DRAFT AGENDA
July 8, 2009
Science AS Storytelling and
the Science OF Storytelling
Monday, August 3, 2009
11:00-5:00 pm
Registration
11:00-4:00 pm
Pre-Conference Workshops
11:00-12:30
Student and Faculty Development Orientation
Please meet
in the lobby
with your
name tag on.
The following Scholarship recipients will be transported to the PSU
Native American Student and Community Center.
Lobby
INVITATION
ONLY
AIRCH
AMGEN Scholars
Mayo Clinic Spirit of EAGLES
NCI Scholars
NWNARCH Scholars
1:00-4:00 pm
Human Research Protections Workshop
Rena Gill (Spokane)
Chairperson, 2007 Portland Area IHS IRB Committee Members
OPEN
SESSION
Ballroom
IHS Division of Planning, Evaluation and Research
Phillip L. Smith, MD, MPH (Dine’)
Director
and
Alan Trachtenberg, MD, MPH
Acting Research Director
Tom Weiser, MD, MPH
1:00-4:00 pm
Medical Epidemiologist, NPAIHB
NCI Scholarship Training: Writing and Planning
Community Based Participatory Research Proposals
Moderator: Srinivasan, Shobha, PhD
Health Disparities Research Coordinator
Division of Cancer Control and Population Sciences
National Cancer Institute
PI Perspective: June Strickland, PhD (Eastern Band
Cherokee)
Associate Professor, Psychosocial & Community Health
College of Nursing
University of Washington
Review Protocols and Issues to the Addressed: Michael
Martin, PhD (Cherokee)
Senior Scientific Advisor to the Director
NIH, Center for Scientific Review
Program/Funder Perspective: Jared Jobe, PhD (Cherokee)
Program Manager for Outreach and Recruitment
Division of Cancer Control and Population Sciences
National Cancer Institute
CLOSED
SESSION
1:00-4:00 pm
AMGEN Scholarship Training: Research Careers in
Diabetes
CLOSED
SESSION
Presenters/Mentors:
Moderator: Teshia Solomon, PhD (Choctaw)
Co-Director, Native American Research and Training Center
Assoc. Professor, Family and Community Medicine
University of Arizona
PI Perspective: June Strickland, PhD (Eastern Band
Cherokee)
Associate Professor, Psychosocial & Community Health
College of Nursing
University of Washington
Review Protocols and Issues to the Addressed: Michael
Martin, PhD (Cherokee)
Senior Scientific Advisor to the Director
NIH, Center for Scientific Review
Program/Funder Perspective: Jared Jobe, PhD (Cherokee)
Program Manager for Outreach and Recruitment
Division of Cancer Control and Population Sciences
National Cancer Institute
6:00-8:00 pm
Welcome Reception
Hosted by the Northwest Portland Area Indian Health Board
Entertainment
Notes
Ballroom
Science AS Storytelling
Tuesday, August 4, 2009
8:00-8:30 am
Blessing
8:30-9:00 am
Opening Remarks
Alison Ball, PhD, Confederated Tribes of Colville
Co-Chair, Native Research Network, Inc.
Introduction of Sponsors
Introduction of Planning Committee
Greetings from the Northwest Portland Area Indian Health Board
Northwest Portland Area Indian Health Board
Chair, Northwest Portland Area Indian Health Board
Greetings from the Indian Health Service
RADM Richard Church, PharmD, Ottawa
Director, Office of Public Health Support
Indian Health Service
9:00-9:50 am
Plenary Session
The Role of Research at the IHS
Moderator
Alison Ball, Colville Confederated Tribes
Co-Chair, Native Research Network, Inc
Yvette Roubideaux, MD, MPH, Rosebud Sioux
Director of Indian Health Service
10:15-10:30 am
Refreshment Break
10:30 - Noon
Science AS Storytelling
Moderator
Teshia G. Arambula Solomon, Choctaw
Past Co-Chair, NRN
Co-Director, NARTC
Alisa Gilbert, Tiwa
Director, Healthy Alaska Natives Foundation
Sean Muir,
Executive Director , The Healthy Aboriginal Network
Maile Taualii, PhD, MPH, Native Hawaiian
Director, Native Hawaiian Epidemiology Center, Papa Ola Lokahi
Noon-1:30 pm
Lunch on Your Own
1:30-3:00 pm
Plenary Session
Making the Turtle Fly, The Story of NARCH
Moderator
Philip L. Smith, MD, MPH Dine’
Indian Health Service
Clifton A. Poodry, Ph.D. Seneca
National Institute of General Medical Sciences
National Institutes of Health
Michael Trujillo, M.D., MPH, Laguna Pueblo
William Freeman, MD, MPH
Director of Tribal Community Health Programs
Human Protections Administrator
Northwest Indian College
Leo J. Nolan, St. Regis Mohawk – NY
Senior Policy Analyst - External Affairs
Office of the Director
Indian Health Service
3:00 – 3:15 pm
Refreshment Break
3:15 – 4:45 pm
Breakout Session I
1.1 – 1.4
Human Protections, Community Control and Specimen
Banks
Moderator
Maile Taualii
Ballroom
Ethical and Cultural Implications of Specimen Banking Among Alaska Native People:
Historical project informant interviews. Abbie Wolfe
Historical Experiences with Research: What Alaska Native People Bring Up When
Considering Specimen Banking Denise Dillard
Stories From the River: Using Metaphor to Examine how Yup'ik Eskimo Community
Members Comprehend Genetic Research Information Kathleen McGlone West
Collaborations and Partnerships
1.5 -1.8
Communication
Moderator
Participatory photomapping to understand environmental factors of health and well being
with Native youth. Derek Jennings
Visual Mapping in Qualitative Research: Using Pictures to Tell the Story. Emily Haozous
Using a mirror to tell a story: Writing in a way to inform people about cancer among
Alaska Natives. Diana Campbell
Commercial sexual exploitation of American Indian women and girls: Stories of an
invisible public health emergency. Alexandra (Sandi) Pierce
1.9 – 1.12
Chronic Disease
Moderator
Cherokee Experiences of Living with Type 2 Diabetes. Patricia Hamrick
Designing an Evaluation Plan for the Chronic Care Initiative Innovations in Planned Care
Collaborative. Nancy Kuchar
The Balance Study: A Holistic Intervention Model Developed to Reduce Cardiovascular
Disease in American Indians. Melanie Johnson
Incidence of Stroke in Alaska Native People Leslie Stephens
1.13 – 1.16
Youth
Moderator
Counseling with Street-Involved Native Youth in Canada: An Aboriginalizing Narrative
Inquiry Dana M. Brunanski
A Story of Success: Affirming the Importance of Community Defined Outcomes for Urban
Indian Youth Terry Cross
An Understanding of Cultural Protective Factors and Reasons for Living that Protect
Against Suicide with Young Adults in Yup'ik Villages in Rural Alaska through Storytelling
Tonie Marie Quaintance
Sharing stories: Childhood experiences of early childbearing Native American mothers.
Janelle Palacios
3:30- 4:30pm
Poster Sessions
3:30-4:30 pm
Closing Remarks
Alan Trachtenberg, MD, MPH
Research Director
Indian Health Service
5:30-7:30 pm
Native Research Network, Inc. Annual Membership Meeting
Ballroom
New Members Can Attend
Organization Mission - To provide a pro-active network of American Indian, Alaska Native, Native Hawaiian
and Canadian Aboriginal persons to promote and advocate for high quality research that is collaborative,
supportive and builds capacity and to promote an environment for research that operates on the principles of
integrity, respect, trust, ethics, cooperation and open communication in multi-disciplinary fields.
The Science OF Storytelling
Wednesday, August 5, 2009
8:00-8:30 am
Blessing
8:30-9:00 am
Opening Remarks
Lisa Rey Thomas, PhD (Tlingit)
Committee Chair
NRN Co-Chair
Announcements
9:00-9:50 am
Plenary Session
The Science OF Storytelling
Moderator
Teshia G. Arambula Solomon, Choctaw
Past Co-Chair, NRN
Co-Director, NARTC
Ballroom
The Heartbeat of Learning.
Melany Cueva, Regina Kuhnley, Anne P. Lanier, Mark Dignan.
10:00-10:15
10:15-12:00
Refreshment Break
Plenary Session
Ballroom
Telling the Other Side of the Story; "The Consequences
of Social, Political and Economic Inequality."
Moderators
Dean Seneca, MPH, MCURP Seneca
Past Co-Chair, NRN
Senior Advisor
Office of the Chief of Public Health Practice
Centers for Disease Control and Prevention
Introduction
Kelly Gonzales, MPH, PhD candidate Cherokee Nation
Co-Chair Elect, NRN
Plenary Session
Siobhan C. Maty, PhD, MPH
Assistant Professor
School of Community Health
Portland State University
Title of Presentation: “What’s all this Fuss about Social Determinants of Health?”
Camara Phyllis Jones, MD, MPH, PhD
Research Director on Social Determinants of Health and Equity National Center for
Chronic Disease Prevention and Health Promotion
Coordinating Center for Health Promotion
Centers for Disease Control and Prevention
Title of Presentation: “"Telling Stories: Allegories on "Race" and Racism"
Angela A. Gonzales, PhD Hopi
Department of Development Sociology and American Indian Studies, Cornell
University
Title of Presentation: “The Importance of Studying Social Determinants in Native
Health Research”
Leo Nolan, Mohawk
Senior Policy Analyst, External Affairs
Office of the Director
Indian Health Service
Title of Presentation: “The Future Director of Social Determinants Research”
Noon-1:30 pm
Lunch on Your Own
1:30-3:00
Breakout Session II
2.1
Tentative Session:
Malama 'Aina; Protecting the Native Hawaiian Environment
Moderator
Maile Taualii
2.2
Corresponding Breakout Session: Telling the Other Side
of the Story; "The Consequences of Social, Political and
Economic Inequality."
Moderators
Dean Seneca & Kelly Gonzales
Ballroom
Medical Mistrust and Less Satisfaction with Health Care among Native Americans Presenting
for Cancer Treatment
Ashleigh Guadagnolo, MD, MPH, University of Texas
Perceived Medical Discrimination Among American Indian Women with Type 2 Diabetes
Kelly Gonzales, MPH, PhD Candidate, Oregon State University
Exploring Social Determinants of Health through Small Group Work-- An interactive session
Group Facilitators-Angela Gonzales, PhD (Hopi)
Kelly Gonzales, MPH, PhD Candidate, (Cherokee) Oregon State University, Co-Chair Elect, NRN
Ashleigh Guadagnolo, MD, MPH, University of Texas
Camara Jones, MD, MPH, PhD, Research Director on Social Determinants of Health and Equity, CDC
Siobhan Maty, PhD, Portland State University, Department of Community Health
Leo Nolan, (Mohawk), Senior Policy Analyst, External Affairs, Office of the Director, IHS
Dean Seneca, MPH, MCURP (Seneca Nation), Past Co-Chair, NRN, Senior Advisor, CDC
2.3 – 2.7
Moderator
Cancer
Maxine Janis
Reducing Cancer Disparities for American Indians in the Rural Intermountain West
Frederick Avis
Community Designed Survey of Cancer Screening Barriers in American Indians Janice
Campbell
Responding to the Needs of Alaska Native Women with Mastectomies Judith M. Muller
Tribal-State-Private Collaboration: Working Together for Colon Health Judith M. Muller
A culturally-grounded behavioral change model for increasing mammography rates
among American Indian women Marlene M. von Friederichs-Fitzwater and Linda Navarro
2.8 -2.12
Moderator
Elders
Telling the stories of elder, female Natives: effects of cultural practices through the
lifespan Saya Bobick
Successful aging through the eyes of Alaska Natives. What it means to be an Elder in
Bristol Bay, Alaska. Jordan Lewis
Risks of fall injuries for Alaska Native Elders, 2000 – 2006 Hillary Strayer
Honoring ways of Alaska Native elders when conducting qualitative research for palliative
care. Christine DeCourtney
American Indian and Alaska Native Elder Health in California. Lauren Smith
3:00 – 3:20 pm
Break
3:20 – 4:50 pm
Breakout Sessions III
3.1 – 3.5
Community Based Participatory Research
Ballroom
Moderator
Integrating narrative into research planning using community participatory research.
Angela Farnsworth
Planting Seeds of Wellness: A story of nurturing and growth within an urban American
Indian community. Cynthia Nahsonhoya
Using Community Advisory Boards to Design and Initiate Environmental Health
Interventions with Wisconsin American Indian Tribes. Jamie Scott
The Native TEACH Partnership: Integrating Tradition, Environment, and Community Health
into a Community-Based Education and Research Project. Janice Brendible
Comparative Effectiveness Research and Research Opportunities in the Face of
Healthcare Reform. Don Warne
3.6 - 3.10
Moderator
Wellness
Finding the Center: Decolonizing Tribal Health Decision-making in an Indigenous
Community. Gail Dana-Sacco
Wellness is a Way of Life: As Identified by the Deg’ Xitan, Athabascan People of Alaska.
LaVerne Demientieff
Finding common ground: Using Alaska Native traditions to disseminate research
Diana Campbell
Using creative and narrative expression in CBPR to identify local health needs for urban
American Indians of the Southwest. Angela Farnsworth
Resilience and Wellbeing of Indigenous People: The Convergence of Storytelling and
Empirical Research. Hamilton McCubbin
3.11 – 3.15
Tobacco
Moderator
Correlates of smoking abstinence among American Indian smokers Steven S. Fu
Extending Success with Elders in Tobacco Prevention and Control Kris Rhodes
Smoking, Chewing, and Cultural Identity: Tobacco Use Patterns among the Yup’ik – The
Center for Alaska Native Health Research (CANHR) Study. Christopher Wolsko
Commercial Tobacco Use, Opinion, and Risk Perception Among Three California American
Indian Tribal Communities. Rebecca Garrow
Tobacco Resistance: Smoking is NOT a Hawaiian Tradition Leimomi Shearer
3.16 – 3.20
Moderator
Data
Beyond the Local RPMS: Using Immunization Data Exchange Technology to Inform
Providers. Cecile Town
A Tale of Two Facilities: The Impact of Immunization Data Exchange Amy Groom
Improving Mortality Data for American Indians and Alaska Natives in the US. Melissa Jim
Uptake of newly recommended vaccines in AI/AN children served by IHS, Tribal, and
Urban Indian facilities. Cheyenne Jim
Using “avoidable hospitalization” indicators to access adequacy of Primary care: the
Indian Health Service (IHS) 1980-1990 Thomas Whitehorse
4:50-5:00 pm
6:00-8:00 pm
Closing Remarks
Philip L. Smith, MD, MPH Dine’
Indian Health Service
Native Research Network, Inc. Board Meeting
Board Member Orientation
Ballroom
Scientific Abstracts
Thursday, August 6, 2008
8:00-8:20 am
Blessing
8:20-8:30 am
Opening Remarks
Kelly Gonzalez and Maile Taualii
Co-Chairs, Native Research Network, Inc.
Announcements
8:30-10:00 am
Breakout Sessions IV
4.1 – 4.3
Moderator
Family Wellness and History
Ballroom
Family Health History: A Demonstration Project Using Personal Stories to Educate Jennifer
Brown
Evaluation of the Family Health History Project Among Urban American Indians and
Alaska Natives in the Pacific Northwest. Meghan Jernigan
Using traditional story telling tasks to assess parenting strengths: Creating the Family
Wellness Profile. Kathryn Kavanagh
4.4 – 4.6
Moderator
Harm Reduction
Harm Reduction Encompassing Syringe Exchange on a Northern Plains Reservation.
Kris FourStar and Elizabeth Rink
Injury Prevention Programs in Aboriginal Community Enterprises Charles Horn
Alaska Workplace Solutions: A Community-University Partnership to Improve Health of
Alaska Native People Lakota Murray
4.7 – 4.10
Moderator
Education
Grasping at the roots: Expanding the bounds of health research and knowledge through
indigenous critical pedagogy. Ramona Beltran
Environmental Health in a Native Context: What are Tribal College Priorities Mary Teri
Haldane-Kennedy
Using the Transcendental Meditation technique to improve educational performance
among students on the Winnebago Tribe of Nebraska and the Passamaquady Tribe of
Maine, 2006-2009. John Boncheff
The Story of Launching Native Health Leaders Valerie Segrest
4.11 – 4.13
Moderator
Grief
Historical Trauma and its effects on a Ni mii puu Family; finding story, healing wounds
Roberta Lynn Tow-le-kit-we-son-my Paul
Camp Coho: The Next Chapter Karen Morgan
Through it, Not Over it: Partnering to Address Grief in the Colville Confederated Tribes.
Zekkethal Vargas-Thomas
10:00-10:15
Break
10:15-1145
Breakout Sessions V
5.1
Panel: From here to there: transition, boundaries and points
of disruption in the delivery of mental health and addictions
services to First Nations, Métis and Inuit peoples
Moderator
Caroline Tait
5.2
Panel: American Indian Family Caregiver Project
Moderator
Rudolph Ryser
5.3
Panel: “Once upon a time there was a need for palliative care
education…”
Moderator
Christine DeCourtney
5.4
Student Presentations
Moderator
Teshia Soloman
11:20am 1:00pm
Awards Luncheon
Conference Closing and Blessing
1:30-3:00 pm
NARCH Investigator’s Town Hall Meeting
Alan Trachtenberg
3:00 – 4:00 pm
2010 Conference Planning Team Meeting
Ballroom
Poster Presentations
Posters can be viewed from 8:00 a.m. Tuesday, August 3 – 5 p.m. Thursday, August 6
P1
Using a “Native Self-Actualization” model to improve health care outcomes for
American Indian/Alaska Native patients. Reddog Sina and Tawa Sina
P2
Community Based Participatory Research: the role of Community Organizers (CO’s)
in Montana Native communities Ada Bends
P3
American Indian and Alaska Native Access to Healthcare through Medicaid.
Rebecca Garrow
P4
Mood Disorder Assessment Validation with Northern Plains Indians. Jacqueline Gray
P5
Prevalence of Diabetes and Associated Risk Factors among California Native
American Adults. Tracy Harjo
P6
Tribal Area Health Board Community Organizing Research to Improve Tribal
Community Health. Kristal Chichlowska
P7
Mobile Women’s Health Unit (MWHU) of the Aberdeen Area IHS: Contribution to
Annual Mammogram Screening. Marilyn Roubidoux
P9
Promoting Mental Health and Well-being within a Native American Community
through Nihii’iina. Christopher Lee
P10
National Children’s Study: A Partnership for Arizona’s Native American Children
Teshia Solomon
P11
Fetal Alcohol Syndrome: The Need for Additional Education. Mitze Lee