Sheets bijeenkomst 14 mei 2004 Wetenschappelijke situatie 1987: frustration at the limitations of the data and the poor methodology of those studies available1 - subjectief vs psychometric measurement ‘Research to date has not focused on psychometric measurement but instead has relied almost entirely upon subjective reactions’2 1992: there is now virtually no disagreement among researchers that some woman experience negative psychological reactions postabortion. Instead, the disagreement concerns the following3: the prevalence of woman who have these experiences the severity of these negative reactions the definition of what severity of negative reactions constitutes a public health or mental health problem the classification of severe problems Hoe komt dit? Wetenschappelijke moeilijkheden Among other complications4: 1. The cooperation of the study population is inconsistent and unreliable 2. The variety of negative reactions reported by women is so broad that it is impossible to encompass every claimed dysfunction in a single study 3. The intensity of many reactions appears to be time variant, with many women reporting delayed reactions 4. The use of questionnaires and other standardized survey instruments may be inadequate for uncovering deep-seated reactions 1 Rue et al., 1987, 16 Barnard, 1991 15 3 Wilmoth, 1992 in Reardon, 1997 34 4 Reardon, 1997 34 2 Ad 1: inconsistent and unreliable study population Bias (attrition) Various studies have shown that women for whom the abortion was more stressful are less likely to participate in a study5; ‘women who are more likely to find the abortion experience stressful may be underrepresented in volunteer samples’ 6 (Of the random sample of 984 woman who had abortions during 1984-1986 Baltimore, Maryland metropolitan, only 160 could be contacted 3-5 years later and only 80 completed and returned the questionnaire)7 Causes: - Repression, Shame, Grief Bij abortus blijkt responspercentage heel laag te zijn. Verklaring in de literatuur: vrouwen willen liever niet aan herinnerd worden8 ‘Of the 114 women, 11 refused to participate because ‘they feared the interview would stir up painful memories’ = 12%!9 Concealment In longitudinal and retrospective studies, approximately 50% of women who have had an abortion will conceal their pas abortion(s) from interviewers. Even in shortterm follow-up studies, there are high sample attrition rates, typically in the range of 20 to 60%10 Validiteit: hebben de antwoorden die je krijgt betrekking op de werkelijkheid? Social desirability 1993: Religie en Abortus (L.G.M. Spruit): meer dan de helft van de Nederlanders staan op levensbeschouwelijke gronden afwijzend tegenover abortus Rekening gehouden met feit dat onze mij de verdringing van deze gevoelens van (vaak existentieel ervaren) schuld in de hand werkt en dat als deze gevoelens verdrongen zijn, dat ze dan in een interview met een wildvreemde niet zo gemakkelijk geuit zullen worden?11 5 Adler, 1976 in AIRVSC, 1991, 15 Adler et al, 1990 in Speckhard & Rue, 1992, p.97 9; Rue et al., 1987 16 7 AIRVSC, 1991, 15 8 Van Luijn in verslag studiedag VBOK, 1993 29 9 Sachdev, 1993 in McGovern, 1993 6 10 Reardon, 1997 34 11 Studiedag VBOK, 1993 29 6 Ad 2: variety of negative reactions Multiple symptoms Tot nu toe in literatuur 40 tot 50 soorten negatieve psychische reacties op abortus gevonden. Exclusief sociale en lichamelijke gevolgen. ‘it appears likely that women experience a wide variety of psychological reactions to abortion’12 Classification e.g. “I am extremely depressed and emotionally upset”, one young woman told Prof. Sachdev. “I am sad and on the verge of tears right now because of having the abortion. I don’t feel unhappy for ending a life. I don’t condemn myself. I know I can start another life if I want to; I can go sleep with my boyfriend right now and get pregnant again. I’m sad that the whole thing had to have happened and that George had to go through with this. I still feel depressed and cry a lot, not for having an abortion, but for having to have one… Prof. Sachdev’s diagnosis: Her depression was not related to the fact that she had her pregnancy terminated. Turning to his table entitled Degrees of Guilt or Depressive Reactions as Reported by Seventy Women, Prof. Sachdev marked the young woman under the subtitle ‘none’13. Meetinstrumenten verschillend. De een noemt het een depressie, de ander niet. De een meet depressie of depressieve gevoelens met behulp van uitgebreide bestaande meetinstrumenten, schalen of hele vragenlijsten waar waar kruisjes gezet moeten worden. Andere onderzoekers stellen enkele open vragen over depressieve gevoelens14. Ad 3: time variance of intensity reactions ‘This pattern of delayed reaction has made it much more difficult to measure, evaluate, and define the problem’15. 12 Reardon, 1997 34 Sachdev, 1993 in McGovern, 1993 6 14 Van Luijn in verslag studiedag VBOK, 1993 29; Reardon, 1993 34 15 Franz, 1987 VII 13 Ad 4: inadequate research tools - Reardon: the effectiveness of standardized questionnaires has also been called into doubt, since these research instrument may be inadequate for uncovering repressed feelings16 - Kent: an initial reaction of emotional numbness may distort questionnaire based studies. He concluded that an underlying sense of loss and pain can only be reliably identified in a clinical setting17 - Petersen: diepte interviews18 - Glas: is onderzoek (NISSO) is in wetenschappelijke zin representatief, want wetenschappelijk aangepakt, maar is het ook representatief voor de toestand van de cliënt?19 (Ad)5: oorzaak-gevolg Is abortus gevolg van oorzaak stress/depressie, of stress/depressie gevolg van oorzaak abortus, of gevolg van oorzaak ongewenst zwangerzijn, of is ongewenst zwangerzijn gevolg van stress/depressie, etc. Opmerking Goed onderzoek probeert te achterhalen waarom vrouwen niet meedoen. Is bij NISSO onderzoek vrijwel niet bekend. Bij onderzoek naar ap-gevolgen echter WEL van belang! Vrouwen die wel meedoen een selectieve groep. Conclusion Furthermore, great care should be taken to avoid overgeneralizing findings or advocating a "majority rules" perspective. As an example of the latter, research reports showing that 15 to 20 percent of abortion patients experience certain negative reactions have been reported in the media as proof of the "fact" that "the majority of abortion patients" benefit from abortion or that "post-abortion trauma does not exist". Such interpretations improperly dismiss the suffering of the minority, neglect the limitations of the study population and methodology, and project the unsubstantiated conclusion that women who do not complain of a specific symptom within the time frame of a study must necessarily have benefited from their abortions. 16 Reardon, 1997 34 Kent, 1981 in Reardon, 1997 34 18 Petersen, 1987 31 19 Glas in verslag van studiedag VBOK, 1993 29 17