Irish Nurses Organisation The Whitworth Building North Brunswick Street, Dublin 7 Tel: (01) 664 0600 Fax: (01) 661 0466 To: tel Aine Breathnach Clerk to the Joint Committee on Health and Children Kildare House Kildare Street Dublin 2. SUBMISSION From IRISH NURSES ORGANISATION To JOINT COMMITTEE ON HEALTH AND CHILDREN Subject: Primary Medical Care in the Community -1- INTRODUCTION: This topic is one which is broad and varied, and which will be approached from the following points by the INO on behalf of its members working in Primary Care. Firstly, an overview of Nursing involvement in Primary Care will be given, both in residential settings and in Community Home/Clinic based settings. Secondly, matters specific to development of Primary Care Teams and Networks, will be presented. Finally, suggestions for development of Primary Care will be made, taking into account recent legislation changes in the area of Nurse Prescribing and the need for development of Advance Practice in Nursing in Primary Care. 1. OVERVIEW The INO represents 40,000 Nurses and Midwives. The main employment locations of Nurses and Midwives who work in Primary Care include:(i) Community based residential (Elderly Care) Units (HSE). Nurses manage Care of the Elderly and lead the care provided in these locations. Medical care is provided by General Practitioners. Currently there is a real human resource issue relating directly to staffing levels in Care of the Elderly settings. A number of independent staffing reviews have been conducted which recommended improved staffing levels, both Nursing and support staff. Due to the HSE embargo on recruitment, it has not been possible to fully implement these recommendations. A national committee independently chaired by Ms. Rosemary Ryan is currently sitting, and is tasked with examining the outstanding staffing review, with a view to implementation. -2- This real crisis in staffing is directly affecting the potential for growth and development of these services. Nursing led units have a high cost effective potential. The Private Sector is providing Nursing Home care also, but this is in the main for lower dependence patients. It is imperative that Public Care of the elderly and care of the long term chronic ill, is adequately resourced to ensure its development and expansion. Expansion areas include best practice models for dementia care, rehabilitation, as well as being able to provide care to an aging population when it is needed, as day patients, in-patients or on a respite basis. All of these services are Nurse led, and the development can be enhanced by promoting specialist nursing and advance nursing practice in this specific area. This would undoubtedly reduce the current necessity of transferring patients for any acute treatment to a General Hospital emergency department, from the Care of the Elderly services. The legislation introduced governing nurse prescribing also has a clear potential to enhance lives of the elderly in these settings and further reduce this current requirement for transfer to emergency departments of acute hospitals for treatment interventions. (ii) Community based Residential Care setting for those with intellectual disabilities, provided mainly by voluntary groups funded by the HSE, e.g. St. John of Gods, Sisters of Jesus and Mary, COPE Foundation and Daughters of Charity and others. ID Services – Registered Nurse Intellectual Disability education in Ireland is currently provided at honours degree level. Nurses work in community houses, residential care settings, and day services providing care to children and adults with an intellectual disability. The development of this service is concentrated on person centred development and independent living skills are promoted. -3- The shortage of staff again impacts on the development of services, and low funding is a constant issue. There is increasing dependency level at an earlier age in this community group and residential care for this population will be an ongoing requirement. Respite care and day care services are also provided and staffing levels – again impact on the availability of same. This is mainly a non-medical led service and one which has high potential for enhancement of services if adequately resourced. Unfortunately the opposite is in fact the reality, with a decrease of student Nurse’s places announced by the Government in October 2008 and a focus on recruitment of Social Care Workers - by voluntary group - based on inter alia cost and availability. The broad nature of the training and education of Registered Nurses in Intellectual Disability – is clearly a cost effective means of providing a person centred care plan to this population and their families. (iii) Hospice Care funded by HSE and HSE Hospice care. Direct Hospice Care is provided by Nurses to patients at end of live stage. Much care is provided in conjunction with and within agreed medical protocol, i.e. pain and symptom management. Counselling and family support services are also a large part of the nurse’s role in this area, and support to enable families to care for a terminally ill family member at home. Nurses provide this care to in-patients in Hospice facilities and at a Community home based level. Hospice care is mainly provided by voluntary groups with HSE funding. Hospice Nurses work closely with Public Health and General Community Nurses in delivering care, particularly in areas where shared care is required. -4- The current focus of this care is cancer related illness, and the need to expand into other areas of need – chronic heart failure etc., is a real requirement, which can be Nurse led and delivered in conjunction with Hospital based medical staff or G.P.’s. Again, the impediment is funding and the recruitment embargo. This service where it is provided, is highly beneficial to the families and individuals concerned. It is also very cost effective as it allows for home care and hospital discharge. (iv) Public Health Nurses (PHN’s) Public Health Nurses are specialist nurses educated to higher diploma level in the specific area of public health. The services they provide range from providing care from birth to end of life, to communities, focusing on preventative services with a view to keeping the population as healthy as possible. They also develop, in conjunction with Registered General Nurses, care plans for patient, which are delivered by the Community General Nurses and Nursing Assistants. Public Health Nurses provide care to mothers and babies in accordance with maternal and infant care scheme, and are obliged to visit every new mother and screen newborns for metabolic abnormalities, within three days of birth. Other maternal health and breast feeding support and promotion, are also the responsibility of PHN’s. Recently the requirement to be a midwife, prior to being accepted as a candidate on the higher diploma in Public Health Nursing, was removed. However most working PHN’s are Midwives and provide pre and post maternal health care to women. -5- Child health is a large part of the PHN role, including mandatory developmental clinics, at varying ages up to age 6, and longer if necessary. Delivery of pre-school services, including involvement with primary immunisation, parenting advice and support, particularly in an “at risk” situation. School going children are entitled to avail of programmed hearing and vision screening which is delivered by area medical officers and Public Health Nurses. Public Health Nurses also provide individual care to patients post discharge from Hospital and support family care in these circumstances. They provide a variety of services to the elderly and persons with disability and their carers in the home. The Public Health Nurse is responsible for designing care plans and providing direct care to communities. This ranges from preventative, education and actual care provision. This is a Nurse led service which has developed greatly since the Circular in 1966 outlining the functions. Clearly the services provided can be expanded based on this existing resource, and as the Primary Care team model is developed, this service can be supported by other allied health professionals in the provision of care. Public Health Nurses get referrals from other nurses, pre-discharge from acute hospital; Midwives pre-discharge from maternity services; General Practitioners; Community Nursing Units and other allied health professionals, i.e. Social Workers. PHN’s also refer patients directly to these services. The Commission on Nursing in 1998 recommended that PHN’s remain “at the core” of nursing services being delivered in the Community. It recommended that the PHN continue to be responsible for “People of all ages and of every condition. However, the PHN will also act as a coordinator in the delivery of a range of services in the Community.” (C.O.N. 8.26). -6- Again, unfortunately, poor staffing levels, particularly in urban areas, have had a negative influence on the overall ability of PHN’s to deliver a full range of services. The development of other nursing services in the community, such as the introduction of Community General Nurses in the early 1980’s and recent introduction of Community Midwives, is an area which can, and should, develop the overall nursing services, but a coordinated managed approach to integration of these and potentially other nursing services, is imperative and currently absent. (v) Community Registered General Nurses (CRGN’s) providing a range of clinical nursing care, in the home and at clinic level (e.g. wound dressings, post-hospitalisation support, medication supervision and administration if necessary). CRGN’s also provide general nursing care to patients post discharge and provide this care in accordance with a care plan developed with the PHN. This grade of Nurse was introduced to the community in a very ad-hoc manner. No specific community based training was provided, prior to working in the community. This is still a requirement which has not been provided. If properly resourced, this group can facilitate increased home based care and early discharge. The Community General Nurse who has acquired a great deal of experience in working in the community, could lead to the expansion of this service. Recruitment to this grade must be enhanced to allow expansion of this cost effective service. (vi) Emerging services of Community Midwives, providing pre and post partum care to ‘Mothers’. Community Midwife services are being piloted in Dublin, Cork and Galway. The services range from independent midwifery home birth services to pre and post maternal and health services. -7- The large Maternity Hospitals are all experiencing severe capacity problems which are leading to shorter stays in Maternity Hospitals requiring early discharge and expert Midwifery services are therefore becoming a requirement in the home. Clearly the benefits of expanding this service need to be explored and negotiated with the representative organisations as, providing early midwifery services can facilitate early discharge from over capacity Maternity Hospitals and provide a person centred home based care to mothers. Community Midwives are well placed to lead and provide this care as a cost effective service which, will again, be enhanced by the legislation governing nurse prescribing. (vii) Practice Nurses – providing clinical care to patients attending General Practitioners. Clinical based, can range from preventative - Well Health Clinics, to diabetic management, weight/diet control clinics to Health Screening Clinics, e.g. National Cervical Screening Programme. While General Practitioners hold clinical responsibility for all smears taken, under the new contract, Practice Nurses currently conduct smear testing and are being registered as smear takers with the National Cervical Screening Programme. Ongoing disease management is also part of this role as is clinical Nursing Care. The Practice Nurse is privately employed by the General Practitioner. A grant of €42,000 per annum, is paid by the HSE to G.P.’s who employ Practice Nurses and who provide services to General Medical Care Scheme patients. -8- 2. PRIMARY CARE TEAM/NETWORKS Irish Nurses Organisation members, employed as PHN’s, RGN’s, Practice Nurse and Midwives, as outlined earlier in this Submission, are working in the Community providing Primary Care and are now being asked to change the dynamic of this work into Primary Care Teams and Network Groups. Midwifery Community based services have not been confirmed at Primary Care Team level. It is suggested that they will be network based. The Irish Nurses Organisation represents 1,600 Public Health Nurses, 560 Community General Nurses and in excess of 900 Practice Nurses who currently work in the Community and provide a Community Healthcare service which is based on delivering healthcare in the home or in a Community based Clinic. Public Health Nurses and Community General Nurses work for the HSE. Practice Nurses are privately employed by the GP. The integration of the Public Health Service with the Private GP and Practice Nurse services is important and the seamless interaction between Public and Private will be necessary in order to provide integrated Primary Healthcare to citizens. The INO is in favour of Primary Care delivery of health care and its enhancement but, have real issues relating to matters of the following:A. Eligibility B. Public/Private Mix C. Integration and Co-operation between the Primary Health Care and the Acute Hospital Services. D. Staffing Levels These matters have been raised directly with the HSE and discussions are ongoing in respect of them. It is important however to briefly outline for the benefit of the Oireachtas Committee what these concerns are. -9- A. Eligibility Currently it is estimated that 30% plus of the population whose income falls below a certain threshold, are entitled to a wide range, including nursing services, of free services. The remaining percentage of the population has limited eligibility. In the case of Public Health Nursing services, they are provided to GMS patients and maternal and child health care is provided to all, regardless of GMS status. The stated position of the HSE in respect of Primary Care Services is that they will be universally available. The INO has requested the criteria for access to services and have been advised that this is a governmental decision, not yet made, but the stated objective of providing care to all regardless of GMS status remains. Clearly comprehensive eligibility criteria must be in place, notified to Hospitals, General Practitioners, Voluntary Health Care Providers and the general public. A service can only be delivered on the basis of population size if the size of the population is known. Staff planning and service planning cannot be conducted in a vacuum and needs to be linked to eligible populations and predicted increase to it. There are significant workforce implications that need to be linked to eligibility criteria, and eligibility has to be categorised into areas of care, for example; health promotion and preventative services surely must be available to all, if the intention is to keep the population as healthy as possible? If this is the case, the staffing resource allocation must reflect this population number. This is an area where Public Health Nurses have a large body of experience in and where there is substantial room for cost effective and long term savings associated with preventative and health promotion programmes, led by and delivered by PHN and other Nursing grades. - 10 - B. Public/Private Mix Again, as previously outlined, GP and the Practice Nurses they employ, are not publicly employed. The configuration of the private employer into a Public Primary Care Team will bring many benefits to both service providers and the population receiving this service. Currently, care is provided in conjunction with GP’s by Nurses in Care of the Elderly facilities, and other community based care areas. Practice Nurses provide care to both GMS and private patients of GP’s. The role and responsibilities of the GP in a Primary Care Team setting is important and must ensure the continuation of the good liaison relationship between GP’s and Public Health Nurses, Community General Nurses and others in the provision of Primary Care. Publicly employed Nurses and privately employed Nurses will need to have a clear comprehensive link in respect of care provision. The Primary Care Team provides an opportunity for expansion of the role of Practice Nurses in health promotion and prevention but again the issue of eligibility will have to be agreed to ensure a seamless provision of service. Likewise, information sharing will be enhanced by participation of privately employed Practice Nurses in Primary Care teams. Much discussion and negotiation needs to take place regarding this integration and mix of public and private employees. The issue of equality of conditions of employment being a very important factor, particularly as pay and conditions for Practice Nurses are determined differently by each GP and the provision of pension, is absent or not standard. Other members of the Primary Care Team including PHN’s and Community RGN’s are public servants and have nationally agreed salary and pension arrangements, which allow for greater independence of service delivery. - 11 - The provision of premises for Primary Care Teams is a matter of concern also. It is understood that the premises will be in the main, privately owned and leased to the HSE at a cost. Again, this is an ongoing cost and is an issue that needs to be examined from the point of view of effective utilisation of available funding. C. Integration and Co-operation between the Primary Health Care and the Acute Hospital Services. If the Primary Care objectives of; providing health care closer to the home, lessening the current reliance on hospital based services and reducing the need for referrals to emergency and out-patient departments are to be met, it is imperative that real agreements regarding rapid access clinics, access to diagnostic centres are in place and resourced immediately. The alternative is that the Primary Care Teams, will invariably be reliant on the Private Sector to provide this service at a premium rate – to the Public Service. The Public Hospital system which is constantly over capacity for diagnostics and treatment, needs to have additional capacity of human and capital resources made available to ensure Primary Health care is to succeed. Cost effective and good practice measures such as appointment of Liaison Nurses to work between Primary and Secondary Care must be invested in. there are a small number of these posts in place and prove very effective in aiding discharge planning. Additional support to hospital based discharge planning and enhancement of the role of discharge planning nursing personnel, to allow discharge take place within agreed protocol, is without question a cost effective efficient system which needs to be introduced without delay. - 12 - D. Staffing Levels Throughout this Submission, examples of service enhancement – Nurse led, have been highlighted and the difficulties that arise in respect of funding and employment levels. Despite the fact that nursing led services are cost effective, enhance patient’s experience of health care and add value to overall patient experience and outcomes, the levels of employment of Nurses is reducing. This is now also reflected in reduction in numbers being trained from 2009 onwards. There is a large degree of research which suggests, that expanding Nurses roles are under-evaluated particularly in terms of their costeffectiveness. The expansion of the nursing role in Primary Health Care is imperative to its success. This investment would enhance an efficient cost effective provision of non-hospital based care. This requires a Policy decision to exclude front line nursing personnel from recruitment embargos, and a clear focus on further educational opportunities to train sufficient Nurses and to ensure advance practice in this area. CONCLUSION: Nursing personnel provide a wide and varied population based health care in the Community (Primary Care). Current public policy is focused on developing Primary Care, with a view to providing a greater degree of Community based care and to reduce the reliance of the acute hospital system. This development has to be underpinned by; Clear eligibility criteria and clarification on policy of public and private care provision. - 13 - Investment in greater co-operation between primary health care and acute hospital diagnostic and rapid access clinics as well as liaison and discharge planning enhancement. Enhancement of the potential of Nurse led services which are cost effective and well placed to provide a range of community based care. Currently the concern of the INO is that the focus of the HSE is on reaching targets set nationally in respect of numbers of Primary Care teams in operation (97 by year end 2008). This “achieving target” approach ignored the basic principle of planning; Population needs planning – based on eligibility criteria – not yet agreed with government. Human Resource Planning to ensure delivery of services; there are significant workforce issues not yet addressed, inclusive of grades and numbers assigned to networks, not yet agreed, or indeed developed. Job descriptions for Public Health Nurses and Community General Nurses who will be assigned to Primary Care teams are currently being negotiated, yet the HSE claim to have 87 working Primary Care Teams in operation. Likewise, not all Primary Care Teams have GP involvement. Overall, while this development is ongoing, greater attention is needed in the areas of added cost effective value, which Nurses can bring to Primary care. This includes the recent legislative change which allows for Nurse prescribing and as previously described in this Submission, the very real potential this brings to enhancement of Community based care. Likewise the potential for Advance Nurse/Midwife Practice has not been explored or focused on to any great degree in the Community setting. Statutory Regulation exist governing accreditation standards for Advance Nurse/Midwife Practitioners, part of these standards are commitment of the service provider to the post. - 14 - There are currently 100 approved ANP/ANM posts in the Republic of Ireland. Only 32 of these posts are approved in non-acute large band 1 hospitals. Of these 32, there is only one post based in Primary Care. Clearly this is an area that needs to be invested in and supported going forward. The danger for Primary Care Teams is that the focus on getting practitioner together in one place, reaching targets of 97 “operating” teams necessary by the end of 2008, will not in itself, change the delivery of care in the community, and may not reduce the reliance on the acute system. This Submission has raised suggestions in areas of Nursing involvement and development which we believe would enhance and promote a cost effective approach to delivery of care in the Community. We would welcome the opportunity to elaborate on any of the issues raised in this Submission directly with the Oireachtas Committee. PHIL Ni SHEAGHDHA, Director of Industrial Relations, Irish Nurses Organisation. - 15 -