How does health information influence health behavior change? Jeffery Loo Abstract How does health information influence health behavior change? My literature review explores this question from several research perspectives: information behavior and related behavior health behavior theory and counseling tailored health communication interactive technology for health behavior change and communication Each review section addresses one of the above research topics. In the end, an analytic framework will be developed. This will be used to conceptualize the research addressing information, interactive technology and health behavior change. Table of contents 1. Introduction ................................................................................................................. 3 1.1. Background .......................................................................................................... 3 1.2. Focus .................................................................................................................... 3 1.3. Purpose ................................................................................................................ 3 1.4. Health definitions .................................................................................................. 4 1.4.1. Health ............................................................................................................. 4 1.4.2. Health behavior .............................................................................................. 4 1.4.3. Health education / health promotion ............................................................... 4 1.4.4. Health behavior change ................................................................................. 5 1.5. Health behavior change ........................................................................................ 5 1.5.1. Importance of health behavior change ........................................................... 5 1.5.2. Environments for health behavior change ...................................................... 6 1.6. Perspectives on health ......................................................................................... 6 1.6.1. Rationale for the intrapersonal and interpersonal perspectives ...................... 7 2. Information behavior and related behavior .................................................................. 7 2.1. The ways information may shape our health behavior.......................................... 7 2.1.1. Background .................................................................................................... 7 2.1.2. Cultivating an understanding of health ........................................................... 8 2.1.3. Elucidating choices and options ..................................................................... 8 2.1.4. Shaping emotional issues .............................................................................. 8 2.1.5. Providing social support ................................................................................. 9 2.1.6. Promoting health awareness and self-care .................................................... 9 2.1.7. Activating good health behavior skills............................................................. 9 2.1.8. Motivating good health behavior .................................................................. 10 2.1.9. Empowering the individual ........................................................................... 10 2.1.10. Facilitating behavior change pathways ....................................................... 11 2.1.11. Limitations to the information-behavior link ................................................ 11 2 2.2. Information seeking for health decision making .................................................. 12 2.3. Information use and processing .......................................................................... 13 2.3.1. Effects on health behavior ............................................................................ 13 2.3.2. Understanding information processing ......................................................... 13 2.3.3. As a mechanism for reflective behavior change ........................................... 14 3. Health behavior theory and counseling ..................................................................... 14 3.1. Behavioral counseling interventions ................................................................... 14 3.1.1. Forms of interventions .................................................................................. 14 3.1.2. Expectations ................................................................................................. 15 3.1.3. Models.......................................................................................................... 15 3.2. Health behavior theory........................................................................................ 16 3.2.1. What is the value of theory? ......................................................................... 16 3.2.2. Overview of health behavior theories ........................................................... 17 3.2.3. Individual level theories ................................................................................ 18 3.2.3.1. Health Belief Model................................................................................ 18 3.2.3.2. Stages of Change (Transtheoretical) model .......................................... 19 3.2.3.3. Theory of Planned Behavior / Theory of Reasoned Action .................... 20 3.2.4. Interpersonal level theory: Social cognitive theory ....................................... 21 3.2.5. Community level theory ................................................................................ 22 3.3. Health behavior constructs ................................................................................. 22 4. Tailored health communication ................................................................................. 25 4.1. Definition............................................................................................................. 25 4.2. Example.............................................................................................................. 25 4.3. Value of tailored health communication .............................................................. 25 4.4. Variables for tailoring .......................................................................................... 26 5. Interactive technology for health behavior change and communication .................... 26 5.1. Background ........................................................................................................ 26 5.2. Example applications .......................................................................................... 27 5.2.1. Settings ........................................................................................................ 27 5.2.2. Uses and purposes ...................................................................................... 27 5.3. Value of interactive technology for health behavior change ................................ 28 5.4. Caveats of interactive technology ....................................................................... 29 5.5. Theoretical perspectives on interactive technologies.......................................... 30 5.5.1. Traditional health behavior theories ............................................................. 30 5.5.2. A conceptual framework for interactive technology for health promotion ..... 31 5.5.3. Information environments for health promotion ............................................ 32 6. Conclusion ................................................................................................................ 33 6.1. An analytical framework for information, interactive technology and health behavior change ........................................................................................................ 33 6.2. Explanation of the framework ............................................................................. 34 6.3. Framework details .............................................................................................. 35 6.4. Further research ................................................................................................. 38 7. References ................................................................................................................ 39 3 1. Introduction 1.1. Background Health information is important to our health behavior. Information informs us of our health choices and facilitates decision making for health actions. For these reasons, effective information interventions that promote healthy lifestyle choices are an urgent need (Latimer et al., 2005). The health behavior impact of information is not explicitly studied in the information science field. Instead, it is examined by different disciplines who regard information as a secondary concept (e.g., health psychology, health behavior theory). Furthermore, the notion of information is rarely examined in health-related studies (Kivits, 2004). To illustrate the lack of information science research on this topic, consider these figures. In a keyword search of articles published after 1970 in the Journal of the American Society for Information Science and the Journal of the American Society for Information Science and Technology, no articles were returned with the topical keyword “health behavior”. Similarly, only two results were retrieved in the Journal of the Medical Library Association and the Bulletin of the Medical Library Association (as searched in PubMed). In research that does examine health information, the studies typically center on the medical power issue. The focus is on the construction and preservation of medical knowledge by professionals (Turner, 1995 cited in Kivits, 2004). When the patient perspective is examined, there is the notion of the “informed patient”, which has been perceived as a challenge to medical authority (Hardey, 1999 cited in Kivits, 2004). 1.2. Focus This literature review focuses on information, services and technology related to behavior change at the intra- and interpersonal level. The review will not explore acute health care situations (such as emergency or critical incidents); instead it will focus on situations when there is greater personal health control such as preventative care and self-monitoring/management. 1.3. Purpose The purposes of this review are: (1) To outline the ways that information shapes individual discretionary health behavior change after examining relevant issues to cell phone eHealth; (2) To develop an analytic framework for examining the research on information and interactive technology for health behavior change. 4 1.4. Health definitions 1.4.1. Health The constitution of the World Health Organization (WHO) defines health as "a state of complete physical, mental and social well-being and not merely the absence of disease or infirmity" (WHO, 2006). 1.4.2. Health behavior Health behavior refers to “those personal attributes such as beliefs, expectations, motives, values, perceptions, and other cognitive elements; personality characteristics, including affective and emotional states and traits; and overt behavior patterns, actions, and habits that relate to health maintenance, to health restoration, and to health improvement” (Gochman, 1982 and Gochman, 1997 cited in Glanz et al., 2002). Categories of overt health behaviors are outlined in Kasl and Cobb’s seminal articles (1966a, 1966b cited in Glanz et al., 2002) which include: Preventive health behavior: when healthy and asymptomatic individuals engage in activity to prevent or detect illness Illness behavior: when an individual who perceives themselves to be ill engages in defining the state of their health or finding a remedy (1966a) Sick-role behavior: when people who perceive themselves to be ill engage in activities to improve their health. This includes receiving medical treatments from healthcare professionals (1966b). Alonzo (1993) includes a fourth category to examine health behavior at the societal level. He discusses “the protective behaviors to make environmental transactions safe from disease, injury, defect and disability”. 1.4.3. Health education / health promotion Health education and health promotion are terms used interchangeably in the US (Breckon, Harvey and Lancaster, 1994 cited in Glanz et al., 2002). However, there are subtle differences between them. Health education is “any combination of learning experiences designed to facilitate voluntary adaptations of behavior conducive to health” (Green et al., 1980 in Glanz et al., 2002). It involves “the process of assisting individuals, acting separately or collectively, to make informed decisions about matters affecting their personal health and that of others” (National Task Force on the Preparation and Practice of Health Educators, 1985 cited in Glanz et al., 2002). On the other hand, health promotion is “any combination of health education and related organizational, economic, and environmental supports for behavior of individuals, groups or communities conducive to health” (Green and Kreuter, 1999). 5 1.4.4. Health behavior change Behavior change refers to any transformation or modification of human behavior (Wikipedia, 2007). Skinner and Kreuter (1997) identify types of health behaviors amenable to change: Asymptomatic screening, e.g. pap smears, colorectal screening Lifestyle modifications, e.g. diet, exercise Cessations of addictive behaviors, e.g. alcohol and tobacco use Medical regimen compliance, e.g. medication adherence, glucose monitoring Precaution adoption, e.g. radon testing, smoke detector installation 1.5. Health behavior change 1.5.1. Importance of health behavior change Currently in the US and other developed countries, chronic diseases are major causes of death (National Center for Health Statistics, 2000 cited in Glanz et al., 2002). Chronic diseases include heart disease, cancer and stroke. In addition, there has been a resurgence of infectious diseases, such as foodborne illness and STDs – (Glanz and Yang, 1996). Human behavioral factors may trigger chronic diseases and may also serve as predictors of outcome (Glanz et al., 2005). Increasingly, data show a link between individual behaviors and the increased risk of morbidity and mortality (Glanz et al., 2005). Among the ten leading causes of death in the US, 50% of these mortalities may be traced to lifestyle behaviors (McGinnis and Foege, 1993). Behaviors with significant health impact include tobacco use, diet and activity patterns, alcohol consumption, illicit drug use, sexual behavior and avoidable injuries (McGinnis and Foege, 1993). As our behavior has significant impact, health behavior change may be central to combating chronic diseases. Researchers note the great potential that health behavior change may have on reducing morbidity and mortality (Koop, 1996 cited in Whitlock et al., 2002). Behavioral counseling is a key principle for preventive medicine and chronic diseases management (Ockene and Camic, 1985). In addition, the federal government endorses healthful behavior in its Healthy People 2010 initiative. This program recommends behavior changes that include: (1) acquiring new behaviors (e.g., disease screening, healthier diets), (2) modifying current behaviors (e.g., exercise), and (3) stopping risky behaviors (e.g., unprotected sex, smoking, excessive drinking) (Diclemente et al., 2001). The notion of health behavior change matches the current climate of health care system procedures. Among health organizations, there is a drive for shared decision making, the respect for patients’ rights, and cost containment (Glanz et al., 2002). These measures delegate greater responsibility to the patient, which may emphasize personal health behavior change and decisions. 6 1.5.2. Environments for health behavior change Health behavior change may occur in a number of different contexts and environments. Six major settings for contemporary health education include: schools, communities, worksites, health care settings, homes and the consumer marketplace (further details in Glanz et al., 2002). These opportunities are applicable to a large cross section of people. 1.6. Perspectives on health An important health promotion paradigm is the ecological perspective of health (National Cancer Institute, 2005). This model identifies three “levels of influence” in our health: intrapersonal, interpersonal and community. In a health problem, these levels interact with one another and are independent. In order to fully understand health, environmental and behavioral components need to be addressed together. This perspective asserts that: (1) “behavior both affects, and is affected by, multiple levels of influence”; and (2) “individual behavior both shapes, and is shaped by, the social environment (reciprocal causation)” (National Cancer Institute, 2005). Table 1 outlines the three levels of influence in our health. Table 1 An ecological perspective of health: levels of influences excerpted from (National Cancer Institute, 2005) Concept Definition Intrapersonal level Individual characteristics that influence behavior, such as knowledge, attitudes, beliefs, and personality traits Interpersonal level Interpersonal processes and primary groups, including family, friends, and peers that provide social identity, support, and role definition Community level Institutional factors Rules, regulations, policies, and informal structures, which may constrain or promote recommended behaviors Community factors Social networks and norms, or standards, which exist as formal or informal among individuals, groups, and organizations Public policy Local, state, and federal policies and laws that regulate or support healthy actions and practices for disease prevention, early detection, control, and management 7 The three levels of influence shape and drive our health behavior. Within these levels, other variables further shape our health and health decisions, such as age, gender, race, ethnicity and socioeconomic status (Smedley and Syme, 2000). When delivering social and behavioral health interventions, experts recommend programs to take account of the levels of health influence (Smedley and Syme, 2000). Therefore, health promotion may be seen as an instrument of personal, interpersonal and social change that is mediated by policy, advocacy and organizational changes (Glanz et al., 2002). 1.6.1. Rationale for the intrapersonal and interpersonal perspectives This literature review focuses on intra- and interpersonal levels of influence for several reasons. First, I am concentrating on this perspective because of my dissertation topic: cell phone eHealth, where I will be focusing on these two levels of influence. Second, interactive information and communication technology presents unique opportunities to study the individual. These technologies may “conduct individualized behavioral diagnoses and deliver messages […] for a particular program user” and “target health promotion messages to individual recipients” (Skinner and Kreuter, 1997). Third, health promotion practice has typically relied on individual and interpersonal level interventions and theory. In contrast, the community level theories and interventions have served in changing our health environments (National Cancer Institute, 2005). While the community level of influence is not addressed in this review, the analysis is reserved for researchers in sociology, public health, health administration and public policy who are better suited to the subject. 2. Information behavior and related behavior 2.1. The ways information may shape our health behavior This section explores information behavior and related behavior to identify the ways that information may shape our health behavior. 2.1.1. Background In health care environments, there is a notion that individuals need to act upon health promotion information and to be informed. This expectation conveys a link between information and our health behavior. Consumer forces may be driving the importance of information for our health behavior. Eng and Gustafson (Science Panel on Interactive Communication and Health, 1999) 8 have identified an increasing demand for health information and shared decision making. They note trends in the health landscape such as: Recognition of patient preferences in the complex nature of medical decision making Concerns regarding the financial motivations of medical decisions, which leads some to seek second opinions and independent information Rising interests in self-care The “aging of America” along with the rise of chronic diseases, which may both necessitate self-management as an efficient healthcare response 2.1.2. Cultivating an understanding of health According to the common sense model, information and experiences shape our mental models and representations of health, as well as our health outcomes (Severtson et al., 2006). The health information we encounter may drive further information seeking, cognitive processes and other experiences, which in turn, shape our health behaviors. A study examined the health behavioral effects of information and experience with arsenic risk representations, policy beliefs and protective behavior. A quantitative survey was completed by 545 individuals who used well water with known arsenic levels exceeding the maximum containment level (Severtson et al., 2006). Through structural equation modeling, the study found that both external information and experiences (on perceived water quality and arsenic-related health effects) had substantial effects on health behavior. Those respondents who understood the problem with water quality were more likely to engage in activities to reduce arsenic exposure. 2.1.3. Elucidating choices and options Information may be critical to sound health-related decision making (Rudd and Glanz, 1990). It may elucidate the available health options and assist with the decision process (see section 2.2. for further details). Quality information is also helpful by stimulating accurate knowledge development, appropriate lifestyle choices, valuable health care interactions and compliance with therapeutic advice. 2.1.4. Shaping emotional issues Our experiences and attentional styles to health information may shape our emotional state about health. There are two attentional styles towards health information: (1) monitoring, where the individual seeks information, and (2) blunting, where information is avoided (Miller, 1987 cited in Wenzel, 2002). With monitors, information may satisfy certain needs to enhance active coping and minimize their emotional and physical distress. On the other hand, monitoring may also lead to excessive worry about health threats (Phipps and Zinn, 1986 cited in Wenzel, 2002). In some cases, these individuals may experience greater physical distress and arousal during an invasive procedure (Miller and Mangan, 1983 cited in Wenzel, 2002). 9 The manner in which health information is framed may lead to different patient benefits according to the disposition of the patient. In a study of cervical dysplasia screening follow-ups, informational monitors experienced greater affective distress when the health message was “loss framed”, emphasizing the costs rather than the benefits (Miller et al., 1999 cited in Wenzel, 2002). The monitors experienced a heightened sense of risk. 2.1.5. Providing social support Social support is “the aid and assistance exchanged through social relationships and interpersonal transaction” (Heaney and Israel, 2002). This type of support can be important for individuals experiencing health conditions. Of the four types of social support, two of them are related to information provision (House, 1981 cited in Heaney and Israel, 2002): Emotional support: “expressions of empathy, love, trust, and caring” Instrumental support: “tangible aid and service” Informational support: “advice, suggestions, and information” Appraisal support: “information that is useful for self-evaluation” such as constructive feedback, affirmation and validation 2.1.6. Promoting health awareness and self-care Nearly half of American online health information seekers (48%) report that web information has encouraged them to take better care of themselves (Fox et al., 2000 cited in Ybarra and Suman, 2005). Furthermore, nearly two-thirds of Internet users report an improved understanding of health issues from reading online health resources (Baker et al., 2003). 2.1.7. Activating good health behavior skills Health information may encourage beneficial health behaviors. According to the IMB model for AIDS prevention, information, motivation and behavior are linked. The key determinants of AIDS preventive behavior include AIDS-prevention information, motivation and behavioral skills (Fisher et al., 1994). Preventive behavior results from the activation of behavioral skills. In the instance of AIDS, these skills include proper use of condoms, communication about sexual history, and turning away from an unsafe sex situation. According to IMB, three factors activate the behavioral skills leading to the preventive behavior: (1) knowledge of AIDS transmission and prevention, (2) the receipt of such information, and (3) motivation to engage in preventive behavior (as diagrammed in Figure 1). 10 Figure 1 IMB model (Fisher et al., 1994) Information and motivation are conceived as independent factors. Fisher et al.’s study (1994) surveyed these three model components among gay males and heterosexual university students. Structural equation modeling found that information, motivation and behavioral skills factors accounted for a significant proportion of the variance in AIDS-preventive behavior (35% for gay men, and 10% for heterosexual university students). 2.1.8. Motivating good health behavior Information, such as test results indicating a health condition, may motivate good health behavior. From a study of cigarette smokers, the knowledge of a genetic predisposition to developing emphysema (a genetic AAT deficiency) led to greater efforts in smoking cessation attempts (Carpenter et al., 2007). The researchers tested smokers for their AAT genotype, and found that those who tested severely AAT deficient were more likely to report a 24 hour quit attempt (59%) than those who tested normal (39%). In general, there is a 34% quit attempt rate among smokers. 2.1.9. Empowering the individual Information may empower individuals in the health domain. For instance, the availability and use of online health information suggests of the “informed patient”, who are perceived as “empowered through information acquisition” (Kivits, 2004). Being informed could balance the asymmetrical doctor-patient relationship, where physicians have traditionally yielded greater informational power and access. One of the six types of power in health educator-client relationships is informational power (van Ryn and Heaney, 1997 cited in Lewis et al., 2002). Health educators exert this power when providing access to information which is conveyed in a clear and persuasive way (Lewis et al., 2002). Accessibility to this information may lead to healthpromoting beliefs and behaviors. While informational power is one component of behavior change, by itself it is not sufficient. 11 2.1.10. Facilitating behavior change pathways From tailored health communications research, a behavior change pathway has been hypothesized (Rimer and Kreuter, 2006) (Figure 2, see further details in section 4. ). Figure 2 Behavior change pathway (Rimer and Kreuter, 2006) According to the pathway, “greater perceived relevance and salience increase motivation to process information and enhance message receptivity, information processing, and behavior change” (Rimer and Kreuter, 2006). Therefore, the characteristics and framing of health information may shape the behavior change pathway. 2.1.11. Limitations to the information-behavior link While health information is an important component to health behavior change, its influence alone is not sufficient. For example, a majority of smokers are aware of the detrimental health effects of their habit, yet they continue to smoke (Thomas and Larsen, 1993 cited in Noell and Glasgow, 1999). Information is one of many important determinants of health behavior. Other variables may be more important than information access and use, such as health care access and structural barriers (Rimer and Kreuter, 2006). In addition, people who “live” in different information milieus may exhibit different health knowledge and behavior traits (Ginman and Eriksson-Backa, 2001). Our personal information preferences and our access to health information affect our health behavior. The same health message may be processed and used differently according to our information behavior traits. Veazie and Cai (2007) hypothesize that the manner which we take in health information is influenced by our sense of uniqueness and our personal experiences. For example, if people perceive themselves different from the majority, they may find statistically-based health information less applicable. An overabundance of health information may impede our ability to process, judge and make use of it. Bruhn (1988 cited in Alonzo, 1993) suggests that inconsistencies and conflicts in the evidence base may be a `formidable” barrier to the recognition and acceptance of accurate health information. 12 Finally, health information may lead to negative health behavior outcomes. While online health information may motivate some to seek medical attention (Azocar et al., 2003), concerns arise that increased information access may delay or impede medical care (Cline and Haynes, 2001). For instance, individuals may rely on the information they find to self-diagnose, provide self-care or pursue alternative pathways. 2.2. Information seeking for health decision making Informed decision making is generally desired when medical uncertainty is encountered (Glanz et al., 2002). Being informed helps to identify and validate the best available option. When a patient is informed, shared decision making with health care providers is possible. Studies suggest that such a cooperative relationship improve health outcomes and patient satisfaction (Frosch and Kaplan, 1999). Information seeking is also an important antecedent to patient health-related decisions and health behavior (Lenz, 1984). Searching for information may lead to important cognitive and behavioral outcomes toward decision making. In Lenz’s seminal article (1984), she explores information seeking for health behavior, with a focus on discretionary health behaviors. These are behaviors that rely on the ability for personal judgment and decision making. According to Lenz’s model (1984), the information search process consists of six steps: “(1) stimulus, (2) goal setting, (3) a decision regarding whether to seek information actively, (4) search behavior, (5) information acquisition and codification, and (6) a decision regarding the adequacy of the information acquired”. Information seeking may affect the “scope and nature of information acquired, the repertoire of alternative courses of action known to the searcher, and ultimately, the action taken” (Lenz, 1984). This hypothesis is substantiated by: (1) consumer decision theory, which values information towards the decision making process, and (2) theories of health care utilization, which consider information seeking as an intervening variable between socioeconomic status and the utilization of health services (Lenz, 1984). The influence of information seeking to health decision-making centers on cognitive and behavioral search outcomes (Lenz, 1984): Cognitive outcomes include: “an information repertoire about possible alternatives”; and changes in perceptions, opinions, attitudes or beliefs that may be conducive to healthy behavior. The behavioral outcomes center on lifestyle and behavioral changes as the result of a conscious choice, informed by the information search. From Lenz’s perspective, different information seeking styles may explain the variation in health-related decisions and discretionary health behavior. However, a caveat: this perspective is limited to health behavior due to rational and purposeful decisions. The relevance of these cognitive and behavioral outcomes was not explored for non- 13 discretionary illnesses and conditions such as developmental disabilities and mental health conditions. Further research is necessary to empirically ground Lenz’s postulations and to identify the mechanism linking information seeking with health behavior. 2.3. Information use and processing 2.3.1. Effects on health behavior Information use and processing (such as reflection, relating information, comparing experiences) develop knowledge for preventive and other practices for optimal health (Rudd and Glanz, 1990). It has been postulated that this knowledge is crucial to health promotion actions by consumers (Rudd and Glanz, 1990). Information processing is particularly important during health decision-making and at the moment when individuals receive health information (Castells, 1993). 2.3.2. Understanding information processing Theories of Consumer Information Processing (CIP) offer a framework for: (1) the attention people pay to health information, (2) their understanding of this information, and (3) the application of it (Rudd and Glanz, 1990). According to the CIP model, health consumer decision-making is a “multistage process in which information is acquired and processed (search), a decision is made and acted upon (choice and purchase), and the quality of the decision is evaluated (use)”. This process is diagrammed in Figure 3. 14 Figure 3 Consumer Information Processing Model of Choice (Bettman, 1979 as excerpted in Rudd and Glanz, 1990) This model is useful for emphasizing information processes that lead to learning for decision-making and proper health behavior. Health is a complex subject, and this model recognizes our limits for information processing (e.g., short term memory). Empirical tests were conducted for the CIP model. It was found to be useful for explaining the impact of nutrition labeling for food choices and the use of quality of care information when selecting health care providers (Rudd and Glanz, 1990). 2.3.3. As a mechanism for reflective behavior change The increased motivation for information processing may lead to behavior change. Fazio’s MODE model supports this view (Fazio & Towles-Schwen, 1999). MODE is an acronym for motivation and opportunity as determinants of the path which attitudes influence behavior. According to the model, when there is personal motivatation and information processing opportunities exist, people engage in a more thoughtful and deliberative process of health behavior decision-making (Rimer and Kreuter, 2006). For example, health information that is relevant and accessible may increase one’s motivation as well as the opportunities for information processing. This combination may make ideas more compelling and influence future behavior (Rimer and Kreuter, 2006). 3. Health behavior theory and counseling 3.1. Behavioral counseling interventions Behavioral counseling interventions in clinical care are “activities delivered by […] clinicians and related healthcare staff to assist patients in adopting, changing, or maintaining behaviors proven to affect health outcomes and health status” (Whitlock et al., 2002). Typically, these interventions focus on smoking cessation, healthy diet, regular physical activity, appropriate alcohol use, and contraception use. 3.1.1. Forms of interventions Interventions take many forms and may involve: a set of healthcare team members (e.g., clinicians, nurses, health educators, pharmacists) (Whitlock et al., 2002) different media and communication channels (e.g., telephone counseling (Fleming et al., 1997), video or computer-assisted interventions (Stevens et al., 2002), self-help guides (Curry, 2000 cited in Whitlock et al., 2002), and tailored mailings (Kreuter et al., 1999) 15 multiple interactions between the health professional and patient (Fiore et al., 2000 cited in Whitlock et al., 2002) 3.1.2. Expectations Both patient and healthcare professional expect behavioral interventions in the clinicalpatient relationship. In one survey, over 90% of adult HMO members had expectations for advice and assistance from the healthcare system on key behaviors such as diet, exercise and substance use (Vogt et al., 1998). In turn, healthcare providers generally accept and value a role in motivating health promotion and disease prevention (Whitlock et al., 2002). 3.1.3. Models An organizational construct for clinical counseling highlights the value of information for health behavior change. The Five A’s construct has been applied to a number of behaviors (Ockene et al., 1995). It was adapted by Whitlock et al. (2002) from constructs developed by the National Cancer Institute for smoking cessation interventions (Glynn and Manley, 1989 cited in Whitlock et al., 2002). The Five A’s consists of the following elements: Assess for risks and factors influencing behavior change goals and methods Advise: provide “clear, specific, and personalized behavior change advice, including information about personal health harms and benefits” Agree: the collaborative selection (with the patient) of goals and methods for behavior change Assist: employ behavior change techniques to help patients reach their goals; the methods should address the cognitive, social, affective and behavioral domains of behavior change Arrange: provide ongoing assistance, such as follow-up appointments In this paradigm, information advises patients on the benefits of behavior change. This motivates and helps patients decide upon appropriate behavior change goals and methods (as signified by the Advise construct preceding the Agree phase). PRECEDE/PROCEED is another model for health promotion program planning. It is a useful framework for identifying and analyzing health behavior determinants and for implementing behavior change plans accordingly (Green and Kreuter, 1991 cited in Skinner and Kreuter, 1997). See Figure 4. 16 Figure 4 The PRECEDE-PROCEED Model (Green and Kreuter, 1999 as excerpted in National Cancer Institute, 2005) An optimal health promotion program plan would include all phases in the model. Steps 1 through 5 correspond to an assessment phase. The remaining protocol addresses program implementation and evaluation. Of note, there are three influencing factors of behavior: Predisposing factors that help or hinder the motivation to change (e.g., knowledge, attitudes, values and beliefs) Enabling factors that support or hinder efforts in behavior change (e.g., skills, resources and barriers) Reinforcing factors that encourage or discourage the continuation of behaviors (e.g. feedback) It may be postulated that information shapes factors that predispose, enable and reinforce behavior change. For example, information may build knowledge and shape attitudes; information may instruct users on behavioral skills; and health feedback, such as progress reports or test results, may reinforce new behaviors. 3.2. Health behavior theory 3.2.1. What is the value of theory? Examining health behavior theory may shed light on the role of information in shaping and influencing behavior. Health behavior theory is a good source to examine. Public health researchers and practitioners encourage theory use for the design and evaluation of health promotion interventions (National Cancer Institute, 2005). In line with evidence based practice, theories also serve as useful “road maps” for research and practice. They provide 17 frameworks for understanding health problems; help explain the underlying factors and dynamics in health behavior; and help identify indicators by which to monitor and evaluate patient outcomes (National Cancer Institute, 2005). Theory helps us understand phenomena. It is “a set of concepts, definitions, and propositions that explain or predict [...] events or situations by illustrating the relationships between variables” (National Cancer Institute, 2005). An important element of theory is constructs. These are the key concepts of a theory. Additionally, there are variables, which define how a construct may be measured, and thus serve as the operational forms of constructs (National Cancer Institute, 2005). There are two types of health behavior theories: explanatory and change theory. Explanatory theory describes why a problem exists. Alternatively, change theory acts as a guide for developing interventions, serving to identify important concepts for program delivery and to suggest evaluation methods. This review focuses on explanatory theories. In addition, health behavior theories may be differentiated by the level of its examination. Derived from the ecological perspective of health, there are three echelons of interacting levels of influences: (1) individual or intrapersonal, (2) intrapersonal, and (3) community level (National Cancer Institute, 2005). This review focuses on the first two levels. Conducting a behavioral diagnosis may identify the best applicable theory to an individual health situation. Before deploying an intervention, researchers recommend studying the behavior type and its determinants (Skinner and Kreuter, 1997). This may suggest a theoretical framework to guide the behavior change program. 3.2.2. Overview of health behavior theories Prominent health behavior theories are reviewed in this section. The theories are popular and highly regarded amongst researchers and practitioners in academic and public health agencies. Table 2 summarizes the theories that will be explored. 18 Table 2 Six most commonly cited behavior change models/theories and constructs – focus and key concepts (excerpt from Whitlock et al., 2002) 3.2.3. Individual level theories These theories examine how knowledge, attitudes, prior experiences and personality affect health behavioral choices. 3.2.3.1. Health Belief Model The Health Belief Model (HBM) is one of the most recognized theories in health behavior. It originated in the 1950’s when American health professionals were trying to explain why the public were not going to neighborhood screening units for tuberculosis diagnosis (Hochbaum, 1958; Janz and Becker, 1984; Kirscht and Rosenstock, 1979 – all cited in Skinner and Kreuter, 1997). The HBM model focuses on the motivations for making health decisions. Our readiness to take action with our health behaviors is influenced by six main constructs (National Cancer Institute, 2005; Skinner and Kreuter, 1997): 1. perceived susceptibility to the health condition 2. perceived severity of the consequences of the health condition 3. perceived benefits that taking action would reduce susceptibility to or severity of the condition 19 4. perceived barriers, which are the beliefs about the material and psychological costs relative to the benefits 5. cues to action, which are the exposure factors that prompt action; such as, experiencing symptoms, witnessing another person's experience, viewing a television commercial on the subject 6. other variables including demographic variables and self-efficacy, which is the confidence in one’s ability to take action Information may help develop the knowledge, attitudes and beliefs that shape our perceptions of health, which in turn motivate our health actions. HBM factors are shaped by information in a number of ways. For example (National Cancer Institute, 2005): Risk information may form the perceived susceptibility, severity and benefits of health actions Misinformation or the lack of information may result in perceived barriers. Information (such as self-care instructions) and information behavior (such as searching for health information) may serve as cues to action (Johnson, 1997). Few health behavior theories have addressed these constructs as cues to action. 3.2.3.2. Stages of Change (Transtheoretical) model The stages of change (also known as the transtheoretical) model explains our readiness to change or attempt to change health behavior. It asserts that behavioral modification is a circular progression through a number of stages. Change is ongoing and individuals may quit, relapse or start the process again from any stage (National Cancer Institute, 2005; Skinner and Kreuter, 1997). The model was developed by Prochaska and DiClemente (1983) for conceptually understanding the smoking cessation procedure. Since that time, it has been used to model other health behaviors including: alcohol abstinence, sunscreen use, dietary change, and contraceptive use (Skinner and Kreuter, 1997). According to the model, there are five stages in health behavior change (adapted from Skinner and Kreuter, 1997; National Cancer Institute, 2005): 1. precontemplation, which considers making a change (within the next 6 months) 2. contemplation, which considers taking action in the next 6 months 3. preparation, which the individual intends to make a change, has begun taking behavioral steps, and expects full action within the next 30 days 4. action, which is the process of changing (within 6 months or less) 5. maintenance, which is maintaining the behavior change after the 6 month mark Different information needs may be associated for each stage. Also, different types of information are needed to advance the individual to the next stage (Weinstein, 1988). In these ways, information helps people maintain or advance in their behavior change stage. 20 3.2.3.3. Theory of Planned Behavior / Theory of Reasoned Action The Theory of Planned Behavior (TPB) and the Theory of Reasoned Action (TRA) are associated theories. They view behavioral intentions (i.e. the intention to act, or the perceived likelihood to perform a behavior) as the central factors to determining health behaviors (i.e. the actual performance). With the appropriate intention, we may change our health behavior. In other words, people do what they want to do. The theories assume people are rational beings and reasonably process information when making behavioral decisions. Figure 5 illustrates the TRA and TRB constructs. Note that TPB includes the construct of perceived behavioral control, which the TRA excludes from its model. Constructs Attitude toward behavior TRA TPB Subjective norms shapes drives Behavioral intention Health behavior Perceived behavioral control Figure 5 Central constructs of the Theory of Planned Behavior (TPB) and Theory of Reasoned Action (TRA) According to the theories, there is a causal link amongst constructs. Beliefs and attitudes shape behavioral intentions, which in turn drive health behavior. The constructs are defined as follows (National Cancer Institute, 2005): Attitudes are the personal evaluation of the behavior and its outcomes (e.g. good, bad, neutral). Subjective norms are the beliefs about whether engaging in particular behaviors would gain the approval of key people. Peer pressure is an example. Perceived behavioral control is the belief that one has control over a behavior and an ability to change it. 21 According to the TPB/TRA model, health interventions should address the underlying beliefs, attitudes and social approval of the health behavior. Focusing on people’s beliefs and attitudes is important for change, as they influence rational health behavior choices (Skinner and Kreuter, 1997). Therefore, information may change the beliefs and attitudes that drive our intention and efforts at behavior change (Skinner and Kreuter, 1997). 3.2.4. Interpersonal level theory: Social cognitive theory According to social cognitive theory, personal factors, environmental factors and human behavior are part of an ongoing and dynamic process. This theory was developed from social learning theory, which asserts that people learn by personal experiences and by observing the actions and beneficial results of others (Bandura (1977), with later work by Baranowski, Perry and Parcel (1996 cited in Skinner and Kreuter, 1997)). While social cognitive theory includes many constructs, there are three relevant to health behavior change. They include: Self-efficacy, which is “the beliefs of an individual in his/her ability to take action, perform a behavior and overcome any barriers” (Skinner and Kreuter, 1997). It is the perceived ability that matters, not the actual ability. Goals Outcome expectations, which are the beliefs that a particular behavior will lead to specific desired outcomes In social cognitive theory, self-efficacy is the most important factor towards health behavior change (National Cancer Institute, 2005). With self-efficacy, people believe they can change their health behavior and persist despite barriers. High self-efficacy is correlated with initiating new behaviors, maintaining them, exerting greater effort and persisting longer (Bandura 1977, 1982; Strecher et al., 1986). Other important factors include: (1) observational learning, which is the acquisition of new behaviors by watching other people's experiences and outcomes; and (2) positive reinforcements, such as rewards, or negative reinforcements, such as alarms and warnings (National Cancer Institute, 2005). Information may influence self-efficacy for health behavior change. Information may provide the following (National Cancer Institute, 2005; Skinner and Kreuter, 1997): Arguments that a person can change behavior Explanation of the value of behavior change Reinforcement, such as progress and achievement reports Tips, suggestions and advice for making goals seem possible 22 The potential of information to influence self-efficacy has been confirmed in a number of health behavior change studies. This research has examined behaviors ranging from dietary control (Baranowski et al., 1993) through to pain control (Lorig et al., 1999). 3.2.5. Community level theory Community level theories are not explored this literature review. These theories address changes to the environment that shapes our health behavior. Useful theories include communication theory, diffusion of innovations and community organization (National Cancer Institute, 2005). 3.3. Health behavior constructs There are many more health behavior theories than the select few described in the previous section. There are recent research attempts to identify the common theoretical constructs of health behavior theories (i.e., the key concepts). The Institute of Medicine recommends advances in the convergence of theoretical views and the identification of the key health behavior constructs (Institute of Medicine, 2002). Understanding key health behavior constructs may facilitate the application and development of theory. To this end, the Division of Cancer Control and Population Sciences (DCCPS) at the National Cancer Institute have developed a project to define the major constructs and develop measures for them. The key constructs are defined below: Dispositional optimism Regarding expectations of the future, pessimists expect disaster, while optimists believe adversity is surmountable. This affects coping and risk behavior (Carver, 2007). Illness representations Illness representations comprise of the following notions: identity, timeline, consequences, cause and control/cure for the condition, as well as the coherence of thoughts regarding these areas (Diefenbach, 2007). It follows that information have the potential to shape our illness representations. It has been postulated that our beliefs and expectations of a health condition determine our appraisals of illness and health behavior. Normative beliefs These are beliefs about the extent which other people who are important to us think we should or should not perform particular behaviors (Trafimow, 2007). Optimistic bias A mistaken belief that one’s chances of a negative experience are lower than that of their peers – or in the case of positive experiences, a higher chance (Klein, 2007). 23 Perceived benefits These are beliefs of positive outcomes from health behavior change (Champion, 2007). Perceived control “Perceptions that one has the ability, resources or opportunities to get positive outcomes or avoid negative effects through one’s own actions” (Thompson and Schlehofer, 2007). Perceived vulnerability Beliefs about the likelihood of developing or experiencing a health problem or threat (Gerrard and Houlihan, 2007). Social influence The health influences from the social context including family, peers and community (e.g. peer pressure) (Willis, Ainette and Walker, 2007). Social support This includes perceived support from social networks, supportive actions by others, and social relationships that obligate support (e.g., marriage) (Lakey, 2007). Intention, expectation and willingness Intentions are the “the amount of effort one is willing to exert to attain a goal” (Ajzen, 1991 cited in Gibbons, 2007). It is related to expectations, which addresses the subjective value assigned to outcomes (Gibbons, 2007). Worry This is “a chain of thoughts and images, which are negatively laden and relatively uncontrollable” (Borkovec et al., 1983 cited in McCaul ad Goetz, 2007). Self-efficacy Self-efficacy is “an individual’s level of confidence in his or her own skills and persistence to accomplish a desired goal” (Abrams et al., 1999). This construct is an important predictor of future behavior. It has been acknowledged as the most commonly cited construct in health behavior theory (Whitlock et al., 2002). Self-efficacy is not concerned with actual abilities, but emphasizes the perception of the ability. It is also context specific: an individual may experience different levels of selfefficacy from one task or behavior to another (Abrams et al., 1999). The self-efficacy construct is central to Bandura’s Social Learning Theory (Bandura, 1977; Bandura, 1982). This theory predicts and explains behavior by examining incentives, outcome expectations and self-efficacy expectations (as detailed in section 3.2.4. ). Self-efficacy has a strong influence on behaviors by addressing the following (Bandura, 1977 and 1982): 24 1. 2. 3. 4. acquisition of new behaviors inhibition of existing behaviors disinhibition of behaviors obstacles: the effort, time and persistence expended are positively correlated with self-efficacy 5. emotions and behavioral patterns such as thoughts and anxiety Self-efficacy expectations are learned and developed from four major "sources of efficacy information" (as defined by Strecher et al., 1986): 1. performance accomplishments due to learning and personal experience; 2. vicarious experiences due to observing others' experiences; 3. verbal persuasion, such as encouragement from health professionals for perseverance; and 4. physiological state of the individual, such as level of anxiety or physical agitation, which may deter self-efficacy. Information may therefore influence self-efficacy for health behavior change. Sources of information relevant to self-efficacy include: documented experiences of others, suggestions, tips, guidance and instructions. These sources may help people recognize that behavior change is accomplishable and that there are established methods and supports available. In a review of studies, Strecher et al. (1986) found that self-efficacy is important to number of behavior change conditions, including smoking, weight control, contraceptive behavior, alcohol abuse and experience. Summary of health behavior constructs The health behavior constructs fall into three categories. Each is influenced by information to a varying degree. The first category is related to social experiences and forces. These constructs include intention, expectation and willingness; normative beliefs; social influence; and social support. In these constructs, social cues and social interactions serve as information and influence health behavior. This category is best studied by other disciplines such as sociology or health psychology. The second category is related to personality issues and affective dispositions. This includes dispositional optimism, optimistic bias and worry. These constructs may be irrational or involuntary in nature, and are not necessarily influenced by information. The third category is related to beliefs and understanding that may be shaped by learning and information use and processing. This includes illness representations, perceived benefits, perceive control, perceived vulnerability and self-efficacy. There is a need to explore how information influences these constructs and drives health behavior. 25 4. Tailored health communication 4.1. Definition Tailored health communication is an individualized approach for responding to the information and communication needs of patients. According to Kreuter and Skinner (2000), tailoring imparts information to suit the individual’s needs and characteristics. Rimer and Kreuter`s definition (2006) includes an “assessment-based approach in which data from or about a specific individual and related to a given health outcome are used to determine the most appropriate information or strategies to meet the person’s unique needs”. 4.2. Example Smoking cessation self-help guides are a prime example of tailored health communication. These educational materials have addressed different population segments according to demographic and behavioral variables. Rimer and Kreuter (2006) identified seminal projects that tailored smoking cessation guides to audience segments such as blue-collar smokers, African-Americans, older smokers, pregnant women and women with young children. 4.3. Value of tailored health communication Tailoring emerged from an increasing market demand for the customization of information. Several trends have motivated this demand: the increasing demand for customization (i.e. consumer-driven services ); the increasing use of the Transtheoretical Model for health education, which asserts that individuals belong to varying stages of “readiness” for adopting or modifying health behaviors; and the technological capability of generating customized and personalized communications (Rimer and Kretuer 2006). Tailored health communications exhibit positive outcomes, benefits and preferences in a number of ways: Patients prefer tailored health communications and find it effective for delivery of consumer health information (Jimison, Fagan et al., 1992) It is proposed that salient health information facilitates attention and thorough information processing, which enhances the impact (Cacioppo and Petty, 1984 cited in Latimer et al., 2005) From research on the media and content characteristics of breast cancer education programs, informational content has the strongest effect on knowledge acquisition and self-reported involvement, while differences in media types exhibit little evidence of differentiation (Street and Manning, 1997). Messages tailored to health information processing styles were more persuasive in promoting screening mammography and fruit and vegetable consumption (Latimer et al., 2005) Tailored messages may enhance motivation for information processing in four ways: (1) matching content to information needs and interests; (2) providing meaningful context; (3) capturing attention with design and production elements; 26 and (4) matching individual preferences for the amount, type and channel of information delivery (Rimer and Kreuter, 2006) Using computers for tailored health communications may approximate the advantages of face-to-face tailored communications in terms of encouragement and message relevance enhancement (Skinner et al., 1993) Other health behavior change determinants may be more important than information. For example, structural barriers and limited access to health care, which information delivery may not necessarily ameliorate (Rimer and Kretuer, 2006). 4.4. Variables for tailoring Health information may be tailored along the following variables: Audience segments by socio-demographic characteristics, ethnic or racial background, life cycle stage and disease or at-risk status (Glanz et al., 2002). Psychological and emotional constructs such as the need for cognition, coping styles, health locus of control (the personal attribution of responsibility for one's own health), and regulatory focus (the motivational system pertaining to health promotion and disease prevention) (Latimer et al., 2005). Stage of readiness for behavior change along the stages of Transtheoretical theory (see section 3.2.3.2. ) (Rimer and Kreuter, 2006). Skills and behaviors such as reading level, learning ability and styles, selfmonitoring capability and preventative skills (Rimer and Kreuter, 2006). 5. Interactive technology for health behavior change and communication 5.1. Background This section examines health behavior change communication via interactive information and computer technology. Interactive technology refers to “computer-based media that enable users to access information and services of interest, control how the information is presented and respond to information and messages in the mediated environment (e.g., answer questions, send a message, take action in a game, receive feedback or a response to previous actions)” (Street and Rimal, 1997). Two important capabilities of interactive technology are: (1) responsiveness, which is addressing the user's previous actions and (2) user control, which permits users to modify the mediated environment (Street and Rimal, 1997). Interactive technology typically consists of modular components linked into a unified service (e.g., combining image, animation, voice, text, etc.). 27 5.2. Example applications 5.2.1. Settings Interactive technology for health behavior change may exist in a variety of settings. Its versatility may complement or enhance traditional health behavior change interventions. To name a few, online environments may deliver support group meetings, communication with health care providers, and journaling. For health behavior change, there are two important domains for interactive technology: ubiquitous computing and just-in-time technology. With ubiquitous computing, information processing extends beyond the desktop computer to everyday objects and activities (e.g., checking email on your cell phone). It extends the human-computer interface and automatically “determine[s] where and when to [best] present messages to motivate healthy behaviors” (Intille, 2004). For example, preventive health action messages may be presented upon detection of a crisis or a decline in health. This has been deployed for seat belt use and increasing physical activity (Intille, 2004). Just-in-time technology facilitates information processing when print and traditional resources are not conveniently accessible. For example, Intille et al. (2003) describe the use of handheld computers to review and compare the nutritional value of foods and alternatives. This device includes a scanner for reading food barcodes and provides additional convenience. 5.2.2. Uses and purposes Interactive technology may be used in all behavior change counseling steps of the 5A framework (assess, advise, agree, assist, arrange follow-up) (Glasgow et al., 2004). For example, Internet forms for patient assessment, follow-up information electronically delivered in a tailored manner, automatic patient reminders, and online forums and support groups for social support. More research projects are detailed by Glasgow et al. (2004). Interactive technology could be used for health behavior change in three ways (Street and Rimal, 1997): Provide an information environment for health learning. An information environment is the presence of media to permit active exploration of information. Interactive technology may promote active learning, information seeking, and individualized knowledge when users may select information to their interest and retrieve different information media (e.g. videos, text, statistics) along personal directed paths (Dede and Fontana, 1995; Kahn, 1993 cited in Street and Rimal, 1997). Provide simulation environments for problem-solving and health skills development. For example, virtual reality video games may mimic everyday health choices and dilemmas, such as building a virtual breakfast where nutritional value and health outcomes may be taught (Street and Rimal, 1997). 28 Simulation environments may also increase self-efficacy by cultivating personal experiences, emphasizing individual responsibility and promoting knowledge and skills development (Dede and Fontana, 1995). Provide access to a network of people and resources. This includes social and informational support for decision making and behavior change (Street and Rimal, 1997). Other uses and purposes of interactive technology are highlighted below: Provide “expert” behavioral advice that is responsive to user input and needs (Velicer and Prochaska, 1999; Ramelson et al., 1999; Paperny and Hedberg, 1999). This function may address screening, education and counseling needs. Gather patient data and provide personalized feedback through automated or online communications (Dirkin, 1994). Virtual environments may reduce the inhibitions or perceived risks in discussing sensitive health issues (relative to face-to-face encounters) (Owen et al., 2002). Computer-based telephone programs are used for real-time patient data collection and feedback. Patients respond via touch tone or voice recognition. Communication is at the convenience of the user and is verbal, which is important for low literacy. An important factor is timeliness, receiving interactive health information whenever the individual experiences a health situation. Such technology has been found to promote health behavior change (McBride and Rimer, 1999; Soet and Basch, 1997). The Internet may integrate health education, self-monitoring and social support through systems that collect data, provide guidance and offer avenues for online social support (Owen et al., 2002). Additional functions of interactive technology for health communication include: relay information, enable informed decision-making, promote healthy behaviors, promote peer information exchange and emotional support, promote self-care and help manage demand for health services (e.g., serving as an automated triage system for health professionals) (these functions were identified in a review by the Science Panel on Interactive Communication and Health (1999)). Currently, interactive technologies are deployed across different media types and health applications. From a ten year retrospective review of new technologies for health communication, various programs have been identified for stand-alone computer-based communication (e.g. CD-Roms), web-based communication, telephone-based communication, and computer-based tailoring technology (e.g. programs that provide information according to a patient needs assessment) (Suggs, 2006). 5.3. Value of interactive technology for health behavior change Interactive technology is well regarded by health professionals. According to publications in medical journals and the popular press, professionals are enthusiastic about interactive technology for health promotion (Booker, 1996; Jelovsek and Adebonjo, 1993; Kahn, 1993 – all cited in Street and Manning, 1997; Gysels and Higginson, 2007; Sidorov, 2006). 29 Such technologies are regarded as “fun, engaging, novel and used in accordance with individual needs and interests” (Street and Manning, 1997). However, there is little research on the technology's promise from a user's perspective. Perhaps, the health providers' enthusiasm is influenced by perceived potentials in cost efficiency and time savings (Street and Manning, 1997). For health promotion, the positive impacts of interactive technology include (Science Panel on Interactive Communication and Health, 1999): patient satisfaction good patient-provider relationships (e.g., tailored information systems may engage users for shared decision-making and health behavior change), improved communication encouragement of honest self-reports. For instance, individuals may provide more honest personal histories when solicited by computers (Erdman et al., 1985). Blood donors were more likely to report HIV-related risks to a computer than to a health care worker (Locke et al., 1992). Reduction of unnecessary services, since health education and self-care may decrease the number of unnecessary health care visits (Fries and McShane, 1998) Interactive technology, such as the Internet, is a valuable source of social support. For example, email, web pages for societies, online forums, social groups, chat, video phone and more. Social support may lead to better health outcomes (Mookadam and Arthur, 2004; Fratiglioni et al., 2004). The Internet is a unique social outlet. Active users may learn new information in addition to creating and disseminating new information (e.g. providing anecdotal experiences, instructions). In this way, online users support and encourage others to become their own health communicators (Science Panel on Interactive Communication and Health, 1999). Interactive technology for health behavior change may lead to positive health outcomes. For example: A tailored interactive multimedia program to encourage diet improvements exhibited a statistically significant improvement in positive eating habits (Irvine et al., 2004). In a systematic review of randomized controlled trials for interactive computerassisted technology in diabetes self-care, patients exhibited improved health care utilization, behaviors, attitudes, knowledge, and skills (Jackson et al., 2006). 5.4. Caveats of interactive technology There are many calls for further research on interactive technology for health behavior change. Priorities include effectiveness, user experiences and the influence of information processing on health beliefs, attitudes and behaviors (Street and Manning, 1997). 30 There is a lack of convincing effectiveness data (Science Panel on Interactive Communication and Health, 1999). Methodologically, few clinical outcomes measurements have been defined to quantify the technology's efficacy (Jackson et al., 2006). Furthermore, the underlying mechanism for the success of this technology is poorly understood (National Cancer Institute, 2005). Practitioners are advised to carefully identify the costs and limitations of interactive technology while the evidence base is limited (Glanz, 2002). Only a few studies demonstrate that interactive technology is more effective than traditional methods for health promotion (Street and Rimal, 1997). In some cases, the two methods show little difference. For instance, Internet weight loss programs. In a randomized controlled trial, individuals attending in-person weight control meetings were no more effective in the long term than those who supplemented their meetings with an Internet weight loss treatment (Micco et al., 2007). Other studies found a negative impact on health behavior change. New interactive technologies may be detrimental when they promote inappropriate self-care or interfere with the patient-provider relationship (Science Panel on Interactive Communication and Health, 1999). Inappropriate information may mislead patients to poor medical treatment or delay their pursuit of appropriate health care (Weisbord et al., 1997). The provider-patient relationship may be jeopardized when poor quality consumer information is used to guide health decision-making (e.g. questionable information found on the Internet). This may lead to unnecessary conflicts and confrontations with the doctor (Bero and Jadad, 1997) or “second guessing” (Keoun, 1996). 5.5. Theoretical perspectives on interactive technologies 5.5.1. Traditional health behavior theories Researchers encourage established health behavior theories in the development of interactive health technologies (Skinner and Kreuter, 1997). These theories are helpful in a number of ways: (1) they cultivate an understanding of the target behavior and its determinants; (2) they suggest methods for behavior change; and (3) they help identify technical features useful for behavior change. For example, interactive technologies may be used to: change perceptions, in accordance to the Health Belief Model provide opportunities for skills development, in accordance to the Social Cognitive Theory, determine individual readiness for behavior change and deliver relevant information, in accordance to the Transtheoretical model (Skinner and Kreuter, 1997). 31 5.5.2. A conceptual framework for interactive technology for health promotion Street and Rimal (1997) have proposed an “organizing and heuristic framework” for interactive media environments in health promotion. This framework identifies the variables and processes helpful for understanding use and effectiveness. Figure 6 outlines three overlapping stages in a cyclical model of interactive technology use. Figure 6 A three stage model of health promotion using interactive technology (excerpt from Street and Rimal, 1997) Stage 1 examines the implementation and utilization of interactive technology, focusing on the interactions among health care institutions, users and technology. The factors involved include: (1) service deployment issues; (2) technical features that encourage user adoption; and (3) attitudes and experiences that encourage utilization. Stage 2 examines technology effectiveness through the concept of a user-mediamessage interaction (Street and Rimal, 1997). It conceptualizes users receiving and processing health messages (e.g. engagement, attention, integration of information with existing knowledge), which then brings about desired experiences and results (e.g. learning, motivation, enjoyment, problem-solving, reassurance). The user-mediamessage interaction also examines user characteristics (e.g. demographics, health condition, personality, etc.) and message characteristics (e.g., content, credibility, level of evidence, etc.). 32 Intermediate outcomes are an important component of the use-media-message interaction. Interactive technology may lead to different intermediary outcomes, which in turn bring about the desired health outcomes. Many of the intermediate outcomes are not physical and objective health measures: many are constructs from health behavior theories that are relevant to the behavior change process. Stage 3 explores health outcomes. Interactive technology use may lead to the health outcomes by providing patients with support in a number of ways: informational, emotional, procedural, cognitive, etc. The model acknowledges that technology is only one contributing factor towards health outcomes. There are also psychosocial factors that are exclusive of technology, such as financial constraints or cultural barriers. From a methodological standpoint, there are three domains for research analysis: Stage 1: the reasons an interactive technology is provided and adopted Stage 2: what occurs when an individual uses a technology, from receiving the health message through to intermediate and final outcomes Stage 3: the eventual health outcomes attributable to the technology The first two domains are relevant to information science research, while the remaining question may be best addressed by health professionals. 5.5.3. Information environments for health promotion Information environments are a metaphorical environment. It is the computer atmosphere where the user explores and experiences information (Street and Manning, 1997). Information environments typically involve multiple media formats (e.g., text, music, graphics, video) and include an interactive element, which provides a sense of activity or “following a path”. Figure 7 models health promotion with information environments. User involvement in message processing leads to educational outcomes, which bring about desired health outcomes. The level of involvement depends on the characteristics of the message, its mediated delivery, and the user characteristics. The model acknowledges barriers to desired health behavior changes, including: personal, social, cultural and economic factors. 33 Figure 7 A model of health promotion using information environments (excerpt from Street and Manning, 1997) According to the information environments model, interactive technologies create information environments where users may explore, learn and develop skills for health behavior change. 6. Conclusion 6.1. An analytical framework for information, interactive technology and health behavior change To conclude this literature review, an analytical framework is developed. The purpose of this framework is to guide future examination of the question: how do information and interactive technology influence health behavior change at the intra- and interpersonal levels? This framework summarizes the main research concepts identified in this review, and is not meant to be comprehensive. 34 Information (1) Other factors (8) Actions (4) Information environment (3) Intermediate outcomes (6) Health behavior change / outcomes (7) Actions (5) Interactive technology (2) Perspectives for examination (9) Figure 8 Analytical framework for how information and interactive technology influences health behavior change at the intrapersonal and interpersonal level 6.2. Explanation of the framework Information (item #1) and interactive technology (2) cultivate an information environment (3). Information drives particular actions (4) that lead to intermediate health outcomes (6). Similarly, interactive technology drives particular actions (5) that lead to intermediate health outcomes (6). Intermediate outcomes lead to health behavior change and eventual health outcomes (7). Other factors unrelated to information (8) also influence health behavior change and health outcomes. When examining these constructs, different research perspectives and foci (9) may be utilized. 35 6.3. Framework details Details and issues for each construct of the framework are detailed below. Information (item # 1) The definition of information is varied and encompasses the following: advice, suggestions, feedback, instructions, knowledge, documented experiences of others, social cues and comparison, external experiences, messages, observations, test results, knowledge, mental models and representations Descriptive characteristics of information: how the information is framed, context, intended audience, purpose, timing, tailoring to individual needs and experiences User response to information: attention, processing, acquisition, relevance, salience, personal preferences, motivation User characteristics influence response to information: personalities, disposition, psychological needs, stage of readiness, learning and behavioral skill levels, personal information styles Information behavior: establishing information needs, information seeking, and information use Interactive technology for health promotion (2) Media type and applications Modular components Capabilities: responsiveness and user control Relationship to face-to-face interactions: complementary? Institutional factors for deployment Technological factors User factors Utilization User-media-message interaction Information environment (3) A metaphorical environment where the user explores information via experiences in a computer atmosphere Interactivity Possibilities for learning through exploration Developing skills for health behavior change Message characteristics Media characteristics User characteristics Information-driven actions (4) Cultivate an understanding of health Shape information behavior Shape cognitive processes Shape experiences Elucidate options and choices 36 Facilitate decision making Facilitate learning and knowledge development Shape emotional issues Provide social support Promote health awareness and self-care Activate good health behavioral skills Activate behavioral skills that lead to eventual preventive behavior Motivate good health behavior Empower the individual Facilitate the behavior change pathway Delay or impede the seeking of medical care (possible negative impact of health information) Encourage more thoughtful and deliberative processes when making decisions about health behavior Advise patients on the benefits of behavior change Motivate and help the patient to decide on the appropriate goals and methods for behavior change Help develop the knowledge, attitudes and beliefs that shape perceptions of health, which in turn motivates health actions Misinform the individual and shape perceived barriers Serve as a cue to action Help people maintain or advance along their "stage" of behavior change Persuade an individual towards behavior change Inform the individual of the value behavior change Provide reinforcement of changed behavior Shape our illness representations Guide user attention to health topics Encourage thorough information processing Approximate face-to-face communication (especially with tailored health communication) Serve as a source of social support Actions driven by interactive technology for health promotion (5) Facilitate behavior change counseling activities (the 5A’s: assess, advise, agree, assist, arrange follow-up) Provide an information environment for health learning Provide simulation environments for problem-solving and practicing health behavior skills Provide access to a network of people and resources Provide “expert” behavioral advice that is responsive to user needs and characteristics Gather data from patients Provide personalized feedback and follow-up 37 Integrate education, self-monitoring and social support through systems that collect data, provide guidance and offer avenues for social support in online environments Relay information Enable informed decision making Promote healthy behaviors Promote peer information exchange Provide emotional support Promote self-care Help manage demand for health services Intermediate outcomes (6) Decision making skills development Problem solving skills development Informed decision making Shared decision making as the result of an informed patient Patient satisfaction Scope and nature of information acquisition Repertoire of alternative courses of action known to the searcher Health action taken Cognitive outcomes: perceptions, opinions, knowledge, attitudes or beliefs that may be conducive to healthy behavior Behavioral outcomes: changes as the result of a conscious and informed choice Perceived susceptibility, severity and benefits Intention for behavior change Self-efficacy Involvement Disclosure of personal or embarrassing details relevant to health Timeliness Relationship with providers Communication with health professionals Reduction in unnecessary services Health behavior change setbacks Health behavior change / outcomes (7) End results Targeted behaviors Sustained behavior change Other factors affecting health behavior (8) Demographic variables, such as: age, gender, race, ethnicity and socioeconomic status Structural barriers and limited access to health care, which information acquisition may not necessarily ameliorate 38 Economic factors Medical factors Sociocultural factors Psychosocial factors Perspectives for examination (9) Context and environments for health behavior change Ecological perspective of health: intrapersonal, interpersonal, and community levels of influence Behavioral diagnosis for identifying appropriate theories and constructs for examination Use of established health behavior theories Why an interactive technology/information is provided and adopted? What occurs when an individual uses a technology? Understanding the mechanism from the receiving of health information through to outcomes. What are the eventual health outcomes that may be attributed to technology and information? 6.4. Further research There is a need for research in the following areas: There is a lack of research on users seeking information themselves. The research on health information has focused on the push model, whereby health professionals deliver information to health consumers. Effectiveness of information and technology for intermediate health outcomes User experiences with information and technology The mechanisms by which information influences health beliefs, attitudes and behaviors Define health outcomes for measuring and evaluating the role of health information Further examination of the notion of health information in health behavior theory and studies 39 7. 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