Shaping the Future for Better Care Event Friday 17th October 2014 Blackpool Enterprise Centre Lytham Road Blackpool FY4 1EW Page 1 of 15 On Friday 17th October 2014, Healthwatch Blackpool, in partnership with Blackpool Clinical Commissioning Group, held their latest Open Event at the Imperial Hotel, North Promenade, Blackpool FY1 2HB. The ‘Shaping Better Care’ event was attended by over sixty members of the public. Mr Roy Fisher, Chair of Blackpool Clinical Commissioning Group welcomed everyone to the event. It was explained that after each presentation, two questions would be asked and attendees could vote using the voting pads that were available on their table. The results are included below. The first presentation was on End of Life Care. This was given by Dr Laura Edwards, Community Consultant in Palliative Medicine at Trinity Hospice and Palliative Care Services; and Lorraine Tymen, End of Life Facilitator at Blackpool Teaching Hospitals NHS Foundation Trust. The presentation included an explanation of why the Liverpool Care Pathway had been discontinued and how it was hoped good End of Life Care would be delivered in the future and how it would aim to ensure the best possible care for dying people. The care would be individualised and health professionals would work together, communicating effectively, taking into account psychological and spiritual needs ensuring dignity and respect at all times. Q1 – Do you understand the local changes to End of Life Care? (multiple choice) Yes No Not sure Totals 2.3% 36 1 6 43 Responses 83.72% 2.33% 13.95% 100.00% 14% 83.7% Yes No Not sure Page 2 of 15 Q2 – Do you think this will improve the quality of care for people at End of Life? (multiple choice) Yes, definitely Yes, Probably Not Sure No, not really No, definitely not Need more information to decide Totals 0% 23.8% 11 18 3 0 0 10 42 Responses 26.19% 42.86% 7.14% 0% 0% 23.81% 100% 26.2% 0% 42.9% 7.1% Yes, definitely Yes, probably Not sure No, not really No, definitely not Need more information to decide The second presentation was by Dr Mark Johnson, Associate Director of Acute Commissioning and Service Redesign from Blackpool Clinical Commissioning Group (CCG). He outlined how Blackpool CCG would work with Blackpool Council and the Better Care Fund to achieve a 5 year strategic Health Care Plan to ensure better co-ordinated care and the integration of services. Q3 – Do you agree with our plans? (multiple choice) Yes, fully Yes, in parts Not sure No, not really No, not at all I’m still not sure what the priorities are? Totals 10 12 8 0 0 6 36 Responses 27.88% 33.33% 22.22% 0% 0% 16.67% 100% Page 3 of 15 0% 16.7% 27.8% 0% 33.3% 22.2% Yes, fully Yes, in parts Not sure No, not really No, not at all I’m still not sure what the priorities are? Q4 – Do you have a better understanding of our plans now? (multiple choice) Yes No Not sure Totals 2.6% 32 1 6 39 Responses 82.05% 2.56% 15.38% 100% 15.4% 82% Yes No Not sure The third presentation, ‘Know Your Number’, was from Jeannie Hayhurst, Clinical Project Manager for Blackpool CCG. The ‘Know Your Number’ Campaign is an initiative that was undertaken in Blackpool so people could get involved in their own health and wellbeing, by knowing what their blood pressure is. The campaign is designed to help prevent heart attacks, strokes and hypertension. Blackpool has a high rate of people dying from heart disease and stroke. Page 4 of 15 The fourth presentation was from Nick Gradwell, “Nick’s Story was a presentation on the importance of Eye Awareness and having eye checks regularly. Nick lost his sight at an early age and talked about his experiences and some of the challenges he faces on a daily basis. Q5 – Were you aware that we had eye awareness week from 22 September – 28 September (multiple choice) Yes No Totals 10 34 44 Responses 22.73% 77.27% 100% 22.7% 77.3% Yes No Q6 – If yes, did you or any of your family/friends have (or have arranged) an eye test as a result? (multiple choice) Yes No Don’t know Totals 3 11 3 17 17.6% Responses 17.65% 64.71% 17.65% 100% 17.6% 64.7% Yes No Don’t know Page 5 of 15 After lunch the fifth Presentation was from Booking and Choice Manager Jackie Heardman from Blackpool CCG. Jackie talked about patient choice within the NHS and how certain individual people influence patient choice. The “Choose and Book” system is a national electronic system, used by patients in all areas of the county, not just Blackpool, helping patients choose and book their care. Q7 – Did you know much about “patient choice” before you saw the presentation today? (multiple choice) Yes No Totals Responses 56.41% 43.59% 100% 22 17 39 43.6% 56.4% Yes No Q8 – Do you feel you got enough information about patient choice from today’s session? (multiple choice) Yes, lots Yes, some Yes, A little No, not really Still unclear about patient choice Totals 10 9 11 5 5 40 Responses 25% 22.50% 27.50% 12.50% 12.50% 100% Page 6 of 15 12.5% 12.5% 25% 27.5% 22.5% Yes, lots Yes, some Yes, a little No, not really Still unclear about patient choice A question and answer session followed with a panel of representatives; consisting of:Roy Fisher, Blackpool Clinical Commissioning Group; Gary Doherty, Chief Executive Officer, Blackpool Teaching Hospitals NHS Foundation Trust; Dr Amanda Doyle OBE, Chief Clinical Officer, Blackpool Clinical Commissioning Group; Professor Heather Tierney-Moore, Chief Executive, Lancashire Care Foundation Trust; Gordon Marsden, MP Blackpool South; David Rigby, Sector Manager for Fylde Coast, North West Ambulance Service. Please find below the questions asked and the responses given. What further steps can the Health Service and other services in Blackpool take to reduce the alcohol issues in the town? I would like to see pressure from Blackpool CCG and the Health & Well-being Board in Blackpool towards the alcohol industry, aimed at the Government, to reduce licensing times and look at the price per unit cost of alcohol. What are your views? Roy Fisher said the Health &Wellbeing Board and Public Health are working hard to address the issue. Dr Amanda Doyle said she recognises that this is a massive problem that leads to long term health issues, such as high blood pressure and sclerosis of the liver, which then becomes a drain on resources. In the short term, Blackpool gets a lot of visitors as well as locals who have issues with alcohol. This is an acute problem; the pubs and clubs are open late and alcohol is readily available. As a short term solution, the introduction of the Night Safe Scheme into the town that is manned by trained Nurses who monitor any person admitted to them under the influence of alcohol until they are well enough to go home. On the longer term, some GP’s are asking about patient’s alcohol intake and advising them accordingly. The CCG has also funded Alcohol Liaison Nurses. These Nurses help to signpost individuals into these services, thus people with alcohol issues should not spend as much time in hospital. This is becoming a huge financial burden. Page 7 of 15 Gordon Marsden said alcohol is such a huge problem both long and short term. He would like to see a more pro-active approach by having alcohol education in schools, colleges, and youth clubs with a positive Role Model distributing the knowledge and positive peer pressure. There should be a pro-active link with Public Health and the Licensing Board within the town. It has been observed that people often come into Blackpool whether it is by bus or train having already had a considerable amount to drink. Maybe we could work with the British Transport Police to address this? We need to reduce the minority of the visitors coming to the town who drink and work towards social things being done. Heather Tierney Moore reported that two Public Health Consultants had been appointed who were leading a programme to train all clinical staff to advise on alcohol, smoking, sexual and mental health issues when in contact with such patients and thus signpost them to the support services. Gary Doherty also stated that the Blackpool Alcohol Liaison Nurses; are engaging service users in Lifestyle Changes; they were offering a friendly, informal and pragmatic approach. They are doing a lot of work with families and forming partnerships. The work they are doing is based on an American model, being involved with families who have children under two years old primarily working through issues and challenges. There is a lot of work going on in Blackpool surrounding alcohol issues that the people of Blackpool should be proud of. If it comes to it, what steps will the Blackpool CCG take to contain Ebola? Dr Amanda Doyle said to keep things in perspective. The disease is spreading in countries such as Sierra Leone where their sanitation, hygiene, and education is not the same as it is in Western countries, but they are taking measures to contain it. Gordon Marsden stated it is a very serious issue in the African Sub Continent. There is a Glaxo system in Texas being looked at for the treatment of Ebola, but that will not be ready for at Page 8 of 15 least two years. We can only do what we are doing as an immediate measure which is to send out our British Troops to help educate and re-construct their healthcare system and help their healthcare workers. Gordon Marsden said that Blackpool Victoria Hospital does have isolation units if the Ebola virus should become airborne, which it is not at the moment. Patients and Staff at the hospital had been asked if they were worried. Whilst they were not worried, they would not become complacent either and the feeling was they were far more worried about seasonal flu and encouraging people to take up the offer of flu jabs. This is a politically motivated question. As we are a country that is creeping towards privatisation, what are the risks of more privatisation if a Labour Government is elected and the Transatlantic Trade and Investment Partnership goes through between the European Union and the United States. Gordon Marsden said the Transatlantic Trade and Investment Partnership is a very complicated issue especially between the International Growth Trade and the America Health Care system. This has resulted in the Government being sued and trade being restrained, and the NHS should not be included in Transatlantic Trade and Investment Partnership. It is a live issue going through the Private Sector. The NHS blocked its Quasi competitive issues, in the best interests of the patients and services as a whole. Why is nothing being done about the amount of drinking that is going on in Blackpool The majority of drinking is not going on in pubs and clubs it is taking place at home or on the streets and the majority of street drinkers are young girls. Roy Fisher said that the council had introduced initiatives to combat the drinking. They had tried to put a stop to two for one deals and happy hours and had introduced a scheme to encourage drinking one alcoholic drink then having a soft drink in between. Dave Rigby said people pre-loading at home on cheap alcohol before they came into the town centre were a big issue of concern. Booze is still very cheap and drinking establishments are still open very late. North West Ambulance Service (NWAS) are taking a pro-active approach in Blackpool, encouraging the Night Safe scheme, using it as a point for education and encouraging individuals to take responsibility for their own actions. NWAS is working in conjunction with Public Health on this matter. Page 9 of 15 What is a typical working week for a GP in Blackpool? How many days? Dr Amanda Doyle said there is no typical working week as such, morning surgery consists of about 3.5 hours, then there would be chasing up of blood results and doing some paperwork, followed by Home Visits. After that there would be afternoon surgery, more paperwork and then late evening appointments, working 5 days a week. If a patient in Blackpool needs National Institute for Clinical Excellence (NICE) approved treatment in another area of the country, say Sheffield or Manchester and the consultant in charge deemed it necessary for the treatment to go ahead, can transport costs and financial help be received through Blackpool CCG? Dr Amanda Doyle said if you attend Blackpool Victoria Hospital and the consultant thought the patient needed specialist treatment elsewhere, as long as it was a recognised treatment, the cost would be met by Blackpool CCG. I have been taking the same medication or some time, since 2004. I feel that the standard and strength of the medication has declined. If a cheaper alternative is being manufactured and distributed is this not false economy? Dr Amanda Doyle said this is a complicated issue. Over time, the same drug may not work as effectively on the same patient, that is why they are reviewed and changed. Gordon Marsden had a personal observation which was that generic prescribing is becoming more common. Governments have realised that they need the best value for money under the NHS when it comes to finding more complex drugs. Therefore the NHS drug bill shot up. Gary Doherty asked had if the asker of the question had informed his/her GP that the drug was no longer working effectively. Different pharmacies in Blackpool supply different brand names of the same drug. When a drug is first invented, the drug is patented by that company and no one else is allowed to supply it. During this time the drug company is charging more for the drug to plough back the profits, as it would have cost a lot of money to first produce it. When the patent for that drug comes to an end, other companies are allowed to manufacture the drug but the drug will still have the same active ingredients as the original patented Page 10 of 15 one. At BVH why is there not a specialist Multiple Sclerosis (MS) Nurse? There are so many people diagnosed by the Neurologist’s at the BVH but there is no specialist MS nurse. Gary Doherty stated that he would check the national standards and statistics for this and that it had not sob eeen far flagged up on any inspection at the Blackpool Victoria Hospital. Dr Amanda Doyle stated that Blackpool Teaching Hospitals does not provide a Neurologist Service. If someone with a mental health condition suffers deterioration and the situation with that individual escalates and reaches crisis point, why is it taking up to 4 hours for them to be seen and sectioned where necessary? This service used to be sorted out within an hour of a call taking place. Dave Rigby reported that there are strict time frames for a patient in crisis. Patients are dealt with between the guidelines of 20 minutes, 1 hour and between 1 and 4 hours to hit the targets. He went on to say that they were looking at the possibility of a dedicated service vehicle, but that would depend on funding. Also, he would be happy to answer further questions and give details of the protocols involved at a later date. Heather Tierney Moore added that The Harbour will have a 136 suite in addition to the beds for Adult, Older Adult, Specialist Dementia and Intensive Care. The 136 suite allows people to be brought straight to the hospital for assessment rather than A&E and the flow of patients through the system will be dramatically improved. Overall, patient flow has already been improved resulting in fewer patients waiting for beds or being placed out of the area. Only 2 people were currently in ‘out of area’ beds across the whole of Lancashire. How does Blackpool CCG assure quality of service to patients when they use the ‘Choose and Book’ service. Also, if a patient access a service in another area at another hospital is their local CCG’s responsible for the quality of service? Also, if somebody wanted to complain about the service they received, would by complain to the CCG of the area they received the treatment in or the Blackpool CCG? Dr Amanda Doyle The local CCG takes responsibility for their quality. There is an Associate Commissioner to Contractors at other hospitals. If the person wishing to complain was a resident within Blackpool, but received the service elsewhere, they should also complain to the Blackpool Clinical Commissioning Group. Page 11 of 15 In Blackpool we tend to help lonely, bereaved and depressed individuals from all over the country and take them under our wing. What help is available to help these people and families? Where do the budgets come from to provide these resources? Where is the integration of services to educate families if we are going to go own the preventative measure route, when will this happen? Gordon Marsden said that the Holden Commission had published a report and it outlined the issues surrounding Integrated Health and Social Care services. He said that Blackpool was demographically different from other areas of the country in that it had a large proportion of young people and a large proportion of older people and that there was increased pressure on services. When people move to within the area and then one partner dies, it puts pressure on the services. It would be nice not to issue pills to help but encourage people to get involved in the Voluntary Sector and signpost people to groups that could help. There are local organisations such as the Blackpool, Wyre & Fylde Council for Voluntary Service that could help, but that they are struggling under financial constraints. A move towards Integrated Health and Social Care was needed involving voluntary groups within the structure. Dr Amanda Doyle said that they are working under the Neighbourhood Model where, when anything happens the GP is still the person people go to. The move should be towards the GP surgeries giving out Voluntary Group details and getting the knowledge of these groups out into the community. When someone has an underlying medical condition and also suffers from a complex condition too, if they are taken to hospital with an unrelated matter, how will the complex medical condition and the underlying health condition be picked up and known about? So in effect, how would you deal with the acute immediate issue without knowing about the underlying ones? Gary Doherty said that it is all to do with expertise and knowledge. They would talk to families and communicate better with them. Heather Tierney Moore said that it was about sharing records between the patient and the carer. Within the National Technology Fund and the LPRES, certain information is allowed to be shared. Dr Amanda Doyle said that all GP surgeries work from the same computer system. A&E staff can look up GP records if necessary Consent may not be needed if the patient themself is not well enough to give it as an overriding decision can be made. Also, NWAS has access to the computer system. Dave Rigby said that there is an Acute Visitor Service (AVS) running in Blackpool. This involves a Community Care Plan and a direct link with a doctor 24/7. The patient stays Page 12 of 15 at home and is treated safely. At present, within Blackpool, Wyre and Fylde, there is a 70% to 80% success rate of patients not being re-admitted to hospital within 30 days? Why do MS carers have so little time between calls/visits? They work long hours for very poor pay, I am very concerned for these hardworking girls. Gordon Marsden said that there have been cuts in social care making the time allowed for calls tighter. On the whole as a country we need to raise the skills levels with the Care Service who in return should get proper re-numeration. Preston and Chorley Hospitals Gary Doherty said BTHFT are running things such display a Gold Award for integrating as the Butterfly Scheme, issuing Memory Packs and Dementia Care into their wards, using liaison services. becoming more dementia friendly. How is BVH embracing this? Why are the bus drivers, who operate services at BTHFT, not informing passengers where to get off to access certain services? Can this be addressed? Gary Doherty said that if the hospital was to be built now it would have a totally different layout and it would be more compact, and that there were always navigators available. How much did the new entrance to the BTHFT cost and why all the glass? Gary Doherty said the cost was £5 million for the new entrance. The money for it was borrowed from the National Foundation Trust which is a financial facility. The shops within the area at the Blackpool Teaching Hospital Foundation Trust namely, Costa, WH Smith, and M&S pay rent. That money goes to re-pay the loan. The glass allows natural light into the area. It does not appear that any thought was given to the location of the Eye Clinic in relation to the Pharmacy or the Car Park. Gary Doherty asked for ideas regarding this subject to be submitted to him with regard to site development and car parking. When wanting to cancel an appointment with a GP surgery, why can there not be an answer phone service that stops people waiting in the queue for the actual Dr Amanda Doyle said that this was not a problem at Bloomfield and that there was a system in place there. This could be looked into. Page 13 of 15 GP appointment be utilised? A patient is more likely to just hang up and not cancel the appointment if they have to wait in a telephone queue. Is it not possible to build alcoves on Gary Doherty said that this is a busy corridor and the corridor to rest when going to that the task would be costly. Maybe look into the and from Outpatients? prospect of having folding chairs at the bottom of the stairways. It is possible to catch a bus from the main entrance to outpatients but not a return one - why? This question will be asked at the Healthy Transport Group which Healthwatch Blackpool attends. The 5 year commissioning plans seemed to deal mainly with the needs of the elderly population. There was little mention of mental health issues and their lack of parity with physical health. Blackpool CCG are working with all providers to implement parity of esteem on mental and physical health. This is intrinsically linked to mainstream services where they need to ensure that they are skilled in working with patients with mental health and other problems. We are keen to ensure that we begin to monitor this through our contractual processes. We will look to develop specific outcome measures to enhance monitoring. As a member of the CCG, who is planning the 5 year plan, what work is being done towards the approach of mainstreaming Eye Health, given that it ties so many of the CCG priorities? Blackpool CCG has invested in a variety of public awareness raising materials, which have been disseminated to Blackpool GP practices, voluntary services and public places, in order to raise awareness of the importance of looking after your eye health and how it may link in with many other priority long-term conditions. When will Eye Health be placed on the Joint Strategic Needs Assessment (JSNA) document for Blackpool, Wyre and Fylde? The Public Health team are incorporating information into the JSNA currently related to eye health. Representatives of Public Health at Blackpool Council met with Action for Blind People in July 2014. It was discussed what intelligence could be provided in order that more comprehensive local information could be available on eye health in the JSNA. Unfortunately, Action for Blind People have not yet responded to Blackpool Council, in Page 14 of 15 order to progress this further. Blackpool Council are happy to work with national and local voluntary sector organisations in order to include greater intelligence on specific conditions in the JSNA. The expectation however, is that the owners of the information would work closely with Blackpool Council, to ensure that what is included is robust and relevant to Blackpool. Lancashire County Council has sections on visual impairment in their JSNA. The excel system downloads include stats for Blackpool as well as Fylde and Wyre and so can be used by Blackpool CCG until Blackpool Council incorporate sections on this in their own JSNA. http://www.lancashire.gov.uk/corporate/web/?siteid= pageid=35900&e=e Why are GP’s still not referring people to Ophthalmology? It is envisaged that this local campaign around eye health will encourage this, but the topic will also be raised at the local health professional forums, Nurse Lead Forum, GP link meeting and Practice Managers Forum as necessary. What can be done to encourage GP’s to be more aware of Eye Health and the referral pathway when people present with eye problems, Blackpool CCG have raised awareness with GPs recently, by sending information to each GP practice on eye health awareness and including more information on the GP newsletter and CCG website. Awareness has also been raised with the CCG GP leads who have links to all the practices. Referral pathways are in place locally, but Blackpool CCG will continue to monitor these. In addition, GP practices have details of high street Optometrists, who also provide the management of eye conditions in a primary care setting The event ended with a quiz, a raffle and a big thank you to everyone for attending. Page 15 of 15