News and Views The Euthanasia Movement: From Québec to Canada and Why it Matters to You Michael M. Li, BSc (1T2), Faculty of Medicine, University of Toronto O n May 13th 2009, Bloc Québécois MP Francine Lalonde introduced a private member’s bill to legalize physicianassisted suicide and active euthanasia in Canada for those who are terminally ill or who are suffering pain “without any prospect of relief.”1 Far from being a callous politician too removed from the real world to understand the ethical ramifications of her actions, Mrs. Lalonde herself has been battling cancer for the last two years and consequently provides a unique voice arguing for what she sees as providing all Canadians with the fundamental right to live or die with dignity.2,3 Despite vocal opposition from groups such as the Euthanasia Prevention Coalition, Bill C-384 received its first hour of debate on October 2nd 2009, where two MPs spoke out in favour and six MPs spoke against it.4 The bill is currently awaiting a second and final hour of debate before voting occurs on December 2nd, and as of the publication of this journal it will already have had the distinction of being the furthest any piece of legislation supporting active euthanasia has gone in the Canadian legal system.5 It should be noted that this absolutely cannot be dismissed as an isolated incident from a single individual (though admittedly, this is the third time that Mrs. Lalonde has introduced such a bill, with previous attempts in 2005 and 2008). Consider that at a very recent press conference (November 3rd, 2009), the Collège des médecins du Québec (CMQ) formally announced their support for physician end-of-life decisions that could legally be construed as forms of euthanasia.6 In particular, Dr. Yves Montagne, president of CMQ, noted that “… there are exceptional situations where agony and suffering persists and where physicians are asked to act in certain ways that could be interpreted as being prohibited by the Criminal Code. We are of the opinion that many of these actions constitute appropriate medical care.”6 This is the first time that a Canadian physicians’ organization has spoken out in favour of euthanasia – in stark contrast to the Canadian Medical Association (CMA), which currently has a policy directly in opposition to active euthanasia and assisted suicide6 and which has spoken out in opposition of Lalonde’s Bill C-384.3 Before we can delve into the significance of these two events, it behoves us to outline the history of euthanasia-related legislation in Canada and its current legal status today. In particular, the Canadian discussion on end-of-life care has been driven by the recent rise of debilitating, chronic, and incurable conditions (such as ALS and AIDS), coupled with medical advances that significantly prolong, but not necessarily improve, the lives of these patients.8 In many ways, Québec has been at the forefront of this discussion; this is highlighted by what most people know as the Nancy B. story. Nancy was a young Québecois woman who suffered from Guillain-Barré syndrome, a devastating autoimmune disease of peripheral neuropathy that had left her nearly paralyzed and unable to breathe without a respirator.8,9 When she had learned that her condition was irreversible, she indicated to her healthcare team that she wanted her ventilator disconnected so that she could pass away naturally. Insofar as she was a patient 6 refusing treatment, there was solid legal backing for her decision, even if it meant her death.8 However, given her near-complete paralysis, she was in the unique and unfortunate position of not being able to stop the ventilator herself, leaving healthcare workers liable to charges of assisted-suicide under the Criminal Code should they intervene to help.9 Refusing to accept this reality, Nancy B. took her case to court, resulting in the seminal decision of 1992 (Nancy B. vs. Hotel-Dieu de Québec et. al, Québec Superior Court) which allowed for the legal withholding of needed medical treatment – in essence, the Canadian legal basis for passive euthanasia.8,9 According to Dr. Arthur Schafer, famed Canadian bioethicist and director of the Centre for Professional and Applied Ethics (University of Manitoba), passive euthanasia as a concept has been fully embraced and accepted by Canadians and consequently it is now simply “appropriate care,” which does not carry the moral baggage.10 Similarly, what was previously known as indirect euthanasia (applying medical treatments which are supportive but are known to shorten life) is now simply termed “palliative care” and he points out that in Canada’s healthcare system today, “a physician who denies adequate pain relief to a dying patient because of fears that the analgesic might cause death would be considered unprofessional.”10 Nevertheless, indirect euthanasia has not been explicitly approved in the Canadian Criminal Code, despite its widespread acceptance in the medical community.8 Perhaps most insightfully, he notes the lack of basis for the slippery-slope argument used by opponents of passive euthanasia in the past – physicians today have not been dehumanized by the ability to withdraw treatment.10 In fact, he argues that the very opposite is arguably true as physicians now pay special attention to the unique needs of individuals with regards to their end-of-life decisions, and that physician-assisted suicide is the logical next step in improving patient care.10 Given the historical approval of these ‘lesser’ forms of euthanasia, one might wonder why it has taken so long for Canada to see legislation on active euthanasia. One of the main reasons for this delay is that active euthanasia, alternatively described as physician-assisted suicide, is open to attack on numerous grounds – such as for being an immoral act (of either murder or abetting suicide), for going against physicians’ traditional oaths to “do no harm,” and for giving excess power to the government with regards to controlling the lives of patients. Many still remember the tragic case of Tracy Latimer in 1993, who suffered severely debilitating cerebral palsy until her father killed her with carbon monoxide at the tender age of 12.8,11 Convicted of second-degree murder in 1994, Mr. Latimer defended his actions by pointing out that “[it] was a torture issue. It was about mutilation and torture for Tracy [due to her medical treatments]”.11 Police who had spoken to Mr. Latimer described that “his priority was to put her out of her pain.”8 Though Mr. Latimer was granted a retrial in 2001, he was once again convicted of second-degree murder.8,11 No one can know UTMJ • Volume 87, Number 1, December 2009 News and Views The Euthanasia Movement – From Quebec to Canada and Why it Matters to You if the decision would have been any different had a physician acted in his stead, but it would seem unlikely. Arguably, the most concerning claim is the one put forth by disability advocates. Many contend that allowing for euthanasia based on a subjective assessment of “suffering without relief” could lead to physicians broadly interpreting any disability as a cause for undergoing euthanasia.12 In effect, they argue, this would provide for a legal basis to “mercy killing” disabled patients based on the judgement of non-disabled strangers.12 It is in this context then, that Conservative MP Steven Fletcher, a C4 paraplegic after a motor vehicle crash in 1996, has chosen to abstain from voting on the C-384 bill, despite having indicated support for euthanasia in the past.13 As a disabled person and as someone suffering immensely from disability (he describes that after his accident, he felt pain that “would make you welcome death”), Mr. Fletcher uniquely sits on both sides of the fence in the debate. As he succinctly puts it, “In one direction, people could be killed because others think their pain is intolerable – just as disabled advocates claim. But there is another direction, too, whereby people can be forced to live in pain that truly is intolerable.”12 Perhaps the best picture of the Canadian situation is given by assessing the prevailing attitudes of the public or physicians and of those who would benefit from (or be hurt by) euthanasia legislation. In 2004, an Environics poll found that 68% of Canadians supported euthanasia and a second poll in 2009 put that number at 61%, though the latter was funded by the pro-life LifeCanada organization.15 Similarly, an Ipsos Reid survey of Canadians in 2007 found that 76% of respondents supported the “right to die” (a softer expression).8 The fact that a pro-euthanasia majority exists in Canada is well-known and has been true for the last 14 years, highlighting the challenges in bringing this controversial topic from the dinner table to the legislative table.8 Perhaps more telling are the reservations the public has about euthanasia – in the 2009 Environics poll, a significantly higher proportion wanted to see government spending on palliative care (69%) as opposed to on legalizing euthanasia (18%).15,16 Furthermore, 56% worried that if euthanasia is legalized, elderly persons would feel pressured to under go euthanasia to reduce healthcare costs, while 70% worry that sick, disabled, or elderly persons would be euthanized without their consent.15,16 Such concerns are echoed by Dr. Margaret Somerville, director of the Center for Medicine, Ethics and Law (McGill University), who opposes C-384 and pithily states, “It is so important not to have the precedent of killing each other in society.”3 Information on the opinions of Canadian doctors is more limited, but a survey of Québec medical specialists in 2009 by Ipsos Descarie found that 75% supported legal guidelines for euthanasia.17 Most specialists (73%) stated that they believe the question of euthanasia is an ethical or moral one and only for 13% is it a purely legal matter.17 Having said that, the question arises as to whether these physicians partially support euthanasia on a purely practical basis, as a startling 81% of them reported seeing their colleagues provide euthanasia to patients.17 Overall, given the high rates of approval for legalized euthanasia by these Québec specialists, the recent FMQ policy statement appears to merely be a reflection of the views of its members. It is still much too early to say whether Mrs. Lalonde’s most recent attempt at euthanasia legislation will result in any meaningful change. But it appears clear that the steadfast beat of the euthanasia drum is getting louder and closer, and it is inevitable that more physicians and their organizations will speak out in UTMJ • Volume 87, Number 1, December 2009 favour or against it. Everyone will ultimately have their own personal views on whether physician-assisted suicide should be legalized. Nevertheless, it is prudent for physicians and patients alike to be well-informed about the political and societal climate surrounding end-of-life care. It is not unforeseeable that provinces with higher support for it (i.e. Québec) will make steps in moving towards legalized euthanasia, with or without the backing of the federal government. Having knowledge of the background and current state of end-of-life legalities on both a national and local level will aid those in healthcare with the oftentimes challenging decision-making process in helping patients live and die with dignity. References 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. 12. 13. 14. 15. 16. 17. Parliament of Canada. Bill C-384 [Internet]. Fortieth Parliament, Second Section, House of Commons. 2009 May 13 [cited 2009 Nov 6]. 5 p. Available from: http:// www2.parl.gc.ca/content/hoc/Bills/402/Private/C-384/C-384_1/C-384_1.PDF. Chung A. Quebec doctors open door to euthanasia [Internet]. Toronto Star. 2009 Nov 3 [cited 2009 Nov 6]. Available from: http://www.thestar.com/news/canada/ article/720360--quebec-doctors-open-door-to-euthanasia. Lewis C. Proposed euthanasia bill could put doctors in a tight spot [Internet]. National Post. 2009 Aug 28 [cited 2009 Nov 6]. Available from: http://network. nationalpost.com/np/blogs/holy-post/archive/2009/08/28/proposed-euthanasiabill-puts-doctors-in-a-tight-spot.aspx. Schadenberg A. Parliamentary debate reveals significant opposition to bill C-384 [Internet]. London (ON): Euthanasia Prevention Coalition; 2009 Oct [cited 2009 Nov 6]. 3 p. Available from: http://www.euthanasiaprevention.on.ca/Newsletters/ Newsletter101%28October2009%29%28RGB%29.pdf. Craine PB. Vote Pushed Back on Canadian Euthanasia and Assisted Suicide Bill to Dec 2 [Internet]. LifeSiteNews. 2009 Nov 6 [cited 2009 Nov 6]. Available from: http://www.lifesitenews.com/ldn/2009/nov/09110602.html. CNW Telbec. Getting Around the Impasse - The Collège des médecins du Québec Reveals Its Reflections on End-of-Life Care [Internet]. CNW Group. 2009 Nov 3 [cited 2009 Nov 6]. Available from: http://www.newswire.ca/en/releases/ archive/November2009/03/c5210.html. CMA Policy. Euthanasia and Assisted Suicide (update 2007) [Internet]. Ottawa (ON): Canadian Medical Association. 2007 [cited 2009 Nov 6]. 3 p. Available from: http://policybase.cma.ca/dbtw-wpd/Policypdf/PD07-01.pdf. Tiederman M, Valiquet D. Euthanasia and Assisted Suicide in Canada [Internet]. Ottawa (ON): Library of Parliament – Law and Government Division. 2008 Jul 17 [cited 2009 Nov 6]. 28 p. Available from: http://www.parl.gc.ca/information/ library/prbpubs/919-e.pdf. Health Law Institute – End of Life Project. Case Summaries: Advance Directives, DoNot-Resuscitate Orders and Withholding and Withdrawal of Potentially Life-sustaining Treatment Cases [Internet]. Dalhousie (NB): Dalhousie University. 2004 Apr [cited 2009 Nov 6]. 28 p. Available from: http://as01.ucis.dal.ca/dhli/ cmp_documents/documents/case_studies_2.pdf. Schafer A. The great Canadian euthanasia debate [Internet]. The Globe & Mail. 2009 Nov 6 [cited 2009 Nov 6]. Available from: http://www.theglobeandmail.com/ news/opinions/the-great-canadian-euthanasia-debate/article1353068/. DePalma A. Father’s Killing of Canadian Girl: Mercy or Murder? [Internet]. The New York Times. 1997 Dec 1 [cited 2000 Nov 6]. Available from: http://www. nytimes.com/1997/12/01/world/father-s-killing-of-canadian-girl-mercy-ormurder.html. White M. An Open Letter to Members of Parliament RE: C-384 [Internet]. Winnipeg (MB): Council of Canadians with Disabilities. 2009 June 19 [cited 2009 Nov 6]. 1 p. Available from: http://www.ccdonline.ca/en/humanrights/endoflife/ euthanasia/openletterc384. Fletcher S. Make life the first choice, but not the only choice [Internet]. National Post. 2009 Nov 2 [cited 2009 Nov 6]. Available from: http://network.national post.com/np/blogs/fullcomment/archive/2009/11/02/steven-fletcher-make-lifethe-first-choice-but-not-the-only-choice.aspx. Stone L. Paralyzed federal minister supports euthanasia, but won’t vote on Right-toDie Bill. The Gazette. 2009 Nov 2 [cited 2009 Nov 6]. Available from: http://www. montrealgazette.com/health/Paralyzed+federal+minister+supports+euthanasia+vote+right+bill/2172048/story.html. Lewis C. Canadians still have reservations regarding euthanasia: poll [Internet]. National Post. 2009 Nov 2 [cited 2009 Nov 6]. Available from: http://network. nationalpost.com/np/blogs/holy-post/archive/2009/11/02/canadians-still-havereservations-regarding-euthanasia-poll.aspx. Craine PB. New Poll Reveals that Canadians are Conflicted About Legal Euthanasia [Internet]. LifeSiteNews. 2009 Nov 3 [cited 2009 Nov 6]. Available from: http://www.lifesitenews.com/ldn/2009/nov/09110301.html. Fédération des médicins spécialistes du Québec. Euthanasia: The Key Points of the FMSQ Survey [Internet]. Montréal (QC): Ipsos Descarie. 2009 Oct 13 [cited 2009 Nov 6]. Available from: http://www.fmsq.org/e/centredepresse/communiques/ coms/20091013.html. 7