BAPN eNews
April 2012
Dear Member,
Welcome to April's BAPN eNews the announcements of the AGM at the Renal
Association Conference and future vacancies on the BAPN Committee.
We hope you enjoy this month's read.
Best wishes,
Mary McGraw
BAPN President
Sally Feather
BAPN Secretary
Announcement of BAPN AGM at Renal Association Conference,
Gateshead
The BAPN AGM will take place on Tuesday 12th June from 12:30 to 13:30 in Room C9 at the Renal
Association Conference. Please make a note of the date in your diaries, further details will follow.
Announcement of future vacancies on BAPN Executive
committee
The Communications Officer and Ordinary member (new consultant) of the BAPN Executive will finish their
terms of office in Autumn 2012. More details of the posts can be obtained from BAPN website. Please could
you send any nominations to sally.feather@leedsth.nhs.uk by end of May 2012. If there is more than one
nomination a vote will be organised.
RADAR update
April has seen the re-launch of the RADAR website. It represents the culmination of much work transferring
running of the site to a new design team who also run Renal Patient View. The script has been rewritten into
the same language as RPV and the database transferred to the same secure server. Future work will enable
the two databases to integrate for seamless information transfer. For the user the website appears identical
and any bugs have been fixed.
Meanwhile recruitment continues for the two pilot studies, Membrano Proliferative Glomerulo Nephritis and
Steroid Resistant Nephrotic Syndrome, with over 270 patients recruited nationwide to participate in this
cutting edge research. Both study groups are keen to help further recruitment and are happy to help if
required (please contact Sally.Johnson@nuth.nhs.uk(MPGN) or h.mccarthy@bristol.ac.uk (SRNS)).
Paediatric Nephrology Mission to Sousse: Message from
Mignon McCulloch
Paediatric Nephrology Mission to Sousse 20-27 May 2012
Dr Saoussen is seeking assistance from a UK paediatric nephrologist to assist with renal transplantation of five
paediatric patients. If anyone is available please could they contact DR Saussen:
abroug.saoussen@rns.tn or mignonmcculloch@yahoo.co.uk
ARPKD
The First Autosomal Recessive Polycystic Kidney Disease Patient Information Day takes place on Saturday 30
June 2012 at Birmingham Children's Hospital.
It is free of charge and it's being organised by the ARPKD Rare Disease Working Group in conjunction with the
PKD Charity.
It is for the benefit of patients and their families.
Please click here to view details of day.
Vacancies on ESPN Council
Two vacancies have arisen on ESPN Council. Please could any interested parties contact Pierre Cochat for
further details pierre.cochat@chu-lyon.fr
Letter from Daniel Renault: Président AIRG - France
Dear Professor/Doctor President National Society of Pediatric Nephrologists
I am writing you in your capacity of representative of the European Society for Pediatric Nephrology in your
country. AIRG-France has taken recently the initiative of creating a European federation on genetic renal
diseases, called FEDERG in liaison with European professional organizations (ESPN-ERA/EDTA) and the
support of the European patient's organization on rare diseases EURORDIS.
I was invited by the Secretary of ESPN to make a presentation of the FEDERG initiative last 15th March 2012
in front of the ESPN Council in Amsterdam. Following the discussion with the council, it was proposed to
contact all ESPN national representatives to inform them about the initiative, and about the founding meeting
in Paris to be held in Paris the 26th May 2012.
We would very much appreciate if you could disseminate this information among your colleagues and among
national patient associations which are concerned by genetic renal diseases.
We thank you very much in advance for your help and for the support of ESPN.
Respectful
Daniel Renault
Président AIRG -France
daniel.renault34@orange.fr
Tel 00 33 4 67 27 55 24 / 00 33 6 89 27 79 64
Management of Chronic Kidney Disease
Warwick University Renal Course,
This is a course introducing the underlying scientific background, pathophysiology and clinical management of
chronic kidney disease. Optional accreditation leads to a masters level Postgraduate Award.
Details from Dr Charlotte Moonan Email: Charlotte.Moonan@warwick.ac.uk or Tel 024 7652 3540.
25 - 28 September 2012.
The Kidney as an Endocrine Organ
Warwick UniversityRenal Course, 4 - 7 December 2012.
This is a course providing a comprehensive insight into the role of the kidney as an endocrine organ.
The course will introduce the basic physiology of the main endocrine functions of the kidney and clinical
conditions associated with abnormal function including hypertension, diabetes mellitus and chronic kidney
disease. Optional accreditation leads to a masters level Postgraduate Award.
Details from Dr Charlotte Moonan Email: Charlotte.Moonan@warwick.ac.uk or Tel 024 7652 3540.
If you have any ideas or would like to include an article or event in eNews, please contact the Renal
Association/BAPN Secretariat on 0870 458 4155 or BAPN@mci-group.com