Early Intervention and Prevention in New Zealand The key to any future development of Early Intervention and Prevention Programmes (EIPP's) in this country lies with the appointment of a Special Project Group (SPG) whose members will drive all aspects of the process and take responsibility for the overall implementation and monitoring of these programmes. Mental Health Commission Early Intervention and Prevention Group Workshop Dunedin June 1997 Table of contents Introduction Background Workforce development Service co-ordination Funding/Resources Appendices (as listed) Early Intervention and Prevention Workshop May 28th - 29th 1997 Dunedin Introduction This workshop was sponsored by the New Zealand Mental Health Commission. Participants The Mental Health Commission would like to thank the following people for their input into the workshop and acknowledge their employers in agreeing to support participants to attend. Cath Allan, Manager, PACT, 28 London Street, Dunedin Marilyn Bartlett, Team Leader, Community Mental Health Team, Psychiatric Services Centre, Dunedin Hospital, Great King Street, Dunedin David Barthgate, Consultant Psychiatrist, Community Mental Health Team, Psychiatric Services Centre, Dunedin Hospital, Great King Street, Dunedin Jim Crowe, National President Schizophrenia Fellowship (NZ), Dunedin Pauline Hinds (facilitator), Advisory Board Member, Mental Health Commission, Dunedin Alison Masters, Community Psychiatrist, Central Community Mental Health Team, Capital Coast Health, 100 Tory Street, Wellington. Aroha Noema, Te Orangaronu Tonga, Waikaeri, Helensburgh House, Dunedin. Sue Thompson, Senior Lecturer, Nursing and Midwifery Department, Otago Polytechnic, Private Bag 1910, Dunedin. Workshop scribe and report writer: Chris Walsh, Senior Lecturer, Co ordinator, Advanced Programme in Mental Health Nursing, Department of Nursing and Midwifery, Victoria University, Private Bag 600, Wellington. Terms of reference Participants at the workshop were asked to come up with a consensus statement on early intervention that would meet the needs of the New Zealand population. The overall aim of the workshop was to produce a source document on early intervention mental health services for the Mental Health Commission. This document would assist the commission in its work, especially on projects such as the Blueprint for mental health services and the strategy for workforce development. The three main areas covered in this report are workforce development, service co ordination and funding/resources. Attention to these three areas is seen as central to any discussion and implementation of Early Intervention and Prevention Programmes (EIPP's) in this country. Scope and definition of early intervention Early intervention is multi faceted and should take account of people who are accessing the service for the first time, those who have relapsed since first contact with the mental health service and those who are living in smaller and sometimes isolated communities. Furthermore early intervention must consider not only the changing needs of the population but also the changing needs of the workforce who are assigned the task of meeting those needs. For the purpose of this workshop there was a clear distinction made between people presenting for the first time with a mental illness and people who have presented previously with a mental illness and have subsequently relapsed. The issues and ongoing treatment of these presentations are quite different. However there is a demand for early intervention services and strategies to deal with both types of presentation. To keep this distinction intact the group decided that the term Early Intervention and Prevention Programme (EIPP) would address both concepts and so this term is used throughout this report. Background The benefits of early intervention are well documented both here in New Zealand and internationally. So too are the problems, short term and ongoing, associated with delayed recognition and treatment (see appendix one for information on early intervention, the Mason Report). Consensus statement on early intervention for psychotic illness A recent early intervention initiative in this country has been the work of a New Zealand group of people with a wide range of perspectives who came together at a consensus conference in Auckland late last year. These people had a shared concern about early intervention improving outcomes for people developing psychosis and a belief that effective quality early intervention services needed to be developed throughout this country. Some of this group had attended the Early Psychosis Prevention and Intervention Centre (EPPIC) conference held in Melbourne earlier in 1996 and saw the need for a similar initiative here. Despite the fact that the focus of the New Zealand consensus group has been on psychotic illness, the values and philosophy outlined in the consensus statement were seen to be in line with the approach needed to deliver EIPP's generically. Furthermore, the discussion about aims, assessment, treatment, location/setting, resources/staff, liaison, evaluation/outcomes and services for Maori in relation to early intervention were seen as being congruent with an overall approach to early intervention. In the consensus statement the service for Maori is discussed with emphasis on consultation, "Issues regarding whether early intervention for Maori should be provided from within mainstream Early Intervention Services or by specialist services for Maori by Maori must be resolved as part of local consultation processes" (NZ Early Intervention Interest Group, 1996, p 12). The service should also be user friendly to Maori and take account of the principles of the Treaty of Waitangi. The work to date of this group (The New Zealand Early Intervention Interest Group) in producing a consensus statement on) early intervention services for people developing psychotic illnesses (appendix two) was fully endorsed by members of this workshop. Workforce Development A major area of concern was the importance of workforce development to EIPP's. There was much discussion about both the current training and education available currently and the overall planning and co ordination of these courses. In particular, there was concern expressed by group members that there are different skills needed to work with first time presenters as opposed to those with persistent enduring mental illness. Aside from this the differences in service delivery of EIPP's in urban and rural areas was seen as an area needing focussed and specific attention. The fact that larger urban areas were more likely to be able initiate and sustain EIPP's (as some urban areas are currently doing) was encouraging. It was however acknowledged that service delivery to more isolated areas was going to be an ongoing challenge for mental health providers. Nevertheless the demand for EIPP's in more rural isolated areas was something that service providers should not overlook or earmark into the "too hard" basket. Service and education Service providers need opportunities to work with local communities to develop innovative programmes which will address the needs of EIPP's. To develop any partnership between service providers and the mental health workforce requires an understanding of the roles and responsibilities of all parties concerned and a commitment to negotiating desired outcomes in education and training. Under the present Regional Health Authority (RHA) contracting system there is little incentive for health providers to take responsibility for or be involved in education in the mental health service. Currently education is seen to be outside of the core business directives of health providers. A fundamental shift in philosophy is needed so that these health providers, under Ministerial direction, are obliged to provide comprehensive education and training to their workforce. This would be enhanced through a more co operative approach involving the combined expertise of educational and clinical staff working together to provide the best possible education and training for the mental health workforce. Furthermore, the performance of these health providers needs to be assessed, monitored and audited over a period of time. Although Nursing comprises the bulk of the workforce in mental health services the following groups were identified as needing ongoing training and up skilling: Nursing: institutional current community new graduates non government organisations primary health nurses (practice & public) students educators policy/ministry nurses managers/service leaders GP's: vocational programme current practitioners college of GP's Psychiatrists: private CHE based other Social workers Occupational therapists Clinical psychologists Maori mental health workers Cultural workers Support workers/caregivers Consumers Employees/advocates Lawyers Planning the needs of the workforce Identifying the specific training needs of these groups was seen to be essential to the implementation of EIPP's. Service providers should check out the skill level of their workforce and identify further training needs. For example, nurses who have been working in institutions need to learn strategies for working in the community which take account of the changing and diverse needs of the consumer, family members, caregivers and other health professionals. Further to this, student nurses require quality mental health clinical placements and supervision by suitably qualified and credible nursing lecturers. The training needs of psychiatrists should take account of changing treatment modalities and family intervention programmes. Family members and caregivers may need education about how to handle different behaviours of their loved one, as well as information about accessing services and information about specific mental health problems. Finally, community mental health carers may need education and training in how to work with people who have mental illness in a community setting (see appendix three which gives an example of one of the many types of courses provided for carers). There are a number of programmes for early intervention currently working well in this country and overseas (see appendix four for an Australian home based treatment programme for early psychosis that has received positive recognition). Staff working in the area of early intervention would benefit from visiting and working in a proven programme and be well placed to bring their new knowledge and skills to New Zealand. The following recommendations have been made taking into account the changing needs of the workforce, funding/resources and the role of service providers. Recommendations: •That people with the right attitudes, knowledge and skills work alongside the philosophy of EIPP's. •That training of this workforce should be properly planned, resourced and recognised as a priority by all parties concerned. Staff should be given the opportunity to do exchange visits both locally and internationally to investigate and train in service delivery models that could be developed in New Zealand. •That the concept of primary health care is recognised by people working in this area as pivotal to the success of EIPP's, therefore it is imperative that the first two recommendations are implemented. •That a clear distinction is made between the skills needed to work effectively with EIPP's for people with first onset presentation and those with persisting enduring mental illness. Consequently, the recognition of this should lead to targeting both up skilling and redevelopment of the workforce in both areas. •That appropriate funding and resources should be targeted to new initiatives in EIPP's and that current initiatives and funding continue. •That contractual obligations between employers and employees incorporate ongoing training responsibilities of both parties. •That institutions responsible for training and education of health care providers are assessed for programmes congruent with EIPP philosophy. Furthermore, there should be strategies in place to allow for funding which builds on existing successful programmes and a system whereby information about such programmes is easily accessed allowing for a more co ordinated approach. •That a group is set up to co ordinate/liaise with workforce development and to gain an overall picture of training and education in EIPP's. This group should then have the capacity to provide information regionally about national training strategies and appropriate programmes currently underway both locally and internationally. •That EIPP's should be resourced and financed immediately nationwide. Service Co-ordination Nowadays there are a number of agencies that in some way are involved in mental health service delivery. The Ministry of Health, the Police, the Justice Department, the Department of Social Welfare, the Ministry of Education, Treasury, RHAs, CHEs, Non Government Organisations and the Mental Health Commission are some of these agencies. One of the ongoing issues with service delivery is the challenge of trying to co ordinate services so there is minimal unnecessary duplication and maximum use of resources. New Zealand is a small country with a population that has diverse needs and limited funding/resources for mental health. It is therefore imperative that mental health service delivery is well co ordinated, planned and monitored so that agencies involved in mental health service delivery are aware of how their service intersects with other services and what their role is in relation to these service providers. Recommendations: •That the Mental Health Commission strongly recommends to the Minister that the Commission appoints a Special Projects Group (SPG) that has a mandate to implement EIPP's in mental health services throughout New Zealand. •It is essential that the SPG consist of appropriate people with experience, skills and knowledge in the education, policy, practice and research areas of mental health. •That this SPG has a commitment to working collaboratively towards the successful implementation of EIPP's. •That the implementation needs to include attention to co ordination, planning, management, evaluation, accountability, consultancy, consistency and accessibility of EIPP's. Funding/Resources A further concern about EIPP's is the acknowledged high financial cost of such programmes. What is often lost in considering monetary outputs is the high cost not only to the person who has, a mental illness but also to their families, friends and to the wider community. The future of the mental health service lies in the very notion of early diagnosis, treatment and further prevention. The following recommendations relate specifically to budgeting allocations for workforce development, the SPG and to mental health services. Workforce development Recommendations: •That there is an immediate assessment and identification of the skill needs of the workforce carried out. •That budget allocations target the training of primary health care providers (eg. General Practitioners). •That support continues for existing training and there is a commitment made to develop new EIPP's. •That staff contracts include ongoing appropriately funded training which is monitored, assessed and has accountability structures set in place. Special Project Group (SPG) Recommendation: •That the cost of instigating a SPG is investigated and a budget is established accordingly. Services Recommendations: •That the funding level reflects the outcomes of service contracts with EIPP's. •That the start up costs are acknowledged as having resource and budget implications. •That funding takes into account the costs of developing and implementing research that contributes toward service development. •That funding takes into account the cost of ongoing evaluation and auditing of services that maintains stated standards. The relationship between standards and evaluation/auditing of these standards has more significance now since the recent development of the National Mental Health Standards for New Zealand Mental Health Services. The preparation of these standards, co ordinated by the Ministry of Health Mental Health Services, specify criteria that will serve as guidelines for meeting the mental health needs of New Zealanders. Service providers now have a set of national standards by which they will be able to evaluate their service. The challenge for service providers will be to not only target resources that comply with these standards but also to audit their own performance in meeting these standards. Service providers, responding to public demand, must seriously consider how EIPP's will become part of the service that they provide to the community. EIPP's do not come cheaply and mental health service providers must understand and acknowledge this. While initial costs to set up and maintain such a service may be high the long term benefits have the potential to save not only in terms of financial cost but also the cost to human life. Finally, a word from Jim Crowe, National Chair of the Schizophrenia Fellowship: "I hope that this report will not be lost in the 'system' like so many other previous reports on mental health services in this country. I suggest that the recommendations of this workshop be adopted and supported by the Mental Health Commission and Regional Authorities"'. List of Appendices (in order of appearance) Appendix one (264k PDF file) Mason, K & Johnston, J & Crowe, J (1996) Early Intervention, in Inquiry Under Section 47 of the Health and Disability Services Act 1993 in Respect of Certain Mental Health Services, Report of the Ministerial Inquiry to the Minister of Health Hon Jenny Shipley, Wellington, New Zealand. Appendix two (Not available on-line - only available on hard copy) New Zealand Early Intervention Group (1997) Consensus Statement-Early Intervention Services for People Developing Psychotic Illnesses, New Zealand. Appendix three (46k PDF file) Nursing and Midwifery Department (1997) Community Mental Health/intellectually Disabled Carers Course,Otago Polytechnic, Dunedin. Appendix four (538k PDF file) Kulkarni, J (1996) Home Orientated Management of Early Psychosis, Dandenong Hospital, Department of Psychiatry, Melbourne, Australia. © Mental Health Commission, 1997