The Family Support Connection July/August 2005 FOCUS —for families with kids who are deaf or hard of hearing — Aslinfo.com/trivia.cfm is a time-line of historic events in Deaf culture, including the “Deaf President Now” protest at Gallaudet University in Washington, D.C. in 1988 that galvanized the Deaf community. Deaf adults encourage parents to involve their kids in Deaf culture “We use the lowercase deaf when referring to the audiological condition of not hearing, and the uppercase Deaf when referring to a particular group of deaf people who share a language— American Sign Language (ASL)—and a culture.” From Deaf In America: Voices From A Culture by Carol Padden and Tom Humphries The Deaf community these days is recognized as having its own culture with its own language, history and arts. Yet 90% of babies who have a hearing loss are born to hearing parents, for whom Deaf culture can feel foreign and intimidating. Should these parents encourage their kids to learn about Deaf culture? The answer from members of the Deaf community is a resounding “YES!” Deaf culture has its roots in the country’s residential schools where deaf students forged friendships with others who shared similar experiences and the common language of American Sign Language (ASL). Over the past hundred years, Deaf culture has spread from residential schools through Deaf clubs, summer camps, churches and events where people who are deaf and communicate in ASL can gather and communicate without barriers. The Deaf community is not limited to people who are deaf. The group also includes CODAs—children of Deaf adults—and other people who are hearing and fluent in ASL. Besides a common language, people in this community also share cultural norms. For example, in American hearing culture, it is considered rude to point. In the Deaf community, pointing is not only culturally acceptable, but is necessary for communication. The same is true of staring. Hugging is another cultural norm in the Deaf community. It’s not uncommon for people who have just met to give each other a hug in greeting. Children who are born deaf to parents who are Deaf usually grow up in the Deaf community and are “native signers.” Trudy Suggs, a writer from Faribault, grew up in a Deaf family, but says she didn’t really identify herself as Deaf until she was 14 and attended the Deaf Way cultural celebration in 1989 at Gallaudet University. “I finally understood that I was truly, happily and gloriously Deaf,” Trudy said. “It was there that I saw thousands of people of all ages from every country in the world sharing the same cultural norms that my family always had.... With that, I came home and felt so incredibly empowered. I finally knew I was normal, that my family was normal, and that I wasn’t wrong for signing the way I did. “You see, most of my life, my (hearing) teachers and interpreters would criticize my signing, the way I was, or things we Deaf kids did,” Trudy explained. “They would also say that we needed to learn how to behave properly and ‘more like hearing people.’ At Deaf Way, I discovered that we had been behaving properly and that those teachers/interpreters simply didn’t understand our language or culture.” Katy Kelley, who is the only deaf child in a hearing family, says she has always felt supported by her family and loved for who she is, and that gaining a place in the Deaf community only added to her sense of self worth. Even though she attended high school at Minnesota State Academy for the Deaf in Faribault, Katy feels she entered the Deaf community last Fall as a freshman at Gallaudet. “Everyone is signing,” she said. “It is amazing.” Katy credits her parents for helping her discover her Deaf identity. She said they went out of their way to meet Deaf adults when she was little that she could look up to as role models. “I strongly suggest that parents expose their children to Deaf culture and meet many Deaf role models,” Katy added. “Kids will think it’s so fantastic to meet older good Deaf mature people.” Cindy Dively, who works for District 917 and also is a pastor and missionary, agrees. Being involved in the Deaf community gives children the chance to see that “deaf people can do anything except hear!” Cindy said. Cindy, who has been deaf since birth, attended an Oral Deaf school and didn’t learn ASL until she was 18. She said she had to ease into the Deaf community. Deaf Culture...continued on Page 4 FOCUS 2 Here’s What’s Happening Tuesdays The free Summer Reading Program will be ASL-interpreted at 2 p.m. at Merriam Park Library, 1831 Marshall Ave. in St. Paul. July 12—Dakota Wild Animals July 19—Steve Abrams with the National Puppetry Festival July 26—Professor Bear August 2—Airplane Annie August 9—Magician Matt Dunn Saturday, July 16 David Phelps performs an interpreted concert at Celebration Church in Lakeville from 7 to 10 p.m. Tickets are $20. Contact amboydfam@hotmail.com. July 22, Aug. 5 & 20 The Cued Speech Association of Minnesota (CSAM) sponsors “Play and Cue” events from 10 a.m. to noon July 22 at Jensen Lake Park in Eagan, Aug. 5 at Cliff Sen Park in Burnsville, Aug. 20 at Staring Lake Park in Eden Prairie. For details: KBC29@aol.com or 952-929-3965. Saturday, July 23 “Cue at the Zoo” at Como Park in St. Paul. Meet at 10 a.m. at the giraffe statue near the hooved-animals exhibit. The 11:30 a.m. “Sparky the Sea Lion” show is cued. Bring a picnic lunch. Contact KBC29@aol.com or 952-929-3965. Saturday, July 23 Join the Deaf community at Family Fun Day at Charles Thompson Hall, 1824 Marshall Ave. in St. Paul. Activities include a pig roast from noon to 7 p.m. and a craft and rummage sale starting at 9 a.m. Cost is $7 for adults and $5 for kids 12 and under. Saturday, July 30 PACER’s Simon Technology Center hosts a free Toy Expo from 10 a.m. to 3 p.m. with toys to try, art activities,and refreshments. To register, call 952-838-9000. Thursday, August 4 Picnic at Como Park with the Family Support Connection from 5 to 8:30 p.m. at Como Park in St. Paul. Reservations are needed by Aug. 1. See the attached flyer. Sunday, Aug. 7 “The Pursuit of Pleasure and Reward: European Art and Architecture of the 18th Century,” an ASL-interpreted tour at the Minneapolis Institute of Arts, begins at 2 p.m. For details, call 612-870-3131(v), 612-870-3132(tty) or email dhegstro@artsmia.org. Aug. 10-14 Saturday, August 13 Aug. 19-20 Several performances will have ASL interpreters at the Minnesota Fringe Festival of art, dance and theater. For details, see www.fringefestival.org or call 612-872-1212. Cool off at Cascade Bay Water Park Social Day for the Deaf and Hard of Hearing Community from 1 to 8:30 p.m. at Cascade Bay, 3830 Pilot Knob Road in Eagan. $8 tickets are available at the water park. Directions to the park are at www.cascadebay.com. Hands In Motion will interpret the “Higher Ground” Christian Music Festival in Winstead. For details, see www.hgmusicfest.com. ASL-Interpreted Performances *Ask for VSA discount. Music Man Thursday, July 28, 7:30 p.m. Tickets: Reduced to $8* Applause Community Theatre at Burnsville High School , 600 E Hwy 13, (just east of I-35W), 952-895-1234; www.applausecommunitytheatre.com. Oliver! Friday, July 29, 7:30 p.m., Tickets: $5-8 District 622 Community Theater, North High School, 2416 E. 11th Ave., North St. Paul, 651-748-6299. The Importance of Being Earnest Saturday, July 30, 8 p.m. Tickets: Reduced to $13* University of MN Showboat Players, Harriet Island in St. Paul, 651-227-1100; www.ShowboatTheater.com. The Importance of Being Earnest Sunday, July 31, 2 p.m. Tickets: Reduced to $10* Commonweal Theatre, 206 Parkway Ave. N., Lanesboro, 800-657-7025, www.commonwealtheatre.org. Bye, Bye, Birdie Friday, Aug. 5, 9 p.m. FREE* New Hope Outdoor Theatre, 4401 Xylon, 763-531-5151; www.ci.new-hope.mn.us. Movin' Out Sunday, Aug. 7, 1 p.m. Request ASL: accessible@orpheum.com. Orpheum Theatre, 910 Henne-pin Ave.S., Mpls.; 612-373-5639, -5655(tty); www.hennepintheatredistrict.com/servicesd.asp. Doctor Dolittle Friday, Aug. 26, 8 p.m. Ordway Center for the Performing Arts, 345 Washington, St.Paul; 651-224-4222, 651-282-3100(tty); www.ordway.org. FOCUS is published by the Family Support Connection at Lifetrack Resources. Submissions are welcome and can be sent to the editor via e-mail. Newsletter Editor: Audrey Alwell herwell@wwt.net Please note that information about events, services, or other organizations does not imply endorsement by the Family Support Connection. The Family Support Connection’s mission is to build better lives for children who are deaf or hard of hearing by providing parent-to-parent support to families. Past issues of FOCUS are on our website at www.familysupportconnection.org. © 2005 Lifetrack Resources FOCUS 3 In Your Corner By Candace Lindow-Davies, Family Support Coordinator It’s summer! I hope you’re all enjoying some great summer activities. My children have all sorts of plans…if I can only keep up with them! There is something very exciting about the beginning of the summer break. I happened to be waiting for my children on their last day, and when the final bell rang, a collective roar went up through the school. The doors burst open and kids flooded out throwing backpacks up in the air, shouting, “We’re free. It’s summer!” All the parents looked at each other and just laughed because we all remember that moment well. I have to admit; I’m looking forward to a little bit more freedom, too. We hope you enjoy this issue of FOCUS. We are pleased to be able to discuss Deaf Culture, as some parents have limited knowledge about the topic. We believe that by interviewing many different individuals, we can give our readers a better understanding of the diversity of the Deaf Community. And, with understanding comes opportunity. We are also looking forward to next month’s newsletter. We will be discussing the most common reason for non-genetic hearing loss present at birth, cytomegalovirus or CMV. Even if this is not the cause of your child’s hearing loss, the research and possible interventions are promising and fascinating. Once again, we are fortunate to have a top researcher author an article for us. Well, back to work and back to organizing kid activities! I hope to see you all at the Family Picnic next month. Look for the flyer attached to this issue. Government seeks comments on IDEA The Individuals with Disabilities Education Improvement Act (IDEA) of 2004 took effect July 1. IDEA is the federal law that provides a free, appropriate public education for children with disabilities. The Department of Education is seeking feedback on the regulations that interpret and clarify this law. PACER Center has information on the changes made to IDEA in 2004, as well as links for contacting the Department of Education. For details, see www.pacer.org and click on “Legislative Info.” National advocacy group for deaf, hard of hearing wants suggestions for future plans The National Association of the Deaf (NAD) is conducting a survey now through November on its website to get recommendations from members and nonmembers about the organization’s future goals. The survey is at www.nad.org/f3survey. The NAD is an advocacy group that has been defending the rights of people who are deaf or hard of hearing since 1880. The group’s main offices are in Maryland. In addition to its advocacy work, the NAD also offers youth camps as well as biennial conventions that include exhibits; workshops on a variety of topics; the NAD College Bowl finals; NAD Miss Deaf America finals; award presentations, and special programs for senior citizens and youth. The next convention will be in July 2006 in New Orleans. The NAD, through a cooperative agreement with the U.S. Department of Education, administers the Captioned Media Program (CMP). CMP, while serving as a captioning information and training center, also provides a free-loan media program of over 4,000 open-captioned titles, including videos, CD-ROM, and DVDs. Individuals who are deaf or hard of hearing, parents, teachers and other professionals may borrow materials after registering with the service. To register, see the CMP website, www.cfv.org. Mary Hartnett receives award The Ramsey County Bar Association recently honored Mary Hartnett, Executive Director of the Minnesota Commission Serving Deaf and Hard of Hearing People, with a Liberty Bell Award for promoting a better understanding of government and the judicial system. Among the achievements mentioned for the award were Hartnett’s efforts to educate the public about voting rights and access to the legal system. The Minnesota Commission Serving Deaf and Hard of Hearing People (MCDHH) serves as the principal state agency advocating on behalf of deaf, deaf-blind, and hardof-hearing Minnesotans. The Governor appoints the commission’s 15 members. MCDHH’s website currently is being developed. To contact the commission call 651-2977305 (V/TTY) or e-mail mary.hartnett@state.mn.us. Minnesota college students who are deaf and qualify for state or federal Pell Grants can now obtain tuition and fee waivers to attend state colleges and universities thanks to a provision included in the state’s higher-education bill, which passed May 26. FOCUS 4 Deaf Culture...continued from Page 1 “I had to ‘achieve’ my identity,” Cindy said. “I was taught that using sign language was wrong and I had to change my attitude—that I was the one with the problem, not them. When I arrived at National Technical Institute for the Deaf in Rochester, New York, I became a part of the Deaf community, and they accepted me for who I was. Now I have been in the Deaf community for about 22 years. I love it! I love socializing with my Deaf friends. We all share the common ground of being Deaf.” Kevin Kovacs, a teacher at Metro Deaf School, believes that common ground is what makes the Deaf community so strong. “What really allows the culture to remain what it is today is the common language we share and the challenges and struggles we experience as human beings,” Kevin explained. Becoming involved in the Deaf community gives adults and children “a sense of belonging,” he added. “There can be no words to describe how much children can gain by being a part of the community. We will never know the answer until they are given the opportunity.” Trudy, though, is quick to describe the value of the Deaf community in a child’s life. “They will have incredible selfconfidence, incredible communication skills as soon as they become part of the community,” she said. She cites her own experience in support of her enthusiasm of Deaf culture. “While I was in mainstreamed settings, I struggled with why hearing teachers at school wouldn’t let me be the way I was—which was Deaf,” Trudy said. “They kept telling me that I should try to be more like them and that I signed ‘too ASL.’ But when I went home to my Deaf parents and friends, I was considered normal. “Now I look back on those days in wonder,” she added. “If I could have such feelings of insecurity about my identity—coming from a family who communicated very well—how did the other Deaf kids at my school, with parents who could barely communicate, deal with it? And I know for a fact that every one of them had identity struggles, because they did things as a result or often talked about it." Trudy feels strongly that those struggles could have been weathered better if she and her classmates had been taught about Deaf culture— “whether we identified with it or not,” she said. Deaf culture is taught at schools with programs for students who are deaf. But, deaf students who are mainstreamed usually don’t have a class in Deaf culture. For those students, the Deaf community is a rich resource. Mike Cashman, who works for CSD, a non-profit organization that provides services such as interpreting, human services and video relay, explains that introducing a deaf child with hearing parents to the Deaf community helps that child learn to “code switch between the deaf community and the child’s upbringing background.” The child can learn to be fluent in both ASL and the family’s native language. “I think it is important that parents are open-minded and attend information sessions about deaf culture,” Mike added. “Deaf Culture Salon is a good example of learning about deaf culturerelated issues.” (See below.) Trudy points out that hearing parents first may need to overcome their own fears of the Deaf community. “So many parents—understandably—are so afraid of having their children be ‘deaf’ (or ‘Deaf’),” Trudy said. “They want children to be just like them or at least share their cultures/norms/ values/beliefs. This is absolutely and completely understandable. What they should realize, though, is that a Deaf person can easily be Deaf and still share the same values/norms/belief system that they have—a Deaf person just has an extra and possibly predominant culture/identity that is based on language.” Kevin has seen parents who avoided the Deaf community because they didn’t want to “lose” their child to it. He says the irony is that when those kids discover the Deaf community—“which is bound to happen”—they are often the people who become immersed in the Deaf community the most because they’ve been lacking it for most of their lives. “So the bottom line is that, if parents become involved with the Deaf community and their child, the likelihood is that they will share the same bond and respect for the community that lasts a lifetime,” Kevin said. “The easiest way to become a part of the community is to learn the language of Becoming Involved in the Deaf the Deaf community...and become Community: involved in Deaf community or school • Attend a Deaf Culture Salon, events. The more parents are seen and a discussion in ASL offered several involved, the trust, respect, and opentimes a year about cultural issues ness increases,” he added. Kevin also notes the misconception in the Deaf community. that the Deaf community looks down on cochlear implants. • Go to parties at the local Deaf “This may have been true in the club,Thompson Hall, 1824 initial stages, but I think the community Marshall Ave., St. Paul. There’s now sees the perspective of any parent one this month. See Page 2. who wants the best for their child, and that often involves the idea of trying to • Participate in activities at have their child hear because it is what schools for the deaf. all or most of their families do,” he • Visit the biennial Aware Fair, explained. Learning to listen and speak, though, doesn’t mean a child a gathering of companies and can’t also learn ASL, he said. products for the deaf. The next “There is nothing wrong in doing fair will be in Fall 2006. both speech and sign language,” he • Check www.tcdeaf.com for added. And that might just be “a winwin situation for everyone involved.” other activities to join. FOCUS Tuition help available for female doctoral students Women who are deaf and are pursuing a Ph.D. can apply for a $1,200 fellowship award from the International Alumnae of Delta Epsilon Sorority of Gallaudet University. The award is intended for tuition costs only during the 2006 spring academic year, and which will be payable to the recipient's college or university in January. Candidates must take 12 or more credits and have a GPA of at least 3.0. To request an application, e-mail Fellowship@iades.org. The deadline for completed applications is Sept. 15. 5 Des Moines Area Community College recently received a $400,000 grant from the Department of Education to create a Midwestern center for sign language education. Planners say the center will offer a bachelor’s degree in interpreting and prepare students for national certification. Entrepreneur honored A Little Grin Visor card alerts traffic police that driver can’t hear well Drivers who are deaf or hard of hearing can get a free card to place on their vehicle’s visor to alert police in a traffic stop of communication issues. In a typical traffic stop, a police officer gives verbal orders and expects them to be followed immediately or suspects the driver is a threat. By displaying a card on the vehicle’s visor, the driver lets the officer know right away that voice commands might not be understood. The card also tells officers how to communicate with the driver, for example in writing. Drivers who are hard of hearing now can get a card specifically designed for them. The card and instructions on using it are at www.hearinglosshelp.com/ VisorCards.htm. The site also offers a wallet card that can be offered to an officer along with the driver’s license. As a public service, Volkswagen and Wyndtell each offer visor cards that say “Driver is Deaf.” Wyndtell phone and pager customers can contact the company for details. To obtain a card from Volkswagen, see www.vw.com/ vwlife/socialaction.html#5. The “Driver is Deaf” cards have been around for a couple of years, but some drivers have reservations about displaying them. A discussion about these concerns is online at www.hearinglossweb.com/Issues/law/ law.htm#card. By Trudy Suggs Sometimes people are, well, naïve, about how Deaf people do the most simple things.... A few years ago, I met with the coordinator of an ASL project I was involved with. She was a nice, young hearing woman who knew almost nothing about ASL or Deaf people. At the meeting, I apologized for not being able to start sooner since I was housesitting for my parents and dogsitting a new deaf puppy I had just gotten. She asked out of the blue, “How do you communicate with your dog if you’re both deaf?” I burst out laughing, thinking she was joking around. The interpreter, also a friend of mine, signed privately to me, “I don’t think she’s kidding.” I looked at the woman. Sure enough, she was staring at me in complete seriousness. Oh boy. I managed to coax my giggle into a polite smile and said lightly, “My dog probably knows more signs than you do!” The interpreter burst out laughing at that, and I smiled. Thankfully, the woman didn’t take it as an insult, and we moved on. And, then there’s the time a girl asked me how deaf people brush their hair.... A Minnesotan who is deaf recently was honored as one of the world's “Best Emerging Social Entrepreneurs” by the global nonprofit organization Echoing Green. Anita Buel will receive $60,000 in seed funding as well as strategic and technical assistance over the next two years to train the nation’s first Deaf Community Health Workers (DCHW). Buel’s project will be based in St. Paul and will partner with health practitioners and educators to incorporate American Sign Language and other modes of communication into health education and advocacy to improve access to health care for people who are deaf. Film about teaching deaf to listen wins Academy Award A young woman who is deaf recently won a Student Academy Award for her documentary called “Listen,” which gives voice to the struggles and triumphs of growing up deaf and learning to speak and listen with help. Kimby Caplan, a 31-year-old Southern Methodist University graduate student, used footage of her own speech therapy sessions as a child in the film. She also features the influential speech therapist Doreen Pollack, who passed away last month. The Academy of Motion Pictures Arts and Sciences, the group that gives out the Oscars, hands out Student Academy Awards each year. Caplan was the Documentary bronze winner. She’ll be using her prize money to make a longer film about Doreen Pollack’s life. “Listen” is online at www.smu.edu/ newsinfo/stories/filmmaker-KimbyCaplan.asp. FOCUS 6 Chat rooms, forums offer ways to connect to Deaf community Off The Shelf By Robin Coninx, FSC Specialist The Family Support Connection Library offers many items in many formats to help you learn about Deaf Culture. We can provide books, videos and even computer programs. The first book that I will point out is “Deaf in America” written by Carol Padden and Tom Humphries. The authors, who are deaf, write about all the aspects that make them unique in life. Another good book is “Lessons in Laughter: the Autobiography of a Deaf Actor” written by Bernard Bragg. We also have picture books with ASL signs for children. Do you have a young person that you want to teach about Deaf History? We have a student textbook that explains the rich deaf heritage from 1816 to the 1970s called “Deaf History” written by Felicia Alexander and Jack Gannon. Another format is a video named “Deaf Heroes,” with humorous stories told by Deaf storytellers Billy Yount and Leslie Elert Yount about famous Deaf people such as Laurent Clerc. If you want to review or learn ASL, you can access videos and computer programs to help. You’ll find a complete list on our website at: www.familysupport connection.org. (no spaces). To request materials, e-mail fsc@lifetrackresources.org or call 651-265-2435 (v) or 651-265-2379 (tty). There are opportunities across the metro that can provide exposure to Deaf Culture. Thompson Hall in St. Paul is a place for people who are deaf to go to socialize. To learn ASL, the Barnes and Noble at Har Mar Mall hosts ASL night on Fridays starting at 6:30 p.m. Other Barnes and Noble stores around the metro have offered ASL nights, too. Check with the store nearest you. The biennial Aware Fair (the next one is in 2006) put on by the state’s Deaf and Hard of Hearing Services provides an opportunity to meet a variety of vendors who serve the deaf community. And CSD, an interpreter referral agency, provides interpreters and various social activities to the Deaf Community. The website www.tcdeaf.com lists events in the Deaf Community and has links to other resources. Our website also lists other local and national resources you can contact for information about Deaf Culture. If you’re having trouble finding a way to get involved in the Deaf community, you might try connecting online. There are many online chat rooms, bulletin boards and forums for people who are deaf or hard of hearing along with sites for parents or professionals in the field. Some sites are designed for kids, others just for adults. A chat room is an Internet area where you can type live, real-time conversations with many people at the same time. Bulletin boards and forums, on the other hand, are not live. You type a response to a topic, and it gets posted on the website later along with other people’s responses. These avenues allow for more supervision of content. Chat rooms can be unsupervised, although many are moderated by someone who can kick out people who don’t follow “netiquette,” the generally accepted rules of behavior for chatting online. With chat rooms or bulletin boards, safety experts recommend that users protect their personal identity by using a screen name and never sharing personal information. To teach kids to use chat rooms safely, start at www.kidsturncentral.com and click on “chat” at the bottom of the page. The tips listed apply to adults, too. A popular site in the Deaf community, AllDeaf.com has dozens of forums on topics such as wireless phones, colleges for the deaf, and Americans with Disabilities (ADA) compliance issues. Deaf.com hosts moderated chat rooms: DeafChat.com for adults and DeafKids.com. DeafChat has been around since 1998. The kids site is newer and is geared towards kids ages 17 and under as a place to make friends and discuss issues with other kids around the world who are deaf or hard of hearing. HearingExchange has chat rooms that function as support groups and are specific to topics such as cochlear implants, Auditory Neuropathy, and Cued Speech. The topics are listed on the home page at www.hearingexchange.com. Camp & Cue Aug 12-14 Lebanon Hills, Eagan Campfire party with S’mores 7 p.m. Saturday, Aug. 13 Join other families who Cue for a fun camping weekend at Lebanon Hills, which offers electrical sites plus swimming and boating. Or, drop by Saturday for S’mores, courtesy of the Cued Speech Association of Minnesota. Questions? Contact Mary Stadelman at 952-894-0469. Make friends at the Family Support Connection’s Family Picnic! For families with children who are deaf or hard of hearing. Thursday, August 4th 5–8:30 P.M (Rain or Shine!) Como Park Midway Pavilion South (Midway Parkway and Horton Avenue in St. Paul) free for the family: • • • • Dinner at 5:30 Face Painting & Games Temporary Tattoos Door Prizes! Also at Como Park: • Zoo and Conservatory (open 10-6) • Cafesjian Carousel (open 11-4) • NEW! Amusement Rides (open 10-8) • Mini Golf (open 12-6) For more information about Como Park, Zoo or Conservatory call 651/487-8200 or visit www.comozooconservatory.org Please RSVP! Call before Monday, August 1 to let us know how many from your family will attend 709 University Avenue West • St. Paul, MN 55104-4804 651/265-2435 (voice) • 651/265-2379 (TTY) 1-866-DHOHKID (toll-free) • 1-866-857-2379 (toll-free TTY) www.familysupportconnection.org Family Support Connection’s Family Picnic! For families with children who are deaf or hard of hearing. Como Park Midway Pavilion South (Midway Parkway and Horton Avenue in St. Paul)