SRAG 10/12 SCOTTISH GOVERNMENT HEALTH DIRECTORATES SCOTTISH RADIOTHERAPY ADVISORY GROUP Date: Friday 14th May 2010 Action Notes Present: Alan Rodger (Chair) Jennifer Armstrong Garry Currie David Dodds Rachael Dunk Sara Erridge Carrie Featherstone Janice Fletcher Sarah Grierson (SJG) (Secretariat) Terry Kehoe Ian Lees AGENDA ITEM 1 WELCOME, INTRODUCTIONS AND APOLOGIES Graham MacDonald Alan Mcnair Una Milne Isobel Neil Elizabeth Preston Nicola Redgewell Graeme Robertson Lesley-Jean Rugg Salam Souliman Laura Steele (Secretariat) Andy Wallace By Videoconference: Apologies: Lesley Cairns Diane Brawn David Dunlop (DDun) Gary Jenkins Margaret Spalding Steve Colligan Tim Cooper John Dewar Peter Gent David Linden Carol MacGregor Paddy Niblock Michael Williams In Attendance: Neil McLaughlin DISCUSSION Rachael Dunk, Head of Cancer Strategies, was in attendance and hoped to attend at least two SRAG meetings per year, as she does with other advisory group meetings. Alan Rodger thanked Sara Erridge for fulfilling her role as Acting Chair during his time in Australia. Sara has also accepted Rachael Dunk’s invitation to become Deputy Chair of SRAG. Fraser Brunton has stepped down as Chair of TSE and so no longer will be attending SRAG meetings. Fraser was thanked for his sterling ACTION(S) AGREED LEAD(S) DATE 1 SRAG 10/12 2 ACTION NOTES FROM PREVIOUS MEETING contribution to TSE and SRAG. SGHD is pleased that Garry Currie accepted the offer to take on this role. Garry will attend SRAG with a dual role and must advise when he speaks on behalf of TSE or for his centre. Isobel Neil, Programme Director - Cancer Access, attended the meeting in the David Linden’s (project lead for the Processes & Pathways work) absence. Alan McNair, Research Manager in the Chief Scientist Office attended for the RT Research in Scotland agenda item. Although it was anticipated Ian Waugh (SG-Head of Capital Planning) would be attending in reference to agenda item 5, he was unable to attend and it was noted that Jennifer Armstrong would lead on this agenda item in his absence. Neil McLaughlin attended in place of Peter Gent. Apologies were received from John Dewar, Graham MacDonald, Les Samuel, Steve Colligan, Carol MacGregor, Peter Gent, Tim Cooper and Michael Williams. The action notes on SRAG 09/65, from 20th The amended action notes will be published on the Better November, were approved with the following amendment on page 14 (under the agenda item on Cancer Care web site. In Vivo Dosimetry): Helen Stewart noted that in Glasgow, there are not the resources to put IVD on all their linacs. to Helen Stewart noted that in Glasgow, there is the intention to introduce IVD on all their linacs. SJG June 10 2 SRAG 10/12 3 MATTERS ARISING: Proton Beam 4 TSE SUB GROUP – REPORT FROM CHAIR 5 CAPITAL Mike Winters from NSD is in the process of finalising a paper on the Scottish Pathway for Consideration of Funding of Proton Therapy, which sets out an agreed pathway for use by all Clinical Oncologists and others who would wish to refer a patient for Proton Beam Therapy funded by NHSScotland. Once finalised, this paper will be circulated to SRAG for its ratification. Garry Currie updated SRAG on the earlier TSE meeting, which was presented with three business cases. A business case was submitted by NHS Highland for a replacement linear accelerator. Although the need for a replacement machine in NHS Highland was approved, the preferred option of a Tomotherapy machine, as specified in the Highland business case, was not approved by the majority of TSE members. TSE had agreed Highland’s replacement machine, as with all replacement equipment over the next two years, should be procured by way of the national strategic procurement project (see agenda item #5). TSE had also approved the purchase of two replacement simulators and a linear accelerator for NHS Lothian, again, as part of the proposed national procurement project. Sarah Grierson to circulate Mike Winters’ paper once available for SRAG’s ratification SJG/ALL TBD SRAG agreed with TSE’s recommendation to approve the purchase of two replacement simulators and a linear accelerator for NHS Lothian and a linear accelerator for NHS Highland, as part of the proposed national procurement project. ALL n/a Jennifer Armstrong provided feedback from a 3 SRAG 10/12 PLANNING meeting held on 31st March on RT Equipment Procurement, involving TSE and financial representatives from each centre. Paper SRAG 10/02 provides some background to this and is an extract from a briefing that was submitted to the Cabinet Secretary on this matter. At this meeting, a proposal was agreed by all centres for rapid progression of national, strategic procurement for all RT replacement equipment specified on version 17 of the radiotherapy replacement plan, for financial years 2010/112011/12. Due to the current financial climate and SG’s commitment to continue to support all Scottish cancer centres in replacing radiotherapy equipment, a national procurement process will ensure better value for money. It was confirmed that project planning was underway to ensure the speedy application of this process. The project would entail the submission of one, national business case for all equipment to be replaced during 2010/11 and 2011/12, as per Version 17 of the plan. This submission would strengthen the negotiating position. John Slater, Health Facilities Scotland, had written a paper with the following points being agreed: - approval from all sites on the outlined approach - commitment to the single business case approach - commitment to exploring a turnkey approach - commitment to provision of resources (i.e. Group members) - acknowledgement of tight timescales to achieve SRAG agreed to support the national, procurement of replacement equipment exercise. ALL Scottish Government were to write to NHS Boards to emphasis the importance of SJG 4 SRAG 10/12 objectives. 6 UPDATE FROM NRIG 7 REVIEW OF RT ACTIVITY PLANNING REPORT Development of Agreed Data Set (NATCANSAT and Caldicott Guardians) their role in the national, strategic procurement process, asking Boards to ensure project arrangements are in place to facilitate timely sign-off of business cases. SRAG will receive a copy of this letter. John Slater would become the project lead, with a project team being established with representation from all centres. The project team would be a subset of TSE and would report to an overseeing project board. Although there were some concerns around delays – including to the installation of NHS Lothian’s and NHS Highland’s linacs – all centres, TSE and SRAG gave its approval of this proposal. It was noted at the meeting on 31st March that TSE would receive outline business cases from two centres in the meantime, in order to assess the clinical and cost benefits. Carrie Featherstone reported that the NRIG SRAG to consider the NRIG subgroup on complex technologies was looking at report once it becomes clinical protocols for extra-stereotactic radiotherapy available. and whether or not there is a need to commercially engage with suppliers. A report is expected by the end of the year. Jennifer Armstrong provided a verbal update on the progress to date, including SGHD asking for Caldicott Guardians’ consent to share data. Diane Brawn voiced her concerns on asking every patient for consent and the (resourcing) implications. In response, Jennifer noted that ISD advice is as long as patients know about data use and that they have the right to opt out, there is no issue with seeking consent for each individual database. Many NHS Boards produce standard leaflets CF/ALL 2010 5 SRAG 10/12 Radiotherapy Demand And Capacity Modelling and Waiting Times Progress from the Pathways & Processes Group which inform patients how personal information is used/disclosed and the reasons behind sharing their information within NHS. All centres had therefore been asked to ensure that patients attending radiotherapy received an information leaflet on data use. Information should also advise how refusals are acted upon. The identification of patients in England has not been an issue, since any rare tumours are extracted from the data A Scottish representative on NATCANSAT would be useful. It was felt that an ISD colleague could represent Scotland and Jennifer will propose this. Isobel Neil’s team provided funding to five NHS Boards to provide data to NATCANSAT so that all centres should be ready for 20th June, which is when the first download is to take place. There may still be a software issue in NHS Tayside, however. Jennifer will liaise with NATCANSAT and ISD to seek Scottish representation. The final version of the Modelling Work on Future Centres to contact Sara Erridge / Carrie Featherstone Demand was provided on paper SRAG 10/04 and if data on page 10 of the Carrie Featherstone and Sara Erridge were report requires updating. If thanked for the large amount of work to produce no updates were provided by this report. 31st May 2010, the report This piece of work will inform the Pathways & would be considered to be Processes Group’s work. the final version. The C-PORT Project Manager, Christina Lilley, SRAG will receive the report has had her contract extended to work on the in the autumn for production of a report based on the modelling consideration.. work and cancer incidence, looking at capacity Laura Steele to coordinate issues and the feasibility of satellite centres. and circulate details of the It was felt an additional meeting should take September meeting. JA June 10 ALL 31 May 10 ALL autumn 10 LS June 10 6 SRAG 10/12 place in September, to focus discussions on the demand and capacity work, including satellite centres. This meeting will be for TSE and SRAG members. Secretary’s Note: A meeting date for this half-day meeting has been set for 23rd September 2010. In David Linden’s absence, Isobel Neil joined the meeting to provide an update (paper SRAG 10/05), including the group’s workplan and the outcomes from the February workshop. There were 12 areas of work that relate to the key themes emerging from the workshop, some of which SRAG agreed to take forward (please note, numbers relate to numbering on SRAG 10/05) i.e. 4. Consider recommendations for service provision for lower volume radiotherapy treatments. It would be helpful to determine a definition of ‘lower volume’ for this strand of work. 8. Facilitate discussions with NES around role development and career progression that helps to address recruitment and retention issues. This area is being looked at by the working group chaired by Arthur Johnston (Short Life Working Group on Physics Staffing for Radiography, Radiotherapy and Nuclear Medicine in Scotland) and it was agreed that to avoid duplication, SRAG would consider the short life working group’s discussions. However, SRAG would be interested to learn NES’ view. Carrie Featherstone to write a paper proposing a definition of what lower volume is. CF Aug 10 Jennifer Armstrong to provide feedback on the JA Aug 10 7 SRAG 10/12 working group. 9. Facilitate systems for regular and widespread Lesley-Jean Rugg and Diane use of patient experience surveys in radiotherapy Brawn to liaise and provide centres. Consultation is undertaken with patients in an update on staff surveys, cancer centres and it would be useful to learn what to include input from all five surveys entail and how the results are used for centres. service improvement. SRAG to receive a presentation at its next meeting on what surveys involve (i.e. methodology, questions asked, how results are used, how feedback is given). 10. Increase profile of SRAG and TSE e.g. Any good practice or through regular communication to staff working in common themes should be radiotherapy centres. fed back to the SG Healthcare Quality Strategy team via Sarah Grierson. This work will feature in the Scottish Cancer Taskforce newsletter. 11. Establish Radiotherapy research and trials network to maximise opportunities and capacity for patients to participate in trials across Scotland. Secretary’s Note: Following the meeting, it was confirmed that: Alan McNair can put SRAG members in contact with relevant people from the Scottish Cancer Research Network (SCRN) to help develop links. CSO can advise SRAG if a more formal network is L-JR, DB Aug 10 L-JR, DB Aug 10 ALL/SJG n/a SJG Newsletter due to be published in Sep 10 SJG Aug 10 Alan McNair TBD 8 SRAG 10/12 proposed and if requested, Alan McNair can organise a discussion between SCRN and SRAG to see if there is any 'common ground'. Alan McNair will extend an invitation for SRAG representation to the next SCRN annual meeting (date will be confirmed). 12. Review current patient and generalist health professional awareness about radiotherapy practice. Janice Fletcher is coordinating a conference for patients around the promotion of radiotherapy in October. Nurses are attending the event, who are often the ones who disseminate information to patients. A questionnaire can be circulated at the beginning and end of the event, to determine and compare the level of information learned at the event. The initial questionnaire can be used as a baseline. The Pathways & Processes Group will take forward the following pieces of work: 1. Commission a survey of outcomes for patients who have had radiotherapy (using an approach modified but similar to the NCEPOD chemotherapy study of 2009) There was a discussion around if the benefits of an analysis of radiotherapy patients dying 30 days after treatment would merit the resources required for such an exercise, since it would not be possible to ascertain which patients Sara Erridge to attend the NRIG Awareness Day on 11th June and will feedback to SRAG at the August meeting (under Matters Arising). SRAG members to suggest questions to be included in the survey to Una Milne (via Sarah Grierson). Janice Fletcher to provide feedback from her event. In order to provide feedback on the Pathways & Processes Group, David Linden/Isobel Neil and Christina Lilley to be invited to future SRAG meetings, including the extraordinary meeting being held in September. SE Aug 10 ALL/SJG/ UM Sept 10 JF Oct 10 SJG ongoing Secretary’s Note: 9 SRAG 10/12 died as a direct result of their treatment within such a limited timescale. However, the group felt the exercise would be beneficial to explore the number of patients who may not have required radiotherapy. The Pathways & Processes Group would take forward this piece of work, with support provided by SRAG. Jennifer Armstrong, Isobel Neil and David Linden to explore data linkage with David Brewster, ISD. JA, Isobel Neil and David Linden July 10 2. Undertake assessment of current capacity and efficiency using site visits to ensure that measures are comparable across centres. The working group is visiting Sheffield in June, as recommended by Tim Cooper. 3. Recommend feasibility study around acceptability and cost effectiveness of extended working hours and weekend working. 5. Benchmark current improvement methodology, the impact this has made on ways of working and potential for further work. 6. Explore patient transport issues and how these impact upon radiotherapy capacity. 7. Establish national clinical working groups to review and implement clinical management guidelines R-PORT Jennifer Armstrong informed the group that as part of her extended work to support the Pathways & Processes group, Christina Lilley, the C-PORT Project Manager, will also be facilitating the introduction of R-PORT to 10 SRAG 10/12 Scotland. Liz Preston is the R-PORT lead for SRAG. Christina Lilley was unable to attend today, but will attend a future SRAG as an observer. It would be helpful for an R-PORT lead to be identified for each centre. Workforce Planning Expected Radiography Establishments Lesley-Jean Rugg originally provided the information outlined in SRAG 10/06 to help inform the February workshop, following a request at SRAG’s November meeting. Although the data on the paper may have changed since its creation, the issues remain valid. It was agreed the establishments seemed current. The data is based on the original SoCR document (since the new SoCR document is to be read only in conjunction with the original document). Retiral age is set as 60 years. Edinburgh cancer centre’s establishment comparisons look relatively low. Some NHS Boards are freezing vacancies. Margaret Spalding asked if SRAG could apply pressures where possible, since there are a number of graduates in the education system but the there are limited posts available. Graduates may have to move south of the border for recruitment (vacancies tend to be at senior grades, therefore, not applicable to graduates). It would be useful if there were two recruitment opportunities, rather than one, each year. An R-PORT lead should be identified to Liz Preston (via Sarah Grierson) for each centre. All Centres/ SJG June 10 Lesley-Jean Rugg to update the paper with summer graduation figures for September’s extraordinary meeting. Liz Preston to circulate paper SRAG 10/06 to her Regional Cancer Group, to draw this area and comparative data to their attention. L-JR Sept 10 LP June 10 Margaret Spalding to produce a paper for the extraordinary SRAG meeting to give an overview of the situation with graduates in 2010 and to include - the numbers who received employment in Scotland - the numbers who moved to other UK countries for work MS Sept 10 11 SRAG 10/12 Short Life Working Group on Physics Staffing for Radiography, Radiotherapy and Nuclear Medicine in Scotland 8 BRACHYTHERAP Y Update to NoSCAN Gynae BT Progress Report National Review of Brachytherapy Graeme Robertson and Jennifer Armstrong attended a short life working group, looking at radiation protection and screening, as well as recruitment management. Another meeting is planned for June – which NES will also attend - and data should be available on the existing establishments and vacancies. The conclusions are awaited. In the letter to Richard Carey, Chair of NoSPG, SRAG requested quarterly reports on how the project is progressing. Peter Gent had written a letter to the Cancer Strategies team and although not available today, Neil McLachlan, MCN Manager (CRC, Gynaecology, Haematology & Upper GI Cancer) for NoSCAN, attended SRAG to talk to this paper (SRAG 10/07). Neil McLachlan reported that although gynae brachytherapy is progressing in the north, installation of PDR is taking longer than had been anticipated, however, it is expected to be in place and operational by the end of the year. Neil McLachlan asserted that a contingency plan for the north as a result of George Plataniotis’ (NHS Grampian) departure is not required. - the numbers who remained in Scotland, without a job in the field - the reasons why submissions seem high. The SRAG physics representatives are to liaise to write a paper, providing information for the September extraordinary meeting (along similar lines as SRAG 10/06). GR/TK/GC /SS/SC Sept 10 SJG/PN Sept 10 Peter Gent or his deputy (Gillian Christie) is to provide a further written report for SRAG’s August meeting. PG Aug 10 Peter Gent to confirm if a contingency plan is required following the notice given by Aberdeen’s brachytherapist. PG June 10 Jennifer Armstrong provided a verbal update, 12 SRAG 10/12 advising the National Review Group, chaired by Gareth Davies, met in March 2010. The terms of reference and membership had been agreed and the group is in the process of drawing up a draft framework for the final report. Contingency planning will be addressed as part of the National Review. SRAG will be kept informed of progress. Following this meeting, a request was made to NHS QIS’ Scottish Health Technology Assessment Group for an evaluation note on brachytherapy (refer to SAG 10/09), which will help inform the review. The results are due in June 10. 9 COMPLEX SRAG 10/08 comprised a letter that was written TECHNOLOGIES to the cancer centres by SG (signatory Sara Erridge, when she was fulfilling her role as Acting In Vivo Dosimetry Chair of SRAG). The letter outlines the position which has been proposed to be adopted for Scotland as an interim only. The proposed position confirms that IVD should be used in a random selection of radical patients receiving photon 3D CRT– a minimum of 10% of patients within each tumour site undergoing radical treatment (a minimum of 10 patients per annum) assessed each year and to include all patients for the first three months following the introduction of any new development (or a minimum of the first 10. This position was proposed pending a review of clinical and cost effectiveness by the Scottish Health Technologies Group of both IVD and exit dosimetry. SRAG to receive its next update at the August meeting. SJG Aug 10 13 SRAG 10/12 It was stressed to the group that this proposed position provides a minimum requirement and acknowledges that some centres are already exceeding the recommendations SGHD is following this letter up with the two centres not currently delivering IVD. Health Technology Assessments 10 VERT 11 PATIENTS’ ISSUES SRAG 10/09 outlines the HTA requests, following consultation with SRAG and the National Brachytherapy Review Group. NHS QIS Scottish Health Technology Assessment Group has agreed to conduct these and their assessments should be concluded by June 2010. Outcomes from the DH The SoCOR (draft) report on VERT has been evaluation report to be circulated to NRIG but has been embargoed till considered by SRAG. 21 May, to allow NRIG to comment on it (since they commissioned it). Once it becomes available after 21 May, Sarah Grierson can circulate for ‘virtual’ discussion by SRAG. The Cabinet Secretary is keen to be kept informed of SRAG’s discussions and recommendations on VERT and so we need to carefully consider the report and its implications for Scotland. It may even require a small group of people to consider this in more detail before a recommendation can be made to the Cabinet Secretary. A children’s day is being run by Maggies Centres, to that children who have parents with cancer can meet other children in similar situations. Very positive feedback has been received from these events. A similar event has taken place in NHS Tayside, which has run open evenings in the past, aimed at ALL TBD 14 SRAG 10/12 reducing the ‘mystique’ of cancer treatments – patients can visit the centre, meet professionals and see the treatment rooms. Ian Lees (SRAG patient representative) expressed an interest in attending such events and representatives from the Dundee confirmed they would be willing to facilitate his attendance at any events they hold in the future. It was notes that some funding for events could be provided by patient groups (to cover catering costs etc) although it was agreed staffing costs for out of hours events also have to be considered. 12 RT RESEARCH IN Secretary’s Note: This agenda item was taken at the start of the SCOTLAND meeting. Sara Erridge had provided a summary of the current situation for research in Scotland in paper SRAG 10/10. The questions posed in the paper are how to develop a Scottish strategy and how to get some funding for this. CSO is currently providing funding of £6million per annum which includes radiotherapy research. Alan McNair advised the group that since autonomy has been given to the NHS Boards on the way they spend SG investment, the clinical community need to collaborate nationally and discuss any radiotherapy research issues with the research & development directors. David Dodds reported that Glasgow is soon to appoint a research professor. Margaret Spalding noted that NHS Boards should engage with the higher education institutes for 15 SRAG 10/12 support. Sara Erridge as the Deputy SRAG Chair to attend SE to attend the NHS Research Scotland meeting on the NHS Research Scotland meeting on 9th July. 9th July and feedback to the group (August 2010). Secretary’s Note: Alan McNair left the meeting following the agenda item. 13 RT Incidents in New York SE Aug 10 Sara Erridge provided this NY Times article (SRAG 10/11) regarding incidents in RT treatment in USA. Alan Rodger read out the following comments provided by Arthur Johnston: The most surprising feature of this article for me was the number of incident reports: 'Even though many accident details are confidential under state law, the records described 621 mistakes from 2001 to 2008. While most were minor, causing no immediate injury, they nonetheless illuminate underlying problems. The Times found that on 133 occasions, devices used to shape or modulate radiation beams — contributing factors in the injuries to Mr. Jerome-Parks and Ms. JnCharles — were left out, wrongly positioned or otherwise misused. 'On 284 occasions, radiation missed all or part of its intended target or treated the wrong body part entirely.' It might be useful if someone could shed some light on why these numbers (for NY State) are apparently so much higher than anything we'd expect in the UK. Arthur 16 SRAG 10/12 14 AOCB The consensus from the group was that Scotland would not be in a similar position to USA as USA has smaller, commercial centres, many of which may only commission physics to install equipment (i.e. and not have physicists on the establishment on a permanent basis). Alan Rodger raised the point that centres need to provide SGHD early warning of any issues, including those that may have that are likely to impact on waiting times, so that SRAG and SG are kept informed in the case of any media queries. A Royal College of Radiologists event is being held on 22nd September on stereotactic body radiation. In addition, members were advised of a lung specific stereotactic radiotherapy event in Leeds on the 11th of June. All centres will proactively contact SGHD with any issues in cancer centres, including waiting times. Laura Steele to circulate the Royal College of Radiographers event details with the action notes. Secretary’s Note: Event details can be found at: https://www.rcr.ac.uk/members area/multievents/displayEvent.a sp?Type=Full&Code=COASM 2010 ALL ad hoc LS June 10 DATES OF NEXT MEETINGS The meeting on Thursday 10th August has now been cancelled. Thursday 4th November, Scottish Health Services Centre (video conferencing available) Cancer Strategies June 2010 17