Young Children with Autism Spectrum Disorders Fact Sheet How are Autism Spectrum Disorders (ASD) diagnosed in young children? Early identification of ASD is crucial so the child can begin benefiting from an intensive educational program. Extensive research has demonstrated that intensive intervention during the preschool years results in improved long-term outcomes for children with ASD. ASD can be reliably diagnosed by the age of three and sometimes as early as 18 months. Unfortunately, only about 50 percent of children receive a diagnosis before kindergarten. American Academy of Pediatrics recommends that all children be screened for ASD at 18 and 24 months. Parents are encouraged to talk to their child’s doctor about their child’s development and discuss any concerns. There is no medical test (e.g., brain scan, blood test) for diagnosing ASD. The diagnosis is based on the presence of certain behavioral characteristics. Often diagnosis of an ASD occurs in a two-step process: o Developmental screening: should be completed during well-child checkups and may involve parent report, observation by the doctor, and/or brief questionnaires (e.g., Checklist for Autism in Toddlers) o Comprehensive multidisciplinary evaluation: evaluation should involve a team that includes a physician (e.g., developmental pediatrician, child psychiatrist, or neurologist) and other specialists (e.g., psychologist, speech pathologist) Diagnostic evaluations should: o Diagnose or rule out an ASD, other developmental delays or disorders (e.g., language delay, mental retardation), hearing impairment, and medical conditions (e.g., seizures, lead poisoning) o Assess the child’s interests, strengths, and needs o Provide recommendations for educational programming, medical treatment, and other interventions and also for follow-up assessment and progress monitoring What are some early signs of ASD1 Does not babble, point, or make meaningful gestures by 1 year of age Does not speak one word by 16 months Does not combine two words by 2 years Does not respond to name Loses language or social skills Poor eye contact Doesn't seem to know how to play with toys Excessively lines up toys or other objects Is attached to one particular toy or object Doesn't smile At times seems to be hearing impaired 1 National Institute of Mental Health http://www.nimh.nih.gov/health/publications/autism/completepublication.shtml Created by START 2008 What should families do after their child is diagnosed with ASD? Parents of children under age three should contact their state’s early intervention program Parents of children age three and older should contact their local school district Parents should be aware of their child’s right to a free appropriate public education in the Least Restrictive Environment under Individual with Disabilities Education Act (IDEA) Parents can also look into family programs (e.g., parent and sibling support groups) and financial aid (e.g., Medicaid waiver) What are effective practices for young children with ASD? Effective practices are methods that empirical studies have identified as important for developing speech, language, play, social, self-care, and pre-academic/academic skills. The following are critical in educational intervention for young children with ASD. o Identification and intervention as soon as possible (by at least age 3 ½) o Intensive intervention at home or in a center program, with additional learning opportunities in a variety of community settings on a year round basis for at least 25 hours a week o Highly supportive, structured teaching methods based on behavioral principles that incorporate a variety of strategies to facilitate skill acquisition, generalization, and maintenance o Positive behavioral support techniques for addressing challenging behavior o Individualized intervention to adjust for the wide range of strengths and needs o Curriculum content that addresses the core deficits of ASD: communication and social interaction o Predictability and routine provided throughout the day o Integration with typical children in preschool and/or day care settings o Family involvement in development and implementation of educational plans o Transition from preschool to school is planned and supported o Highly trained staff with low teacher to student ratio o Monitoring and evaluation for decision making and progress measurement Where can parents and professionals go for more information? Websites o Autism Society of America http://www.autism-society.org o Association for Science in Autism Treatment http://www.asatonline.org o Learn the Signs. Act Early http://www.cdc.gov/ncbddd/autism/actearly o Special Education Law and Advocacy http://www.wrightslaw.com Books o Educating Children with Autism (2001) by the National Research Council o Autism spectrum disorders: Interventions and treatments for children and youth (2005) by Richard Simpson. o Young children with disabilities in natural environments: Methods and procedures (2006) by M. Noonan & L. McCormick o Helping Your Child with Autism Spectrum Disorder: A Step-By-Step Workbook for Families by Stephanie Lockshin, Jennifer Gillis, and Raymond Romanczyk o More Than Words: Helping Parents Promote Communication and Social Skills in Children with Autism Spectrum Disorder by Fern Sussman Created by START 2008