Evaluation Report On THE WORK OF COMMITMENTS IN MAHABOOBNAGAR DISTRICT OF ANDHRA PRADESH August-November 2010 By K. Raja Reddy, APMAS, Hyderabad R. Ramachandran, Bangalore Acknowledgements We would like to acknowledge and thank the staff, families and other officials for giving their feedback. The team also noted and read with interest various Annual reports, log frames and report from the earlier study by Dr Mohan Raj. Some of them are voluminous and it is noted that the organization has put in efforts to look at its working time and again. This is a positive sign. We thank the staff of Commitments for the hospitality and for arranging the logistics during the field visits. It was a good learning experience for us to undertake this study. The main findings were presented to the Trustees as a power point presentation at the end of November, soon after the study visits. We apologise for the delay in submitting this full report. K. Raja Reddy and R. Ramachandran Date: May 23, 2011 2 Contents S. No. Chapters Page No. Acknowledgements List of Contents Section-1: Introduction About Commitments Background of the Evaluation 6 13 18 25 6 Section-II: Findings of the Evaluation Institution Building CBR-Education, Livelihood & Rehabilitation Needs Advocacy & Rights Organizational Aspects 7 Section –III: Lessons and Recommendations Lessons and recommendations 1 2 3 4 5 1 2 3 Annexure List of Persons Interacted by the Evaluation Team Checklist to interact with PWDs and Disability Advocacy Groups SWOT on Commitments as in July 2008 9 27 34 37 39 40 3 List of Acronyms & Abbreviations APMAS BISA CBO CBR CBRA CBRW CEO CIF CP DRDA HM HR IB ICDS IED IKP LH MDO MEO MMS MR MS MVS MZVVS NC NGO NREGS PHC PRI PT PWD SERP SHG SJS SP ToR UNCRPD : : : : : : : : : : : : : : : : : : : : : : : : : : : : : : : : : : : : : VO VS : : Mahila Abhivruddhi Society Andhra Pradesh Steering Community Based Organization Community Based Rehabilitation Community Based Rehabilitation Activist Community Based Rehabilitation Worker Chief Executive Officer Community Investment Fund Cerebral Palsy District Rural Development Agency Head Master Human Resource Institution Building Integrated Child Development Scheme Inclusive Education for Disabled Indira Kranthi Patham Livelihoods Mandal Development Officer Mandal Educational Officer Mandal Mahila Samakya Mentally Retarded Mandal Samakya Mandal Vikalangula Samkya Mahabubnagar Zilla Velugu Vikalangula Sangham Neighbourhood Centre Non-Government Organization National Rural Employment Guarantee Scheme Primary Health Centre Panchayat Raj Institutions Physiotherapy Person With Disability Society for Elimination of Rural Poverty Self Help Group Sahajeevana Sangam Sponsorship Programme Terms of Reference United Nations Convention on the Rights of Persons with Disabilities Village Organization Vikalangula Sangam 4 SECTION-I: INTRODUCTION 5 Chapter-1: About Commitments ‘Commitments’ was established as a public Charitable Trust in 1984. It is a support organization to serve the rural poor and disadvantaged persons. Major objectives of ‘Commitments’ are: Extend economic and social services to strengthen and enhance the livelihoods of rural poor. Build capabilities among rural poor. Improve access to services, facilities and entitlements or rural poor. Facilitate building of participatory, self-managed institutions among rural poor and the disabled as vehicles of their self-reliance, socioeconomic progress and self-respect. Serve as a resource centre for training, research and study upon the socio-economic conditions of rural poor. Initiate programmes and projects for sustainable development of rural poor and the disabled and facilitate convergence of services and facilities intended for their benefit. Provide a platform for advocacy upon issues and the concerns of rural poor. `Commitments’ shares the Vision of similar public organizations that the poor and the disadvantage communities are enthusiastic to overcome the social, economic, cultural and psychological barriers through their own efforts and self-managed institutions. They are capable of attaining higher productivity with improved skills, better asset base and capabilities to utilize the resources to full potential and gain access to services. The Mission of ‘Commitments’ is to enable the poor and disadvantaged communities to perceive possibilities for change and bring about desired change by exercising informed choices through collective action. (Our observation: Though ‘Commitments’ describes itself as an organization working with and as a resource center for the rural poor, much of its work is with persons with disabilities. Most other organizations too perceive them as an organization working on disability issues, especially with children, by providing medical and social rehabilitation through Community based rehabilitation (CBR) approach.) ‘Commitments’ works in alignment with Mahila Samakya (MS), the State level federation of women SHGs, funded by the World Bank through AP government. Under the provisions of this program, 10 percent of resource 6 allocation to MS should be spent to the benefit of persons with disabilities. MS supports the work of ‘Commitments’ under this provision by routing the welfare and service provisions of the State to persons with disabilities in the community. This is an important component as the relationship between Commitments and MS has severe impact on the understanding and work of the staff. The operational area of ‘Commitments’ is spread over 196 Gram Panchayats in eight mandals, covering a population of 4.2 lakhs. 326 Self help groups (SHGs) for persons with disabilities have been formed with a membership of 4243. Nearly 55 percent of persons with disabilities are members of SHGs, and the average membership in SHG is 14 persons. SHGs have federated into Mandal level Federations called Mandal Vikalangula Sangham (MVS), and eight federations (CBOs) have been formed. MVS at mandal level is federated at District level as Mahaboobnagar Zilla Velugu Vikalangula Sangham (MZVVS). This District level federation is a registered society. BISA (Steering) committee is the intermediary structure between ‘Commitments’, SHGs in village level and MVS which ensures that the rights and entitlements of PWDs are accessed. The BISA committee is expected conduct the project in the region. Objectives of ‘Commitments’ a. Advocacy and campaign: To provide a platform to discuss and to advocate on the issues and concerns of rural poor. b. Promotion and strengthening of Community based organizations: 1. Build capabilities among rural poor 2. Improve access to services, facilities and entitlements of rural poor 3. Facilitate building of participatory, self- managed institutions among rural poor and the disabled as vehicles for their self- reliance, socioeconomic progress and self- respect c. Provide direct services to supplement the welfare services of the State: 1. Extend economic support to strengthen and enhance the livelihoods of rural poor 2. Serve as a resource center for training, research and study on socioeconomic conditions of rural poor 3. Initiate programs and projects for sustainable development of rural poor and the disabled and facilitate convergence of services and facilities intended for their benefits 7 d. Resource partnership for ‘Commitments’ The work of ‘Commitments’ is carried out through four resource partnerships 1. Resources from the State through the different schemes and project provisions, including Mahila Samakya and others that are applied for and accessed 2. From Action Aid and Aide et Action through sponsorship programs 3. Financial resources of SHGs and federations through savings and micro credits 4. Financial and non- financial contribution from other institutions, particularly for the rehabilitation of adults and children with disabilities The approximate proportion of the four sources: 25:50:10:15 Support team for programme implementation Each mandal has a team of Project Coordinator; Resource team consisting of therapists and trainers; Community Social workers and CBR activists. Project Coordinator reports to the Project Director at the head office in Hyderabad. 8 Chapter-2: Background to the Evaluation 1. Purpose of the proposed exercise Process evaluation of the organizational and programmatic in Commitments for the period 2001-2010 and identify perspectives for the period 2010-2015. 2. Terms of reference: Expected outcome of the exercise 1. Quantitative and qualitative assessment of the program performance for the period 2001-2010: Strengths and achievement of objectives. Constrains and ‘pull back’ factors in the organizational and programmatic during the period 2006-2010 2. Identification of opportunities and challenges to be taken during the period 2010-2015. Conditions and course corrections in the organizational and programmatic of Commitments to address the identified opportunities and challenges during the period 2010-2015 3. Methodology of evaluation This evaluation was conducted utilizing some principles of a qualitative inquiry. It followed a design of interviews and semi structured discussions to collect the data and tried to remain as close to the authentic interpretations of the collated data as possible, while identifying and analyzing issues of concern. The participants for data collection, belonging to various stakeholder groups were selected from the various areas to be evaluated as mentioned in the purpose. They included the CBR workers and Coordinators, Rehabilitation service providers (Physio and speech therapists), individuals and parents of children with disabilities, members of Mandal Vikalangula Samakhya (MVS) and Mahila Samakya, District govt. officials and from SERP. Discussions were also held with the Project Coordinator and a few Trustees of Commitments. 4. Data Collection Methods a. Interviews and Focused Group Discussions: These were semi-structured, open ended in nature that utilized qualitative interview techniques with Panchayat leaders, members of MVS and BISA Committee, CBR workers, Disability groups and the field/ programme staff of Commitments. b. Reviewing Documents on the Activities carried out: The project proposal, reports on the first two years, training and IEC materials used and interventions made, and data from Commitment staff were looked into for relevant information and insights for the identified objectives of this evaluation. c. Field visits: The evaluation team visited two clusters in Kosgi and Gadwal mandals, totally for seven days in the month of October 2010. Interactions with Project Manager and Trustees took place in November. 9 During the visit the evaluation team was accompanied by the Coordinator of the mandal. In both mandals, the team interacted with few SHGs, Mandal Vikalangula Samakhyas (MVS), Sahajeevana Sangams (SJS), BISA Committee and Mandal Mahila Samakhyas (MMS); local government schools; interacted with persons with disabilities and their parents; those assisted in livelihood activities; met the Surpanch of Gram Panchayats, School Teachers and the Govt. Officials (MDO). The team interacted with the Coordinators individually; and the Social workers and Activists in groups. The team interacted with few Trustees individually and later as a group at Hyderabad. The data were obtained from the field office as well from the head office in Hyderabad. d. Reflective Journal: A journal was maintained by each evaluator to record the observations and personal reflection emerging from the field visits, interviews, Focused group discussions and meeting with the officials. 5. Evaluation Tools The following evaluation tools were used: Semi-structured questionnaires were prepared for various meetings, interviews and focused group discussions. Indicators of targets, data and achievements given Commitments and its staff were incorporated during analysis. Observations made on the environment and atmosphere at schools, PHCs, and on interactions with the officials and workers. by the 6. Schedule of visits and interactions The study was conducted in four phases between September and November 2010. Following table gives details of each phase and its purpose. Phase Period Purpose I 20-08-2010 Finalization of ToR for the evaluation of Commitments in consultation with the study team. II 27-09-2010 to 28-09-2010 Presentation of overview of Commitments to Evaluation Team at Kosgi III 04-10-2010 to 07-10-2010 Field visit to Kosgi Cluster to interact with SHGs, MSS, MVS, SJS, BISA Committee, Mandal Level Officials, Individual beneficiaries and staff IV 19-10-2010 to 22-10-2010 Field visit to Gadwal Cluster to interact with SHGs, MSS, MVS, SJS, BISA Committee, Mandal Level Officials, Individual beneficiaries and staff V 18-11-2010 to 19-11-2010 Interactions with The CEO, Project Director and the Board of Trustees of Commitments 10 The points stated in the following chapters are based on the observations the team had during the field visits, discussions with workers and other stakeholders. The two members of the team have discussed these points intensely and the report is prepared jointly, which is open to discussion and further modification if necessary. 11 SECTION-II: FINDINGS 12 Chapter-3: Institutional Building As on November 2010, Commitments has promoted 326 SHGs with 4,243 PWDs. These SHGs have formed eight federations, one each in the eight mandals of its operational area in Mahaboobnagar district. Commitments has adopted social mobilization as its focus of work, which can be interpreted as raising awareness in the community especially among the affected group on the issues of their concern and mobilizing them to take action. Following this approach SHGs and federations have been promoted, and their capacity has been built through training and exposure to take action. In the process of social mobilization they have focused mainly on individual meetings, rapport building, and awareness campaigns on disability (prevention and treatment), Acts related to PWDs, Govt. programmes etc. Home based approach, capacity building, social education and community based rehabilitation are the means in the process of building and strengthening peoples institutions. 1 Self Help Groups The Evaluation team has interacted with 7 Self Help Groups (SHGs) formed with persons with disabilities (PWD). a) Why did they join or form into a group? During discussions with SHGs, the members reported the reasons for joining or forming groups as i) to get pensions, ii) to get hospital facilities/medical benefits/apparatus, iii) to avail job under Employment Guarantee Scheme, iv) to promote savings, v) to avail credit. b) Group composition: The groups are mostly heterogeneous in terms of gender, age, social & economic categories. All groups have formed with men and women of different age groups and social categories. The group size varies from 10 to 15 members. But members belong to different economic categories. Majority of SHGs are more than five years old. c) Savings: The amount of savings of a member varies from group to group between Rs. 5 and Rs. 15 per week, and these are compulsory. Few groups have increased their amount of weekly savings to increase group corpus fund. The SHGs, which the study team has visited, have a cumulative savings between Rs 30,000 to Rs 40,000. This amount is loaned among group members. 13 d) Meetings: Weekly meetings are common. Members’ attendance at meeting varies from 50 to 60 per cent. Though groups have weekly meeting norm, many are not conducting meeting weekly because of i) transportation problem, ii) meeting venue is too far, iii) meeting time not convenient to parents, and iv) the severity of disability. Most of groups meeting agenda includes i) savings, ii) repayment, iii) hospital services, iv) pensions, v) certificates, vi) MGNREGS activities. There is almost no discussion on rights or any issue of discrimination. e) Books keeping: The promoters have developed good book keeping systems to maintain accounts at group level. The books of accounts includes members savings pass book, general ledger, loan ledger, cash book, minutes book. Except minutes book, no other prescribed group record has been maintained up to date. All groups have their own book keepers. However, books are not as on date because of i) irregular meetings, ii) absence of book keepers and or community workers, iii) complex book keeping system, etc. Members realize this is important but they need assistance in keeping these books. f) Leadership: Leadership change is not a regular phenomenon. It happens when i) the leaders not acting responsibly or misused group funds, ii) migrated to other places, iii) died and in case of reviving the defunct groups. The study team has observed that in many SHGs male members or member’s parents especially father is in leadership positions. This could be one of the reasons for poor attendance, meetings and savings. g) Credit linkage with banks and other external agencies: Many SHGs that the study team visited have borrowed community investment fund from MVS and credit linked to bank. h) Repayment: Most of the members are not repaying their loan installments to groups and in turn no group to VO and bank. There is no repayment to VO and bank from most of the SHGs that the evaluation team was visited. i) Defunct SHGs: Saraswathi Vikalangula Sangam was formed in the year 2000 with 14 men and 6 women to get medical assistance through self help group. At present there are only 12 members; eight dropped due to death, migration, lost interest etc. Mandal Vikalangula Sangam has given Rs. 50,000 as community investment fund (CIF) to Saraswathi Sangam. In turn the group has disbursed it Rs. 40,000 to one member and Rs. 5,000 each to two members. The members did not repay even a single installment to the group. 14 The member who borrowed Rs. 40,000 committed suicide a year ago. During past two years there are no group meetings, and no savings and lending activities. No member knows the details of savings, loans, and where the group books are kept, including bank pass book. The members reported the reasons for group not functioning as i) misuse of members’ savings, ii) defaulting of CIF loan, iii) migration, iv) numerical dominance of male members and v) financial transactions in the hands of influential people. Some of the members who felt cheated want to form a new group; and those who benefited want to revive and continue the old group. It shows that the even PWDs are also not averse to cheating their fellow members. However, due to vested interest of some individual members the medical rehabilitation activities are going on well. j) How members have benefited: The members reported that they have benefited from Vikalangula Sangams by i) getting loan to run small petty shops, ii) access to better medical facilities, iii) getting aids and appliance like caliper, hearing aids, tricycles, medicines, material for physiotherapy, iv) access to entitlements - pensions, travel concessions, v) promoting savings in the groups, k) Issues reported: The SHG members have shared some of the issues that have affected the groups as i) large loans given mostly to leaders, ii) no regular meetings and no savings, iii) only 10% of SHGs are good in quality or ‘A’ grade groups, iv) SHG bank linkage only to few groups, v) no loan from group savings. As per the opinion of Social Workers, majority of SHG are belong to ‘C’ grade (68.85%) meaning attendance of members, procedures followed in meetings and record keeping are poor; followed by ‘B’ grade (18.85%) meaning these aspects are satisfactory; and ‘A’ grade (12.29%) meaning the aspects mentioned above are good. 2 BISA Committee The study team interacted with members of the BISA Committee to know their understanding as office bearers, on the purpose and activities of BISA Committee. None of the member was able to respond how the BISA Committee was formed and its roles and responsibilities. In response to question on the activities of BISA Committee, the members reported that they focus on i) supply of milk and eggs to children and the severely disabled, ii) identification of persons with disability, iii) review of work of CBRWs, iv) providing credit to take up income generation activities, v) fund mobilization, vi) linkages with line departments or service providers, vii) awareness raising on the rights and entitlements of PWDs. 15 The office bearers of BISA Committee in Gadwal cluster did not know who the office bearers were, their position, roles and responsibilities, the reason for forming BISA, its functions, funds inflow & outflow etc. They said they worked as per the guidance of the Project Coordinator. Project Coordinator decides the agenda and the activities of BISA Committee. No BISA Committee member knows the detail of the Jeep and the Guest House that BISA is responsible to maintain for the past 2-3 years at Kosgi and Gadwal clusters. They are under the control of Commitments. All BISA activities are Coordinator centered. Everything is decided by the Coordinator. BISA Committee is acting only as an implementing agency. 3 Mandal Samakhya The evaluation team interacted with the office bearers of Mandal Mahila Samakhyas of Kosgi and Maldakal (President, Secretary and Treasurer) to know the kind of linkage between them and Mandal Vikalangula Samakhya. As per MMS Office bearers, Commitments organizes PWDs into SHGs and their federations, and facilitates linkages with service providers to access better medical and rehabilitation services. During the monthly meetings, MVS shares its progress and plans with MMS. The study team is of the opinion that the office bearers of MMS don’t know the rationale of organic linkage between MS and MVS. They know that SERP is giving funds through MS to MVS promoted by Commitments. The MS office bearers are of the opinion that MVS attends MS meeting every month because fund is routed through MS. MS is not aware of its role and responsibilities towards MVS and Vice-versa. 4 Mandal Vikalangula Samakhya (MVS) The study team met seven MVS office bearers of Kosgi and Dharoor mandals. The Office bearers of MVS meet once in a month but they have no understanding on the governing aspects of MVS. The study team observed poor attendance of members in meeting (16 out of 41 members). They formed into a Mandal Samakhya mainly to avail benefits from government. The MVS members listed the activities of MVS as i) identification of persons with disabilities, ii) Information on various welfare & development programmes especially related to PWDs, iii) rehabilitation activities, iv) nutrition programme, v) participation in NREGS, vi) formation and strengthening of SHGs, and vii) credit linkage for of livelihood promotion, viii) organizing awareness and medical camps, ix) scholarships to children, x) insurance activities. To improve the functional literacy of Office bearers of MVS, Commitments has organized exposure visits to other federations. Except exposure visits no other 16 training has been provided to this group on group functioning, institutional building, financial management, book keeping etc. The Office bearers of MVS don’t have even the minimal knowledge about the financial aspects of MVS. The Project Coordinator of Commitments decides all activities of MVS. 5 Our Comments on Institutional Building Most of the persons with disabilities (PWD) are mobilized and organized into self help groups (Vikalangula Sangam), and federated as Vikalangula Samakhya at Mandal level and BISA Committee at cluster level. Parents of persons with disabilities have been brought together under Sahajeevana Sangams. Bringing these people together as a group is a significant contribution of Commitments. Development of a cadre of human resources (Resource team, Community Social Workers and CBR Activists) with some skills to work with the target group at village level should be appreciated. Functioning of majority of SHGs are poor in quality – irregular meetings & savings, poor book keeping, misuse of group funds and of CIF, domination of male members and influential members in the group. This needs to be looked into by Commitments. The staff of Commitments have strong linkage with the target group, more than the leaders of community based organizations and Activists at the village level. In other words, the bondage within SHGs, MVS, BISA and SJS are due to the active involvement of staff of Commitments. Though the work of staff to be appreciated, this is not viable in the long run as the staff may leave and there would be a vacuum. Only few members or the office bearers know about some of the services that MVS, BISA, SJS is providing to their members. Most of them do not know their specific role and responsibilities as members of these committees. This is also a serious matter as Commitments expects these groups to take on more responsibilities in future. Something needs to be done soon to change this situation. There is not much focus on institutional strengthening. Very limited capacity building trainings to the office bearers of MVS, SJS and BISA on their institutions and their roles and responsibilities have been given. Though there is an organic link between MS and MVS, office bearers of organizations, and the staffs (workers) are not clear on the linkage, roles and responsibilities and accountability. This unclear situation has created confusion and a sense of frustration among the staff (especially the Com. Social workers) as they are not clear if they are workers of Commitments or of MS or MVS. This needs to be looked into and clarified to them. 17 Chapter-4: CBR, Education, Livelihood & Rehabilitation Needs 1 Neighbourhood Centers Neighbourhood centers are like pre-school nursery where children with severe disability or children of parents who go to work and other non-disabled children come for the day. These children get an opportunity to play and learn to interact with others. The two centers the team visited were lively with children and it has given an opportunity for the neighbours to become aware about disability and related issues. The parents and the neighbours appreciate the usefulness and the work of the center. 2 Sahajeevana Sangam (SJS) / Parents Association for severely disabled During interactions with the Sahajeevana Sangams, the parents explained the purpose of it as to learn about physiotherapy and speech therapy and to link with service providers. There are 38 members (parents) in SJS of Daulathabad. They joined SJS to i) share their problems and to get mutual support, ii) get advise on possible solutions and iii) access services for improving their children’s health and rehabilitation needs. In response to a question about governing aspects of SJS no one from Parents Association including its office bearers, was able to explain the purpose and functions of SJS. However, they are happy that they have benefited from SJS in multiple ways such as i) training on physiotherapy to the parents, ii) training to prepare their children be self-reliant, iii) training on nutrition, iv) place of assessing the improvement in health condition of their children and further steps to be followed in therapy activities, v) learning from the experiences of other parents etc. The SJS members have listed the problems as i) ill-treatment to children with disabilities in schools, ii) transportation problems to attend SJS meeting with 18 severe MR and CP children, especially with grown up children, iii) absence of physiotherapy activists at village level- not attending to their duties and inadequate skills, iv) poor attendance of parents to SJS meetings (15 to 20 out 38 members). With regard to expectations of parents from SJS, the members have listed them as i) income generation activities to parents, ii) opening of residential schools exclusively for the disabled, iii) neighborhood center at village level, iv) continuous support of Commitments in linking with service providers. After two hours of discussions with SJS members, the evaluation team learned that the SJS members have very less understanding on the governing aspects of SJS, roles and responsibilities of the office bearers. Members are of opinion that SJS is the best source in their vicinity to access rehabilitation services; members are more concerned about the quality and quantity of services rather than the functional aspects of SJS; and mostly these institutions are staff centered. Commitments has highly succeeded in providing trainings on therapy services through SJS than strengthening SJS as community owned and community managed institution. 3 Visits to Individual Beneficiaries a) Venkatesh- Mentally Retarded: Venkatesh is 10 years old. His parents who belong to scheduled caste primarily depend on agriculture and labour. They have a daughter studying in class 7th and Venkatesh with mental retardation. His parents are members of Sahajeevana Sangam. The parents said they have benefited from Commitments in many ways such as i) developed physiotherapy tool kit with indigenous materials, ii) training on physiotherapy, iii) monthly food bill under nutrition programme, and iv) got information on national trust act. They attend Sahajeevana Sangam regularly to acquaint with new physiotherapy techniques and to get feedback on the progress of their boy. The parents also said that due to the combined efforts of SHGs, SJSs, parents and staff, there is lot of improvement in the boy managing his affairs such as eating, bathing, brushing teeth, communication, wearing dress, etc. However, they have expressed some uneasiness on delay in payment of food bills, and feel an increased amount would be helpful! b) Prakash -MR & CP: is 26 year old member of SHG of PWDs, living in Sarjakhanpet village of Kosgi Mandal. He has a married sister and a widowed mother who primarily depend on weaving and labour. The 19 physiotherapy team of Commitments has provided good amount of training to him as well as his family members on physiotherapy with indigenous materials. As a result, now, he is collecting goods from Kirana shops, and is able to take care of himself like bathing, brushing, wearing clothes, etc. c) Polepalli Ramesh is 48 years old unmarried member of Vikalangula Sangam in Polepalli village. In the year 1987 while working on an electric pole his lower limbs got paralyzed due to electric shock. He has undergone treatment and got some relief. He got a tricycle from Commitments through Vikalangula Sangam. He said Commitments has helped him in many ways- in getting ‘Disability Certificate’ ‘Pension for Disabled’ and ‘Tricycle’. The SHG has given a loan to expand the Kirana shop which he is running with the help of his mother. He borrowed CIF loan of Rs. 10,000 and repaid it on time. He is earning on an average of Rs. 100 per day and pension for the disabled of Rs. 500 per month. His mother is worried much about his son’s future after her death. It could be one of the future areas of work for Commitments. d) Pakirappa – MR and Cerebral Palsy: is a 11 year old boy, a member of Swayam Krushi Vikalangula Sangam of Meerjapur. He has mild mental retardation and cerebral palsy. He is the only child to their parents. They have one acre of wet and two acres of dry land. They depend on agriculture. The parents said they have benefited from Commitments in many ways- i) training on physiotherapy, ii) getting milk and eggs under nutrition programme, iii) training on speech therapy, and iv) learning material provided by Lillian Foundation through Commitments. He goes to Anganwadi Centre on and off. The evaluation team observed that the materials supplied by the donors reached the beneficiaries, and being used. Follow up support is given by staff through Sahajeevana Sangams. They raised the issue that physiotherapy services are available only at Sahajeevana Sangam but not at village level. The parents feel there is an improvement in the health condition (to communicate, to take food oh his own), but it is very slow and long. They are also worried about his future after their demise. e) Mentally ill persons: The team visited more than 20 members in Dondavaripalli village of Dharoor Mandal. The team interacted with the following persons who are mentally ill. Name Profile Reasons Mr. Edanna Married, age 30 years Financial crisis, credits Mr. Ramakrishna Married, aged 35 years Financial crisis credits, 20 wife neglected him Narasamma Married, aged 25 years, deserted, living with parents Husband’s extra marital relations Sankaramma Married, aged 30 years, deserted, living with parents Husband’s extra marital relations These persons benefited with the support of SHGs and Commitments a) in accessing medical services from both private and Govt hospitals, b) meeting the medical and travel expenses and c) regular follow up. The members reported that there is a lot of improvement in their health. Now they are not pelting stones, fighting with others, walking naked in the streets, talking to themselves etc. The study team observed that improvement is the result of continuous effort of Coordinators and Social Workers. 4 Inclusive Education for Disabled (IED Programme) By interacting with the Mandal Educational Officer (MEO) to know about implementation of Inclusive Education for Disabled (IED), it was noted that they are aware of Commitments’ involvement in the IED programme. The Community Coordinator responsible for IED programme organizes one day training every year to all the teachers and he/she attends the class once a week. The officer also commented that Coordinator’s frequency of visits to school in a month has decreased (not even once in a month) in last one year. He is aware of the rights and entitlements of persons with disabilities and about the Acts related to them. The study team visited the Upper Primary School, Dharoor Mandal. Five PWDs are enrolled in the school. Commitment has appointed one IED Activist under IED programme. The Coordinator visits once a week or 10 days to provide necessary support to IED activist, teachers and the students. During interaction with the regular teachers and Head Master, they said that as a result of IED programme there is no dropout of children with disability. 5 Central Primary School The team visited a Central Primary School, and interacted with the teachers to know about the Inclusive Education for the Disabled Programme (IED). Of the four children with disabilities enrolled in the school, two are hearing impaired; one is blind; and the fourth is with hunch back. The IED teacher visits the school regularly once a week to help the pupils and the teacher. The school administration has taken certain measures for the benefit of these students i) seating arrangement in the first row, ii) support in getting disability certificate from the authorities, iii) given information on scholarships, iv) given uniform, v) awareness on rights and entitlements of disabled among regular 21 students, vi) construction of ramps. Of the four students, only one has got scholarship of Rs. 750 per annum. The teacher informed that the IED teacher visits the school regularly and his activities are confined to supporting these children to learn. The teachers don’t have an understanding on the concepts of ‘inclusive’ and ‘integrated’ education. However, teachers do know something about the rights of Persons with Disabilities. 6 Livelihood Interventions a) Swetha- Speech impaired is a seven year old girl studying 2nd class in Eezpur village of Kosgi mandal. She has an elder brother, studying 6th class. She has difficulties in speaking from the past five years. She has undergone an operation for which Commitment assisted through Sahajeevana Sangam. The group also gave a loan of Rs. 10,000 to Swetha’s mother to buy a sewing machine. She attends SJS meetings every month to know the improvement and to know new techniques or the inputs from the speech therapist. Swetha’s parents felt that improvement of their daughter’s speech is the outcome of cooperation from the group, Commitment and SJS members. The family has been supported through rehabilitation services and by giving a loan for livelihood activity. The SHG, MVS and SJS have played a critical role in delivering services which are normally difficult to get as an individual. The parents recognized tangible benefits from groups and their institutions and the parents too have cooperated well. b) Ramulu is 40 year old married man who depends on agriculture and labour. He has 3 acres of dry land. He lost a leg in an accident. He joined Vikalangula Sangam promoted by the Commitments, and got crunches. He attended a training on basket weaving organized by DRDA and later took a loan of Rs. 10,000 from SHG under community investment fund (CIF) for basket weaving and lighting arrangement for marriages and other occasions. He earns about Rs. 2000 per month, and also gets an amount as a community resource person. Though he lost his leg, by becoming a member of Vikalangula Sangam, and with the help of Commitment, he is supporting his family and also supports others as a community resource person. c) Padma - Rehabilitation and Livelihoods: Padma is an unmarried member of Adharsa SHG, formed in the year 2000. She is affected with polio. She has four brothers and they have opened a small Kirana shop for her. She is also working in the ICDS center. She learnt tailoring and took a loan of Rs. 18,000 from SHG. She bought one sewing machine and the remaining invested on the Kirana shop. Commitments has played a key role in getting her calipers and sanctioning CIF to Adarsha SHG. During non-ICDS working hours she manages the Kirana shop and tailoring work. She earns Rs. 50 per day on 22 tailoring; Rs. 2000 from ICDS; and Rs. 50-100 from Kirana shop. On an average she is getting Rs. 3,000 to 4,000 per month. With support from her brothers and Commitment she is earning a regular income. 7 Our Comments on C B R - Education, Livelihood & Rehabilitation Needs Most persons with disabilities joined the groups primarily to get rehabilitation services and to avail benefits and entitlements meant for them from the government. In this regard, Commitments has been highly successful in meeting the expectations of group members. The families, the local government officials and all others we interacted with were very appreciative of the work of Commitments staff. The staff members too felt quite satisfied with the efforts they have put in to assist these persons. Of all the CBOs at mandal level, Sahajeevana Sangam/ Parents associations are playing a significant role in raising awareness and building the capacity of the community in the form of training in physiotherapy, sharing of problems, review of progress, indigenous material development, etc. As there is better cooperation and demand from the parents for rehabilitation services, all the team members, irrespective of their work plan, concentrate on rehabilitation activities than on institutional strengthening, livelihoods, education or advocacy. As a result, rather than facilitating the institutions to be self managed, owned and controlled by its members, the staff seem to have became the ‘doers’. The requirements of persons with severe disabilities need to be looked into. The groups (including the parents) as well as the staff are not sure on their rehabilitation needs, except the therapy aspect. Commitments should take up this matter as those with severe disabilities are quite left out, though the parents have got some support for livelihood activities. Education Neighbourhood centers have played a positive role in building the confidence and getting skills in managing their own affair among children with disabilities and the parents. As stated earlier, these are managed mainly by the staff of Commitments and there is less involvement from the members of the Associations promoted. The project has raised awareness related to children’s rights and entitlements among the teachers; and has had positive impact on enrollment, retention of these children in school. The role played by IED teachers is appreciated, and their continued engagement should be ensured through regular visits by the workers. Reason for the decrease in regularity of visit by the Coordinator to schools needs to be looked into. Is it a conscious decision by Commitments? or pressure of other work? Such visits indicate the interest and concern of the organization in education and in out opinion this would help in 23 maintaining the relationship with the authorities and would also act as a check on the system. This should be reviewed. Livelihood The livelihood activities are mainly centered on credit access to PWDs, especially on mobilization of community investment fund (CIF) from SERP and SHG-Bank Linkage programme. This is a positive step as such linkage of people with formal institutions would sustain the process initiated. Presently much of such linkage work seems to be done by the staff / workers. Though information and input on such linkages have been given to SHGs and MVS members, building their confidence and capacity to approach these institutions would help in the long run. There is high demand from the parents for credit. Majority of the groups have not been accessed to SHG - Bank Linkage, which is one of the largest programmes of financial institution. There is no focus on skill development of PWDs and /or of their parents to take up some new income generation activity. Support is extended mostly in the form of credit under CIF to individuals who are already engaged a small Kirana shop or in some other income generation activity to extend it further. Commitment should consider linkage with the training centers in the region for placement of young persons with disabilities to learn a skill. This would be a better approach instead of setting up something on its own. The logistics and cost of placement for such training needs to be worked out. This approach has been practiced successfully by several NGOs. 24 Chapter-5: Advocacy and Rights 1 The Commitments Mission and Approach The Mission of Commitments is to `enable the poor and disadvantaged communities to perceive possibilities for change and bring about desired change by exercising informed choices through collective action’. The two main words in this are `to perceive possibilities for change’ and `through collective action.’ Commitments is focusing on both of these in its programmes by building groups (SHGs and MVS) to discuss issues and to take collective action. This is an important strategy to advocate for the rights of PWDs and to take up issues of inclusion and non-discrimination. This is approach is working well to some extent, in the sense that groups of persons with disabilities have been formed and many of them also meet regularly to discuss the issues. However, their understanding of rights and about non-discrimination stops at receiving benefits and entitlements i.e., bus pass, pension, aids and appliances, scholarship etc. from the government. Here too, much of this work is done by the workers with little active involvement from members. There are exceptions of course as we met few individuals who were quite well informed and vocal in their expression. Then they are too few in some select groups. In the observation of the team, though SHGs, MVS, and BISA Committees have been formed (functioning of these groups are stated above under Institution building), their knowledge on the Disability Act, rights and their capability to take up issues with authorities concerned is far from satisfactory. Almost no one had heard of UNCRPD !! 2 MGNREGS- Intervention at Marlabeedu Village The team interacted with some members of Vikalangula Sangams who participated in NREGS work in Marlabeedu village of Dharoor Mandal to understand how far they have benefited from this activity. In Marlabeedu village, 34 PWDs are Job Card holders, and all of them participated in NREGS activities at the beginning; but now only 20 members are attending because - a) work location is far from the village, b) work is hard and many members are severely disabled, d) not so severe disabled members are not willing to work with the severely disabled and lose their earning. The nature of work taken up by PWDs under NREGS includes a) land leveling, b) jungle cutting, c) tank bunding etc. In the earlier years on an average PWDs got 108 days of work; and during last year, they got only 80-90 days of 25 work. This year, they got work for only 30 -35 days. The members have reported the problems as i) not assigned any work from past 3 months, ii) low wages – Rs. 40-50 per day, iii) No continuous work, iv) too much delay in disbursing the amount, vi) Field Officers not responding properly to the request and complaints of PWDs. In conclusion, though NREGS was started with high intentions, in practice the effect of changes it has created in the lives of PWDs is minimal due to many lapses in implementation of the programme. 3 Our Comments on Advocacy Work The team observed two things while interacting with the community – first, Commitments has built self confidence among PWDs; and secondly, they have also succeeded in getting the support of PWDs and their parents by involving them and the community in the process of addressing their needs. Due to advocacy there is improved coordination between CBOs and various service providers i.e., in private and government hospitals, at the government offices at mandal and district levels and with panchayat members. Their requests for support and interventions in terms of needs and in getting entitlements are honoured without much difficulty. As stated earlier, much of the liaison work with these officials are done by the workers. Few members of the groups are also active and engage themselves actively, but this number is too small to claim that they have done it by themselves. The level of awareness among members on the Disability Acts is very much limited to receiving the benefits and entitlements. There is almost no awareness on the rights, their responsibilities to access these rights, the discriminations faced or about being treated equally in society. Their demands and actions are as more `privileged’ persons to entitlements and benefits because of their disability! Getting engaged in NREGS is by advocacy, viewed as a right work and to have a livelihood. An important step in this is linking SHGs of PWDs with NREGS. Many PWDs were engaged in NREGS earlier and benefited from it, but it was reported that participation of PWDs in NREGS has decreased over a period of time due to various reasons. This needs to be looked into. 26 Chapter-6: Organizational Aspects- Process of Implementation and Monitoring 1 Interaction with staff members 1.1 Interaction with Coordinators The study team interacted with all the 8 Coordinators both at Kosgi and Gadwal independently to know their understanding on i) the vision & mission of Commitments, ii) roles and responsibilities, iii) capabilities, iv) issues and challenges and v) the wary forward. The Coordinators of Institution Building (IB), Physiotherapy (PT), Livelihoods (LH), Inclusive Education for Disabled (IED), Sponsorship Programme (SP), all have been associated with Commitments for past 2 to 4 years. Most of them are post graduates with some professional experience. Before joining Commitments, many of them had worked for Velugu Programme/ Indira Kranthi Patham (IKP) of SERP. According to the Coordinators, the purpose of Commitments is i) formation, strengthening and creating Models of SHG, Mandal Vikalangula Samakhya and Sahajeevana Sangam, ii) promotion of livelihoods, iii) providing community based rehabilitation services, iv) linking with donor and service providing agencies, v) creating awareness among PWDs and in the community on disability issues and their rights, vi) access to government programmes, vii) nutrition programme and inclusive education for children with disability (IED) programme. With regard to the activities of Commitment, the Coordinators listed them as i) conduct surveys on disability, ii)organize awareness programmes on disability, iii) inclusive education, iv) training on SHGs and federations, v) livelihoods promotion, vi) employment generation schemes and vii) linkages with various other organizations. The Coordinators listed their role and responsibilities as follows: Roles and Responsibilities Monitoring of SHG, MVS, SJS, NC Training on Disability Review of CBRA BISA-Review Meetings Trainings on physiotherapy/IED Coordination with other teams Support to Social Workers Translating letter/documentation IB Yes Yes Yes Yes Yes Yes Yes -- PT Yes Yes Yes Yes Yes Yes Yes -- Speech -Yes Yes -Yes Yes Yes -- SP Yes Yes Yes 27 Field visits with CSWs Hospital/Camps follow up Enrollment of students in schools Staff meeting Coordination of Social Workers Credit –CIF loans Trainings Years of association Education -Yes -Yes Yes Yes 3 4 PG -Yes -Yes Yes Yes 1 2 Degree -Yes Yes Yes Yes -Yes 1 PG Yes Yes 1 PG Training and Staff development for coordinators - All the Coordinators have attended two to three training programmes organized internally or by other organizations at district, state, national and international levels. These are on i) SHG concept, ii) book keeping, iii) physiotherapy, ii) NREGS, iii) Gender, iv) PRI & Elections, v) PWD Act 1995, vi) Mainstreaming of PWDs, vi) Early Interventions for prevention of disability, and vii) Kalajathas, Issues and Challenges- The Coordinators shared some of the issues and challenges they are faced with, such as i) there are no regular visits to SHGs, ii) multiple tasks and more work load, iii) very little focus on institution building and its strengthening, iv) 1500 children dropped due to non-continuation of speech therapy, v) less cooperation but high expectations from the community, vi) high turn over of IED activists, vii) less no. of visits to villages due to large operational area and multiple works, viii) no HR policy-no travel reimbursement, no phone bills, no increment, and few staff development programmes, ix) no fixed schedule and timings for staff meetings, x) no job security. They also shared that many SHGs have became defunct - no meetings, no savings/ credit, no book keeping and cooperation from community is also less. The evaluation team observed that all the coordinators are not much familiar with details of the programmes they are working for. Most of the coordinators are good at doing things than leading the team. They do not have much role clarity, and most of them do rehabilitation and follow up work, irrespective of their positions and specializations. The coordinators have less understanding on PWD Act, and do not know the difference between rights and entitlements of PWDs. 1.2 Interaction with Community Social Workers The study team has interacted with 15-20 Social Workers both at Kosgi and Gadwal Clusters. According to them the purpose of Commitments is to i) work with disabled poor, ii) protect the rights of PWDs, iii) raise awareness on disability issues among the rural poor, iv) promote livelihoods for the poor, 28 v) formation of groups with PWDs, vi) provide health services, vii) promote education, and viii) self development. The Social Workers listed their roles and responsibilities as i) identification /survey of PWDs, ii) formation of SHGs with PWDs, iii) providing information about service providers and government programmes, iv) support to Coordinators in the implementation of IED, Nutrition, institution building, awareness, sponsorship, NREGS programmes etc., vii) attend SHG, MVS, SJS meetings, review and staff meetings, viii) give training to activists, parents and community members. Most Community Social Workers have completed SSC and intermediate courses; and have 5-8 years of experience/ association with Commitments. All are from local area and several are with disability. Building the human resources by engaging local people as CSWs and Activists is one of the good interventions of Commitments, which has helped the organization as well as the Staff. Commitments has given training to CSWs during monthly staff meetings on various subjects. They suggested that in future Commitment should focus on livelihoods, IED and skills training of the disabled and non-disabled. The CSWs also had a list of grievances similar to the Coordinator’s and these need to be looked into by the management. 1.3 Interaction with Activists The study team interacted with a group of 19 activist (10 at Kosgi and 9 at Gadwal) to know their perception on Commitments work and their roles and responsibilities. Their roles & responsibilities: Activists listed their role as i) identification of persons with disability, ii) formation of SHGs, iii) book keeping, iv) ensure repayment of bank and CIF loans, v) support in organizing Kalajathas, vi) Information sharing with SHG, MVS, SW and Coordinator, vii) training on physiotherapy to parents and PWDs, viii) support in rehabilitation activities, ix) support in the preparation of bills. The Activists also raised many issues related to them and implementation of programmes at the gross root level. Their issues are mainly on receiving Rs. 500 per month as wages and not getting the travel expenses. The problems related to programmes were almost the same as those listed by the CSWs. The Activists also could not understand why they are not taken as CSWs and get better wages as they do as much work as CSWs. The team felt that this has not been explained properly to them by the organization. The Activists also got trained on various subjects along with CSWs and others. According to them, the activities relating to rehabilitation and education are 29 good compared to all other activities; and activities relating to institution building and strengthening are very inadequate. 2 About HR and systems Based on the interactions with staff, the study team has made some observations regarding the HR and systems being practiced in Commitments. Many staff members of Commitments have been associated with IKP in the past and this has been very useful in doing their work in the field. Most people are from local area and many have had long years of association with Commitment at all positions. This too is a good sign, showing gratification with what they do. Many are though not well qualified educationally, they seem to do well in the work. No HR policy in the organization. No service rules. Most of the things go by oral instructions or informal orders. This does not reflect well on HR system in the organization. No list of holidays or number of leave a staff is entitled to in a year. If any one wants leave, they can go with the permission of superiors. As an employee they can not demanded it as a right; most employees feel they have no right and they are dominated by the organization. There is no issuing of appointment/ contract letters, renewal of contracts, annual increment etc. Most have not seen or received a letter of appointment. Interestingly when the team asked the Project Director regarding this he said that these letter have been issued but we were not shown any despite asking. There is no job description for the staff at all levels; consequentially there is a lot of confusion, they get multiple tasks and raised the feeling of work burden among many staff members. 3 Interaction with Other stake holders 3.1 Indira Kranthi Patham (IKP): The discussion with Sudhakar was useful. He stated that IKP has received very positive feedback from their field staff on the work of Commitments especially on fulfilling rehabilitation needs, and they are very appreciative of the efforts put in by the staff. He hoped that Commitments would become a Resource and Training Institute for the State as IKP is planning to extend the `social mobilization approach ‘of Commitments to all the districts in the State. He further stated that Rehabilitation Council of India is keen to encourage other States to follow this model of working in the field. 30 The team would like to comment that thought the approach is comprehensive and engages the community and the affected group, the aspects of institutional building, advocacy, and management issues need to be sorted out before this approach is recommended to others and showcase Commitments as a `model’. 3.2 Mandal Development Authorities The study team interacted with the Mandal Development Officers (MDO) of Daulathabad and Dharoor Mandals to know their understanding on the rights and entitlements of PWDs, Disability Acts, its implementation, and opinion on the programmes being implemented by Commitments. The MDO shared the details of the programmes being implemented relating to PWDs as i) Pension of Rs. 500 each given to 250 PWDs, ii) 10 income generation schemes with 50% subsidy, iii) medical camps conducted at mandal level to issue certificates, iv) work under NREGS- easy works with 30% additional amount, v) awareness programmes on disability and its causes etc. Further, they also mentioned that there is no proper data base on PWDs at mandal level. They highlighted how they have collaborated or organized jointly various events such as a) awareness programmes, b) medical camps, c) information sharing, d) implementation of development programmes, e) identification target beneficiaries for various government programmes. 3.3 Community - Surpanch Ms. Padmavathi, the Surpanch of Sarjakhanpet, Kosgi Mandal mentioned the entitlements meant for PWDs in the village as 37 pensions for PWDs been given and another 15 applications submitted for sanction; sanctioned 12 houses to PWD under Indiramma Housing Programme; allotment of NREGS work to SHGs of PWDs, and organizing the International Disability Day. With regard to the activities of Commitments, she stated that the impact on the livelihoods of PWDs is minimal. However, she said that organizing PWDs into groups has created unity among them, and they got and awareness on their rights and entitlements through Kalajathas organized periodically. We wish to comment that the MDO and the Surpanch are entitled to their views which may be based on some feedback they got from the field. Overall both offices are very appreciative of the work done by Commitments which is supplementing their efforts. Whether they agree or not, the work of Commitments is adding credit to their office indirectly, as local people do not differentiate the work of Commitments and that of IKP, which are intertwined. 4 Our Comments on Organizational implementation & monitoring Aspects- Programme Most of the Staff members have the experience of working with Velugu and many years of experience of working in the field; though few have 31 the required qualifications but that is not an issue. Most are from local area, which is advantageous. Majority of the coordinator have moderate understanding on the organizational vision, mission, programmes and the activities. Despite many training undergone, staff members have moderate capacity to discharge their roles and responsibilities. This has affected their ability to monitor the progress of the programmes, At field level, every thing is done on oral instructions. When things go wrong the lower staff are blamed. Most do not know the systems in the organization. Insecurity and confusion among the staff- whether they are employees of Commitments, SERP or MVS (the Federations) and about their future. This feeling is especially among the Social Workers. Activists have almost stopped attending the SHGs or any doing other work due to wage dispute. Most staff members stated that not having service rules i.e., they are not aware of the facilities in terms of leave, allowances or other terms of employment. Most have not received their letter of appointment, though salaries have been received regularly. Some have received the letters but it is in English, which they cannot read! This way of functioning seems odd for an organization working for the rights of marginalized groups. As has been stated by several management gurus, `Many organizations sermon about rights and direct them at others, but do not practice themselves’. This seems to be the case in Commitments. The Management rectifying this situation will improve the feeling of responsibility and satisfaction among the staff which is important to develop in the organization. Every decision regarding programme implementation is made by the Project Director. Though there is line management in the organization, the Coordinators for example stated that they do not have the authority to take decisions even on small matters. Every decision however trivial has to be approved by the Project Director. In our opinion this does not seem like a good practice to be followed in an organization. Though the staff seem to be doing good work in the field which is much appreciated by the community, families and other government officials we met, their issues are not related to their work or the programme but on management and regarding their employment. This is an urgent matter for the Trustees to look into, sooner the better. Finally, the staff were appreciative of our interactions with them, which gave them an opportunity to vent their feelings and grievances. 32 SECTION-III: LESSONS AND RECOMMENDATIONS 33 Chapter-7: Lessons and Recommendations 1 Learning Lessons learnt and recommendations on each section of the programme – Institutional Building; CBR – Education, Livelihood and Rehabilitation needs; Advocacy and Rights; and on the Organizational aspects – Programme implementation & monitoring are given under each of those sections as `Our Comments’. Therefore we have not repeated them here. The positive aspects of the programme and the shortcomings are pointed out. In some places the recommendations are in the form of pointing out where some action is required to be taken with some urgency in some aspects, by the Trustees/ organization. We recommend that these are looked into and actions taken as appropriate. We would like to state once again that Commitments has done good work in a poor area where the services to people, especially to PWDs are not easily available. The workers have and are continuing to do good work with the community. With certain improvements suggested in this report, the workers can do much more to the benefit of people. Two important aspects that need to be focused are to strengthen Institutional building, through which the advocacy work can be furthered. Secondly, in the organizational aspects, the specific shortcomings stated on which the Trustees need to take further action. We also would like to refer to the document `SWOT Analysis’ done by Dr Mohan Raj (?) in 2008, copy of which is attached as annexure. Going through that report, we note that from the observations made by him, many are still valid. He too has recommended that the Institutional work be strengthened and organizational matters be clarified and sorted out. We feel that though there are some changes for the better in the programme aspects, not much seems to have been done on the organizational matters. This is urgent and important as Commitments should not lose the staff due to such an ambiguous situation. 2 Conclusion The above are our observations from the field visits. Though some of them reflect the short comings in the project, mainly in the aspects of management, it must be stated that the work of Commitments has benefited a large number of persons with disabilities and their families in the rural areas to a great extent. This is acknowledged by persons with disabilities, the families, community and the govt. officials we met. 34 The above points have been stated since this is being reported to the trustees, who can take / recommend actions to rectify them to reach the objective of the organization. The work of Commitments is done largely by the workers in the field, hence their feelings and feedback must be listened to by the organization and the decision makers. In terms of future perspective, we note that such an exercise was done in 2008 and a report is available. We suggest such an exercise be done once again with the assistance of a resource person, by involving the staff, beneficiaries and the Trustees. This exercise needs to be planned carefully in which four aspects / measures should be looked at - the Financial perspective; Internal organization perspective (the strengths of the organization); Customer (beneficiaries) perspective and Innovation and learning perspective. This method is adapted from `The Balanced Scorecard’ by Robert Kaplan and David Norton which has been used by those engaged in business, but it is applicable to the working of organizations too. A paper on this is attached which explains this further. 35 ANNEXURES 36 Annexure 1: List of Persons Interacted by the Evaluation Team List of Trustee, Commitments Mr. Yugandar, Mr. Gopal Rao, Mr. Rajasekhar, CEO, SERP, Hyderabad Mr. Sudhakar Reddy, SPM, SERP, Hyderabad Mr. C.S.Reddy, CEO, APMAS, Hyderabad, Mr. Anjaiah, Mr. Venkateswarulu, Mr. Vengal Reddy, Chief Executive Officer, Commitments Mr. Gangadar, Managing Trustee, Commitments Project Director/Manager Mr. Krishna Murthy, Project Director, Commitments Mr. Venkata Rao, Project Manager, Gadwal Cluster Coordinators Mr. Nandaiah, Institution Building- Coordinator Kosgi Cluster Mr. Kesavulu, Physiotherapy-Coordinator, Kosgi Cluster Mr. Sreenivasulu, Speech Coordinator, Gadwal Cluster Mr. M. laxmaiah, Sponsorship Programme Coordinator, Gadwal Cluster Mr. Ananthaiah, Institution Building Coordinator, Gadwal Cluster Mr. Gnanendrachari, CB Coordinator, Gadwal Cluster Social Workers Kosgi Cluster- Ms. Monamma, Ms. Mogulamma, Mr. Azeez, Mr. Vijay Kurmar, Ms. Shantha, Ms. Jayamma, Ms. Balakishtamma, Ms. Ananthamma, Mr. Mogilaiah, Mr. Narsireddy. Gadwal Cluster- Mr. Sivakumar, Mr. Raju, Mr. Sekhar, Mr. Nagya Naik, Mrs. Thimmakka, Mrs. Veeramma, Mr. Ranganna, Mr. Chandposha, Mr. Patrulu Officials other than Commitments Mr. Chandrakanth Reddy, Project Director, IKP, Mahaboobnagar District, Mrs. Venkatamma, Mandal Development Officer, Mr. Mohmmad Alyas, Madal Development Officer, Daulathabad, Mr. Buggappa, HM, Central Primary School, Sarjakhanpet, Kosgi Mandal Mr. Kondanna, MEO, Kosgi Mandal Mr. Rajashekaraiah, UP School, Maddelabanda, Maldakal Mandal Individual Beneficiaries Baby Swetha,Ezeepur, Kosgi Master venkatesh, Ezeepur, Kosgi Mandal Mr. Ramulu, Sarjakhanpet, Kosgi Mandal Ms. Padma, Sarjakhanpet, Kosgi Mandal 37 Mr. Prakash, Sarjakhanpet, Kosgi mandal Mr. Ramesh, Polepalli, Bommarasipet Mandal Master Pakirappa, Meerjapur, Kosgi Mandal Baby Narasamma, Mannapuram, Mr. Edanna, Maddelabanda, Maldakal Mandal Mr. Ramakrishna, Maddelabanda, Maldakal Mandal Mr. Narasamma, Maddelabanda, Maldakal Mandal Ms. Sankaramma, Maddelabanda, Maldakal Mandal Federations of Vikalangula Sangams Office Bearers, BISA Committee, Kosgi Clusters Office Bearers, BISA Committee, Gadwal Cluster Members of MVS, Dharoor Mandal, Gadwal Cluster Members of MVS, Kosgi Mandal, Kosgi Cluster Members of MMS, Kosgi Mandal, Kosgi Cluster Members of MMS, Maldakal, Gadwal Cluster Members of Sahajeevana Sangam, Daulathabad Mandal, Kosgi Cluster Vikalangula Sangams/SHGs Priyadarshini SHG, Sarjakhanpet, Kosgi Mandal, Adharsa SHGs, Sarjakhanpet, Kosgi Mandal Saraswathi SHG, Polepalli, Bommarasipet Mandal Saraswathi SHG, Dorepalli, Daulathabad Mandal Siva SHG, Maddelabanda, Maldakal Mandal Anjaneya SHG, Maddelabanda, Maldakal Mandal SHGs, Marlabeedu, Dharoor Mandal 38 Annexure 2: List of questions asked to PWDs and Disability Advocacy groups 1. What do you know about disabilities/ and type of disabilities? 2. What kind of restrictions they have due to their impairment? 3. What do you think can be done to help PWDs overcome the restrictions? 4. What are the difficulties in accessibility? 5. What are the rights of PWDs? Are these the same as non disabled persons? 6. What benefits do they get from the government? 7. What are the medical needs of PWDs? Are medical services easily available? 8. What are PWD’s needs for their rehabilitation support? 9. What do you do when they ask for medical services? 10. Are there severely disabled persons in your area? 11. What do you know about their (severely disabled) rehabilitation needs? How are they covered? 12. What training did you get on disability? Are you able to identify PWDs easily after training? 13. What are the rights of persons with disabilities? How much are they able to exercise their rights? 14. How do PWDs travel to PHCs and district hospitals? Are buses accessible? 15. What do you know about Disability Act and the recent UNCRPD? 16. Are PWDs able to access the reservations as given to them in the Disability Act? 17. Are PWDs able to get the benefits and concessions easily? 18. What do you know about this project implemented by Commitments? What is your understanding and impressions? 19. Any suggestions to make this project more efficient and to be able to reach all PWDs? Note: Questions were asked according to the situation, and not all questions were asked to all the groups. 39 Annexure 3: SWOT on Commitments as in July 2008 Strengths 1. Establishment of a functional channel for delivery of welfare and services from State to PWDs 2. Establishment of ‘Mandal Vikalangula Sangham’ as a satellite identity of the Mahila Samayka to implement the activities and statutory provisions for rehab of PWDs under the provisions of MS and Velugu program of the State. 3. Activities of ‘Commitments’ meeting the rehabilitation needs of PWDS through Government schemes and provisions. MVS working as the statutory forum of ‘Commitments’ as per the prescriptions and mandatory of the Velugu program 4. Formation phase of ‘Commitment’ in the program of cycle of formation, formalization and consolidation completed successfully Weaknesses 1. Absence of perspectives and progression towards holistic development of the community of PWDs. Absence of ‘vision’ for development in a holistic perspective 2. Culture of dependence. Dependence of Commitments on Govt provisions and schemes, Mahila Samakya and Government resource provision. Dependence of MVS on Commitments. Absence of perspectives for long term, sustainability, growth and, ‘time and change’ 3. Absence of the process to address the developmental needs of the community of PWDs. Absence of identity of MVS as a community based organization with vision- mission and objectives defined for it. 4. In the absence of planned organizational preparatory for transition from formation to formalization and succeeding consolidation, indefinite continuation of the formation with consequence of ‘ diminishing returns’: Reduction in proportion of input- output and impact. Opportunities 1. Developmental perspectives for ‘inclusion’ of PWDs as a community through rights based programmatic approach 2. Scope for sustainability, growth and self reliance through structural relationship between ‘Commitments’ and the CBOs as individual organizations based on consensus of vision and negotiated development partnership 40 3. Change from the ‘activity and project mode based on references to Government schemes’ to ‘ developmental program mode based on universal measurable and indicators for development and quality of life in the market society’ 4. Planned conclusion of the formation phase of ‘Commitments’. Formal transition into succeeding phase of formalization and consolidation as a policy decision of ‘Commitments’ Conditionality to utilize the identified opportunities 1. Organizational and programmatic reformulation of Commitments 2. Partner relationship between ‘Commitments’ and its CBO identities (MVS) based on role division and transition of role on program cycle of: formation, formalization and consolidation 3. Consolidation of the activity path of ‘Commitments in the present mode’ with 2008. Work on a new base line and bench marks from 2009. Organizational and programmatic reformulation of ‘Commitments’ for 2009-2012. 4. Impact evaluation of ‘Commitments’ ending 2008: Summative evaluation of the formation phase. Re statement of Vision and mission: Perspective plan development for the formation phase to be implemented during 2009-2012. Strategic plan to implement the perspective plan. Organizational renewal of ‘Commitments’ for its formalization phase 41