Retheorising Women’s Health: Shifting Paradigms and the Biomedical Body Seminar 1 Governance May 27 2009, University of Warwick. Ramphal Building Room 3.41 Introduction & Welcome Deborah Lynn Steinberg 1. Welcome I would like to warmly welcome you to this first of four ESRC seminars on ‘Retheorising Women’s Health: Shifting Paradigms and the Biomedical Body’ Today’s theme is on the question of Governance. We are delighted to welcome our three speakers: Professor Mary Rawlinson (Stoneybrook, SUNY, NY) Professor Sally Sheldon (University of Kent, UK) Professor Maya Goldenberg (University of Guelph, Canada) Our speakers will provide both food for thought and their own perspectives on the interrogative agenda concerning the question of ‘governance’ vis a vis women’s health. Aims We hope today’s workshop will stimulate free ranging, multidisciplinary conversation concerning the relationship of governance to women’s health given radical shifts in the socio-cultural, political, economic and technological landscape of women’s health in this ‘third wave’ period of feminist politics and theory. Thus, our aims are: in part reflexive, as we consider the successes, problems, relevance and purchase of earlier formations of feminist health politics for today’s world in part a consideration of the current complexities of health care praxes, ethics and politics both locally and cross-culturally and the challenges these pose to a feminist understanding and politics of health and in part a projection forward, as we consider what we might argue are the logical or salient trajectories for feminist health politics into the future. 1 The Changing Landscape of Women’s Health and Feminist Health Politics Since the foundational insights of the women’s health movement were forged during the decades from the late 1960s-the new century, there have been in many cases radical transformations in the social, ethical, economic and cultural landscape surrounding women’s health. These include, for example, the convergence of new communications technologies and IT with wider revolutions in biomedical and health technologies , the advent and normalisation of new reproductive and genetic technologies, radical shifts in legal, bioethical and cultural commonsenses and representational contexts concerning questions of bodily autonomy, bodily integrity, kinship and identity. Health inequalities, while they have continued to profoundly underscore women’s divergent social situations and status globally, the forms these inequalities take, and the ways in which they have developed and changed over the past decades, remain radically inconstant. The question of ‘governance’ The question of governance has been a core point of interrogation for feminist analyses of the nexus of gender and health politics, and a core principle and trajectory of feminist health politics and advocacy. My work Certainly, they have formed both an explicit, and in recent years perhaps more implicit, consideration in my own research. In my 1997 book Bodies in Glass: Genetics, Eugenics, Embryo Ethics, I set out three principles analysis in my assessment of IVF and genetics. These principles were inspired by what I understood as an axiomatic principles of the women’s health movement: ‘our bodies, ourselves’. The principles were: ‘privacy’, ‘integrity’, ‘autonomy’: which I understood not only as inalienable rights, and as necessary defences for women in the face of would be and extant state, medical and commonsense incursions, but also as affirmative principles of embodied, healthful and good life for women –for myself as a woman. As I looked over my older work on this subject I found myself wondering if these principles really worked now? For example, What does a principle of ‘integrity’ mean when medical or health practices that I have sought for myself, do involve incursive, dis-integrative interventions on the body? Does this principle hold up in the context of breast cancer? Or when advocating for access to medical or other health practices are a priority agenda? 2 Does a principle of ‘privacy’ continue to hold up? Or has it been made irrelevant by the revolution in communications technologies. By ‘autonomy’, did I mean ‘sovereignty’ in the legalistic sense? A notion of personal ownership of body and self? A right to refuse? A right to comply? Does this concept still fly as an adequate defence of women’s reproductive decisionmaking? Does it work as an affirmative concept of self-identity and embodied well-being? It is interesting for me to consider the degree to which these concepts square with my current interests in governance issues and women’s health: Medicine and medical care as an affective terrain (affective governance): in other words, a concern with feelings and feeling structures and their link with the plausibility of particular health knowledge’s Health and illness as a moral terrain (linking not only questions of agency and obligation: but what I term the imperatives of action (or ethical burden) of medical and scientific knowledge’s and praxes) What makes a ‘good patient’? what are the commonsense and commonemotional principles that shape ‘good’ or ‘bad’ patienthood? Transference and faith: the place of belief and the symbolic in particular health or medical contexts? Key questions 1. what are the forces of ‘governance in the current context of women’s health? What social, political, economic, and cultural processes does ‘governance’ encompass? Would we argue that the notion of governance, traditionally focused on the regulative dimensions of law, health ethics and clinical/scientific protocols be expanded? What would an expansive understanding of governance include? Why, for whom, and in what ways, is governance a central issue facing women’s health and the women’s health movement? 2. How have the terms of governance vis a vis female bodies shifted, for example, in the wake of technological innovation, globalizing markets in health, the impact on the one hand of neoliberal political-economies and on the other, of fundamentalist religious discourses, state policy and politics? 3. How would we define a feminist paradigm of governance and to what degree might earlier agendas and paradigms toward that end need to be rethought? For example, do the axiomatic principles of the early women’s health movement concerning consent, bodily integrity, sovreignty and self determination still have purchase? 3 Schedule for the Seminar 9:30am-10am arrive/check in & coffee/tea 10am-1)-30am Introduction and welcome, Professor Deborah Lynn Steinberg (University of Warwick, UK) 10:30am-11am Professor Mary Rawlinson (Stony Brook, SUNY, New York, USA) 11am-12:00pm Group Discussion 12:00pm-12:45pm Discussion Highlights from Group Rapporteurs 12:45pm-1:45pm Lunch 1:45pm-2:45pm Professor Maya Goldenberg (University of Guelph, Canada) & Professor Sally Sheldon (University of Kent, UK) 2:45pm-3:45pm Group Discussion Discussion 3:45pm-4:40pm Discussion Highlights from Group Rapporteurs 4:30pm-5pm Coffee/Tea Break 5pm Conclusion 4