2007 EHDI Conference – Salt Lake City, UT
Last Updated: 03/13/07
Topical Session 3
Room: Alta
Title: Assessment of State Early Hearing, and Intervention Programs (EHDI): A
Program Operations Evaluation Protocol (RTI)
Author(s): Pam Costa, Lucia Rojas-Smith
Affiliation(s): Centers for Disease Control and Prevention, National Center on Birth
Defects and Developmental Disability, Early Hearing Detection and Intervention
Presented by: Pam Costa, Lucia Rojas-Smith
Abstract:
Keywords:
2007 EHDI Conference – Salt Lake City, UT
Last Updated: 03/13/07
Topical Session 3
Room: Brighton
Title: Newborn Hearing Screening Training Module
Author(s): Randi Winston, Au.D. 1,2, Lylis Olsen, MS, MPH 2, Karen Ditty, Au.D. 2,
Terry Foust, Au.D. 2, Diane Sabo, Ph.D. 2, Marlene Hesley 3, LPN, Karen Munoz,
Ed.D. 2
Affiliation(s): 1 The EAR Foundation of Arizona, Phoenix, AZ , 2 The National Center
for Hearing Assessment and Management, Utah State University, 3 Banner Desert
Hospital
Presented by: Randi Winston, Lylis Olsen
Abstract: Although hospital based universal newborn hearing screening programs have
been implemented in the majority of hospitals in the country, state EHDI programs and
hospitals face the ongoing challenge of ensuring that all screening staff are properly
trained and competent. Inadequately trained screening staff jeopardizes the integrity
and efficiency of the early identification process. The EAR Foundation of Arizona in
collaboration with NCHAM has developed a competency based training module to meet
hospital’s training needs that will provide a consistent and comprehensive training
solution to the high rate of turnover and the need for ongoing quality assurance.
Development of standardized materials that can be applied to diverse hospital settings
is an important goal. This session will demonstrate the newly developed, multi-media
training module.
Keywords: universal newborn hearing screening programs, competency based training
curriculum, ongoing quality assurance
2007 EHDI Conference – Salt Lake City, UT
Last Updated: 03/13/07
Topical Session 3
Room: Deer Valley #1
Title: False Positive Inpatient Screening and Parental Anxiety
Author(s): Linda D. Goetze 1, Renata Vintila-Hardwick 1, Karl R. White 2, Scott Grosse
3
Affiliation(s): 1 Early Intervention Research Institute, Utah State University, 2 National
Center for Hearing Assessment and Management, 3 Centers for Disease Control
Presented by: Linda Goetze
Abstract: Objective: We address concerns raised about the impacts of false positive
results of infant hearing screening tests on families.
Relevance: We have conducted surveys of families of infants in Utah who were referred
from newborn hearing screening for further testing over three years. Three samples of
families were recruited based on whether the infant was referred to and passed an
outpatient screen (n = 117), was referred from outpatient screening to diagnostic testing
and was either passed (n = 110) or was diagnosed with hearing loss (n = 152). This
allows us to examine whether there is lingering anxiety after a baby does not pass
inpatient screening tests.
Implications for Policy or Practice: Generally, families in all groups felt moderately
supported by hospital staff. Moderate anxiety following the completion of screening was
reported by the families in both groups who were referred to diagnostic testing. In
comparison, a very low level of anxiety was reported by families who were referred to
outpatient testing but whose infants passed. Finally, all groups expressed strong
agreement that they were glad that hearing screening had been performed. The
findings by screening group suggest that families whose babies have false positive
screening results while in the hospital have very little lingering anxiety or dissatisfaction
as a result of the outpatient screening test that follows.
Summary: This study indicates a high level of parent satisfaction with newborn hearing
screening among families whose children had false positive inpatient screening tests.
The most anxiety about the screening process was expressed by families whose babies
were ultimately diagnosed with a hearing loss. The results suggest that the affect of an
inpatient false positive hearing screening result on later parent anxiety and satisfaction
is minimal.
Keywords: Parent satisfaction and anxiety, Effects of false positive screening
2007 EHDI Conference – Salt Lake City, UT
Last Updated: 03/13/07
Topical Session 3
Room: Deer Valley #2
Title: Family Conversations: Giving a Jump on Language and Literacy
Author(s): Ann Curry M.Ed., Susan Norton PhD.
Affiliation(s): Children’s Hospital & Regional Medical Center
Presented by: Ann Curry, Susan Norton
Abstract: Following confirmation of their baby’s hearing loss parents are faced with
many challenges including selecting an early intervention program. Too often different
communication methodologies (e.g. ASL, Auditory Oral, and Total Communication) are
presented to families as distinct and separate options. However, each child with hearing
loss and their family has a unique set of strengths and needs. This presentation will
describe Family Conversations Early Intervention Program for Infants with Hearing Loss
and their Families. This program provides opportunities for families to find the
combination of techniques that works best for their child and family. Both visual and
auditory means are used to establish clear communication between families and their
child and to help the child understand and use the primary language of the home.
Instruction is designed to enhance the parent-child relationship and include all family
members, as well as support the incorporation of new strategies into everyday life so
parents can provide the love and nurturing necessary to raise a child in today’s society.
Home visits, playgroup, parent support/education, a lending library, sign language
instruction, Deaf community/cultural events, literacy kits, and transition services are all
provided as part of this program. Visual means of communication (gestures, lip reading,
sign language, and/or cued speech) are combined with speech to help children develop
their language, speech and listening skills. Use of hearing aids, FM systems, and/or
cochlear implants to learn to understand and use spoken language is strongly
supported. Families learn to include their child in all family conversations. An emphasis
is placed on literacy through materials, modeling, exploration and play. Summary data
as well as video examples of individual sessions will be presented. This presentation
will help those seeking to provide unbiased information and early intervention services
for deaf and hard of hearing infants and their families.
Keywords: Early Intervention, Language, Literacy
2007 EHDI Conference – Salt Lake City, UT
Last Updated: 03/13/07
Topical Session 3
Room: Deer Valley #3
Title: Outreach to Physicians with Delta Zeta Project
Author(s): Sondra King, Penny Baker, Constance Block, Susan Wiley
Affiliation(s): Family Advisor, Ohio Universal Newborn Hearing Screening Advisory
Committee, Ohio Coordinator for Delta Zeta Sound Beginnings Project, EHDI Project
Director, Ohio Department of Health, Ohio AAP Chapter Champion, Cincinnati
Children’s Hospital Medical Center
Presented by: Constance Block, Sondra King
Abstract: Objective: This presentation will provide a collaborative model for
dissemination of information to physicians.
NCHAM developed a community outreach program with a national social sorority, Delta
Zeta. Although the initial national project linked Delta Zeta college students with WIC
programs, the Ohio Department of Health and the Ohio Delta Zeta chapters
collaborated to extend this educational outreach effort to target physicians.
This presentation will discuss the needed preparation and training activities for the
sororities, barriers and successes for information dissemination to physicians, and
general feedback from the sororities about their experiences in using this model for
physician education.
As states continue to identify effective methods of physician education, this project may
be one strategy among many to disseminate information on universal newborn hearing
screening and the importance of follow-up for children who do not pass their newborn
hearing screens.
Using multiple strategies for physician and public awareness regarding the importance
of UNHS and follow-up care is important for the success of EHDI. Collaborating with
community groups, such as philanthropic sororities may provide a low cost strategy.
Keywords: Educational Outreach to Physicians, Community Collaboration
2007 EHDI Conference – Salt Lake City, UT
Last Updated: 03/13/07
Topical Session 3
Room: Park City
Title: On The Road Again: How Site Visits Can Improve EHDI Programs
Author(s): Lorie J. Lang, M.A. CCC-A, Debra Behringer, M.S., RN
Affiliation(s): Michigan Department of Community Health EHDI Program
Presented by: Lorie Lang
Abstract: Over the past 11/2 years, all Michigan birthing hospitals have received a visit
from an EHDI staff member in collaboration with the metabolic program. Site visits have
provided an opportunity for increasing communication between the hospital and the
EHDI program to facilitate dissemination of information regarding state guidelines,
protocol for screening and mandatory reporting. In addition, pediatric audiology site
visits began in the summer of 2006. More in depth review of diagnostic protocols/
equipment are discussed at these visits as well as introductions of local area parents
who serve as parent guides in Michigan’s Guide-By-Your Side Program. By putting a
name to a face, progress is being made in reporting and referrals! Site visit tool for both
facility visits will be shared.
Keywords: Site Visit Tool
2007 EHDI Conference – Salt Lake City, UT
Last Updated: 03/13/07
Topical Session 3
Room: Snowbird
Title: Is Early Intervention Necessary for All?
Author(s): Mary Jane Sullivan AuD CCC-A 1, 2, Ruth Fox RN, MS 2, Jan Halley OTR
3
Affiliation(s): 1 University of New Hampshire, 2 New Hampshire EHDI Program, 3 N.H.
Multi-Sensory through Consultation and Education (MICE) Program
Presented by: Mary Sullivan, Ruth Fox
Abstract: The Joint Committee on Infant Hearing (JCIH) goal of providing early
intervention services for all infants identified with hearing loss by 6 months of age is
widely supported. The question we plan to address is:
Do all babies with hearing loss, regardless of the degree and type, require direct
intervention services? Historically, in New Hampshire, all children between birth and 3
years of age with a diagnosed hearing loss were automatically enrolled in early
intervention services. This process continues for many children, however, universal
newborn hearing screening has increased the program demands due to the
identification of children with milder forms of hearing loss. Given this, adjustments of the
traditional service model were necessary. We will present the criteria used to
developed New Hampshire’s modified early intervention service plan designed for
infants with milder degrees of hearing loss. The changes in our traditional early
intervention model are based on each child’s audiological results and parental requests.
We will address the factors which influenced these changes including parental
responses and personnel limitations. Additionally, the process of including the
diagnosing audiologists in the intervention planning will be discussed.
Keywords: Parental Input, Professional Collaboration
2007 EHDI Conference – Salt Lake City, UT
Last Updated: 03/13/07
Topical Session 3
Room: Solitude
Title: What is Audism
Author(s): Beth Benedict, Ph.D. 1,2, Barbara Raimondo, J.D. 2
Affiliation(s): 1 Gallaudet University, 2 American Society for Deaf Children
Presented by: Barbara Raimondo and Beth Benedict
Abstract: Most individuals are not familiar with the term “audism,” which is just coming
into popular use. The definition of audism will be introduced, and a clip of the
forthcoming movie, “Audism Unveiled,” will be shown. In this film deaf adults convey
their experiences with communication throughout their lives. An audience discussion will
follow.
What is audism? How does it impact the family and educational life of a deaf or hard of
hearing child? What should professionals know about audism?
Be prepared to have a frank and open discussion about this controversial topic.
Keywords: Audism, families, professionals, deaf community