DRAFT
SOUTHEND ON SEA
CHILDREN AND YOUNG PERSONS STRATEGIC PARTNERSHIP
Strategy for Children & Young People with Disabilities & their Families
September 2004
CHILDREN AND YOUNG PERSONS STRATEGIC PARTNERSHIP
Strategy for Children & Young People with Disabilities & their Families
CONTENTS
Acknowledgements
3
Introduction
4
Legislative Framework
5
Statement of Entitlement
5
Provision Audit
6
Provision Strengths
9
Areas for development
10
Our vision - strategic aims and performance indicators
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SOUTHEND-ON-SEA CYPSP-STRATEGY FOR CWD
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ACKNOWLEDGEMENTS
The following colleagues served as members of the working group that have formulated this strategy:
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Yvonne Campen, Head of Children’s Services, Southend-on-Sea Primary Care Trust
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Chris Cole, Director of Rehab, Southend Hospital
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Lynda Ingham, SEN Services Manager, Department for Education and Lifelong Learning, Southend-on -Sea Borough Council
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Christine Kelly, General Manager, Paediatric Services, Southend Hospital
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Neale Laurie, Team Manager, Children with Disabilities, Department of Social Care, Southend-on-Sea Borough Council
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John Pugh, Paediatric Community Nursing Team Manager, c/o Neptune Unit, Southend Hospital
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Jan Thurston, Team Leader Health Visiting & Paediatric Liaison Health Visitor, Southend-on-Sea Primary Care Trust
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INTRODUCTION
The strategic planning of children’s’ services in Southend takes place in the Children and Young Persons Strategic Partnership (CYPSP), a multi agency planning
forum. Services for children and young people with disabilities and their families have been identified by CYPSP as one of four priorities for service development
locally over the next three years. This strategy sets out Southend’s Children and Young Persons Strategic Partnership’s approach to supporting children and young
people with disabilities and their families, in line with both national requirements and local policy.
For the purpose of this strategy the following is a working definition of ‘disability’:
“ A person has a disability if he/she has a physical or mental impairment which has a substantial and long term adverse effect on his/her ability to carry out normal
day to day activities.” (taken from Section 1(1), Disability Discrimination Act 1995).
The needs of children and young people with a disability are many. Traditionally services are accessible in many varieties of locations and delivered by many
different agencies. The struggle that families have to access these services is well recognised by all and it is with this in mind that this strategy has been designed.
In Southend all agencies working for children and young people with disabilities and their families have committed to work together to provide a integrated, quality
service that is tailored to the individual’s needs.
This strategy is an evolving and dynamic document, which will change over time in response to progress and newly identified needs.
Our vision for children and young people and their families in Southend is that:
“ All children and young people with a disability in Southend have the opportunity to grow and develop as individuals in a safe, secure environment, enabling
them to reach their full potential and optimal independence. Services will help families to meet their needs and participate in every day life.
Each child/young person will be enabled to take their place amongst their peers and valued for their contribution to society”.
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LEGISLATIVE FRAMEWORK
Over the years there have been several pieces of legislation that provide the framework for this strategy.
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The Chronically Sick and Disabled Persons Act 1970
The Disabled Person’s Act 1986
Children’s Act 1989
Disabled Children Act 2000
SEN and Disability Act 2001
Children (Leaving Care) Act 2001
In addition the following publication has been used to inform the strategy:
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Let me be me – A handbook for managers and staff working with disabled children and their families (April 2003) Audit Commission
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Together from the Start – Practical guidance for professionals working with disabled children (birth to third birthday) and their families (May 2003) DfES
and DH
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Services for Disabled Children – A review of services for disabled children and their families (September 2003) Audit Commission
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Green Paper Every Child Matters
STATEMENT OF ENTITLEMENT
All children and young people with disabilities and their families in Southend are entitled to:
1. Services which acknowledge Southend’s changing and culturally diverse community, driven by a thorough understanding of what local people need and want.
2. Services which are informed by the wishes of the child/young person and those of parents/carers.
3. Services that are explained in clear jargon free language.
4. Equality of opportunity to access and participate in every day life activities.
5. To have their needs identified and assessed through a single process
6. A quality education which enables them to make as much progress in their learning as possible.
7. Wherever appropriate, the experience of inclusion, to enable children to learn from their peers whilst recognising and celebrating difference.
PROVISION AUDIT
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In order to identify the directions for future planning an audit of provision has been undertaken. This is shown below separated into the three key statutory agencies
and whether the services are universal, targeted or specialist.
Statutory Agency
Universal Services
Targeted Services
Specialist Services
Primary Care Trust
GP
Paediatric Liaison Health Visitor
Dentistry
Health Visiting
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0-5yrs
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Early identification and mobilisation of targeted
resources
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Primary preventative interventions, parenting
attachment advice and guidance on health issues
Close links with CWD team through Children’s
Centre at Southend General Hospital
Early Support Pilot Project about to start
Health Visitor piloting 1 session a week to
improve links for families between acute and
community
Speech and Language
Physiotherapy
Occupational Therapy
Health Visitor Assistants supporting portage
scheme
Work ongoing to support role out of Good
Beginnings project
Behavioural support and assessment team to
be established 04/05 for children with
Learning disabilities. This will include a
dedicated health Worker
School Nurse based at Lancaster School and
Kingsdown
Paediatric Nursing Team (commissioned by
PCT)
Child Protection
Breaking Bad News
Toy/equipment Library
Genetic Counselling
Multi Professional Discharge meetings
Sensory stimulation
Psycho-social monitoring
Special school medical assessment and
follow up
Child Development Centre
Attention Deficit & Hyperactivity disorder
services
Neonatal Intensive Care Unit
Harbour High dependency Service
Acute High Dependency service
Short term ITU
Visiting tertiary Consultants
Specialist Equipment
Community Children’s Nursing Team
Specialist Out Patient clinics
Specialist care from Orthopaedics & Dentistry
& orthodontics
Child Protection assessment and/or treatment
Cancer shared care treatment
Specialist immunisation
Audiology
Community developmental clinics
Targeted Services
Specialist Services
School Nursing
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School entry health assessment
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School nurse attached to every school
Southend Hospital
NHS Trust
Family Planning advice and Support
Antenatal screening
Neonatal screening for:
1. hearing,
2. phenylketonuria
3. haemoglobinopathies
4. hypothyroidism
5. MCDA
Inpatient & daystay medical emergency & elective services
Inpatient & daystay surgical emergency & elective services
Play Therapy
Health Visitor Liaison
Outpatient services
Phlebotomy
GP emergency referral and rapid access clinics
Paediatric Therapy Services:
OT;
Physio;
Speech & Language
Statutory Agency
Universal Services
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Department of
Social Care
Child Protection Services
Comprehensive service to investigate allegations of
child abuse and offer support to those families
affected by abuse.
Surestart Milton Ward
Provides services to children under the
age of 5 years and their families living in
the Milton Ward.
Marigold Family Centre
Provides family assessments, Drop-in
centre, Parenting classes,
Multi Agency
Support to be
available from the
Child Development
Centre (The
Lighthouse)
Statutory Agency
Universal Services
SOUTHEND-ON-SEA CYPSP-STRATEGY FOR CWD
Targeted Services
Disabled Children’s Team
Provides post – diagnosis support
Assessment of need
Social work support and intervention
Respite provision
Assistance in the home
Holiday play schemes/activities
Sibling activities
Access to Community Occupational
Therapy Team
Support to ‘looked after’ disabled children
Benefits advice
Newsletter
Shared care
One Step Two Step
Portage
Therapeutic Massage
Speech and Language therapy classes
Parents/professionals workshops
Crisis Drop in
Sibling Support
Play Group
Child Development Team observations
Feeding advice
Continence advice
Citizens Advice
Transition Groups
Art/ Music Therapy
Specialist Services
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Education and
Lifelong Learning
Educational Psychology Service
Advice for schools and early years settings for
children on the DfES Code of Practice at Early Years
Action and School Action
Curriculum Access Support Service
Advice for schools and early years settings for
children on the DfES Code of Practice at Early Years
Action and School Action
Youth & Connexions Service
Inclusive youth work, information and support for
young people 10 - 19
Educational Psychology Service
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For primary aged children (5-11)
group work with a mental health
specialist
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Advice for schools and early years
settings for children on the DfES Code
of Practice at Early Years Action Plus
and School Action Plus
Curriculum Access Support Service
Advice for schools and early years
settings for children on the DfES Code of
Practice at Early Years Action Plus and
School Action Plus
Educational Psychology Service
Advice for children undergoing a statutory
assessment of their special educational
needs and who have a statement of
special educational needs
Curriculum Access Support Service
Advice for children undergoing a statutory
assessment of their special educational
needs and who have a statement of
special educational needs
Education Welfare Service
Support for children on the child protection
register
Youth & Connexions Service
‘Intensive’ Connexions Personal Advisers
Education Welfare Service
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Intervention by EWOs for children
failing to attend school on a regular
basis
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Support for children in Public Care
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Attendance at Child Protection Core
Group
Social Inclusion Service
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Advice relating to identified pupils
from the Behaviour Improvement
Team
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Advice from EWOS in the social
inclusion team
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Interventions by the CYPSP
Vulnerable Children Key workers
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STRENGTHS
Health
Social Care
Education
Housing
Leisure
Transport
Equipment
SOUTHEND-ON-SEA CYPSP-STRATEGY FOR CWD
Other issues
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AREAS FOR DEVELOPMENT (PLEASE NOTE NUMBERS IN BRACKETS ‘SIGNPOST’ ACTIVITIES IN ACTION PLAN)
Health
Social Care
Education
Housing
Equipment
SOUTHEND-ON-SEA CYPSP-STRATEGY FOR CWD
Leisure
Transport
Other issues
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OUR VISION: All children and young people with a disability in Southend have the opportunity to grow and develop as individuals in a safe, secure environment,
enabling them to reach their full potential and optimal independence. Services will help families to meet their needs and participate in every day life.
Each child/young person will be enabled to take their place amongst their peers and valued for their contribution to society
Strategic aims
What does this mean in practice?
Outcomes
1.
Develop a Southend Strategy for Children and Young
People with disabilities and their families/carers.
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Representatives from key agencies come together to draw upon each others
knowledge & skills to formulate this strategy
Completed strategy adopted by the Children
and Young Persons Strategic Partnership
2.
Identify gaps and deficits in service provision to inform the
future developments and commissioning of services by the
Children and Young People’s Strategic Partnership.
Develop a joint multi agency assessment and review
process for children with disabilities that leads to a single
plan for the service user and their family.
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Service mapping
Gap analysis
Gaps and deficits identified to enable
CYPSP to commission future services
Joined up working.
Common assessment.
Sharing information protocol
Early intervention meeting individuals need.
Jargon free.
Common language.
Appoint key worker for every child.
Panel - resources for child.
Pooled resources.
Improved access for equipment.
Expertise to child.
Develop a Directory of services
Joined up working.
Working together to early identify need.
Early intervention meeting individuals need.
Help-line in children's centre to improve engagement of users and carers
Appoint key worker for every child.
Panel - resources for child.
332 referrals, Appendix E advice completed within timescales
Pooled resources.
Improved access for equipment.
Early identification of need.
Early intervention meeting individuals need.
Transition.
Expertise to child.
Directory of service.
Joined up working.
Common assessment.
Sharing information.
A multi-agency pathway identified for all
children and young people with disabilities
3.
4.
All agencies to respond at the earliest opportunity where a
need is identified or service requested.
5.
Remove barriers to accessing service provision and
resources.
6.
Involve children and young people with disabilities and
their families/carers in the planning and provision of
services
SOUTHEND-ON-SEA CYPSP-STRATEGY FOR CWD
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 User feedback
 Parent groups
 Children’s party
Principals of Early Start Programmes and
Team Around the Child are embedded into
working practices
Seamless services available for all service
uses and their families
Service user involvement to inform future
developments
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