DRAFT JWOD Guide To Medical Documentation and Competitive Employment Evaluations DRAFT Table of Contents JWOD Requirements Definition of Severely Disabled Documentation Requirements Normal Competitive Employment Medical Documentation 3 3 4 4 5 Severely Disabled and not Competitively Employable Assessments Minimum Acceptable Standards Competitive Employment Evaluation Initial Assessments Annual Assessments Examples of eligibility determinations 7 7 8 10 11 12 Discussion of Commonly Seen Disabilities in the JWOD Program 20 Frequently Asked Questions 34 Glossary of Terms 37 Examples of Acceptable Evaluations 39 Index 48 2 JWOD Requirements For a nonprofit agency to participate in the JWOD Program 75 percent of its total direct labor hours must be performed by people who are blind or severely disabled. Therefore, for an agency to participate successfully in the JWOD Program it must understand the Committee’s definition of severely disabled and the Committee’s requirements for documentation of those individuals who are being counted toward the direct labor ratio. Definition of Severely Disabled The Committee’s regulations (41CFR51) define severely disabled as: Other severely handicapped and severely handicapped individuals (hereinafter persons with severe disabilities) mean a person other than a blind person who has a severe physical or mental impairment (a residual, limiting condition resulting from an injury, disease, or congenital defect) which so limits the person's functional capabilities (mobility, communication, self-care, self-direction, work tolerance or work skills) that the individual is unable to engage in normal competitive employment over an extended period of time. (1) Capability for normal competitive employment shall be determined from information developed by an ongoing evaluation program conducted by or for the nonprofit agency and shall include as a minimum, a preadmission evaluation and a reevaluation at least annually of each individual's capability for normal competitive employment. (2) A person with a severe mental or physical impairment who is able to engage in normal competitive employment because the impairment has been overcome or the condition has been substantially corrected is not "other severely handicapped" within the meaning of the definition. Therefore, to be considered eligible to count toward the direct labor ratio, an individual must be disabled to the extent that it affects one of their functional capabilities to the point that the individual is not capable of engaging in competitive employment. The Committee’s definition is only one of many definitions used by the Federal Government. In July 2003 the Interagency Committee on Disability Research compiled a list of Federal Statutory definitions of disability. There were a total of 67 laws listed that dealt with various issues such as civil rights, Education, employment, and housing. The Committee’s definition is unique, but shares common themes with a number of other Federal definitions. For those interested, the following link provides a complete list of the definitions: http://www.icdr.us/documents/definitions.htm#civil 3 Documentation Requirements Section 4 of the Committee’s regulations specifies the requirements that a nonprofit must meet to enter and maintain its qualifications in the JWOD Program. In section 4.3(c) on maintaining qualifications it states: Each nonprofit agency employing persons with severe disabilities participating in the JWOD Program shall, in addition to the requirements of paragraphs (a) and (b) of this section, maintain in each individual with a severe disability's file: (1) A written report signed by a licensed physician, psychiatrist, or qualified psychologist, reflecting the nature and extent of the disability or disabilities that cause such person to qualify as a person with a severe disability, or a certification of the disability or disabilities by a State or local governmental entity. (2) Reports which state whether that individual is capable of engaging in normal competitive employment. These reports shall be signed by a person or persons qualified by training and experience to evaluate the work potential, interests, aptitudes, and abilities of persons with disabilities and shall normally consist of preadmission evaluations and reevaluations prepared at least annually. The file on individuals who have been in the nonprofit agency for less than two years shall contain the preadmission report and, where appropriate, the next annual reevaluation. The file on individuals who have been in the nonprofit agency for two or more years shall contain, as a minimum, the reports of the two most recent annual reevaluations. As a result, to be eligible to count toward the direct labor ratio an individual must have documentation in their file that not only states what the individual’s severe disabilities are, but documents the extent of how the disabilities affect the individual’s life functions. In addition, the file must contain an evaluation of the individual’s ability to be employed competitively. Normal Competitive Employment The JWOD Act and regulations say that the individual must not be capable of normal competitive employment, but does not actually define normal competitive employment. The Committee has historically defined it as the ability of an individual to find, obtain and maintain a non-JWOD job, with no supports from a nonprofit. Commensurate wages would not be involved, because they are not a part of normal employment. Put another way, the Committee considers an individual to be capable of normal competitive employment if the individual can do all of the following: Is capable of working a full work week (40 hours), 4 Receives the same pay and benefits as any other worker performing comparable work, Only requires accommodations considered reasonable under ADA, Can maintain a job for an extended period of time (months. if not years), Can maintain a job without intervention from outside sources. When the JWOD Act was passed in 1971 this concept may have been well understood, but today in some states competitive employment has come to mean any job that takes place in the community in an integrated setting, even if there are job coaches or commensurate wages are paid. The Committee does not view such jobs as being competitive, because they include accommodations that most employers will not provide or involves a third party in making the job successful. Medical Documentation The individual’s file must contain documentation; a clear statement as to what condition or combination of conditions has resulted in an individual being considered to be severely disabled. Such diagnostics must be determined by a licensed professional capable of making that evaluation. For example: Diagnosis Mental Retardation Licensed Professional Psychologist School Counselor Report in File Psychological Evaluation Intellectual Report Mental Illness Psychiatrist or Clinical Psychologist Licensed MH Counselor Psychiatric Evaluation Medical Physician Medical report Physical Impairment Diagnostic Summary For some severe disabilities such as mental retardation and significant mental illness, the diagnosis documentation almost always includes the extent of the disability as part of the diagnosis. However, for most conditions whose severity can exist on a continuum from mild to severe, a delineation of the degree of impairment is required and frequently is not included as a normal part of the diagnosis. In other words, a measure of the functional limitations must be known in order to determine the degree of severity. Depending on the disability, the age of the documentation may invalidate it, as some disabling conditions can improve over time. As well, rehabilitative gains may result in an individual becoming competitively employable. This is why Committee regulations require that the competitive employability evaluations be done initially and on an annual basis thereafter. 5 For those who do not come from a referral agency such as VR, the self-referred for example, it is often difficult to obtain adequate medical documentation. Requests to those individuals to provide the documentation is usually not an effective means of obtaining them. They either do not possess the documentation, or can not explain to their doctor what the nonprofit requires. The nonprofit should identify the individual’s point of primary medical care and send the doctor or counselor a request containing a signed release from that individual. The more specific the request, the better, particularly given the necessity for knowing the extent of disabling aspects to medical diagnoses. An explanation as to the purpose of the information can be critical; many physicians routinely downplay the disabling aspects of medical conditions, so as to not harm the employment of their patients. Thus is it important that they understand that the JWOD program requires a person to have a bona fide severe disability in order to qualify and that the extent of the disability must also be documented. 6 Severely Disabled and not Competitively Employable Assessments Minimum Acceptable Standards Every year each nonprofit must certify to the Committee that there is a file containing adequate evidence of a severe disability and an annual review for competitive employability on each direct labor employee who is blind or has other severe disabilities, including both JWOD and non-JWOD, verifying that the individual meets the Committee's criteria per 41 CFR 51-4.3. It is therefore critical that these assessments be done correctly as they are the basis of the annual certification and are certifying each individual as severely disabled and not competitively employable. It is also important to emphasize that they must be done on all severely disabled individuals and not just those working on JWOD. The minimum acceptable documentation would be a signed and dated written narrative that synopsizes the individual’s disability or disabilities, indicates which functional limitations are being affected and documents why the individual is not competitively employable by indicating the accommodations and supports being provided to the individual. This does not need to be an extensive document on the individual being evaluated and in most cases need not be more than a single page. This does not replace the need for the signed medical documentation to be present in the file. If a preprinted form is used it can not include a presumptive statement indicating that the individual is not competitively employable. The simplest statement of competitive employability is a question as to whether or not the individual is currently capable of competitive employment with a yes or no selection and a space for the reasons (accommodations and supports) why the individual is not considered competitively employable. Undated statements, unsigned or no reasons given would automatically be excluded as a valid non-competitive employability evaluation. Many nonprofits have other state and community requirements that they must meet, such as annual Individual Evaluation Plans. The Committee has long held that the Committee’s requirements can and should be made part of these assessments. If done correctly there is no requirement for individual forms or documentation just to meet the Committee’s requirements. A form developed specifically to meet the JWOD requirements would contain the following: Synopsis of Severe disabilities – This section simply lists the individual’s disabilities that the nonprofit believes are severe disabilities. It does not replace the signed medical documentation. Rather it acts as a place to list multiple disabilities to make it clearer for reviewers what are the individual’s disabilities. 7 Synopsis of Extent of severe disabilities – This section serves as an area to explain how the individual’s severe disabilities affect their life functions (self-care, self-direction, work skills, work tolerance, communication or mobility). It does not replace the requirement for the medical documentation to explain the extent of the severe disability, rather it again allows the consolidation of the effects of multiple disabilities in one place. Competitively Employable – This is a simple yes or no to the question: “Is the individual currently capable of competitive employment.” Synopsis of Reasoning for noncompetitive employability – This is the nonprofit’s reasoning for why they consider the individual to be not competitively employable at this time. This section must provide details of the disability-related accommodations and supports that are being employed and may contain information on the goals that have been set for the individual for the next year. Nonprofits may also utilize a check sheet to insure that many of the common issues are considered when assessing an individual. Evaluator Information – The name, title and signature of the evaluator and the date of the evaluation. Competitive Employment Evaluation The concept of normal competitive employment or competitive employability in the JWOD program is as fundamental as it is unique. The documented evidence of a severe disability, the significant functional limitations resulting from it, and the requirement for substantive workplace accommodations, forms the basis by which a person’s non-competitive employability is established and justified. However, a subparagraph of the regulations goes a bit further: These reports shall be signed by a person or persons qualified by training and experience to evaluate the work potential, interests, aptitudes, and abilities of persons with disabilities and shall normally consist of preadmission evaluations and reevaluations prepared at least annually. The key point is that the nonprofit must have an evaluation program, with the individual making the decision being one who is knowledgeable of people with severe disabilities. While the individual’s direct supervisor has the best understanding of how the individual is performing on the job, the supervisor seldom has the background knowledge of severe disabilities required by the regulations. Therefore, while the supervisor’s opinion should be a critical part of the evaluation (particularly where it pertains to the implementation of accommodations and the individual work performance), the evaluation should 8 usually be completed by another individual, such as the rehabilitation director or counselor at the nonprofit. The Committee’s definition allows the evaluation process to be done by an entity other than the nonprofit. However when this is done, the individual who makes the evaluation, must meet the evaluator criteria noted above, and must base the evaluation on all information available. In particular, the person making the evaluation must be familiar with the individual’s work performance and the accommodations and supports being provided by the nonprofit. For example, a psychologist who conducts a psychological exam may believe that the individual is not capable of competitive employment, but for this evaluation to be used for the purpose of meeting the JWOD requirement it must be based on more than just that exam. It must also take into account the individual’s actual work performance at the nonprofit and the accommodations and supports being provided there. In addition to impairments directly related to a severe disability, some pertinent indirect factors may affect competitiveness. For example, a consistent failure to show up for work could be either a conduct issue, or a symptom of a behavioral/emotional problem. It is essential that the difference be known, as although both will negatively affect their employability, the former is not disability related, while the latter is, and can be diagnosed and documented. Absenteeism that is directly related to documented medical and psychological conditions, should always be considered when evaluating an individual’s competitiveness. Productivity may or may not support an individual being considered not competitively employable. If it’s below 60%, it would clearly support an individual being considered not competitively employable, given that the lower productivity is disability related and not just a function of indolence or deportment. Productivity levels above 75-80% are within the general range of competitively employable people. On the other hand, just because a worker can perform work at 100% does not necessarily mean that he or she is competitively employable. The work may have been partitioned to allow the individual to work at a high functioning rate, or the individual may have other disability related problems, for which significant accommodations are still necessary. Sometimes when a nonprofit take over commercial contracts it finds that some of the existing workers have a severe disability and the nonprofit classifies them as not competitively employable because they have a severe disability. In such cases, a competitively employed individual is being declared not competitively employable, simply because they now work for a new employer. In almost all cases such an individual must be considered competitively employable. In a few unusual cases where an individual was being supported or accommodated by the commercial contractor to such an extent that they really weren’t competitively employed, the nonprofit may consider this individual to be not competitively 9 employable. However, when this is the case, such support requirements need to be clearly documented. People referred to nonprofits by state vocational rehabilitation services should not be assumed automatically to be not competitively employable. While the vast majority of referred individuals will qualify for the JWOD Program, VR’s definitions and requirements differ from JWOD. As a result, some referrals may not meet the JWOD definition of severely disabled and not competitively employable. Nor should a VR determination that the individual is not competitively employable be taken as meeting the Committee’s definition. A referral from VR must therefore go through the same assessment process as anyone else. Finally, nonprofits on occasion use a determination of non-competitive employability to justify classifying an individual as severely disabled, e.g. “the disability must be severe, or he wouldn’t have been deemed not competitively employable.” This logic should be reversed. The disability must be established first, then its severity by ascertaining the extent of impairment, followed by a determination of how this would or would not cause the person to be capable of normal competitive employment. Given the complexity of individual cases, where the disabilities, medical history and job performance comprise the factors to be considered, the nonprofit remains the appropriate entity to determine competitiveness. Still, the Committee’s regulations call for an evaluation program. It is not sufficient for nonprofits simply to assure that the annual evaluation statements are checked off, signed, and put in the files. There needs to be evidence that a process exists, one containing solid deductive logic. Training on the unique aspects of JWOD requirements must be provided to all individuals who will be making such assessments. Initial Assessments Although termed a preadmission evaluation, the Committee allows the nonprofit 30 days after the individual has begun work to complete the evaluation. This allows the nonprofit to: make an appropriate job assignment, observe on-the-job performance, and assess disability-related accommodation needs. Only with this, will the nonprofit be able to make and document an informed determination of a worker’s non-competitive employability. When making an Initial determination that an individual can be counted as severely disabled and not competitively employable, three questions need to be answered, all in the affirmative: 10 1. Does the individual have a physical or mental impairment, or a residual limiting condition that is the result of an injury, disease, or birth defect? If yes, confirm the presence of a diagnosis with supporting medical documentation. This information should include measurability: its nature, extent and degrees of functional limitation. A signature of a licensed healthcare professional or certification of the disability by a governmental agency must also be present. 2. Does the individual have any functional limitations in self-care, self-direction, work skills, work tolerance, communication or mobility, as a direct result of the aforementioned impairment(s)? If yes, review the entire medical and personnel record relevant to the above factors and work history. If the individual has been working during an evaluative period, interview the supervisor and/or project manager for their input in assessing accommodations and supports that are needed, due to the individual’s impairments. Interview the individual, with regard to any functional limitations they may have relating to a medical or psychological condition. 3. Are these functional limitations significant enough to cause the individual currently to be unable to engage in normal competitive employment, over an extended period of time? To justify determinations of non-competitive employability, one should look back to the above questions. Workers must have disabilities that produce limitations that are significant enough to cause them to be not capable of finding and maintaining work on their own. The determination must describe this causal relationship. Annual Assessments This must be done on a yearly basis, preferably in the context of reviewing a client’s “Individual Service plan,” or a worker’s annual evaluation. It is not a rubber stamp that the individual continues to be severely disabled and not competitively employable. The same basic process that was used for the initial evaluation needs to be repeated. In addition to all of the basic factors that have been thought through, two more need to be considered: 1. Has the disabling condition moderated, so that the limiting impairments no longer predominate? 2. has the worker’s skills improved to the point where the disability is no longer relevant as a result? 11 The Committee’s definition of severe disabilities [41CFR51-1.3(2)] states: A person with a severe mental or physical impairment, who is able to engage in normal competitive employment, because the impairment has been overcome or the condition has been substantially corrected is not “severely disabled” within the meaning of the definition. Many disabilities can improve with time or medical intervention and to review the current state of the individual’s severe disability is a critical first step in the annual assessment. It is also possible that with the training that the individual has received during the past year that they may now be capable of competitive employment. It is therefore important that the annual assessment indicates what has and hasn’t changed from the last assessment. An individual can change back and forth between being competitively employable and not competitively employable. There is nothing in the JWOD regulations that binds individuals to being competitively employable once they have been classified as such. The key is to indicate what has changed. Finally, the regulations indicate that the competitive employability assessment needs to be done at least once a year. In the past some nonprofits have done them semiannually or even quarterly. Nonprofits should consider their other requirements and processes and integrate the Committee’s competitive employment requirement where possible. Examples of eligibility determinations The following examples will provide some insight to the process that should be used when conducting initial or annual assessments. The first example is a general example of the process of determining what accommodations might need to be made for an individual and the others are actual examples that the Committee has seen. FMS The parameters for accommodating a physical disability, keeping in mind the jobspecific limitations that are caused by impairments, are a function of the diagnosed disorder. This example will consider Fibromyalgia syndrome. FMS is a condition with an elusive cause that like other debilitating conditions is manifest on a broad spectrum with highly individualized symptoms. In its mildest form, as commonly expressed, it is not a disability per se much less a severe one (it would not compromise a person’s employment at this level). But in its worst manifestations, its limitations could be quite significant, and as a result, accommodation needs might be beyond what would be provided in normal work settings. And for the JWOD program, this is of course critical. 12 Generally, FMS is a complex, chronic condition which causes widespread pain and fatigue in tendons, ligaments, muscles, and other soft tissue, as well as a variety of other symptoms. Pain varies according to the time of day, weather, sleep patterns, and stress level. People with FMS may also have sleep disorder, irritable bowel syndrome, chronic headaches, skin and temperature sensitivity, cognitive impairment, depression and anxiety, and irritable bladder. How would a worker with FMS be accommodated? Firstly, individuals with FMS may develop some of the limitations discussed below, but seldom develop all of them. Also, the degree of limitation will vary widely, and this will directly effect accommodation requirements. The following is only a sample of some of the possibilities, as numerous other accommodation solutions may exist. Some listed here are minor and might well be provided in normal employment, while others not. Some depend on the extent of the modifications entailed. Essential questions to consider first: 1. What limitations is the employee with this disorder experiencing? 2. How and to what extent do these limitations affect the employee’s job performance? 3. What specific job tasks are problematic as a result of these limitations? 4. What accommodations are available to reduce or eliminate these problems? 5. Have all possible resources been used to determine possible accommodations? 6. Has the employee been consulted regarding possible accommodations? 7. Once in place, has the effectiveness of these accommodations been evaluated? 8. Are additional accommodations needed? 9. Is training needed for supervisors and other employees, with regard to this specific disability? Accommodation Ideas regarding FMS: Concentration Issues: • Provide written job instructions whenever possible or feasible • Prioritize job assignments and provide more structure • Allow for flexible work hours and a self-pace workload • Allow periodic rest periods to reorient • Provide memory aids, such as schedulers or organizers • Minimize or remove distractions • identify and reduce job stressors Depression and Anxiety: • Identify and reduce anxiety producers in the work environment • Provide concise to-do lists and explicit written instructions • Remind employee of important deadlines and performance requirements • Allow time off for counseling 13 • Provide clear expectations of responsibilities and consequences • Provide sensitivity training to co-workers • Allow additional breaks for stress management techniques • Allow telephone calls during work hours to doctors and others for support • identify antecedents and implement strategies for defusing untoward work problems • Provide information on counseling and employee assistance programs Fatigue/Weakness: • Reduce or eliminate the need for physical exertion in some measurable amount • Provide special light-weight equipment • Schedule regular periodic rest breaks away from the workstation • Allow a flexible work schedule and use of leave time • Implement ergonomic workstation design Fine Motor Impairment: • Implement tailored ergonomic workstation design • Provide alternative access to worksite equipment • Provide arm supports • Provide grip aids and other related assists Gross Motor Impairment: • Modify the work-site or its conditions to make it accessible • Provide parking close to the work-site • Provide transportation to the work site • Provide an accessible entrance • Install automatic door openers • Provide an accessible restroom and break room • Provide an accessible route of travel to other work areas f• Revamp the workstation for maximum accessible • Modify station height if wheelchair or scooter is used Insure that essential materials and equipment are within reach • Move workstation close to other work areas, equipment, and break rooms Migraine Headaches: • Provide tailored task lighting • Eliminate fluorescent lighting • Provide alternate work area to reduce visual and auditory distractions • Implement a "fragrance-free" workplace policy • Provide air purification devices • Eliminate pulsing lights or sounds • Allow flexible work hours • Allow periodic rest breaks • Reduce noise with sound absorbent baffles/partitions, environmental sound machines, and headsets 14 Skin Sensitivity: • Avoid irritating agents and chemicals • Provide protective clothing Sleep Disorder: • Allow flexible work hours • Allow frequent breaks Temperature Sensitivity: • Modify work-site temperature: fan/air-conditioner or heater • redirect vents and maintain ventilation system • Allow flexible scheduling during extremely hot or cold weather • Modify dress code • Provide a work area with separate temperature control Photosensitivity: • Minimize outdoor activities between the peak hours of 10:00 am and 4:00 pm • Avoid reflective surfaces such as sand, snow, and concrete • Provide clothing to block UV rays • Provide "waterproof" sun-protective agents such as sun blocks or sunscreens • Install low wattage overhead lights • Provide task lighting • Replace fluorescent lighting with full spectrum or natural lighting • Eliminate blinking and flickering lights • Install adjustable window blinds and light filters Learning disabled A nonprofit had been employing an individual for several years and when hired his disability was noted as dyslexia. During a correctly done annual review it was found that he actually had been diagnosed in 1984 with Developmental Disorder, NOS (with significant discrepancy between below average verbal capacities, and average visual-spatial problem solving ability; as well as severe deficiencies in reading, written expression, and mathematics). He also had a historical diagnosis of Alcohol Dependency, in sustained full remission. Further review found that he had spent three years on active duty in the Navy followed by extensive service in the Air National Guard and Reserves, and that he had been deployed overseas the year prior to this review. Discussions with his lead supervisor revealed that he had no significant impairments in occupational functioning and that he is an excellent worker who requires minimal supervision and instruction. It was the supervisors feeling that he does not demonstrate any behaviors, characteristics, or actions that indicate he is severely disabled. 15 Based on the supervisor’s comments and the fact that he had served on active duty the previous year the nonprofit concluded that he was competitively employable. Amputee Here are two cases of individuals with very similar amputations, but very different determinations. In the first case the individual involved was a 19 year old that recently lost her right leg above the knee in a car accident. She had no prosthetic and moved around using a wheelchair. Loss of a limb is a severe disability, but by itself does not mean that individual was not competitively employable. During the hiring process the nonprofit found her to have extremely low selfesteem and some psychological issues as result of the amputation. In addition she had no previous work experience and did not present well in the job interview. Based on the interview and the psychological issues the agency considered her not competitively employable and placed her as a mail room clerk on a small JWOD job. This was a reasonable initial assessment. However, this case also shows the need for annual reassessments. At the time of her first annual assessment the nonprofit was so pleased with her performance that they no longer considered her to be not competitively employable and promoted her to supervisor of the project. Here is a good example of the individual overcoming her impairment. In the second case a nonprofit received a referral from the state VR agency of an individual whose leg had been amputated above the knee a number of years ago. The VR referral also included the reasoning that the individual was not competitively employable because he was a convicted felon and no one else would hire him. The individual had worked at the nonprofit until he was jailed for breaking probation and while working for the nonprofit previously did not require any special accommodations or supports from the nonprofit. While the Vocational Rehabilitation counselor may consider the individual not competitively employable, this individual does not meet the Committee’s definition of severely disabled and not competitively employable. While there can be considerations other than the disability involved with making the determination that the individual is not competitively employable, the core reasoning for the decision must be based on the individual’s disability. In this case the individual’s disability is not a factor as the nonprofit does not have to provide any supports. The sole reason for considering the individual not competitively employable is that he is a convicted felon just getting out of jail for breaking his parole. 16 Highly Productive worker As noted earlier an individual that is highly productive on a job is not necessarily competitively employable. Here are two examples of cases where the nonprofit found individuals whose productivity were more than 100 percent to be not competitively employable. In the first case the individual is responsible for cutting fabric and is mentally retarded. From a performance standpoint he can run the cutting table faster than anyone at the nonprofit, whether severely disabled or not. However, he has a history of behavioral outbursts and is unpredictable as to whether or not he will show up for work. The second individual is also mentally retarded and works as a groundskeeper mowing and trimming grass. His performance on the job is at about 120%. He likes his job and unlike the first case has no behavioral or attendance issues. Unfortunately, he requires close supervision since he has no concept of pacing himself or how to remain hydrated in hot weather. In addition, he will work until no more work is visible and will stop and wait for directions, or will simply continue working in areas that were already finished or where the agency is not responsible. Return to not competitively employable status The issue here is that an individual can move back and forth between being competitively employable and not competitively employable. If a nonprofit considers an individual to be competitively employable, it does not mean that he can’t be reconsidered at a future date, if changes occur to the individual’s disability status. In this case an individual has mild mental retardation and worked as a mess attendant on a JWOD food service contract. After working successfully for some time, the agency determined that he was competitively employable. They placed him with a local hotel busing tables and washing dishes. Initially very pleased with his performance, the hotel gave him a raise, increased his hours and began providing benefits. At this point he became overresourced and lost his SSI benefits. His mother objected to this loss and harassied him to the point that the stress affected his performance and the hotel eventually fired him. As a result, the nonprofit rehired the individual and considers him to be not competitively employable until they can again get him working at an acceptable level. 17 Substance Abuse Five individuals were referred to a nonprofit for employment as part of a courtordered substance abuse rehabilitation program. This program included a requirement that they live in a half-way house. As all five had experience with seasonal grounds keeping, the nonprofit placed them on one of its grounds maintenance projects as severely disabled and not competitively employable. The Committee subsequently received a complaint from a commercial company that the nonprofit was hiring non-disabled individuals. This complaint was based on the owner’s observation that the five working for the nonprofit were not disabled , all having worked for him in the past, and that one of the individuals was trying to work for the commercial contractor and the nonprofit simultaneously at the time. Further discussions with the contractor revealed that all five could have had their old jobs back simply by applying for them, given that the commercial contractor had been happy with their performance and was looking for workers. The Committee decided that four of the five individuals could continue to be counted as not competitively employable, but only while they remained enrolled in the drug rehabilitation program and lived in the half-way house. This decision was based on additional documentation that the court had provided and that was in their files; primarily the court’s requirement for close supervision while working. The individual that was trying to work for both the commercial company and the nonprofit was released by the nonprofit because of his continued use of illegal drugs. Worked for previous commercial contractor Here are two examples of people with severe disabilities who had worked on the previous commercial contract. One is competitively employable and the other is not. In the first case, when the nonprofit reviewed the current workforce, they found that a number of people had what could be considered a severe disability. Deciding that they wanted to count the individuals towards the 75 percent requirement, the nonprofit went on to also declare the individual not competitively employable. One of the individuals suffered from depression and was under a doctor’s care and was taking several medications. However, even though the individual was diagnosed with major depression her performance was excellent and she had a good attendance record. Given this, the nonprofit did not need to provide any accommodation or supports to the individual. They therefore could not consider this individual to be not competitively employable. 18 In the other case an individual worked for a commercial contractor as a medical transcriptionist and telecommuted from home. The commercial contractor had hired and trained the individual, but even after an extensive period of time, she continued to fall short of the company’s minimum performance standards for transcription rates and work hours. As a result, they had reached the point where they were considering termination. In this case the nonprofit was able to provide her with another position, documenting her severe disability. But, they also documented that although she had been previously competitively employed, her low work tolerance made her not competitively employable. It is important to note that when an employee of a previous commercial contractor is determined to be not competitively employable, the nonprofit must be extremely careful to adequately document the reasoning for the determination. In such cases, the previous contractor must have been providing accommodations or supports that would be considered beyond reasonable. Such accommodations would not typically be found in normal competitive job situations. 19 Discussion of Commonly seen Disabilities in the JWOD Program Although mental retardation and significant mental illness predominate as the majority of severe disabilities in the JWOD program, demographics reveal a number of other disabilities to be quite prevalent. In this section, several such disabilities are specifically mentioned as examples. Although psychological, physical and medical conditions are dissimilar, they require the same kind of assessment in terms of understanding the degree of impairment, and exercise of informed judgment in determining non-competitive employability. Learning disability - General Learning disabilities come in a variety of forms and tend to be characterized more as barriers to educational and academic learning, than obstacles to the kind of performance-based training that is seen in the JWOD program. As well, learning disabilities range widely in the degree of their manifestation. Some individuals only have dyslexia, but are above average in intelligence, while others have more pervasive problems that put them in the low seventies to eighty IQ range. In the latter cases, they would certainly have a more difficult time finding work, given their narrowed options, but for the most part, one cannot claim that they are unequivocally not competitively employable on that basis alone. This is due to the fact that they don’t fit the criteria previously specified in 41CFR51-1.3, “…which so limits the person's functional capabilities (mobility, communication, self-care, self-direction, work tolerance.” The majority of individuals in our society, who are in this range, are competitively employed. However, as stated above, additional debilitating issues could and would likely change this, and in cases of marked or pervasive learning disabilities, it would not take much to compromise their employability, on the basis of an aggregate of disabling factors. The Committee has also seen cases where people are classified as learning disable that actually could be classified as having a different disability. The individual doing the classification sees the other disability as more severe and doesn’t want to place a stigma on the person being classified. Specifically we have seen documentation from school systems that classify people with mentally retardation as learning disabled. In short, learning disabilities can be considerd severe, if additional documentation supporting one or more other disabling conditions is present, and the overall impairments when taken together, would cause an individual to be not competitively employable. Attention Deficit Disorder (ADD) This is not by itself a severe disability. However in its severest form, with significant hyper activity (ADDH) as the salient issue, other relevant 20 psychological problems may be misattributed to it, certainly as it is manifest in adults. Other diagnosable conditions if present must be documented. As ADD is typically not so pervasively debilitating, additional disability issues are required to certify the person as severely disabled. And if combined with other learning disabilities, some degree of significance needs to be documented, in order to understand how it causes the individual to be not competitively employable. Due to so many individuals with ADD or ADDH diagnoses having quite high intelligence, the nonprofit needs to document what disability-related accommodations are required to keep this individual employed. Illiteracy The inability to read would definitely have an adverse impact on a person’s job prospects, but without any causal cognitive indicators inherent in the individual and noted as an Axis II diagnosis, it must be seen as purely an educational deficit (“disadvantaged” being a common alternative term) and cannot be considered a disability, much less a severe one. At present, most illiteracy that is encountered, falls into the category of English illiteracy, or an inability to read and write in English beyond the primary school level. Recent immigrants who may have had limited educational opportunity in their native countries comprise most of this group. Sociological factors that exacerbate employability are not disabilities. Dyslexia This disorder is similar but less adverse than illiteracy, because those who experience it can actually read, albeit with varying degrees of difficulty. It is termed a disability because of its symptoms of visual or cognitive misperception, but is minor in light of global life functioning. Like ADD, many persons of high intelligence and achievement have this disorder. However, to reiterate, even when severe, dyslexia is only an impediment to reading, which alone is insufficient to make someone not competitively employable. It is also germane that the overwhelming majority of jobs within the JWOD program do not require reading beyond a rudimentary level, if at all. Mental Illness Axis I diagnoses such as schizophrenia and bipolar disorders that have psychotic components are commonly considered “severe,” because even when responsive to treatment, they remain pervasively disabling. As a class, such individuals are consistent with 41CFR51-1.3 and the extent of the disability will be obvious from the diagnosis. Accommodations for them are normally a straightforward matter given the substantial nature of what is required. 21 Other disorders with similar psychotic characteristics should also be seen as severe disabilities, schizoaffective and Schizophreniform Disorders for example. These significant mental illnesses are typically severe enough to bring about non-competitive employability in an overwhelming number of those with the diagnosis. As above, determining competitive employability is a function of enumerating the significant accommodations that must typically be provided. Affective or mood disorders Those such as: Major Depressive Disorder, Dysthymic Disorder, and both Bipolar I and II Disorder are significant enough in their manifestations to warrant a presumption of severe disability. Similarly, Cyclothymic Disorder in most cases can be considered as such. Singular diagnoses of Depression or Anxiety are different, because they fall on a continuum. At the most severe end, their manifestations would render a person not competitively employable, In the case of depression for example, it would constitute major depression with associated physical symptoms. However, in its mildest forms, most who are depressed at this level, are competitively employed. The effectiveness of medications in such disorders is highly relevant. On occasion, the only measures of workers’ depressive limitations are the notations of prescribed medication. However, there should be documentation of depressive behavior, beyond that which the medication has controlled, for in the absence of such, the individual would be not impaired. Absenteeism is quite germane to people who have depression, but it must be recorded and be at a level well beyond what non disabled workers experience. With the various forms of anxiety: Generalized, Panic, Social, Phobias, Obsessive-Compulsive and PTSD; the degree of impairment must be ascertained, just as it needs to be with a diagnosis of depression. Medical documentation in these areas must indicate the parameters of a diagnosis to be understood in disability terms. As such, affective or mood disorders will typically include • Clinical symptoms such as depressed mood and feelings of worthlessness or guilt., apprehension fear, or even terror. • Behavioral symptoms might include social withdrawal or agitation. • Cognitive symptoms, or problems in thinking include difficulty with concentration or making decisions. • Somatic or physical symptoms can include insomnia, hypersomnia, migraines , loss or gain of weight, and alimentary digestive problems. With knowledge of the above, one can proceed by answering the following question: How disabling is this condition? What are its impairments? To what extent does it limit the individual? As such, any description in the psychological evaluation that describes intensity, frequency and duration of episodes can 22 give one a good sense of this. What aspect of this worker’s disability is limiting his or her productivity? And how much? What accommodations or supports are required because of it? These issues are essential in both verifying the severity of the workers’ disability, and its capacity to bring about a loss of competitiveness. But they are just as important in order to better support the worker’s productivity. As for Personality Disorders, there are 11: Paranoid, Schizoid, Schizo Typal, Anti-social, Borderline, Histrionic, Narcissistic, Avoidant, Dependant, ObsessiveCompulsive and Personality Disorder NOS. Although there is some variation as to their impact in a job setting, each one of these diagnoses should be considered to be a severe disability, because any given individual having been so diagnosed, would (unless otherwise indicated) be sufficiently affected by it, to be not competitively employable. Most will have found competitive work in the past, but given the serious nature and pervasiveness of a personality disorder, their work histories will usually show that they have been markedly unsuccessful in maintaining such work. Other mental disorders Many exist, with some being inherently severe while others may or may not be: cognitive disorders, somatoform Disorders, dissociative Disorders and ImpulseControl Disorders are typically severe enough to bring about a loss of competitiveness. But there are no substitutes for definitive medical documentation that is consistent with a solid competitive employment evaluation. Physical Disabilities Presented below are several commonly seen conditions, which require assessments of extent and degree of impairment, in order to understand the limitation of functioning. If severity is to be ascertained, a measure of how it impacts a person’s ability to find and maintain work, must be established. Amputation The loss of a limb, or part of one, may or may not be considered severe, based similarly to the criteria of other disabling conditions, on the extent of functional impairment. And as in other disabilities, there can be a range. In most cases, loss of a hand would be a severe disability, particularly if a dominant hand has been lost, and involving a persons who is only capable of manual work. However, the loss of a finger or fingers requires much more scrutiny. Each individual must be assessed as to accommodations required and loss of productivity attributable to the amputation, measured. The salience of the amputation must also be considered: from loss of an arm above the elbow, or below; loss of hand, to loss of fingers to partial loss of 23 fingers, to the loss of a single finger. The inherent adaptability or lack of it in each individual is very relevant in an evaluation, and past work history can be helpful here. Also pertinent is any adverse synergy from other physical or psychological conditions. However if present, they must be separately diagnosed and documented. In the wake of recent-day prosthetic developments, especially in cases of belowthe-knee amputations, a well-functioning prosthetic can reduce the limiting impairment to a near unnoticeable level. As a result, a slight residual limp would not be considered a severe disability, but an inability to stand and walk around for most of a shift (in the case of a janitor say), may well result in a person losing their competitiveness. In terms of other common limits, an overall loss of productivity may be seen as a result of the individual working around his limitation, i.e. inefficiencies in stooping bending and kneeling; lessened ability to push and pull equipment; and reduced speed generally. All such limits need to be measured against an established standard, if for no other reason than to understand the extent of the amputation’s disablement. More effective, appropriate and disability-centered accommodations will surely follow. Nonprofits need to consider the whole person in such a determination, and how related factors, in aggregate, might or might not lead to their being determined not competitively employable. What residual disabling effects are a direct results of the amputation? Was the individual referred to the nonprofit at the vocational end of their post amputation rehabilitation? Or, had they been working competitively for some years subsequent to it? What accommodations must be provided in relation to the worker’s amputation? The answers to such questions are fundamental to the competitive evaluation. Arthritis This condition is frequently presented, by virtue of the medical documentation, with only vague descriptions of its disabling effects. At one end of a continuum, arthritis can generate occasional mild pain in one or more joints. However, at the extreme other end, severe arthritis, and certainly rheumatoid arthritis, can lead to near total incapacity. In order to gain any reckoning of severity, one must be able to understand where the person is on this spectrum. As always, it begins with a definitive diagnosis; is it osteoarthritis or osteoporosis et cetera? Measurability of its extent then becomes the next step. If walking is affected, how much so? What are the actual restrictions to walking? Standing? Stooping? Other areas such as arthritis in the spine or shoulders will affect a person’s ability to stand for periods of time, or to reach. How long or how often can they do such tasks? Quantified pain is also relevant: is it constant or episodic? How long to typical episodes last? How intense is it? So intense that it results in loss of work time? The question of which medications are being taken and how they have served to ameliorate the symptoms also needs to be answered. Given such wide variability in this disease, from one individual to 24 another, nothing can be presumed. It is therefore essential that the fullest extent of its disabling effects be shown. Deafness Although the measurement or threshold for blindness has long been codified in law (legal blindness), the same is not so for deafness. Many individuals are cited in their medical documentation as being “hearing impaired,” which only indicates that there is a loss of hearing along some gradient. This obviously covers a wide range. In such cases, the first question should always be, how impaired? Other vague references such as “hearing loss” generate the similar question, how much? Quite often though, audiological reports can be arcane, but familiarization with them can aid in justifying a determination, to say nothing of making more appropriate accommodations. Certainly however, anyone who is deaf enough that they cannot hear the spoken word, under normal conditions, should be considered severely disabled. If the hearing loss is to the degree that it has caused significant speech impairment, this would be a relevant and ADDITIVE, if not determinative indicator of severity. However, if a person can hear, even with the use of hearing aids, and can communicate adequately, the functional impairment caused by the deficit, must be seen as quite a bit less. Such a limited loss would still be a disability, but not a severe one. The person might still be seen as not competitively employable, but would require additional disabling conditions to justify that significant impairments exist. As a further guide, consider the portion of the Helen Keller National Center Act definition of deaf-blind that deals with deafness: “…who has a chronic hearing impairment so severe that most speech cannot be understood with optimum amplification, or a progressive hearing loss having a prognosis leading to this condition.” Diabetes This is first a medical condition, not necessarily a de facto severe disability. However in its graver manifestations, it can produce a number of highly debilitating symptoms (up to and including death): blindness, impairments to cardiac functioning and vascular degeneration and neuropathy in the extremities, particularly legs and feet. Kidney problems are also often associated with Diabetes, and all such debilitating issues and their degree of impairment should be specified. If not documented, they do not exist. Epilepsy and Seizure Disorders 25 Epilepsy is not a distinct disease, but rather a group of disorders for which recurrent unprovoked seizures are the main symptom. Such seizures are brought about by abnormal electrical discharges from brain cells, often in the cerebral cortex, either secondary to a particular brain abnormality, or of unknown etiology. There are several types of seizures and for the purposes of the JWOD program it is their effect on a given individual’s employability that is critical. A number of anticonvulsant medications are effective in controlling seizures, from complete elimination to reducing their frequency. For those diagnosed with a seizure disorder, there are essentially three questions to be answered: 1. Are they taking medication for the disorder? 2. Has this treatment eliminated or just reduced the frequency of seizures? 3. If only a reduction has been achieved and seizures still occur (when the disorder is termed “medically Refractory”); what is the frequency and type? There are several types of seizures, but that which is most relevant to the JWOD program (as is true of medical conditions generally) occurs when the disorder is such that it compromises a person’s competitive employability. Unless otherwise indicated, Tonic-clonic seizures (sometimes referred to as grand mal seizures) are the type which reliably causes a loss of competitiveness. Other types of seizures with less severe manifestations and less frequent occurrences have the potential for causing non-competitive employability, but they cannot routinely be presumed to do so. They would need to be characterized by their effects, wherein significant job accommodations would be required for issues related to the seizure disorder. If seizures are fully controlled by medication and the individual is functioning within the normal range, then the individual should be considered competitively employable. Howver, if a worker has a seizure disorder and has been seizure free for an extended period of time, but is still felt to be not competitively employable due to the effects of the medication that is being used that should be documented. A marked and measurable decline in cognitive function is known to correlate with many cases of epilepsy (although it has not been definitively established as to what extent this is due to the epilepsy itself or to the drugs used to treat it). However, if a cognitive deficit is present, it should not necessarily be seen as an inherent symptom of epilepsy, and should be a separate Axis 2 diagnosis. Hypertension High blood pressure may or may not have inherent physically disabling issues, it can exist by itself, in varying measurable degrees of severity, or it may itself be a symptom of some more serious cardio-vascular condition, with still other parallel symptoms being present. Nonetheless, whatever is present must be noted, with 26 some indication as to the degree of physical limitation and impairment produced by it. Many individuals, who have mild to moderate high blood pressure that is responding to medication, will incur little debilitating effects. As such, documentation should specify how the person is responding to treatment, or what physical restrictions continue to exist in spite of such treatment. What major job accommodations are being provided because of it? Multiple - Disabilities of a Less Than Severe Nature Quite often, individuals have two or more diagnosed conditions, which by themselves are not severe disabilities. However, if the total impairment to the individual is sufficient to reasonably cause a loss of competitiveness, then they can be accepted as severely disabled. And as in all the disabilities mentioned, a sound determination is always a function of how well the degree of impairment can be ascertained. The more adequate the medical documentation and the workplace evaluations, the sounder the justification. It is a fact however that many medical records are the result of treatment interventions. With such, diagnoses and prescribed treatments are typically the only indications specified. The existence of disabling effects may be missing. To meet JWOD program requirements, most medical conditions need to be seen in both qualitative and quantitative terms. Without it, measurability and hence severity can be impossible to ascertain. If it cannot be determined from the documentation present, the individual cannot be counted toward the agency’s severely disabled ratio. Referencing another example; if a person’s record indicates that they have some arthritis in their knees, and diabetes requiring insulin injections, with no other details, additional information would be needed to establish the degree in which these conditions are manifest. Work assessment can contribute substantially here, insomuch as the individual’s ability or inability to stand and walk about through the workday is pertinent. However all the potential ancillary medical issues related to diabetes can offer some reckoning of an incremental adverse impact on employability. Heart insufficiency, obesity, renal issues etc. all can impact a person’s ability to hold a competitive job, by causing the person to have frequent absences, if that is the case. Such conditions are all about limitations; what are they and how much do they limit? Whatever the case however, the JWOD program requires that they be documented in order to be seen to exist. The issue of absenteeism was incorporated into the JWOD program from the outset, in its being measured in hours rather than simply jobs. Nonprofits participating in the JWOD program routinely provide accommodation to significantly higher levels of “lost work,” than does the competitive workplace. Limited work tolerance directly related to the full range of disabilities is the major contributor to this. 27 In assessing a person’s capacity to hold a competitive job, a best judgment ultimately has to be made. Unfortunately, the medical issues and mental limitations presented, do not come with numeric values to be simply added up. In the end, it might be distilled to; how reasonable was the judgment? Would a reasonable observer, albeit one knowledgeable of such criteria, see this person as being severely disabled, to the point that they would be unable to find and maintain a normal competitive job on their own? When the judgment is not so reasonable, it tends to occur when the disabling condition at issue hasn’t been thought through in the manner described in this paper. Instead, an outside reviewer might find justifications such as: • State DVR referral accepted without a clear diagnosis • Poor work history equated with non-competitive employability • Social disadvantages used as disability intensifiers. Obesity In assessing whether or not obesity is a severe disability, the term “morbid obesity” should be used as a benchmark. At this level, physical restrictions become so significant as to compromise employability in the vast majority of cases, and wherein mere obesity alone would not. Morbid obesity refers to individuals who have a body mass index) (BMI) value of 40 or more (an arbitrary but reasonable threshold for presumption). Alternative measurements that begin much lower, such as 50% above or 100 lbs. above “ideal body weight,” may be medically relevant, but generally do not ordinarily produce enough impairment of functioning to presume a severe disability. It is important to note that morbid obesity has a number of medical conditions that are highly correlated with it: diabetes, hypertension, heart disease, stroke, depression, osteoarthritis, hypoxemia and certain psychological disorders. Each of these conditions should be documented when present, with the extent of their debilitating effects noted. Alcohol, Drug addiction and other substance abuse Prior to 1992 the Committee did not accept alcohol or drug addiction as a severe disability under the JWOD Program. In September 1992, the Committee reviewed this decision and stated decided that although: “…The legislative history is silent on this subject… The Committee has no legal basis for excluding from eligibility for JWOD benefits recovering alcoholics and drug abusers who meet the employment criterion.” And, 28 “…to permit recovering alcoholics and drug abusers (with appropriate documentation of their disorders) to be counted as "other severely handicapped" if they meet the employment criterion.” However the Committee went further: “On the other hand, based on the same legislative history, operating history, and Congressional and Executive Branch hearings and correspondence, it seems eminently reasonable to conclude that individuals with these disabilities were not intended to be the primary--or even a substantial portion of the--target population of the JWOD Program. As a result, the Committee also has a responsibility to guard against a significant shift toward using the JWOD Program to serve recovering alcoholics and drug abusers.” “..who meet the employment criterion.” Again, this remains a central point. However, how one satisfies that criterion, appears to be where the difficulties arise. Substance Abuse must be seen in terms of how it’s disabling in each specific case, and its impact on each individual’s ability or inability to find and maintain competitive employment, at the present time. The impairments that brought about a loss of competitiveness, which were a direct result of a clinical addiction (an operative term when considering severity), must be shown. To justify a severe disability on the basis of substance abuse, there needs to be a medical diagnosis of fairly recent addiction (a severity indicator), and as a direct result of this, some form of ongoing therapeutic involvement. Without this, the record might only contain notations of some unspecified history of an individual’s use/abuse of a controlled substance. Excluding issues of conduct and unemployability, such occasional indulgence likely would not result in true non-competitive employability, and even less so with the passage of time, given rehabilitative efforts and sustained abstinence. References in the record to unquantified “usage” in some vague past timeframe is quite inadequate because it may have little or no bearing on the person’s present employability. In the medical documentation, terms such as “former substance abuser” is problematic, i.e. how long has it been? Did they indulge in drugs way back in the sixties? More recently? What drugs? When and how so? For how long a period? To what extent? In the absence of these questions being documented, all we would really have is an able-bodied individual, who is otherwise not cognitively impaired, being counted as a severely disabled worker. In other words, the mere notation of a person having a substance abuse history is not a self-evident cause for considering the individual to be severely disabled or non-competitive employable. In completing a medical history, patients sometimes tell their physicians that they’ve used illicit substances. Such disclosures will invariably be noted in their records, albeit with ambiguous terms such as “history of substance abuse.” They 29 may also report overindulgence in alcohol, which will also be documented as medically relevant. However neither may be in any way significant enough to cause the person to be severely disabled or not competitively employable. And if it was ever so, it may not be at present. When gauging the severity of substance abuse, the establishment of its parameters is similar to that of other disability conditions previously described. In this, it must be shown to directly bring about a loss of competitive employment, “…over an extended period of time.” Evaluation frequency The Committee has stated that recovering addicts and alcoholics can participate in the program. However, the Committee does not accept the idea that in terms of competitive employment that an individual is recovering forever, and hence will always be automatically not competitively employable. The Committee presumes that after a period of time and rehabilitative effort, these individuals will become competitively employable, unless documented with clinical interventions that indicate otherwise. The Committee has for a number of years, considered a period of one to two years to be a cut-off for non-competitiveness, for an individual whose sole documented disability is alcohol or drug addiction. Such a line is admittedly arbitrary, but this can be amendable to a rehab professionals’ judgment, given additional complicating addiction-related factors that may persist in any individual’s case, and provided they are documented in a manner whereby said factors can be seen to cause continued non-competitive employability. Diagnoses of “use” and “abuse” of substances should not expect the same presumptions because they are separate, lesser severe diagnoses, than that of “dependency,” and with much less profound long-term treatment ramifications. Such distinctions relate directly to their capacity or lack of it, to affect an individuals being capable of engaging in normal competitive employment. Put another way, and given a straight-forward case, with no complicating factors, one year beyond starting work at the nonprofit, would seem to be a reasonable maximum. At some point, it must be acknowledged as to when each individual is drug free, relatively addiction resistant, mentally competent and physically able. To state it again, if the period is to be extended, it must be justifiable, by the worker’s continued non-competitive employability, and for the strong addictionrelated reasons causing it. The commonly applied adjective “recovering” is not an operative justification for this, given its implication that recovery is perpetual. Such is a misnomer in the sense that it is not actually recovery that is perpetual, but rather the continuing and persistent need for abstinence and sobriety. And by extension, this also does not mean that lifelong rehabilitation is needed, whereby competitive employment has been indefinitely compromised. Active vs. Passive Programs 30 The Committee has for some time also required an “active rehabilitation” component to be in evidence. Active programs involve structured therapeutic interventions, the kind provided by half-way houses for example, or psychotherapeutic or medical treatment delivered by facilities with this specific mission. Such requirements serve two purposes; one, such persons typically are not very employable in the general economy, while living in a treatment half-way house or the like; and two, such persons by definition tend to be in the earlier phase of their rehabilitation, and thus are at a much more vulnerable stage, recidivism being at a high rate among them. These two factors constitute the reason such persons are considered temporarily severely disabled and not competitively employable. Although it has long served many individuals as a means of their maintaining sobriety and abstinence, participation in Alcoholics Anonymous or AA is not a useful means of determining or verifying an individual’s ongoing status of noncompetitive employability due to substance abuse. Although highly regarded for its effectiveness, AA is a passive program, allowing its members to come as frequently or as infrequently as they desire, and to participate or not as they may wish. It is a self-help maintenance group, not a professional organization or agency providing early-on alcohol and substance abuse rehabilitation. Certainly, attendance at its meetings has little direct relationship to a person’s non-competitive employability. Some who attend AA only attend occasionally, while engaging in frequent bouts of alcohol use inbetween. Many others attend AA regularly, years after they’ve successfully quit all abuse. Some are employed, some are not. As a result of such wide variability, nonprofit staffs need to be able to make such distinctions, and that is why they need relevant feedback from formalized organizations, and which AA cannot provide. Verification of a present severe condition is the key here. Coexisting Disability Issues Any disabling conditions (of any measurable degree) that exist simultaneously with post Alcohol and drug addiction which are documented, should be given weight as complicating factors. However, this weight should always be proportional to their degree of severity in producing additional measurable degrees of impairment. If a person remains uncompetitive, due to a coexisting condition typically psychiatric or psychological, it needs to be diagnosed and documented by an appropriate licensed professional. It should not be misattributed or understood to be a self-evident function or symptom of substance abuse. On the other hand, Substance-Induced mental Disorders may be present and cause a variety of symptoms that are characteristic of other mental disorders. 31 When existing, they will have an adverse effect on competitive employability, but as they are neither inherent nor self-evident they require a differential diagnosis. Verification The provision of documentation verifying treatment, is a mutual and consensual arrangement between the employee and the nonprofit, wherein as part of the terms of employment, the worker agrees to allow their employer to obtain (by signing a release of information) a verification of their source of, and continuance in alcohol or drug treatment. This is generally true for all categories of disability, not just alcohol/and drug dependency, and may seem slightly more intrusive here, due to its stigma and need for more frequent assurance. It is important to understand however, that in the context of the JWOD program, such a disclosure does not close the door to employment (as it may elsewhere), but rather opens it. Again, as in all categories, a person must have a severe disability to participate in the JWOD program, and the nonprofit must have some means of verifying that such a disability exists, and continues to exist. Verification that a worker is participating in an active alcohol/drug rehab program is therefore not unreasonable. However, verification can hardly occur without a valid means of verification. Veterans Affairs (VA) Disability Ratings (all conditions) VA ratings of disability are specified in percentages, Fractions of 100 percent, at which total disablement is implied. The problem is, these percentages of “disability” do not necessarily measure degrees of disability. Rather, they are simply adjudicated levels of a “compensable medical condition.” These conditions may or may not have a functional disability component, irrespective of percentage. Although a rating of “100% disabled” would in most cases result in a person being considered severe, it is not necessarily so, and it is usually very far from the total incapacity implied by 100 percent. Conversely, perceptions of total disablement at 100 percent, often cause fractional amounts to appear as approximations of this same whole. As a result, a worker with a 40% rating for example, is commonly seen as being only able to function at 60% of a nondisabled worker’s level. Determinations of severely disabled and not competitively employable then follow. However, the worker’s demonstrated productivity and negligible need for accommodation typically tell a different story. VA rating certificates that serve to document a workers’ claim to a severe disability do not always even give a diagnosis. Sometimes only an anatomical location is mentioned, such as “Left knee 20%.” Very rarely is there a rendering as to the actual extent of disablement, the rating percentage operating as a kind of substitute. But as stated above, ratings percentages are not a reliable measure of functional disability. Useful clinical descriptions and measures of impairment may exist in the VA medical record, but through their adjudication process said quantifications are converted into the ratings noted. Whatever 32 percentage assigned however, actual degrees of impairment and description of functional limitation are indispensable when trying to determine whether a person is not competitively employable. Hence VA percentages by themselves, do not constitute adequate documentation of a severe disability for the JWOD Program. 33 FREQUENTLY ASKED QUESTIONS 1. WHAT QUALIFIES A NON-PROFIT AGENCY TO PARTICIPATE IN THE JWOD PROGRAM? In order to participate in the JWOD Program a nonprofit must be verified by the Committee as a 2. HOW DOES JWOD DEFINE A SEVERELY DISABLED INDIVIDUAL? The Committee’s regulations (41CFR51) define severely disabled as: Other severely handicapped and severely handicapped individuals (hereinafter persons with severe disabilities) mean a person other than a blind person who has a severe physical or mental impairment (a residual, limiting condition resulting from an injury, disease, or congenital defect) which so limits the person's functional capabilities (mobility, communication, self-care, self-direction, work tolerance or work skills) that the individual is unable to engage in normal competitive employment over an extended period of time. (1) Capability for normal competitive employment shall be determined from information developed by an ongoing evaluation program conducted by or for the nonprofit agency and shall include as a minimum, a preadmission evaluation and a reevaluation at least annually of each individual's capability for normal competitive employment. (2) A person with a severe mental or physical impairment who is able to engage in normal competitive employment because the impairment has been overcome or the condition has been substantially corrected is not "other severely handicapped" within the meaning of the definition. 3. WHAT KIND OF DOCUMENTS ARE REQUIRED SO THAT A NON-PROFIT AGENCY CAN CERTIFY SOMEONE AS BEING "SEVERELY DISABLED"? A written report signed by a licensed physician, psychiatrist, or qualified psychologist, reflecting the nature and extent of the disability or disabilities that cause such person to qualify as a person with a severe disability, or a certification of the disability or disabilities by a State or local governmental entity. A key point frequently missed when reviewing this statement is that the documentation must provide information on the extent of the disability. 4. WHAT DOES JWOD MEAN WHEN IT USES THE TERM, "NORMAL 34 COMPETITIVE EMPLOYMENT"? The Committee has historically defined it as the ability of an individual to find, obtain and maintain a non-JWOD job, with no supports from a nonprofit. Commensurate wages would not be involved, because they are not a part of normal employment. Put another way, the Committee considers an individual to be capable of normal competitive employment if the individual can do all of the following: Is capable of working a full work week (40 hours), Receives the same pay and benefits as any other worker performing comparable work, Only requires accommodations considered reasonable under ADA, Can maintain a job for an extended period of time (months. if not years), Can maintain a job without intervention from outside sources. 5. WHAT KIND OF DOCUMENTATION IS REQUIRED IN ORDER TO HELP DETERMINE IF A PERSON IS NOT COMPETITIVELY EMPLOYABLE? The nonprofit needs to be able to document that it is providing the individual with accommodations and supports that would not be considered reasonable by most employers. Information on the individual’s productivity, level of supervision required, work tolerance and disruptive behavioral issues are common examples. 6. WHY DOES JWOD REQUIRE A "COMPETITIVE EMPLOYMENT" EVALUATION? The evaluation is done to insure that the JWOD Program is serving those people that it was intended to serve. The language of the JWOD act specifies that to be counted towards the 75% direct labor ratio an individual must be severely disabled and not competitively employable. Just because an individual has a severe disability it does not mean that they are competitively unemployable. In addition because people are capable of overcoming their disabilities, the assessment that an individual is not competitively employable must be reviewed annual to insure that it is still correct. 7. HOW IS THE COMPETITIVE EMPLOYMENT EVALUATION CONDUCTED? The nonprofit must have an evaluation program, with the individual making the decision being one who is knowledgeable of people with severe disabilities. While the individual’s direct supervisor has the best understanding of how the individual is performing on the job, the supervisor seldom has the background knowledge of severe disabilities required by the regulations. Therefore, while the supervisor’s opinion should be a critical part of the evaluation (particularly where 35 it pertains to the implementation of accommodations and the individual work performance), the evaluation should usually be completed by another individual, such as the rehabilitation director or counselor at the nonprofit. 8. WHAT IS AN "INITIAL ASSESSMENT"? The initial assessment is the first evaluation by the nonprofit agency that an individual being considered to be counted towards the 75% direct labor ratio is in fact severely disabled and not competitively employable. It should be completed after the individual has been at the nonprofit long enough to adequately determine what accommodations and supports are required, but after no more than 30 days. 9. WHAT IS AN "ANNUAL ASSESSMENT? The annual assessment is the yearly evaluation by the nonprofit agency that an individual being counted towards the 75% direct labor ratio is still severely disabled and not competitively employable. 10. WHAT ARE THE COMMONLY SEEN DISABILITIES IN THE JWOD PROGRAM? A demographic survey conducted by NISH in 2005 found the following distribution Mental retardation Mental Illness Physical Disabilities Developmental disabilities Deafness/Hearing impairment Substance Abuse/Alcoholism Neurological/Epilepsy 37% 21% 13% 9% 4% 4% 3% Note: these were provide by NISH as preliminary results we need to check before we go final on this guide 11. CAN YOU SHOW ME SOME EXAMPLES OF ACCEPTABLE MEDICAL, ASSESSMENT, AND EVALUATIVE DOCUMENTATION? See the Examples of Acceptable Evaluations section of this guide; which begins on page XXX. 36 Glossary Accommodation – In normal employment settings, employers are obligated to provide “reasonable” accommodations to all workers under the Americans with Disabilities Act (ADA), though whether some particular accommodation is reasonable or unreasonable, has often been the subject of litigation. Still, when there is a consensus that it is not reasonable, or an unfair burden on an employer, such an accommodation will hardly ever be found in normal competitive employment. On the other hand, extensive job supports are routinely found in nonprofits participating in the JWOD program. Commensurate wages – Also frequently referred to as subminimum wages. Commensurate wages are wages that are commensurate with, and tied to, a worker’s productivity. The authority to pay commensurate wages is contained in the Fair labor Standards Act in Section 14c and is administered by the Department of Labor (DOL). In order to pay commensurate wages a nonprofit must have a certificate from DOL. No matter the type of work, the output is usually some measured fraction of a properly established standard. Based on this productivity and the prevailing wage for the type of work being done, the wages calculated may or may not be below the Federal or State minimum wage. DSM– (DSM-IV or DSM-4) –Diagnostic and Statistical Manual of Mental Disorders, 4th Edition (1994) – The principal reference book for psychiatrists, psychologists, mental health counselors and therapists. It includes: classifications and diagnostic codes, diagnostic criteria and symptoms, treatment options, prognoses and research findings for all mental disorders. Five Axis Assessment – A multi-axial summation from DSM-4, each of which refers to a different domain of information: Axis I: Clinical/mental Disorders and syndromes such as schizophrenia and bipolar disorders. Axis II: Personality Disorders; developmental disorders. Includes diagnoses such as paranoia and antisocial personality disorders, and others like autism and mental retardation. Axis III: General Medical Conditions; Includes physical conditions such as decreased function due to a brain injury. Axis IV: Psychosocial and Environmental stressors Axis V: Global Assessment of Functioning (GAF) Scale: rated with respect only to psychological, social, and occupational functioning; does not include impairment in functioning due to physical or environmental limitations. Medical documentation – documents that contain a clear diagnosis of what condition or combination of conditions has resulted in an individual being considered to be severely disabled. [Ref. 41CFR51-1.3]. All verifying medical 37 documentation must be signed by a person who is qualified to make such an evaluation. [Ref. 41CFR51 - 4.3] Depending on the disability, the age of the documentation is relevant in that some disabling conditions can improve over time. [Ref. 41CFR51 - 1.3(2)] Normal competitive employment – commonly refers to general workplace jobs, for which all individuals compete. Any given individual may obtain such a job by any means, but must be able to maintain it with reasonable accommodations and without external supports from a CRP or nonprofit agency. It is full time employment, with the same wages and benefits as non-disabled co-workers assigned to the same activities. Pre-admission evaluation – an initial evaluation (and usually referred to as such) for an employee’s capability for normal competitive employment that is done within the individual’s first 30 days at the nonprofit. In this formalized process, staff assess the employee’s capacity for certain tasks, limitations engendered by their severe disability, and how the latter might be accommodated. An individual’s non-competitive employability is determined here. 38 Examples of Acceptable Documentation The following examples are from various JWOD nonprofits. They represent several different approaches to documenting competitive employability and whether an individual meets or doesn’t meet the Committee’s requirements. It must be stressed that these are not the only ways of meeting the Committee’s requirements, but are offered as examples to assist nonprofits in integrating the JWOD requirements into their other processes and procedures. 39 Competitive Employment evaluation Date; January 17, 2006 Name: Doe, Jane SSN: XXX-XX-XXXX DOB: 07/12/66 (40) JWOD Type: Annual Position: Janitor History Ms. Doe has been employed with AIS since 02/04/03. Initial JWOD review found Ms. Doe to be eligible based on mild Mental Retardation. Ms. Doe has been married for 12 years and has two children ages 7 and 10. Regarding her work history, she reported that she has worked as an exotic dancer, off and on since she was 20 years old. She worked doing cleaning for a company in the late 1980s, but stopped working there around 1988. She has also worked at a fast food restaurant for one year and tried working as a waitress for a restaurant/bar but was not kept beyond her trial period. She also had her own kiosk in a local mall briefly but her employer told her that she was too slow and she was let go. In the past, she has occasionally sold Avon. Medical Review A Psychological Evaluation was performed by Jan Smith, Ph. D. on 01/11/06. Dr. Smith diagnosed Mild Mental Retardation and dysthymic Disorder. A WAIS – III was administered and the results were a Verbal IQ of 61, Performance IQ of 69, and Full Scale IQ of 69 which is in the Extremely Low Range of intellectual ability. The Trail Making Test identified mild-moderate organic brain impairment. The WRAT3 showed skills and spelling to be at the 4th grade level and math skills to be at the 3rd grade level. The RAVLT found that Ms. Doe requires longer-than-average learning time for new material. The MMPI-2 was administered in an audio-taped version because of Ms. Doe’s low reading abilities. 40 Dr. Smith reported that Ms. Doe has a limited level of executive abilities which leaves her with deficits in the ability to plan, organize, self-monitor, and accommodate for mistakes or variability in performance. Her personality structure is such that she tends to appear aloof and may have poor interpersonal skills which would leave her prone to social isolation from an avoidance of others. She may suffer from mild, chronic depression. Ms. Doe will most likely need ongoing help with planning, organizing, prioritizing, and making modifications in her work performance. She is capable of learning verbally but her learning time is most likely much longer than for others. This is complicated by her tendency to avoid relaying information regarding deficits, to include non comprehension. It would be advisable for hr and supervisors to have her repeat instructions, to verify that she has understood them. Personnel File Review No findings of disciplinary action, incident reports, or any indication of behavioral issues on the job. Supervisor Review On 12/02/05, a phone interview was conducted with Ms. Doe’s supervisor, Don Jackson. Mr. Jackson reported that Ms. Doe completes a full eight hours worth of tasks within 8.5 hours. The reason for the extra 30 minutes is that Ms. Doe works at 2 separate sites during her eight hour shift. After she finishes her tasks at one, she has to walk to the other, in the dark. This makes her nervous and the anxiety causes a performance deficit. Mr. Jackson stated that Ms. Doe is able to adapt to changes in her routine, as long as she has additional time to adjust, have all of her questions answered, receive close supervision, and be comfortable that extra support is available if she needs it. Given this, she can adjust to occasional change. However, day to day changes would markedly reduce her productivity, as it would begin to overwhelm her. She can adapt to a new site, as long as her duties are relatively the same. Mr. Jackson also reported that Ms. Doe’s mental processing is slow, especially when questions are asked. Either the questions are not well understood, or an extended period for deliberation is needed. He stated that she has difficulty making decisions and using good judgment while performing her various tasks. He provided an example: Ms. Doe has a tendency to carry a bucket from one end of the school to the other, in order to clean a room. On completion, she will store the bucket in the closet closest to the room. The next time she cleans that room, she will carry a different bucket from one end of the school to the other. After not too long a period, all of the buckets in the school will be in one closet at the far end of the school. He stated that she persists with this, regardless of the number of times he has explains this problem to her. She is able to learn new tasks with verbal instructions, but that time must include slow simple explanations, modeling, supervising and providing reminders. 41 Mr. Jackson reported that Ms. Doe left her husband recently and she has requested a shift and site change. For the most part, she is very uncomfortable talking to people, especially if she does not know them. Ms. Doe needs to be placed at a work site where she is only expected to perform one task at a time. He stated that she requires 4-6 hours of direct supervision in order to insure that her tasks get completed, And Sometimes he has to assign part of her work to janitors on the next shifts. He stated that she is not able to multi-task, prioritize her tasks, or time manage her shift. He stated that he often finds Ms. Doe in the middle of a task, confused as to which step comes next. He stated that he had not been able to be present at Ms. Doe’s work site until recently, and did not realize how much she was struggling with her job duties. Employee Review On 12/20/05, a phone interview was conducted with Ms. Doe. She reported that she graduated from high school, but is “not a real exceptionist in math.” She was in Special Education and is able to read and write. She stated that she “took training on computers” in the past, but has not used those skills for work. She said that she has worked with the Office of Vocational Rehabilitation Services, and that agency may have been the one who referred her to AIS. When asked whether she received SSI or SSDI, she said that she used to a long time ago but that she does not anymore. When questioned as to why it was stopped, she answered, “1988.” The question ‘why’ was repeated and she then answered “I guess because I was working. Ms. Doe stated that she became anxious at times and has trouble breathing when she did. At such times, she must relax and breathe. She stated that this has been a problem all her life. She has not seen a doctor for quite some time and takes no medications. However, she said she needs to see one soon, because she has “an infection.” When questioned about this, she stated that she did not want to share the information, because she is self-conscious. She has two children, but when asked their ages, she responded, “I also have property taxes and the county one,” quickly adding, “My husband is injured.” Ms. Doe then began talking about how she had avoided another job, but that Child Protective Services (CPS) was called because of something in the driveway and she was charged $1,000. She began to talk about this situation at length but it was difficult to follow the events because she presented them in a scattered and fragmented manner. In response to whether or not she experienced any difficulties in performing her job duties, Ms. Doe stated, “I assist the night custodian and learned lots here. Most important to get things done and do the fire alarms. The question was reworded, “Do you have any problems at work?” In response to this, Ms. Doe stated, “I get confused about what to 42 do, you know, um.” After a long silence, she stated, “There are a few other things like fire alarms. Well, it’s a practice thing.” During the conversation, Ms. Doe appeared hesitant and guarded when answering direct questions. Most questions resulted in pauses that lasted for at least ten seconds before she responded. Her answers were delivered with very slow, halting speech. However, when she related her CPS story, she spoke without hesitations and more quickly than when responding to direct questions, where her answers often related to completely different subjects. Recommendations Ms. Doe has Mild Mental Retardation and a Dysthymic Disorder. She processes information slowly and has difficulty learning and executing new tasks. Her Dysthymic Disorder produces occasional depression. During such periods, she has a low energy level and has difficulty concentrating on her work. Ms. Doe will benefit from a structured environment and a set single-task routine, with minimal distractions, interruptions, or changes. She needs to be supervised closely and given reminders to help her complete her tasks correctly and in a timely manner. New tasks should be demonstrated to her with both verbal and manual instructions and, with additional time to learn them. Interaction with others should be limited, since it makes her very uncomfortable. She will benefit from encouragement and support on a daily basis. Assessment/Plan Based on this review, I believe that Ms. Doe does have a severe disability that is consistent with JWOD regulations. She demonstrates an inability to overcome the functional limitations of self-care, self-direction, work skills, work tolerance, and communication associated with Mild Mental Retardation and Dysthymic Disorder. These functional limitations preclude her from obtaining and maintaining competitive employment. I hereby find Ms. Doe to have a severe disability which so limits her functional capabilities that she is unable to engage in normal competitive employment over an extended period of time in accordance with JWOD standards Title 41 Part 51-1.3. JWOD Eligible: Yes Primary: Mild Mental Retardation Secondary: Dysthymic Disorder XX Disability/Eligibility Specialist 43 Rev. 1/05 INITIAL EVALUATION Supervisor: Please check the box below that best describes your new hire. External Hire – Disability documentation specifies competitive employment statement and limitations. Rehire – Disability documentation on file. Qualifies as a Schedule A hire – Previous federal employee with a disability. Initial Evaluation was conducted by management within 30 days (complete the reverse side of this Initial Evaluation if the above descriptions are not applicable). Comments Signature Date Title INITIAL CHECKLIST Adequate for Competitive Interferes with Competitive Employment Employment 1 1 WORK HABITS Attendance Punctuality Proper Notification when absent/late Takes breaks at designated time Leaves premises at designated times 44 Explain WORK TOLERANCE Attention to work details Frustration tolerance Follows written directions Follows oral directions Ability to maintain expected work pace Productivity rate Reaction to new assignments Need for work assignment accommodation INTERPERSONAL BEHAVIOR Interaction with supervisor Interaction with co-workers Demonstrates effort to work Management of conflict Ability to work without direct supervision OTHER (what supports are being provided to the employee) 45 WORK SKILLS RATING SCALE Competitive Employability Determination DATE __/__/__ INITIAL ___ Or ANNUAL ___ DISABLED EMPLOYEE __________________________ WORKSITE ______________________ EVALUATOR____________________________JOB TITLE_______________________ Please rank this disabled employee’s level of ability and performance , compared to that of a non-disabled, competitively employed individual, who is performing similar tasks. Rate each level of functioning by placing an”X” in the area which most closely describes the disabled employee’s current performance. WORK SKILLS RATINGS: Functional Limitations A. ATTENDANCE (Mark one) B. Degree of Present 95% or more Present 51% -94% Support provided Present 50% or less 95% or more 76% to 94% 51% to 75% 50% or less 95% or more 8o% or 94% 60% or 79% 59% or less INDEPENDENCE C. WORK HABITS % of time consumer is: 1. PUNCTUAL 2. COOPERATES with co-workers 3. COOPERATES with supervisors 4. Shows INITIATIVE by seeking work 5. ATTENTIVE to assigned tasks 6. Displays good APPEARANCE and/or HYGIENE 7. Accepts REDIRECTION 8. DEPENDABLE in completing tasks 9 Observes SAFETY rules & regulations 10. Follows DIRECTIONS 46 11. COMMUNICATES Effectively 12. Accepts CHANGE appropriately 13. Works well under PRESSURE 14. Identifies quality control issues Supports provided D. Work Tolerance RATINGS: Function Limitations 1. Demonstrates 6-8hr. work day 4-6 hr. task 2-4 hr. task Less than 2 hrs. 95% or more 80% to 94% 60% to 79% 59% or less 90% or more 70% to 89 % 50% to 69% Less than 50% STAMINA for SKILLS: % of time employee is able to: 2. Uses required TOOLS and EQUIPMENT appropriately 3. LEARNS NEW TASK quickly with minimal instruction 4. COMPLETES TASKS without errors 5. Makes fine DISCRIMINATIONS 6. Correctly MANIPULATES small objects/items Percentage of total job description performed 47 Index (NOT FINISHED) Competitive employment, page 5 Definition Evaluator’s background, pages 8 - 9 Indirect factors, page 9 Productivity considerations, page 9 Taking on workers from an existing commercial contract, pages 9 - 10 48