AB 796 Page 1 Date of Hearing: May 5, 2015 ASSEMBLY COMMITTEE ON BUSINESS AND PROFESSIONS Susan Bonilla, Chair AB 796 (Nazarian) – As Introduced February 26, 2015 NOTE: This bill is double referred, and if passed by this Committee, it will be referred to the Assembly Health Committee. SUBJECT: Health care coverage: autism and pervasive developmental disorders. SUMMARY: Expands the eligibility for a person to be a qualified autism service professional to include a person who possesses a bachelor of arts or science degree and meets other requirements as specified, or is a registered psychological assistant, a registered psychologist or an associate clinical social worker. Expands the eligibility for a person to be a qualified autism service paraprofessional to include a person with a high school diploma or equivalent, and six months experience working with persons with developmental disabilities. EXISTING LAW: 1) Establishes the Board of Psychology, within the Department of Consumer Affairs (DCA), to license and regulate the practice of psychology. (BPC § 2900 et seq.) 2) Establishes the Board of Behavioral Sciences, within the DCA, to license and regulate clinical social workers, professional clinical counselors, marriage and family therapists and educational psychologists. (BPC § 4990 et seq.) 3) Establishes the Medical Board, within the DCA, to license physicians and surgeons and regulate the practice of medicine. (BPC § 2000 et seq.) 4) Establishes the Physical Therapy Board, within the DCA, to license physical therapists, and regulate the practice of physical therapy. (BPC § 2600 et seq.) 5) Establishes the Occupational Therapy Board, within DCA, to license occupational therapists, and regulate the practice of occupational therapy. (BPC § 2570 et seq.) 6) Establishes the Speech-Language Pathologists and Audiologists and Hearing Aid Dispensers Board, within DCA, to license and regulate the practice or speech-language pathology, audiology and hearing aid dispensing. (BPC § 2530 et seq.) 7) Establishes an entitlement to services for individuals with developmental disabilities under the Lanterman Developmental Disabilities Services Act (Lanterman Act). (Welfare and Institutions Code (WIC) § 4500 et seq.) 8) Grants all individuals with developmental disabilities, among all other rights and responsibilities established for any individual by the United States Constitution and laws and the California Constitution and laws, the right to treatment and habilitation services and supports in the least restrictive environment. (WIC § 4502) AB 796 Page 2 9) Defines “behavioral health treatment,” for purposes of payment under a health care service plan contract or a health insurance policy, as professional services and treatment programs, including applied behavior analysis and evidence-based behavior intervention programs, which develop or restore, to the maximum extent practicable, the functioning of an individual with pervasive developmental disorder or autism, and sets forth criteria that must be met related to the treatment plan, prescription of the treatment, and the providers authorized to provide such treatment, which includes qualified autism service professionals, as specified. (Health and Safety Code (HSC) § 1374.73(c)(1), Insurance Code (INS) 10144.51(c)(1)) 10) Defines as “qualified autism service provider” as: a. A person, entity or group that is certified by a national entity, such as the Behavior Analyst Certification Board, that is accredited by the National Commission for Certifying Agencies, and who designs, supervises, or provides treatment for pervasive developmental disorders or autism, as specified; or, b. A person licensed as a physician and surgeon, physical therapist, occupational therapist, educational psychologist, clinical social worker, professional clinical counselor, speechlanguage pathologists, or audiologist, who designs, supervises or provides treatment for pervasive developmental disorders or autism, as specified. (HSC § 1374.73(c)(3) et seq.) 11) Defines a "qualified autism service professional" a behavioral service provider approved as a vendor by a California regional center to provide services as an associate behavior analyst, behavior analyst, behavior management assistant, behavior management consultant, or behavior management program as defined in Title 17 CCR § 54342. (HSC § 1374.73 (c)(4)(D), INS § 10144.51(c)(4)(D)) 12) Defines “qualified autism service paraprofessional” as an unlicensed and uncertified individuals who is employed and supervised by a qualified autism service provider; and, provides treatment and implements services pursuant to a treatment plan developed and approved by the qualified autism service provider, as specified. (HSC § 1374.73 (c)(4)) 13) Defines a “qualified autism service professional” as an individual who provides behavioral health treatment and is employed and supervised by a qualified autism service provider, as specified. (WIC § 1374.73 (c)(4)) 14) Defines a “qualified autism service paraprofessional” as an unlicensed and uncertified individual who is employed and supervised by a qualified autism service provider; and, provides treatment and implements services pursuant to a treatment plan developed and approved by the qualified autism service provider. (WIC § 1374.73 (c)(5)) 15) Defines a “qualified autism service professional” as an individual who provides behavioral health treatment; is employed and supervised by a qualified autism service provider; provides treatment pursuant to a treatment plan developed and approved by the provider; and, is a behavioral service provider, as specified. (INS § 10144.51 (c)(4)) 16) Defines a “qualified autism service paraprofessional” as an unlicensed and uncertified individual who is employed and supervised by a qualified autism service provider; provides treatment and implements services pursuant to a treatment plan developed and approved by AB 796 Page 3 the qualified autism service provider; has adequate education, training and experience as certified by a qualified autism service provider, as specified. (INS § 10144.51 (c)(5)) THIS BILL: 1) Adds additional criteria to the definition of “qualified autism service professional” within the HSC as follows: a) Is approved as a vendor by a California regional center to provide services as an associate behavior analyst, behavior analyst, behavior management assistant, behavior management consultant, or behavior management program as defined in Section 54342 of Title 17 of the California Code of Regulations. b) Possesses a bachelor of arts or science degree and has either of the following: i) Twelve semester units from an accredited institute of higher learning in either applied behavioral analysis or clinical coursework in behavioral health and one year of experience in designing or implementing behavioral health treatment; or, ii) Two years of experience in designing or implementing behavioral health treatment. c) The person is a registered psychological assistant or registered psychologist. d) The person is an associate clinical social worker registered with the Board of Behavioral Sciences. 2) Adds additional criteria to the definition of a “qualified autism service paraprofessional” within the HSC as follows: a) Meets the criteria set forth in the regulations adopted pursuant to Section 4686.3 of the WIC or meets all of the following: i) Possesses a high school diploma or equivalent; ii) Has six months experience working with persons with a developmental disability; iii) Has 30 hours of training in the specific form of evidence-based behavioral health treatment administered by a qualified autism provider or qualified autism service professional; and, iv) Has successfully passed a background check conducted by a state-approved agency. 3) Adds additional criteria to the definition of a “qualified autism service professional” within the INS as follows: a) Is a behavioral service provider who meets one of the following criteria: i) Is approved as a vendor by a California regional center to provide services as an associate behavior analyst, behavior analyst, behavior management assistant, behavior management consultant, or behavior management program as defined in Section 54342 of Title 17 of the California Code of Regulations; or, AB 796 Page 4 ii) Possesses a bachelor of arts or science degree and has either of the following: (1) Twelve semester units from an accredited institute of higher learning in either applied behavioral analysis or clinical coursework in behavioral health and one year of experience in designing or implementing behavioral health treatment; or, (2) Two years of experience in designing or implementing behavioral health treatment. b) The person is a registered psychological assistant or registered psychologist. c) The person is an associate clinical social worker registered with the Board of Behavioral Sciences. 4) Adds additional criteria to the definition of a “qualified autism service paraprofessional” within the INS as follows: a) Meets the criteria set forth in the regulations adopted pursuant to Section 4686.3 of the WIC or meets all of the following: i) Possesses a high school diploma or equivalent; ii) Has six months experience working with persons with a developmental disability; iii) Has 30 hours of training in the specific form of evidence-based behavioral health treatment administered by a qualified autism provider or qualified autism service professional; and, iv) Has successfully passed a background check conducted by a state-approved agency. FISCAL EFFECT: None. This bill has been keyed non-fiscal by the Legislative Counsel. COMMENTS: Purpose. This bill is sponsored by the DIR Floor Time Coalition. According to the author, “AB 796 recognizes that there is no one size fits all behavior health treatment for an individual diagnosed with autism. Every child on the autism spectrum presents differently, as such treatment options must reflect that spectrum. This bill ensures children diagnosed with autism will receive insurance coverage for the type of evidence-based behavior health treatment that is right and selected for them by the medical professional that knows the child best.” Background. The Lanterman Act guides the provision of services and supports for Californians with developmental disabilities. Each individual under the Lanterman Act, is legally entitled to treatment and habilitation services and supports in the least restrictive environment. Lanterman Act services are designed to enable all consumers to live more independent and productive lives in the community. The term "developmental disability" means a disability that originates before an individual attains 18 years of age, is expected to continue indefinitely, and constitutes a substantial disability for that individual. It includes intellectual disabilities, cerebral palsy, epilepsy, and pervasive developmental disorder/autism spectrum disorder (PDD/ASD). Other developmental AB 796 Page 5 disabilities are those disabling conditions similar to an intellectual disability that require treatment (e.g., care and management) similar to that required by individuals with an intellectual disability. Autism Spectrum Disorders. Defined as a group of neurodevelopmental disorders linked to atypical biology and chemistry in the brain that generally appears within the first three years of life, autism is a growing epidemic among children. While there are many "autisms," the diagnosis is often characterized by delayed, impaired or otherwise atypical verbal and social communication skills, sensitivity to sensory stimulation, atypical behaviors and body movements, and sensitivity to changes in routines. Although symptoms and severity differ among individuals with an autism diagnosis, all individuals affected by the disorder have impaired communication skills, difficulties initiating and sustaining social interactions and restricted, repetitive patterns of behavior and/or interests. ASD, is one of the commonly-used terms to describe the various "autisms" and other PDD, and it more appropriately captures the array of symptoms and varying levels in the severity of symptoms experienced by individuals with a diagnosis within ASD. Information released in March 2014 by the Centers for Disease Control (CDC) Autism and Developmental Disabilities Monitoring (ADDM) Network, estimates prevalence of ASD for children born in 2002 and surveyed in 2010 to be 14.7 per 1,000 children, which translates to one in 68 children. This is a drastic increase from CDC data for children born in 2000 and surveyed in 2008, which estimated the prevalence of children with ASD to be one in 88. Average prevalence for children surveyed in 2006 was one in 110 children. ASD continues to be five times more prevalent for boys than for girls. Early Intervention Services. Research shows that a child's development can be greatly impacted by early intervention treatment services, especially when provided during a child's first three years. During that time, a child is developing motor skills and language, and begins to socialize with others. Early intervention services for babies and toddlers that have been diagnosed with, or seem to be at risk for, a developmental delay or disability often include physical, cognitive, communication, social/emotional and self-help skill building. While there is no proven cure for ASD, early intervention can dramatically change the trajectory of a child's life over time, including his or her ability to learn new skills throughout childhood and an increased ability to integrate into, and have a positive relationship with, his or her community. Treatments for ASD. According to information retrieved from the National Institute of Mental Health, there are various modalities for treating ASD. Specifically, there are a several different types of behavioral health treatment that have been scientifically studied and found to be effective. There are also a number of behavioral treatments in practice that have not yet met the criteria to be considered “evidence-based.” Applied Behavior Analysis (ABA). A widely accepted evidence-based treatment for ASD is ABA. There are many research articles demonstrating the efficacy of ABA as an intervention for individuals with autism. These studies range from group design outcome studies to single subject studies supporting the use of one specific intervention or technique. The goals of ABA are to shape and reinforce new behaviors, such as learning to speak and play, and reduce undesirable ones. This is done by systematically applying interventions, based upon the principles of learning theory, to improve socially significant behaviors to a meaningful AB 796 Page 6 degree. Further, the contingent use of reinforcement and other important principles to increase behaviors, generalize learned behaviors or reduce undesirable behaviors is fundamental to ABA. For example, ABA techniques use rewards—goldfish crackers, playing with toys, praise—to teach children all kinds of behaviors, lessons and life skills, step by tiny step, in intensive, oneon-one drills. Developmental, Individual Difference, Relationship-based (DIR)/Floortime Model—aims to build healthy and meaningful relationships and abilities by following the natural emotions and interests of the child. One particular example is the Early Start Denver Model, which fosters improvements in communication, thinking, language, and other social skills and seeks to reduce atypical behaviors. Using developmental and relationship-based approaches, this therapy can be delivered in natural settings such as the home or pre-school. TEACCH (Treatment and Education of Autistic and related Communication Handicapped Children)—emphasizes adapting the child's physical environment and using visual cues (for example, having classroom materials clearly marked and located so that students can access them independently). Using individualized plans for each student, TEACCH builds on the child's strengths and emerging skills. Interpersonal Synchrony—targets social development and imitation skills, and focuses on teaching children how to establish and maintain engagement with others. SB 946. SB 946 (Steinberg), Chapter 650, Statutes of 2011, defined “behavioral health treatment” (BHT) as professional services and treatment programs, including ABA and evidence-based behavior intervention programs, that develop or restore, to the maximum extent practicable, the functioning of an individual with PDD or ASD. The bill mandated coverage of all evidence-based BHTs prescribed by a physician and surgeon, or developed by a psychologist, provided under a treatment plan prescribed by a qualified autism service provider, and administered by a qualified autism service provider, a qualified autism service professional, or qualified autism service paraprofessional. When defining the minimum requirements for providers, the bill referred to a section of Title 17 which references only one type of evidence based BHTs, ABA. The sponsor believes that this was a mistake. The sponsor also believes that the spirit of the legislation was to allow for various modalities of treatment. The sponsor indicates that this discrepancy in existing law makes it difficult for parents to obtain coverage for prescribed treatments that their children need. Department of Managed Healthcare (DMHC) Task Force. SB 946 called for the DMHC to convene a task force to report to the Governor and Legislature with recommendations for implementing SB 946. The 18 member task force met for one year. An excerpt from the report summarizes the Task Force’s recommendations regarding BHT: A guiding principle of the Task Force was that every individual with autism or PDD is unique. Therefore, behavioral health interventions need to be highly individualized. Since treatment selection should be made by a team of individuals, who can consider the unique needs and history of the individual with autism or PDD, the Task Force determined that it would not be informative to state policy makers to merely develop a list of BHTs that are determined to be effective, based solely on current scientific literature. Since scientific research and findings naturally advance, the Task Force determined that the choice of BHTs should be grounded in scientific evidence, clinical practice guidelines, and/or evidence based practice. AB 796 Page 7 In regards to the individuals who are most appropriate to administer BHT, the Task Force concluded: The Task Force concluded that all top level providers [physician and surgeon, physical therapist, occupational therapist, psychologist, marriage and family therapist, educational psychologist, clinical social worker, professional clinical counselor, or speech language pathologist or audiologists] should be licensed by the state. The Task Force also included requirements for individuals who are unlicensed and who are not certified as follows: a) Have adequate training and specific competence in implementing BHT for autism, including competence in the scope of treatments outlined in the treatment plan and a minimum of 30 hours of interactive, competency-based autism-specific training, as verified by the treatment plan developer or treatment provider; b) Be enrolled in a bachelor’s program or possess a bachelor’s degree; be enrolled in an associate’s degree program or possess an associate’s degree; or, at minimum, possess a high school diploma; c) Receive adequate supervision. At lease 60-75 percent of the supervision should be direct fact-to-face supervision and include significant co-therapy with the top or mid-level supervisor; and, d) The supervision shall cover the functions of ongoing treatment planning and case supervision. Current Related Legislation. SB 479 (Bates), of the current legislative session, establishes the Behavior Analyst Act which would require a person to apply for and obtain a license from the Board of Psychology prior to engaging in the practice of behavior analysis, as defined, either as a behavior analyst or an assistant behavior analyst, and meet certain educational and training requirements. STATUS: This bill passed the Senate Committee on Business, Professions and Economic Development with an 8-0 vote and is now in the Senate Appropriations Committee. Prior Related Legislation. SB 946 (Steinberg), Chapter 650, Statutes of 2011, required health plan and health insurance policies to cover behavioral health therapy for pervasive developmental disorders or autism. The bill also requires plans and insurers to maintain adequate networks of autism service providers. AB 2041 (Jones) of 2014, would have required that a regional center classify a vendor as a behavior management consultant or behavior management assistant if the vendor designs or implements evidence-based behavioral health treatment, has a specified amount of experience in designing or implementing that treatment, and meets other licensure and education requirements. The bill would have required the Department of Developmental Services to amend its regulations as necessary to implement the provisions of the bill. NOTE: The bill died in the Senate Appropriations Committee. AB 796 Page 8 ARGUMENTS IN SUPPORT: Hundreds of individuals wrote letters of support. They write, “When the members of the Legislature passed SB 946, the definition for “behavioral health treatments” was broadly defined to include all physician or psychologist prescribed evidence-based forms of therapy. Despite the best intentions of the Legislature, the law limited this in practice. Many children are being denied specific forms of prescribed therapy they need. AB 796 is right for children with autism, for parents of those children and for the state. By passing this bill, children in California will be able to receive the treatment they need and deserve and state costs will be reduced as health insurance will cover all forms of prescribed, evidence-based treatment for autism.” ARGUMENTS IN OPPOSITION: The Autism Research Group opposes the bill and writes, “…we are especially concerned about the potential effects of a bill that would allow paraprofessionals untrained in applied behavior analysis to replace ABA professionals. The developmental window during which children with ASD can optimally benefit from treatment is narrow, and AB 796 could potentially allow precious time to be squandered “treating” children with ASD with experimental treatment, rather than treating children using ABA.” The California Association of Behavior Analysts also write in opposition, “Our concern is less about the particular discipline being employed by the service providers, and more about diluting the training and education requirements of anyone providing services for this population. SB 946 established standards applicable to the principle treatment for autism, which is behavior analysis. Since its enactment, the health insurance industry has accepted this as the appropriate treatment for autism, based both on the science and on the qualifications of those providing the services. AB 796 proposes to elevate into the realm of accepted providers for the delivery of behavior analysis individuals that lack the requisite training and education to provide those services at the level of ‘qualified autism professional.’” The Center for Autism & Related Disorders shares their opposition to the bill, “AB 796 would jeopardize Californians who seek medically necessary treatment for autism spectrum disorder by diluting California’s professional standards and allowing children with ASD to be treated by unqualified personnel.” POLICY ISSUES FOR CONSIDERATION: This bill would amend the definitions of a qualified autism service professional and qualified autism service paraprofessional. The author contends that there is a need to expand these definitions to allow more individuals the ability to offer, and be reimbursed for, a variety of behavioral health treatment modalities, other than evidence-based treatment and ABA, for individuals who have ASD and PDD. The Committee may wish to consider if this bill takes the right approach to achieving this goal. Currently, providers can only be reimbursed for ABA and evidence-based interventions. In the DMHC’s Task Force report, it outlines the qualifications for unlicensed and uncertified front line treatment providers and many of the recommended qualifications have been codified. The author has included some of these qualifications in this bill and aims to allow these unlicensed providers to be recognized as qualified autism services paraprofessionals. For example, the author wishes to expand the definition of a qualified paraprofessional to include an AB 796 Page 9 individual who has a high school diploma and six months of working with individuals who have a developmental disability. The author also wishes to expand the definition of a qualified professional to include an individual who has a bachelors degree, coursework in behavioral health and experience in designing or implementing BHT, while current law requires that the individual be recognized as a vendor approved by a Regional Center. The vendors that are approved have to be able to show evidence of being able to provide ABA or evidence-based treatment. By adding these additional qualifications to the definition of a qualified professional, additional modalities of treatment would be permitted to be utilized, such as DIR Floortime. It is clear that the author’s intent is to allow for other methodologies to be recognized as reimbursable treatment for developmental disabilities such as ASD and PDD. The way the author seeks to do this is by curtailing the existing definitions of autism professionals and paraprofessionals which will allow them to utilize other forms of treatment that are not evidencebased or currently recognized in the code of regulations. Rather than curtail the criteria for the providers of evidence-based treatments for ASD and PDD, that the DMHC has already thoroughly reviewed and established in law and in the regulations, perhaps a better approach would be to propose legislation that would amend the Insurance Code and the Health and Safety Code to recognize non-evidence-based treatments as acceptable and reimbursable forms of treatment for developmental disabilities such as ASD and PDD. REGISTERED SUPPORT: Hundreds of individuals REGISTERED OPPOSITION: Autism Research Group California Association of Behavior Analysts Center for Autism & Related Disorders Southern California Consortium for Behavior Analysis Analysis Prepared by: Le Ondra Clark Harvey, Ph.D. / B. & P. / (916) 319-3301