MENTAL RETARDATION People with mental retardation were once teased and tormented. Considered amusing, they were impersonated by court jesters and comic entertainers. People laughed at them. Some terms applied to them were: Idiots Morons Mental Defectives FeebleFeeble-minded Fools Evolutionary Degenerates Some religious authorities even considered them “changelings,” changelings,” possessed by the Devil. The mildly retarded were kept at home. The more severely affected affected were institutionalized, often in dreadful conditions. Today they receive better care and respect, but some stigma remains. remains. Definitions of Mental Retardation Mental retardation has become recognized as a disorder because: 1. MR affects functioning in many aspects of everyday life with MR may appear physically different 3. MR is a chronic condition, often apparent from early in life 4. MR is worldworld-wide; many families have a member with MR 2. Children Percentages of children in public schools diagnosed with learning disabilities or mental retardation, 1977 – 1995. —From Baumeister & Baumeister, 2000. DSMDSM-IV Definition of Mental Retardation DSMDSM-IV definition relies prominently, but not exclusively, on tested IQ 1. Mild MR, 5050-55 to upper limit of approximately 70 IQ 2. Moderate MR, 3535-40 to 5050-55 IQ 1 3. Severe MR, 2020-25 (limit of testability) to 3535-40 estimated IQ below 2020-25 5. MR, Severity Unspecified, usually because the person is at too low low a level to test, not cooperative, or too young 4. Profound, Recognizing the limitations of relying on IQ alone, the DSMDSM-IVIV-TR now includes a definition nearly identical to the following definition by the AAMR. AAMR. (American Association for Mental Retardation) MR must be present before age 18 years in all definitions. The AAMR Definition of Mental Retardation In addition to IQ, the AAMR definition considers many aspects of functioning, called adaptive behavior. behavior. The person must show significantly subsub-average IQ (below about 70 IQ). Must also have limitations in a least 2 or more adaptive skills areas: Communication SelfSelf-Care Home Living Social Skills Community Use SelfSelf-Direction Health and Safety Functional Academics Leisure Work In addition to the formal diagnostic criteria, children with MR don’ don’t expect to succeed, set low personal goals, and quit early rather than struggle with tasks. Teachers often expect little from them and don’ don’t urge them to try in reading, writing, and problem solving. Prevalence Between 1% and 3% of the population meet the criteria for Mental Retardation Slightly more males than females with MR Mild MR identified more in low SES and some minority groups, especially especially the impoverished. No such differences with severe or profound MR Course Outlook is good for many with mild MR or CulturalCultural-familial Retardation. In nonnon-academic settings they can function acceptably and are not considered retarded. retarded. Appropriate training and opportunities must be provided Severe and profound MR, Organic Retardation, Retardation, is lifelong, and biologically based. 2 Many people with MR are living longer; Down Syndrome patients live live up to the midmid-50s on average. Issue of their care in later years, when some decline cognitively cognitively due to gene damage in those with Down Syndrome Causes Mild MR is more influenced by cultural and family environment More severe MR is more likely to stem from genetic and other organic organic factors Overwhelming evidence that both genetic and nongenetic factors powerfully affect intelligence. Heritability of intelligence is around 50% (proportion (proportion of the variation of a trait in a population that is attributable to genetic influences). So intelligence intelligence is about 50% due to environmental factors Factors Associated with Mental Retardation Factors Associated with Mental Retardation (cont’ (cont’d) Prenatal Development The developing fetus is naturally protected against many harmful agents, with some exceptions: Alcohol. Alcohol. Fetal Alcohol Syndrome or milder fetal alcohol symptoms. Effects Effects range from very subtle to obvious physical defects and mental retardation. retardation. Not known how much alcohol is too much for pregnant women Some illicit drugs can directly and indirectly affect the fetus. Fetal addiction, nutritional insufficiency. Rubella, syphilis, herpes. Untreated maternal high blood pressure or diabetes Infancy and Childhood Perinatal factors include hypoxia, intracranial hemorrhage Injuries such as: Shaken Baby Syndrome can lead to brain injury and MR Common sequence of events in Shaken Baby Syndrome An angry caretaker shakes a baby who won’ won’t stop crying Weak neck muscles cause whiplash, bruising of the brain, and causing causing bleeding around the brain and behind the eyes Results in apparent deep sleep. Seizures, blindness, paralysis, MR, sometimes death Prevention Adequate prenatal care for all mothers prevents many conditions that result in MR Informing parents of the genetic basis for some types of MR Effective prevention and treatment programs for maternal substance substance use and 3 addiction Public health ads to prevent pregnant women from smoking, drinking, drinking, doing unhealthy diets and illicit drugs Parenting instruction for all new parents Instruction in behavior therapy techniques for parents with children children with MR and other disorders Treatments for Mental Retardation 1. Instruction Using Behavioral Principles Particularly useful for MR, because they teach and maintain skills skills at each child’ child’s level. Caregivers are trained to teach children positive behaviors and reduce negative behaviors effectively and humanely Desired behaviors are modeled for imitation in incremental steps, steps, with positive reinforcement for successful performance at each step SelfSelf-injurious behavior is ignored and placed on extinction if mild, followed by enforced practice of better alternatives (overcorrection) if more severe 2. 3. Drug Therapies No drugs specifically aimed at MR, but some symptoms can be controlled controlled Neuroleptic drugs to reduce aggressive and antisocial behavior (phenothiazines (phenothiazines,, Haldol) Haldol) Newer atypical antipsychotic drugs, such as risperidone, risperidone, may be safer, but not tested for children Antidepressant drugs can improve sleep, possibly help reduce self self-injurious behavior, reduce depression. Comprehensive Early Intervention Programs May serve children at risk because of low birth weight, premature premature birth, mild MR in the family Expert home visitors work with the family during first 3 years of of child’ child’s life Mothers given instruction and practice in ways to facilitate cognitive cognitive and social development and foster good physical health. Also stressstress-control for the mothers Children in daily child development center with special education education teachers and small groups Parent support groups to help parents cope with the stresses of parenting Gross, BrooksBrooks-Gunn, & Spiker (1992) found this program improved IQ scores, especially in the lowest birth weight group. Effects continued at 60 and 90 months of age 4. Mainstreaming Placing children with MR in regular classrooms to “normalize” normalize” their behavior and give them more opportunities. Effects are controversial. Studies show they are often shunned by by regular students, may not 4 receive the special education they need, and the poor and ethnically ethnically different children are too often mistakenly identified as MR 5. Institutionalization Reserved for the least capable children with the gravest disabilities disabilities A needed service, but too often neglected and underfunded by the States SUMMARY Mental Retardation is defined partly by an IQ score under approximately approximately 70 and multiple deficits in adaptive behavioral functioning in everyday life. The DSM recognizes four levels of mental retardation as measured by IQ, ranging from mild (the most frequent) to profound. Mental Retardation can spring from many different biological and socialsocial-environmental factors, with the most severe forms usually having biological roots. roots. These include: 1. Metabolic disorders 2. Chromosomal Disorder 3. Prenatal Infections and Toxic Substances 4. Birth Injuries 5. Head Traumas 6. Many Others Milder MR is usually treated with 1. Behavioral Instruction 2. Early Intervention Programs 3. Special Education 4. Mainstreaming More severe MR is treated by: 1. Behavior Therapy 2. Drugs to control aggression and selfself-injurious behavior 3. Either home care or institutionalization Wide availability of prenatal care for mothers and parenting instruction instruction could significantly reduce the occurrence of MR 5