNTINGTON DISEASE ASSOCIATION OF IRELAND
CARMICHAEL CENTRE, NORTH BRUNSWICKSTREET, DUBLIN 7, IRELAND
tel: 353 - 1 - 872 1303,
Email: hdai@indigo.ie
Website: www.huntingtons.ie
Pagina 6 van 16
ISRAEL
ISRAELI HD Association
3 LUBEZKYSTREET, GEDERA 70700, ISRAEL
tel: 972 - 8 - 859 8573, fax: 972-8-8598573 , Cell 0528384889
Email: niradn@012.net.il
Website: www.huntington.org.il
ITALY
ASSOCIAZIONE ITALIANA COREA DI HUNTINGTON-MILANO
C/o Instituto Auxologico Italiano IRCCS
Via A. Magnasco 2-20149 Milano, Italy
tel: 39 -02 – 619 112 618
Email: segreteriaaichmilano@libero.it
Website: www.aichmilano.it
ASSOCIAZIONE ITALIANA COREA DI HUNTINGTON-ROMA ONLUS
VIA NOMENTANA 56, 00161 ROMA, ITALY
Tel: 39-06-44242033/39-06-44252298; Fax: 39-06-44242033
Email : info@aichroma.com ;
paolazinzi@yahoo.com
wanda.danzi@aichroma.com
Website: www.aichroma.com
Website: www.newshd.net
ASSOCIAZIONE ITALIANA COREA DI HUNTINGTON - NAPOLI
POLICLINIO FEDERICO II, CLINICA NEUROLOGICA - ED17
VIA PANSINI 5, 80131 NAPOLI, ITALY
tel: 39-081-5455 213/39-338-8008 372; fax: 39-081-7462 693
Email: aichnit@yahoo.it
Website: via Orphanet
ASSOCIAZIONE ITALIANA COREA DI HUNTINGTON – NEUROMED
VIA ATINENSE 18, 86077 POZZILLI (IS), ITALY
Tel: 00390865-915238; 0039347-3132185; Fax: 00390865-927575
Email : aich.neuromed@yahoo.it / neurogen@neuromed.it
ASSOCIAZIONE ITALIANA HUNTINGTON EMILIA ROMAGNA – AIHER
Mr Antonio Fontana
Via Romea n 1140, 47522 Cesena, Italy
Email : info@aiher.it; antofnt@gmail.com
Website : www.aiher.it
JAPAN
JAPANESE HUNTINGTON’S DISEASE NETWORK
C/O MRS KAORI MUTO PH.D
3-1-1 ASAHI, MATSUMOTO, NAGANO 390-8621, JAPAN
Tel/Fax: 81 – 263-37-2369
Email : jhdn@mbd.nifty.com
Website: www.jhdn.org
MALTA
HUNTINGTON SUPPORT GROUP MALTA (Delete, does not exist anymore)
4 Lion Street, Floriana, MALTA G.C.
tel: 356 - 9949 3267;
Email: pengland@onvol.net
Pagina 7 van 16
MALTESE HUNTINGTON DISEASE ASSOCIATION
Dept of Anatomy, University of Malta
Msida, Malta
Tel : 356 – 9989 4108 ; Fax : 356 – 213 9527
Email : cutajarhector@gmail.com / bedlam75@msn.com
Website : http://maltesehda.blogspot.com
MEXICO
ASOCIACION MEXICANA DE LA ENFERMEDAD DE HUNTINGTON I.A.P.
TESORELOS 97, TORIELLO GUERRA DEL. TLALPAN, 14050 MEXICO CITY, MEXICO
tel: 52 - 5424 3325; fax: 52 - 5424 3189
Email: asocia@prodigy.net.mx
NETHERLANDS
VERENIGING VAN HUNTINGTON
POSTBOX 30470, 2500 GL DEN HAAG, NETHERLANDS
tel: 31 - 70 - 314 8888 ; fax: 31 - 70 - 314 8880,
Email: info@huntington.nl
Website: www.huntington.nl
NEW ZEALAND
HUNTINGTON'S DISEASE ASSOCIATION (AUCKLAND) NEW ZEALAND
NEUROLOGICAL SUPPORT CENTRE
7a TAYLORS ROAD
MORNINGSIDE, AUCKLAND or
PO BOX 16238
SANDRINGHAM, AUCKLAND
New Zealand
Email; huntingtonsakld@xtra.co.nz; jane.had@xtra.co.nz
Website: www.huntingtons.org.nz
HUNTINGTON’S DISEASE ASSOCIATION (CHRISTCHURCH) NEW ZEALAND
CHIRSTCHURCH COMMUNITY HOUSE
141 HEREFORD STREET
CHRISTCHURCH, NEW ZEALAND
Tel: 3-312 5612
Email: ddc2@clear.net.nz
HUNTINGTON’S DISEASE ASSOCIATION (WELLINGTON) NEW ZEALAND
POSTBOX 30420
LOWER HUTT 5040, NEW ZEALAND
Tel: 4-569 3252
Email: jwigginswellingtonhda@hotmail.com
Info.Wellingtonhda@xtra.co.nz
NORTHERN IRELAND
HUNTINGTON’S DISEASE ASSOCIATION OF NORTHERN IRELAND
74 Lisburn Rd
Belfast BT28 1TS
Northern Ireland
Tel: 44 – 28 - 92670768
Email: info@hdani.org.uk
Website: www.hdani.org.uk
NORWAY
Pagina 8 van 16
LANDSFORENINGEN FOR HUNTINGTON'S SYKDOM
Grimsvollen 29, 4616 Kristiansand, NORWAY
tel: 47 – 902 - 02031, 934-47-795/9020204
Email: leder@huntington.no
Website: www.huntington.no
PAKISTAN
HUNTINGTON DISEASE CARE & CURE SOCIETY OF PAKISTAN
2 SAWATI GATE, PESHAWAR CANTT, PAKISTAN
tel: 92 - 91 – 528 7855
Email: hdccs@brain.net.pk
PAKISTAN HUNTINGTON DISEASE SOCIETY
SHIFA MATERNITY HOSPITAL
ZARYAB ROAD, ZARYAB COLONY, FAQIRABAD NO.2
25000 PESHAWAR, PAKISTAN
Tel: 00-92-912248747; Mobile: 00-92-3009397700
Email: dr_mussarat@hotmail.com
PERU (CONTACT)
DR MIRIAM VELEZ
PROLONGACION
265 CUSCO 265, 32 SAN MIGUEL, LIMA, PERU
Tel: 51-1-328 0504; tel/fax home: 51-1-263 5571
Email: miriamev@yahoo.com
HUNTINGTON SOCIETY OF PERU
MRS MARIA BEGAZO VIZA
AREQUIPA, PERU
Tel: 51-54-245 982; Fax: 51-54-211 1712
Email: mbegazo8@LatinMail.com
POLAND
POLSKIE STOWARZYSZENIE CHOROBY HUNTINGTONA
Rekodzielnicza 17a, 02-267 Warsaw, Poland
Tel : 48-22-8464151
Email : kontakt@huntington.pl / d.lis@huntington.pl
Email chairman everywhere : d.lis@dana.com.pl
Website: www.huntington.pl
MRS DR DOROTA HOFFMAN-ZACHARSKA /
Email: dhoffman@poczta.wp.pl
Portugal
ASSOCIACAO PORTUGUESA DE DOENTES DE HUNTINGTON (APDH)
Dr Filipa Julio
IBILI – Azinhaga de Sta.Comba
3000-354 Coimbra, Portugal
Tel: 351-96-252 3161
Email/ filipasjulio@hotmail.com
huntington.coimbra@hotmail.com
Website: www.huntington-portugal.com
Mrs Ursula Kleibrink
Rua Dr. Afonso Costa 32L
8500-016 Alvor-Portimao
Tel: 00-351-282459331; Mbl: 927 176 955
Email: Huntington.portimao@gmail.com
Pagina 9 van 16
Website: www.huntington-portugal.com
CENTRO DE INFORMACAO DE LISBOA
Pc. Antonio Baiao 7, loja A
1500-567 Lisboa, Portugal
tel/fax: 351-21-770 0014
ROMANIA (CONTACT)
DR FLORIAN ALEXANDRU & MARIA MAGDALENA OBRETIN
SPERANTEI 27. AP 2, BUCURESTI. ROMANIA
Tel: 40-722 - 789 868, Fax: 40 – 318 - 056733
Email: obretin@gmail.com
RUSSIA
HUNTINGTON ASSOCIATION OF RUSSIA
DR SERGEY A. KLYUSHNIKOV
INST OF NEUROLOGY, DEPT OF NEUROGENETICS, RUSSIAN ACADEMY OF MEDICAL SCIENCES
VOLOKOLAMSKOYE SHOSSE 80, 125367 MOSCOW, RUSSIA
tel: 7 - 95 - 490 2221, fax: 7 - 95 - 490 2210
Email: sergeklyush@gmail.com
SCOTLAND
SCOTTISH HUNTINGTON'S ASSOCIATION
St James Business Centre, Suite 135
Linwood Road, Paisley, PA3 3AT
Tel: 141-848 0308; Fax: 141 – 997 6199
Email: sha-admin@hdscotland.org
Website: www.hdscotland.org
SERBIA (contact)
Mr Zoran Simonovic
Psihosocijalni savetnik
Blagoja Parovica BB
37000 Krusevac, Srbija,
Serbia
Tel:+38137410217;fax: +38137410103;mob:+38162209006
Email: zoran.simonovic@gmail.com
SLOVAKIA
SPOLECNOST PRE POMOC PRI HUNTINGTONOVEJ CHOROBE V SLOVENSKEJ
REPUBLIKE
Mrs Jana Pavlikova
Klokocova 737, 98101 Hnust´a
Slovakia
Tel : 0475-423856 ; 09-15800155
Email : huntington@slovanet.sk
Website : www.sphch.sk
SLOVENIA
HUNTINGTON ASSOCIATION OF SLOVENIA
VRHOVCEVA 13d, LOG PRI BREZOVICI 1358, SLOVENIA
Tel: 386-1-7566020; mobile: 386-40397289
Fax: 386-1-5603086
Email: ako9@siol.com
jan.kobal@kclj.si
Pagina 10 van 16
SOUTH AFRICA
HUNTINGTON'S ASSOCIATION OF SOUTH AFRICA
181 JOHANNESSTREET, FAIRLAND,2170 SOUTH AFRICA
Tel : 27-11-678 6265 ; Mbl 1 : 27-83 383 1188 ; Mbl 2 : 27-82 318 3330
Email: michaelh@tsdworld.co.za ; jessica_selfe@yahoo.co.uk
Website: www.huntingtons.org.za
HUNTINGTON’S UNITED GROUP SOUTH AFRICA
MRS TINA-MARIE WESSELS
GENETIC COUNSELLING CLINIC
UNIVERSITY OF THE WITWATERSRAND & THE NATIONAL HEALTH LABORATORY SERVICE
POSTBOX 1038
JOHANNESBURG 2000
Tel: 11 – 4899223/4/9243; Fax: 11 – 489 9226
Email: tina-marie.wessels@nhls.ac.za / tinamariewessels@gmail.com
Website: www.ahls.ac.za / http://web.wits.ac.za/academic.health/pathology
SOUTH KOREA (CONTACT)
DR. MANHO KIM
DEPT OF NEUROLOGY, SEOUL NATIONAL UNIVERSITY HOSPITAL
101 Daehakro, CHONGNOKU
SEOUL 110-744, SOUTH KOREA
Tel: 82-2-2072 2193; fax: 82-2-3672 7553
Email: kimmanho@snu.ac.kr
MR WOOSEOK IN
DEPT OF NEUROLOGY, SEOUL NATIONAL UNIVERSITY HOSPITAL
28 YONGGONDONG Chongnoku
Seoul 110-744, South Korea
Tel: 82-2-2072 0890; fax: 82-2-7625178
Email: spon13@gmail.com
SPAIN
ASOCIACION DE COREA DE HUNTINGTON ESPANOLA
C/Gran via No 59, 4 planta
28013 Madrid, Spain
tel: 615-98 48 58
Email: info@e-huntington.org
ache-consultas@hotmail.com
Website: www.e-huntington.org
Asociacion Pacientes Enfermedad Huntington (APEHUCA) (Contact)
Catorce de abril 85
CP 11510 Puerto Real (Cadiz), Spain
Tel: 34 – 679 – 897158 / fax: 956 25 8755
Email: apehuca@hotmail.com
apehucasecretaria@hotmail.com
SURINAM (Contact)
Mr. Dick Ijskes
Pobox 871
Paramaribo, Surinam
Tel: 597-464036; Celulair: 597-8818681
Email: d.yskes@sr.net
SWEDEN
Pagina 11 van 16
HUNTINGTON FORENINGEN I SVERIGE
C/O NHR, Fia Gunnarsson
POSTBOX 490 84, 100 28 STOCKHOLM, SWEDEN
tel: 46 - 8 - 677 7010; fax: 46 - 8 - 24 1 315
Email: nhr@nhr.se
fgu@nhr.se
Website: www.nhr.se
Mrs Therese Persson
Angavangsgatan 18
Angelholm 0 26241. Sweden
Tel: 46-10 458 8131
Email: Huntington.nu@hotmail.com
Webiste: www.huntington.nu
Riksfarbundet Huntingtons Sjukdom (RHS)
Mr Sture Andersson
Bunkeflo Strand, Sweden
Tel: 46-40-157505 / 46-733-563452
Email: sture.a@tele2.se
Website: www.huntington.se
SWITZERLAND
SCHWEIZERISCHE HUNTINGTON VEREINIGUNG
Feldguetliweg 75
8706 Feldmeilen, Switzerland
Tel: 41-79 – 627 3324
Email: info@shv.ch
Website: www.shv.ch
www.huntington.ch
TURKEY
TURKISH HUNTINGTON SOCIETY
PROF A. NAZLI BASAK
BOGAZICI UNIVERSITY, DEPT OF MOLECULAR BIOLOGY & GENETICS
80815 BEBEK - ISTANBUL, TURKEY
tel: + 90 - 212 – 359 6679; fax: + 90 - 212 – 3597298
Email: basak@boun.edu.tr
Website/ www.alsturkiye.org / http://ndal.boun.edu.tr
UNITED KINGDOM
HUNTINGTON'S DISEASE ASSOCIATION
Suite 24 Liverpool Science Park
Innovation Centre 1
131 Mount Pleasant
L3 5TF Liverpool
Tel: 44-151-331 5444; Fax: 44 – 151-331 5441
United Kingdom
Email: info@hda.org.uk
Website: http://www.hda.org.uk
UNITED STATES OF AMERICA
HUNTINGTON'S DISEASE SOCIETY OF AMERICA
505 Eight Avenue, Suite 902, NEW YORK NY 10018, USA
tel: 1 - 212 - 242 1968, fax: 1 - 212 - 239 3430
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Email: lvetter@hdsa.org
hdsainfo@hdsa.org
Website: http://www.hdsa.org
URUGUAY (CONTACT)
MRS MONTSERRAT MARTINEZ
YARO 1038, AP 2, CP 11200 MONTEVIDEO, URUGUAY
Tel: 5982-409 8234; Fax: 5982-401 3918
Email: montsemora1954@yahoo.com ; lamonse@adinet.com.uy
VENEZUELA
ASOCIACION VENEZOLANA DE HUNTINGTON
MRS ALESKA GONZALEZ DE ZAMBRANO
Av Principal de Colinas de Bello Monte
Calle Voltaire, Edificio-Palpoc, piso4, Apt 41, Parroquia el Recreo
1050 D.C. Caracas, Venezuela
Tel: +58-212-7517 654; Fax: +58-261 5011
Email: avehun@hotmail.com
Website : http://avehun-venezuela.webnode.com.ve
DR ROBERTO WEISER
HOSPITAL UNIVERSITARIO DE CARACAS
POSTBOX 80207, 1080 CARACAS, VENEZUELA
tel: 58 - 2 - 991 5731; fax: 58 -2 - 979 0453
Email: rweiser@cantv.net
YUGOSLAVIA (contact)
PROF VLADIMIR S. KOSTIC
INST OF NEUROLOGY CCS
UL.DR SUBOTICA 6
11000 BELGRADE, YUGOSLAVIA
Tel: 381-11-685 596; Fax: 381-11-684 577
Email: kostic@imi.bg.ac.yu
ZIMBABWE (CONTACT)
MR. MANU PRAJAPATI
13/23 RD AVE, FAMONA BULAWAYO, ZIMBABWE
Tel: 263-9-64470; Fax: 263-9-883067
Email: unampraja@ymail.com
OTHER COUNTRIES
GERRIT R. DOMMERHOLT
CALLUNAHOF 8, 7217 ST HARFSEN, NETHERLANDS
tel: 31 - 573 - 431595, 31-573-431719
Email: iha@huntington-assoc.com
ORGANISATIONS
HEREDITARY DISEASE FOUNDATION
3960 Broadway, 6th floor. New York – NY 10032, USA
Tel: 212-928 2121
Email: cures@hdfoundation.org
Website: http://www.hdfoundation.org
INTERNATIONAL HUNTINGTON ASSOCIATION (IHA)
OFFICE MANAGER
GERRIT R. DOMMERHOLT
CALLUNAHOF 8, 7217 ST HARFSEN, NETHERLANDS
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tel: 31 - 573 – 431595
Email: iha@huntington-assoc.com
Website: www.huntington-assoc.com
ALLIANCE OF GENETIC SUPPORT GROUPS
35 WISCONSIN CIRCLE, SUITE 440, CHEVY CHASE, MD 20815-7015, USA
tel: 1 - 301 - 652 5553
Email: alliance@capaccess.org
WE MOVE
WORLDWIDE EDUCATION AND AWARENESS FOR MOVEMENT DISORDERS
ONE GUSTAVE L.LEVY PLACE, BOX 1052, NEW YORK, NY 10029, USA
tel: 1 - 212 - 241 8567
Email: wemove@wemove.org
EFNA
EUROPEAN FEDERATION OF NEUROLOGICAL ASSOCIATIONS
VIALE PIERACCINI 6, FIRENZE 50139, ITALY
tel: 39-055-4362 098; fax: 39-055-4271 280
Email: efns-branch@pharm.unifi.it
EURORDIS
EUROPEAN ORGANIZATION FOR RARE DISORDERS
102 Rue Didot, 75014 PARIS, FRANCE
tel: 33 - 1 - 4416 2747; fax: 33 - 1 - 4416 2712
Email: eurordis@eurordis.org
Website: www.eurordis.org
European Huntington Association
SEE BELGIUM: MS Bea de Schepper
Euro-HD Network
Tel: +49-731-500 50951
Email: info@euro-hd.net
Website: www.euro-hd.net
World Federation of Neurology Research Group on Huntington Disease
Prof R.A.C.Roos
Email: r.a.c.roos.neurology@lumc.nl
Website: www.wfneurology.org
Huntington Study Group
Tel: +1-310-450 9913
Email: hsgwebmaster@ctcc.rochester.edu
Website: www.huntington-study-group.org
The Huntington Project
Tel: +1-585-273 4147
Email: leslie.briner@ctcc.rochester.edu
Website: www.huntingtonproject.org
WORLDCONGRESS ON HUNTINGTON DISEASE
www.wchd2013.com
Huntington Disease Drug Works
www.hddrugworks.org
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Huntington Disease Lighthouse
www.hdlighthouse.org
Huntington Disease Advocacy Center
www.hdac.org
HD Free with PGD
www.hdfreewithpgd.com
Huntington Disease Youth Organization (HDYO)
www.hdyo.org
info@hdyo.org
HDBUZZ
www.hdbuzz.net
Red Latinoamericana de Huntington
C/o Rodrigo Osorio
rosorio@rlah.net
Taise Cadore = tcadore@rlah.net
IHA BOARD
President: Ms Ann Jones
Email: annjones@aapt.net.au
Vice-President: Ms Asuncion Martinez
Email: asun@euro-hd.net
Treaurer: Ms Marie-Odile Perrousseaux
Email: odile.perrousseaux@orange.fr
Secretary: Ms Louise Vetter
Email: lvetter@hdsa.org
International Development Officers
Ms Christiane Lohkamp
Email: chris.lohkamp@dhh-ev.de
Ms Bea De Schepper
Email: bea.deschepper@skynet.be
Members at Large:
Ms Bev Heim-Myers
Email: bheimmyers@huntingtonsociety.ca
Mr Gerrit Dommerholt
Email: iha@huntington-assoc.com
Ms Danuta Lis
Email: d.lis@dana.com.pt
Mr Matt Ellison
Email: just1moreperson@yahoo.com
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Ms Filipa Julio
Email: Huntington.coimbra@hotmail.com
2-1-2013
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