Gold Sponsor: Silver Sponsor: Bronze Sponsor: www.aamac.ca Patient Education Day Saturday, October 19, 2013 8:00 a.m. to 4:00 p.m. Hôtel de l’Institute 3535, rue Saint-Denis Montréal, Québec 1-855-229-8189 8:00 Registration & Breakfast 8:30 – 8:35 8:35 – 9:35 9:35 – 9:40 9:40 – 10:40 10:40 – 10:45 Welcome Pam Wishart President AAMAC Prognosis in MDS – Treatment Options for Low Risk/High Risk Patients John Storring, MD, CM, FRCPC Hematologist McGill University Health Centre MDS Patient Story Pam Wishart History of Aplastic Anemia Treatments Lea Bernard, MD, FRCPC Assistant clinical professor, Department of Medicine University of Montreal Aplastic Anemia Patient Story Michelle Joseph 10:45 – 11:00 Break 11:00 – 11:55 PNH in 2013 Dr. Thomas Kiss, MD, PHD, FRCPC Hematologist Hôpital Maisonneuve-Rosemont 11:55 – 12:00 PNH Patient Story Lisa Ross 12:00 to 1:00 Lunch 1:00 – 1:30 AAMAC Update & AGM 1:30 – 2:00 Clinical Trials Iron Overload 2:00 – 2:45 2:45 – 3:00 Break 3:00 – 3:45 Orphan Drug Policy 3:45 – 4:00 Wrap Up John Storring, MD, CM, FRCPC Hematologist McGill University Health Centre April A. Shamy, MD,CM, FRCPC Division of Hematology Jewish General Hospital David K. Lee Director, Policy, Planning and International Affairs Directorate Health Canada Cindy Anthony Executive Director AAMAC