SUBMISSION OF ARCH DISABILITY LAW CENTRE To the College of Physicians and Surgeons of Ontario In response to The College’s Consultation on its Draft Policies: “Establishing a Physician-Patient Relationship” and “Ending the Physician-Patient Relationship” May 12, 2008 ARCH Disability Law Centre 425 Bloor Street East, Suite 110 Toronto, Ontario M4W 3R5 Tel.: (416) 482-8255 Toll-free: 1-866-482-2724 TTY: (416) 482-1254 Toll-free: 1-866-482-2728 Fax: (416) 482-2981 Toll-free: 1-866-881-2723 www.archdisabilitylaw.ca 1 ABOUT THIS SUBMISSION Thank you for the opportunity to comment on the draft policies “Establishing a Physician-Patient Relationship” and “Ending the Physician-Patient Relationship” (Draft Policies). Since ARCH’s mandate is to defend and advance the equality rights of people with disabilities, this submission focuses on those aspects of the Draft Policies that specifically impact people with disabilities. ARCH urges the College of Physicians and Surgeons of Ontario (CPSO) to ensure that the final policies address our concerns because of the important role medical services play in the lives of people with disabilities, in terms of both their health and their access to government programs and services. People with disabilities have greater unmet medical needs than the rest of Canadians. People with disabilities also experience multiple disability-related barriers when accessing medical services. The Draft Policies have the potential to improve this situation by ensuring that physicians do not refuse medical services to people with disabilities in a discriminatory manner. This requires that the policies be clarified so as not to inadvertently encourage such discrimination, and that the policies explain physicians’ human rights obligations in a comprehensive way. Throughout this submission, we make recommendations for achieving both of these requirements. We have also included a summary of our recommendations. Our submission is based on the observations and knowledge of ARCH staff and board members, the experiences of people with disabilities that are brought to our attention through our Summary Advice and Referral Service, and supporting literature. The examples we use in this submission are all based on real situations experienced by people with disabilities. We report the examples in a generic form to protect anonymity. ABOUT ARCH ARCH is a not-for-profit community legal aid clinic dedicated to defending and advancing the equality rights of people with disabilities in Ontario. ARCH is governed by a volunteer board of directors, a majority of whom are people with disabilities. ARCH provides Summary Advice and Referral Services to Ontarians with disabilities and represents individuals as well as disability organizations in test case litigation at all levels of tribunals and courts. We provide education to people with disabilities on disability rights and to the legal profession on disability law. We also make submissions to government on matters of policy and law reform. Information about ARCH can be obtained from our web site at www.archdisabilitylaw.ca. 2 SUMMARY OF RECOMMENDATIONS Both policies should begin by stating that physicians must ensure that medical services are not denied or terminated unless this is done in a manner that is consistent with Ontario’s Human Rights Code. Both policies must clearly and comprehensively explain the nature of physicians’ human rights obligations, including the obligation not to discriminate and the duty to accommodate to the point of undue hardship. Both policies must clearly distinguish between physicians’ human rights obligations and their discretion to enter into or terminate a physicianpatient relationship for reasons related to clinical competency, scope of practice and time. Parts of the policies that conflate human rights obligations with physician discretion should be clarified. This includes lines 35-41 of the policy on establishing a physician-patient relationship and lines 33-35 of the policy on ending the physician-patient relationship. Both policies should include a legal definition of disability or refer physicians to the definition of disability contained in the Human Rights Code. Both policies should better reflect the currently accepted understanding of disability and should include more references to the duty to accommodate. For example, the footnote to lines 71-72 of the policy on ending a physician-patient relationship should include a statement that the physician must consider whether the patient’s behaviour can be accommodated. Similarly, a footnote to line 75 of that policy should be added, which directs physicians to the duty to accommodate communication disabilities. Both policies should alert physicians to the presence of other legislation, such as the Accessibility for Ontarians with Disabilities Act that places legal obligations on them that may be relevant to establishing or ending a physician-patient relationship. 3 A. CONTEXT RELEVANT TO THIS SUBMISSION It is important that the CPSO understand the context in which people with disabilities interact with physicians, the kinds of barriers and unequal treatment people with disabilities experience when accessing medical services, and the consequences that the lack of access to physicians has for some people with disabilities. This contextual understanding has informed the recommendations ARCH makes in this submission and should inform the revisions the CPSO makes to the Draft Policies. A.1. Experiences of People with Disabilities: Inaccessible Medical Services and Unmet Needs The CPSO’s “Backgrounder on Establishing a Physician-Patient Relationship” recognizes that Ontario is currently facing a physician shortage. Some Ontarians therefore do not have family physicians or access to medical services. ARCH recognizes that this is an unfortunate reality that affects all Ontarians, and we are concerned that people with disabilities may be disproportionately impacted by the shortage of physicians. This disproportionate impact needs to be specifically addressed by the Draft Policies. The examples below illustrate ways in which medical services are not available or accessible or do not meet the needs of people with disabilities. The barriers people with disabilities face occur at all stages of the physician-patient relationship. While some of the barriers prevent the establishment of a physicianpatient relationship altogether, others interfere with it to such an extent that the relationship is ultimately terminated. For example, attitudinal barriers may prevent people from being accepted as new patients, while physicians’ unwillingness to communicate with patients who do not communicate verbally may result in termination of physician-patient relationships. Examples Through our Summary Advice and Referral Service, ARCH has received calls reporting that people with disabilities experience barriers and unequal treatment when accessing medical services. Some examples include: A physician’s refusal to provide services to a person with multiple disabilities because the multiple disabilities were considered to be too time consuming to treat; A physician’s refusal to accept a person with a disability as a new patient based on the physician’s erroneous assumptions about the person’s medical needs related to his disability; 4 A physician’s refusal to accept a person as a patient because she uses a service animal; A hospital or physician’s office, including washrooms, may not be accessible. In particular, examination tables are often not usable by people with disabilities; A person with a communication disability decided to withdraw from a physician-patient relationship because of the physician’s failure to communicate with her; A physician may become impatient when it takes longer for a person with a disability to get undressed and get onto an examination table; A physician may treat people with disabilities as curiosities (“I haven’t seen one of you since medical school”) and focus more on the “disability” than general health. Relevant Literature A review of the literature confirms the reports we have received. A 2006 article in the Canadian Medical Association Journal states that: …to consider the accessibility of health care for people with disabilities is to see that Canada already has a 2-tier health system. … In spite of their potential complexity, many of the basic health care needs of people with disabilities are the same as those of the general population. Yet people with disabilities do not receive the same level of primary and preventive care as others do. Routine interventions such as a Pap smear or prostate exam are not consistently provided to them. Even more disturbing, people with disabilities are 4 times more likely as able-bodied people to report an inability to obtain required medical care when it is needed.1 A survey of Canadian health care services reported that despite high rates of utilization, people with disabilities continue to report high rates of unmet need, especially in the areas of emotional and mental health needs.2 Meredith B. Marks & Robert Teasell, “More than ramps: accessible health care for people with disabilities” (2006) 175 (4) CMAJ 329 at 329, online: CMAJ <www.cmaj.ca/cgi/reprint/175/4/329>. 1 2 Mary Ann McColl et al., Health Status & Health Care in the Disability Community in Canada: Final Report to Canadian Population Health Initiative (Kingston: Queen’s Centre for Health Services, 2003). The report warns that there may be a systemic bias against people with 5 One report showed that in Canada, people with disabilities have a greater likelihood of requiring medical care but not receiving it: 14.6% of people with disabilities, but only 3.9% of people without disabilities, reported that they were unable to obtain the health care they needed.3 Another report found that a significant proportion of people with physical disabilities in Toronto felt that they were experiencing difficulty accessing adequate primary health care services because of their disability. About 8% of respondents reported having been refused medical treatment by a family doctor because of their disability. 32% of respondents also reported difficulty in physically accessing their family doctor’s office, 38.3% had difficulty accessing equipment, and 22.9% had difficulty accessing the washroom in their family doctor’s office.4 Literature from jurisdictions outside of Canada confirms that adequate access to health care and discrimination in the provision of health services are concerns shared by people with disabilities in other parts of the world. 5 disabilities in the primary care system, if for example physicians are not appropriately compensated for taking people with disabilities into their caseloads. Other studies have also documented high rates of utilization of physicians by people with disabilities. The Canadian Council on Social Development reported that in 2000/01, Ontarians with disabilities were more likely to have a regular medical doctor than Ontarians without disabilities. Canadian Council on Social Development, Disability Information Sheet, No. 13 (Ottawa: CCSD, 2004) at 2, online: CCSD <www.ccsd.ca/drip/research/drip13/drip13.pdf>. 3 Canadian Council on Social Development, Disability Information Sheet, No. 9 (Ottawa: CCSD, 2003) at 2-3, online: CCSD <www.ccsd.ca/drip/research/dis9/dis9.pdf>. The most prevalent reason cited by people with and without disabilities for not receiving necessary health care was long waiting times. However, people with disabilities were more likely than people without disabilities to report that health care was not available when required. Albina Veltman et al., “Perceptions of Primary Healthcare Services among People with Physical Disabilities: Part 2 Quality Issues” (2001) 3:2 Medscape General Medicine at 18, online: DisAbled Women’s Network Ontario (DAWN) <http://dawn.thot.net/Part2.html>. 4 5 Ian Basnett, "Attitudes and Decisions of Health Care Professionals" in Albrecht, Seelman and Bury, eds., Handbook of Disability Studies (Thousand Oaks, CA: Sage Publications Inc., 2001). Ian Basnett explored how American health professionals perceive and treat people with disabilities. He found that health professionals were pessimistic about life with a disability, as reflected in decisions about health interventions at the end of life. He concluded that many physicians are not trained to understand the perspective of people with disabilities and make appropriate judgements about their quality of life. Basnett further states at 453: “Discrimination, negative attitudes, segregation, stigmatization and poor service provision have been documented in many users’ accounts and reports. Persistently emphasizing the dependency of disabled people in attitudes and interactions may encourage disabled people to accept dependency and adopt that role, making it more difficult to achieve independence. Discriminatory attitudes, or a simple lack of awareness of the lives disabled people lead and their quality, mean that the behaviour of some professionals and the decisions they make may be questionable.” 6 Indeed, the United Nations Convention on the Rights of Persons with Disabilities specifically recognizes the importance of access to health care for people with disabilities. Article 25 of the Convention provides that states parties shall prevent discriminatory denial of health care or health services on the basis of disability.6 Two themes emerge from the experiences described by people with disabilities and the literature. First, people with disabilities often do not have access to physicians. Second, people with disabilities experience discriminatory treatment in their receipt of medical services. This may be unintentional and inadvertent, or may occur as a result of physicians’ discriminatory practices. A.2. Impact of Inaccessible Medical Services and Unmet Needs: Health, Income and Standard of Living The inability to access physicians and medical services affects the lives of people with disabilities in the following fundamental ways: First, some people with disabilities need to access medical services more frequently than people without disabilities.7 Lack of access to a physician compromises the health of people with disabilities, some of whom are particularly in need of medical treatment. Second, many people with disabilities depend on government social programs and benefits for their income,8 many of which require medical documentation in order to qualify for and receive benefits. If medical services are not available for people with disabilities, their ability to access these programs will also be jeopardized. For example, in order to qualify for the Ontario Disability Support Program (ODSP), a member of the College of Physicians and Surgeons of Ontario, the College of Psychologists of Ontario, the College of Optometrists of Ontario, or certain members of the College of Nurses of Ontario must verify that an applicant meets the definition of disability contained in the Ontario Disability Support Program Act.9 Other programs, such as Canada Pension Plan Disability 6 Convention on the Rights of Persons with Disabilities, G.A. Res. 61/106, 76th plen. Mtg., U.N. Doc A/Res/61/106 (Dec. 13, 2006) [Convention]. Canada signed the Convention on March 30, 2007. On May 2, 2008 Parliament unanimously approved a motion calling for Canada to ratify the Convention. 7 McColl, supra note 2. 8 People with disabilities have lower incomes and lower rates of employment than people without disabilities. Human Resources Development Canada, Disability in Canada: A 2001 Profile (Gatineau: Queen’s Printer, 2003), Section 5. A more recent (2006) version of this data is available, but the analysis of the employment and income statistics is not yet publicly available . 9 Section 3 of the Ontario Disability Support Program Act, S.O. 1997, c. 25 states that income support shall be provided to a person with a disability as determined under s. 4(1) of the Act. 7 benefits and Employment Insurance sickness benefits, also require medical documentation.10 Without access to a physician or another required health care provider, people with disabilities may be prevented from accessing income supports. Third, lack of access to a physician prevents people with disabilities from accessing other essential programs that require medical documentation. For example, in order to access funding for most assistive devices through Ontario’s Assistive Devices Program, the person’s assistive device must be assessed and authorized by a qualified health care professional.11 Similarly, to qualify for an Accessible Parking Permit, a person must be certified by a health care practitioner as having a disability.12 Thus, for people with disabilities, lack of access to physicians may negatively impact not only their health, but also their income and their eligibility for essential government programs. Without these, people with disabilities may not be able to afford basic necessities, such as adequate housing or essential equipment such as wheelchairs. The CPSO has an opportunity, through the Draft Policies, to address some of these inequalities and to reduce the disproportionate impact the shortage of physicians has on Ontarians with disabilities. In order to limit the negative impacts that can result from lack of access to physicians, the Draft Policies must make it clear that medical services can only be denied in limited circumstances, in compliance with all applicable laws. Section 46(1) of O. Reg. 222/98 sets out who has the power to verify whether an applicant meets the statutory definition of disability in s. 4(1) of the Act. According to that section, only a member of the College of Physicians and Surgeons of Ontario, the College of Psychologists of Ontario, the College of Optometrists of Ontario, or certain members of the College of Nurses of Ontario may verify that a person has a physical or mental impairment and its likely duration. 10 Canada Pension Plan Regulations, C.R.C., c. 385, ss. 68-69; Employment Insurance Regulations, S.O.R./96-332, s. 40(1). See Ministry of Health and Long-Term Care, “Assistive Devices Program,” online: Ministry of Health and Long-Term Care, <www.health.gov.on.ca/english/public/program/adp/adp_mn.html>. 11 See Ministry of Transportation, “Getting or Replacing an Accessible Parking Permit,” online: Ministry of Transportation <www.mto.gov.on.ca/english/dandv/vehicle/app.htm>. To qualify for an Accessible Parking Permit (APP), the individual must be certified by an APP program recognized health practitioner as having one or more of a list of conditions. A licensed physician, chiropractor, registered nurse practitioner (extended class), physiotherapist or occupational therapist, chiropodist and podiatrist may certify the applicant's condition on the permit application. 12 8 B. COMMENTS ON CPSO’S DRAFT POLICIES In ARCH’s view, many of the barriers and unequal treatment that people with disabilities experience when interacting with physicians can and must be prevented. One way to achieve more equitable access to medical services is to ensure that physicians are aware of their human rights obligations and what those obligations mean in the context of providing medical services to people with disabilities, both at the establishment and termination of those services. ARCH is pleased that the Draft Policies refer to physicians having a legal obligation to provide medical services without discrimination. However, ARCH is concerned that the manner in which the policies treat physicians’ human rights obligations lacks clarity and detail. Neither policy accurately or comprehensively articulates human rights principles as they apply to the provision of medical services, and neither policy contains enough content to address disability-related concerns. The recommendations that follow suggest how the policies could better incorporate human rights principles and more clearly explain physicians’ human rights obligations. B.1. Primacy of Physicians’ Human Rights Obligations Canadian law recognizes the fundamental nature and importance of the rights and protections afforded by human rights laws, and consequently grants these laws precedence over others. Human rights laws are considered to be quasiconstitutional. The Supreme Court of Canada has described human rights legislation as having elevated legal status and as being more important than all other laws.13 In addition, s. 47 of Ontario’s Human Rights Code [Code] provides that the Code has primacy over other Acts or regulations, unless the latter specifically provide that they are to apply despite the Code.14 In ARCH’s view it is essential that physicians appreciate the importance and seriousness of their human rights obligations.15 As a result of the Code’s quasi13 Tranchemontagne v. Ontario (Director, Disability Support Program), [2006] S.C.J. No. 14, 2006 SCC 14 at 33; British Columbia (Public Service Employee Relations Commission) v. B.C.G.S.E.U. (1999), 176 D.L.R. (4th) 1 at 20 (S.C.C.) [Meorin]; Insurance Corporation of British Columbia v. Heerspink (1982), 137 D.L.R. (3d) 219 (S.C.C.) at 229. 14 R.S.O. 1990, c. H.19, s. 47(2) [Code]. The seriousness of physicians’ human rights obligations stems not only from the quasiconstitutional status of the Code, but also from legislation that regulates the practice of medicine. It should be noted that pursuant to s. 1(1)(28) of Professional Misconduct Regulation, O. Reg. 856/93, violating the Code may constitute professional misconduct for the purposes of the Health Professions Procedural Code, being Schedule II of the Regulated Health Professions Act, 1991, S.O. 1991, c. 18. Section 1(1)(28) of the Regulation states that contravening a provincial law is an act of professional misconduct if the purpose of the law is to protect public health or the contravention is relevant to the physician’s suitability to practise. 15 9 constitutional status, physicians have an overriding obligation to ensure that they provide medical services without discrimination. This obligation applies in all aspects of the physician-patient relationship, including physicians’ decisions to establish a physician-patient relationship, treatment decisions, decisions to provide information or referrals, and decisions about ending the physician-patient relationship. ARCH recommends that both policies begin with a statement that physicians must ensure that medical services are not denied or terminated unless this is done in a manner that is consistent with Ontario’s Human Rights Code. Physicians must also be aware that despite the CPSO’s Draft Policies, any discriminatory provision of health services based on a ground listed in the Code could result in a human rights complaint. In other words, a physician cannot rely on having followed the College’s policies to shield him or herself from a human rights complaint. B.2. Physicians’ Duty to Accommodate to the Point of Undue Hardship In ARCH’s view, it is vital that both policies clearly and comprehensively explain the nature of physicians’ human rights obligations to their patients so that physicians have guidance on meeting these obligations. Both policies should explain that the obligation not to discriminate includes a duty to accommodate with respect to some of the grounds listed in the Code,16 including disability. What follows is a brief explanation of the duty to accommodate as it relates to health care. Without accommodation, people with disabilities are prevented from doing the same things as people without disabilities, including accessing and receiving health care. In the context of health care, accommodation requires that physicians facilitate access to their services for people with disabilities in a way that may be different from people without disabilities. Accommodation must meet the needs of the individual patient and must do so in a manner that is most respectful of that person’s dignity.17 This may include 16 There is a duty to accommodate with respect to several grounds listed in the Code. For example, a duty to accommodate exists with respect to family status (see Ontario Human Rights Commission, Policy and Guidelines on Discrimination Because of Family Status (Toronto: OHRC, 2007)), sex (see Ontario Human Rights Commission, Policy on Discrimination because of Pregnancy and Breastfeeding (Toronto: OHRC, 1996)), and religion (see Ontario Human Rights Commission, Policy on Creed and the Accommodation of Religious Observances (Toronto: OHRC, 1996)). 17 Ontario Human Rights Commission, Policy and Guidelines on Disability and the Duty to Accommodate, (Toronto: OHRC, 2000) at 12-13 [Guidelines on Disability], available online: OHRC <www.ohrc.on.ca/en/resources/Policies/PolicyDisAccom2/pdf>. 10 providing longer appointment times for people who may need more time to change in and out of their clothes or for people with communication disabilities who may need more time to express themselves. It may also include permitting service animals into a medical office or examination room where animals are otherwise not permitted. Accommodation also requires that physicians take proactive steps to remove barriers that may prevent people with disabilities from accessing their services. This may include ensuring that the building in which a medical office is located, the washrooms and the examination table are physically accessible to people with mobility disabilities. It may also include training medical and non-medical staff to interact with patients with disabilities in a manner that is respectful and that best accommodates the person.18 Physicians should also ensure that there is a process in place for patients and potential patients to request accommodations. Physicians have an obligation to accommodate their patients and potential patients with disabilities up to the point of undue hardship. The undue hardship standard is onerous and the Supreme Court has indicated that those seeking to rely on undue hardship must show that it was impossible to provide the necessary accommodation.19 The Code provides that the only factors that can be considered in determining whether the undue hardship standard has been met are costs, outside sources of funding, and health and safety.20 Generally, costs of providing accommodation are undue if they are so high that they affect the survival of the business or change its essential nature.21 Costs cannot be speculative; there must be objective evidence of how much the accommodation will cost. 22 If the cost of providing an accommodation is significant, outside sources of funding such as government grants should be considered. If an accommodation is too large to implement at one time, it may be phased in. With respect to health and safety, where these requirements create barriers for people with disabilities, the accommodation provider should assess whether the requirements can be waived or modified. 23 There must be objective evidence of the nature of the health or safety risk and the probability of the risk occurring. To rely on undue hardship as 18 For example, it has been suggested that guidelines be developed to aid primary health care providers in treating adults with developmental disabilities. See William F. Sullivan et al, “Consensus guidelines for primary health care of adults with developmental disabilities” (2006) 52 Canadian Family Physician 1410. 19 Meorin, supra note 13 at 25. 20 Code, supra note 14 at s.17(2). 21 Guidelines on Disability, supra note 17 at 30. 22 Ibid. at 31. 23 Ibid. at 34. 11 a justification for not providing an accommodation, a service provider must demonstrate that health and safety concerns are sufficiently serious so as to override the principles of equal opportunity and free choice that the Code protects.24 This is a very brief overview of the duty to accommodate to the point of undue hardship. For a more detailed explanation of these concepts, ARCH refers the CPSO to the Ontario Human Rights Commission’s Policy and Guidelines on Disability and the Duty to Accommodate.25 While not legislation, the Guidelines are an essential starting point for understanding the duty to make appropriate accommodations, short of undue hardship, for people with disabilities. In addition, ARCH has produced a series of fact sheets that provide practical information on how to interact with people with various disabilities in a manner that best accommodates their disability. We have attached these fact sheets to our submission, and they will be available on ARCH’s website shortly. B.3. Distinction between Obligation not to Discriminate and Physicians’ Discretion ARCH recommends that both policies articulate physicians’ obligation not to discriminate when providing medical services as an obligation that is separate and distinct from the concepts of clinical competency, scope of practice, size of practice group and discretion to accept new patients or terminate the physicianpatient relationship. ARCH is very concerned that the way in which the policies are currently worded conflates physicians’ fundamental legal obligation not to discriminate with concepts of clinical competency, scope of practice, size of practice, and ability to meet patients’ health care needs. In ARCH’s view, this is problematic since it can lead to confusion about the nature and extent of physicians’ human rights obligations. Too often people with disabilities are denied medical services not because the physician does not have the skills to provide these services, but because of physical and attitudinal barriers related to the person’s disability. As the examples provided above demonstrate, physicians may refuse to accept a person with a disability as a new patient based on erroneous assumptions about the person’s medical needs or the length of time it will take to treat the person because of their disability. While it may be appropriate and responsible for a physician to refuse to treat a person who has complex medical needs that are beyond the physician’s expertise, it is almost never appropriate for a physician to refuse to treat a person simply because that person has a disability. Put another way, a physician’s obligation to accommodate a patient’s disability is entirely separate from that physician’s decision as to whether he has the expertise 24 25 DeJager v. Department of National Defence (1986), 7 C.H.R.R. D/3508 (C.H.R.T.) at 3517. Supra note 17. 12 necessary to meet that patient’s medical needs. ARCH submits that it is important for the College to articulate this clearly by distinguishing between physicians’ human rights obligations and their discretion to decline to enter into a physician-patient relationship or to terminate an existing relationship. In addition, it is important to note that physicians’ reluctance to accommodate people’s disabilities, assumptions about the medical needs of people with disabilities and other attitudinal barriers are easily cloaked in the language of clinical competency and scope or size of practice. For example, a physician may state that she will not accept a patient with a disability because the scope of her practice does not include making home visits when in fact, the patient does not actually need home visits. Another example is a physician refusing to accept a person with multiple disabilities as a new patient because the physician does not have the clinical competency to treat the complex medical issues he assumes the person has. In ARCH’s view, the policies must clearly distinguish between physicians’ human rights obligations and discretion to enter into or terminate a physician-patient relationship so as not to promote this kind of discrimination. One place where this recommendation should be applied is the first principle of the Draft Policy on establishing a physician-patient relationship. Lines 35-41of that policy state that refusing to accept patients based on factors such as disability without a valid reason related to the physician’s scope of practice and/or ability to meet patients’ health care needs may violate the Code. This is an example of a statement that conflates human rights obligations with clinical competency and scope of practice. The statement is problematic and misleading as it suggests that scope of practice or ability to meet a patient’s health care needs are valid reasons for discriminating against a patient by denying medical services due to the patient’s disability. In law, the only valid reasons for denying medical services because of a patient’s disability are those that meet the legal test of undue hardship. In other words, a physician cannot decide to decline a potential patient because of that patient’s disability unless the physician is unable to accommodate that patient to the point of undue hardship. Another example of a statement that is misleading is lines 33-35 of the Draft Policy on ending the physician-patient relationship. Those lines state that physicians should carefully evaluate any decision to end care and should use reasonable efforts to resolve any issues affecting the relationship with the patient prior to any final decision. In ARCH’s view, while reasonable effort may be an appropriate standard in some situations, it will not be sufficient in others. If, for example, the issue affecting the physician-patient relationship relates to a patient with a disability’s need for accommodation, the physician must do much more than make reasonable efforts to resolve this issue. As explained above, the physician has an obligation not to discriminate that takes precedence over his discretion as to whether to end care. The physician is under a duty to accommodate the patient’s disability, unless to do so would cause the physician undue hardship. A physician can decide to end the physician-patient relationship 13 because of a patient’s need for accommodation only if it would be unduly hard to provide that accommodation. B.4. Legal Definition of Disability ARCH recommends that both policies either include a legal definition of disability or refer physicians to the definition of disability contained in the Code.26 This is very important, since the legal concept of disability may be quite different from the concept of disability that physicians employ in their medical practices. Physicians should be aware that the legal obligation not to discriminate on the basis of disability refers to a wide range of disabilities. The current legal approach to disability is referred to as the social model or the human rights model.27 This approach describes disability as the outcome of the interaction of the person and his or her environment.28 It recognizes that it is society’s failure to accommodate the needs of people with disabilities which gives rise to the ‘disabling disadvantage’ that people with disabilities encounter in their daily lives, not some inherent mental or physical condition. The older medical model of disability understood and defined disability in terms of a physical or mental defect or sickness necessitating medical intervention. The current approach recognizes that health problems alone do not prevent people from participating in society. Rather, it is the obstacles in the socio-economic and built environment that do.29 In addition to including the legal definition of disability, the policies should better reflect an understanding of the social model of disability. For example, lines 7172 of the Draft Policy on ending the physician-patient relationship state that 26 Section 10(1) of the Code, supra note 14, defines disability as: (a) any degree of physical disability, infirmity, malformation or disfigurement that is caused by bodily injury, birth defect or illness and, without limiting the generality of the foregoing, includes diabetes mellitus, epilepsy, a brain injury, any degree of paralysis, amputation, lack of physical co-ordination, blindness or visual impediment, deafness or hearing impediment, muteness or speech impediment, or physical reliance on a guide dog or other animal or on a wheelchair or other remedial appliance or device, (b) a condition of mental impairment or a developmental disability, (c) a learning disability, or a dysfunction in one or more of the processes involved in understanding or using symbols or spoken language, (d) a mental disorder, or (e) an injury or disability for which benefits were claimed or received under the insurance plan established under the Workplace Safety and Insurance Act, 1997. 27 This model has been accepted and articulated by Supreme Court of Canada jurisprudence, see e.g. Granovsky v. Canada (Minister of Employment and Immigration), [2000] 1 S.C.R. 703, 2000 SCC 28 at paras. 29-30, and the United Nations Convention, supra note 6. See Daniel Mont, “Measuring Disability Prevalence,” (March 2007) online: World Bank <http://siteresources.worldbank.org/DISABILITY/Resources/Data/ MontPrevalence.pdf> at 2-3. 28 29 Ibid. See also Human Resources and Social Development Canada, Advancing the Inclusion of People with Disabilities (2006) (Ottawa: Social Development Canada, 2006) at 6. 14 violent or aggressive behaviour towards the physician, staff and/or other patients may cause a breakdown of trust in the physician-patient relationship. The footnote states that before ending the physician-patient relationship for these reasons, the physician should consider whether the patient’s behaviour is treatable and/or transient. This suggests that the only way of dealing with aggressive behaviour is medical treatment. In contrast, a social model of disability would shift the focus to the environment and explore whether the aggressive behaviour could be dealt with by changing or eliminating something in the environment. Indeed, for people with disabilities, violent or aggressive behaviour may occur as a result of a disability or medication a person is taking for a disability. In addition, behaviours may be perceived to be violent or aggressive when in fact they are not. To better reflect a social understanding of disability, ARCH recommends that the footnote to lines 71-72 include a statement that the physician must consider whether the patient’s behaviour can be accommodated. Another example of where the social model of disability could be reflected is line 75 of the Draft Policy on ending the physician-patient relationship. It states that a communication breakdown to the extent that makes it impossible to provide quality care may be a valid reason for ending the physician-patient relationship. This statement may inadvertently have a negative impact on people who have speech disabilities, communication disabilities, intellectual disabilities, psychiatric disabilities or any other disabilities or medications that affect communication. Physicians are legally required to accommodate disability-related communication needs, and should not be permitted to end a physician-patient relationship unless it would cause undue hardship to provide such accommodation. ARCH recommends that a footnote to line 75 be added, which directs physicians to the duty to accommodate communication disabilities. B.5. References to Other Relevant Legislation In addition to strengthening the references to human rights obligations, ARCH recommends that the draft policies alert physicians to the presence of other legislation that places legal obligations on them that may be relevant to establishing or ending a physician-patient relationship. One example is the Accessibility for Ontarians with Disabilities Act (AODA).30 The AODA’s stated purpose is to develop, implement and enforce standards for accessibility in relation to goods, services, facilities, accommodation, employment, buildings, structures and premises in Ontario. The AODA requires the development of accessibility standards, which will eventually become regulations. On January 1, 2008 the first accessibility standard under the AODA, 30 S.O. 2005, c. 11. 15 the Customer Service Standard, came into effect.31 The standard applies to doctors or organizations that have more than one employee and provide medical services to members of the public in Ontario. Among other things, the standard requires these doctors and organizations to establish policies and practices on providing services to people with disabilities and allow service animals to enter the business premises. The standard also requires the training of staff on interacting with people with disabilities. This may include learning how to use different communication systems such as a Blissboard, TTY machine or sign language interpretation. Other accessibility standards are currently being developed. It is important that physicians are aware of this, as future standards will place additional legal obligations on physicians. More information on the AODA, the Customer Service Standard, and the status of the development of other accessibility standards can be found at the following link: www.mcss.gov.on.ca/mcss/english/pillars/accessibilityOntario/. C. CONCLUSION Health care is one of the most essential services to Ontarians. This is particularly true for people with disabilities, who depend on medical services not only for their health, but also for access to income supports and other government programs. Given the extremely important role health care plays in the lives of people with disabilities, physicians must ensure that their services are free from discrimination and accommodate people with disabilities to the point of undue hardship. ARCH urges the CPSO to use this opportunity to ensure that physicians understand their human rights obligations, to clarify the nature and extent of those obligations, and to ensure that the final policies do not inadvertently encourage discriminatory practices. 31 O. Reg. 429/07. 16