Understanding Barriers, Tourism Participation and Disabled Tourists in India Dr Sutheeshna Babu. S (PhD) Nodal Officer, National Institute of Watersports, Goa (E-mail: babpillai@gmail.com) One of the manifesting dimensions of contemporary demographics is a consistent increase in the number of persons with varying degrees of disability and the first ever World Disability Report (2011) puts their numbers in the world at more than one billion. Of this, nearly 200 million people experience considerable difficulties in functioning. While disability subjects the affected persons of different forms of exclusions, what turns out to be more critical are lack of access to education, income and employment opportunities, mobility and participation in overall development. Incidentally, this burgeoning segment and their families/ dependants happen to represent a major chunk of underprivileged and neglected part of the society. Many concrete initiatives have been in place since early 1980’s especially under the aegis of the United Nations with the focus of placing disability as important human rights and development issues- two integral means towards equalization of opportunities. Indeed, Convention of the Rights of People with Disabilities being held in 2006 under the aegis of the U.N held importance of equality in citizenship and revolved that the right of disabled to travel and participate in leisure activities should be equal their non-disabled counterpart. Exclusion of such people from participating in leisure and tourism activities amounts to social inequality. There were also attempts to establish the potential development opportunities that could emanate from facilitation and empowerment of the disabled sections. Besides the production and distribution of disability-specific goods and services; provisions for recreation and tourism needs of these groups have also been often highlighted as avenues with great potential. Notwithstanding these, existing materials would suggest that noticeable improvements in the overall conditions of the disability-affected persons are still to emerge. Hence, the main purpose of this paper is to further advance the argument that, like their able counterparts, disabled persons have equal rights of participation in socioeconomic and political functioning including in tourism and recreation opportunities. However, there exist many but surmountable barriers of different forms and nature that these groups are subject to negotiate with, often inhibiting their participation in meaningful ways. The barriers can be observed at every stage of travel process and are 1 hardly understood especially in the developing societies. Given this, the specific objective of this paper would be to examine the intricate travel barriers of the domestic tourists at every stage viz. planning, travel, stay and the attraction sites in India. The outcome is expected to provide better insight on the problems of disabled tourists and to elicit some useful mechanisms to address the barriers in focused manner. Understanding Disability in Travel Some of the literatures appeared in the recent past seem to project an image of travel barriers as being largely a social construct, especially when it comes to disabled tourists. It recognizes that disability is a product of social relations, wherein, the disabling environment and hostile social attitudes create disability rather than underlying physical impairment (Oliver 1996; Barnes, Mercer and Shakespeare 1999). Perhaps it is more qualifying to understand and explain travel barriers as being embedded in the social, political and economic settings in which the disabled individual is subjected to live and work. The social approach posits that the normal activities and roles of the disabled are informed by the dominant medical model and this socially constructed environment creates disabilities on top of the persons’ environment (Small and Dacry 2010). Often, social barriers are manifested in explicit and discriminated manner, eventually fastening their exclusion from social arena however the worst being treatment of disability as social taboo. Many scholars lament that, over the years, even though the society and institutions largely changed its attitude towards women and many other marginal social groups; the disabled are continuingly ignored and subject them to material hardship and injustice (Gleeson 1999). In fact, Small and Dacry (2010) have been candid in their view that ‘it is the disabling social practices that transform the individuals’ impairment (embodiment) in to a disability. According to them, understanding disability would need one to focus on disabling environment barriers, hostile social attitudes and material relations of power. Perhaps, social approach to disability studies arose as reaction against the ‘medical model’ that emphasizes on medical and paramedical parameters to explain disability. Perhaps, the earlier model, to a large extend, speak from the standpoint of disabled people (Patterson & Hughes 2000) it echoes the voice of social activists and the affected themselves and therefore considered as rather more credible. But, over emphasis on social approach has some inherent limitations. Because, when viewed broadly, it can be understood that tourism experiences for disabled tourists more than physical access issues and needlessly encompass a wider spectrum of limiting factors and environments. Similarly, it fails to approach ‘ability’ and ‘disability’ as dynamic process (Evans, 2004; Fitzgerald, 2005). Disability is a subject to change as disabled people build competencies and reconstruct their connections with both their environment and other people (Blichfeldt and Nicolaisen 2011). 2 Similarly, Shakespheer and Watson (2001) argue that disability is more than a social construct or medical/physical condition but it is a complex subject. Disability and embodiment are not dichotomous but are different places and times on a continuum. There is close connect between disability and impairment and that it coalesce in to a rather single stage, say disabled with disease, eventually preventing the individual from full participation. Hence, disability studies could create more adequate social theory of disability that creates space for embodiment within the social paradigm. But before dwelling on the concept of barriers, it is necessary to understand the disability because each type has its specific sets of limitations and requirements, for which, defining persons with disabilities could be staring point. From travel and tourism angle, UNWTO (2005) defines disabled tourists ‘all persons who, owing to the environment being encountered, suffer a limitation in their relational ability and have special needs during travel, in accommodations, and other tourism services, particularly individuals with physical, sensory and intellectual disabilities or other medical conditions requiring special care, such as elderly persons and others in need of temporary assistance’. This definition acknowledges the complexities and intricacies of disability as it exists and provide the scope to even cover pregnant women, the diseased and senior citizens under its ambit because all of them would need some form of assistance, even if temporary. Needlessly, ‘assistance’ could come in any form- information gathering, booking facilities and provisions, mobility, stay, seeing places and like. Perhaps a difficulty of this definition is its loose framework, having potential to jeopardize its coordination and to operationalise it in effective manner. A vast and diverse canvass of disability coverage could also result poor implementation of available enabling schemes as it could fall in the domain of different implementing agencies and may even have conflicting interest and cross-purposes. Having stated, it is not to suggest deriving separate definition for each disability category but to alert on the need for focused enabling schemes within the given definition framework. Defining level of assistance/support needed for disabled travelers should naturally depend on ‘degree of severity’ of disability. It has also been observed that social participation of the affected individual has direct bearing on the support level needed for mobility. According to Small and Darcy (2010), support need can be described as independent (no support needs), low, medium and high; wherein, the later would require 24-hour support. Given this, nature and type of access enablers could also differ and fall in a continuum of self-enabled to those with the support of helpers/caretakers. Scholars mentioned above attempted to classify major enablers as per below: Adaptive or assistive technology that maximizes their abilities- viz. wheelchair, walking frames etc. 3 Environmental or structural enablers- viz. access and mobility codes for building about ramps, lifts, accessible toilets, pathways etc. Attitudes/behavior of others- emphasizes specifically the need for challenging disabling attitudes in general towards people with disabilities. Hence, although the disability is a restriction and inability to perform an activity in a manner considered ‘normal’, the disability only qualifies as a handicap in so far as it ‘limits or prevents the fulfillment of one or several roles regarded as normal’ (Barbotte et. Al 2001). In other words, if a disabled person can be engaged in gainful employment due to provision of enabling work environment but if the same person cannot in a position to participate in leisure activities himself; he is indeed largely disabled in terms of his desire for leisure participation. This has been confirmed in the study of Blichfeldt et. al. (2011) and stated ‘accessibility as an issue of importance in relation to vacation’. This in itself qualifies to state that disability is relational and more of a social construct, creating ‘otherness’ in the same social milieu. As such, the leisure environment emerges largely as non-enabling and prohibitive in nature and that amount to infringement of citizens’ right to equal access. Leisure participation is equally or more important to the disabled than the nondisabled persons for various physiological and mental reasons. For them, the travel ‘push’ factor is more than just recreation, get away from mundane, just escape or rejuvenation; rather, vacation travel serves them higher purposes of Maslow’s need theory like gaining confidence, self-esteem and avenues to feel oneself ‘real get away from home’ etc. Indeed, any opportunity to escape from everyday regimented life would mean a lot to them because it is much hugely routinised, mundane and therefore, monotonous. Perspectives on Travel Barriers While the research on disabled tourists is somewhat in an early stage, existing ones can be seen concentrated on the barriers, constraints and accessibility issues. It has also been observed that there is a tendency among the researchers to treat accessibility issues as identical to the people across disability spectrum. Perhaps the subject matter is more complex and it should go beyond mere investigation of accessibility and related issues. Because, each one has specific sets of obstacles and constraints not necessarily identical while at the same time, the benefits sought from and importance attached to leisure travel could vary considerably. However, since the scope of this study has been restricted to the inquiry on travel barriers and participation of the disabled in Indian context, following section aims concentrate on various dimensions of travel barriers. In tourism context, barriers are defined as those impediments encountered by people while attempting to participate in a tourism experience (McGuire 1984). The preamble of the U.N Convention on the Rights of Persons with Disabilities- 2006 set a clear 4 direction to understand travel barriers, where it states: ‘Recognizing that disability is an evolving concept and that disability results from the interaction between persons with impairments and attitudinal and environmental barriers that hinders their full and effective participation in society on an equal basis with others. Further, the Article- 30.5 of the Declaration provides for: ‘… enabling persons with disabilities to participate on an equal basis with others in recreational, leisure and sporting activities, States Parties shall take appropriate measures: To encourage and promote the participation, to the fullest extent possible, in mainstream sporting activities at all levels; To ensure an opportunity to organize, develop and participate in disability-specific sporting and recreational activities and, to this end, encourage the provision, on an equal basis with others, of appropriate instruction, training and resources; To ensure that persons with disabilities have access to sporting, recreational and tourism venues; To ensure that they have equal access with other children to participation in play, recreation and leisure and sporting activities, including those activities in the school system; To ensure that they have access to services from those involved in the organization of recreational, tourism, leisure and sporting activities. The barriers of disabled persons can be understood in different ways. According to Smith (1987), one of the pioneers on this subject; there can be three main types of barriers viz. environmental (including attitudinal, architectural, and ecological factors), interactive (barriers relates to skill challenge incongruities and communication barriers) and intrinsic barriers (those associated with each participant’s own physical, psychological, or cognitive functioning level). Of those, intrinsic barriers are reported as the greatest obstacle (McGuire 1984; Murray and Sproats 1990; Smith 1987) though not less important is economic constraints. Indeed, the later could be a formidable barrier if some estimates are considered, because the holiday expenses for people with disabilities can cost between 30 and 200 per cent more than for the general tourists (Flavigny and Pascal 1995). The studies also suggest that there is a strong case for creating conducive environment to ensure increased participation of the tourists with disability in leisure activities. Besides the human rights and its economic dimensions, favourable measures were thought to having the potential to create positive impacts amongst this sensitive segment, who live generally in a sense of generalized helplessness. Absence of effective measures is not only discriminatory but it would also result furthering their alienation and reduced participation. Whereas the study of experienced tourists would testify that first tourism experience is a major factor that determines whether an individual with a disability will continue to travel or not (Murray and Sproats 1990). 5 Later on, there were attempts to examine social and behavioural dimension to understanding travel barriers. Accordingly, intrapersonal constraints have been linked to a person’s psychological state, physical functioning or cognitive abilities (Crawford & Godbey, 1987; Smith, 1987). It covers themes such as stress, anxiety, lack of knowledge, health related problems and social effectiveness. These are also taken as antecedent constraints in that some intra-personal factors such as personality and socialization may predispose individuals to participate in or avoid certain leisure activities. Next are interpersonal constraints ‘arising out of social interaction or relationships among people within social contexts’ (Scott, 1991). It occur during interactions with an individual’s social space viz. network, service providers or strangers, or because one lacks a partner with whom to engage in some leisure activity (Crawford & Godbey, 1987). Third category is structural or environmental, said to intervene between the preferences and participation (Crawford & Godbey, 1987). Examples of structural constraints include financial challenges, lack of time, ecological influences, transportation difficulties and barriers due to regulations. The UNESCAP (2003) also attempted classifying barriers in different facet of travel starting from underlying social and cultural constraints, travel planning information, transportation barriers, accessible accommodation and destination experience. Somewhat a similar typology was attempted by Sutheeshna Babu. et. al. (2010) in Indian context and the framework can be seen at Fig.1. Fig. 1: Summary of Major Travel Barriers of the Disabled A sizable disabled segment has insufficient disposable income for holidaying Family Support Lack of family support for disabled restricts their mobility and consequently travel Finance Barriers Access Unequal Participation 6 Lack of access-specific information and lack of special communication such as websites featuring WAI of W3C Communication & Information Movements can be cumbersome owing to possibly vast areas, hilly terrains of tour sits etc. Participation and inclusiveness are two terms often used to depict progress in development literature. Specific to disabled tourists, these primarily means having enabling provisions for information gathering, hassle-free travel and stay, ease of access to attractions and recreation. In reality, enabling provisions are absent or those available ones are grossly inadequate and discouraging. This situation is a major cause for lack of participation of these segments in travel and tourism, resulting tourism development largely non-inclusive and many even qualifyingly argue such state of affairs to be highly discriminatory when it comes to disable tourists. While it is a general fact that the rate of participation of disabled tourists in travel and tourism is not systematically enumerated including in the developed countries, one of the ways of inferring their mobility/travel pattern is the car ownership. Because, it can be assumed that when more and more households have access to the car, overall mobility of household members, including the disabled would increase. As one would expect, proportion of households owning a car is higher in the developed world, therefore, it would not be inappropriate to postulate those countries to have higher travel propensity of the disabled persons. With relatively higher income, citizens in these countries could also afford to annual vacations. According to Eurostat database, 65% of people in the European Union (27 countries) reported to have the capacity to afford annual holidays in 2007 (cited in Hall, 2011). Personal vehicle ownership among those less that USD $25K annual income was 92.2% in 2001, suggesting higher propensity for mobility. In other words enables to infer that vehicle ownership would expand the persons’ mobility space and vice versa. The poorer members of the society have significantly smaller activity space by virtue of their low income status. Understandably, mobility is also proportionately less to the poor than that of their richer counterparts, leading a situation of social exclusion because of various factors such as lack of or reduced accessibility to facilities, goods and services including leisure and tourism. Perhaps due to this, as Hall (Ibid) argued, if tourism studies is to embrace social justice dimension as a significant domain to engage with, it need to be understood not in terms of expanding the market but how tourism opportunities are part of the overall life chances of individuals and how these are constituted and reproduced. Barriers in Indian Context While the generic pattern of barriers among the disabled tourists may be same, specific sets of barriers could differ across the societies. Before dwelling on that, it needs to be clarified that many components of barriers are not insurmountable in nature; rather the experiences would suggest that many of those can be addressed through necessary legal and regulatory framework, creative interventions and with positive societal attitude. There are many cases of successful interventions that stand to support this proposition and also 7 found giving momentum for more engagement of these segments even though such cases are still largely confined to certain areas/pockets. In Indian context, Babu et. al (2010) have documented the barriers in detail covering all major facets of travel- booking, travel to and within India, at accommodation and in attractions. The study used a weighted index to find out the relative importance of specific sets of barriers at each stage of travel among the foreign and domestic disabled tourists travelling in India. Specific to booking stage, the top ranked barrier was lack of understanding about disability among booking staff and it was common to both the domestic and foreign tourists. It was followed by inhospitable staff and the distance of booking centers. Inaccessible booking centers/office and unreliable information also figured prominently. Problems during the booking stage could be relatively easier to handle with compared to those during travelling within the country and Table-1 would reveal the major ones. Accordingly, it can be observed that irrespective of the nationality differences; major problems remain largely same, wherein, travel within places visited emerged to be topranked followed by lack of proper information and inadequate signage on facilities. In other words, intra-destination/local travel is the most difficult part while touring, enabling to postulate that perhaps the tourist destinations are grossly inadequate and unprepared to host disabled tourists. Table- 1: Barriers of Travel for Disabled Tourists While Travelling in India Barriers Composite Rank Travel within places visited Lack of proper information Inadequate signage on facilities Non-availability of personal aids/ equipments at station/ in vehicle Lack of disability awareness among ground staff Locating affordable & accessible room Domestic Foreign 1 2 3 1 2 3 4 5 6 5 7 6 Many studies including UNESCAP (2003) documented the problems at accommodation units even though relative severity of those was not established. The major barriers in the order of severity at this stage of travel in Indian context are furnished at Table-2 below. It shows that the most important concern is that rooms meant for disabled do not have necessary facilities for hassle-free stay. This appears to be important because though many accommodation units have now at least some provisions making 8 their premises accessible; most places do not have rooms meant for disabled touristswhether toilets, bathrooms, tables, conduits etc. which are accessible, Table- 2: Barriers of Disabled Tourists at Accommodation in India Barriers Composite Rank Rooms meant for disabled do not have necessary facilities Lack of understanding of staff regarding special needs Rooms are not situated at appropriate location Rooms meant for P.C in the hotel are priced higher Lift is not available Non-availability of personal aids/ equipments Domestic Foreign 1 1 2 3 4 5 10 7 2 6 4 5 At every stage of travel, it emerges that lack of understanding of staff regarding special needs of the disabled tourists rated as a major barrier. Perhaps this is important because unless the service provider is not clear about the problems of the tourists of each disability type, redressal of their problems in satisfactory manner is needlessly a constraint. But, at attractions, the perceptions and experiences of the domestic and foreign tourists about the disability provisions appeared to be varying in terms of the relative weightage. For domestic tourists, non-availability of toilets for disabled or unhygienic conditions of available ones and non-availability of public utilities- telephone, toilet, water tap etc.- at convenient places emerged most important ones (Table-3). Table- 3: Barriers of Disabled Tourists at Attractions in India Barriers Composite Rank Toilets for disabled not available/ available but unhygienic Non-availability of public utilities- telephone, toilet, water tap etc.- at convenient places Ramps are present but not all at required locations Ramps not available/ level differences not addressed by alternative ramps Street crossings are not present Lack of access stairs/ lifts Tracks are slippery/ coarse 9 Domestic Foreign 1 2 2 3 6 8 4 6 7 8 1 7 3 5 But, when it came to foreign tourists, absence of ramps and/or level differences of alternate ramps ranked highest. It was followed by absence of toilets for disabled and the unhygienic conditions of the available ones. Absence of access stairs/ lifts at attractions is also reported as a major limitation. Summary The endeavour in this chapter was to develop a perspective on various barriers of the disabled tourists in India that probably act as impediments for their vacation travel. The discussion confirms that issues and concerns of the disabled tourists travelling at every facet travel in India are largely similar to those reported elsewhere. Firstly, physical access is a major problem and that restrict the movements even at popular tourist destinations. Secondly, availability of information in accessible format is crucial not only during the planning stage but are equally important at the travel stage. Thirdly, the service providers are still largely not aware of the specific problems and facilitation provisions of these segments of tourists, particularly among the directly connected sectors like travel and tourism sector. To sum up, disabled tourists encounter disproportionately higher degrees of problems compared to their able-bodied counterparts. It is further to acknowledge that the impediments to their participation are not just confined to leisure and tourism but in can be observed in almost every aspect of their socio-economic life. 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