Early Intervention for Infants and Toddlers with Hearing Loss and Their Families "One of the most amazing things a child will learn in his or her lifetime is language: words and meanings and their use for communicating with others. The early years are a critical time for learning language, and getting help for a child as early as possible maximizes his or her window of opportunity to do so." John H. Hager, Assistant Secretary of the Office of Special Education and Rehabilitative Services in the U.S. Department of Education Over 100 babies born in Virginia in 2006 were reported to the Virginia Department of Health Early Hearing Detection and Intervention Program to have hearing loss. (1) The first months in a baby's life are the most important for a child's overall language development. Early identification and intervention are critical for development of language, learning and social skills. (2) All children with hearing loss regardless of severity or current level of development are eligible for supports and services in Virginia’s early intervention system. (3) The supports and services provided by the Infant & Toddler Connection of Virginia are offered whether a child has a unilateral or bilateral loss and whether or not the child has hearing aids, cochlear implants, or other assistive devices. For children with hearing loss, comprehensive evaluation and assessment will include determination of developmental levels in the following domains: cognitive, language, social-emotional, adaptive and physical, including gross and fine motor, and vision and hearing. (4) Cognition, language and communication can be delayed when a child cannot hear. (2,8) In addition, functional skills in the following areas in comparison to same age peers will be assessed: social-emotional skills, acquiring knowledge and skills, and taking action to meet needs. (4) Service coordination will include the following, as appropriate and as desired by the family: Explanation of and assurance that families understand their rights in Virginia’s early intervention system (5) Facilitation of Individualized Family Service Plan meetings (6) Emotional support including linking to other families with children who are deaf or hard of hearing, adults with hearing loss, and/or support groups (7) Informational resources including unbiased information about communication options (8) Coordination of supports and services, including collaboration with physicians, audiologists, school personnel, and other community resources. (9) Assistance with obtaining sensory devices including hearing aids and/or cochlear implants, and/or assistive listening technology including help with the process and identification of funding sources. (10) Assistance with transition options including the process for transitioning to Part B Early Childhood Education and/or community preschool programs (11) Effective intervention with qualified providers (12) will include: Providing unbiased information about communication options (8) Providing information about hearing, amplification, and current hearing technology (13) Supporting the family and child in learning and using the family’s chosen communication mode(s) (14) Teaching the family strategies to help their child develop cognitive, communication, and language and pre-literacy skills (14) Helping the family and child with the use of sensory devices (14) Providing anticipatory guidance in the areas of cognition, language, and communication development (14) July 31, 2007 Early Intervention for Infants and Toddlers with Hearing Loss and Their Families Fact Sheet References 1. Basic Information: [back to top] Virginia Statistics: http://www.vahealth.org/hearing/data.htm Beyond Newborn Hearing Screening: Meeting the Educational and Health Care Needs of Infants and Young Children with Hearing Loss in America; Report and Recommendations of the 2004 National Consensus conference on Effective Educational and Health Care Interventions for Infants and Young Children with Hearing Loss: http://www.upstate.edu/pmr/beyond_newborn.pdf (page 7) Opening Doors: technology and Communication Options for Children with Hearing Loss: http://www.ed.gov/about/offices/list/osers/products/opening_doors/index.html Center for Disease Control; Early Hearing Detection and Intervention: http://www.cdc.gov/ncbddd/ehdi/question.htm Joint Commission on Infant Hearing Principles and Guidelines for Early Intervention Detection and Intervention Programs: http://www.audiology.org/NR/rdonlyres/F2077B49-B65C-4198-98306DE9B6D820F8/0/jcihearly.pdf American Academy of Pediatrics: National Center of Medical Home Initiatives for Children with Special Needs: Newborn and Infant Hearing Screening Activities: http://www.medicalhomeinfo.org/screening/hearing.html Joint Committee on Infant Hearing, including Position Statements: http://www.jcih.org National Center for Hearing Assessment & Management (NCHAM): http://www.infanthearing.org o Fact Sheet: http://www.infanthearing.org/resources/fact.pdf American Speech-Language-Hearing Association: http://www.asha.org/NR/rdonlyres/3CDA7F660F0C-4BB2-8E57-85D7F7391401/0/HrngLossChldrn.pdf Alexander Graham Bell Association for the Deaf and Hard of Hearing: http://www.agbell.org/DesktopDefault.aspx?p=HL_Information_and_Resources Universal Newborn Hearing Screening/American Family Physician (May 2007) http://www.aafp.org/afp/20070501/1349.html National Dissemination Center for Children with Disabilities: http://www.nichcy.org/pubs/factshe/fs3txt.htm National Institute on Deafness and Other Communication Disorders: http://www.nidcd.nih.gov/health/hearing 2. The Importance of Early Intervention [back to top] Beyond Newborn Hearing Screening: Meeting the Educational and Health Care Needs of Infants and Young Children with Hearing Loss in America; Report and Recommendations of the 2004 National Consensus conference on Effective Educational and Health Care Interventions for Infants and Young Children with Hearing Loss: http://www.upstate.edu/pmr/beyond_newborn.pdf (especially page 16-30) Center for Disease Control; Early Hearing Detection and Intervention Fact Sheets: http://www.cdc.gov/ncbddd/factsheets/ehdi.pdf http://www.cdc.gov/ncbddd/ehdi/nationalgoals.htm Center for Disease Control; National Early Hearing Detection and Intervention Goals: http://www.cdc.gov/ncbddd/ehdi/goal3.htm Hands and Voices: http://www.handsandvoices.org/articles/early_intervention/early_id_journey.html Alexander Graham Bell Association for the Deaf and Hard of Hearing: Early Intervention: http://www.agbell.org/DesktopDefault.aspx?p=Early_Intervention Center for Disease Control: National Early Hearing Detection and Intervention Home Page: http://www.cdc.gov/ncbddd/ehdi/default.htm Gallaudet Research Institute: Literacy and Deaf Students: http://gri.gallaudet.edu/Literacy/#reading Benefits Resulting from Earlier Identification and Intervention. National Center for Hearing Assessment & Management (NCHAM): http://www.infanthearing.org/summary/benefits.html Fact Sheet References July 31, 2007 Page 2 of 7 3. Eligibility for Part C [back to top] Virginia Part C Policies and Procedures: State Definition of Development Delay; Definition of Eligibility for Services: http://www.infantva.org/documents/ovw-PGuideStateDefinition.pdf April 2007 Letter from John Hager and Margaret Giannini http://www.infantva.org/documents/ovwPGuideStateDefinition.pdf Hands and Voices: Early Intervention: http://www.handsandvoices.org/idea04regs/index.htm 4. Evaluation and Assessment [back to top] Virginia Part C Policies and Procedures: Evaluation, Assessment and Nondiscriminatory Procedures: http://www.infantva.org/documents/ovw-PGuideEvaluationAssessment.pdf Auditory Developmental Scale: http://www.auditoryverbaltraining.com/scale.htm Virginia’s System for Determination of Child Progress: http://www.infantva.org/ovwDeterminationChildProgress.htm Zero to Three: http://www.zerotothree.org/ 5. Parent Rights [back to top] Virginia Part C Policies and Procedures: Procedural Safeguards: http://www.infantva.org/documents/ovw-PGuideProceduralSafeguards.pdf Hands and Voices: http://www.handsandvoices.org/articles/fam_perspectives/wo_bias_V8-2.htm 6. Individualized Family Service Plans [back to top] Virginia Part C Policies and Procedures: Individualized Family Service Plan: http://www.infantva.org/documents/ovw-PGuideIndividualizedFamilyServicePlans.pdf 7. Family Support/Links to Other Families [back to top] Guide By Your Side: www.vcu.edu/partnership/GBYS; http://www.vahealth.org/hearing/documents/Virginia%20Guide%20By%20Your%20Side.pdf Hands and Voices: http://www.handsandvoices.org/index.htm Alexandra Graham Bell Association for the Deaf and Hard of Hearing: http://www.agbell.org 8. Informational resources including unbiased information about communication options [back to top] CDC: A Parent’s Guide to Hearing Loss: http://www.cdc.gov/ncbddd/ehdi/CDROM/index.html National Center for Hearing Assessment & Management (NCHAM) http://www.infanthearing.org/earlyintervention/eilinks.html#communication National Association of the Deaf http://www.nad.org/site/pp.asp?c=foINKQMBF&b=2639885 Hands and Voices: o http://www.handsandvoices.org/articles/fam_perspectives/wo_bias_V8-2.htm o http://www.handsandvoices.org/articles/articles_index.html#ei Virginia Department of Health: http://www.vahealth.org/hearing/parents.asp Virginia Resource Directory for Parents of Children with Hearing Loss: http://www.vahealth.org/hearing/documents/2007%200321%20Virginia%20Resource%20Directory%20final.pdf Center for Disease Control (CDC) Early Hearing Detection and Intervention: http://www.cdc.gov/ncbddd/ehdi/ My Baby’s Hearing (Boys Town): http://www.babyhearing.org/LanguageLearning/EarlyIntervention/index.asp American Society for Deaf Children: http://www.deafchildren.org Alexandra Graham Bell Association for the Deaf and Hard of Hearing: http://www.agbell.org/DesktopDefault.aspx?p=About_Spoken_Language University of Michigan Health System: Child Hearing Information Links: http://www.med.umich.edu/childhearinginfo/links.htm 9. Coordination of Supports and Services Across Agencies [back to top] Fact Sheet References July 31, 2007 Page 3 of 7 Virginia Part C Policies and Procedures: Individualized Family Service Plans (Service Coordination): http://www.infantva.org/documents/ovw-PGuideIndividualizedFamilyServicePlans.pdf 10. Obtaining and Funding Hearing Aids and Other Assistive Devices [back to top] Virginia’s Hearing Aid Loan Bank: http://www.vahealth.org/hearing/valoanerbank.asp Code of Virginia requirements for assistive technology insurance coverage: http://leg1.state.va.us/cgi-bin/legp504.exe?000+cod+38.2-3418.5 Starkey Hearing Foundation: http://www.sotheworldmayhear.org/ United Healthcare Children’s Foundation: http://www.uhccf.org/ Lions Club: http://www.lions.org Quota Club: http://www.quota.org/ 11. Transition [back to top] Virginia Part C Policies and Procedures: Transition: http://www.infantva.org/documents/ovwPGuideIndividualizedFamilyServicePlans.pdf 12. Qualified Providers [back to top] Standards for Early Intervention Service Providers for Infants/Toddlers Who are Deaf/Hard of Hearing and their Families: http://www.colorado.edu/slhs/mdnc/guidelines.pdf (see appendix 5 for qualifications) Early Intervention Providers - National Association of the Deaf http://www.nad.org/site/pp.asp?c=foINKQMBF&b=2639887 Virginia Part C Policies and Procedures: Personnel Standards: http://www.infantva.org/documents/ovw-PGuidePersonnelStandards.pdf 13. Hearing Aids, Cochlear Implants, and Other Assistive Devices [back to top] National Institute on Deafness and Other Communication Disorders: http://www.nidcd.nih.gov/health/hearing/hearingaid.asp Hearing Aid Resource for Consumers: http://www.earinfo.com/index.html Better Hearing Institute: BHI: Assistive Listening Devices: telecoil, ALD, American disability act, more (http://www.betterhearing.org/hearing_solutions/listeningDevices.cfm) Cochlear Americas Website: http://www.cochlearamericas.com/ 14. Intervention [back to top] Joint Commission on Infant Hearing Principles and Guidelines for Early Intervention Detection and Intervention Programs: http://www.audiology.org/NR/rdonlyres/F2077B49-B65C-4198-98306DE9B6D820F8/0/jcihearly.pdf Choices in Deafness Revisited: http://www.infantva.org/documents/wkgNewbornHearingChoicesInDeafnessRevisited.pdf Center for Disease Control; National Early Hearing Detection and Intervention: Communicating with Your Baby: http://www.cdc.gov/ncbddd/ehdi/CDROM/start/communicate.html Getting Started with Early Intervention (Boys Town National Research Hospital): http://www.babyhearing.org/LanguageLearning/EarlyIntervention/interventionteam.asp Virginia Policy Page – Intervention for Children with Cochlear Implants: http://www.infantva.org/documents/pr-PolicyCochlearImplants.pdf Alexander Graham Bell Association for the Deaf and Hard of Hearing (Auditory Verbal Communication): http://www.agbell.org National Cued Speech Association: http://www.cuedspeech.org/ Oral Deaf Education (Site includes free materials): http://www.oraldeafed.org/ Auditory Oral Communication: http://www.deaflinx.com/DeafEd/OptionsGuide/Oralism.html American Sign Language: http://www.americansignlanguage.com/ American Sign Language Browser: http://www.commtechlab.msu.edu/sites/aslweb/browser.htm Learning Sign Language and ASL: http://www.handspeak.com/tour/byte/index.php?byte=getstarted Speech Reading: Fact Sheet References July 31, 2007 Page 4 of 7 Speech Reading in Context: A Guide for Practice in Everyday Settings: http://clerccenter.gallaudet.edu/Products/Sharing-Ideas/speech/SI-speech.pdf http://speechreadinglaboratory.com Training and Education Opportunities for Providers Deaf Education: http://www.deafed.net/PageText.asp?hdnPageId=212 Links to Early Intervention Resources: http://www.infanthearing.org/earlyintervention/eilinks.html#communication Cochlear Americas online training opportunities: http://www.cochlearamericas.com/Support/291.asp The following DVDs or Videotapes are available at each Infant & Toddler Connection Local Lead Agency: The Home Team: Early Intervention Illustrated The Art and Science of Home Visits: Early Intervention Illustrated The following resource is available in several local lead agencies in each region: PREP Project Manuals (PREP is short for Providing Resources and Education for Professionals in Virginia: Working With Infants and Young Children Who are Deaf or Hard of Hearing and Their Families) The Department for the Deaf and Hard of Hearing (http://www.vddhh.org/fyilib.htm) has 7 “Bins” containing the following resources. These are available for loan to local early intervention systems: Videotapes/ CD’s Discovering Cued Speech Instructional Videos Includes 2 videotapes, Study Guide, and Workbook This program teaches families and service providers how to use Cued Speech. Four instructors present 10 lessons with demos by parents, children, and professionals. The video and personal workbook should be used together and may be used also with face-to-face instruction. Families With Deaf Children Videotape designed for parents whose child has just been diagnosed with a significant hearing loss; other parents talk about their experiences. Families With Hard of Hearing Children Videotape designed for parents whose child has just been diagnosed with a more moderate hearing loss; other parents talk about their experiences. SKI HI Total Communication I Video Series, twenty 30-minute videos Ten beginning and ten intermediate tapes with three lessons on each tape. Shows the common ASL sign and the manual English sign. Cochlear Implants for Children in Parent-Infant Programs CD presents in picture and animation information about cochlear implants. Includes what they are, selection and evaluation process, surgery, post surgery, hookup and follow up, emotional aspects, and discussion of different perspectives. Baby See ‘n Sign Volumes I and II DVDs designed to teach babies 6 months and up. This is a teaching tool for the parents and the baby which includes a variety of real-life images that relate to a child’s daily life, including animals, food, toys, and activities. Volume I: Object-word association Fact Sheet References July 31, 2007 Page 5 of 7 Volume II: Object-word association continued, Beginning Abstract Concepts Books Choices in Deafness: A Parents’ Guide to Communication Options, Second Edition. Designed for parents as a guide to communication options including auditory-verbal approach, Bilingual-Bicultural Approach, Cued Speech, Oral Approach, and Total Communication References and Handbooks Sign Language for the Family, A Total Communication Picture Reference Book Includes sign activity and reference booklet written for parents. Used as a quick reference that includes illustrations and corresponding pictures. This can also be used to practice tool in creating sentences. Developing Cognition in Young Children Who are Deaf, Second Edition Handbook presents ideas for ways to promote early thinking skills, especially cognitive skills that promote early communication and language development. Approximately 100 pages. This program can be used in conjunction with SKI-HI curriculum. Sign with your Baby A quick reference guide in ASL version that can be used to introduce basic signs to your baby. Some signs include actions, foods, toys, and common labels around the house and community. It is laminated so that it can be posted on the wall or fridge for easy reference. There is a space to record written notes on the progress of the child. Curriculum Learn To Talk Around The Clock The Learn To Talk Around The Clock program is an oral, early intervention program designed for professionals to use with parents of children who are deaf or hard of hearing, birth to three years old. It is a great tool for teachers, speech-language pathologists, early childhood professionals, special educators, and educational audiologists. This colorful set includes everyday life activities to use in planning for families. SKI HI Curriculum This manual (two huge yellow binders) is a comprehensive program for home-based, early intervention for children who are deaf and hard of hearing and their families. It includes theory, lesson plans and graphics for: hearing aid management, communication programs including all methodologies, supporting the family, etc. INSITE Curriculum This two-volume (tan/brown colored binders) is a manual containing home-based programming for families of young children who are sensory impaired with additional special needs (multi-disabled sensory impaired). Volume I: Communication and Hearing Volume II: Vision, Cognition, Motor Impairment, and Developmental Resources Consultation Resources Virginia Network of Consultants For Professionals Who Work with Children Who are Deaf or Hard of Hearing (VNOC) The Virginia Department of Education (VDOE), in collaboration with the Virginia Department of Health, and the Partnership for People with Disabilities at Virginia Commonwealth University established the Virginia Network Of Consultants (VNOC) for Professionals Working with Children Who are Deaf or Hard of Hearing. The purpose of VNOC is to provide consultant services and training to professionals who work with students who are deaf or hard of hearing in school divisions and state operated programs in Virginia. It is designed to promote and enhance educational services for individual students or provide needed training for personnel. Fact Sheet References July 31, 2007 Page 6 of 7 VNOC specialists were selected to represent all regions of the Commonwealth and have expertise in one or more areas as they relate to children who are deaf or hard of hearing. These include: instructional strategies, communication methodologies, amplification needs, assistive technology, meeting the needs of students with cochlear implants, and assessment. There is funding from VDOE to support this initiative on a reimbursement basis. For more information about VNOC services, contact the VNOC Coordinator, Partnership for People with Disabilities at VCU, at (804) 828-1342 or www.vcu.edu/partnership. Ann W. Hughes, VNOC Coordinator Partnership for People with Disabilities Virginia Commonwealth University 700 East Franklin Street P.O. Box 843020 Richmond, Virginia 23284-3020 804-828-1342 (Voice) 804-828-1120 (TTY) 804-828-0042 (Fax) awhughes@vcu.edu Virginia Department of Education (VDOE) The Virginia Department of Education maintains a list of Teachers of the Deaf/Hard of Hearing in school systems throughout Virginia. Local System Managers can contact Debbie Pfeiffer, the Specialist for Deaf and Hard of Hearing at the Virginia Department of Education to request that she send information/requests for contracting or consulting to school based Teachers of the Deaf/Hard of Hearing in their area. Debbie can be contacted at debbie.pfeiffer@doe.virginia.gov or (804) 371-4059. [back to top] Fact Sheet References July 31, 2007 Page 7 of 7