WHAT WORKS? A LITERATURE REVIEW OF THE EVIDENCE FOR THE EFFECTIVENESS OF PARENTING STRATEGIES Prepared for Child and Youth Health by Pam Linke in June 2001 Updated October 2004 1 CONTENTS Introduction Executive summary Background current context for parenting risk and protective factors cost of risk factors Rationale for parenting programs introduction research reports Evaluated parenting programs introduction interventions that address risk and protective factors elements of programs that work cost effectiveness Recommendations from the literature Conclusion References Appendices program examples 2 INTRODUCTION This literature review has been undertaken to provide a basis for decision making about Child and Youth Health services to parents. Apart from a few exceptions, which have been noted in the text, it focuses on parenting interventions which have been rigorously evaluated and have shown benefits in positive outcomes for children. There are many other parenting programs which may also be effective, but have not met the standards of evaluation so have been omitted. Because this study was undertaken for Child and Youth Health purposes, it looks mainly at the health/socio-emotional aspects of parenting. This means that to a large extent early literacy programs per se are excluded, although it is acknowledged that there is evidence that these can have a positive impact on children's development and this offers opportunities for Child and Youth Health to link with the Department of Education, Training and Employment in partnerships to assist children’s development. Many of the programs for parents covered in the report do have a specific literacy component and all programs could be expected to have an impact on literacy through focus on communication. Wider areas where support for parents and parenting could be important have not been considered in this paper because of the scope of the literature review. These could include, for example, areas such as family friendly work practices, family friendly communities, housing, child and family impact considerations on government and community policies and practices. In spite of the clear evidence of the disadvantages of children in this group I was unable to find evaluations of successful programs for Aboriginal children. 3 EXECUTIVE SUMMARY This report highlights the fact that there are cost effective programs which can bring about more positive outcomes for children who are at risk of social or emotional or mental problems which inhibit their living skills, contribution to the community and enjoyment of life both in childhood and ongoing into adulthood. Risk factors have been well documented by considerable international and cross cultural research as have the factors which help to protect children against adverse outcomes. Most protective factors for children can be addressed through parenting. The cost to the community of not addressing risk factors, particularly in the early years, is very large in relation to the cost of intervention, however expenditure is in the present and savings are in the future. Parenting programs tend to have more cost benefits for the community when used with parents who have more risk factors than for the general community. Current research into the development of the brain as well as current and past research into social, educational and mental outcomes for children highlights the importance of a positive and supportive early environment - the environment provided, usually, by parents. Numerous national and international government reports support the importance of programs for parents, especially in the early years but also at transition or crisis points. Programs that have been shown by rigorous evaluation to have potential to lead to positive outcomes for children include: home visiting by professionals, parent education groups, antenatal support and early childhood and parenting centres. Other programs such as community development/social capital building have not been rigorously evaluated in the same way but may have contextual benefits in providing positive and supportive environments for families and children. Social marketing can play a major role in community education and the raising of community literacy about parenting and outcomes for children. Elements that contribute to programs that work include careful design and program planning and staff with both appropriate qualifications and personal skills. Programs such as home visiting, alone, are not as likely to be successful as interventions which involve a raft of different options and resources for families, eg selected services for particular needs within universal services. A number of recommendations from this literature review have been highlighted in the recommendations section of the report and offer considerable possibilities for effective support for parents and children in South Australia. 4 BACKGROUND Glad to have you aboard…… For the next 18 years you will be personally responsible for the care and well-being of another human being. You're on your own Good Luck! Popkin, 1986. Current context for parenting We live in an era and a culture where we know more about parenting and what works for children than ever before, so there are huge windows of opportunity to make a real difference. While it is clear that conditions for children have improved in many ways over the past century there are still too many children who are not getting the start they need to make the most of their lives. There is probably more pressure on parenting than ever before. While the evidence presented daily in the media about the importance of parents to outcomes for children can be helpful, it also can be seen by parents as an added responsibility and pressure and even, sometimes, blame. In spite of rhetoric about the importance of "the village" to raise children, child rearing is largely seen in our community as a private responsibility of parents unless it goes seriously wrong. In all other parts of home management, technology has reduced the workload. In parenting the opposite effect has been observed especially where both parents work outside the home, so the time for the complex roles of parenting has been eroded. At the same time many of the traditional structures to support parenting are also being eroded structures like clear marriage expectations and parenting roles, and support networks such as families, extended families, communities and villages. While many of these changes offer new opportunities to parents - employment all over the world, opportunities to leave dysfunctional relationships and much more choice for women, adequate new supports for the parenting function of adults have often not been put into place. In South Australia in 1998 18% of children lived in a family with neither parent employed, and more than 25% in families where no male was employed. The number of sole parent families in South Australia is growing, including sole parent families where the head of the family is unemployed. In the 1996 census 45.6% of all children in Adelaide were living in families receiving income support. The South Australian Child Health Council (1999) noted that "increasing numbers of children in South Australia face socioeconomic and other forms of disadvantage, resulting in significant adverse effects on their health and well-being…particularly in the case of many indigenous children." 5 As a society we give lip service to the value of children, but services and resources have not followed the rhetoric, especially for young children. There is an assumption that flies in the face of consistent evidence that young children are "resilient" so that what they require for optimum development can be easily overlooked. [The concept of resilience is discussed later]. Programs for parents are still largely focused on treatment. In Western societies, where parenting is considered a private rather than community responsibility, this can lead to difficulties in parents asking for and accepting help. This is exacerbated by increasing knowledge about child development and higher expectations of parents, both personal and from the community. Some of the current issues for parents and parenting as identified by parents include: poverty family break-up; including residence and access issues after separation isolation living and working away from family supports step family parenting isolation of parents from their cultures of child rearing community values and confusion about the importance of childrearing quality of out of home care for young children.(Hogg et al, 2000) Note: in parts of this report the term early intervention is used. In the context of the paper this implies early intervention with parenting. The term mental health as used in this report indicates the literal meaning of mental and emotional well-being, not as is often inferred, mental illness. Risk and protective factors Resilience In discussing programs for parents and children it is important to view them in relation to the risk factors they are intended to address, and the protective factors they are working to develop. Often these factors are seen in the context of the development of resilience in children. Resilience may be defined as the ability to cope with the challenges of growing up and living in the adult world without major disruptions such as criminal convictions or mental illness. Resilience is always defined in relation to risk factors - usually risk for mental illness, criminality or drug dependence. [Resilience is never absolute, and studies of adults who have coped in the presence of risk factors have shown that there are still some damaging effects from the risk factors, albeit not major life-disruptive ones (Werner, 1992)]. There is always an imperative to try to remove the risk factors where possible as well as to develop protective factors. Risk and protective factors have been the subject of much research over many years and results are remarkably consistent over time and culture (Linke, 1998). Protective factors can be classified into three main areas, factors in the child eg temperament, factors in the family eg positive attachment in the first year and factors in the environment eg a supportive relationship with a school. 6 Exactly how the protective factors work is not clear from the research but accumulated risks lessens the possibility of children developing resilience (or coping skills) while accumulated protective factors enhance this. Risk factors Some of the risk factors that are associated with juvenile delinquency and antisocial behaviour in adolescence and adulthood include harsh or abusive discipline, parent offending, being a victim of child abuse, need for special education, a family death or family break-up and anti-social behaviour at a young age (Walker et al, 1998). Factors that relate to the family and are therefore potentially amenable to parenting interventions include harsh discipline, weak parental supervision, lack of positive discipline, lack of parent involvement with the child, poor problem solving and negative family communication (Patterson et al., 1992). A recent report from the Australian Institute of Criminology (Bor, 2001) highlights the "predictable developmental trajectory of behaviour problems beginning in childhood" for antisocial behaviour in adolescence. They note that there is evidence of continuity between aggressive, non-compliant behaviours measure between one and three years of age and externalising behaviour problems at five years of age and a significant proportion of the children (up to 50%) will experience similar problems into adolescence. Webster-Stratton (1997) notes that risk factors that lead to continuation of problems into adolescence include: beginning in the preschool years, problems in different settings eg home and school, frequency and intensity of antisocial behaviour, having many different antisocial behaviours and the presence of ADHD. Risk factors for mental health problems and delinquency (Commonwealth of Aust. 2000) and delinquency include: Prenatal brain damage Low birthweight (6.8% of children in South Australia*) Perinatal stress Physical and Intellectual disability (7.8% of children in South Australia*) Low intelligence Difficult temperament Having a teenage mother Having a single parent (70% of children in one parent families were in the lowest 40% of income distribution in 1996/7*) Absence of the father in childhood Large family size Long parental unemployment Mental illness in a parent Parental alcoholism Parental criminality Poor quality care in the first year of life, if both parents are working outside the home 7 Major separations in the early years Family break-up especially where there is parental conflict. (21% of Australian children with one natural parent living away from their home*) *Children Australia: a social report (1999) Risk factors are not necessarily causal and may be associations with other causal problems rather than causal in themselves. It is important to note that risk is not destiny and these factors are related to populations, not individuals. Cost of risk factors The cost to the community of the risk factors that parenting programs seek to address is considerable. Over $2 billion is spent each year in Australia for mental health services (O'Hanlon, 2000). About 20% of people have some kind of mental health problem. The economic cost of child abuse to South Australia in 1995/6 was estimated at $303.33 million.(McGurk, 1998) The cost of the criminal justice system to the South Australian community per annum is approximately $300 per person ($450 million, pa.) Appropriate early parenting interventions are associated with better outcomes for children and less demand on services for all of the above areas. From “Crime in Australia – Law enforcement resources”. http://www.ncavac.gov.au/ncp/publications/crime/law_enforcement_resources.htm Protective factors Protective Factors (Linke, 1998) which mitigate against damaging outcomes from risk include 8 secure attachment positive discipline parental supervision (knowing where children are) family support eg grandparent a sense of achievement being needed (required helpfulness) external supports such as school belonging to a supportive community group such as a church group internal locus of control ( a sense of being able to impact on what happens to a person). It should be noted that most of the protective factors are related to parenting and potentially can be impacted on by supporting parents. 9 RATIONALE FOR PARENTING PROGRAMS If we do not attend to the needs of children "we risk paying a terrible price in our children's later behavior - drugs and anti social and violent acts…..our grandchildren will live together in a society with the offspring of neglected families. So will yours." (Brazelton, 2000) Introduction The evidence to support interventions for parents is overwhelming and comes from the juvenile justice, mental health, physical health and more recently brain research spheres. Much of this research has already been summarised in various government reports. Research Criminal justice Wilson and Loury (1987) in a major investigation of juvenile crime in North America found that "defiance, disrespect, class disturbance, aggression and disobedience in kindergarten and year one as rated by teachers predicted a high rate of offending behaviour in adolescence. They found that parent education programs produced the most promising results when they targeted early behaviour problems. The majority of frequent offenders rated as badly behaved in the first grade. While risk is not destiny this presents an opportunity with high probability of making a positive impact not only on the lives of individual children but also on the community both in cost and comfort! Mental Health The research of Lynne Murray (1997) into the outcomes for infants of untreated maternal postnatal depression during the early months of the infant's life shows long term impact on children's social, emotional and psychological health. The Commonwealth report "Promotion, prevention and early intervention for mental health" (2000) recommends interventions with parents as major strategies to promote mental health in Australia. Brain Research In major international reports Keating and Hertzman (1999), Marmot (1999), Shore (2000), McCain and Mustard (1999) have stressed the importance of the now incontrovertible evidence that the quality of environment and nurture in the early years has far-reaching and important effects on health, social development and education and in the end the productivity of the nation. McCain & Mustard (1999) in summing up the evidence from research into early development of the brain conclude that "nurturing by parents in the early years has a decisive and long-lasting impact on how people develop, their capacity to learn, their behaviour and ability to regulate their emotions and their risks for disease in later life; and (that) negative experiences in the early years, including sever neglect of absence of appropriate stimulation, are likely to have decisive and sustained effects…..What is fascinating about the new understanding of brain development is what it tells us about how good nurturing creates the foundation of brain development and what this foundation means for later stages of life". They identified 10 parenting as a key factor in early child development for families at all socioeconomic levels. Reports International In response to the evidence of the importance of supporting parents governments in developed countries are investing large amounts in programs for parents of infants and young children. In response to the Acheson report into inequalities in health, the British Government is investing more than £540 million into the Sure Start program for supporting families. A National Commission on the Family Report in Ireland (Govt of Ireland, 1998) recommends a national information strategy for parents, ranging from media campaigns, a telephone helpline, printed information and parent education and skills programs. A national report into school readiness in the US (Beth-Pierce) states that social and emotional competence beginning in the first year is critical to early school success and accomplishments in the work place. The Scottish Office Report, "A safer Scotland: tackling crime and its causes" has identified the quality of family life as one of the most important factors in explaining youth crime and has allocated £42 million over the next three years to support parents and children in the 0-3 age range including parenting classes and easier access to child guidance. The From Neurons to Neighborhoods report from the US Committee on Science and Early Childhood Development give the following take home messages: Early experiences matter and early interventions can shift the odds, but the focus on birth to three begins too late and ends too soon. Healthy early development depends on nurturing and dependable relationships. How young children feel is as important as how they think, particularly with regard to school readiness. Society is changing and the needs of young children are not being met. And they assert that "at a time when scientific advances could be used to strengthen early childhood policies and practices, knowledge is frequently dismissed or ignored and our children are paying the price". Australian Government Reports Major government reports in Australia have concluded that prevention and early intervention will save communities' and the Nation's resources both financial and psychological. The Australian National Action Plan for Prevention and Early Intervention for Mental Health recommends: workplace support for families, antenatal education to promote mental health literacy for parents, identify the core effective mental health components of home visiting and provide home visiting and parent support programs…, develop and evaluate demonstration high quality child care programs, 11 implement and coordinate screening programs for infant health and parent mental health problems. The Australian National Mental Health Strategy (Commonwealth of Aust, 2000) presents a rationale for adopting a promotion, prevention and early intervention approach to mental health, arguing that "accumulating evidence shows the widespread and long-term benefits of this approach" (p xi) and includes as process indicators "the presence of evidence based programs related to promotion, prevention and early intervention for all priority groups ( p26). Pathways to prevention: developmental and early intervention approaches to crime in Australia. This report states "there are good reasons for intervening early in life. Families with babies and preschoolers that are3 at risk of poverty, relationship breakdown and abusive or inept parenting styles are more likely to produce teenagers at risk of criminality and substance abuse….successful intervention at an early age is a cost effective preventive strategy. This could be seen as a generic form of early intervention". (p10) Children and disadvantage: the South Australian picture: directions for action. This report recommends "an investment in early emotional and educational development in the first years of life and throughout childhood…and strategies that are inclusive of the child's family, school and peer networks, neighbourhood, community and culture, and target not only the child's behaviour, but also social and problem solving skills, and social and environmental conditions". Intervening early: opportunities to support young South Australian children and their families. This draft report of the Child Health Council/Child Health Advisory Committee of the Department of Human Services highlights the importance of intervening in the early years in response to research that has “generated a deeper appreciation of: - the importance of early life experiences… - the central role of early relationships… - the capabilities, complex emotions and essential social skills that develop through the earliest years of life; - and the opportunity to increase the odds of favourable developmental outcomes through timely effective interventions and supportive community environments. While the substance of this report is devoted to early intervention rather than parenting per se, many of the examples of early intervention recommended are targeted to parents eg home visiting programs, community based group education programs for parents and early childhood development programs. The report also recommends a universal combined with targeted approach. 12 EVALUATED PARENTING PROGRAMS Introduction This section looks at programs which have been evaluated and show positive outcomes for children. Except incidentally it does not cover outcomes for parents, although in many programs these have been positive even where they are not the major program goals. "High risk intervention, (preventive or therapeutic) is a clinical rather than an epidemiological task (Fonagy, 1998). In looking at what works it is important to take into account the way the programs are delivered. Similarly designed programs can have very different outcomes depending on implementation and the risk factors being addressed. Evaluation of a home visiting program for LBW infants where home visits over two years were accompanied by parent group meetings and educational programs in specially designed preschools showed no significant health or behaviour effects in the long term (Bradley et al 1994). Other programs have shown sustained beneficial effects (Kowalenko, 2000; Murray and Cooper, 1997) both on prevention of pre-term deliveries, less child abuse, cognitive and social outcomes for children. This highlights the importance of program design and staff training - of how interventions are implemented as well as what is done. Criteria for effective prevention and early intervention parenting programs include: An empirically based and tested model of the aetiology of the problem which identifies risk and protective factors A reliable and valid method of identifying children at risk Effective methods for reducing risk and enhancing protective factors The opportunity to apply these methods in practice (Kosky et al, 200, p11) These criteria have been met by research into many issues including anxiety, resilience, delinquency, and antisocial behaviour. A number of well designed delinquency prevention programs based on knowledge of risk factors have been shown to be effective, the most important parent-related programs being: Intensive home visiting Parenting skills education Pre-school intellectual enrichment programs (Farrington, 1996) 13 Interventions that address risk and protective factors The following interventions have been identified as successful in addressing some risk general and some particular factors. Home Visiting Programs that enhance attachment between parent and child in the first year of life have been shown to have sustained positive outcomes for social and cognitive development. Early positive attachment is an important component of resilience. Fonagy (1998) notes that mothers who have positive ante natal attachment scores have children who have more secure attachments into childhood. Evidence shows that early intervention for parents of infants with difficult temperament can be effective in modifying attachment over time. Well designed and delivered early home visiting programs are one of the interventions which have been shown to be cost effective over time. The effective programs are intensive in the early months, linked to other resources where appropriate, delivered by professionals, sustained over the first two years, have strategies clearly linked to risk factors and expected outcomes, and have well trained and mentored staff. (Behrman, 1999). One such program in Australia (Armstrong, 2000) is showing promise in early evaluations. It is also important to note that many home visiting programs have important effects on the parents as well as for the children, eg in spacing out further children, better entry to education and the work force and less dependence on welfare payments (Kitzman, 2000). Home visiting programs by volunteers have not been shown to have the same sustained positive outcomes but may be a helpful part of a raft of interventions in providing social support for parents and helping to build community. Parent Education/training In Australia, currently most programs for parents are run by women (Allen, 1994) and most are run for middle class groups although the latter is changing with more being run across class and culture. A significant number are being run for parents from Southern Europe. There is general acceptance that many parent education programs are effective in improving parenting skills, parent child relations and children's behaviour however there are comparatively few rigorous evaluations. Some which have been evaluated include the following. Follow up studies for programs for parents of children with ADHD show a sustained improvement in oppositional behaviour but effects on ADHD symptoms are equivocal (Kosky, 2000) 14 A recent review of group based parent education programs for children with behaviour problems (Barlow, 2000) found considerable heterogeneity in the programs studied. Most of the programs did not meet the evaluation criteria to be included, however of those that did the results showed that "structured parent education programs can be effective in producing positive change in both parental perceptions and objective measures of children's behaviour and that these changes are maintained over time." Antenatal Antenatal classes focused on psychological issues regarding childbirth, support and parenting have shown positive effects on emotional adjustment, mood and parenting satisfaction. (Kowalenko, 2000). Home visits during pregnancy have been shown to lead to teenage mothers having heavier babies, less smoking in mothers, and fewer pre-term deliveries; thus directly impacting on risk factors. (Farrington, 1994) Postnatal parenting groups Post natal parenting groups using a mental health model have shown positive effects on parental responsiveness to the infants and parenting skills. (Kowalenko, 2000) Preschool/early years Parent education programs for parents whose children are difficult to manage or aggressive have been shown to produce ongoing positive outcomes. While, for many children these behaviours decrease with age, there is a significant proportion who go on to adolescent antisocial behaviour making this an important area for intervention. (Farrington, 1994; Wilson and Loury, 1987). School age Barlow & Stewart-Brown (1998) in a review of school age programs for children with behaviour problems (not ADHD) including temper tantrums, aggression and non compliance found the "structured parent education programs can be effective in producing positive change in both parental perceptions and objective measures of children's behaviour and these changes are maintained over time." Social capital building The evidence for volunteer programs that provide parents with support and/or home help shows that such programs are valued by parents but do not have an impact on outcomes for children or reduce the risks of abuse (Carr, 2000). However they may have an adjunctive role eg in providing supportive environments for families, and more systematic evaluation is needed to support this. The Australian National Mental Health Strategy sees the building of supportive environments as a goal of early intervention. Parents of adolescents More research is needed into whether there are effective treatments for adolescents. Group programs for adolescents with conduct problems outside the family system can make them worse (Carr, 2000) because of the peer group learning effect. Generally 15 programs for parents of adolescents with conduct problems do not seem to be effective in terms of behaviour change for the adolescents and the evidence for "early determinants of adolescent behaviour" is strong (Toumbourou, 1997). However part of the reason for the lack of evidence for programs for parents of adolescents may be due to the lack of proper evaluation. There are some well evaluated programs for parents of adolescents which have been shown to have positive effects (eg Litrownik et al, 2000, Henricson et al., 2000). The program for parents (PfP) project is an Australian National Project funded by the Department of Health and Aged care and has been piloted across Australian with culturally diverse communities including NESB and Aboriginal families, and independently evaluated. Parents and young people surveyed after the program reported positive effects on parent well being and confidence, parentadolescent conflict and adolescent depression, antisocial behaviour and self harming behaviours. There are a number of reasons why there is potential for piloting and exploring models for effective intervention with parents of young people. Adolescence is a time of transition where parents and young people are coping with changed expectations and demands. Resiliency literature support the relevance of ongoing family support within the context of appropriate differentiation for positive outcomes for young people. Parents have a strong psychological influence on through the adolescent years. With changing community structures and later moves to independent living there are both pressures on and opportunities for parents of young people to have a positive influence. Adolescent risk taking behaviours eg drug use, bring about family crises and hence openness to change. The number of programs offered to parents of older children and adolescents is minimal compared with those offered for the early years, and yet there are many families with major parenting and relationship difficulties in these years. Programs for parents which keep help to family networks intact over the transition to adolescence have the potential to be effective as research shows that continued family attachment is a protective factor in resilience (Werner, 1994)however there is little research into programs that are addressed to parents of children in early adolescence. Early Childhood and Parenting Centres There are not many evidence based evaluations of these but the model has been supported by both clinical and political leaders in North America, Europe and Australia. Many of these centres are currently being trialed and offer the opportunity to provide welcoming local bases for parents to get a raft of services including home visiting, child care, continuing education for parents, early literacy and parenting skills learning. They also offer a structure for interagency collaboration and for piloting and reviewing new programs and training professionals. The Chicago Child Parent Centres (Reynolds, 2001) a large scale program developed on this model are showing promising results. The model 16 provides educational and family support services to children aged 3 to 9 years. They are located in the poorest neighbourhoods in Chicago. It includes special learning activities for children, and parenting and personal resources for parents including home visits, resource mobilisation, educational workshops, health and nutrition services, health screening, speech therapy, nursing and meal services. At age 20 years there were less school dropouts than the control group, and significantly lower juvenile arrests. Universal Programs Universal programs are few and usually limited to the provision of information, parent helplines and child health checks and preparatory development information. Reviews of the efficacy of these are limited. They are generally are part of a raft of programs that parents seek. Social marketing/health promotion. While it is harder to find evidence based assessment of the impact of social marketing on developmental outcomes for children there is evidence of successful public education campaigns regarding health, eg immunisation media campaigns. The media influences social attitudes and can play a major role in community education (Mental Health Strategy).Brazelton and Greenspan (2000)highlight the importance of public education in developmental literacy. The US Surgeon General's conference Report on Children's Mental Health (Olin, ed, 2001) recommends community awareness strategies regarding the needs of children. Universal Information Provision Evidence that many parents turn to the Internet for information about parenting and children's health is growing, however evaluations of the efficacy of this as a method of support for parents is not available at this time. In general information provision through the world wide web as part of a universal approach to supporting parents and families should have benefits in being available at all times and empowering parents in their parenting role and interaction with professionals. Specific issue - conduct disorder Early parenting interventions for conduct disorder with the most supporting evidence (Davis, 2000, Wilson & Loury, 1987, Sanders, 2000) are those which assist parents/carers in providing "effective, non coercive discipline, support for children's prosocial behaviour and achievements and effective family communication and problem solving styles". Davis notes (p72) that there is less evidence of success with teenagers with conduct disorders and relatively little success "without the use of family interventions". Sanders (2000) cites evidence "for the efficacy of parent training" with early adolescents with "oppositional behaviour problems". Specific issue - Aboriginal communities Reduced parenting skills are amongst the effects of removing Aboriginal and Torres Strait Islander children from their families, often depriving children of the experience of exposure to family life and parenting. There are no clearly evaluated parenting programs 17 for Aboriginal and Torres Strait Islander parents, however the Resourceful Adolescent Program for Parents (RAP-P) which is being developed in North Queensland will be evaluated.(Clarke, 1998). Indigenous children represent 4% of all children in Australia and the number is increasing (Trewin, 1999). Elements of programs that work Effective early intervention programs should be designed to divert pathways and produce long-term effects (Pathways p157) and should be "guided by an understanding of the risk and protective factors of particular groups". The Pathways to Prevention report also stresses that they should be "rigorously evaluated" and demonstrate that prevention does work. The following are common elements of effective programs. General factors Clear goals and strategies are essential to effective programs, with selection of appropriate models related to the target group. Programs that start early in a child's life have the highest chance of success. A relationship based approach is an essential component of successful prevention. Programs which enhance parent-child communication, strengthen parent sensitivity to the child's cues and improve parent-child relationships have shown significant improvement on long term follow-up in children's and young people's conduct. Successful programs are community based. Programs should attend to both parents' needs and parenting. Some local investment in planning and resources and selection of evaluation criteria is important. There needs to be provision of materials for parents who cannot afford them. Personal qualities of the leader/clinician are consistently shown as important responsiveness, participation, ability to relate to the knowledge base of parents ie the process of care is important to maintain families; and personal qualities are important as well as qualifications. Strategies which allow for working both with parents and children eg some program components addressed directly to the children appear to have a better chance of bringing about positive outcomes for children.(Behrman, 1999) Home visiting No single service strategy serves the needs of all families and a range of services is needed eg including family support, parent education and enriched environments (provided either by in-home programs or individualised child care) for infants. Programs that go for at least two years have the most chance of success. Focus should be on the meaning of the infants' behaviour for the caregiver, and on the listening to and responding to infants' communication cues. Parent education Focus on age appropriate social skills training. Trained leaders for parenting groups. 18 Programs which provide training to both children and parents, but not both together have been shown to be effective.. (Webster- Stratton, 1997) Cost effectiveness data "In God we trust, from everybody else we demand outcome data" (Fonagy, 1998). Very few programs have been evaluated for cost effectiveness over the long term and there is a need for more evaluations such as the following. The Perry preschool program and the Elmira program have both been shown to have significant cost savings over the years, (Karoly et al, 1998). There is an added benefit to the community of more of the children becoming wage earners and contributing to the economy. Reprinted with the permission of The David and Lucile Packard Foundation. The evaluation of The Perry preschool program showed that for every dollar invested there had been a long term saving in real terms of $7 in welfare benefits, crime and remedial education. [If $12 million were spent on a program in 2,001-2, providing a similar service for about 2,700 children, there would be a savings across government of $84 million dollars. If the program was continued each year $84 million would be saved in the future for each annual cohort of children (over 5 cohorts of children = $420 million) – a result of very substantial savings (net $340 million per 5 year cohort) in criminal justice, mental health, welfare benefits and most important the health and well being of the children involved.] Two and a half years of pre and postnatal home visiting by child health nurses of poor single mothers showed savings that were five times higher than program costs [for mothers without risk factors, benefits were less than program costs]. (Karoly et al, 1998). 19 All amounts are in 1996 US dollars and are the net present value of amounts over time where future values are discounted to the birth of the participating child, using a 4 percent annual real discount rate. Source: Lynn a. Karoly et al., Investing in our children: what we know and don't know about the costs and benefits of early childhood interventions, Rand/Mr898, Santa Monica, CA: Rand, 1998. Copyright RAND 1998. Reprinted by permission "While the health system might arguably be the best 'home' for nurse home visiting the savings are across government: welfare, criminal justice, tax increase from future earned income, thus a whole of government perspective is needed to justify costs" (Ibid). While it is important to be aware that no programs are effective for all children, it is clear that for some programs there is significant overall cost saving to the community as well as benefits to the families involved. Note: Only portions of such programs can be evaluated for cost effectiveness. Other benefits such as personal benefits to the families, higher IQ, better parent-child relations and potential for better parenting in the next generation could also be considered. 20 RECOMMENDATIONS FROM THE LITERATURE 1. Most programs are aimed at treatment and more attention should be given to prevention, although accessible early treatment options are important. 2. The David and Lucile Packard Foundation's review of home visiting programs (Behrman, 1999) recommends that "existing home visiting programs should focus on efforts to enhance implementation and the quality of their services and that home visiting should not be relied on as the sole service strategy for families with young children". Home visiting is not enough on its own but should be used with a raft of programs tailored to need eg groups, counselling, early literacy etc. The most effective interventions generally seem to be those which offer combinations of methods across different contexts. 3. Programs such as professional home visiting in the first two years which are effective for "at risk" families are not cost effective for the general population. In order to make most effective use of resources a targeted approach to intensive home visiting should be taken. 4. That a range of programs be developed - responsive within a universal framework. Targeted within universal could be one way of reducing stigmatisation [there are few universal parenting programs, most are targeted - universal programs are usually early health checks and developmental information]. Consideration must be given to the balance and rationale for universal compared with targeted.(Kosky, 2000,p9), taking account of the potential impact of labeling (Wilson, 1987). 5. Even with programs which have been shown to be effective there is some attrition and more research should be done into which families do not stay with programs and why. In some of the most successful programs (Olds et al, 1986), about 20% of parents refused to take part and many of these were those in greatest need. It is obviously important to present programs in a way that is as inclusive as possible and to evaluate and document where this is successful. 6. Implementation is fundamental especially training and support for staff (O'Hanlon, 2000 ). There is "increasing recognition that the success of interventions of this nature (home visiting) depends on the capacity of the person providing the service to develop a trusting and respectful relationship with the mother (parent)." (Stewart-Brown, 2000 ). Some of the skills identified as needed for all home visitors by Gross et al (2000) (p31) include: observing: attention to cues, especially non verbal and environmental listening: attending to and correctly interpreting messages questioning: to obtain information, verify facts and feelings, facilitate expression of problems and help focus probing: seeking additional information about a problem, behavior or feelings prompting: facilitating particular responses by encouragement supporting: encouraging, giving feedback and praise. 21 7. Being able to standardise quality of programs across service delivery centres is important to success. 8. Programs should be sustainable and not end abruptly but with planned transitions to appropriate community resources. 9. Although qualifications are important the personal qualities and life experience of service providers should also be considered. (Olds, 1988) 10. Zero to Three, the US early development specialist organisation, recommends training of multidisciplinary teams of development specialists including nurses, teachers and social workers to work with parents of infants and young children. (Kaplan-Sanoff, 2000). They also support the concept of infant mental health specialists , multidisciplinary teams with special training in early development and relationships (Weatherston, 2000) 11. More research is needed to support which are the best program designs, which can be effectively generalised, how to best target programs and whether the pilot/selected programs will be effective on a large scale (Karoly, 1998). 12. Davis (2000, p47) highlights the fact that programs should be built on well articulated and evidence based theory of risk, resilience and outcome; the need for program procedures and methods to be stated as explicitly as possible so the programs can be repeated by others; and the need for programs to be monitored and evaluated. She also recommends "standardised but not restrictive service activities, delivery and principles the modification and expansion of the role of staff and service providers from traditional roles the existence of planned immediacy between training, research, evaluation and service a direct service focus within a conceptual understanding of a continuum of care…" 13. Brazelton & Greenspan (2000) recommend the consideration of partnerships with big business to set up child parent centres offering preventive health care, child care and parent support on site which employ large numbers of people. 14. Sanders (2000) notes an "increasing emphasis on a public health perspective to child mental health problems, which stresses the importance of developing cost effective prevention initiatives targeting entire populations…"; the importance of the concept of levels of intervention according to need and a "developmental perspective which seeks to identify key transition points in the family life cycle which may constitute periods of greater receptivity to intervention". 15. Because the "at risk" approach, while effective, also includes some children who would cope without intervention the assessment of families for targeted services is an important component of intervention. 16. Because of the evidence that conduct disorder and delinquency is a significant cost to the community, can often be predicted at a young age and is resistant to treatment in adolescence and older (Fonagy, 1998), and that early intervention can be successful 22 programs to assist parents in managing children's early aggression and behaviour problems should be a priority preventive intervention. 17. While there are enough properly run evaluations of parenting interventions to support the efficacy and value of the some programs, many programs which could be valuable have not been adequately evaluated. The need to evaluate in order to find out what works and for whom cannot be overstressed and should be part of any new parenting programs. Research and evaluation of programs is fundamental especially aspects on which there is not yet enough information such as the optimal intensity and duration of programs, which families benefit and which aspects of which models are most effective. In the best programs, some parents drop out, some families do not seem to benefit and research is needed into these areas. Programs need to be evaluated against clear goals. The Australian National Mental Health Strategy (2000) outlines outcome and process indicators for interventions for mental health and the Pathways to Prevention report (1998) indicates process goals for interventions for crime prevention together with evaluation strategies. Note: Guidelines for evaluating parenting programs for context, content, process and product are outlined in a recent article in Family Relations (Matthews, 2001) 23 CONCLUSION It is clear from all the evidence that intervening in the early years where there are risks of child abuse, antisocial behaviour and mental illness is the most cost effective and successful way to prevent major costs to both the individual and the community. Risk factors are readily identifiable (Werner, 1994, Linke, 1998) as are protective factors. [Note: intervening in the early years almost always involves parenting so that in many ways early intervention and support/education for parents are synonymous.] Parent education programs in the early and primary school years, multifaceted programs and professional home visiting programs have all clearly been shown to provide positive and cost effective outcomes. Other measures such as social capital building through volunteer programs and programs for parents of adolescents have not such clear evidence of efficacy however this may be because of lack of reliable evaluations and research into these initiatives. The varying success of programs and interventions highlights the importance of careful planning, goal setting and program design. While it is clear from the evidence that children with risk factors such as poverty can be effectively assisted, the studies involved have usually been pilot programs or programs run in a particular area. I was able to find no studies where a comprehensive statewide planned approach to parenting, based on the evidence has been carried out and evaluated. Obviously if this could be done it would be a major step forward in improving children's health and development and in providing for safe and healthy futures for communities. Timing is important in terms of intervention eg: Infancy for protective interventions Preschool and early childhood for preventive programs for anti social behaviour Transition points such as divorce, stepfamily formation, toddlerhood, adolescence, immigration, children with a parent in prison. (Rutter, 1985) While there are many model projects being run in different parts of Australia and for different periods of time (Davis, 1998), lack of proper evaluation and lack of predictability of funding (Ibid) is a major concern. The large majority of programs are selective, very few universal. In choosing interventions consideration needs to be given to the prevalence and seriousness of the problem, the efficacy of interventions and sustainability. The research presented in this review supports the importance of programs for parents which address protective factors for children in terms of outcomes for children, parents and the community. These should be delivered within the context of the obligation of government to provide appropriate information and support for all parents. Community 24 efforts to eliminate risk factors should not be forgotten. Eliminating the risk, where possible, should be the first step. RESEARCH UPDATE 2004 The following section comprises an update from selected research papers not available when the original What Works was written (2001). In general they confirm the content of the original report but there is some added value from the new papers. While the following interventions have been evaluated to show effectiveness there are broader public health initiatives which have also been shown to be effective which are not considered here. These include improved nutrition, improved housing, improved access to education, strengthening community networks and community wide education to reduce substance abuse (WHO, 2004). Child Parent Centres Further evidence has been presented on the effectiveness of the Chicago Child Parent Centres (Reynolds, 2004). Reynolds notes that the long term effects of the early childhood interventions were traceable to school support, cognitive/educational experiences and family support experiences. School commitment also contributed to lower delinquency. Each CPC has a staffed resource room coordinating activities, an outreach program and parent involvement in early education activities (from age 3). Parenting Group Programs. Group programs for parents can be effective and very suitable for enhancing parenting skills and sustainable child outcomes even with high risk families.(Puckering, 2004). Home visiting - Evidence Again the importance of rigorous evidence is highlighted before initiating costly programs which may not be effective, Chaffin (2004). Chaffin notes that while the prevention literature is full of studies supporting program effectiveness very few meet criteria for evidence-based interventions. “Non-randomized designs are particularly vulnerable to overestimating the size of intervention effects”. Many studies show only immediate rather than sustainable effects. The notable exception to these criticisms is the Elmira nurse home visiting model (Olds et al,. 1998). The Elmira study has been taken as evidence that home visiting in general is a proven prevention method (Chaffin, 2004) but Olds’ further research (Olds et al., 2002, 2003) shows that paraprofessional home visiting programs do not provide the same positive outcomes for children. Chaffin further recommends that where evaluated programs are replicated or generalised they are rigorously evaluated on an ongoing basis. Parents who do not receive at least a minimum number of visits are less likely to have significant improvement through home visiting programs. Retention is more likely if home visitor is able to build a strong and respectful relationship with the client. (Daro, 2003) 25 In an evaluation of Hawaii’s Early Start Program, Duggan (2004) found that program impact was compromised not only deficiencies in implementation but also drift in the model itself in taking the model to scale, while turnover in administrators and program directors led to a gradual shift in program perspective – moving from a risk reduction focus to a strengths based model. This compromised staff ability to work with families to identify and address risks. Duggan’s study suggests that ambiguity in the program model and challenges to implementation reduce the probability of positive outcomes. In the Early Start program (Daro, 2003) programs which used a combination of professionals and paraprofessionals and provided them with regular supervision had the greatest success. She also found that the initial relationship made with the home visitor is crucial to enrolling in and maintaining the home visiting program. A review of the impact of fathers involvement in Hawaii’s Health Start Program (Duggan, 2004) found no impact on fathers and varying impact on families. In families with non violent fathers the greater involvement of fathers seemed beneficial because it was accompanied by greater maternal satisfaction. Promoting of more involvement of violent fathers in couples who had previously not seen each other often was not positive because the greater involvement was not accompanied by a decrease in violence. More research is needed in this area. The study noted that home visitors also felt less competent to work with fathers. Home visiting programs for teenage mothers were investigated by Julie Quinliven (2003). She highlights the difference between 18-19 year old mothers and under 18 year old mothers who have the greatest risks of child abuse, neglect and subsequent pregnancies. A trial program for teenage mothers, not including under 18s and by paraprofessionals showed now significant outcomes for the intervention group. (Morell et al quoted in Quinliven, 2003). Quinliven’s own study shows that a nurse home visiting program for under 18 year old teenage mothers can result in reduction of adverse neonatal outcomes at least in the short term. Repeat teenage pregnancy within a year was reduced from 13% to 3%. This is supported by UK studies quoted in her paper. Implications for home visiting program design and implementation. Several papers made the point that home visiting per se is not the intervention but the context for a specific intervention. The context does not specify the intervention nor the outcome. (McNaughton, 2004). The home visit provides a facilitating context for the intervention but it is the intervention and the relationship with the home visitor which leads to the outcome. Risk factors such as family violence, substance abuse and parental depression present major challenges to home visiting programs. Often these are the areas that home visitors feel least equipped to address. This finding is consistent with home visitors’ self assessment. Furthermore home visitors are less likely to recognise the risk factors that they are less equipped to manage. (Chaffin, 2004, Duggan, 2004). Chaffin also notes that domestic violence may be a problem that home visitors, even trained nurses, find difficult to manage. 26 Adding a cognitive therapy component showed dramatic effect in the Healthy Start home visiting program, suggesting that this is a worthwhile component of program content. (Bugental et al in Chaffin, 2004). Risk relevant intervention targets are important. Interventions should address protective factors While empowerment philosophy brings valuable elements to programs such as development of collaborative partnerships and positive motivation, prevention interventions should be guided by known risk and protective factors. (Chaffin, 2004, Duggan, 2004). Effective home visiting programs have a well-defined and documented program protocol and curriculum that allows flexibility to individualize activities to respond to particular client needs. Programs need to have a strong theoretical foundation, as well as be perceived as relevant by the community they serve. (Thompson et al, 2001, Duggan, 2004). Developmental/pedagogical interventions are likely to have more impact on children’s social competence and adaptation while interactional methods have more effect on maternal responsiveness. Empowerment strategies are more effective in engaging “at-risk” families. Interventions that work with both parent and child have the best outcomes. (Barnes, 2003). Although it is important to have only one primary home visitor, establishing multi-disciplinary teas can bring the full resources of a program to families through case consultation and supervision. Thompson maintains that training and supervision are critical for quality in home visiting services. (Thompson et al, 2001) Home visiting programs cannot operate in isolation and need to be integrated with other health and community programs. These should include some centre based programs where children spend time in direct activities related to developmental outcomes. (Thompson et al, 2001) Daro (2003) found that for the programs evaluated better outcomes were obtained by moderate levels of supervision (reflective consultation) for direct service staff than higher (more than once a fortnight) or lower (less than once a month) levels. Duggan (2004) notes that where more than one home visitor works with a family eg male with fathers or cultural consultant there needs to be a clear overall plan and policies and procedures for sharing information, monitoring progress, and changing the plan as families reach individual or family goals. The World Health Organisation (2004) summarises the main features of effective programs as follows: There is evidence that the program is effective Consumers/funders/decision makers were involved in its development The host organisation provides real or in-kind support from the outset The potential to generate additional funds is high The host organisation is mature (stable, resourceful) The program and host organisation have compatible missions The program is not a separate unit but rather its policies, procedures and responsibilities are integrated into the organisation 27 Someone in authority, other than the program director, is a champion of the program at high levels. The program has few “rival providers” who would benefit from the program discontinuing The host organisation has a history of innovation The value and mission of the program fit in well with the broader community The program has community champions who would decry its discontinuing. Other organisations are copying the innovations of the program. “In our formal evaluation of Washington’s effort at implementing research-proven programs for juvenile offenders, one important lesson was learned. The programs work and they produce more benefits than costs – but only when implemented rigorously with close attention to quality control and adherence to the original design of the program. Without quality control, the programs do not work”. (Washington State Institute for Public Policy, 2004). 28 REFERENCES 1. Acheson, D et al (1998) Independent inquiry into inequalities in health report http://www.official-documents.co.uk/document/doh/ih/synopsis.htm 2. 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Results 73% found home visits v. useful 40% found written material v. useful Adelaide Children's Hospital Ongoing Yes TV health promotion programs for parents in waiting room Experimental group had sustained increase in knowledge (lessened over time) Parenting adolescents (Reisch) 6 weeks, weekly Yes Communication skills training Children and young teens, post divorce (Carr) 6-24 sessions over 6-16 weeks Yes Group prog. Including info., social skills, stress management Parents as teachers Ante natal or birth - 3 yrs <10 home visits 2 yr program for 4-5 yr olds Yes Parent ed. child dev. Preparation for school. Decrease in antisocial behaviour with fathers and young people, not mothers. Higher satisfaction with family system Post tests after 1 yr - decrease in behaviour probs, school probs, increased self esteem, better relationships Small effect. 1month dev. For 10 visits. Better with case management services as well Yes Home visits and groups for parents with limited education HIPPY (Home instruction for preschool youngsters Comment Mostly used in deprived areas, if not universal parents can feel singled out. ?Options for other waiting rooms eg health clinics. ?impact of knowledge on practice and skill Sample not extreme eg not in therapy or violent conflict Prog for non custodial fathers could add value Inconclusive 34 Name Healthy Families America Time Control Type of program Programs vary Results Improved parent child interaction. Mixed success with abuse, health status. Queensland Home visiting program Weekly for 6wks, monthly to 3 months, up to 6 months post partum Yes Less abuse, less smoking, more parental confidence, better attachment Elmira Program (NHVP) From 29 wks pregnancy to 2nd birthday 7 home visits pre birth, 26 home visits 2nd birthday Yes Healthy Start 2 years - Child health nurse home visiting program for English speaking families with a new baby. Relationship building, anticipatory guidance, supported by SW and Paediatrician First parents with 2 sociodemographic risk factors, <12 yrs education eg unmarried, unemployed Child health nurse home visits with detailed guidelines, goal setting for the woman as well as parenting intervention Statewide home visiting program Infant Health Development Prog < 3 years Yes Home visits 1st year Child dev centre years 1-3 + parenting groups Head Start 3-5 yrs Yes 1/2 day academic program for one preschool year for children in poverty. Health and nutrition services. Adult ed. for parents and family support services. Positive effects on behaviour and IQ at age 3. Decrease over time. (lack of effect on VLBW 1500gm and IQ<70) Positive effects on school readiness, weak evidence for long term effectiveness. Comments Recommend State or Nationwide context in which support for all new parents is the norm. Benefits the neediest families, little benefti for broader popn. reduced child abuse, fewer arrests and convictions at 15, smoked and drank less, fewer sex partners, less child abuse. Nurses the key. Use for neediest families. Important to stick to the model for research. Improved parenting, less abuse, more positive discipline Needs comparison groups. Implementation should be monitored. 35 Name Abecedarian Project Perry Preschool Project Time 0-5 yrs Year round all day educational childcare/presc hool prgram 2 yr intervention x 2 ½ hrs per day 5 days a week, 7 months of yr Control Yes Yes Chicago Child Parent Centres Yale Child Welfare Project Pregnancy 2 ½ yrs yes School bullying program, Norway Primary school - 2 yr program No Syracuse Family Development Research Program 5 yrs, pregnancy on yes Type of Program Program emphasises the development of cognitive, language and adaptive behaviour skills. + nutritional supplements and social services as needed Includes weekly home visits by teachers, small classes, specially trained teachers, support and supervision for staff Results Higher academic achievement. Reduced need for special ed, less dropout, less juvenile and adult crime. Focuses on child's total environment and for some groups continues for 6 years. Neighbourhood centres providing health, education, parent involvement. Gains in school achievement depending on number of years in program Home visits focused on current concerns, assistance in achieving long term goals and liaison to support services. Paediatric care and anticipatory guidance. High quality day care. Mothers achieved higher education, smaller families, almost all became economically independent, male children better adjusted (teacher rating), project children better achievement, less absenteeism, better behaviour. After 2 yrs, 50% less bullying, also less antisocial behaviour, better attitude to school 80% reduction in crime Less serious crime better school grades Higher self esteem and better parent-child relationships All children in schools grades 1-9, child training, parent info, staff training Home visits from pregnancy on, weekly. Assist with parent child interactions and referral. High quality individualised child care for 5 year.. Comments Longer involvement associated with better outcomes. By age 27 better jobs, fewer arrests, lower likely hood of receiving public assistance Because there are no overall specific standards between centres, some show substantial achievements, some show none. Progam also had a positive effect on siblings. Note: this was a very small sample so generalisation would be difficult. 36 Name FAST track Seattle Social development program Montreal Prevention Project Time Grades 1-6, most intensive at transitions eg Starting School` Grades 1-7 primary school Control Yes 2 yrs, early primary age Yes Yes Type of program Learning programs including tutoring and anger control and social skills training at school. Bi-weekly home visits, parent training. Parent ed groups, proactive classroom management, social skills training, home visits. Multilevel intervention Parent ed. Child training. Focused on disruptive boys in early primary school. Results Early evaluations show improved behaviour, parenting skills, less aggression. Comments Less alcohol and delinquency, better family attachment and communication, more commitment to school Lower delinquency and anti social behaviour at age 12 37