Women’s Experience of Postnatal Depression Catherine Dakin Maureen Tearle Liz Roberts ACKNOWLEDGEMENTS Our heartfelt thanks go to twelve wonderful women who were willing to be interviewed and supported this research. We were humbled by their remarkable stories of courage and hope, often in the face of adversity, and their willingness to help others through their stories is truly inspiring. To Geoff Bridgman and David Haigh - Thank you for your know how and understanding approach to our often confused questions. Thanks to Mind & Body Consultants for the use of their offices and resources. Thanks to Deirdre Tollestrup and Lesley Young from Family Works, Waitakere for their input and support. Thanks also, to Dayspring Trust for the use of their resources and special thanks to Amanda MacGillycuddy for her enthusiasm, support and endless supply of books. Also, many thanks to David Orwin and Jenny Harrison for the momentous task of proof reading this research, and Jo Brailsford for the wonderful transcribing and Sam RB for creating the demographic charts. To our families for sorting the chaos while we slip out the door to yet another “research group” meeting. Thank you. CONTENTS 2 Acknowledgements …………………………………………………. 2 ………………………………………………………….. 4 Introduction …………………………………………………………. 5 ………………………………………………… 7 Abstract Literature Review Methodology ………………………………………………………. Demographics ………………………………………………… 23 31 Findings ………………………………………………………………. 32 Historical Context ……………………………………………. 32 Social Context ……………………………………………. 46 Recovery Context ……………………………………………. 57 Discussion ……………………………………………………………… 68 Conclusion ……………………………………………………………… 76 Bibliography ……………………………………………………………. 78 Appendix ……………………………………………………………….. Interview Schedule …………………………………………….. Information Sheet ……………………………………………… Consent Form ………………………………………………….. 81 81 82 83 ABSTRACT 3 We embarked on this research in order to gain an understanding of women’s experience of Postnatal Depression (PND) and undertook to interview twelve women, using a qualitative Social Theory approach within a Narrative framework. The purpose of the research is to listen and learn from women’s narratives of PND. We believe that women hold crucial knowledge about themselves and their experience of PND which could ultimately benefit us individually, as a community and as a society. We disagree with the idea that research, or any other source of knowledge outside the women has a higher level of credibility than that gained from their personal stories and we have tried to reflect this by drawing on current research, but maintaining a definite focus on the women’s interpretations and meanings. We explore women’s knowledge of PND within three main contexts. These are; Historical, Social and Recovery. Within these contexts we have learn the following: Expectations and constraints imposed on women by New Zealand society is a reflection of how childbirth and motherhood is viewed. Recognising childbirth as a significant transition and acknowledging the importance of mental and physical health after childbirth. Increased awareness and appropriate education for women and society as a whole would enhance early intervention strategies. Diagnosis and treatment is imperative to recovery. Being able to talk and challenge the myth of motherhood assists women to feel confident in their mothering roles and practices. Responsive, competent professionals and healthcare services benefit women with PND. INTRODUCTION 4 Greetings… We are three mature, women students, who through our own experience of motherhood and postnatal depression, recognise the ‘journey’ a new mother enters has to be experienced in order to completely understand what it is like to be a mother in the changing context of today’s society. Our ‘co-research’ focuses on twelve New Zealand women who have experienced postnatal depression and have courageously come forward to share their stories. Coresearch came from the ideas of David Epston (2001) and presented itself as an alternative way of conducting qualitative social theory research, women who have experienced postnatal depression have an opportunity to share and draw on their own histories, traditions and processes and to give us insight to the real story. It is also seen by us as a step towards reconciling with women, who because of stigma associated with postnatal depression, may have felt disenfranchised from their families and/or communities. Through our witnessing of the narratives, our hope and our reason for embarking on this research is to firstly, listen and learn from our consultant’s testimonies, while also providing an opportunity to privilege their meanings and interpretations as they give voice to their remarkable stories. We are aware, however, that in the process of quoting from women’s narratives for this research, we will be removing quotes from the original context in which they were said, for this reason we have tried to keep the quotes reasonably long in the hope of holding true to their intended meaning. An Overview of PND Postnatal Depression(PND) can be traced back to fourth century BC and the Greek physician Hippocrates, who described it as a mental disturbance following childbirth and believed it to be a disturbance caused by the stoppage of the normal secretion of milk, which was then directed to the brain instead of to the breast (Slee, 2002). The first recognized scientific study of postnatal depression came from Esquirol in 1845 and Marce in 1858 (Cox, 1986), both studies were in France and concentrated on women admitted to psychiatric institutions. (Thurtle, 1995). Today, Postnatal Depression is accepted as a unique illness though not represented as a specific disorder in the (DSM-IV) Diagnostic and Statistical Manual of Mental Disorders (American Psychiatric Association, 2000). As with most mental illnesses what causes the 5 onset of Postnatal Depression is still a matter for debate, but is generally described or coded using DSM-IV as a ‘mood disorder’ occurring in women in the first year after the birth of a child. Ten to 20 percent of New Zealand women will develop postnatal depression in the months after the birth of a baby, it may also start during pregnancy and, if untreated, continue and perhaps get worse after the baby is born (Mental Health Foundation of New Zealand, 2002). The term ‘postnatal depression’ can be very misleading because patients can present with anxiety or obsessional thoughts rather than depression. It is also often used to cover a variety of affective disturbances in the period after childbirth (Buist,1996). The illness should be differentiated from the baby blues, which can affect up to 70 per cent of women post-delivery, and the much rarer postpartum psychosis, which affects 0.1 to 0.2 per cent of women post-delivery (Aiken, 2000. p 131). LITERATURE REVIEW Organic Theory: (Biological factors) Postnatal Depression (PND) is a medical condition, and the result of biochemical change which influence the neurotransmitters in the brain. Hormonal 6 imbalances are a strong contributing factor (Dr Malcolm George, cited in Aiken, 2000). Following birth, abrupt changes in progesterone and estrogen levels and changes in the pituitary gland can alter the physiological endocrine system. The thyroid gland being depleted may also be a factor in PND, (Harris, 1993. Cited in Milgrom, Martin, Negri, 1999; Dr Hamilton, cited in Gruen,1990). However, there is no conclusive evidence as to the cause of PND, or why some people suffer and others don’t (Aiken, 2000). Common symptoms are the feelings of being abnormal, being lost, emotionally vulnerable, isolated and alone, ashamed and sad, guilt because of lack of bonding with the baby, and relationship issues (Aiken, 2000). Pitt (1968) states that it is an ‘atypical’ depression and is distinguished from other types of depression, in that the mother may start off the day feeling ambivalent, but the depression will worsen throughout the day (Cited in Aiken, 2000). Onset & Duration PND has a gradual or acute onset usually within the first year following childbirth, but normally within the first six months. The severity is mild to severe, and the duration is from 3 months to 2 years, but sometime longer. However, even when women do consult a healthcare professional, half still remain untreated (Hearn et al., 1998). Signs and Symptoms Low or depressed mood, crying a lot, feeling sad Not enjoying anything Confused thoughts Lack of concentration Being irritable, intolerant Having difficulty making decisions Self-blame and/ or guilt Feelings of inadequacy and not coping Emotional labiality, feeling numb and having no feelings Getting very anxious, on guard and hypersensitive Irrational’ fears Disturbed sleep, having nightmares Exhaustion 7 Lack of energy and loss of motivation Appetite disturbance Feelings of hopelessness and/or worthlessness Suicidal ideation Biopsychosocial Theories An individual’s biological makeup may predispose them to PND. This may be compounded by the sudden change in hormones following childbirth, and the extreme life changes that having a child brings, for which they may be ill prepared. There may also be deep-seated roots resulting from adverse life experiences (1 George, cited in Aiken, 2000). There may be little or no warning of the onset of PND, and often arrives with little or no warning and there is often little understanding of the illness. It can place a severe strain on the mother’s support system and relationships, and there may be lack of support and understanding which can exacerbate the condition. Lack of closeness and other relationship factors are predictive factors for depression in women regardless of pregnancy (Aiken, 2000). A number of factors can affect adversely the mother’s sense of identity and increase feelings of hopelessness; lack of understanding of the process of childbirth and motherhood; lack of warning of the nature of the care and time needed for the baby, and ill-preparedness for the change in lifestyle can cause serious affects on the identity of the mother. Strained marital relationships can result from the stress of the PND and the partner’s lack of understanding of its seriousness can result in marital breakdown. Other influences are grief over loss of lifestyle and major change and transition to motherhood, loss of control over ones physical state, loss of sleep, and sometimes relational loss (Ball,1994). The biopsychosocial model of PND looks to ‘vulnerability factors’ and argues that some women are more susceptible to developing PND than others. These vulnerabilities can include certain personality traits, psychiatric disorders and negative life events. (Milgrom, et al, 1999). Dr Malcolm George – Department of Physiology, St Bartholomew & Royal London Hospital Medical School. 1 8 Risk and Vulnerability Factors Loss of own mother and/or poor relationship with mother Difficult childbirth and complications with birth and /or pregnancy Relationship issues/conflicts and poor social networks Stressful life events in the last 3 months of pregnancy Disturbed early life and/or history of abuse Neo-natal illness Personality and Cognitive Style High medical anxiety over pregnancy or birth Personal or Family history of Depression or other Mental illness Negative life events, for example miscarriage, still-birth, death of parent; Poor marital relationships or partnership. (Milgrom, et al, 1999). Woman with low levels of emotional support are also more susceptible as are those who have experienced isolation from close family or extended whanau support. (Aiken, 2000; Milgrom, 1999 et al; Fettling & Tune, 2005; Harvey, 1999). New mothers are particularly susceptible if they have experience of mental illness, a history of childhood or current abuse, low support level, stressful life events; traumatic childbirth; changes in hormone levels to which the mother maybe especially sensitive, and finding care and responsibility of the baby difficult and overwhelming. (Fettling & Tune, 2005). In addition, low self esteem, childcare stress, single marital status, unplanned/unwanted pregnancy and infant temperament, were also reported as risk factors (Beck,2001). Personality Traits There may be a high anxiety level in the mother, and possible high expectations, especially for the first child. For some mothers being used to an ordered life, and not being prepared adequately for the lack of order that a new baby brings. The need to control and being unable to control the circumstances around childbirth can result in a “learned helplessness”. Previous experiences that influence the coping process, along with the individual coping behaviour where anxiety may be an antecedent factor as a reaction to stress. (Ball, 1994). Detection & Diagnosis 9 Being seen by health professionals several times, and the signs and symptoms or a particular pattern is observed for at least 2 weeks. (Fettling & Tune, 2005). The DSM-IV ‘postpartum onset’ specifies major depression is four weeks postpartum (Milgrom, et al,1999). Awareness ante-natally of the “baby blues”, PND, and education; leaflets to the new mothers. The PHC team (GP’s), Midwives and Public Health nurses, Plunket nurses, the six week check on baby. Prevention Maternal Mental Health (MMH) in New Zealand help women who have long term experience of mental illness, or mental illness within their families, during their pregnancy as a preventative measure. They can help women to obtain counselling, group therapy, medication, or regular visits by the MMH team. They also network with other agencies. Examples of these in Auckland include Mind and Body Consultants Peer Support Service, Dayspring Trust and Community Mental Health teams to support the women in pregnancy and following the birth of the child up to eight months to a year postnatal. After this they refer the women to other agencies for continued support if there is still an ongoing problem with PND. Early intervention can be a significant factor to preventing the syndrome of PND becoming such a crisis. Although it does not seem possible to avoid PND, it is possible to give information and teach about the symptoms, to offer prenatal assessments of risk factors, and to reinforce early intervention so that families can ask for help. (Gruen, 1990). Recurrence If there is full recovery it is less likely to develop again, than if pregnancy occurs again before full recovery. There is higher risk if there has been previous PND. If the treatment has not been completed, (or not treated at all), depression is likely to continue into the next pregnancy or even get worse. (Fettling & Tune, 2005). Prenatal Factors Women who are depressed postpartum may also have been depressed during pregnancy (Watson et al., 1984). Those with recurrent or long lasting issues may be a more vulnerable group than women who only have depressive symptoms postpartum and they 10 would therefore be an important group to identify and support during pregnancy and the postpartum period (Green & Murray, 1994, cited in Rubertsson et al.,2004). With the unsuccessful coping of stress experienced in childbirth and surrounding circumstances, in order to gain control of the situation various behaviours are evident. These are anticipatory action; attack and avoidance, which can cause denial, apathy and inaction and are part of the symptoms of depression that characterise PND. This is a reactive depression, resulting from lack of control over life, and the absence of warm, confiding relationships when most vulnerable (Ball, 1994). Exploring the Impact of Pregnancy and Childbirth Our memories of birth are held in every cell of our bodies and can affect our whole mental, emotional, physical, sexual and spiritual well -being. The quality of birth can affect the quality of life, which in turn shapes the quality of society as a whole.. Valins (1993:53) Corrie & Tubridy (2005:157) write “Even a normal pregnancy is a state of dislodgement from a woman’s former self and previous ways of thinking, feeling and behaving”. There is no doubt that pregnancy and childbirth are significant and often are not acknowledged as a pivotal experience. For all women who have been through this process, life will never be the same, even if ideally all of their expectations are met. Birth is an important and pivotal event in women’s lives. In all societies there are childbirth beliefs and practices. According to Fitzgerald et al (1998:para), these beliefs and practices have a direct impact on mental health and the sense of well-being among new mothers and their families. Giving birth is a universal human biological process. What it means to give birth varies from one cultural group to another. There is diversity in apparent sameness. In some cases women control the context, in others they must respond to a context that is not of their own making. Prior experience and the cultural knowledge (beliefs, practices, expectations) they bring to it influence how women perceive and respond to that context (Fitzgerald et al, 1998:118-119). 11 Valins (1993:54) states that birth itself is a ‘metaphor’ for all creative processes. The quality of birth not only affects the future health of the child but also of the mother. As Valins (Ibid: 53) suggests, the quality of birth experience has consequences for wider society, both in an actual and a symbolic way. Aiken (2000) describes childbirth as a key experience. She suggests that even in normal circumstances new mothers are more vulnerable to stress, anxiety and emotional upheaval. The way in which women are treated both during and after the birth, may have further impact on their emotional fragility. A difficult birth including medical complications will therefore add to the potential for depression. However as Corry & Tubridy (2005: 155) point out, in some circumstances “even in the face of extraordinary trauma or prenatal history, a mother’s emotional reaction against all odds, is not one of depression” and to contrast this with the mother who is totally prepared and supported, with the ideal context in place, who finds herself in the grip of PND. It is clear that there are many variables in the experience of pregnancy and childbirth and this is mirrored in the experience of PND. Is PND a reasonable response to the huge changes and adjustments that motherhood brings? The grieving for the old you who has permanently disappeared can be profound: the you who was in control of her energy, body, sleep, time, social life, work identity and a rewarding sexual and emotional relationship with the child’s father (Ibid: 158). Welburn supports the idea that issues of identity are crucial to our response to the experience of birth and motherhood. She suggests, “The way we experience birth affects the way we experience ourselves as women and as mothers (Welburn, 1980:44)”. Welburn (Ibid: 46) refers to childbirth as created by western society, as an alienating experience. This she suggests is due to the lack of understanding by health professionals and the ‘medicalisation’ of childbirth. Medical science, Welburn (Ibid: 47) contends, still often the domain of men, has claimed childbirth as its own and has not been attentive enough to those parts of the experience which are important to women, such as the emotional experience of the birth and the mother /child relationship. 12 Motherhood In his book ”Motherhood and Mental Health,” Ian Brockington suggests “Childbirth is more complex than any other human situation because it is a period of rapid biological, social and emotional transition, and exposes the mother to the full gamut of psychological complications, as well as some which result from somatic changes and medical illness” (Brockington, 1996. p 612). Those things previously taken for granted, particularly since the advent of “Feminism,” as a normal part of an adult woman’s life, are no longer – the active social life, personal freedom, time to yourself, space and privacy. With the reality of motherhood, comes the realisation that your life has changed forever. Keeping this in mind, we ask, is it any surprise that mothers may be led to the notion that ‘depression is a realistic response to motherhood’ (Nicolson, 2000). It is well known from clinical observation that mother’s experiencing depression are not likely to seek professional assistance (Cox, et al., 1982) A study of postnatal depressed women showed that almost all the women 97% realised something was wrong, however less than 20% reported their symptoms to a healthcare provider. Of this sample, only 32% believed they were suffering from postnatal depression (Whitton, et al. 1996). To disclose feelings of stress or an inability to cope to others, when these feelings are believed to be ‘unnatural’, is to experience them as stigmatising. Such a disclosure can feel like an expression of personal failure as a woman and as a mother, which reinforces the view that if other people knew about these unmotherly, unfeminine feelings, they would react with disapproval and rejection. Anticipating a reaction of this kind is a potent incentive for remaining silent (Brown, et al,. 1994. p 161). The social stigma attached to the image of a mother who cannot cope with the needs of her infant contributes to the reluctance of many to admit they are unwell and/or unable to cope (Thio, et al,. 2006). Fatherhood PND is a form of depression that is seen as ‘feminised’, because of the association with women and childbirth, however it can affect men as well, and research has identified male partners (George, cited in Aiken, 2000). When a woman experiences PND, her partner’s world can also be turned upside down, often with severe consequences for him and/or their relationship. A significant number of men will become depressed themselves. 13 Possible causes include fears of becoming a father, by rigid and unrealized expectations of themselves, by unmet needs from their own childhoods or by other stresses (Fettling, Tune, 2005. p 8). Cultural Factors Reference has been made to an Auckland study that found Maori ethnicity to be a risk factor for PND (Webster et al, 1994), however, comparative studies within multiethnic societies have generally found little difference between ethnic groups (National Health & Medical Research Council, 2000). Reviewers of relevant international literature2 concluded that there is little support for the notion that PND is largely the product of Western societies. While risk factors of PND are fairly similar across cultures, the meaning and significance of particular values may vary. Researchers of PND symptoms among Pacific women in Auckland, concluded that Pacific women are likely to be at a high risk of PND but suggested that risk factors identified in Western populations might not apply to them, and that retention of elements of traditional Pacific identity, family and cultural supports, affordable childcare, and antenatal education serve as important protective factors (Abbott et al, 2005). As part of alleviating risk factors for PND, It is also useful to enquire about specific family or cultural rituals which would usually be expected to take place (round the birth of a baby) and discuss the value of these for the client and family/whanau. This can be particularly important for women (and their families/whanau) who have migrated (Hunt, 2006). Professional Perspective Theories For many women PND goes largely untreated according to a recent 3survey in NZ. This survey was a postal survey of women in the community who were four months postpartum. They were assessed with the Edinburgh Postnatal Depression Scale (EPDS).4 Of the 225 responses 36 women (16%), score above the threshold for the symptoms of PND, and only nine of them were in treatment. Of a further 31 women (13.8%), who scored just below the threshold region for PND, none of them were in treatment. The prevalence rate of PND in NZ is slightly higher than the world-wide 2 National Health and Medical Research Council (2000); Kumar, (1994); Affonoso, et al (2000). Thio, Browne, Coverdale, Argle. (2006). Social Psychiatry & Psychiatric Epidemiology; Vol. 41 Issue 10, p814-818, 5p. Retrieved 27/11/07 4 EPDS – Edinburgh Postnatal Depression Scale, a 10 item questionnaire developed by Professor John Cox. UK 1987, and used world wide for the screening of new mothers. 3 14 average, at a rate of 1 in 3 women. 5Argyle believes that the higher rate of PND in NZ is related to many factors, including financial pressure, adjusting to one income, stress on working mothers, and older mothers adjusting to becoming housebound after being successful career women. According to Clements, women had difficulty in admitting they needed help, mothers’ in our society like to put on a brave face and try to present a coping image to the world. (MacIntyre, 2007). This is also partly due to the fear of being labeled mentally ill, and the consequences of not being seen as a “good” mother. According to Argyle, the loss of general practitioners doing obstetrics means they are less aware of mental health changes in patients. Tthere is also a weakness in the health system in the lack of coordination between obstetricians, midwives and GP’s, and the lack of routine screening for PND. This screening is routine in countries such as Australia and United States. (MacIntyre). The NZ research recommends routine screening for PND in mothers throughout the first year of their child’s life, says Judi Clements. 6 PND is the main cause of maternal suicide after childbirth in the UK. (Pitt, 1968, cited in Aiken, 2000). it also causes measurable cognitive problems for children of depressed mother. But if the illness is diagnosed early, treatment reduces the suffering and damaging effects on the family, especially the child. (Dr Lyn Murray, cited in Aiken, 2000). Five Groups of Psychiatric Post Partum disorders (Professor Ian Brokington, cited Aiken, 2000). It has been our observation from the research that women diagnosed with PND may have also suffered from symptoms from the following categories: Stress Reactions: Resulting from a history of PTSD (Post Traumatic Stress Disorder), and phobia’s. Anxiety disorders: Including specific anxiety syndrome, acute anxiety for the well-being of the baby and phobia. Depression: Recurrent postpartum melancholia, accompanied by feelings of worthlessness and hopelessness. 5 6 Argyle – Director of mental health services at Auckland District Health Board. Judi Clements – Chief Executive Mental Health Foundation, NZ. 15 Disorders of the mother/infant relationship: Leading to the rejection of the child, lack of bonding, even hostility. Puerperal Psychosis: An acute atypical psychosis which affects 0.1 – 0.2% of mothers in the first 3 weeks of childbirth. Post Traumatic Stress I did not die in childbirth, At least not for good. I did not die in childbirth, but I also did not live (Marion Cohen, 1979) Post traumatic stress disorder (PTSD) is a term which refers to the emotional reaction to harrowing experiences (Aiken, 2000). PTSD was first recognised as a distinct diagnostic disorder in DSM –111(American Psychiatric Association 1980). However it has not been until just recently that trauma, as a result of a difficult birth, has been widely accepted (Bailham & Joseph, 2003). Evidence suggests that it is not uncommon for women with PTSD to also present with postnatal depression (Ballard et al., 1995. cited in Bailham et al., 2003). When PTSD happens after childbirth it is termed “Birth Trauma”. One text estimates that 7% of Women suffer it after birth, although it may never be diagnosed as this because the symptoms may overlap with those of PND (Welford, 1998). The experience of trauma during childbirth is subjective and it is particularly the perception of threat to oneself or the baby that causes the PTSD response. Common responses include fear, helplessness, humiliation, or horror. Women with PTSD, like women with PND describe an overwhelming sense of a loss of control, which PTSD sufferers are unable to process or consequently integrate in to their experience. There are a number of other similarities between PTSD and PND and it seems that women can be affected by both diagnoses simultaneously, which can complicate the recovery process. These include but are not limited to weepiness, lack of concentration, anxiety, sleep problems, guilt, depression, lack of bonding with the baby, feelings of selfharm, feeling emotionally numb, irritability and isolating oneself from others (Hartill et al 2000:14). 16 One of the major points of difference for those with PTSD is the overriding need to deal with the birth experience above anything else. Women with PTSD will re- experience the birth event including dreams and emotions. They will exhibit extreme hyper-arousal and hyper-vigilance. Treatment of Postnatal Depression There are several options for treatment, and usually a combination of approaches is used. These include support groups, counselling, therapy groups, medication, hospitalization, ECT treatment (for severe cases when medication is ineffective.) (Fettling & Tune, 2005; Milgrom et al, 1999; Aiken, 2000). Anti-depressant drugs have been a main stay of treatment in the majority of cases, but drugs merely remove the symptoms of the problem, they do not attend to the individual circumstances and personality traits which also play a significant role in depression. However they do provide and impetus to overcome the depression, by helping to overcome the lack of motivation and despair that stops mothers from actively seeking to get better. There is also a real need to assess the role as ‘mother’, and to learn coping mechanism to adapt to the motherhood and family life in a positive approach (Harvey, 1999). Counselling For counselling, women are generally referred to psychiatrists, psychologists or specialized counsellors in PND. These can include ‘talk therapies’, this includes strategies for coping with day to day difficulties of living with PND; to reduce anxiety, and to build self-esteem and confidence. CBT is used by the Maternal Mental Health providers and counselling in group work, to challenge negative thought patterns. In the case of relationship difficulties which contribute to the development of PND, or the PND contributes toward developing relationship issues, couples counselling can be useful. Sometimes existing relationship issues are exacerbated, as PND causes an enormous strain on all couples. (Aiken, 2000; Milgrom et al, 1999; Fettling & Tune, 2005). Therapy Groups: These groups are closed, with a set number of people per session, and provide strategies for coping with PND, and to modify expectations. 17 Abuse and trauma counselling by ACC Counsellors, is also provided for women who have had PTSD7 or background abuse issues. (Aiken, 2000; Milgrom et al, 1999; Fettling & Tune, 2005). Psychotherapy is used to understand and resolve underlying psychological factors which have contributed to the development of PND, aiming to get to the root of the problem and help make the depression less likely to return with the next baby. A growing body of studies shows that psychotherapy or counselling maybe all that is needed to help a woman to climb out of depression and with the combination of drug therapy this is highly affective. (Aiken, 2000; Milgrom et al, 1999; Fettling & Tune, 2005; Harvey, 1999). Medication Antidepressants are used to correct chemical imbalances in the brain; these usually take 2–3 weeks to take affect and are used for six months to two years generally. Tranquilizers to assist in reducing extreme anxiety are sometimes used. Hormone replacement is occasionally used to correct hormonal imbalance. In the case of Thyroid depletion, medication will be used to correct this. Some drugs are for anti-anxiety, as anxiety is often one of the main symptoms; however these can cause severe side effects, but as tolerance develops to the medications, the side effects subside. Mood stabilizers for severe depression in manic states can also be used, but can cause toxicity if the right dose is not reached. All drugs need to be taken continuously to maintain effect. (Aiken, 2000; Milgrom et al, 1999; Fettling & Tune, 2005; Harvey, 1999). Hospitalisation New Zealand has only one mother and baby unit at Christchurch Hospital. Special units are provided in some countries with specialized PND care, these may be within Obstetric or Psychiatric units. This is for women who need to have the drug therapy and psychotherapy monitored more closely; for women who have intimated suicidal ideation or when the depression has not responded to any treatments, in which case ECT maybe recommended. A hospital stay in itself can be traumatic, but it will only be for as long as it is needed to bring the depression, mania or paranoia under control.( Aiken, 2000; Milgrom et al, 1999; Fettling & Tune, 2005; Harvey, 1999). 7 PTSD – Post Traumatic Stress Disorder 18 Complementary Approaches / Alternative treatments These are often preferred in the place of conventional treatment, particularly if women are breastfeeding, and can be used in a self-help way, off the shelf as supplements or from a complementary therapist. The treatments include Homeopathy; Hydrotherapy; Acupuncture; Aromatherapy; Massage; Yoga; Meditations; Nutritional Therapy; Essential Oils and Herbal remedies, and they can be used in conjunction with conventional or therapist led treatment. They are also affective if used in conjunction with counselling or psychotherapy and can be taken with all classes of anti-depressants except for 8MAOI’s. (Harvey, 1999). Recovery Themes ( As related to interviews). Professional help: Medication; Own Doctor; Formal diagnosis; Support groups and Mental Health Services; Counselling and Therapy; Effectiveness of help. Strategies/what helped: Keeping busy; getting out of the house; visiting family and friends; freedom. Support: Relationships are crucial; understanding is crucial; spiritual factors; if lack of support symptoms last longer. Stigma: Labeling and mental health; family ostracizing; if talked about easier to handle; wanting their stories out there; for others to know what it is like; to help others. Professional help and diagnosis can be significant and medications can make a real difference to women’s lives. However, some women refuse medication and may find alternatives to get through without it, this takes determination and could be a long haul. Counselling and psychotherapy are very important in the recovery process in order to make meaning of the whole journey. For some hospitalization is necessary for treatment and intervention at crucial stages of the illness. ( Aiken, 2000; Milgrom et al, 1999; Fettling & Tune, 2005; Harvey, 1999). Recovery is a journey for most women for whom there is often a turning point or pivotal change in the process, whereby they reach a certain stage in the depression, and then manage to move away from it. (Frame, 2007). It is a journey of acceptance, by others and 8 MAOI (Monaomine Oxidase Inhibitors, used for Anti-Anxiety. 19 by oneself. Accepting the illness and accepting help, that it is okay to need help is very significant, as is seeing the depression as separate to who they are as a person. Often the turning point involved a crisis, with an admission to a psychiatric unit, with family insisting that help be sought. With some, it was a conscious decision made by each woman to work on her own recovering experience. (Pedan, 2006). In making the decision to choose to work on recovery, a decision to choose life rather than to die is also a turning point for many (Frame, 2007). The response of the father, family and friends to the mother’s depression often affects how the recovery progresses. It is greatly aided if the family acknowledges and recognizes the depression as a legitimate concern (Gruen,1990). The support, understanding, and non-judgmental attitude of partner, husband and family can greatly lesson the guilt and hasten recovery. However fathers and partners have their own emotional difficulties when the mother suffers from PND. They may feel frightened and helpless when they see their partners so disabled. While some may respond with the support and validation which is so vital to recovery, others are bewildered, betrayed and angry at the unexpected situation, which is very different from what was anticipated with the birth of a new baby (Gruen,1990). Professional help and diagnosis made a difference for some and counselling therapy. The turning point was often related to receiving the necessary skills and support to facilitate recovery, with there being a fit between the woman and the professional. (Pedan, 2006). Personal Strategies play a big part in the recovery process, for instance getting out of the house, planning their day to meet with friends, and joining with others in a supportive setting. The need for space and freedom is significant, and the need to keep occupied, particularly with activities away from the home. Social and Emotional support This is probably the most significant factor in recovery, particularly by the closest person to the woman, usually her partner, if this is a missing factor it is very difficult for women to move on. (George, cited in Aiken, 2000). Even if all practical support is being given, if the 20 emotional support is not adequate, this is not sufficient for women. Emotional support by the partner may be the most significant factor in the recovery process. For those who did not have this, recovery may be slow. (George, cited in Aiken, 2000). Positive influences from people were identified for the women who had involvement in relationships that were positive and supportive. (Pedan, 2006). This was a very important component of recovery; for some women who did not have such positive relationships, recovery was a long drawn out process, and depression dogged them continually from thereon. Some woman described limiting relationships with their parents. Others had been in unhappy marital relationships which had ended subsequently. Recovery Strategies Working out strategies with the partner or person closest, in order to get enough sleep; to get away for a break and to have time out and space. Support from partner, family and friends; Support groups with peers. Treatment and Therapy as individuals, with partners or in groups. (Frame, 2007) Relaxation techniques Eating well at regular intervals, (Harvey, 1999) Asking for help, especially profession help If not coping, don’t be afraid to admit it Avoid intoxicants Write down feelings in journal If angry or have violent feelings that are frightening, share with a trustworthy person Attend mother/ child groups Don’t compare self with others Don’t strive too hard, or have too high expectations Respect your own needs (Aiken, 2000). If women are able to share their experiences with other women, this assists in the healing process, and if they are able to assist others in the journey of recovery, this will also help their own progress. (de Valda, 2003; Frame, 2007). 21 Barriers to Recovery Many sufferers attribute the symptoms which can be very frightening, to exhaustion and therefore overlook the significance of them. Others may focus on the symptoms and attempt to get relief through medication or finding a physical cause for their illness (Gruen,1990). Because it is an emotionally vulnerable time following childbirth, some women may be reluctant to acknowledge they are suffering from symptoms of depression; as such an admission would intensify their feelings of guilt and inadequacy. Therefore they may do their best to ignore the symptoms or minimise them (Gruen,1990). In some instances the barrier to recovery was the lack of understanding from the medical profession, they do not always recognise the problem, even after the new parent seeks help. For some of the women at the time period when they had the illness there was a general lack of knowledge as to the cause and the seriousness of the nature of the illness. The GP may say that it is only a temporary adjustment and not serious or minimise the symptoms that the women is having. This leads her feeling more confused and overwhelmed, hopeless and guilty for feeling the way she is, as it is hard for her to describe what she is experiencing or why she feels so bad. (Gruen, 1990). METHODOLOGY How it began As women we are aware of the enormous pressures placed upon us by society in terms of our role as mothers. We have been encouraged by recent texts in which women share their motherhood experiences and we have noticed how important it is to have childbirth and motherhood experiences validated. Our own discussions and research have reinforced the premise that women’s stories are still largely absent from current literature 22 on PND. We believe that this research is relevant and contemporary considering the current advertising campaign by Like Minds. Aim Our aim was to conduct ‘co-research’ using the ideas of David Epston (2001) which provided an alternative approach to qualitative social theory research. Our inspiration came from wanting to honour women’s stories, something that seems to be largely absent and lacking in current literature. We also sort to utilize other concepts of Narrative Therapy by: Giving voice to mothers stories Privileging the meanings and interpretations of women’s stories Learning from our consultants knowledge and experiences Wanting to reveal the subjugated or alternative story What we were trying to achieve We were trying to learn more about PND and its effects on women, their partners and their children. We wanted to learn more about outside contributing factors, which may have surrounded the experience of PND. We were wondering if the experience of PND had implications for wider society and were looking for ways in which we could give women a voice to discuss PND, without experiencing stigmatisation. We were hoping to provide a rationale for more effective service provision. Theoretical Perspectives Rationale for Interviews In order to research the experiences of women who have had Postnatal Depression, a decision was made to interview twelve women who self-identified as having had PND. The decision to research through individual interviews was based on a desire to offer women the opportunity to share their stories in a safe, respectful and confidential environment. 23 With this in mind, individual interviews seemed more appropriate than a focus group or group interview. The skills necessary to conduct an effective interview included: prior knowledge of the research subject listening skills empathy and attentiveness to potential stress/distress of interviewee flexibility (ability to ask appropriate questions and to deviate from schedule as appropriate) maturity (age and experience) non-judgmental attitude respect congruence warmth and compassion ability to build rapport quickly ability to contain emotional content and bring safe conclusion to the interview Ideology of Motherhood & Feminist Theory We explored the ‘ideology of motherhood’ from a feminist perspective and in this process we hoped to contribute to the “reframing of motherhood’ and encompass a wider cultural context that incorporated the feminist ideology of ‘the personal is political’ (Hainisch, 1970).9 The Power of Narrative Story telling is an ancient art form, an integral part of human existence and the most enduring form of communicating and reflecting upon experience, both real and imagined… (Grainger cited Crawford, Brown, & Crawford 2004:1) Crawford et al (2004:2) state “Stories are a transformative force in people’s lives, provoking self-reflection and change, and are profoundly human…but more than merely describe experience, stories build or construct (experience)”. It was this idea that narrative Carol Hainisch (1970) first said in print “the personal is political” early in the Feminist movement. Cited in Mansbridge, J. (1995) “What is the Feminist Movement?” 9 24 could transform and give agency to people’s experiences that led us to approach our research through the lens of metaphor and story. It was the wondering around whether the telling of the story within the safety of the interview could enable our consultants to reframe their experience of not only PND, but also childbirth and mothering. Holmes (cited Ibid: 3) suggests that the sharing of stories can lead to “the assignment of positive meaning to what appear to be very negative situations”. Bruner (1986 cited White & Epston1990: 3) states, “Story as a model has a remarkable dual aspect-it is both linear and instantaneous”. With this in mind we also hoped to gain an understanding of the different ‘layers of narrative’, within the research relationship. Narrative Therapy Narrative Therapists share a passionate engagement with issues of justice and ethics states Bird (2000) and this is based on a compassionate connection with and acknowledgment of the people we work with, underpinning everything is this relationship. “A living engagement with ethics, writes Bird (cited Ibid), moves us outside of compliance with the traditional professional position which then engages us with linguistic strategies that internalise lived experiences”. Within this relationship theoretical ideas and practices are, according to Bird (2000), “discovered and re-discovered, supported and challenged, confirmed and changed within this environment”. It is our sincere hope that the outcomes of our research will promote issues of ethics and justice. We understand as narrative therapy students that acknowledging context is vital to understanding experience. We note as well the fluidity of context and our inability to restrict experience to the three main areas that we have highlighted (historical, social, and recovery). It is our belief that all contexts, like experience are subjective and not able to be contained or constrained by theory, models or frameworks. “Interpretive frameworks” (Goffman 1974 cited Ibid: 5) Analogies are how we make sense of events. Co-Research The term ‘co-research’ has evolved within feminist and qualitative research contexts. It refers to the notion that knowledge can be ‘co-produced’ within the research relationship. 25 It therefore does not assume expert knowledge on the part of the researcher but emphasises the expert knowledge of those that are participating in the research. The language of co-research also highlights the shift in emphasis from power and knowledge lying with the researcher only and according to Epston (2004:32), further enables a sense of ‘joint exploration’. Terms such as ‘co-research’, and ‘consultant’ help to construct this more collaborative research approach. Epston (Ibid: 31) also suggests that co-research is unlike traditional research in that it does not claim to be objective; rather its ‘value’ is in the contributions of both the researcher and the research consultant. Where language and naming are power, silence is oppression, is violence (Adrienne Rich, 1972 cited Belenky et al:23) We observed also that this approach made women’s ways of knowing central and therefore powerful. As Gilligan (1982 cited Belenky et al, 1986:preface) observes, this enables the emergence of considerable wisdom and acknowledgment of the power of women’s voices in expanding our conceptions of human development. Belenky et al (1986:19) suggest that voice is metaphor and that this applies to many aspects of women’s experience. They (Ibid: 23) propose the idea that being given voice enables women to be influential. Hermeneutics The term Hermeneutics came into use in the seventeenth century within the context of biblical studies (Crotty, 1998:87). Hermeneutics is defined as a method for making sense of text and illuminating or exploring hidden or indirect meanings. Hermeneutics also grounds these meanings within the context ie the history and culture of the individual and the community and produces a ‘sharing of meaning’. This interpretation and understanding of text has been one of the historical influences on the development of the brand of social enquiry known as “Interpretivism” (Crotty 1998: para: 87). Social Research The form of research known as Interpretivism (Weber), focuses social enquiry on ‘understanding rather than on explanation’ (Crotty, 1998:67). According to Crotty (Ibid) values and meaning are the processes by which we make sense of the world. All meaning 26 writes Berger (1985 cited Ibid: 58) is socially constructed. This way of viewing research and meaning heavily influenced Epston’s development of both narrative therapy and the ideas of co-research. Limitations of process The small sample size of women represented, limits the experiences open for research Cultural differences were not addressed within the sample group The questions, although deliberately open in nature, are none the less specific and directional and therefore may have failed to elicit accurate or honest responses. Because each member of the research group has personal experience with PND or similar, there is some tensions around staying objective as researchers throughout the interview process. Inevitably, the interviewer will ‘hear’ through the lens of their own experiences and discourses. This means that themes outside of the interviewers experience may not be picked up. interviews. Hence the importance of transcribing and re-reading However, there may still be questions that are not asked or information not asked for because of the interviewer bias. Research Consultants There were twelve women, drawn from the general public, gathered through snowballing techniques. There were Invitations to participate through special interest groups, for example through consumer led mental health services. Those who identified as having experienced PND and indicated an interest in taking part in the research were given an information sheet (see appendix) to consider. Consultants were given a week to consider whether or not they wished to take part, and were assured of their right to withdraw their consent at any time before publication. We wish to acknowledge the following key qualities that we observed in this unique group of women. They: Exhibited amazing courage in sharing their stories Wanted to make a contribution by sharing their experiences Were creative, resourceful and adaptable Were intelligent and knowledgeable Retained a sense of humour Challenged the Myth of Motherhood Valued relationship 27 All developed their own agency Demographics: (see following graphs) Age of consultants Ethnic identities Number of children Marital status Educational Qualifications Self-identified severity of Post-Natal Depression on a scale of 1 to 10 Process The tools used in this research were an interview schedule and questionnaire, an interviewer, and a digital recording device. The interviews took place between July and September 2007, in an environment chosen by the interviewee, so as to be both comfortable and convenient. The interviews took approximately one hour each. Each member of the research group conducted four interviews and these interviews were then transcribed. The specific questions used in the interview had not been given to participants beforehand but the information sheet (see appendix) had outlined the topics. The questions in the interview schedule (see appendix) were designed to elicit information in three broad categories: Historical context (pregnancy, birth trauma, previous mental health), Social context (relationships and emotional support, stigma issues) Recovery context (treatment, diagnosis, services offered) There were three general questions relating to these areas and a final question which asked women to look back at the experience and to articulate what they would have liked 28 to have been different, and what they may identify as not yet resolved. Further probes were asked within each of these categories. Ethical Issues (see previous comments re narrative therapy) This research process involved gaining ethics approval from the Unitec Ethics Committee by way of a written application (see appendix). The application was approved without difficulty. Information sheets and consent forms were sent out to the participants prior to interviews. The information sheet explained the background to the research and the procedure, and outlined the parameters of confidentiality. It was made clear who would be reading the research and who would be either hearing the tapes or reading the transcripts. As a precautionary measure, reference was made to the provision of a counselor, should the interview process cause undue distress. The greatest ethical issue was concerning safety for the interviewee. It was recognized that this process could cause distress, particularly if the experience of PND was recent or unresolved. Because of this concern, the decision was made to only interview women whose experience had occurred five years or more previously. In the interests of confidentiality, women were invited to use pseudonyms for themselves and/or their children. Consent forms (see appendix), that included a clause about confidentiality, were signed by both researcher and co-researcher. 29 HISTORICAL CONTEXT FINDINGS The Historical context (see Appendix - Questionnaire) explored issues for women during their pregnancy and birth. This included how they felt during their pregnancy and whether they felt prepared emotionally and physically for their baby’s arrival. We were interested to discover if women, on reflection of the pregnancy and the context surrounding it, felt that this had an overall impact on their experience of PND. We wanted to give women an opportunity to share their birth stories and in hearing to acknowledge the complexities, the joys and disappointments of this important rite of passage for women. We wondered whether our consultants were given opportunities to de-brief after the birth and if they, in hindsight, would have found that useful. Women were asked if they had been aware of the symptoms/expressions of PND and if they knew of any history of PND or Mental Illness in their own, or their family history. It seemed important to ask if our consultants had been formally diagnosed with PND or were self-diagnosed, after the event and to wonder if this had been helpful in terms of their recovery. We were curious to know how long the PND lasted and what was still there for them around pregnancy and birth and other situational stressors. 30 The experience of pregnancy Fitzgerald et al (1998:101) state that complications during pregnancy can also affect the perceptions of the quality of the birth process and can affect women’s mental and physical health. Only two out of twelve of our research consultants recalled feeling depressed or very unwell during their pregnancy. Six out of the twelve reported a smooth, easy or idyllic pregnancy in which they were looking forward to the birth, feeling excited about the prospect of being a mother and during which they were physically and emotionally well. …we planned to have Ben and conceived straight away, so I was terribly excited. Huge joy and the pregnancy, it was pretty okay, not too much morning sickness or anything…It was a pretty smooth pregnancy. However several described situational stressors during the course of their pregnancy, which they felt, may have contributed to having PND. But towards the end of my pregnancy with our youngest, my relationship with my husband was strained… You know, there was tension there. The about a week before Bella was born, I had a car accident, 50 yards/50 metres from our house…that was shock to the system”. . I was taking our middle one down to kindergarten, I had taken our car down the road to pick up another child, backed out of their drive, and was just turning around to turn down Grey Street, just down the road from us, and there were road works resealing the road, and I didn’t see the gas company van coming hurtling down the hill, when I had just come out far enough and he hit me in the front, and that was a shock to the system. So that meant no car. Mum came up from Gisborne to be with us, she was coming up anyway. That didn’t help, and the fact that the other two had been early, Kate, four weeks early, and Fleur a couple of weeks early, and Bella five days late. It was a complete opposite. So she was due on the 5th November, and she arrived on the 10th. I had woken up about 4 o’clock in cracking good labour. I had the accident one Monday, been to see the specialist on Wednesday. Everything appeared ok. Went into labour on the following Monday morning. 31 Relationship difficulties also appeared to be an important issue for women in their pregnancy. It was this lack of emotional support that created the potential for feelings of isolation during the birth itself. Expectations of the Birth Expectations of the birth experience by the mother appeared to have had an important impact on the overall experience and consequent development of PND. Disappointment or difficulty around the birth led some women to doubt their own capabilities subsequently as a mother. One woman described the physical process of the birth as frightening and expressed her sense of being quite unprepared for the ‘intensity’ of the experience. …I personally found the whole labour, having the baby thing, really... unpleasant, sounds kind of naïve and silly. It was a real shock to my body and me. It just really took my breath away, so to speak. Many talked about feelings of panic, anxiety and a loss of control during the birth and several stated that they felt that they had failed in terms of their own and others expectations. Some of the feelings of failure appeared to be the result of comparisons with other women’s birth experiences and their own previous experiences, if this was a second or subsequent pregnancy. First time mother’s stated that they thought that childbirth was a natural process and had been told that complications were rare. One first time Mother describes her sense of shock at not having a “normal birth”. It was quite a shock, having a Caesar, it was a shock, because everybody goes and tells us in the ante-natal classes that everybody has normal births, and hardly anyone has ‘Caesars’, so I’d been a perfectly healthy and fit person, you don’t expect a Caesar. 32 Feelings of inadequacy in terms of their own performance appeared to be linked to the circumstances surrounding the birth and to the individual’s cultural expectations. But then there was all my thinking that went along, that there were thousands of women and hundreds of millions of women all over the world that were having babies and why can’t I do it? I just thought hundreds and thousands of women have done this before how bad can it be? Then she was born at 7 in the morning and at 10pm that night she was still crying, she just wouldn’t settle. I had gone from having lots of time to sleeping and myself whenever I wanted. That was to be her pattern, she wouldn’t settle. I got worn out. Tired really easily. I wasn’t coping, wasn’t coping at all. Medical Procedures and Birth Complications Feelings of failure often seemed to be directly proportionate to the number of complications experienced during the birth and also the amount and type of medical intervention that occurred. Medical intervention that was performed without adequate communication left some of our participants feeling violated and frightened. There were about 11 doctors in the room at the time-it was pretty full on and the guy who came in to do the episiotomy and the forceps, I remember freaking out because he walked in, in white gumboots and a white plastic apron and I remember, cos I was on the bed, I couldn’t move, because they had thrown me back and had the bed up and the stirrups- very dramatic, stirrups and everything, and thinking he’s from the freezing works. Cos he looked like he was and I actually said that, “You look like you’re from the freezing works”. It was completely unexpected that a doctor would walk in, in gumboots and an apron to deliver a child, a baby. Because he was overdue, I was supposed to be going in for an induction at 8.00 in the morning, on Monday morning I actually went into labour at 5 o’clock on the morning I was due to go in for induction so I was really pleased about that, cos it was quite a stressful kind of time because I didn’t know who was doing that and what doctor – male or female, that was out of my control. And then it was a 27 hour labour. I started off at Waitakere and it was about midnight I was transferred 33 to National Women’s in an ambulance. It was about 17 hours into the labour before the anaesthetist arrived to give me an epidural, because they’d decided I needed an epidural to speed up the contractions. It was quite a shock, having a Caesar, it was a shock, because everybody goes and tells us in the Ante-natal classes that everybody has normal births, and hardly anyone has Caesars, so I’d been a perfectly healthy and fit person, you don’t expect a Caesar. But I personally think it’s the chemicals in your brain that are changing, and the hormones that are changing, not so much the trauma, but that does, trigger depression, but then it changes the chemicals in your brain, which is what has happened to me a few times in my life, you know. All our research consultants noted the lack of accurate information surrounding pregnancy, birth and PND. Many saw their experience of PND as the result of a number of factors, a complex intertwining of situational stressors including lack of support networks, previous and current losses, perceptions and expectations of the birth experience, and the levels of anxiety that occurred during pregnancy, birth and early motherhood. It was just a cause and effect of a whole lot of things that hit me. Whether subconsciously and I haven’t thought of this before and having a tubal ligation, subconsciously meant that I knew I couldn’t have any more children. The effects of a difficult birth can become cumulative adding to the stress of new motherhood and affecting the bonding process. Separation of the baby from the mother added to feelings of disappointment around the birth. And the pregnancy went just normally, only a couple of weeks overdue, but what happened was, that when I went into labour it was very, very difficult, it was a whole day and at the end I was so exhausted I was falling asleep with the contractions, you know, and when I finally had the baby…I just didn’t want to know, and then after the few days when they bring the baby to you, I just wasn’t interested at all. Yeah, like I didn’t get to hold him immediately. I didn’t get him directly on my skin…I missed all that. I really wanted that skin-to-skin contact and then let the 34 placenta, you know, the whole bit. I didn’t get to have that…and he was dressed and they’d wrapped him, so I didn’t really get to have that initial contact. Birth Trauma Four out of twelve women used the word ‘traumatic’ to describe their birth experience. This was often related to the degree of medical intervention and a sense of loss of control and fear for their own or the baby’s safety. Women consistently felt overpowered by both the birth process and the intervention that often occurred without explanation. Fear and helplessness were common responses to this lack of consultation. But, I think that had a lot to do with it, just the …feeling helpless and these people doing things around me, I didn’t feel, I didn’t know what was going on, to be honest, … Well, I got in there at midnight and she was born at 1 o’clock the next day, and I just felt completely not in control, and the pain was excruciating… I think if I could have walked around and perhaps…yeah. They gave me Pethidine too, a shot in my leg, and then they couldn’t find an anesthetist, because then they thought they might give me a Caesar, but they couldn’t find one, …and so all these things were happening. Yes, I was terrified, with my first baby I um, was powerless, was x-rayed, had a trial labour, had an epidural which only half worked; but he was born two weeks later, after a rather lengthy, scary induction, and people coming and going… I’m just reflecting… well it was a traumatic experience. Yeah, it was quite a horrendous experience actually. Yeah, antenatal classes don’t prepare you for that. …there was fears, terrible fears, of going to bed and not sleeping, fears of going out and confronting people and coming home, and looking after your house and stuff, of course, you stopped your job as well don’t you, to have a baby, that’s another thing, that’s a big change, yes that’s a change, but it didn’t seem to worry 35 me, because it came on when I came out of that hospital. And I know I didn’t like that hospital that could have been a trigger, because the hospital scared me. I think they did (explain), they said they needed to do some tests but they didn’t really explain what tests they were doing or what they meant and I wasn’t just quite coherent enough to ask the right questions. Post – Birth Complications Some of our research consultants described difficulties with post-birth complications and sick and unsettled babies. These added difficulties appeared to leave mothers feeling anxious about their own and their baby’s health and inadequate in terms of mothering. I had to go to physio for my stitches because I lost, I hemorrhaged too after having him, so I got stitches that became infected, I was unable to have a bowel movement for 11 days, so there was a lot of pressure and the stitches stared to come apart and they wondered if I was going to have to be re-stitched, which fortunately I didn’t … Lack of opportunity to debrief following the birth All of our research consultants expressed feelings of isolation and a lack of ability to communicate with others about the birth experience. None of our consultants had been offered a chance to de-brief after a difficult birth experience. Mothers also found it difficult to talk to friends or family members about the emotional consequences of birth. No, because everyone, I don’t know, maybe they talked about how many stitches they had, or the physical stuff, or I remember, Christine, she had a baby a month before John, and she had to have a [procedure] done, you know we talked about that, but not you know the way we felt” Personality type In terms of personality styles many of our research consultants described themselves as being forward planners with a need to know what was going to happen and with considerable expectations around their own performance particularly around the birth experience and the role of motherhood. 36 …And I’m very much like that. I very much hope that in my life – I like to know in advance – and I like to know how things are so I was the person who read the 600 pregnancy books and spoke to 600 other people and studied and was on line, and newsletter boards, and because I wanted to know… And when you feel desperately unhappy and out of control, you um, you want to go back to something you feel good at and to me that was working and I enjoyed that. I thought ‘why did I ever want to have a baby, it must have been the stupidest thing I ever decided to do, that’s what I thought. Out of control, and yeah, that overwhelming feeling of responsibility and not being able to get out of it and I think… First child, being very much in the high powered role, well she is a very highlystrung individual – a get up and go sort of person. Likes to be in control of everything, and to have this little baby screaming. And also she had an undiagnosed breech. Yes, it’s just getting that right balance, because I don’t like, I like to be in control. I don’t like that feeling of whoozy. And learning to live well, eat well. Because I do punish myself, I can over eat and then I had to work out how to lose it all so … Loss of control Women who identified with needing to be in control found the sense that they were no longer in control a difficult adjustment. The flexibility required to be a mother and the not knowing what was going to happen either during the birth or in the early months of motherhood created high levels of anxiety for these women. …It was after that first month it hit me and I thought I cant handle this I’m used to controlling everything and I haven’t got control here and I don’t know what I am doing and it just spiralled completely, so quick out of control. 37 One woman describes her need to control her environment as a direct response to feelings of things being out of her control. All of a sudden I became inward & withdrawn, and obsessive silly thoughts and then one of my early warning signs still now, which was then, is an obsessiveness about house work, because at that time that was the only thing I felt I had control over. And that still happens now. I know when I’m becoming unwell it is when I become obsessive about housework. I think that for a lot of mothers if they are quite used to having control, and then they end up with this baby and it’s squawking and you have no idea … Some women mentioned that having a high self-esteem created a buffer for the experience of PND. Those whose sense of identity was secure found that they moved on to recover more quickly from their experience of PND. Yes, I’m ok, I know who I am, and I’m confident. Well, most of the time. I know there are times when we get into situations when we aren’t confident, but by and large, I am fairly confident. As I have gotten older I have gotten more confident. History of Mental Illness Seven out of the eleven women recognised a personal or family history of mental illness. One didn’t know, but said she could not therefore rule it out. Various diagnoses were recognised including, depression, bi-polar disorder, alcoholism and drug abuse, suicide and a family history of PND, amongst sisters, mothers and daughters. Two out of eleven revealed, on reflection, that depression had been a part of their life before the pregnancy and that the birth was another potential trigger for this. One said that she was depressed during the pregnancy. No, but depression in the family history. PND, they told me to expect the baby blues and things like that, but mine went on, and they were wondering if it was because I was unable to have a bowel motion, and then all the things that were tried for that to be able to happen. And then not sleeping and having a new baby and things like that. 38 Yeah. Because I believe I was depressed my whole life I just didn’t know it, because even as a child I felt different, so I just kind of didn’t know it. Drugs and alcohol were my way of dealing with my internal world and the world. I think it just triggered everything off, I think I might have been always depressed, but the baby blues or PND, triggered it off, into something more severe, because looking back I think, I have always been depressed. Lack of Information All of our consultants felt that there was a considerable lack of honest information about the birth experience and the symptoms of PND. It seemed that even antenatal classes focussed on the normal experience and did little to prepare women for the complications that may arise. They also provided little or no information on the signs and symptoms of PND. Paradoxically there was an acknowledgement from some that it was impossible to take in everything that would totally prepare you for the life changing experience of birth and motherhood. Well you don’t take it in – it’s that whole “well I won’t have a colic baby” and they actually don’t do a lot to tell you about it. I can remember that there are all sorts of things that are not that well educated or conveyed to prospective mothers – I mean I wouldn’t want to scare a new mother into thinking “oh shit I’m going to get post natal depression” but I do think that some decent education… … that was the antenatal class. It was the pregnancy pack. You know, it’s like “your baby’s fine but how are you”? You know, that pamphlet. I remember looking through it & thinking, “gosh, it’s pretty scary” sort of stuff, but I didn’t think it was … We actually had somebody at antenatal classes. A lady talked about it then. Although interestingly enough, I didn’t actually identify that with myself. Hospital care often fell short of the mark in terms of supporting mothers after the birth and also in providing resources to help women on their return home. Some remarked that they felt their had been a lack of supports generally for their emotional struggles and there was 39 a question around how much emphasis and resources the health system places on healing physical injury over psychological distress …but just the National Women’s again, the hospital was insanely busy, the room was filled with every different culture imaginable. That is how it felt like to me. Visiting hours were horrendous, babies screaming everywhere. It wasn’t until 10pm that night, that a nurse came and said, when I was standing there holding Nat, and I was balling my eyes out, and she asked what was going on, and I said she couldn’t’ sleep, so she said take her down to the sleep room. Nobody showed me how to feed her or how to do anything. If that had been in that little pack that they send out, if that had some information, about here are some resources in your community that can help you, should you find yourself struggling. Yes, yes, but I wasn’t getting the help I needed. It wasn’t available. Society just doesn’t have the support that when you’re suffering, like I had, you can not get the home help for depression or post natal depression. If you break your foot you can get help, if your mind is so distressed that you’re exhausted and unable to get up and do anything, no, there is no help. Which is very wrong, I have spoken to a number of Social Workers and they have found this to be a real issue in this Society, a desperate issue. Awareness of Symptoms and Expressions of PND Women described varying levels of knowledge about PND. Ten out of the twelve said that they did not know what it was and it was only in hindsight that they recognised the symptoms or expressions of PND. But yeah, it was something I did not understand, and I did not know what was happening, instead of being your normal self, you became inward, totally inward, and couldn’t sleep, at night, and you needed to, because you had a baby, a baby. And during the day, you just cried all the time, and you don’t know why you are crying, and all that, and it just went on from there, and it got worse, and worse, and worse. I was just, I couldn’t sleep, I’d go to bed, I’d freeze emotionally, and try and make myself go to sleep, and I couldn’t, and you needed to, but it made it worse by saying “ I got to go to sleep”, and you couldn’t. 40 Only one of the women recalled being given some information from antenatal classes about PND. Another woman was able to make connections between her own experience and that of her Grandmothers years’ previously. Her (grandmother) youngest child when she committed suicide was I think 3 or 4yrs old and they lived out on a farm and she had no contact with other people, they were quite wealthy – so she had everything she needed and she was quite pretty, she had four children, but mum said she was just very unhappy, she was always sleeping always crying and was very quiet she didn’t spend time with them. When I listen to all of that, I say that’s what she had – that’s how I felt. For all of the consultants the symptoms of PND were confusing and created feelings of failure and/or despair especially if they ‘compared’ the way they felt with other mothers without PND. It seemed that often women’s feeling’s and affect were not seen as PND but as their own difficulty in adjusting to motherhood. This appeared to reinforce women’s sense of inadequacy. …Manic behaviour, but finding it hard and not enjoying this, because there were a couple of close friends who’d always be happy and I’d say to them: “How can you be happy? You’re always really enjoying this, and I’d say I can’t stand it. I’ve been up all night. I resent having to be up in the night, I’m really not enjoying this and if I’d known I wouldn’t have had children. So as well as the mania, I was starting to make these complaints and people that I speak to now, they say: “well, when we look back we thought it was odd how much you hated parenthood. Feelings of guilt, resentment, isolation, and inadequacy were common themes that women identified with as underlying their symptoms. …I think I was burying that feeling of resentment by keeping busy. That’s another warning sign; busyness. 41 Soon after I got home. It was like I had no energy and I was asking little Jo to get the nappy and she was sort of running round. I didn’t.. And he was no help, my husband. The only thing I really did for Jeff was breast feed him and bath him. For most, the realisation that how they were feeling was more than an adjustment to parenthood was not immediate and often occurred as women found that activities that they would have once enjoyed, were now lacking that joy. I remember one afternoon, when she wasn’t very old, and things felt so, so dark. Like my world felt so dark, like a darkness I had never experienced before, and was sitting on the lounge floor, and I just started crying and my Gran was really concerned. She was just asking, “What’s the matter darling? Come here”. And then I went for a picnic in Cornwall Park with my family, and I just realised that nothing was feeling right, and thought this would normally be an occasion that I would be really enjoying, and I would normally be a part of, and I realised that things were definitely not right. Along with the expressions of the illness, all of our consultants remarked on the lack of understanding of what was happening to them both physically and mentally. One woman described her symptoms as equivalent to being in a strait jacket. It felt like a strait jacket, like something put over your head, and suddenly you felt like you are all clouded in, all these feelings come, and you’re clouded in, and sinking. You don’t have any motivation, you lose it, you loose everything, you want to curl up and hibernate, like a bear, but you have to keep going.” Diagnosis Ten out of twelve women were formally diagnosed with PND. All of the women who were diagnosed stated that this was helpful in gaining understanding about what was happening to them. For most it legitimised their concerns and helped to alleviate feelings of inadequacy. The relief for women that they were not going crazy was enormous, as was the sense that there was an end to how they were feeling. 42 Yeah, cos I wasn’t mad. But then, it’s kinda that double-edged sword thing. It was actually quite a relief to go to maternal mental health services to be actually clinically diagnosed because then I knew it is real. Just not me coping with my normal ongoing depression, being caught up with other things too. Identifying it, was a huge relief I think the identification of something makes you feel so much better because I know there is a reason – and it brings clarity; it makes you feel better instantly. To know there is actually something wrong, and it’s not going to be a state I’m in for the rest of my life. For those that were formally diagnosed there was a lot of variance in the time frame of diagnosis. The earliest diagnosis occurred prior to hospital discharge and the latest oneyear after the birth. Professionals responsible for the diagnoses included gynaecologists, GP’S, Plunket nurses and PAFT workers. All of the women were prescribed some medication in relation to the PND and all described benefits from taking medication. It is unclear as to whether the diagnosis impacted directly on recovery by alleviating the sense of self-responsibility for the PND or whether taking medication caused the better outcome It was massive. That was the biggest (to be) diagnosed and medication and I’d have to say that two weeks into taking that medication I actually felt the best I’d felt since I was 17. For some of the women the path to diagnosis was difficult and made more difficult by the lack of understanding by friends and family. Yeah. So there wasn’t a clinical diagnosis until that 1-year mark, when I got pregnant again, with (daughter)…I got pregnant with (daughter), I could not get out of bed, I couldn’t stand it when 1st child cried – I’d just leave … I can’t stand this, and I remember driving to a friends house and I could hardly keep awake. I don’t know if you’ve ever been in that situation - just so extremely fatigued. Yeah, and there was no reason for it because I’d had good nights sleep – and it would hurt to put one-foot in front of the other. It would hurt to get dressed, you know, I was so, 43 so tired, and I remember I was practically falling asleep at the wheel. Went through a red light at corner of dominion and Balmoral – pretty big intersection – and so I was pregnant and had son in the back seat and I rang Mum and said Mum I need some help. I remember her comment, she said: Don’t look at me, I can’t do anything.” And I thought: Oh, Christ! So I went to the Doctor, burst into tears and said I can’t do this anymore and she referred me to maternal mental health, who took me straight away. SOCIAL CONTEXT FINDINGS What we have learned When we co-researched the social context surrounding the experience of the women, we were hoping to gain a deeper sense of the emotions and feelings that were around during this time and explore the impact of PND on them, their partners and/or extended family. What became apparent very quickly was all of the women’s conversations reflected not only the impact of PND on their lives, but also coping with the transition into motherhood and the range of emotions experienced during this time. The following headings relate to the questions asked in relation to the social context and are supported by quotes from the women: The effects of Postnatal Depression on self and relationships All of the women were receptive and amenable to discussing the social effects of PND on themselves, their partners and family relationships. It seems, now looking back, they are able to see things differently to how things were, using metaphors such as ‘hazy’ and ‘blurry’ to describe what ‘seeing’ was like at the time. They seemed to have a clearer 44 picture of their experience and were better able to comprehend what happened in terms of their relationships and the emotional effects of PND over this time. …to think of it with PND, I don’t think you can see things clearly for what they are and you can be just so sensitive that you can take things completely the wrong way because you’re in such a different state of mind and you think people are picking on you, or just being mean, or you view it as just not being supportive, but I guess looking back, it's probably that they are actually being supportive, but because you’re so fragile, nothing seems supportive. Everything was very blurry - disassociate, couldn’t become close to anyone or anything. I didn’t have the energy to be involved with anyone. A number of women were aware of the effects of PND on their husbands, the emotional stress and strain and how this manifested itself in different ways and at different times with the women feeling either supported or unsupported, and the toll it took on their relationships. It was often noted that at the time the stress and/or changes to the relationship were often related to the transition of having a child as opposed to the effects of PND and this came from both partners. …the change from when we had been; a very intimate, loving couple to; I can’t even stand you giving me a hug – just don’t touch me. … yeah, it’s a big stress because you don’t have any extra energy or emotion or anything to give to your partner. You’re on pure survival mode to just get through the day. Massive stress, and also there’s nothing for the husbands. They don’t know what to do, where to go. They’ve gained a baby and lost a wife, so it puts them in a different place. Well I got quite a bit of support but it got…it wore him (partner) down, because he was doing um, he’s a tradesman and worked very hard, and he came home and had all this um pressure put on him… he lost a lot of weight, he started smoking, and then because I wasn’t a loving wife physically as well, you know, I think it just got too much for him and he moved out. 45 He was supportive, as much as he knew how to be… one time I’d been away for three weeks at my parents place and he phoned me at their house and I said to him, I can’t come home, I’m not ready yet, you know, and he just burst into tears.. and I remember thinking ‘Oh, flip, you’re not handling this either and I think because I was so much in my own world, me and this baby, I really didn’t think about how it was affecting him. We were both so involved in caring for him (baby), and it’s so nightmarish with a colic baby, the evenings were the worst we just did what we had to do to get by really. My husband was reasonably unsupportive, he didn’t understand and he felt that his role was to be at work and to be called home because I wasn’t coping wasn’t fun for him at all and he couldn’t understand why I wasn’t coping because he thought I could just go on and on having children and fulfill his need to procreate and all that sort of rubbish. It was difficult, I felt very isolated. The effect of Postnatal Depression on bonding with your baby Difficulty bonding or connecting with their baby was experienced in different ways by ten of the women and seemed to be for many a very heartfelt and bewildering experience. Often this was brought up first in conversations with mothers when they began talking about the effects of PND on their relationships and many were able to describe the experience in very real terms as the following extracts portray: I remember vividly bathing her and bathing your baby is a nice thing to do and I remember looking at her and just feeling nothing and it took me a very long time to bond with her, I used to wonder if I would ever bond with her. I felt – I didn’t hate her or resent her, I really genuinely felt nothing…. and it’s a scary thought to think that you would raise a child and feel that way. I definitely didn’t bond to 1st child. I resented him. He’d taken over my life, I mean my husband and I. 46 I just used to routinely give her a bath, and sometimes I didn’t really have fun with her, because I felt so horrible inside, um, so I just felt I was on auto-pilot. I didn’t have anything to give her and she was a burden to me, she was work, she wasn’t a joy… When I had my daughter and was on medication and was so well looked after and was enjoying everything, it was very different, but I still hadn’t connected to son and I just thought; Oh … I can’t really connect. Ten women found they didn’t know how to feel towards their newborn baby or what was expected of them in terms of bonding with their babies. There was also a connection with breastfeeding and bonding, this came through with five women noting the experience of not being able to breastfeed had impacted on them developing a bond or relationship with their child and two women were sure that when/if they stopped breastfeeding so too would the bonding with their baby. …and I kept on thinking what if I don’t have that instinct - and I remember after my son was born looking down at him and thinking ‘oh my God what have I done?’ This was going through my head and he was next to my bed and they left me and everyone disappeared and I remember thinking, I wonder if I can touch him – I mean I never had anything to do with babies so I was lying looking at him thinking, I wonder if I am suppose to touch him and where is this love that I’m suppose to feel and when do you bond, what’s this bonding. It was weird. …and of course I didn’t build up that close relationship with (baby), he was just something that needed to be looked after, like the cat. I didn’t mistreat him, but I didn’t have that bonding. I was just, I think I got a bit fanatical about trying to do all the housework, do the washing, rather than trying to interact with my baby. 47 As a baby, you looked after it, but you didn’t feel that intense …like I do with my grandson now, that intense love for him, because you couldn’t feel emotion, it couldn’t come through properly. I remember thinking at the time, if I wasn’t breastfeeding that kid, I wouldn’t have anything to do with her. Who noticed how you were feeling or did they? The question we asked related to whether the women thought people around them including family, friends and/or healthcare providers, noticed or understood how they were feeling at the time they were experiencing PND. Two women described how they were able to cover up, or hide how they were really feeling, wanting to give the impression that they were coping. Often the women felt they couldn’t say anything, either because they didn’t feel comfortable to speak out about PND, or because they themselves didn’t understand what was happening. It was noted in hindsight how others may have noticed something, particularly family, but didn’t say anything or didn’t understand what was happening. No, because you didn’t like to show it, you didn’t like to show what was wrong….I told them, my mother, but she didn’t understand it at all, no, and then it’s only years later that she said, my grandmother may have had depression, her mother may have had things like that, but I didn’t understand that until years later, yeah. No, no-one said anything. Even my husband didn’t and it’s hard; I mean a lot of people, even my closest friends said I would never have known. But once again, I had learned from my earlier experience with depression to put on that happy face. …my doctor was a man, and I didn’t like talking to men about stuff like that. Even like talking to the nuns the first time, I didn’t know they knew about periods and babies and things. I was sort of the type of person not to… I’d hold it in. Before I had my oldest son, I said to my midwife, beware because I have a history of depression and I am really worried I may get PND, but because I’m a person that doesn’t like failure, I put on this really good façade that I was coping. 48 …they were probably told, but he is the sort that would say, ‘just snap out of it, you don’t need to be like that’. Well, I didn’t want to be like that, did I! That’s when my husband came home and said I need to sit down with him, he phoned the doctor and said we will go and see him together. If he had not taken me to the doctor then, I would have definitely done something stupid. …he came in and he didn’t know what to do with me. He’d never seen this. Like if you watch TV and someone has a flip out? It was just like that, I guess. He didn’t know what to do. I remember one afternoon, when she wasn’t very old, and things felt so, so dark. Like my world felt so dark, like a darkness I had never experienced before, and I was sitting on the lounge floor, and I just started crying and my Gran was really concerned. She was just asking, What’s the matter darling? Come here. Emotions; how did this impact on your experience of PND? All of the women were able to openly describe various emotional responses to the effects of PND. The emotions varied with some more intense than others, but the following were commonly expressed by the women at some time; anxiety and obsessive thoughts, guilt, crying, anger and resentment, suicidal ideation, isolation, feeling withdrawn or lonely. Strong feelings were noticeably still present as the women described the depression, often feeling disconnected and unsupported either from their partner, immediate family members, or healthcare professionals during the times when they felt they had needed to feel connected or have support most and there was still raw emotion round this. The emotional complexities saw many of the women unable to talk about their feelings during the depression, lost in the struggle to know what was happening to them or where to look for support, often not receiving the assistance they needed from their partners, family and health professionals, or if they did, it was at a stage where things had become so bad there was no alternative but to act. Often partners or family members were also lost in knowing what to do, or who to turn to for help, enforcing the silence of PND. 49 …because I felt so depressed and so frightened and lonely, I just couldn’t seem to reach out to them, I just didn’t want to know, I just wanted to stay at home, and if I went out, I just went to the shops, did what I had to do, and then went home, you know. That sort of precipitated the depression, it’s like all those things in my childhood that made me vulnerable and defenseless and emotional were still there, it just took the PND to sort of compound them.. There are things I could have, or would have done better, or different, but I can’t change it. What I would have liked to have done, is to know myself, being ok to be able to talk to people, to be able to express myself. Because I didn’t know, I thought everyone thought like me. You’d only talk about the physical stuff, not the mental or the emotional stuff. …the person (lead carer) I got was quite shocking. I would sit and bawl my eyes out in front of her and she just didn’t seem to think it was a problem, or.. so I suppose I was quite depressed and I think anyone with half a brain could have seen it. …they have been through all this, they could have been through depression as well, it was never recognised, it was never accepted, they were stigmatized, put on the outer, and they just want to curl up and die. Do you know what I mean, because I could have done that, myself. Definite feelings of anxiety and obsessive behaviour were expressed by six women, with one describing the emotional anxiety as sometimes feeling like panic attacks and another women described obsessive behaviour being a part of feeling manic. The anxiety was intense and usually accompanied by worry over a raft of things; the baby, housework, going out, not sleeping, not being a good mother, not bonding etc; The more anxiety and worry took hold, the more intense the feelings became… 50 …and I was incredibly nervous about the second one and I was like quite anxious about it. Thinking: I don’t know how to do it. I became very serious, would worry about the most silly things – loads of anxiety, very insecure and continuously feel like a failure all the way through. I was very unwell, high anxiety, high everything… I was still feeling extremely lonely, extremely afraid, really anxious… I was still really anxious over everything, and I couldn’t really sleep, not during the day. The anxiety…Yeah, it just really took a hold of me. It was frightening. …obsessive silly thoughts and then one of my early warning signs still now, which was then, is an obsessiveness about house work, because at that time that was the only thing I felt I had control over. I think the anxiety was terrible and the fact that it had a physical hold on me…it was a really scary time…I felt so horrible inside, I was just on autopilot, doing the things I had to do”. Four women expressed feelings of guilt and it would often appear as a backdrop to other emotions. It was a difficult emotion to talk about because ‘society expectations’ weighed heavily on mothers and revealing feelings of guilt was not something you spoke of. I’ve got so much, I look at my husband and my son and we are all healthy, we have got everything we need. I couldn’t have asked for any more – but I still don’t cope and then I get embarrassed and I get that guilt trip. The biggest thing that comes from being able to talk to other people that are experiencing it is being able to sit down and say; ‘God, this is really hard’ and really have a moan without feeling guilty. Eight women mentioned irrepressible crying… …and I couldn’t stop crying – I cried for days and I had a big screaming fit at my partner’s parents – they were staying with us and … I just completely nutted out. …and I can’t stop crying. 51 I look back now, and I’m so angry – cause I used to go and cry, every visit with her. I just started crying and my Gran was really concerned. …and during the day, you just cried all the time, and you don’t know why you are crying. I remember crying and looking at my son… I went to the Doctor, burst into tears and said I can’t do this anymore and she referred me to maternal mental health. Five women experienced feeling angry or resentful about their situation. Anger and resentment are emotions that are not always easy to discuss, particularly for mothers, but looking back it seemed there was more awareness now of its influence and in some cases realising it’s still around and wanting to do something about it. I’d like to do an anger management course, because I think too, that like you can go through PND, but I think you can end up angry at the other end as well, like, I’m angry that I got it; I’m angry that it wasn’t picked up early when I was bloody pregnant because here’s this pregnant women just falling to pieces…. …. She (mother) hasn’t helped me she’s left me and I was just angry and angry with my son all the time. …I had been feeling very angry, and she set me up on a course… When I knew that I was really on a fine line. I knew then that things, something needed to happen, because I was getting really angry… …and I think I was burying that feeling of resentment by keeping busy. That’s another warning sign; busyness. Half the women interviewed experienced suicidal ideation, one having attempted suicide. Two had a family history of suicide which they connected with PND, and one woman had contemplated suicide before PND. Even though the women were feeling very low, on the whole they believed that although it was something they had considered, sometimes just as a passing thought, they would not have gone through with it because of the child/children. 52 ‘Definitely my work and my husband and if I did not have my son I think I would have committed suicide long ago. But I also think as a mother, that you can’t really go there, because I’ve got a child to protect now. …and also because I thought that suicide was cruel to the children. Except for the suicide question, because I wasn’t going to kill myself because I’d just had a baby and I didn’t want to hurt them. …and I went to a doctor in Christchurch and he gave me sleeping pills, which didn’t help, and so I proceeded to take the whole lot one night because I couldn’t decide what to ... …because you do actually feel suicidal, I’m afraid you do, and it’s nothing to do with killing babies, or hurting your baby, its just yourself, you just want to stop the unusual emotional turmoil, inside.. Six women expressed at times feeling either, isolated, withdrawn or lonely during the PND. These feelings were also closely associated with low self esteem and it brings an awareness of how depression can substantially alter (sometimes quickly) the way we think about ourselves and our situation. Absolutely isolated I just felt completely alone, quite isolated All of a sudden I became inward & withdrawn Fairly isolated….I just wanted to stay at home, and if I went out, I just went to the shops, did what I had to do, and then went home, you know. Did PND impact of your sense of identity as a mother? For all of the women we interviewed ‘motherhood’ had either not been what they expected or prepared for, or they had not known what to expect. Any expectations or preconceived ideas would, according to research, be heavily influenced by the ideology of motherhood, or the ‘myth of motherhood.’ It is not surprising therefore that the women we interviewed felt bewildered and confused by the binary between the myth and reality of their experience. As the following extracts show: I was so excited, I was only concentrating on the day of the actual birth and I thought I was prepared for the after… if someone had told me it’s not like what you see on Television, those Johnson and Johnson ads everything all so lovely. I won’t 53 be skipping down the road with my child laughing – if I knew those things, if someone had told me, they sleep when they want to, they wake up when they want to. I would have had a different experience. Getting home, trying to breastfeed and it doesn’t want to work… I felt cheated. I actually believed I was a crap mother… that you’re suppose to be really happy and just glowing and ‘the new baby’ and all that sort of stuff, and really it’s just not like that at all…. and your own expectations of yourself - If you have really high standards of how you are going to be with your child… then? motherhood is a whole different field. We don’t know where we are going – it’s a step in the dark for many, many women, and that puts them on the back foot I feel, they don’t really know what to ask. ‘Most of the time I was thinking – I’m not coping and everybody around me is coping, and that made me feel worse. What is wrong with me, why am I such a loser? Why aren’t I doing this right? Yeah, well I just felt as a woman I wasn’t good enough because somebody left me and all those sort of things, I wasn’t good enough, I wasn’t pretty enough I wasn’t a good mother, I wasn’t sexy enough. it just seemed like hours and hours and hours, of being trapped and not knowing what I was doing and um, just feeling really scared and overwhelmed and that responsibility of having a baby; it was pretty scary, and I felt quite desperate at times. These extracts typify the feelings, emotions and confusion surrounding the belief in the ideology that sees women as natural mothers, immediately able to care for their babies and ultimately fulfilled in their role of selfless carer and nurturer (Woollett & Marshall, 2000). From the depths of depression it can be difficult to contemplate tackling all these emotions and feeling (Harvey, 1999). 54 RECOVERY CONTEXT FINDINGS What we have learned In some instances the barrier to recovery was the lack of understanding from the medical profession, they do not always recognise the problem, even after the new parent seeks help. For the women twenty to thirty years ago when they had the illness there was a general lack of knowledge as to the causes and the seriousness of the nature of the illness. Even today the GP may say that it is only a temporary adjustment and not serious, or minimize the symptoms that the women is having. This leads her feeling more confused and overwhelmed, hopeless and guilty for feeling the way she is, as it is hard for her to describe what she is experiencing or why she feels so bad. (Gruen, 2000). Another barrier is the stigma which can be experienced and can be either through the women’s direct family members, or the public or the health profession. Key factors in the recovery journey 55 As we co-researched with our consultants we explored with them the key aspects of their recovery which was aptly described as a life journey or process beginning with their pregnancy and continuing on for the rest of their lives. For most the recovery process began once their illness was recognised by professionals, this becoming the turning point for them However when asked how long the illness lasted for, there was not a cut off point where they could say it was definitely gone, but for the majority depression continued to follow them at different points throughout their life. However the critical point of the illness with treatment was addressed and the majority of the women were able to carry on their lives normally and care for their infants and families. Following are some of the women’s comments regarding this journey and what made a difference for them: A lot of it I think is to with your life’s journey, and what’s happening externally around you and where you are and where you’re at. For me a big part of that recovery would be me would be meeting my second husband and getting that security….you just lose all your trust, and in my friends. You look at everyone sideways. So I guess it’s … and going through that journey of, I don’t know, finding me too, it’s taking a long time. Recovery for me is probably a life-long journey Being treated kindly and not judged aided recovery. Think that there is more awareness now than 32 years ago. I was in a position of having to find full time work, and just get on with life, and do it, and although I was still pushing away issues and things that could have made me depressed, I became so busy, that I was able to cope a lot better. I had to find ways of doing it myself, you try to calm yourself down, you try to understand why you are like that, and counting sheep by the thousand, and doing things to make me feel normal, but you don’t feel normal at the time, you just, feel like you are, like they say, in a big dark hole, that you think you are in, and you can’t climb out of it, you think, ‘why aren’t you happy and feeling good about yourself, and there is something there stopping you from doing that, but you don’t know what, and 56 that went on for probably six months to a year, it was only after a year that you felt you were starting to come right again Yes, it’s just getting that right balance, because I don’t like, I like to be in control. I don’t like that feeling of woozy. And learning to live well, eat well. Because I do punish myself, I can over eat and then I had to work out how to lose it all so… Yes, taking care of myself and exercise. The hormones must have just started correcting themselves, for about a year. So, the first six months, was diabolical, and just day by day, and by a year, it takes a good year, to, for perhaps the hormones to settle down, and come right, you see, but even then, you are always scared after that, that it will come back. Because you think, well what brought it on, why did it come? Emotional support from family and friends Support from close family was crucial for all the women, for the three out of the twelve that did not receive close family emotional support they took a lot longer to recover. The women each commented on the level of support they received as being vital to their recovery. Do you think you had sufficient emotional support? Um, I think my husband tried. Yeah, he tried, but he didn’t really know what to do with me. He was pretty good with my daughter. And my parents were an hour and half drive away and I used to drive there, and I stayed there. Yeah, they were quite supportive. Sharing with others Being able to share with others family, friends and support networks is crucial particularly speaking with someone who has been through it. The women expressed their desire for others to know about the illness, to reduce the stigma of it, they want the story out there; for there to be more information for the public and for pregnant mothers to be; the more they can talk about it the freer they feel. Being able to share their experience of PND with other women who have experienced it already is something the women identified would have been helpful and to have some form of 57 peer support. Sharing with others is a wonderful aid to recovery, as the women commented: It helped so much talking to somebody. It makes you feel, ‘look I’m not a nutter, its not the end of the world’. I didn’t realize how much I needed people. It is really important to have that sort of time with other women that understand. There is an end to it, it’s not going to last forever and there is help out there, you just have to ask for it if you want to get better. Increased awareness of PND and ability to recognise it in daughters Counselling would have been helpful to deal with loss and ensuing grief Depression was on going. Took medication again when baby 2 years old and again in the last couple of years, however thinks that there has been resolution. Maybe different types of resolution or maybe on-going? The biggest thing that comes from being able to talk to other people that are experiencing it. Being able to sit down and say God, this is really hard and really have a moan without feeling guilty. I think it is the responsibility of every woman who has experienced PND to share her story with her family- mothers to daughters. Its something that hasn’t gone on in the past and it needs to. …that there are all sorts of things that are not that well educated or conveyed to prospective mothers – I mean I wouldn’t want to scare a new mother into thinking oh shit I’m going to get post natal depression but I do think that some decent education around that would be helpful. I think a lot of woman suffer through what I suffered with my first child and feel guilty for feeling that way. You’re surrounded by other mothers who may be even feeling like that but don’t share it. That would have been absolutely brilliant; (to share with), somebody who gets it. Someone who’s been there, who’s done it, who could maybe come and sit and have a cup of coffee, you know, to break up that day, break that day up and just help with 58 being understanding of things. Yeah, peer support would have been absolutely brilliant! I’ve been able to speak to other people and just one day last week, I spoke to a lady who said to me, that she felt like she had PND, and 3 years later she was still coping with it, so it was really good to say to her, ‘l know how you feel’ and I can say that and truly mean it. Support from outside the home, the wider community would have been useful, as the following comments intimated: More external supports as well, because not everybody in the family can support and do those things that can be an unrealistic expectation. Just the emotional support; or to maybe come and have a coffee or to, you know, to know you’re not losing your mind. Yeah, that emotional kind of, practical kind of help, you know, breaks the day up and especially with a baby that didn’t sleep much. You know how they talk about in India, and in other parts of the world, where they say it takes a village to raise a baby. It’s such a lovely thing, but our village is so spread out and fragmented, and it is really hard for people to get together and communicate with each other I feel. Effectiveness of services offered We asked the woman as to how effective the services and treatment they received was for them, and what was most preferred? For the ten out of the twelve that were diagnosed and consequently treated they found the treatment affective and within two to three months they were starting to feel on top of things again. All 12 women received some form of drug medication for their illness, and 2 of the women received counselling. Three women were offered Karitane services with ‘Time out’ facilities which were very helpful, and one woman received hospital treatment. Other services used were Barnadoes, Anger change courses, Plunket and Maternal Mental Health, and Counselling services. For the few that took longer to be diagnosed, it was a longer process. Thirty years ago the illness was not recognised as PND, as the following comments show, with serious repercussions: 59 And the Doctors and nurses put it down to the ‘baby blues’. You have them a few days and then it all clears up, but in my case it did not clear up and it just went on and on and on… I mean the fact that PND wasn’t really recognised, as a valid condition…My marriage was lost, my mental health was almost lost, and it’s just had enormous repercussions for the whole of my life, as well as my son’s life. You see that is 30 years of my life that has been lost, thirty years of adult life have been lost, because I haven’t been able to um, like if the facilities had of been available then when I had the PND, I could have worked through so much, and cleared the path. Diagnosis of PND made a difference The actual process of diagnosis was an important facet of recovery, to know that they were not going crazy, they were not ‘mad’. Professional help and diagnosis made a difference for ten out of the twelve women. The turning point was often related to receiving the necessary skills and support to facilitate recovering, with there being a fit between the woman and the professional. (Pedan, 2006). Did you feel that having that (diagnosis) made a difference to your recovery? Yes a big difference. Because most of time I was thinking I’m not coping and everybody around me is coping and that was making me feel worse. What is wrong with me, why am I such a loser? Why aren’t I doing this right? When they said you have PND this is what it is – was they explained it to me I thought well I’m not crazy. They explained having my son must have triggered it and it comes out in different forms and stays for different periods. Identifying it was a huge relief, identification of something makes you feel so much better because you know there is a reason… and it brings clarity; it makes you feel better instantly Well, I think I was really well treated. I was really lucky as I had a woman obstetrician who was really aware of what was going on, and she got onto it pretty smartly. I remember her coming in and asking me whether I had depression or not, and I said I was fine, fine, with tears streaming down my face! 60 It took 9 months the first time to be treated, and then come off it. Then when she was 2, I went back on the medication. As I said, I can’t remember how long it took me to get off it then, but probably about six months. Well, somebody recognising that I had a problem, getting on to it and getting medication. The rest was up to me ‘It was helpful to know what it was’. Well somebody recognising that I had a problem, getting on to it, and getting medication. The rest of it was up to me. It’s an acceptance, it’s a big part, which is very much what I talk with my clients about too, is once you accept this, and you’re ok to take your medication and you’re using it for my benefit rather than having to be on it, you’ll find your day to day is moving forward a lot easier and your knowledge about it. It was more of an acceptance, yeah, total acceptance once I’d had the diagnosis. And being on medication I just felt better. I didn’t have any more of my obsessive thoughts. I didn’t have anything near my worrying and anxiety. And I guess that’s why I don’t want to come off it, even though I’ve been on it for six years now. This is the best six years that I’ve felt. Well I think I was really well treated. I was really lucky as I had a woman obstetrician who was really aware of what was going on and she got on to it pretty smartly. I remember her coming in and asking me whether I had depression or not and I said I was fine, fine, with tears streaming down my face. Another woman commented: I started counselling and pretty much my journey of self discovery and recovery really started…the counselling was helpful. Getting on medication was helpful, I’ve grown so much and I’ve learned so much Another said, I don’t know what it did, it must have lifted my feelings, my spirits. It must have evened out the massive hormone imbalance in my body. Other Services 61 For other services that the woman received they appeared to be largely ambivalent as to as to the helpfulness of them. Stigma; including ‘own’ and ‘others’ perceptions of mental illness; this affected thoughts about using mental health services and what sort of help was sort after. For three out of the twelve women, attending PND group support was helpful, for the remainder they were ambivalent to group therapy or it was not offered to them. The sense of wanting to do it independently and not to be reliant on services also had bearing on the woman’s choices, as one woman commented: Yeah and I think that I was just used to dealing with my own stuff, with pushing it down and all of that and I was told by a member of the family that ‘You don’t want to be on those pills. You want to… get off those as fast as possible’, so it just added to that whole, ‘Oh there’s something wrong with me’. Because I already thought there’s something really, really wrong with me. Fundamentally there was something wrong. ‘Fear’ of going crazy. Am I going to go, or am I going to stay? I didn’t know if I was ever going to come back from that. That was incredibly frightening. I wish there was an alternative to hospital setting that’s not clinical a place of respite not 36 hours of respite its not enough 3 weeks respite yes. It’s a pity that either you have to be ridiculously unwell in hospital or just struggle on. I think that the peer support service for people with mental illness could work really effectively targeting PND, having someone come and visit you in the home or get you in the car with the baby and baby seat and take you to the park or take you to, I mean even things like supermarket shopping became Mt Everest, you just don’t have the strength to carry that kind of task out. There was the MMH psychiatrist and the option of going to the PND group. Getting the right balance Yes, it’s just getting the right balance because I don’t like…I like to be in control. I don’t like that feeling of woozy. And learning to live well, eat well…now I know I have to take them (medication). Support Group-sounded really heavy! 62 Personal Strategies Play is a big part in the recovery process, for instance getting out of the house, planning their day to meet with friends, and joining with others in a supportive setting. The need for space and freedom is significant, and the need to keep occupied, particularly with activities away from the home. Attending courses, support groups, getting back to work, putting the children into daycare were some of the strategies the women used. One woman commented the following: A big part of my recovery was throwing myself into something that gave me identity, and that’s been all of my studies. Giving yourself something to look forward to, I had to do that, I had to eat, because you had to get through to the end of the week, so you had to give yourself, I’m going to go and visit a friend, or I’m going to go shopping, or I’m going to go to the park with the baby. You had to give yourself something to look forward to, each day to give you that momentum, to you get on with the day, sort of thing. …until you could get through a whole week, if you didn’t need it every day, perhaps, you could say, ‘Oh well, every second day, I needed something to look forward to’…so yes, you had to strive to, strive to find something to give you that little bit of buoyancy and coming back home, probably too. I didn’t seem to like coming back home, I had to be out a lot, rather than home. Personal faith was also a helpful factor for six out of the twelve women, being able to meditate or to pray was a strengthening factor, as the following comment says: I decided to keep my brain totally active by reading, the Readers Digest, and when I could, ‘praying’, always my mind full of prayers. What could have been more helpful? The provision of information or lack of was a crucial factor. These are some of their comments as to what would have helped them: To know myself, be okay to talk to people, to be able to express myself 63 That I would have had information at the time, (would have been helpful) I think information about all sorts of things, and perhaps that if I had known what resources were available, I think things could have been very different. At felt like at one point, I wanted someone to come in and show me how to be a mum, and show me how to cope. And I think that right at the point when I started to have lack of sleep, (the baby) wasn’t sleeping, and if I knew who to call, and how to get around it. Sometimes, even when you say to someone I’m not coping, they don’t hear you. I just keep going back to ‘information is power’ and if there is some way that women can be reached prior to the crisis, and you know that I’m not saying that we would eliminate postnatal depression, but we could certainly could help women a lot sooner, than what the message is getting out there, and its really neat that all those things about depression coming out. In fact, what I’d like to see is some ads on TV in relation to postnatal depression, because there is lots about bipolar, and that sort of thing. It would be really cool, the basic housewife could see that postnatal depression doesn’t mean that you can’t get out of the bed in the morning, you want to kill yourself instantly, that actually, it can be a lot more subtle that that. (Being) more aware of the signs and symptoms. What’s still there? In terms of what might be still there for you, after that experience, what would be the main thing that sticks out for you? For all of the women it still affected their lives in varying degrees, not as a critical or acute depression as it was postnatally, but still an ongoing chronic depression that hit from time to time, for some an ongoing issue. Life circumstances and turning points such as Menopause had an affect with many of them. The women expressed an inner awareness of their vulnerability to depression; they felt more in tune to being susceptible and awareness that they could relapse. For 3 of the women they felt that the Professional medical teams let them down; did not understand what was wrong with them and did not treat them accordingly. One woman expressed that the main thing that affected her was: I think being let down by the professionals. 64 Other women had the following comments to say: But, because I’ve had it through Menopause (depression), I know now it must be hormonal, because it triggered off, as soon as I started my Menopause, which I didn’t know you could get depression for that, but I got terrible depression then, through Menopause. So, something triggered that off as well, the changing in the chemicals. Actually, I don’t think it actually got better…for me. It was the start of a chemical imbalance. Hence that is why I am on antidepressants today. And when I have tried to come off them it has been disastrous. So I have been on them since that time. Others were grateful for the help they received: Just that I’ve had it. I mean I don’t feel guilty about it. I know that it is an illness and I’m very grateful for the help that I’ve had I think I was able to get over it fairly quickly. I was able to get over it and get back, which as you have probable realised I don’t get down very often or I try and hide things. Just get on with life. Life is for living. I think I was quite fortunate in the chain of events as horrible as it was to go through it, I can definitely see how people were in the right place at the right time for me, it could have been worse. 65 DISCUSSION Historical Factors It was apparent within this research that women’s expectations of the pregnancy and birth, had an impact on their subsequent emotions and ability to cope with motherhood and this was considered to be in part a contributing factor to the development of PND. Many talked about not being prepared for the intensity of the physical experience and the change to their lifestyle, despite ‘thinking’ that they were. Those whose expectations of the birth and pregnancy were far from the reality of the experience, found it difficult to resolve this binary. The literature provides us with evidence that pregnancy and childbirth are huge challenges and this has certainly been reinforced through our conversations with the research consultants. Expectations of the birth and motherhood appeared to be related to both the individual’s own ideals and the cultural or societal beliefs and constraints. As the literature pointed out childbirth and our beliefs around it are culturally located. Women often questioned why they seemed to be the ‘only ones’ who weren’t coping with the challenge of mothering. This was evidence to us of the isolating effects of silence around such issues, particularly 66 due to the increasing individualism that western society encourages and the absence of extended family networks. As suggested in the literature women are being silenced in terms of pregnancy, birth and motherhood narratives. The ‘silence metaphor’ was also noticeable in the lack of opportunity to de-brief or talk about the birth soon after, which in a number of cases profoundly affected the women’s ability to ‘integrate’ the experience. It felt to us as researchers that the inherent value of women’s stories was still largely unrecognised as an important and necessary tool for healing and a necessary way of passing on what they had learned to others. As suggested within the theoretical approaches the potential for shared experience in the form of narrative to reframe situations from negative to positive was evidenced by our women’s responses to the process. All found it to be rewarding in terms of having the ability to reflect on and reframe the experience. Those who identified as having the type of personality that needed to be ‘in control’ seemed to struggle more with feelings of failure both in terms of the birth and difficulties around mothering. The ability to be flexible appeared to be incredibly beneficial at this time, as did identifying as having a high ‘self-esteem’. Lack of preparation for the challenges as noted by Aitken (2000), will exacerbate women’s difficulties in adjusting to motherhood. There was a definite wondering for us around whether anyone can be totally prepared for the process of birth and the changes that parenthood brings. This appeared to be a common and prominent theme with our consultants as well, who consistently wished they had been more prepared. Issues of loss and grief although not always recognised as such, seemed to reflect these enormous changes. Corry & Tubridy (2005) discuss the losses that motherhood brings and as depression is a normal part of the grief narrative we believe it is a very appropriate response to the challenges and uncertainties of motherhood. Although PND is seen an extreme reaction to motherhood (Ball, 1994), our stories suggest that in terms of our current cultural context, PND may be a reasonable response and an important coping mechanism and may need to be re- named as such. Mothers who felt that they were well supported emotionally and practically by their partner throughout the process maintained the importance of this to recovery and to re-claiming 67 what had seemed to be lost in terms of identity and immediate relationships. Aitken (2000) provides evidence that suggests that an emotionally close relationship with the partner acts as a protective factor for the mother and conversely relationship difficulties are one of the key predictive factors for PND. Our research suggested also that a strong relationship was important in alleviating feelings of inadequacy and guilt as mothers struggled to find their feet in their new role. Those that identified with having a ‘traumatic birth’ found their inability to cope was made more complex by the need to deal with their issues around the birth before they could fully enter the role of mother. The recurrent theme around issues of trauma was an overwhelming ‘loss of control’ and this often involved medical procedures during which women felt overlooked, frightened and/or humiliated. ‘Loss of control’ was also a common theme that occurred around the challenges of motherhood and there was a sense for us as researchers that PND for our consultants was a way of re-gaining this control and/or restoring equilibrium. High levels of anxiety in these women often reflected this loss of control and we observed a connection between this and personality type, along with birth trauma. Ball (1994) supports this observation with his suggestion that anxiety interferes with the ability to take in information and creates more potential for self-blame. It was interesting to note that for many of the women there was a combination of stressors that appeared to have an impact on the development of PND. The stressors rarely happened in isolation. These included stress in the last few months of pregnancy such as, financial difficulties, being physically or emotionally unwell, tension within relationships particularly with the partner, previous or current experiences of grief or loss, and/or a traumatic or difficult birth. There is a question around whether some women are more susceptible to developing PND due to aspects of their personality, history of mental illness and/or negative life events (Milgrom et al, 1999). A number of women noted that they connected postnatal depression with a difficult birth experience, medical complications and/or problems with an unwell baby. Within the narratives of this research it was clear that a variety of causative factors were revealed (see previous comments) and the implication for us is that it is a unique combination of these factors that leads to PND. 68 These findings appear to support the bio-psychosocial theory of PND, however they do not totally explain it. It seems that there are still discrepancies and as Corry and Tubridy (2005) remind us, some women will have all of the potential stressors and still do not develop PND. Therefore it is unclear as to whether it is possible to predict which women may suffer from PND by observing these factors. And would we want to be able to absolutely predict who might, if the outcomes of having PND are not always negative? Many women revealed the enormous changes that PND created in their lives and remarked upon the journey of selfdiscovery and growth that has been produced. We wonder if these changes would have occurred anyway within another context and if so, it causes us to question again the notion of PND as merely biochemical illness. The lack of information provided to our consultants about PND was glaringly obvious with ten out of the twelve not knowing what it was or how it might be expressed. We found this to be disturbing in terms of long-term effects not only on the women and their families, but also on society as a whole. We wondered whether this was an indication of the stigma attached to mental illness generally or whether this was related to deficits in the health professions and/or was reflective again of the ‘silence metaphor’. The importance of diagnosis for most (ten out of the twelve) seemed very conclusive within our findings. For most, the receiving of a diagnosis lifted the burden of guilt that somehow they had been to blame for the way they were feeling. Diagnosis seemed especially helpful for family and friends who had been feeling helpless and who lacked understanding of the changes in their loved one. We want to suggest that it is not totally clear whether diagnosis can also limit the potential for growth and recovery and create discrimination due to the constraints of labeling and several of our consultants acknowledged the ‘double-edged sword’ of diagnosis. There was a wondering as well if it had been diagnosis alone that had been helpful or the medication that followed closely after. From a social research perspective it is interesting to note the variety of meanings attributed to the experience of PND and to acknowledge diagnosis as another socially constructed lens through which to view PND. Social and emotional factors 69 As the women look back on their journey with PND it is evident they are more in-tune and aware of the behaviour of PND, particularly how it affected and impacted on their emotions and relationships, and most importantly the part it played in determining whether they saw themselves as living up to the expectations of motherhood; were they ‘good mothers’, able to meet their child’s every need and happily place others needs above their own, while coping with profound exhaustion? Or were they ‘bad mothers’, failing to have the perfect baby, the perfectly clean house, just wanting the baby to go away, to stop crying all the time? It is clear they were at the mercy of PND, it sapped their energy giving them no way to fight back, they couldn’t control their thoughts, it clouded their thinking and kept them in a cycle of feeling anxious, worried and concerned. The emotional rollercoaster ride left them weary and drained with nothing to give to those closest to them, and no where to go, creating a feeling of being unsupported and isolated, withdrawing more and more into themselves and convinced by PND that they were the only mother feeling this way. The total absence of positive experience as the women describe their emotional and relational journey through PND is very apparent. We already know from research that this is part of the aetiology of PND, however it begs the question; why do women think there is something wrong with them, rather than something wrong with the circumstance of their lives, and why are we so strongly influenced by the pervasive ideology of motherhood as it is within this context where unrealistic demands are placed upon us, oppression occurs and discrimination of our practices takes place. The ‘good mother’ behaviour is validated only in relation to how successful we are in our role as mothers. In terms of PND, those women most vulnerable are at risk trying to attain the dominant ideology of motherhood which still remains deeply central to our feminine identity. The dominant discourse becomes the ideal and assumes that we have not met the expectations of good motherly behaviour if we have not coped with the demands placed upon us. Is it little wonder that women struggling with PND are reluctant to come forward and speak out about the effects of PND, the stigma and isolation. From the emotional rawness of their experience we do not hear any evidence of resistance to PND or the ideology of motherhood. It is only now when they have claimed agency and have adjusted to the context of their lives as mothers they are at last able to challenge PND and the myth of motherhood. Not surprisingly, all the women were unanimous in their agreement to want 70 to tell their story and most believed this was a step towards self healing and an opportunity to inform other women so they do not have to experience the same. Through their narratives, we see they have gained a perspective, they are silent no longer. They have come to the realization that they are not alone and from this vantage point have gained strength to express openly the importance of caring for their emotional and physical health, before, during and after childbirth; they have come to an awareness of the significance of having and maintaining good partner relationships and creating sound, effective social support. They want to establish awareness and education of PND, particularly for new mothers, and to have responsive, competent health professionals; these are seen as crucial elements to the emotional wellbeing for them as mothers. It is interesting to note that many of the factors mentioned by the women also reflect current qualitative research as protective factors for PND.10 Perhaps this suggests we may be heading in the right direction to creating an alternative experience of motherhood for many women. However, there is still more to be done, beginning with moving to change society’s attitude towards the myth of motherhood, bringing it more in line with the reality of mothering and parenting in today’s social and cultural context. Early intervention of PND and an integrated approach should also be recognised as an essential move to creating a positive experience of motherhood for all women. Along with this there needs to be more relevant qualitative research of PND that incorporates knowledge ascertained from women themselves and focuses attention on the relational and social context of women with PND. What is it that underpins recovery? The women’s experience of recovery is often described as a journey starting with a turning point usually with the diagnosis of the PND. With medical intervention, support and other factors of relevance such as recognising the need to get help, and even the conscious decision by woman themselves to work on their own recovery and creating their own personal strategies to help themselves; these situations and decisions were critical in the turning point onto the road to recovery. Professional support and the identification along with explanations as to what is happening to them is very important, for the woman who did not have this support from Professional help, their recovery was much slower and longer. Involvement with people 10 See literature Review (Abbott et al, 2005). (George,cited in Aitken, 1996). 71 who are positive influences on the women is identified as a pivotal ingredient for recovery, particularly partner and family. Sharing with other woman, the power of the narrative is also a crucial element, and being able to share without discrimination or fear of stigma which is a real barrier to recovery. Our question is as researchers ‘is it possible to prevent PND?’ Are there protective factors that can be put into place in the aid to prevention? At first we decided that it would not be possible because of the variableness of the woman’s situations and circumstances, with their historical factors, social and cultural identity all being crucial elements in the journey to recovery. However we discussed that if women and their families were sufficiently educated pre-natally; if they had adequate emotional support in place; professional support at the time of birth along with the emotional support these factors alone could have a huge bearing on the prevention of PND. Doctor Malcolm George (Aiken, 2000) says that male partners may be a crucial element to helping to prevent PND occurring, and a crucial element for the path of recovery, or the absence of it. Some overseas clinics run sessions for depressed mothers and their partners, so that he becomes a part of the solution, and not a forgotten part of the problem. What we have noticed from the discussions with the woman we researched is that the ones who had good emotional support from their partners and family made a faster recovery than the ones for whom it was absent. How easy is it to recognise the illness? For these things to be put into place the women themselves often need to be the ones to recognise that they may be vulnerable to PND, or for their GP’s to recognise there may be a need for additional support. Ante natal detection is an important factor with specific focus on the emotional state of the parent to be, and a history gained of any type of depression or other traumatic factors and emotional aspects, which are very important but rarely investigated. (Aiken, 2000). What we have noticed is that the woman realised their own vulnerability and state of unwellness, but this was not recognised by medical staff or taken seriously. This is now beginning to be changed due to increased public awareness and the presence of Maternal Mental Health aiding in the detection and being there for woman today with PND. This research shows that if many of these woman had received appropriate warning and education as to the subtleties of PND, the awareness of it as an illness, the awareness 72 from the Medical profession of the seriousness of its nature and treated accordingly, there may have been a lot less trauma involved for them. Our range of woman and ages varies from young women to older women who had children up to thirty years ago, yet all of their responses have been the same or very similar, ‘if only we had known more about it, if only there had been more information, if only the Medical profession could have recognised it and treated it earlier’. For others it was the Social dimension that was most significant, ‘ if only there had been the support for them, or extended whanau to help out in the wider community, if only the immediate family could have been more informed and therefore more understanding, this would have made a huge impact for them. The vulnerability of the women and risk factors needed to be taken more into account by the Medical profession, screening in NZ would be helpful as it is now done automatically in other countries. Huge numbers of women go undetected, and suffer in silence in many cases. 73 CONCLUSION “It is a subject on which nothing final can be known, so long as those who alone can really know it; women themselves, have but given little testimony, and that little, mostly suborned.” John Stuart Mill, 19th Century British Philosopher The power of narrative has not been entirely harnessed as a healing tool within therapy and it is with this in mind that we sought to explore the experience of PND through the lens of story and metaphor. The overwhelming response by our research consultants was that having had an opportunity to share their narrative, to be heard within the telling and within the hearing they were able to reflect, to heal and to give hope to others. In being able to talk about it, women gained agency to challenge the myth of motherhood and this supported them to feel confident in their mothering roles and practices. Story and narrative are essential ways in which women pass on information about the often hidden complexities of birth and mothering. The loss of extended family for women has created deficits in terms of acquiring information and receiving adequate emotional support throughout pregnancy, birth and motherhood. The constraints imposed on women by New Zealand society are a reflection of how childbirth and motherhood is viewed. With this in mind, is it any surprise that mothers may be led to the notion that ‘depression is a realistic response to motherhood’ (Nicolson, 2000). 74 We have observed the importance of attending to mental and physical health both during and after childbirth, and we believe that support, care and acknowledgement of motherhood as a major transition, is vital. Support and information seems to be largely the role of health or voluntary services and often lack the resources to provide adequate care and information. There needs to be enhanced strategies and more resources available for early intervention. A greater awareness and appropriate education for women and wider society in terms of gaining knowledge of preventive measures, protective factors, areas of vulnerability and risk factors, and a more realistic interpretation of the realities of mothering. We believe that recognition of the need for help by women and their families with subsequent diagnosis and treatment is imperative to recovery. Diagnosis signals the beginning of the journey of recovery. Good partner relationships and social support are crucial to the ongoing wellbeing of mothers, along with having responsive and competent healthcare professionals and services to benefit those women in need of support and more extensive care. 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Screening for postnatal depression in routine primary care: properties of the Edinburgh Postnatal Depression Scale in an Australian sample. Australian & New Zealand Journal of Psychiatry. (2005); 39: 833-839. National Health & Medical Research Council.(2000) Postnatal depression – a systemic review of published scientific literature to 1999. NHMRC: AusInfo. Canberra. JOURNALS & ARTICLES CONT’D Pedan, A. (1992). Recovering in Depressed Women: Research With Peplau’s Theory: USA. Nursing Science Quarterly. Chestnut House Publications. SAGE Social Science Collections. Rubertsson, C., Walderstrom, U., Wickberg, B., Radestad, I., Hilddingsson, I. (2005). Depressive mood in early pregnancy and postpartum: prevalence and women at risk in a national Swedish sample. Journal of Reproductive & Infant Psychology. Vol 23, No 2, p 155-166. Thio, I M., Browne, O., Mark, A., Coverdale, J H., Argle, N. (2007). Postnatal depressive symptoms go largely untreated. A probability study in urban New Zealand. Social Psychiatry & Psychiatric Epidemology; Vol. 41 Issue 10, p814-818, 5p. Retreived 27/11/07. 78 Van den Akker, O., Redshaw, M. (2006). Editorial: Depression in the perinatal and postnatal period continues to challenge researchers and practitioners worldwide. Journal of Reproductive & Infant Psychology. Vol 24, No 2, p 83-85. Webster, L., Thompson, J., Mitchell, M., Werry, J. (1994). Postnatal depression in a community cohort. Australia & New Zealand Journal of Psychiatry: 1994; 28: 42-49. Whitton, A., Appleby, L. (1996). Maternal thinking and the treatment postnatal depression. International Review of Psychiatry. Vol 8, Issue 1, p 73-6p. WEB SITES www.moh.govt.nz Postnatal Depression – Mental Health in NZ from a Public Health Perspective (2002). Mental Health Foundation of New Zealand. Auckland. NZ. – sourced 11.10.07 http://www.google.co.nz/search Google Images, 2007. All pictures in Research paper Hainisch, C. (1970). “The personal is political” – cited in Mansbridge, J. (1995. p28). What is the Feminist Movement? Edited by Myra Marx Ferre. UK. Interview Schedule Women’s experience of Post Natal Depression If you feel comfortable about it, would you be able to give me some background as to what was happening for you at the time PND was around? Probes: Historical Context (Pregnancy/birth trauma/previous mental health) How were you during your pregnancy? Did you feel emotionally and physically prepared for the baby’s arrival? Birth/Trauma: Were you given an opportunity to talk about your birth experience? If “No” Looking back, could that have been something you would have found useful? Were you aware of the symptoms associated with PND? Were you aware of any PND in your family history? 79 Were you formally diagnosed with PND? Did this impact on your recovery? How long did the PND last? What’s still there? How would you describe the effects of PND on yourself, your family and other relationships? Probes: Social Context (Relationships emotional support) Who noticed how you were feeling? Did you feel you had sufficient emotional support? How did this impact on you experience of PND? Did PND impact on your sense of identity as a women/mother/person? And if so, how? How much connection/bond did you have with your baby? What conclusions have you reached about your experience with PND? Probes: Recovery (Treatment/Diagnosis) What were the key factors in your recovery? What services did you find useful/helpful? Was there a preferred treatment or did you deal with PND yourself? Looking back at your experience, what would you like to have been different? What’s still there? Age ________ Ethnic Identity ________________________No. of children _____ Marital Status ___________________Education____________________________ Severity of PND on scale of 1-10 _________ THE EXPERIENCES OF WOMEN WHO HAVE HAD POST-NATAL DEPRESSION Greetings We are three, Bachelor of Social Practice students at Unitec. Part of our degree programme involves a research paper on the subject of our choice. The research topic that we have chosen looks at women’s experiences of post-natal depression (PND) and their stories. We are hoping through this research to raise awareness of post-natal depression and to give women an opportunity to share their own perceptions of PND We have the approval of the Unitec Ethics Research Committee (UREC) to undertake this research. How it began As women we are aware of the enormous pressures placed upon us by society in terms of our role as mothers. We have been encouraged by recent texts in which women share their motherhood experiences and we have noticed how important it is to have childbirth and 80 motherhood experiences validated. Our own discussions and research have reinforced the premise that women’s stories are still largely absent from current literature on PND. We believe that this research is relevant and contemporary considering the current advertising campaign by Like Minds. What we are doing • We are trying to learn more about PND and its effects on women, their partners and their children. • We want to learn more about outside contributing factors, which may have surrounded your experience of PND. • We are wondering if the experience of PND has implications for wider society and are looking for ways in which we can give women a voice to discuss PND, without experiencing stigmatisation. • We are hoping to provide a rationale for more effective service provision. What it will mean for you? • We would like to interview you and hear about your experience of PND. • We would like you to be able to share your experience in a way that is comfortable for you. • For that reason this will not be a formal interview but an informal conversation. • We are looking for areas of commonality, difference and recurrent themes, acknowledging as well the ‘uniqueness’ of your experience. We are also keen to hear about what was helpful in your recovery: • What services you found helpful? • What could have been improved? • What other supports you used? • The effect on your relationships? • Any issues you had around stigma, marginalisation and/or shame? We will need approximately 1 hour of your time for the interview. We will arrange to meet you at a place and time of your convenience to conduct this conversation. The session will be taped and transcribed. In the unlikely event of you becoming distressed during or following the interview, we can arrange for you to access the appropriate supports. What will we do with this…. By taking part in this research we hope that sharing your experiences in a supportive environment will enrich you and will provide much needed information to help those working with women to improve on their practices in the future. You will be given the opportunity to view the transcript and change it if you wish. We can also make available to you a copy of the final report in electronic form. Consent If you agree to participate, you will sign a consent form. This does not stop you from changing your mind at a later time and asking to withdraw from this project. You can with draw at any time following the interview up to the time when the data is analysed. This can be done by sending us a letter or email, to one of the following addresses: 81 Maureen Tearle Maureen.tearle@ihug.co.nz 43 Parrs Cross Rd Henderson. Ph. (09) 8378960 Liz Roberts j_eroberts@xtra.co.nz 125 Konini Rd Titirangi Ph. (09)8171551 Catherine Dakin catherinedakin@ihug.co.nz 5 Rawhiti Rd Onehunga. Ph.(09) 5256211 At any time if you have any concerns about the research project, you can contact our supervisors: Geoff Bridgman David Haigh Confidentiality Your name and any information that may identify you will be kept completely confidential. All information collected from you will be stored on a password-protected file and the only people who will have access to your information is yourself, the three researchers and our supervisors. Thankyou! Consent Form THE EXPERIENCES DEPRESSION OF WOMEN WHO HAVE HAD POSTNATAL Your participation will help us to obtain information for a research project looking at the experiences of women who have had post-natal depression. I have had the research project explained to me and I have read and understood the information sheet given. 82 I understand that my participation is voluntary and I may withdraw my consent at any time, up to when the information has been analysed. I understand that my participation will be confidential and no direct identifiable information about me will be accessible to persons other than the researchers and their supervisors. I further understand that the research data will be stored securely on password protected computer file at Unitec for a period of five years. I understand that my discussion with the researcher will be taped and transcribed. I understand that I can have access to the finished research document. I am aware that I may contact the Research Supervisors, Geoff Bridgman, (09) 815 4321 ext.5071 or David Haigh (09) 379 5538, if I have any enquiries about the project. I have had time to consider everything and I give my consent to be part of this research project. Participant Signature:…………………………….. Project Researcher:………………………………. Date:………………………… Date:………………………….. This study has been approved by the Unitec Research Ethics Committee from ( ) to ( ). If you have any complaints or reservations about the ethical conduct of this research, you may contact the Committee through the UREC Secretariat (09) 815 4321 ext.7254. Any issues you raise will be treated in confidence and investigated fully and you will be informed of the outcome. 83