Bereavement – what to expect Introduction Bereavement is a distressing but common experience. Sooner or later most of us will suffer the death of someone close to us. Yet in our everyday life we think and talk about death very little. So, we do not have much of a chance to learn about grieving – how it feels, how to cope with it, what is “normal”. The subject of death is often taboo, and those who have been bereaved may feel they ought to hide their feelings, not wishing to burden other family or friends. However, evidence has shown that adjustment is easier if the person feels free to express their grief, and has access to practical advice and support if needed. What is grief? Grief is the way we feel following a loss or bereavement. It is a normal process which allows people to gradually adjust to their loss. If the death is expected, relatives and friends may find themselves grieving even before the death has occurred. They will grieve for what they have already lost and what they expect to lose. Grief is not just one feeling, but a whole succession of feelings, which can take longer than expected to get through and which cannot be hurried. It is common for these feelings to ebb and flow over a very long period of time, whilst those around you may think “you should be over this by now”. Some common experiences of grief are described below. Shock In the few hours or days following the death of a close relative or friend, most people simply feel stunned, as though they cannot believe it has actually happened, even if it was expected. This sense of emotional numbness can be a help in getting through all the important practical arrangements that have to be made, such as getting in touch with relatives and organising the funeral. However, this feeling of unreality may become a problem if it goes on too long. Seeing the body of the dead person may, for some, be an important way of beginning to overcome this. Similarly, for many people, the funeral or memorial service is an occasion when the reality of what has happened starts to sink in. It may be distressing to see the body or attend the funeral, but these are ways of saying goodbye to those we love. The pain of grief Feelings of numbness can soon be replaced by a sense of agitation, of pining or yearning for the dead person. There can be a feeling of wanting somehow Health Psychology Department Gloucestershire Royal NHS Trust to find them, even though this is clearly impossible. Other physical sensations can include chest pain, dizziness, weakness and insomnia. Bereaved people sometimes worry that these symptoms are a sign that they are going mad. This is certainly not the case. However, grieving does require an enormous amount of energy and mental effort with the result that bereaved people can often find themselves too physically and mentally exhausted to concentrate on anything. They may feel confused and forgetful and appear easily distracted. Making the simplest of decisions can be overwhelming at this time. Disturbing images and nightmares Events before, during and after the death can remain riveted in the mind of the bereaved as though watching a video over and over. It may be that the brain is trying to make sense of what is happened by continually replaying events in an attempt to resolve it. Some people feel that they “see” their loved one everywhere they go – in the street, the park, around the house, anywhere they had spent time together. These are strong memories of the person who has died and can help some bereaved people to cope following the death. Usually with time these images or nightmares lessen in frequency and are less disturbing to the individual. Difficult emotions People often feel very angry at this time – towards doctors and nurses who did not do enough, or even towards the person who has left them. Another common feeling is guilt. People find themselves going over in their minds all the things they would have liked to have said or done, as they realise it is too late to complete all that “unfinished” business. They may even consider what they could have done differently that might have prevented the death. Of course, death is usually beyond anyone’s control and a bereaved person may need to be reminded of this. Guilt may also arise if a sense of relief is felt when someone has died after a particularly painful or distressing illness. This feeling of relief is natural, extremely understandable and very common. Thinking about the future without the deceased person can feel very frightening, and for some this can result in anxiety or panic, particularly if the bereaved person was very dependent, either practically or emotionally, on the person who has died. The sense of loss In between states of agitation can be times of quiet sadness or depression, withdrawal and silence. These sudden changes of emotion can be confusing to the bereaved person, as well as to friends and relatives, but are just part of the normal way of passing through the different stages of grief. Health Psychology Department Gloucestershire Royal NHS Trust Although the agitation lessens over time, spasms of grief can occur at any time, triggered by people, places or things that bring back memories of the dead person. Other people may find it difficult to understand or embarrassing when the bereaved person suddenly bursts into tears for no obvious reason. At this stage it may be tempting to keep away from other people who do not fully understand or share the grief. However, avoiding others can bring more problems in the long-term, and it is usually best to start to return to one’s normal activities as soon as feels comfortable. In the meantime, the bereaved person may find themselves spending quiet times thinking about the person they have lost, going over again and again both the good times and the bad times they had together, and this is an essential part of adjusting to the death. Moving forward As time passes, the fierce pain of early bereavement should begin to fade. The sadness lessens and it becomes possible to think about other things and even to look again to the future. However, the sense of having lost a part of oneself never goes away entirely. Years later you may sometimes find yourself talking as though he or she were still here with you. These various stages of grieving often overlap and show themselves in different ways in different people. The way we grieve often depends on the nature of our relationship with the person who has died, the circumstances of the death, and our previous experience of loss. If a relationship was confused in life, chances are it will remain so after death. A sudden or untimely death may understandably complicate the bereavement, as there has been no time to prepare for the loss. Remember that there is no “standard” way of grieving. We are all individuals and have our own particular ways of grieving. Health Psychology Department Gloucestershire Royal NHS Trust Bereavement – How people cope Once the initial shock and numbness recede bereaved individuals will have to make choices about how they are going to cope with what has happened to them. At times people will let themselves be confronted by their loss and will react by crying, remembering and thinking about the person who has died. At other times, they will choose to be distracted by other tasks such as cooking, washing or attending to any number of daily activities. Bereaved individuals may feel surprised that soon after the death they find themselves washing-up or gardening as if nothing terrible has happened. They may feel odd about doing everyday things at such a time. Something may then remind them of the person who has died and they find themselves remembering something and crying in response. It may be that this way of coping allows bereaved individuals to limit the amount of pain experienced by balancing it with day-to-day activities. They work through their grief in small, manageable steps at a pace that suits them. The important thing is to keep grieving and distraction balanced. If the bereaved person is completely preoccupied with grieving for the deceased, the balance is disturbed, and that person may suffer as a result of neglecting important tasks. Equally, the bereaved person may be avoiding grief by focusing completely on the hereand-now. This imbalance may interfere with the healthy progression of the grieving process. This balancing act is ongoing and ever changing. As time goes by, it will become more important for individuals to focus on learning new skills, and make plans for the future. They may begin to take on some of the roles once held by the deceased person, or find new people to fill some roles. This can range from learning how to mend a fuse, to finding someone to share a day out with. It can be unhelpful to consider bereavement as something which one must “get over” or “come to terms with”. We can’t expect someone who has been bereaved to get back to being the same person they were before, as their life will always be affected by the experience they have gone through in some way. Hopefully however, they will gradually begin to be able to integrate the loss into their lives and move forward. Health Psychology Department Gloucestershire Royal NHS Trust