Problems or Concerns about Personal Relationships Feeling dissatisfied with personal relationships Possible Actions Feeling family / friends don’t appreciate how hard it is living with diabetes Feeling family / friends are not supportive of selfcare Feeling tension in relationships with family / friends Probe for the source of the dissatisfaction Invite patient to include family member(s) in next patient clinic visit Schedule public health nurse home visit Provide family members with pamphlets, books, and/or educational materials about diabetes care: http://ndep.nih.gov/diabetes/pubs/TipsHelping_Eng.pdf Refer to social work Refer to family counseling Provide patient and family with information about area support groups Gauge patient and family interest in hospital pastoral services. Mental health services provider locator: http://store.samhsa.gov/mhlocator Invite patient to include family member(s) in next patient clinic visit Schedule public health nurse home visit Provide family members with pamphlets, books, and/or educational materials about diabetes care: http://ndep.nih.gov/diabetes/pubs/TipsHelping_Eng.pdf Refer to social work Refer to family counseling Provide patient and family with information about area support groups Invite patient to include family member(s) in next patient clinic visit Schedule public health nurse home visit Provide family members with pamphlets, books, and/or educational materials about diabetes care: http://ndep.nih.gov/diabetes/pubs/TipsHelping_Eng.pdf Refer to social work Refer to family counseling Provide patient and family with information about area support groups Probe for the source of the relationship tension Invite patient to include family member(s) in next patient clinic visit Schedule public health nurse home visit Provide family members with pamphlets, books, and/or educational materials about diabetes care: http://ndep.nih.gov/diabetes/pubs/TipsHelping_Eng.pdf Refer to social work Refer to family counseling Feeling dissatisfied with ability to do things for family Feeling that diabetes interferes too much with family / social life Provide patient and family with information about area support groups Gauge patient and family interest in hospital pastoral services. Mental health services provider locator: http://store.samhsa.gov/mhlocator Dialog with patient regarding self-care workload; discuss with patient ways to reduce self-care workload Refer to diabetes care coordinator or diabetes educator Refer patient to area support group (one that teaches coping skills) Provide patient with educational resources to help with diabetes self-management Dialog with patient regarding self-care workload; discuss with patient ways to reduce self-care workload Refer to diabetes care coordinator or diabetes educator Refer patient to area support group (one that teaches coping skills) Provide patient with educational resources to help with diabetes self-management Problems or Concerns about Monitoring Health Difficulty testing your blood sugar (glucose) levels Possible Actions Feeling bothered by the time and energy required to test your blood sugar levels Difficulty keeping a record of your blood sugar levels Difficulty finding a place to check blood sugar or take insulin when you are away from home Feeling bothered taking medical instruments (such as a glucose monitor, insulin syringes) wherever you go Difficulty checking your feet Discuss daily BG testing routine with patient, try to identify specific source of difficulty. Discuss Alternative testing sites, easier meter if applicable Consider reviewing with patients tips for successful blood glucose monitoring. Focus on tips that align with specific barriers. If available, refer patient to diabetes educator for more instruction, or use resource below to find an educator in your area. Consider printing and reviewing with the patient an Insulin Adjustment Workbook http://www.diabeteseducator.org/DiabetesEducation/Find.html Certified diabetes educator: look at ways to simplify medication program with motivational interviewing to see what the patient is willing to work at, set behavioral goals with follow-up phone calls. (Decrease blood glucose testing to minimum requirements so patient is able to cope with the task) Review patient’s daily routine looking for inefficiencies. Contract with patient behavioral goal changes to work with patient to commit to meet a behavioral goal 80% of the time. Suggest that the patient research web-based diabetes tracking software or smart phone applications Download meters at clinic http://www.vitalmhealth.com/top-diabetes-iphone-apps http://www.diabetesnet.com/diabetes-technology/diabetes-software Review patient’s daily routine, try to identify specific source of difficulty. If available, refer patient to diabetes educator for more instruction, or use resource below to find an educator in your area. Discuss smaller glucose monitors, insulin pens Direct patient to websites or supply stores that have insulated travel wallets and carriers for their supplies. http://www.insulincase.com/ Discuss foot checking regimen, try to identify specific source of difficulty (vision, flexibility, remembering). If vision/flexibility is the issue, suggest (1) enlisting a family member, neighbor, or visiting nurse to help (2) long-handled mirror and magnifiers If remembering is the issue, suggest a watch alarm or daily checklist Reinforce good foot care habits, provide footcare video (if available) http://diabetes.niddk.nih.gov/dm/pubs/type1and2/care.aspx#foot Difficulty checking blood pressure Difficulty monitoring body weight, calories or carbohydrates Discuss daily BP testing routine with patient, try to identify specific source of difficulty. Consider printing/reviewing with the patients tips for successful blood pressure monitoring focusing on tips aligned with specific barriers. Meet with a dietitian to educate about plate method, food record books Refer patient to online web sites for meal plans http://www.diabetes.org/food-and-fitness/food/planning-meals/ Problems or Concerns about Emotional Health If any “emotional health” item is selected Possible Actions Step 1: - Dialog with patient about the source of the distress - Judge whether problem is a consequence of: (a) transient mood (with continued interest in activities and ability to experience joy) OR (b) a more significant psychological problem - If discussion with patient fails to distinguish (a) or (b), then administer PHQ-9 (screen for depression) and GAD-7 (screen for anxiety) Step 2: - IF (a), then possible actions include: • Referral to diabetes care coordinator or diabetes educator • Referral to patient support group • Gauge patient and family interest in hospital pastoral services. • Provide patient with educational resources about diabetes care • Provide patient with resources to improve stress management skills (e.g., relaxation training) - IF (b), OR PHQ-9 ≥ 10 OR GAD-7 ≥ 10, then possible actions include: • Referral to social work or mental health care coordinator • Referral to psychology / psychiatry Electronic resources for emotional health: Depression: http://www.nimh.nih.gov/health/publications/depression/completeindex.shtml#pub8 Anxiety: http://www.nimh.nih.gov/health/publications/generalized-anxiety-disordergad/generalized-anxiety-disorder-gad-when-worry-gets-out-of-control.shtm Relaxation techniques: http://www.helpguide.org/mental/stress_relief_meditation_yoga_relaxation.htm General information about diabetes: http://diabetes.niddk.nih.gov/dm/pubs/type1and2 Mental health services provider locator: http://store.samhsa.gov/mhlocator Problems or Concerns about Money Possible Actions Problems paying your medical bills Problems paying for all the care you needed Problems paying for all the medicines or supplied that you needed Not maintaining health insurance Skipped a recommended test or medical treatment Not filled a prescription for a medicine Cut pills in half or skipped doses of medicine Direct patient to your clinic’s patient account services for information on payment options. Connect patient with financial aid services http://www.dlife.com/diabetes_resources/saving_money/financial_help/index.page1 Direct patient to your clinic’s patient account services for information on payment options. Connect patient with financial aid services http://www.dlife.com/diabetes_resources/saving_money/financial_help/index.page1 Review medication list for opportunities to substitute generic or less expensive options. Consider printing and reviewing with the patient the “Financial Help for Diabetes Care” information from the NIDDK website. http://diabetes.niddk.nih.gov/dm/pubs/financialhelp/financialhelp.pdf Direct patient to programs for free or discounted prescription medicine. http://www.state.mn.us/portal/mn/jsp/home.do?agency=Rx http://www.health.state.mn.us/clearinghouse/prescription.pdf http://www.minnesotahelp.info/QA/default.aspx?se=senior If available - refer to social services for financial/job counseling and insurance assessment Consider generics/educate about the use of generics Medication reconciliation with attention to cost Use decision aid cards about medication choices that include costs Consider printing and reviewing with the patient the “Financial Help for Diabetes Care” information from the NIDDK website. http://diabetes.niddk.nih.gov/dm/pubs/financialhelp/financialhelp.pdf\ Recommendations for pharmaceutical support programs Referral to free clinics (e.g. Salvation Army) Review order and determine if test/treatment is necessary or could be substituted with a less expensive test/treatment. Review medication list for opportunities to substitute generic or less expensive options. Consider printing and reviewing with the patient the “Financial Help for Diabetes Care” information from the NIDDK website. http://diabetes.niddk.nih.gov/dm/pubs/financialhelp/financialhelp.pdf Direct patient to programs for free or discounted prescription medicine. http://www.state.mn.us/portal/mn/jsp/home.do?agency=Rx http://www.health.state.mn.us/clearinghouse/prescription.pdf http://www.minnesotahelp.info/QA/default.aspx?se=senior Review medication list for opportunities to substitute generic or less expensive options. Consider printing and reviewing with the patient the “Financial Help for Diabetes Care” Skipped dental, vision or mental health care visit because of cost Put off or postponed getting health care you needed information from the NIDDK website. http://diabetes.niddk.nih.gov/dm/pubs/financialhelp/financialhelp.pdf Direct patient to programs for free or discounted prescription medicine. http://www.state.mn.us/portal/mn/jsp/home.do?agency=Rx http://www.health.state.mn.us/clearinghouse/prescription.pdf http://www.minnesotahelp.info/QA/default.aspx?se=senior Direct patient to resources for free or discounted eye exams (if eligible). http://www.aoa.org/visionusa.xml http://www.eyecareamerica.org/ Provide NIDDK brochure on dental self-care http://diabetes.niddk.nih.gov/dm/pubs/complications_teeth/teeth.pdf Direct patient to state and local resources for lower cost dental care. http://www.health.state.mn.us/clearinghouse/resources.htm Direct patient to state and local resources for free or discounted mental health services. http://www.usc.salvationarmy.org/usc/www_usc_rochester1.nsf/ http://www.co.olmsted.mn.us/cs/AFS/abh/Pages/default.aspx Direct patient to local diabetes support group http://www.defeatdiabetes.org/support_groups_minnesota.htm Direct patient to your clinic’s patient account services for information on payment options. Connect patient with financial aid services http://www.dlife.com/diabetes_resources/saving_money/financial_help/index.page1 Problems or Concerns about Health Behaviors Eating too much or too little Not sticking to your meal plan Not exercising the right amount Difficulty doing everyday physical activities such as walking, climbing stairs, carrying groceries Not sleeping enough to feel well-rested Feeling you should cut down the amount of alcohol you drink Possible Actions Discuss daily eating habits with patient, try to identify specific problem behaviors Discuss creating a meal plan Consider printing and reviewing with the patient publicly available brochures with tips for eating the right amount. Focus on tips that align with specific problem behaviors. http://diabetes.niddk.nih.gov/dm/pubs/eating_ez/Eating_Diabetes.pdf If available, refer patient to diabetes dietician. Discuss current meal plan with patient, identifying specific barriers Consider printing and reviewing with the patient publicly available brochures with tips for eating the right amount. Focus on tips that align with specific problem behaviors. http://diabetes.niddk.nih.gov/dm/pubs/eating_ez/Eating_Diabetes.pdf http://www.mayoclinic.com/health/diabetes-diet/DA00077 If available, refer patient to diabetes dietician Discuss current exercise regime with patient Educate about amount of exercise needed Consider printing and reviewing with the patient publicly available brochures with tips for eating the right amount. Focus on tips that align with specific barriers. http://diabetes.niddk.nih.gov/dm/pubs/physical_ez/physactivity.pdf If available, refer to community classes or gyms If available, refer patient to diabetes educator for more instruction. Discuss which specific activities are problematic Consider referral to physical therapy Discuss getting more exercise Discuss if patient needs help with/has assistance getting everyday tasks done Consider referral to community resources Discuss sleeping patterns Identify barriers to getting enough sleep and strategies for overcoming barriers Consider referral to sleep therapist Consider prescription for a sleeping aid Evaluate drinking behavior Educate about the harmful impact of excess alcohol intake Consider printing and reviewing with the patient publicly available brochures available at: http://rethinkingdrinking.niaaa.nih.gov/ Consider referral to a specialist Feeling you should quit smoking or using tobacco. Give resources to community-based programs such as AA Congratulate patient for thinking about quitting Consider printing and reviewing with the patient publicly available brochures with tips for quitting, see: http://www.mayoclinic.com/health/quitsmoking/MY00433 Problems or Concerns about Medicine Difficulty taking your medicine the way you should (at the right time and in the right amount) Possible Actions Feeling bothered by the time and energy needed to take your medicine Difficulty paying for your medicine Experiencing side effects from your medicine Discuss daily medication routine with patient, try to identify specific barriers. Consider printing and reviewing with the patient publicly available brochures with tips for managing medications. Focus on tips that align with specific barriers. http://www.health.state.ny.us/diseases/aids/docs/9388.pdf Refer to pharmacist to review medications/ pill boxes/calendar Refer to social services for Home health care if available Review medication schedule for opportunities for consolidation. Are there medications that would be easier to manage (e.g. less frequent administration, administration at times that fit patient’s daily schedule) that could be substituted for current medications? If available, refer patient to diabetes educator for more instruction. Review medication list for opportunities for consolidation. Are there medications that would be easier to manage (e.g. less frequent administration) that could be substituted for current medications? Suggest diabetes support group, if available Refer to certified diabetes educator, if available. CDE to look at ways to simplify medication program with motivational interviewing to see what the patient is willing to work at and set behavioral goals with follow-up phone calls. Review medication list for opportunities to substitute generic or less expensive options. If available - refer to social services for financial counseling. Consider printing and reviewing with the patient the “Financial Help for Diabetes Care” information from the NIDDK website. http://diabetes.niddk.nih.gov/dm/pubs/financialhelp/financialhelp.pdf Determine whether the pharmaceutical company that manufactures the patients’ medications has a drug/medication assistance programs for low income individuals with diabetes Confirm that medicine is being taken correctly. Review medication list looking for opportunities to substitute current medication with one associated with fewer side effects. Discuss options for managing side effects. Difficulty adjusting amount and timing of medicine based on sugar levels, meals or changing body weight Difficulty administering insulin Difficulty understanding what medicines you should be taking Consider printing and reviewing with the patient an Insulin Adjustment Workbook http://www.bd.com/us/diabetes/download/insulin_adjustment_workbook_compl ete.pdf Meet with certified diabetes educator, if available. CDE to look for ways to simplify medication program with motivational interviewing to see what the patient is willing to work at and set behavioral goals with follow-up phone calls. (Decrease blood glucose testing to minimum requirements so patient is able to cope with the task) Suggest that the patient research web-based diabetes tracking software or smart phone applications http://www.vitalmhealth.com/top-diabetes-iphone-apps http://www.diabetesnet.com/diabetes-technology/diabetes-software Discuss daily BG testing routine with patient, try to identify specific source of difficulty. Discuss Alternative testing sites, easier meter if applicable If available, refer patient to diabetes educator for more instruction, or use resource below to find an educator in your area. Discuss daily medication routine with patient, try to identify specific barriers. Consider printing and reviewing with the patient publicly available brochures with tips for managing medications. Focus on tips that align with specific barriers. http://www.health.state.ny.us/diseases/aids/docs/9388.pdf Refer to pharmacist to review medications/ pill boxes/calendar Refer to social services for Home health care if available Review medication schedule for opportunities for consolidation. Are there medications that would be easier to manage (e.g. less frequent administration, administration at times that fit patient’s daily schedule) that could be substituted for current medications? If available, refer patient to diabetes educator for more instruction. Problems or Concerns about Getting Health Care Not knowing who to talk to about a health concern Not getting through to your doctor or nurse on the telephone Possible Actions Discuss with patient which specific health concerns that they need help with Refer to specialist, educator, or community resource as appropriate Discuss types of issues that they are calling in with Give patient email address, phone numbers, contact names if appropriate Difficulty getting an appointment soon enough Not finding a clinic or doctor that was open when you could get there Difficulty finding transportation to your doctor or nurse’s visit Problems getting mental health care Problems getting dental or vision care Problems paying your medical bills Ask what type of appointments patient is having difficulty obtaining – consider other referrals Set up multiple appointments for the patient ahead of time Refer to clinics with weekend/evening hours Arrange triage call schedule for off hours Refer to social services – programs for free cab rides, etc. Secure social worker (if appropriate) Determine peer or ambassador support Consider telemedicine if available Direct patient to state and local resources for free or discounted mental health services. http://www.usc.salvationarmy.org/usc/www_usc_rochester1.nsf/ http://www.co.olmsted.mn.us/cs/AFS/abh/Pages/default.aspx Direct patient to resources for free or discounted eye exams (if eligible). http://www.aoa.org/visionusa.xml http://www.eyecareamerica.org/ Provide NIDDK brochure on dental self-care http://diabetes.niddk.nih.gov/dm/pubs/complications_teeth/teeth.pdf Direct patient to state and local resources for lower cost dental care. http://www.health.state.mn.us/clearinghouse/resources.htm Direct patient to local diabetes support group http://www.defeatdiabetes.org/support_groups_minnesota.htm If available - refer to social services for financial counseling and insurance assessment Consider printing and reviewing with the patient the “Financial Help for Diabetes Care” information from the NIDDK website. http://diabetes.niddk.nih.gov/dm/pubs/financialhelp/financialhelp.pdf Recommendations for pharmaceutical support programs Referral to free clinics (e.g. Salvation Army) Not maintaining health insurance coverage Medication reconciliation with attention to cost Consider generics/educate about the use of generics Medication reconciliation with attention to cost Use decision aid cards about medication choices that include costs If available - refer to social services for financial/job counseling and insurance assessment Consider generics/educate about the use of generics Medication reconciliation with attention to cost Use decision aid cards about medication choices that include costs Consider printing and reviewing with the patient the “Financial Help for Diabetes Care” information from the NIDDK website. http://diabetes.niddk.nih.gov/dm/pubs/financialhelp/financialhelp.pdf\ Recommendations for Pharmaceutical support programs Referral to free clinics (e.g. Salvation Army) Problems or Concerns about Work Your health impacts your ability to work outside the home or do housework Possible Actions You accomplished less at work because of your health You were limited in the kinds of work you could do because of your health It is difficult to manage your diabetes at work (take breaks for food or medicine, test blood sugar) Your work makes it hard to be healthy (eat right, exercise, sleep enough) You can’t afford to take time off work for medical Identify barrier to working (i.e., pain, fatigue, disability, cognitive impairment). Refer to community resources for employment opportunities or job counseling to help patient find a job that matches his/her ability to work. http://www.rochesterpubliclibrary.org/reference/employmenthelp.html If indicated, refer patient to physical therapy or rehabilitation medicine Refer to Employee Assistance Programs, often available through health plan or human resources department. Identify barriers responsible for accomplishing less (i.e., fatigue, pain, ability to concentrate, having to take breaks for monitoring/eating) If indicated, refer patient to physical therapy or rehabilitation medicine Suggest patient work with his/her supervisor or human resource department to discuss work responsibilities. Refer to community resources for employment opportunities or job counseling to help patient find a job that matches his/her ability to work. http://www.rochesterpubliclibrary.org/reference/employmenthelp.html http://www.positivelyminnesota.com/JobSeekers/WorkForce_Centers/See_All_ WorkForce_Center_Locations/WFC_-_Rochester/index.aspx If indicated, refer patient to physical therapy or rehabilitation medicine. Discuss tips for managing diabetes at work. http://www.mayoclinic.com/health/managing-diabetes-at-work/MY00818 Inform patient s/he has the right to request “reasonable accommodations” to manage their diabetes at work under Americans with Disabilities Act. http://www.eeoc.gov/facts/diabetes.html Does the patient do shift work? If yes, discuss tips on managing diabetes with shift work. http://www.mayoclinic.com/health/diabetes-and-shift-work/MY00817 http://www.allaboutdiabetes.net/managing-diabetes-during-night-shift/ (page down to the "Night shift diabetes management" section) Discuss tips for good sleep hygiene http://awakeinamerica.info/2010/health/sleep-hygiene/sleep-hygiene-tip-foradults/ Discuss tips on eating right at work. http://www.mayoclinic.com/health/managing-diabetes-at-work/MY00818 Provide nutritional counseling Discuss tips for managing diabetes at work. appointments http://www.mayoclinic.com/health/managing-diabetes-at-work/MY00818 Inform patient s/he has the right to request “reasonable accommodations” to manage their diabetes at work under Americans with Disabilities Act. http://www.eeoc.gov/facts/diabetes.html Problems or Concerns with physical health Pain Fatigue Vision problems Sleep problems Difficulty walking Shortness of breath Possible Actions Assess where, when, severity, duration, associated with New onset vs recurrent Therapy and effect Patients assessment of why they have pain Impact of pain on daily life Administer brief pain inventory for more details Consider pain clinic referral Assess intensity of fatigue New onset vs chronic issue Patient assessment of why they are fatigued Discuss sleeping patterns and habits Consider administering brief fatigue inventory for more details Look for common causes of fatigue: depression, blood sugar elevated or low, medications causing fatigue, stress Consider an evaluation for anemia with appropriate interventions such as exercise program counseling or iron supplements Assess pattern and new or sudden onset Associated symptoms such as pain or watering Consider referral for eye exam---if pain may need to be emergent Assess risk of elevated blood sugar Discuss sleeping patterns Identify barriers to getting enough sleep and strategies for overcoming barriers Consider depression screen Consider referral to sleep therapist Consider prescription for a sleeping aid Assess why: dyspnea, pain, weakness, gait issues, etc Consider referral to physical therapy Discuss getting more exercise Discuss if patient needs help with/has assistance getting everyday tasks done Assess when: walking, laying flat, activities Skin changes or infections Sexual problems Numbness/tingling in your hands and feet Something else Assess related symptoms: cough, wheeze, chest pain, leg pain New or recurrent, changing Probe for details, why, when, where, associated with Consider referral for foot exam Probe for details, why, when, where, associated with Consider resource material http://mayoweb.mayo.edu/spforms/mc0400-mc0499/mc0449-38.pdf Assess when: constant, intermittent, with activity, with anxiety Referral? Probe for details, why, when, where, associated with administer MDASI, SF/PROMIS physical domain